Recent Posts - DAFNE Online

Feb 8, 2011

Brum_Taffy 13 posts

Topic: General Discussion / TYPE 1 PREGNANCY

This is such an important area. Good luck to you in making your choice, Vicky. Above all, planning and taking time preparing are the keys to lowering risks to both you and your baby. Until you are sure and prepared, make sure your contraception is sound.

Some information leaflets, which apply to types 1 and 2 diabetes, as well diabetes in pregnancy (gestational diabetes) can be found at http://www.pi.nhs.uk/diabetes/projects/leaflets/leaflets.htm
A few of these are more type 1 specific. Which drugs can be used is very important- ramipril and statins in particular, need to be stopped; high-dose folic acid is recommended- 5mg, not the lower 400mcg.

Of course no amount of leaflets/on-line material will substitute for a personal discussion with your medical team. Has this forum had any babies yet?

Feb 8, 2011

Brum_Taffy 13 posts

Topic: General Discussion / What are you reading?

Great topic! I have moved on from the Millennium series (re-read, audio books, films, what a nerd, eh?), to discover The Discworld... boy, I am engrossed!

Just thinking, I don't recall reading any novels that feature a character living with a 'long-term condition', like diabetes. Unless you count Nobby Nobbs, from the Guards series, who seems to have every infectious disease known on the disc! Any works of fiction out there featuring people with diabetes or any other LTC?

Feb 8, 2011

vic demain 87 posts

Topic: General Discussion / DAFNE

Hi Neil, go with an open mind, be prepared to learn more about the condition than you ever have before. Take it on board and try it, you will have good days and also frustrating days. I am over a year on from the course, my control is better but that is because I check more regularly and work harder at it. Would I have been able to do this without DAFNE? Possibly but my knowledge would never have been as good. Don't expect miracles because they wont happen. I now have more hypos than ever, that is a worry, but I avoid that awful running high and all the associated problems that go with it. Enjoy the course.
Vic.

Feb 7, 2011

Neil Brown 28 posts

Topic: General Discussion / What made you smile today?

watching my 10 month Newfoundland pup pull the stair gaurd thats meant to stop her going upstairs of the wall and carry it around the house in her mouth !

Feb 7, 2011

Neil Brown 28 posts

Topic: General Discussion / DAFNE

hi,
Im off on the DAFNE experience in March, what exactly should I expect ? i have heard stories of peoples control getting worse!Also my employer Greater Glasgow Health Board believe it or not are refusing to give me paid leave to attend ! did anyone else have problems ?

Feb 7, 2011

Neil Brown 28 posts

Topic: DAFNE Online Mobile / Rationale - Please read

I have an IPhone 4 ive gor Dafne mobile at the moment but not going on course till March so probably not getting the best out the site yet ! will keep you posted

Feb 7, 2011

Susanf 29 posts

Topic: General Discussion / Flu jab - just curious

I get the flu jab every year as its stongly recommended by my Diabetic team. I have also had the Pneumonia vaccine. You need to get it every 5-6 years. I have had it 3 times in the 16 years I am diabetic

Feb 7, 2011

Susanf 29 posts

Topic: DAFNE Online Mobile / DAFNE On Line Mobile

Do you have the app for the Android also

Feb 7, 2011

novorapidboi26 1,819 posts

Topic: General Discussion / BG Diary

Its a great function, especially when its clinic time, as the manual diary is usually a mess and hardly readable....... Smile

Feb 5, 2011

JayBee 587 posts

Topic: General Discussion / What are you reading?

What a lovely website! I signed up straight away! Thanks for sharing it - I'm more than happy to swap some of my books. Smile

Currently reading:
Koji Suzuki's "Dark Water"
Adam Roberts' "Land of the Headless"

Golly, I have much to sort out for my book offerings! I'm so relieved to see that they do take graphic novels - I can pass on my unwanted manga!

Feb 4, 2011

Steve Whitfield 8 posts

Topic: General Discussion / BG Diary

Hi Simon

Thanks for that, knew i must be missing it.

Cheers

Steve

Feb 4, 2011

marke 681 posts

Topic: Questions for HCPs / BG rise at end of Lantus

Hi, I think it is a case of Lantus running out, but like others I'm not a HCP so its just personal opinion. Given the scenario you originally described your QA should have stopped working ( 6 hours after lunch, it generally should only last 4-5 hours) and you then need your BI to keep your levels steady. If it has also reduced in effectiveness ( it should 'tail' off gradually between 12 and 24 hours according to its profile) your BG will start to rise. The only sure way is to take your BI and not eat anything all day, if your BI is right then your BG should stay at similiar levels. This is not an easy thing to do I know but that is the theory anyway. Although slighting your BI dose does mean you have two lots of BI acting at the same time, they should again in theory be reducing and increasing in tandem and so not be acting totally at the same time.
I think most of us do find a split dose better, but as ever we are all different. If your control is quite good now it may be you can see more effect if you split your dose. It may be worth a try however it doesn't sound like your consultant would support it, so you really need a DAFNE educator to support you otherwsise its going to be hard to do on yuor own.

