Recent Posts - DAFNE Online

Oct 27, 2010

SimonC 78 posts

Topic: General Discussion / "Diabetes results to you" Your help requested

I quite liked the ruler design - as it shows the scale is a continuum.

My clinic send me all my results in a letter - and a copy to my GP, I find it really useful as I keep them all, and can see the trends myself, not only for the HBA1c, but the cholesterol as well.

Oct 27, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / Blood sugars since dafne and pump

Well I suppose it can never be perfect as our needs change by the hour, all depends on what hormones and what levels of hormones are washing around at the time......

By the sounds of it though, your hitting the nail square on the head............

Oct 27, 2010

Jennypenny 34 posts

Topic: General Discussion / "Diabetes results to you" Your help requested

I agree Traffic Light system more straight forward , hope this helps

Oct 27, 2010

Jennypenny 34 posts

Topic: General Discussion / Blood sugars since dafne and pump

Yep hourly testing had to up rates between 11ish and 2 ish, still tweaking not perfect yet by any means

Oct 27, 2010

Garry 328 posts

Topic: General Discussion / "Diabetes results to you" Your help requested

I think that the general public would find the 'Traffic Light' version on the right easier to understand.
We can all directly relate to and understand this simple system - which is in everyday use.
The language used as section headers on this page are more striking too and for me appear to appropriately describe the action which needs be undertaken.

Oct 27, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / Driving BG

Dont know if there is a high.....legally.....everyone is different and although i feel rough when i hit 15, i can still function normally......my control used to be quite bad but never has problems with ketoacidosis or any side effect from that....

Thats not to say you wont, if you feel unable to function at a certain level, get some insulin in you...........

Oct 27, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / Blood sugars since dafne and pump

I meant tweaking, sorry........

So you suffered DP, how did you establish your basal rate overnight, hourly tests? At what time do you need to up the delivery rate......

Oct 27, 2010

Jennypenny 34 posts

Topic: General Discussion / Insulin Pumps

Yes i had to do DAFNE before i fitted the criteria for a pump , but doing dafne and then getting the pump have been the 2 best things i have done for my diabetes , i have NEVER had such good blood sugars in all my 30 years as a type 1 diabetic .

Oct 27, 2010

Jennypenny 34 posts

Topic: General Discussion / Blood sugars since dafne and pump

No for someone who has suffered with dp , even my night time sugars have been good

Oct 27, 2010

Derek Brown 32 posts

Topic: General Discussion / Driving BG

I know we've been advised a minimum level for BG before driving, but what about a maximum?

I can wake up in the morning with high-ish BG's but feel fine and drive to work as normal. I've never had any mishap, scares, accidents etc but just realised I'd never been advised if there was a "too high"

Oct 27, 2010

HelenP 218 posts

Topic: General Discussion / Insulin Pumps

I don't think you can get one free as the injection routine is adequate. You occasionally see appeals for funds to enable children to go on pumps. The individual pays for the "accessories" but they are subsidised by the govt. Goodnight..test and off to bed. Helen

Oct 27, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / Insulin Pumps

So it is the same as here pretty much....

The NHS provides free healthcare for all (Medicare), and if you want it faster or something more specialised you go private (health fund- some kind of insurance or money up front).........

Theres not many people that I am aware of that have paid for their own pump or went through privately, that I know of in the UK, no doubt there has been.......

It seems really pricey for you, could you get it free, but have to wait, and who pays for all the things that come with the pump, canullas, tubing etc..........

Oct 27, 2010

HelenP 218 posts

Topic: General Discussion / Insulin Pumps

Where do I start with the health system?

This has not been a good year for me. The diabetes, cancer diagnosis followed by fairly serious surgery, non healing incision and now the pump issue. All up I am out of pocket about $1100 for Dr visits and I spend about $150-$160 a month on medication, strips, needles etc. The actual hospital stay (1 week) was completely covered by my health fund. I have been a member since my early 30s and currently pay just less than $2500 a year. I am hoping they pay for the pump in its entirety. First visit to the Diabetes Educator (necessary to get the pump) will cost $200 and I am not sure how much I will be able to claim. Conservative estimate for the whole year will put me out of pocket between $5-6000.

