Recent Posts - DAFNE Online

Jan 29, 2011

Simon 578 posts

Why thank you, it's always nice to hear some positive feedback - makes the job worthwhile!

Welcome to the site, hope you enjoy using it and feel free to ask any questions / ask for new features.

Simon

Jan 29, 2011

Simon 578 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

Hi Mike, do you mean to show number of QA correctives as well as CPs?

Jan 29, 2011

MikeH 9 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

on the diary summary could you split the corrective counts and the bottom to number of ups and downs instead of just the total number of corrections, as when my HCP asked i had to do a manual look up.

Many Thanks

Jan 29, 2011

Hello_Lora 1 post

Topic: General Discussion / Thank you!!

I did DAFNE 3 years ago, and I wouldn't say its changed my life, but I certainly have less nighttime hypos.

The biggest issue I had was that I hated recording, it seemed such a hassle on top of checking my levels & injecting....

But now i've discovered this fab site, with online recording, analysis AND a mobile app......whoever you guys are I LOVE you!!! Thank you so much, hopefully I can now get my HBa1C down to a reasonable level after being stuck at 8 for years,

Thank you for this, very much apprciated!!!!

Jan 29, 2011

Trudi 8 posts

Topic: General Discussion / Type 1 Diabetes 'Cure'

35 years ago I was told the cure would be 10 years away - my niece was diagnosed last year and she was told 10 years too - at some point that information is going to be correct!!
I'm not getting super excited by this but I've got to say, given the education I received during the DAFNE course, this does make sense to me. And it's kind of nice to have someone looking at the 'cure' in a different way.
Trudi

Jan 28, 2011

JayBee 587 posts

Topic: General Discussion / Type 1 Diabetes 'Cure'

I join the skeptics.... though if this sort of thing was going to work, I find it quite alarming. I mean, we're talking about cutting off the glucose release that can potentially save you from a very bad hypo.... unless they plan on relying on the gluco jab in extreme cases?

Madness.

Jan 28, 2011

Athena 52 posts

Topic: Questions for HCPs / Information on menstrual cycle

Hi All,

I agree with whoever said about the insulin pump books as I have read that too in them. They seem to accept that there are changes. there must be research papers also and if I find any I will let people know. If i even had just two basals that would be okay, but i have 3 which doesn't actually manage to cover the whole month. I still have gaps where things are really out of control and I haven't amanged to find a BI to cover these days.

good luck with it all everyone.

Helen

Jan 28, 2011

novorapidboi26 1,819 posts

Topic: Questions for HCPs / trends

Hey there........(not HCP)

Firstly I would comment on your background, you take it at night, once a day so assuming Lantus. Pretty much every night you are dropping to give you lows in the morning, quite low lows as well.

So instead of putting it up, like you did on the monday, I would put it down back to 16, try that out for a few days, I suspect you might need to come down further.

The QA ratios seem to be pretty much there, but they will never be really accurate unitl you get your background correct. You also seem to be eating quite alot, which is fine, once you know all your doses are right.....

Once you hold steady overnight with no carbs or QA working then you can start to tackle the morning to lunchtime slot, try to avoid the mid morning snack so you can see what the QA has actually done once its run its course, 4-5 hours, once your happy with the ratio you can go back to snacking if you wish, if it is over the magic 10g of CP then it would still be nice to see a blood glucose there even though you cant take any action with it...

Its good you noticed the alcohol effects on the next day and that you should of dropped your BI dose.

You may find that you hold steady over night, waking on target, but then struggle to get your numbers down during the day, even with higher ratios, or the opposite, struggle to keep them up.........this means that your livers glucagon release varies from night to day, and you would benefit from a split dose, 12 hours apart to accomodate for the different rates of release.....

To conclude, try and do an overnight BI(basal) test without any food or QA 5 hours before your bedtime BG, on Lantus, 3-4 days should be enough to see if its the right dose......

I hope I helped..............

