Recent Posts - DAFNE Online

Nov 4, 2010

Peter B 4 posts

I have recently started using the iPhone app to record and upload my meter readings. It is really good, I wish I had realised it existed before.

Nov 4, 2010

Jennifer Iden 11 posts

Topic: General Discussion / Insulin Pumps

Hello again. I've just had confirmation that I get a pump on 15th Nov, and having decided that it was for me, I am now really nervous!

Nov 4, 2010

caroline15 45 posts

Topic: General Discussion / App

I wish she would, I have to tell her to do everything. She got the ipod touch for the diabetes diary app, she was bought it so she could keep her records but she doesn't do it. I bought her a contour usb to encourage her to test at school but she still doesn't. I know it sounds as if I take the easy way out and just buy things but I have MS which brings great fatigue and I am a single parent too.

We've been at the gp's this morning because although her ketones were only 1.2 this morning she was complaining about her pain in the stomach. The thyroid results are normal. The doctor has given her Ranitidine as he is suspecting it is stomach acid.

Her bloods have been

21.35 38 Lantus
22.19 10 mmol/L 40g carb 10 nova did less than 12 as upped lantus

03.16 18 mmol/L ketones.0.1 0+6 nova
07.42 24.8 mmol/L ketones 1.2 9+8 nova she thought bfast was 30g
08.26 40g carb
10.27 HI ketones 1.7 80g carb 34 nova (24 + 10)

The gp wants to see us again in a week.

I've rung the DSN and left a message for him to ring me.

Nov 4, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / Insulin Pumps

Well done dude..............the hard work will pay off............im jealous.....

Nov 4, 2010

Davejg 6 posts

Topic: General Discussion / Insulin Pumps

Hi everyone
Well after reading a lot of good comments on here I have now taken the plunge. I started on my medtronic pump last week and must say I love it. It was hard work trying to keep control of my highs and lows on injections and depression because it didnt matter how carefull you are never seemed to get it quite right and always felt like crap. I am actually feeling a lot happier in myself.LOL hope I am not speaking to soon.
Its early days yet and a lot more hard work to do but already feel a lot better and my blood sugars on the whole have been much better and been more stable including to a certain extent it has helped a lot with the dawn phenomenon.
My specialist nurse has been absolutely brilliant and calls me everyday even as late as 10pm to tweek the basal rate if needed.
Being diabetic for so long carb counting has never been a problem to me because that was the way 38 years ago, in those days 10g of carbs was called a line and you had to strictly stick to the amount of carbs you could have. I was on 27 lines which had to be split througout the day and you always had to have 3 lines at bedtime whether you wanted it or not. How things have changed with the new insulins.
Have also been told of a bum bag by my diabetic nursethat you can use for pump users the one from medtronic is Â£21 which I think is quite expensive,look at www.spibelt.com and they do one especially for pump users the cost is in dollars and works out at about Â£11 with free postiage and I also have the codes for a 15% discount.
I am sure things are not going to be easy but am very confident know that I am going in the right direction

Nov 4, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / Insulin Pumps

You dont count the carbs in your salads do you?

What amounts do you get from these scales, is it worth it.....I suppose the pump can deal with these tiny amounts....!!

Nov 4, 2010

HelenP 218 posts

Topic: General Discussion / Insulin Pumps

Wow, have I got cold feet! Helen

Nov 4, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / App

Has your daughter ever been involved directly with testing and carbs?

If not now is the time...... Smile

Nov 3, 2010

caroline15 45 posts

Topic: General Discussion / App

I've bought DiabetesDiary, looks ok so far. At least there's no chance of me mixing up our records (says she who injected lantus instead of novarapid tonight, I think I need a sleep!)

Nov 3, 2010

caroline15 45 posts

Topic: General Discussion / App

Thanks Simon, I'll just have to keep on trying the other apps. At least that will make sure our readings won't get mixed up.