As I am a retiree (but not a pensioner) once I reach $1126 out of pocket expenses for Dr visits I will get 80% of what the Dr charges back. I have a visit scheduled for 11/11/2010 to get a certificate entitling me to drive. It will (hopefully) be endorsed with "recognises hypoglycaemia...fit to drive". The Dr will charge $66 and I will be out of pocket about half of that. if I reach the threshold before then I will get $52.90 back. Roll on 2011 and the cure by whatever avenue!

So basically we have two platforms...universal health care (Medicare) for all Australian citizens ( and extras! I am assuming you Brits come under the Medicare umbrella but I could be wrong). Then if you want to be able to choose your own Dr, go to the dentist, optometrist etc you join a health fund. There is a tax deduction if you have private health insurance. If you are really sick you get into the public system very quickly but if you require non urgent treatment (eg hip replacement) you are put on a waiting list that can mean a very long wait. Get your pump before you come!

I will hopefully know more on 18/11/2010 but I am being fairly aggressively pursued by a pump manufacturer who is offering to walk me through the process and iron out potential glitches. heaven protect me from sales persons!
Helen

Oct 27, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / Insulin Pumps

I think the only way forward is ginetics to be honest............stem cell research, as I understand is the utilizing of cells that can essentially turn into any cell and perform any function.........

Then what?

Our own antibodies will still be instructed to attack the newly formed cells...........short term yes, cure no........:-(

So how long till you find out about the pump...

Also what is the healthcare system like in australia, I though similar to the UK......(maybe hoping to immagrate one day...lol)

Oct 27, 2010

HelenP 218 posts

Topic: General Discussion / Insulin Pumps

Yep the pump is just until the cure!

Oct 27, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / Blood sugars since dafne and pump

well done from me.............

was there much weaking with your basal doses overnight?

Oct 27, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / Insulin Pumps

lol......nothing less...........

Oct 27, 2010

HelenP 218 posts

Topic: General Discussion / Insulin Pumps

I am constantly surprised when talking to other diabetics the number of them who have not heard about Dafne. I did my course in july 2008 (a work colleague had been referred by her Endo and spoke very highly of the protocols). I understood that there was funding available to run a trial and I was part of that trial. The hospital where I did the course (Mater) no longer offers the course but the Royal Brisbane is currently funded to run Dafne courses. Judging from this forum it seems Dafne is more pervasive in Britain...or at least that is how it seems to me.

I have been a diabetic for more than half my life and am amazed at how far we have come. I had an aunt (diabetic) who "lived" on boiled cabbage in the 50's and look where we are now. Roll on stem cell research! I want nothing less than a CURE!

Helen

Oct 27, 2010

Kentbabe 10 posts

Topic: General Discussion / "Diabetes results to you" Your help requested

hiya David, I prefer the one on the left as it seams to be easier to read nd understand karen

Oct 27, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / Insulin Pumps

Prett much yes, or something similar, DAFNE is one of many educational schemes that basically teaches you about counting carbs, ratios etc with extras like sick day rules, driving, etc......

DAFNE does work, its just that some, like me suffer from dawn phenomonon or increased sensitivity, and thats where the pump would come in handy as it programmabe while you sleep and delivers very small doses.....

I wont be alive the day all diabetics go on a pump, I dont think..........

Pumps dont suit everyone, I mean if everyone was on one then no doubt control would be perfect, but it would probabaly be better than that of a non diabetic, and that for me is not the way I want to look upon my condition...

I assume in australia pump therapy is totally seperate of dafne or any other training.....

