Recent Posts - DAFNE Online

Oct 21, 2010

kelly 2 posts

Topic: General Discussion / not good !! help

hi guys x thankyou all so much im on track now after getting my blood test results hba1c was 17 but no other damage done so thats made me feel better my leg is feeling better the numb feeling has gone and i feel happy now just having my humalog 3 times a day and my lantus at night! getting my head around that for now and in a few weeks im gonna start dafne again but i will be e mailing u all for help as i have forgot so much . .
thankyou all again kelly xx

Oct 21, 2010

marke 681 posts

Topic: General Discussion / Dafne refresher courses

I don't think the refresher course being referred to in tihs thread is the same as the refresher course I was talking about, yours sounds more like the 6 week and 6 month get togethers after the original course. It may be that your DAFNE centre does them on a continual basis on over a number of years I don't know. Most centres do not do this due to funding I believe.

Oct 21, 2010

marke 681 posts

Topic: General Discussion / Dafne refresher courses

Kentbabe, your 6 monthly as cancelled because your Educator had problems outside work as well as a very heavy workload. She has promised to contact theose that had their meeting cancelled in the near future. I only know because its my DAFNE Centre and someone I know locally was in the same situation and wanted me to find out what was happening.

Oct 21, 2010

marke 681 posts

Topic: General Discussion / Shortage of test strips

Alan, I wasn't clear enough. For example as you say Accu-chek strips are manufactured in Germany. When they are manufactured they are labelled for each market they are destined for i.e UK packs have UK leaflets and labels, Greek packs have greek labels and leaflets. We in the UK talk to the greek pharmacuetical wholesalers who can sell their strips to us for less than it costs in the UK even with the import costs. We therefore import them into the UK and open the packs, replace the leaflets and stick on an english label and then sell them to UK pharmacies. This is completely legal and normal practice. Its more likely with insulin, on many occasions my novarapid or levemir pens would have white labels stuck on them with english details rather than having the english text 'embossed' onto the pen. This tells me they have been imported. With my current pharmacy the english info is always 'embossed' onto the pens so I know they are not imported. The insulin inside is exactlythe same, its just its has been on a journey.
Given the changes in the euro etc, it is possible the trade is going in the other direction as well, the wholesalers can make money by selling
UK drugs into the rest of the EU and this could potentially cause shortages in the UK market. I wasn't aware it was happening though, my company only imports at the moment we don't export.

Oct 21, 2010

Alan 49 284 posts

Topic: General Discussion / Shortage of test strips

What a strange world we live in, Mark. So something can be manufactured in the UK, transported to the EU, relabelled for the UK and then transported back to the UK - is that what you are saying? But the Accu-Chek test strips are manufactured in Germany, so that wouldn't apply to them.

Oct 21, 2010

Jennypenny 34 posts

Topic: General Discussion / Dafne refresher courses

Ive got my 6 month meeting in December

Oct 21, 2010

Jennypenny 34 posts

Topic: General Discussion / Insulin Pumps

Well Thunderbolt did you do it ..........

Jenny

Oct 21, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / Woops

Forgot to take my morning dose of background and breakfast quick acting, all because I was amazed at my low morning, yes low for me, blood reading. Not happy.......although reasonably stable....reasonably....

Oct 21, 2010

Kentbabe 10 posts

Topic: General Discussion / Dafne refresher courses

Hiya I've not heard of the refresher courses but I'm hoping that I will be getting a letter as to the date of the yearly up date. Has anyone else had there 6 monthly meeting cancelled?

Oct 20, 2010

Jenny Spollen 13 posts

Topic: General Discussion / Calling any and all archaeologists!

Cheers folks,

Cheered me up no end to see that I'm not the only one..... Very Happy

Ah yes....the fabled pump. Slowly going through the hoops and hoping to get my hands on one
Once again THANK YOU!

Jenny

Oct 20, 2010

marke 681 posts

Topic: General Discussion / type 1 during pregnancy- help!

Claire, you are more likely to get an answer to this question if you post it in the 'Questions for HCPs' forum. Obviously its not a situation I will ever be in but as I understand it you insulin requirements should return to normal after pregnancy. If you don't get a response on the other forums I would suggest you discuss your concerns with your DAFNE educator or your Diabetes Team, these people should be experts on the subject and hopefully explain all the likely changes to you.
Congratulations and good luck by the way....

Oct 20, 2010

marke 681 posts

Topic: General Discussion / Shortage of test strips

ah, but Alan what they probably didn't tell you was the drugs then get imported back into the UK and sold in the UK. Its often cheaper to source branded drugs in the EU and then relabel them for the UK market. This is common practice and so drugs being restricted by the makers in the UK would not really affect the market hugely. However as I say I have had the problem as well so I'm as interested as you to know why. What we need is a mole in the manufacturers company to tell us what is really going on. Sadly I don't know anyone, does any one else ?