Nov 3, 2010

Simon 578 posts

Topic: General Discussion / App

Hi Caroline,

The app stores all entries that you input natively on to the phone, thus you wouldn't be able to share the app with your daughter without seeing each other's entries. In terms of uploading to the site, the app will log in as the user you save in the settings page, and upload any changes since the last upload to that user account. Theoretically you could put your username/password in, then add an entry, then put your daughter's username and password in and do the same. This would show both entries in the app, but you would only see your own entries when you logged in to the site.

Having said that, this is quite long winded and there is a lot of scope for problems so I wouldn't recommend it.

Sorry I can't be the bringer of better news.

Simon

Nov 3, 2010

caroline15 45 posts

Topic: General Discussion / App

Thanks.

Will do.

Nov 3, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / App

WOW thats a high HbA1c, she must be feeling terrible, and cant be good for the exams...................I hope they can source the problem quickly, if it is the thyroid they can prescribe pills and you might see a reaction to insulin..............

Keep us posted.............

Nov 3, 2010

caroline15 45 posts

Topic: General Discussion / App

Garry, Yes, I could keep ketone records in the contents but I use the Dafne online diary for myself. Does anyone know if you can keep records for two people?

Novo , her hba1c was 12.5 yesterday, up from 10.4 in July which was up from 8.7 the time before. I have the dp (going to have cgm soon to confirm this) but I didn't think that she was having that as it is already massively high at 3am.

We're going to bump up the lantus another 2 tonight and see what happens. Hopefully she will be able to go to school tomorrow. She's got some gcse's this month - they do them so early now, I was 16 when I did mine and she was only 14 in August.

Nov 3, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / App

It might be the thyroid as you wouldn't expect weight gain with high blood sugar.....as the weight piles on, the need for insulin goes up......I should know...lol.....

I think you need to bump up her nightime dose and do more 3am tests...........eventually it will come down, unless there is dawn phenomenon......has she has experienced this before...

I wake up 17-18 every morning.....only a pump will sort that......what was her last HbA1c....if it wad above 8 and there's dawn phenomenon....that might be enough to fast track the pump.......remember it takes a lot more work than DAFNE....and it will be mostly your work as your more experienced...

Nov 3, 2010

emmacool 17 posts

Topic: DUAG Committee / Repose Study - Pump v Injections

hi brian would you mind sending me more info on the study ? emma x

Nov 3, 2010

Garry 328 posts

Topic: General Discussion / App

Have to admit to keeping details of my limited ketone records in the comments section of my DAFNE Online diary. Would that work for you?

Nov 3, 2010

caroline15 45 posts

Topic: General Discussion / App

She's 14 and is in the queue for a pump. The 3am tests are all in the 20's or HI, even when her bg was 7 before bed. We have been correcting on the basis that one unit takes her down 2.5 so she's been having 6-8 units correction at 3am and still waking with high bloods.

We have increased her lantus from 23 to 36 now and her ratio to 3 units to 1 cp. Previously her blood used to drop overnight with the lantus so I have been scared to increase it too much (I worry that she won't wake up). When she was at clinic yesterday she'd grown 2cm (to 169) and put on 9kg (to 5 Cool

, this is since July this year (they're running tests on her thyroid to see if that's why she's put on so much weight).

These doses seem to work ok in waking hours, which is why we keep getting released from the ward when she's been admitted for ketones. I definitely need to be keeping a record for her so that I can show the hospital and hopefully they will take some action.

Nov 3, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / App

How old is your daughter...........has a pump been mentioned.........??

What are the conclusions from the 3am tests.......have you reached the maximum dose without going hypo.....

I assume as a dafne graduate you are incorparating the principals into your daughters regime - - ASSUMING ITS MDI?

Nov 3, 2010

caroline15 45 posts

Topic: General Discussion / App

I'd like to be able to keep a record for my daughter similar to what I have on the Dafne app and wondered if there was any that also had a field for ketones. We are having great fun (!) with them at the moment, 6.2 yesterday - luckily we were at the clinic and they sent us straight up to the children's ward but of course the ketones and blood sugars came down and they sent us home again in the evening. Ketones 1.5, blood 22 at lunchtime today (after correction doses at 3am and 7am and no food), not as high but still too high for school.