Oct 27, 2010

HelenP 218 posts

Topic: General Discussion / Insulin Pumps

Hi Novorapidboi!
I am actually having more than seven injections most days and doing at least 7-8 tests most days with the odd extra 2:00am. I thought that all this Dafne stuff was being "studied" certainly in Australia it is nearly always in the form of trials to check efficacy etc. If we all eventually go on to pumps what does that say about Dafne? Are we "failures" or "super successes" as far as the efficacy of Dafne is concerned?? Or is Dafne the transition phase. I understand you guys in Britain have to have done Dafne before you get your pump. Is this true?
Helen

Oct 27, 2010

Jennypenny 34 posts

Topic: General Discussion / Blood sugars since dafne and pump

Having been diabetic for 30 years , my hba1c results have always been roughly between 10 and 12 (not good) always been put down to having brittle diabetes . Went on dafne in June and put on pump in september and just look at the difference im totally amazed as my diabetic nurse said it looks like the pumps what i needed all along

23/10/10- 9.9,6.6,5.8.6.7,8,7.3,5.0

24/10/10-10.5,7.1,5.4,6.1,5.8,5.1

25/10/10-8.3,6.5,6.9,5.7,6.0,7.9

Oct 27, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / Insulin Pumps

In terms od pumping and the dafne data, I believe you will actually be recording much more than the standard dafne records, this is because you are able to adjust basal doses by the hour as well as give 'dual wave' bolus doses...........so to establish what these doses are, by the hour, you will need to test much more and therefore record much more......the rules are exactly the same with dose adjustment, just more refined..

Oct 27, 2010

marke 681 posts

Topic: General Discussion / "Diabetes results to you" Your help requested

Hi the link points to the correct place, the same place as you originally posted. I just didn't put the full text on the link in the bit that shows on screen.
I'm sure you 'can' send SMS for medical info but I presume it has to be opt in and I would not but that's just a personal opinion.

Oct 26, 2010

Brum_Taffy 13 posts

Topic: General Discussion / "Diabetes results to you" Your help requested

Thanks for the comments and feedback. Thank you marke for making the web link live. It doesn't point to quite the correct place within the site, but at least it gets you close! Please click on the 2nd 'button' at the the top of the page, 'Delivering Results 2 U' to see what this is all about Smile

We are so lucky in Sandwell- an excellent relationship exists between 1e and 2e care teams, Sandwell PCT places diabetes as one of its top priorities and funds our DAFNE programme, and the acute Trust is right behind this project too. If Carlsberg did diabetes, it would probably be in Sandwell- LOL

Incidentally, on our patch texts are already used to send out Chlamydia results and appointment reminders, so we have not had difficulty getting governance approval to send A1c in this way, but only to those that ask for it. A DAFNE graduate helped developed the designs Smile

Oct 27, 2010 SimonC 78 posts	Topic: General Discussion / "Diabetes results to you" Your help requested I quite liked the ruler design - as it shows the scale is a continuum. My clinic send me all my results in a letter - and a copy to my GP, I find it really useful as I keep them all, and can see the trends myself, not only for the HBA1c, but the cholesterol as well.

Oct 27, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / Blood sugars since dafne and pump Well I suppose it can never be perfect as our needs change by the hour, all depends on what hormones and what levels of hormones are washing around at the time...... By the sounds of it though, your hitting the nail square on the head............

Oct 27, 2010 Jennypenny 34 posts	Topic: General Discussion / "Diabetes results to you" Your help requested I agree Traffic Light system more straight forward , hope this helps

Oct 27, 2010 Jennypenny 34 posts	Topic: General Discussion / Blood sugars since dafne and pump Yep hourly testing had to up rates between 11ish and 2 ish, still tweaking not perfect yet by any means

Oct 27, 2010 Garry 328 posts	Topic: General Discussion / "Diabetes results to you" Your help requested I think that the general public would find the 'Traffic Light' version on the right easier to understand. We can all directly relate to and understand this simple system - which is in everyday use. The language used as section headers on this page are more striking too and for me appear to appropriately describe the action which needs be undertaken.

Oct 27, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / Driving BG Dont know if there is a high.....legally.....everyone is different and although i feel rough when i hit 15, i can still function normally......my control used to be quite bad but never has problems with ketoacidosis or any side effect from that.... Thats not to say you wont, if you feel unable to function at a certain level, get some insulin in you...........

Oct 27, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / Blood sugars since dafne and pump I meant tweaking, sorry........ So you suffered DP, how did you establish your basal rate overnight, hourly tests? At what time do you need to up the delivery rate......

Oct 27, 2010 Jennypenny 34 posts	Topic: General Discussion / Insulin Pumps Yes i had to do DAFNE before i fitted the criteria for a pump , but doing dafne and then getting the pump have been the 2 best things i have done for my diabetes , i have NEVER had such good blood sugars in all my 30 years as a type 1 diabetic .