Feb 4, 2011

Caroline 29 posts

Topic: Questions for HCPs / Blood Glucose range whilst pregnant

Hi, Thanks for your reply. You dont happen to know what the bg should be before bed do you? As you can see from my readings they are a little up and down... not sure if the ups are an effect from the lows, however I have adjusted accordingly. I have seen the diabetic doctor at the hospital when I first became aware I was pregnant and he adjusted both QA and BI insulins. After numerous hypos I have decreased ratios and BIs where possible. I spoke to him again last Monday but was not happy to increase evening ratios. My BG was raising late evening with no QA in my system only BI, however still found I was experiencing night time hypos.. Strange.. but no one can explain this, not even him. I am trying desparately to keep my levels under 10 and eat a balanced diet. Im due to have a dafne course review next week... perhaps they will have some answers :-/ Thanks caroline

Feb 4, 2011

Simon 578 posts

Topic: General Discussion / BG Diary

Hi Steve,

There is a link to "Printable view of your current results" at the top of the diary page, just below the date pickers.

Simon

Feb 4, 2011

Steve Whitfield 8 posts

Topic: General Discussion / BG Diary

Hi

Silly question but wondered if it was possible to print off your online BG Diary. I can view it ok but would like to print it out. Any ideas would be apreciated.

Thanks

Feb 4, 2011

Chchch 17 posts

Topic: Questions for HCPs / Blood Glucose range whilst pregnant

hi

This is actually mentioned in this month's Balance mag - apparently 3.5 to 5.9 pre meal and no more than 7.8 after meals. very tight! (actually sounds totally unatainable to me, but is seemingly possible so the docs say). I guess that's why we need so much extra input from the health service while pregnant. Are you seeing people regularly?

Feb 4, 2011

Chchch 17 posts

Topic: Questions for HCPs / BG rise at end of Lantus

Thanks so much for your replies, they are very much appreciated. I actually split it not long after I did Dafne about 3 years ago and didn't notice a great deal of improvement, although I think it's probably safe to say that my overall levels then were under less control than now. Maybe I'll be able to identify more of an improvement if I were to try it now. Funnily enough, once my consultant was aware that I had split it he was quite horrified and suggested that having 2 sets of BI and QA all working at the same time made identifying problems much harder - think he probably had a point in that respect. Then again, he'd not been on the dafne training....!
Thanks again

Feb 4, 2011

Stew B 125 posts

Topic: General Discussion / What are you reading?

Hi Garry,
My problem is that I find I can't part with books that I've enjoyed.. couldn't agree more about Harry Bosch!

On the subject of the Spanish Civil War, after a birdwatching trip to the Spanish Pyrenees and the Zaragossa area (including the ruined town of Belchite) last June, I thought I should know more, so got a copy of Anthony Beevor's "The Battle for Spain". I slogged through its near 600 pages - a bit of a struggle but great preparation for Orwell's "Homage to Catalonia", which I thoroughly recommend (along with Laurie Lee's "As I Walked Out One Midsummer Morning and its sequels).

Stew

Feb 3, 2011

Garry 328 posts

Topic: General Discussion / What are you reading?

Just finished Connelly's Nine Dragons Stew B. Been a while since I last read one of his novels and realised that I do really enjoy a Harry Bosch yarn. Hope to pick up The Reversal soon.
Initially found the web site mentioned useful to complete the A to Z....or however far it goes....list of Sue Grafton novels.
Currently contemplating Hugh Thomas - The Spanish Civil War - a mighty tome......well it has made it out of the wardrobe bottom to the bedside drawers anyway.
Regards Garry

Feb 3, 2011

Stew B 125 posts

Topic: General Discussion / What are you reading?

Yes thanks Garry - just preparing my "wanted" list!

Stew

Feb 3, 2011

vic demain 87 posts

Topic: General Discussion / What are you reading?

Garry, many thanks for that site. My partner joined a couple of days ago and already she has swapped no end of books, saving a fortune, which is much needed at the moment. Vic.

Feb 3, 2011

novorapidboi26 1,819 posts

Topic: Questions for HCPs / BG rise at end of Lantus

I would agree with the rest, split the Lantus, I am on Levemir but I find easty times to remember is breakfast and dinner (6:00am and 5:30pm)........that might not suit you but as long as you get coverage for the whole day.......