As my daughter isn't keeping a written record I was hoping that I could keep one on my ipod so that I can show the hospital what doses she's had (including the 3am doses she's had every day for the last fortnight) and hopefully they would see that we are doing whatever we can and it's still not working.

Thanks for any advice.

Nov 3, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / App

Thats a shame, sorry about that, theres several out there, just try all the free ones and pick which on suits best.........

Is it specifically ketones you want to record...?

Nov 3, 2010

caroline15 45 posts

Topic: General Discussion / App

I've done a search but it only appears to be Android which I don't have. Thanks for your suggestion anyway.

Nov 3, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / App

I am on Android but use an app called on track....it will let you input blood glucose, insulin, carbohydrates and can display reports and graphs on those mentioned..........I also think there is some degree of customizing that can be done in order for you to input ketone levels, I know at least you can record comments and any other info within the notes section of that particular day...

Search for it and give it a go.......

Good Luck.....

Nov 3, 2010

caroline15 45 posts

Topic: General Discussion / App

I have the dafne app on my ipod touch for my diabetes records and think it is great.

My 14 year old daughter is also Type 1 and we are really struggling at the moment with high bloods and ketones (for over 2 months now). I'd like to be able to keep a diary of her readings etc on my ipod as she is not keeping a record herself - she starts off well but then it trails off.

Can anyone recommend an app (is there one that can record ketones?) preferably free. I've tried Glucose Buddy and couldn't even find out how to enter how much insulin she'd had (maybe I'm tired after a fortnight of 3am testing and correcting!). I also tried Diabetes log and didn't find easy either.

I'd love something that is as easy to use as the dafne app, is there anything out there that you recommend?

Or is it even possible to have two users records on the dafne app?

Here's hoping Smile

Thanks

Caroline

Nov 3, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / I'm New

A warm welcome from me, hope you can start a family soon......

Nov 4, 2010 Peter B 4 posts	Topic: General Discussion / iPhone App I have recently started using the iPhone app to record and upload my meter readings. It is really good, I wish I had realised it existed before.

Nov 4, 2010 Jennifer Iden 11 posts	Topic: General Discussion / Insulin Pumps Hello again. I've just had confirmation that I get a pump on 15th Nov, and having decided that it was for me, I am now really nervous!

Nov 4, 2010 caroline15 45 posts	Topic: General Discussion / App I wish she would, I have to tell her to do everything. She got the ipod touch for the diabetes diary app, she was bought it so she could keep her records but she doesn't do it. I bought her a contour usb to encourage her to test at school but she still doesn't. I know it sounds as if I take the easy way out and just buy things but I have MS which brings great fatigue and I am a single parent too. We've been at the gp's this morning because although her ketones were only 1.2 this morning she was complaining about her pain in the stomach. The thyroid results are normal. The doctor has given her Ranitidine as he is suspecting it is stomach acid. Her bloods have been 21.35 38 Lantus 22.19 10 mmol/L 40g carb 10 nova did less than 12 as upped lantus 03.16 18 mmol/L ketones.0.1 0+6 nova 07.42 24.8 mmol/L ketones 1.2 9+8 nova she thought bfast was 30g 08.26 40g carb 10.27 HI ketones 1.7 80g carb 34 nova (24 + 10) The gp wants to see us again in a week. I've rung the DSN and left a message for him to ring me.

Nov 4, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / Insulin Pumps Well done dude..............the hard work will pay off............im jealous.....