Jan 27, 2011

marke 686 posts

Topic: General Discussion / Type 1 Diabetes 'Cure'

test

Jan 27, 2011

tsavage1990 11 posts

Topic: Questions for HCPs / trends

i have recently restarted recording my results, i sort of fell off the grid when i begun university last year, however i cant see how to improve things - any help identifying trends and/or advice on how to improve my abysmal control would be greatly appreciated

Jan 27, 2011

marke 686 posts

Topic: General Discussion / Type 1 Diabetes 'Cure'

I don't know first we get locked out of the loft due to homes being well insulated, then some quack starts removing our insulin capability, equal rights for us mice, and free cheese on the NHS ! thats what I say.
Sorry even if this article made sense, which I don't beleive it does, testing it on mice and testing it on humans is a huge difference. Any effective output from something like this would take at least 10 years minimum. Sorry but I don't believe there is a 'cure', maybe a prevention one day but thats still a long way off. Most of the source article quotes talks in maybes and perhaps' , they have no real proof of their theories as yet let alone any evidence of a cure. There are always articles like this around, when someone actually launches a mythical cure in the real world and its given to real Diabetics them I will sit up and take notice.

Jan 27, 2011

Simon 578 posts

Topic: DAFNE Online Mobile / Pump Users

Sure thing - send it to [email protected]

Thanks

Jan 27, 2011

ChrisE 2 posts

Topic: DAFNE Online Mobile / Pump Users

Hi Simon,

Thanks for the promp response. Would it be possible for me to email you a copy of the diary I was given by the hospital (in XL 2010 format) along with an explanation of the data types?

Regards

Jan 27, 2011

marke 686 posts

Topic: General Discussion / Android App

sorry, its not going to be soon. I have just not had any time to work on it recently and not sure how soon I will be able to. If there are any
android developers who can help then great otherwise it will be when I can get the time to work on it.
sorry

Jan 27, 2011

Harry 4 posts

Topic: General Discussion / Android App

Any news on the Android app for DAFNE?

Jan 27, 2011

Alan 49 284 posts

Topic: General Discussion / Type 1 Diabetes 'Cure'

I'm more than a little sceptical about this, Simon. What we need is a response from one of our HCPs.

Alan

Jan 27, 2011

Garry 328 posts

Topic: General Discussion / What are you reading?

If you like to complete sets...you may find this web site useful: -

http://www.readitswapit.co.uk

Helps with those sometimes hard to find missing book.

Regards Garry

Jan 27, 2011

Stew B 125 posts

Topic: Questions for HCPs / Difference in BG from different fingers!

I've been a one touch ultra user for some years too. I've changed meter a couple of times but both times the new meters gave consistently higher readings than my "old" one touch. This was a real issue with the last change when I was getting hypo symptoms but the meter was showing readings above 4.5. Testing with my one touch gave me readings consistent with my syptoms, so I went back to the old faithful.

That's not to say the one touch is wondeful or entirely consistent. On a couple of occasions when I've had unexpectedly high readings (above 13), thinking I might have made some kind of mistake I've re-tested immediately using the same finger and got a reading of up to 2mmols different to the original reading.

Stew

Jan 27, 2011

Stew B 125 posts

Topic: General Discussion / What are you reading?

I'm with NiVZ - my daughter bought me the latest Jack Reacher for Christmas to complete my set. I read it in practically one sitting - Lee Child certainly knows how to keep a plot bowling along! I'm a bit of a completist - got all of the Michael Connolys, all the Kathy Reichs, and after years of searching second-hand bookshops, e-bay and even providing lists to friends visiting the states I've managed to get all 85 of Earl Stanley Gardner's Perry Mason Novels. I read British authors too - Peter Robinson, Peter James among others. Not that I'm obsessed with detective and mystery novels you understand...

Stew

Jan 27, 2011

Simon Quinnell 16 posts

Topic: General Discussion / Type 1 Diabetes 'Cure'

Hi All.

What do you think of this?

http://www.physorg.com/news/2011-01-uncover-potential-diabetes.html

Simon.

Jan 26, 2011

hld1904 5 posts

Topic: General Discussion / Any issues whilst on Thyroxine?

Hi, I have been type 1 since age 3 and have been on Levothyroxine for years. As far as i know the Thyroxine doesn't interfere with Diabetes control.