Oct 20, 2010

claireadams 12 posts

Topic: General Discussion / type 1 during pregnancy- help!

Has anyone got any hints or suggestions how to control diabetes during pregnancy?? As soon as i conceived i seemed to be resistant to insulin and am not on HUGE amounts and still increasing it. Im hoping that when i give birth i'll go back to taking the amount of units i was on before? or will my body get used to this amount and i'll still be on it? Any tips on being pregnant with Type 1 will be useful

Thanks Claire

Oct 20, 2010

Alan 49 284 posts

Topic: General Discussion / Shortage of test strips

I have been told that last week, on the One Show (on BBC1), there was a piece about a cancer patient who was having trouble getting the drugs prescribed to treat her condition. The programme went on to say that after investigation, it was found that drug companies and wholesalers were restricting supplies to UK pharmacies because of the weakness of the Pound. They were maximising their profits by shipping more of their products to European countries - hence the shortages in the UK. I didn't see the programme myself, but it sounds feasible. On searching the BBC website, I found the following page: http://news.bbc.co.uk/1/hi/health/8516080.stm which is dated in February this year and would seem to be about the same problem. I wonder whether this was the cause of the problem I had.

Oct 20, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / Calling any and all archaeologists!

Hey there..........

NiVZ is correct, on the forum www.diabetessupport.co.uk there is a female archeologist who goes by the name of SilentAssasin1642.

She is actually on a pump, but everyone on a pump needs to be trained to the same principals and standards as dafne, if not better.

I reccomend signing up over there and giving her a PM, you might find the answers your looking for.

Good luck...........

nrb

Oct 20, 2010

NiVZ 82 posts

Topic: General Discussion / Calling any and all archaeologists!

Hi Jenny,

I know of one other female diabetic archeaologist who posts on another diabetes forum I use. Don't think she is DAFNE trained so probably not on here tho.

NiVZ

Oct 20, 2010

Jenny Spollen 13 posts

Topic: General Discussion / Calling any and all archaeologists!

Hi all,
I've been a Diabetic for 20 odd years at this stage and completed the DAFNE course a year ago. best thing ever.

However, I work as an archaeologist and the huge array of variables that come with day-to-day work on a site especially as regards physical activity, it's unpredicability etc and the havoc it can reep in your hourly, never mind daily, BG levels is to say the least annoying.

I have also yet to meet another diabetic muck-shoveller and would be really interested to know if there are others in the same field and how things are working out for them Very Happy

Jenny

Oct 20, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / not good !! help

Its good you have finally realised that you cant go on the way you have been............sometimes for most people that is all they need to change the way they control diabetes.......the time this takes varies for each person........

I would say 8 out of 12 years being diabetic were spent not really knowing how to manage it.......

Good luck at the doctors...

Oct 19, 2010

claireadams 12 posts

Topic: General Discussion / not good !! help

Hi Kelly,
I got type 1 diabetes 4 years ago during pregnancy and when i gave birth i lost so much weight through out of control diabetes that everyone was saying how skinny and ill i looked (i loved it!- ate what i liked and never gained a pound)... then over the years it actually made me ill.. the symptoms of high bg just werent worth it anymore and after 2 bouts in hospital (one in intensive care) and a young son to look after i just had to sort it out.... unfortunately with the control came weight gain, but i am much healthier and can live a normal life. I get help now with having an eating disorder, and to be honest i still struggle with the amount of weight i have gained, but it is worth it. I think with a balanced diet and exercise you can keep your weight in check without using your insulin. I really think you should look into getting help with having an eating disorder (you may not think you have but anyone who uses insulin to loose weight is risking their life). Please take it from someone who knows! I really hope you get healthy again and get back on track with dafne for the sake of your children... Good luck, Claire
ps i had cognitive behavioural therapy, it really helped me

Oct 19, 2010

marke 681 posts

Topic: General Discussion / Dafne refresher courses

Hi Jennifer Iden, yes its me you contact about being 'promoted' from a user to a graduate, just contact me via the 'contact us' link at the
bottom of every page or via the 'message inbox' in the right hand menu. We can then sort out what details we need from you to do it.

Oct 19, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / Dafne refresher courses

how many folk attend..........is 3 hours enough............