Feb 8, 2011 Brum_Taffy 13 posts	Topic: General Discussion / TYPE 1 PREGNANCY This is such an important area. Good luck to you in making your choice, Vicky. Above all, planning and taking time preparing are the keys to lowering risks to both you and your baby. Until you are sure and prepared, make sure your contraception is sound. Some information leaflets, which apply to types 1 and 2 diabetes, as well diabetes in pregnancy (gestational diabetes) can be found at http://www.pi.nhs.uk/diabetes/projects/leaflets/leaflets.htm A few of these are more type 1 specific. Which drugs can be used is very important- ramipril and statins in particular, need to be stopped; high-dose folic acid is recommended- 5mg, not the lower 400mcg. Of course no amount of leaflets/on-line material will substitute for a personal discussion with your medical team. Has this forum had any babies yet?

Feb 8, 2011 Brum_Taffy 13 posts	Topic: General Discussion / What are you reading? Great topic! I have moved on from the Millennium series (re-read, audio books, films, what a nerd, eh?), to discover The Discworld... boy, I am engrossed! Just thinking, I don't recall reading any novels that feature a character living with a 'long-term condition', like diabetes. Unless you count Nobby Nobbs, from the Guards series, who seems to have every infectious disease known on the disc! Any works of fiction out there featuring people with diabetes or any other LTC?

Feb 8, 2011 vic demain 87 posts	Topic: General Discussion / DAFNE Hi Neil, go with an open mind, be prepared to learn more about the condition than you ever have before. Take it on board and try it, you will have good days and also frustrating days. I am over a year on from the course, my control is better but that is because I check more regularly and work harder at it. Would I have been able to do this without DAFNE? Possibly but my knowledge would never have been as good. Don't expect miracles because they wont happen. I now have more hypos than ever, that is a worry, but I avoid that awful running high and all the associated problems that go with it. Enjoy the course. Vic.

Feb 7, 2011 Neil Brown 28 posts	Topic: General Discussion / What made you smile today? watching my 10 month Newfoundland pup pull the stair gaurd thats meant to stop her going upstairs of the wall and carry it around the house in her mouth !

Feb 7, 2011 Neil Brown 28 posts	Topic: General Discussion / DAFNE hi, Im off on the DAFNE experience in March, what exactly should I expect ? i have heard stories of peoples control getting worse!Also my employer Greater Glasgow Health Board believe it or not are refusing to give me paid leave to attend ! did anyone else have problems ?

Feb 7, 2011 Neil Brown 28 posts	Topic: DAFNE Online Mobile / Rationale - Please read I have an IPhone 4 ive gor Dafne mobile at the moment but not going on course till March so probably not getting the best out the site yet ! will keep you posted

Feb 7, 2011 Susanf 29 posts	Topic: General Discussion / Flu jab - just curious I get the flu jab every year as its stongly recommended by my Diabetic team. I have also had the Pneumonia vaccine. You need to get it every 5-6 years. I have had it 3 times in the 16 years I am diabetic

Feb 7, 2011 Susanf 29 posts	Topic: DAFNE Online Mobile / DAFNE On Line Mobile Do you have the app for the Android also

Feb 7, 2011 novorapidboi26 1,819 posts	Topic: General Discussion / BG Diary Its a great function, especially when its clinic time, as the manual diary is usually a mess and hardly readable.......

Feb 5, 2011 JayBee 587 posts	Topic: General Discussion / What are you reading? What a lovely website! I signed up straight away! Thanks for sharing it - I'm more than happy to swap some of my books. Currently reading: Koji Suzuki's "Dark Water" Adam Roberts' "Land of the Headless" Golly, I have much to sort out for my book offerings! I'm so relieved to see that they do take graphic novels - I can pass on my unwanted manga!

Feb 4, 2011 Steve Whitfield 8 posts	Topic: General Discussion / BG Diary Hi Simon Thanks for that, knew i must be missing it. Cheers Steve

Feb 4, 2011 marke 681 posts	Topic: Questions for HCPs / BG rise at end of Lantus Hi, I think it is a case of Lantus running out, but like others I'm not a HCP so its just personal opinion. Given the scenario you originally described your QA should have stopped working ( 6 hours after lunch, it generally should only last 4-5 hours) and you then need your BI to keep your levels steady. If it has also reduced in effectiveness ( it should 'tail' off gradually between 12 and 24 hours according to its profile) your BG will start to rise. The only sure way is to take your BI and not eat anything all day, if your BI is right then your BG should stay at similiar levels. This is not an easy thing to do I know but that is the theory anyway. Although slighting your BI dose does mean you have two lots of BI acting at the same time, they should again in theory be reducing and increasing in tandem and so not be acting totally at the same time. I think most of us do find a split dose better, but as ever we are all different. If your control is quite good now it may be you can see more effect if you split your dose. It may be worth a try however it doesn't sound like your consultant would support it, so you really need a DAFNE educator to support you otherwsise its going to be hard to do on yuor own.