Nov 4, 2010 Davejg 6 posts	Topic: General Discussion / Insulin Pumps Hi everyone Well after reading a lot of good comments on here I have now taken the plunge. I started on my medtronic pump last week and must say I love it. It was hard work trying to keep control of my highs and lows on injections and depression because it didnt matter how carefull you are never seemed to get it quite right and always felt like crap. I am actually feeling a lot happier in myself.LOL hope I am not speaking to soon. Its early days yet and a lot more hard work to do but already feel a lot better and my blood sugars on the whole have been much better and been more stable including to a certain extent it has helped a lot with the dawn phenomenon. My specialist nurse has been absolutely brilliant and calls me everyday even as late as 10pm to tweek the basal rate if needed. Being diabetic for so long carb counting has never been a problem to me because that was the way 38 years ago, in those days 10g of carbs was called a line and you had to strictly stick to the amount of carbs you could have. I was on 27 lines which had to be split througout the day and you always had to have 3 lines at bedtime whether you wanted it or not. How things have changed with the new insulins. Have also been told of a bum bag by my diabetic nursethat you can use for pump users the one from medtronic is Â£21 which I think is quite expensive,look at www.spibelt.com and they do one especially for pump users the cost is in dollars and works out at about Â£11 with free postiage and I also have the codes for a 15% discount. I am sure things are not going to be easy but am very confident know that I am going in the right direction

Nov 4, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / Insulin Pumps You dont count the carbs in your salads do you? What amounts do you get from these scales, is it worth it.....I suppose the pump can deal with these tiny amounts....!!

Nov 4, 2010 HelenP 218 posts	Topic: General Discussion / Insulin Pumps Wow, have I got cold feet! Helen

Nov 4, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / App Has your daughter ever been involved directly with testing and carbs? If not now is the time......

Nov 3, 2010 caroline15 45 posts	Topic: General Discussion / App I've bought DiabetesDiary, looks ok so far. At least there's no chance of me mixing up our records (says she who injected lantus instead of novarapid tonight, I think I need a sleep!)

Nov 3, 2010 caroline15 45 posts	Topic: General Discussion / App Thanks Simon, I'll just have to keep on trying the other apps. At least that will make sure our readings won't get mixed up.

Nov 3, 2010 Simon 578 posts	Topic: General Discussion / App Hi Caroline, The app stores all entries that you input natively on to the phone, thus you wouldn't be able to share the app with your daughter without seeing each other's entries. In terms of uploading to the site, the app will log in as the user you save in the settings page, and upload any changes since the last upload to that user account. Theoretically you could put your username/password in, then add an entry, then put your daughter's username and password in and do the same. This would show both entries in the app, but you would only see your own entries when you logged in to the site. Having said that, this is quite long winded and there is a lot of scope for problems so I wouldn't recommend it. Sorry I can't be the bringer of better news. Simon

Nov 3, 2010 caroline15 45 posts	Topic: General Discussion / App Thanks. Will do.

Nov 3, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / App WOW thats a high HbA1c, she must be feeling terrible, and cant be good for the exams...................I hope they can source the problem quickly, if it is the thyroid they can prescribe pills and you might see a reaction to insulin.............. Keep us posted.............

Nov 3, 2010 caroline15 45 posts	Topic: General Discussion / App Garry, Yes, I could keep ketone records in the contents but I use the Dafne online diary for myself. Does anyone know if you can keep records for two people? Novo , her hba1c was 12.5 yesterday, up from 10.4 in July which was up from 8.7 the time before. I have the dp (going to have cgm soon to confirm this) but I didn't think that she was having that as it is already massively high at 3am. We're going to bump up the lantus another 2 tonight and see what happens. Hopefully she will be able to go to school tomorrow. She's got some gcse's this month - they do them so early now, I was 16 when I did mine and she was only 14 in August.

Nov 3, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / App It might be the thyroid as you wouldn't expect weight gain with high blood sugar.....as the weight piles on, the need for insulin goes up......I should know...lol..... I think you need to bump up her nightime dose and do more 3am tests...........eventually it will come down, unless there is dawn phenomenon......has she has experienced this before... I wake up 17-18 every morning.....only a pump will sort that......what was her last HbA1c....if it wad above 8 and there's dawn phenomenon....that might be enough to fast track the pump.......remember it takes a lot more work than DAFNE....and it will be mostly your work as your more experienced...