Oct 27, 2010 Jennypenny 34 posts	Topic: General Discussion / Blood sugars since dafne and pump No for someone who has suffered with dp , even my night time sugars have been good

Oct 27, 2010 Derek Brown 32 posts	Topic: General Discussion / Driving BG I know we've been advised a minimum level for BG before driving, but what about a maximum? I can wake up in the morning with high-ish BG's but feel fine and drive to work as normal. I've never had any mishap, scares, accidents etc but just realised I'd never been advised if there was a "too high"

Oct 27, 2010 HelenP 218 posts	Topic: General Discussion / Insulin Pumps I don't think you can get one free as the injection routine is adequate. You occasionally see appeals for funds to enable children to go on pumps. The individual pays for the "accessories" but they are subsidised by the govt. Goodnight..test and off to bed. Helen

Oct 27, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / Insulin Pumps So it is the same as here pretty much.... The NHS provides free healthcare for all (Medicare), and if you want it faster or something more specialised you go private (health fund- some kind of insurance or money up front)......... Theres not many people that I am aware of that have paid for their own pump or went through privately, that I know of in the UK, no doubt there has been....... It seems really pricey for you, could you get it free, but have to wait, and who pays for all the things that come with the pump, canullas, tubing etc..........

Oct 27, 2010 HelenP 218 posts	Topic: General Discussion / Insulin Pumps Where do I start with the health system? This has not been a good year for me. The diabetes, cancer diagnosis followed by fairly serious surgery, non healing incision and now the pump issue. All up I am out of pocket about $1100 for Dr visits and I spend about $150-$160 a month on medication, strips, needles etc. The actual hospital stay (1 week) was completely covered by my health fund. I have been a member since my early 30s and currently pay just less than $2500 a year. I am hoping they pay for the pump in its entirety. First visit to the Diabetes Educator (necessary to get the pump) will cost $200 and I am not sure how much I will be able to claim. Conservative estimate for the whole year will put me out of pocket between $5-6000. As I am a retiree (but not a pensioner) once I reach $1126 out of pocket expenses for Dr visits I will get 80% of what the Dr charges back. I have a visit scheduled for 11/11/2010 to get a certificate entitling me to drive. It will (hopefully) be endorsed with "recognises hypoglycaemia...fit to drive". The Dr will charge $66 and I will be out of pocket about half of that. if I reach the threshold before then I will get $52.90 back. Roll on 2011 and the cure by whatever avenue! So basically we have two platforms...universal health care (Medicare) for all Australian citizens ( and extras! I am assuming you Brits come under the Medicare umbrella but I could be wrong). Then if you want to be able to choose your own Dr, go to the dentist, optometrist etc you join a health fund. There is a tax deduction if you have private health insurance. If you are really sick you get into the public system very quickly but if you require non urgent treatment (eg hip replacement) you are put on a waiting list that can mean a very long wait. Get your pump before you come! I will hopefully know more on 18/11/2010 but I am being fairly aggressively pursued by a pump manufacturer who is offering to walk me through the process and iron out potential glitches. heaven protect me from sales persons! Helen

Oct 27, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / Insulin Pumps I think the only way forward is ginetics to be honest............stem cell research, as I understand is the utilizing of cells that can essentially turn into any cell and perform any function......... Then what? Our own antibodies will still be instructed to attack the newly formed cells...........short term yes, cure no........:-( So how long till you find out about the pump... Also what is the healthcare system like in australia, I though similar to the UK......(maybe hoping to immagrate one day...lol)

Oct 27, 2010 HelenP 218 posts	Topic: General Discussion / Insulin Pumps Yep the pump is just until the cure!

Oct 27, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / Blood sugars since dafne and pump well done from me............. was there much weaking with your basal doses overnight?

Oct 27, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / Insulin Pumps lol......nothing less...........