Feb 4, 2011 Caroline 29 posts	Topic: Questions for HCPs / Blood Glucose range whilst pregnant Hi, Thanks for your reply. You dont happen to know what the bg should be before bed do you? As you can see from my readings they are a little up and down... not sure if the ups are an effect from the lows, however I have adjusted accordingly. I have seen the diabetic doctor at the hospital when I first became aware I was pregnant and he adjusted both QA and BI insulins. After numerous hypos I have decreased ratios and BIs where possible. I spoke to him again last Monday but was not happy to increase evening ratios. My BG was raising late evening with no QA in my system only BI, however still found I was experiencing night time hypos.. Strange.. but no one can explain this, not even him. I am trying desparately to keep my levels under 10 and eat a balanced diet. Im due to have a dafne course review next week... perhaps they will have some answers :-/ Thanks caroline

Feb 4, 2011 Simon 578 posts	Topic: General Discussion / BG Diary Hi Steve, There is a link to "Printable view of your current results" at the top of the diary page, just below the date pickers. Simon

Feb 4, 2011 Steve Whitfield 8 posts	Topic: General Discussion / BG Diary Hi Silly question but wondered if it was possible to print off your online BG Diary. I can view it ok but would like to print it out. Any ideas would be apreciated. Thanks

Feb 4, 2011 Chchch 17 posts	Topic: Questions for HCPs / Blood Glucose range whilst pregnant hi This is actually mentioned in this month's Balance mag - apparently 3.5 to 5.9 pre meal and no more than 7.8 after meals. very tight! (actually sounds totally unatainable to me, but is seemingly possible so the docs say). I guess that's why we need so much extra input from the health service while pregnant. Are you seeing people regularly?

Feb 4, 2011 Chchch 17 posts	Topic: Questions for HCPs / BG rise at end of Lantus Thanks so much for your replies, they are very much appreciated. I actually split it not long after I did Dafne about 3 years ago and didn't notice a great deal of improvement, although I think it's probably safe to say that my overall levels then were under less control than now. Maybe I'll be able to identify more of an improvement if I were to try it now. Funnily enough, once my consultant was aware that I had split it he was quite horrified and suggested that having 2 sets of BI and QA all working at the same time made identifying problems much harder - think he probably had a point in that respect. Then again, he'd not been on the dafne training....! Thanks again

Feb 4, 2011 Stew B 125 posts	Topic: General Discussion / What are you reading? Hi Garry, My problem is that I find I can't part with books that I've enjoyed.. couldn't agree more about Harry Bosch! On the subject of the Spanish Civil War, after a birdwatching trip to the Spanish Pyrenees and the Zaragossa area (including the ruined town of Belchite) last June, I thought I should know more, so got a copy of Anthony Beevor's "The Battle for Spain". I slogged through its near 600 pages - a bit of a struggle but great preparation for Orwell's "Homage to Catalonia", which I thoroughly recommend (along with Laurie Lee's "As I Walked Out One Midsummer Morning and its sequels). Stew

Feb 3, 2011 Garry 328 posts	Topic: General Discussion / What are you reading? Just finished Connelly's Nine Dragons Stew B. Been a while since I last read one of his novels and realised that I do really enjoy a Harry Bosch yarn. Hope to pick up The Reversal soon. Initially found the web site mentioned useful to complete the A to Z....or however far it goes....list of Sue Grafton novels. Currently contemplating Hugh Thomas - The Spanish Civil War - a mighty tome......well it has made it out of the wardrobe bottom to the bedside drawers anyway. Regards Garry

Feb 3, 2011 Stew B 125 posts	Topic: General Discussion / What are you reading? Yes thanks Garry - just preparing my "wanted" list! Stew

Feb 3, 2011 vic demain 87 posts	Topic: General Discussion / What are you reading? Garry, many thanks for that site. My partner joined a couple of days ago and already she has swapped no end of books, saving a fortune, which is much needed at the moment. Vic.

Feb 3, 2011 novorapidboi26 1,819 posts	Topic: Questions for HCPs / BG rise at end of Lantus I would agree with the rest, split the Lantus, I am on Levemir but I find easty times to remember is breakfast and dinner (6:00am and 5:30pm)........that might not suit you but as long as you get coverage for the whole day.......