Jan 29, 2011 Simon 578 posts	Topic: General Discussion / Thank you!! Why thank you, it's always nice to hear some positive feedback - makes the job worthwhile! Welcome to the site, hope you enjoy using it and feel free to ask any questions / ask for new features. Simon

Jan 29, 2011 Simon 578 posts	Topic: Site Development / DAFNE Online iPhone application - help with content/design needed Hi Mike, do you mean to show number of QA correctives as well as CPs?

Jan 29, 2011 MikeH 9 posts	Topic: Site Development / DAFNE Online iPhone application - help with content/design needed on the diary summary could you split the corrective counts and the bottom to number of ups and downs instead of just the total number of corrections, as when my HCP asked i had to do a manual look up. Many Thanks

Jan 29, 2011 Hello_Lora 1 post	Topic: General Discussion / Thank you!! I did DAFNE 3 years ago, and I wouldn't say its changed my life, but I certainly have less nighttime hypos. The biggest issue I had was that I hated recording, it seemed such a hassle on top of checking my levels & injecting.... But now i've discovered this fab site, with online recording, analysis AND a mobile app......whoever you guys are I LOVE you!!! Thank you so much, hopefully I can now get my HBa1C down to a reasonable level after being stuck at 8 for years, Thank you for this, very much apprciated!!!!

Jan 29, 2011 Trudi 8 posts	Topic: General Discussion / Type 1 Diabetes 'Cure' 35 years ago I was told the cure would be 10 years away - my niece was diagnosed last year and she was told 10 years too - at some point that information is going to be correct!! I'm not getting super excited by this but I've got to say, given the education I received during the DAFNE course, this does make sense to me. And it's kind of nice to have someone looking at the 'cure' in a different way. Trudi

Jan 28, 2011 JayBee 587 posts	Topic: General Discussion / Type 1 Diabetes 'Cure' I join the skeptics.... though if this sort of thing was going to work, I find it quite alarming. I mean, we're talking about cutting off the glucose release that can potentially save you from a very bad hypo.... unless they plan on relying on the gluco jab in extreme cases? Madness.

Jan 28, 2011 Athena 52 posts	Topic: Questions for HCPs / Information on menstrual cycle Hi All, I agree with whoever said about the insulin pump books as I have read that too in them. They seem to accept that there are changes. there must be research papers also and if I find any I will let people know. If i even had just two basals that would be okay, but i have 3 which doesn't actually manage to cover the whole month. I still have gaps where things are really out of control and I haven't amanged to find a BI to cover these days. good luck with it all everyone. Helen

Jan 28, 2011 novorapidboi26 1,819 posts	Topic: Questions for HCPs / trends Hey there........(not HCP) Firstly I would comment on your background, you take it at night, once a day so assuming Lantus. Pretty much every night you are dropping to give you lows in the morning, quite low lows as well. So instead of putting it up, like you did on the monday, I would put it down back to 16, try that out for a few days, I suspect you might need to come down further. The QA ratios seem to be pretty much there, but they will never be really accurate unitl you get your background correct. You also seem to be eating quite alot, which is fine, once you know all your doses are right..... Once you hold steady overnight with no carbs or QA working then you can start to tackle the morning to lunchtime slot, try to avoid the mid morning snack so you can see what the QA has actually done once its run its course, 4-5 hours, once your happy with the ratio you can go back to snacking if you wish, if it is over the magic 10g of CP then it would still be nice to see a blood glucose there even though you cant take any action with it... Its good you noticed the alcohol effects on the next day and that you should of dropped your BI dose. You may find that you hold steady over night, waking on target, but then struggle to get your numbers down during the day, even with higher ratios, or the opposite, struggle to keep them up.........this means that your livers glucagon release varies from night to day, and you would benefit from a split dose, 12 hours apart to accomodate for the different rates of release..... To conclude, try and do an overnight BI(basal) test without any food or QA 5 hours before your bedtime BG, on Lantus, 3-4 days should be enough to see if its the right dose...... I hope I helped..............