Oct 27, 2010 HelenP 218 posts	Topic: General Discussion / Insulin Pumps I am constantly surprised when talking to other diabetics the number of them who have not heard about Dafne. I did my course in july 2008 (a work colleague had been referred by her Endo and spoke very highly of the protocols). I understood that there was funding available to run a trial and I was part of that trial. The hospital where I did the course (Mater) no longer offers the course but the Royal Brisbane is currently funded to run Dafne courses. Judging from this forum it seems Dafne is more pervasive in Britain...or at least that is how it seems to me. I have been a diabetic for more than half my life and am amazed at how far we have come. I had an aunt (diabetic) who "lived" on boiled cabbage in the 50's and look where we are now. Roll on stem cell research! I want nothing less than a CURE! Helen

Oct 27, 2010 Kentbabe 10 posts	Topic: General Discussion / "Diabetes results to you" Your help requested hiya David, I prefer the one on the left as it seams to be easier to read nd understand karen

Oct 27, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / Insulin Pumps Prett much yes, or something similar, DAFNE is one of many educational schemes that basically teaches you about counting carbs, ratios etc with extras like sick day rules, driving, etc...... DAFNE does work, its just that some, like me suffer from dawn phenomonon or increased sensitivity, and thats where the pump would come in handy as it programmabe while you sleep and delivers very small doses..... I wont be alive the day all diabetics go on a pump, I dont think.......... Pumps dont suit everyone, I mean if everyone was on one then no doubt control would be perfect, but it would probabaly be better than that of a non diabetic, and that for me is not the way I want to look upon my condition... I assume in australia pump therapy is totally seperate of dafne or any other training.....

Oct 27, 2010 HelenP 218 posts	Topic: General Discussion / Insulin Pumps Hi Novorapidboi! I am actually having more than seven injections most days and doing at least 7-8 tests most days with the odd extra 2:00am. I thought that all this Dafne stuff was being "studied" certainly in Australia it is nearly always in the form of trials to check efficacy etc. If we all eventually go on to pumps what does that say about Dafne? Are we "failures" or "super successes" as far as the efficacy of Dafne is concerned?? Or is Dafne the transition phase. I understand you guys in Britain have to have done Dafne before you get your pump. Is this true? Helen

Oct 27, 2010 Jennypenny 34 posts	Topic: General Discussion / Blood sugars since dafne and pump Having been diabetic for 30 years , my hba1c results have always been roughly between 10 and 12 (not good) always been put down to having brittle diabetes . Went on dafne in June and put on pump in september and just look at the difference im totally amazed as my diabetic nurse said it looks like the pumps what i needed all along 23/10/10- 9.9,6.6,5.8.6.7,8,7.3,5.0 24/10/10-10.5,7.1,5.4,6.1,5.8,5.1 25/10/10-8.3,6.5,6.9,5.7,6.0,7.9

Oct 27, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / Insulin Pumps In terms od pumping and the dafne data, I believe you will actually be recording much more than the standard dafne records, this is because you are able to adjust basal doses by the hour as well as give 'dual wave' bolus doses...........so to establish what these doses are, by the hour, you will need to test much more and therefore record much more......the rules are exactly the same with dose adjustment, just more refined..

Oct 27, 2010 marke 681 posts	Topic: General Discussion / "Diabetes results to you" Your help requested Hi the link points to the correct place, the same place as you originally posted. I just didn't put the full text on the link in the bit that shows on screen. I'm sure you 'can' send SMS for medical info but I presume it has to be opt in and I would not but that's just a personal opinion.

Oct 26, 2010 Brum_Taffy 13 posts	Topic: General Discussion / "Diabetes results to you" Your help requested Thanks for the comments and feedback. Thank you marke for making the web link live. It doesn't point to quite the correct place within the site, but at least it gets you close! Please click on the 2nd 'button' at the the top of the page, 'Delivering Results 2 U' to see what this is all about We are so lucky in Sandwell- an excellent relationship exists between 1e and 2e care teams, Sandwell PCT places diabetes as one of its top priorities and funds our DAFNE programme, and the acute Trust is right behind this project too. If Carlsberg did diabetes, it would probably be in Sandwell- LOL Incidentally, on our patch texts are already used to send out Chlamydia results and appointment reminders, so we have not had difficulty getting governance approval to send A1c in this way, but only to those that ask for it. A DAFNE graduate helped developed the designs