Oct 19, 2010

emmacool 17 posts

Topic: General Discussion / Insulin Pumps

good luck thunderbolt if you get the chance ask about the new omnipod its wireless! emma x

Oct 19, 2010

emmacool 17 posts

Topic: General Discussion / Dafne refresher courses

ive been on a few refresher courses and find them really usefull to update my dafne knowledge because i keep forgeting stuff lol

Oct 19, 2010

emmacool 17 posts

Topic: DUAG Committee / workstream 2

sounds good to me em x


Oct 21, 2010 kelly 2 posts	Topic: General Discussion / not good !! help hi guys x thankyou all so much im on track now after getting my blood test results hba1c was 17 but no other damage done so thats made me feel better my leg is feeling better the numb feeling has gone and i feel happy now just having my humalog 3 times a day and my lantus at night! getting my head around that for now and in a few weeks im gonna start dafne again but i will be e mailing u all for help as i have forgot so much . . thankyou all again kelly xx

Oct 21, 2010 marke 681 posts	Topic: General Discussion / Dafne refresher courses I don't think the refresher course being referred to in tihs thread is the same as the refresher course I was talking about, yours sounds more like the 6 week and 6 month get togethers after the original course. It may be that your DAFNE centre does them on a continual basis on over a number of years I don't know. Most centres do not do this due to funding I believe.

Oct 21, 2010 marke 681 posts	Topic: General Discussion / Dafne refresher courses Kentbabe, your 6 monthly as cancelled because your Educator had problems outside work as well as a very heavy workload. She has promised to contact theose that had their meeting cancelled in the near future. I only know because its my DAFNE Centre and someone I know locally was in the same situation and wanted me to find out what was happening.

Oct 21, 2010 marke 681 posts	Topic: General Discussion / Shortage of test strips Alan, I wasn't clear enough. For example as you say Accu-chek strips are manufactured in Germany. When they are manufactured they are labelled for each market they are destined for i.e UK packs have UK leaflets and labels, Greek packs have greek labels and leaflets. We in the UK talk to the greek pharmacuetical wholesalers who can sell their strips to us for less than it costs in the UK even with the import costs. We therefore import them into the UK and open the packs, replace the leaflets and stick on an english label and then sell them to UK pharmacies. This is completely legal and normal practice. Its more likely with insulin, on many occasions my novarapid or levemir pens would have white labels stuck on them with english details rather than having the english text 'embossed' onto the pen. This tells me they have been imported. With my current pharmacy the english info is always 'embossed' onto the pens so I know they are not imported. The insulin inside is exactlythe same, its just its has been on a journey. Given the changes in the euro etc, it is possible the trade is going in the other direction as well, the wholesalers can make money by selling UK drugs into the rest of the EU and this could potentially cause shortages in the UK market. I wasn't aware it was happening though, my company only imports at the moment we don't export.

Oct 21, 2010 Alan 49 284 posts	Topic: General Discussion / Shortage of test strips What a strange world we live in, Mark. So something can be manufactured in the UK, transported to the EU, relabelled for the UK and then transported back to the UK - is that what you are saying? But the Accu-Chek test strips are manufactured in Germany, so that wouldn't apply to them.

Oct 21, 2010 Jennypenny 34 posts	Topic: General Discussion / Dafne refresher courses Ive got my 6 month meeting in December

Oct 21, 2010 Jennypenny 34 posts	Topic: General Discussion / Insulin Pumps Well Thunderbolt did you do it .......... Jenny

Oct 21, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / Woops Forgot to take my morning dose of background and breakfast quick acting, all because I was amazed at my low morning, yes low for me, blood reading. Not happy.......although reasonably stable....reasonably....

Oct 21, 2010 Kentbabe 10 posts	Topic: General Discussion / Dafne refresher courses Hiya I've not heard of the refresher courses but I'm hoping that I will be getting a letter as to the date of the yearly up date. Has anyone else had there 6 monthly meeting cancelled?

Oct 20, 2010 Jenny Spollen 13 posts	Topic: General Discussion / Calling any and all archaeologists! Cheers folks, Cheered me up no end to see that I'm not the only one..... Ah yes....the fabled pump. Slowly going through the hoops and hoping to get my hands on one Once again THANK YOU! Jenny

Oct 20, 2010 marke 681 posts	Topic: General Discussion / type 1 during pregnancy- help! Claire, you are more likely to get an answer to this question if you post it in the 'Questions for HCPs' forum. Obviously its not a situation I will ever be in but as I understand it you insulin requirements should return to normal after pregnancy. If you don't get a response on the other forums I would suggest you discuss your concerns with your DAFNE educator or your Diabetes Team, these people should be experts on the subject and hopefully explain all the likely changes to you. Congratulations and good luck by the way....

Oct 20, 2010 marke 681 posts	Topic: General Discussion / Shortage of test strips ah, but Alan what they probably didn't tell you was the drugs then get imported back into the UK and sold in the UK. Its often cheaper to source branded drugs in the EU and then relabel them for the UK market. This is common practice and so drugs being restricted by the makers in the UK would not really affect the market hugely. However as I say I have had the problem as well so I'm as interested as you to know why. What we need is a mole in the manufacturers company to tell us what is really going on. Sadly I don't know anyone, does any one else ?