Jan 27, 2011 marke 686 posts	Topic: General Discussion / Type 1 Diabetes 'Cure' test

Jan 27, 2011 tsavage1990 11 posts	Topic: Questions for HCPs / trends i have recently restarted recording my results, i sort of fell off the grid when i begun university last year, however i cant see how to improve things - any help identifying trends and/or advice on how to improve my abysmal control would be greatly appreciated

Jan 27, 2011 marke 686 posts	Topic: General Discussion / Type 1 Diabetes 'Cure' I don't know first we get locked out of the loft due to homes being well insulated, then some quack starts removing our insulin capability, equal rights for us mice, and free cheese on the NHS ! thats what I say. Sorry even if this article made sense, which I don't beleive it does, testing it on mice and testing it on humans is a huge difference. Any effective output from something like this would take at least 10 years minimum. Sorry but I don't believe there is a 'cure', maybe a prevention one day but thats still a long way off. Most of the source article quotes talks in maybes and perhaps' , they have no real proof of their theories as yet let alone any evidence of a cure. There are always articles like this around, when someone actually launches a mythical cure in the real world and its given to real Diabetics them I will sit up and take notice.

Jan 27, 2011 Simon 578 posts	Topic: DAFNE Online Mobile / Pump Users Sure thing - send it to [email protected] Thanks

Jan 27, 2011 ChrisE 2 posts	Topic: DAFNE Online Mobile / Pump Users Hi Simon, Thanks for the promp response. Would it be possible for me to email you a copy of the diary I was given by the hospital (in XL 2010 format) along with an explanation of the data types? Regards

Jan 27, 2011 marke 686 posts	Topic: General Discussion / Android App sorry, its not going to be soon. I have just not had any time to work on it recently and not sure how soon I will be able to. If there are any android developers who can help then great otherwise it will be when I can get the time to work on it. sorry

Jan 27, 2011 Harry 4 posts	Topic: General Discussion / Android App Any news on the Android app for DAFNE?

Jan 27, 2011 Alan 49 284 posts	Topic: General Discussion / Type 1 Diabetes 'Cure' I'm more than a little sceptical about this, Simon. What we need is a response from one of our HCPs. Alan

Jan 27, 2011 Garry 328 posts	Topic: General Discussion / What are you reading? If you like to complete sets...you may find this web site useful: - http://www.readitswapit.co.uk Helps with those sometimes hard to find missing book. Regards Garry

Jan 27, 2011 Stew B 125 posts	Topic: Questions for HCPs / Difference in BG from different fingers! I've been a one touch ultra user for some years too. I've changed meter a couple of times but both times the new meters gave consistently higher readings than my "old" one touch. This was a real issue with the last change when I was getting hypo symptoms but the meter was showing readings above 4.5. Testing with my one touch gave me readings consistent with my syptoms, so I went back to the old faithful. That's not to say the one touch is wondeful or entirely consistent. On a couple of occasions when I've had unexpectedly high readings (above 13), thinking I might have made some kind of mistake I've re-tested immediately using the same finger and got a reading of up to 2mmols different to the original reading. Stew

Jan 27, 2011 Stew B 125 posts	Topic: General Discussion / What are you reading? I'm with NiVZ - my daughter bought me the latest Jack Reacher for Christmas to complete my set. I read it in practically one sitting - Lee Child certainly knows how to keep a plot bowling along! I'm a bit of a completist - got all of the Michael Connolys, all the Kathy Reichs, and after years of searching second-hand bookshops, e-bay and even providing lists to friends visiting the states I've managed to get all 85 of Earl Stanley Gardner's Perry Mason Novels. I read British authors too - Peter Robinson, Peter James among others. Not that I'm obsessed with detective and mystery novels you understand... Stew

Jan 27, 2011 Simon Quinnell 16 posts	Topic: General Discussion / Type 1 Diabetes 'Cure' Hi All. What do you think of this? http://www.physorg.com/news/2011-01-uncover-potential-diabetes.html Simon.

Jan 26, 2011 hld1904 5 posts	Topic: General Discussion / Any issues whilst on Thyroxine? Hi, I have been type 1 since age 3 and have been on Levothyroxine for years. As far as i know the Thyroxine doesn't interfere with Diabetes control.