Nov 3, 2010 emmacool 17 posts	Topic: DUAG Committee / Repose Study - Pump v Injections hi brian would you mind sending me more info on the study ? emma x

Nov 3, 2010 Garry 328 posts	Topic: General Discussion / App Have to admit to keeping details of my limited ketone records in the comments section of my DAFNE Online diary. Would that work for you?

Nov 3, 2010 caroline15 45 posts	Topic: General Discussion / App She's 14 and is in the queue for a pump. The 3am tests are all in the 20's or HI, even when her bg was 7 before bed. We have been correcting on the basis that one unit takes her down 2.5 so she's been having 6-8 units correction at 3am and still waking with high bloods. We have increased her lantus from 23 to 36 now and her ratio to 3 units to 1 cp. Previously her blood used to drop overnight with the lantus so I have been scared to increase it too much (I worry that she won't wake up). When she was at clinic yesterday she'd grown 2cm (to 169) and put on 9kg (to 5, this is since July this year (they're running tests on her thyroid to see if that's why she's put on so much weight). These doses seem to work ok in waking hours, which is why we keep getting released from the ward when she's been admitted for ketones. I definitely need to be keeping a record for her so that I can show the hospital and hopefully they will take some action.

Nov 3, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / App How old is your daughter...........has a pump been mentioned.........?? What are the conclusions from the 3am tests.......have you reached the maximum dose without going hypo..... I assume as a dafne graduate you are incorparating the principals into your daughters regime - - ASSUMING ITS MDI?

Nov 3, 2010 caroline15 45 posts	Topic: General Discussion / App I'd like to be able to keep a record for my daughter similar to what I have on the Dafne app and wondered if there was any that also had a field for ketones. We are having great fun (!) with them at the moment, 6.2 yesterday - luckily we were at the clinic and they sent us straight up to the children's ward but of course the ketones and blood sugars came down and they sent us home again in the evening. Ketones 1.5, blood 22 at lunchtime today (after correction doses at 3am and 7am and no food), not as high but still too high for school. As my daughter isn't keeping a written record I was hoping that I could keep one on my ipod so that I can show the hospital what doses she's had (including the 3am doses she's had every day for the last fortnight) and hopefully they would see that we are doing whatever we can and it's still not working. Thanks for any advice.

Nov 3, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / App Thats a shame, sorry about that, theres several out there, just try all the free ones and pick which on suits best......... Is it specifically ketones you want to record...?

Nov 3, 2010 caroline15 45 posts	Topic: General Discussion / App I've done a search but it only appears to be Android which I don't have. Thanks for your suggestion anyway.

Nov 3, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / App I am on Android but use an app called on track....it will let you input blood glucose, insulin, carbohydrates and can display reports and graphs on those mentioned..........I also think there is some degree of customizing that can be done in order for you to input ketone levels, I know at least you can record comments and any other info within the notes section of that particular day... Search for it and give it a go....... Good Luck.....

Nov 3, 2010 caroline15 45 posts	Topic: General Discussion / App I have the dafne app on my ipod touch for my diabetes records and think it is great. My 14 year old daughter is also Type 1 and we are really struggling at the moment with high bloods and ketones (for over 2 months now). I'd like to be able to keep a diary of her readings etc on my ipod as she is not keeping a record herself - she starts off well but then it trails off. Can anyone recommend an app (is there one that can record ketones?) preferably free. I've tried Glucose Buddy and couldn't even find out how to enter how much insulin she'd had (maybe I'm tired after a fortnight of 3am testing and correcting!). I also tried Diabetes log and didn't find easy either. I'd love something that is as easy to use as the dafne app, is there anything out there that you recommend? Or is it even possible to have two users records on the dafne app? Here's hoping Thanks Caroline

Nov 3, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / I'm New A warm welcome from me, hope you can start a family soon......