Oct 20, 2010 claireadams 12 posts	Topic: General Discussion / type 1 during pregnancy- help! Has anyone got any hints or suggestions how to control diabetes during pregnancy?? As soon as i conceived i seemed to be resistant to insulin and am not on HUGE amounts and still increasing it. Im hoping that when i give birth i'll go back to taking the amount of units i was on before? or will my body get used to this amount and i'll still be on it? Any tips on being pregnant with Type 1 will be useful Thanks Claire

Oct 20, 2010 Alan 49 284 posts	Topic: General Discussion / Shortage of test strips I have been told that last week, on the One Show (on BBC1), there was a piece about a cancer patient who was having trouble getting the drugs prescribed to treat her condition. The programme went on to say that after investigation, it was found that drug companies and wholesalers were restricting supplies to UK pharmacies because of the weakness of the Pound. They were maximising their profits by shipping more of their products to European countries - hence the shortages in the UK. I didn't see the programme myself, but it sounds feasible. On searching the BBC website, I found the following page: http://news.bbc.co.uk/1/hi/health/8516080.stm which is dated in February this year and would seem to be about the same problem. I wonder whether this was the cause of the problem I had.

Oct 20, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / Calling any and all archaeologists! Hey there.......... NiVZ is correct, on the forum www.diabetessupport.co.uk there is a female archeologist who goes by the name of SilentAssasin1642. She is actually on a pump, but everyone on a pump needs to be trained to the same principals and standards as dafne, if not better. I reccomend signing up over there and giving her a PM, you might find the answers your looking for. Good luck........... nrb

Oct 20, 2010 NiVZ 82 posts	Topic: General Discussion / Calling any and all archaeologists! Hi Jenny, I know of one other female diabetic archeaologist who posts on another diabetes forum I use. Don't think she is DAFNE trained so probably not on here tho. NiVZ

Oct 20, 2010 Jenny Spollen 13 posts	Topic: General Discussion / Calling any and all archaeologists! Hi all, I've been a Diabetic for 20 odd years at this stage and completed the DAFNE course a year ago. best thing ever. However, I work as an archaeologist and the huge array of variables that come with day-to-day work on a site especially as regards physical activity, it's unpredicability etc and the havoc it can reep in your hourly, never mind daily, BG levels is to say the least annoying. I have also yet to meet another diabetic muck-shoveller and would be really interested to know if there are others in the same field and how things are working out for them Jenny

Oct 20, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / not good !! help Its good you have finally realised that you cant go on the way you have been............sometimes for most people that is all they need to change the way they control diabetes.......the time this takes varies for each person........ I would say 8 out of 12 years being diabetic were spent not really knowing how to manage it....... Good luck at the doctors...

Oct 19, 2010 claireadams 12 posts	Topic: General Discussion / not good !! help Hi Kelly, I got type 1 diabetes 4 years ago during pregnancy and when i gave birth i lost so much weight through out of control diabetes that everyone was saying how skinny and ill i looked (i loved it!- ate what i liked and never gained a pound)... then over the years it actually made me ill.. the symptoms of high bg just werent worth it anymore and after 2 bouts in hospital (one in intensive care) and a young son to look after i just had to sort it out.... unfortunately with the control came weight gain, but i am much healthier and can live a normal life. I get help now with having an eating disorder, and to be honest i still struggle with the amount of weight i have gained, but it is worth it. I think with a balanced diet and exercise you can keep your weight in check without using your insulin. I really think you should look into getting help with having an eating disorder (you may not think you have but anyone who uses insulin to loose weight is risking their life). Please take it from someone who knows! I really hope you get healthy again and get back on track with dafne for the sake of your children... Good luck, Claire ps i had cognitive behavioural therapy, it really helped me

Oct 19, 2010 marke 681 posts	Topic: General Discussion / Dafne refresher courses Hi Jennifer Iden, yes its me you contact about being 'promoted' from a user to a graduate, just contact me via the 'contact us' link at the bottom of every page or via the 'message inbox' in the right hand menu. We can then sort out what details we need from you to do it.

Oct 19, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / Dafne refresher courses how many folk attend..........is 3 hours enough............

Oct 19, 2010 emmacool 17 posts	Topic: General Discussion / Insulin Pumps good luck thunderbolt if you get the chance ask about the new omnipod its wireless! emma x

Oct 19, 2010 emmacool 17 posts	Topic: General Discussion / Dafne refresher courses ive been on a few refresher courses and find them really usefull to update my dafne knowledge because i keep forgeting stuff lol

Oct 19, 2010 emmacool 17 posts	Topic: DUAG Committee / workstream 2 sounds good to me em x