Search the DAFNE Online Forums
15,721 posts found
|
Jan 21, 2011
Athena
52 posts
|
Topic: Questions for HCPs / Information on menstrual cycle hi NIciPCI too have the same problem and can't cope with it. There is a pattern, but I have to constantly change my basals to follow my hormones. At the same hospital as you and asked at our last meeting, but was told that hornones would be unlikely to affect BG control. Been to doctor to ask for the pill which I intended to take all the time i.e. without hhe week's break as I was a t a lecture where I heard that this is the best way to try to solve this. However, was refused it so think this will make me have to chuck DAFNE as I can't keep chasing the BI. Wish they would discuss it though. No mention of it on course or the difficulty it would cause. It is awful transferring beteween the two BI's that work for me as there is a huge idfference between resulting in weeks out of control and feeling rubbish. I feel that I do need more insulin at some point in the month and about half that dose at the other point. It's hopeless. I wish they would give us an idea of a good book or research article which would be helpful. Perhaps we should both mention it again at the next meeting if you are going. I don't know whetehr to go or not. Lew tme know if you are and perhaps we can think about mentioning it again. take care, Helen |
|
Jan 21, 2011
novorapidboi26
1,816 posts
|
Topic: Questions for HCPs / Difference in BG from different fingers! Is that figure correct, I would of expected it to be much better than that........I suppose in some ways the decimal point couild be ommited, or at leat to the .5, but for a lot of people, in order to get good control over there blood sugras they need to get it as accurate as possible, im finding thats what I require, to the extent what i really need is a pump. |
|
Jan 21, 2011
novorapidboi26
1,816 posts
|
Topic: Carbohydrate Counting / glucogel Do you find this effective, is it not easier to drink sugary juice or lucozade............ |
|
Jan 21, 2011
novorapidboi26
1,816 posts
|
Topic: General Discussion / Weight Yes, I am a big fatty, not really that bad, but overwieght, hell yeah, and its went up since DAFNE, but not everyone does..I have never had as good control as now, so in a way its a good price to pay..... with regards to vickyrees on ketones, ketones appear as a bi product of the burning of muscle and fat for energy as there is not enough insulin to pass the glucose in the blood to the cells of the body.......so not having ketones cant really be blamed for weight gain as does topping up your ketones being a good way to maintain a steady weight..... For a year or two I was on 2 injection, not really eating and therefore missing injections, I was skin and bone and so when I changed my ways to DAFNE and had 3 square meals everyday I think my body was shocked and decided to store all the excess glusoce as fat in a panic I would starve it again.... Thats my excuse anyway..........I may just be lasy........lol |
|
Jan 21, 2011
novorapidboi26
1,816 posts
|
Topic: General Discussion / TYPE 1 PREGNANCY www.diabetessupport.co.uk has a pregnancy section.... |
|
Jan 21, 2011
novorapidboi26
1,816 posts
|
How often would they expect you to renew your photo, I would say maybe 10 years, nless you have dramatically changed........ |
|
Jan 21, 2011
Simon
574 posts
|
Topic: Site Development / Targets for exercise Hi Stew,You should already be able to do this - see the targets page on the diary: Set my targets Simon |
|
Jan 21, 2011
Stew B
123 posts
|
Topic: Site Development / Targets for exercise Would it be possible to have the capacity to set targets for aspects other than meal and bed-times? I'm thinking particularly about targets before and after exercise. In line with general advice about diabetes and exercise, I aim to have a BG level high enough before I start to see me through the exercise (usually running) and leave me roughly in target when I finish. This means that when I enter my readings on line I get lots of "red" numbers, which I find mildly annoying (being a control freak I get great satisfaction from seeing greens - sorry, just one of my many foibles..)!Stew |
|
Jan 20, 2011
Dan Evans
1 post
|
Topic: Questions for HCPs / Difference in BG from different fingers! The thing I am always somewhat bemused by is that if meters are only 20% accurate - what is the point of having a decimal point in the answer - surely this is meaningless if the result is (say) 1-3 mmol/l + or - from the actual reading.... What do others think? |
|
Jan 20, 2011
SimonR
3 posts
|
I have an iPhone4 and havce been using the App since Christmas and it is truly a great App. worth buying an iPhone for. It is really making a difference to the way I look after my Diabetes. Being able to view the averages is cool and the display in DAFNE format, in particular to show + and - adjustments is great. I may have found a small bug however, when I enter values after 11pm they appear in the following day entries. If I change the time back before 11pm they appear in the correct day. I am unsure whether this is related to daylight saving time settings on either the phone or within the app maybe? Anyway keep up the good work. I don't understand why people are asking for a CP portion on the web site when it seems to be part of the version of the app that I use already? Maybe these are old posts and you have changed it since? :-) |
|
Jan 20, 2011
Karl
83 posts
|
Topic: Carbohydrate Counting / glucogel If this site is what you mean http://www.hyposite.co.uk/shop/view.asp?Prodcode=GEL002E - not very - its 1 CP |
|
Jan 20, 2011
tsavage1990
11 posts
|
Topic: Carbohydrate Counting / glucogel heyim continually miscalculating how much carbohydrate is actually in a tube of glucogel, can anyone confirm its CP value? how close to 2.5 is it? |
|
Jan 19, 2011
John Stevens
9 posts
|
Topic: Site Development / DAFNE Online iPhone application - help with content/design needed Hi Marke,From the user perspective, an expanded carb database is a good thing, especially if it can be expanded and updated by us. The issues I have with the carb database now are as follows, and admittedly they often stem from the whole "being in a different country" thing. BTW, I must point out that the Carb counter in the app is one of the best additions Simon has made, and the facility of the site carb counter to add entries is also fantastic. 1) Differences between "local" and "App" Carb values. This is probably be biggest one. I use the following sequence to determine foods CP values. a) Packaging - Usually rely on the Carb per 100g/ml value, unless the packet is 1 serve. Most accurate. b) App/DAFNE Carb data - If it is in there, I will use it. Because it does not include a Carb/100g or ml value, this often means some deft calculation. Not beyond me, but would be nice not to have to. c) If I can't find out the CP from either of the above, I go with Calorie King here in .au. It is a very comprehensive and searchable database for most foods and products. The issue with it, and the DAFNE Online one, is just that. They are online. I live in a semi rural area in .au, and do not always have the coverage to use them. Home is fine with WiFi, but out and about is the issue. This also is the least used. 2) The non standard nature of the data. As pointed out, and as far as a know from the local OzDAFNE Programme, we mostly use the Carb/100g/ml values for CP calculations. It is much easier and often more accurate than the "Serving Size" on packaging, and usually included here as a standard measure. Even the fast food chains use it when advertising their Nutritional Info, and it is required here by law. However, there are some times where you need an idea of how much you are going to eat, so the "servings" in the database are helpful. 3) The lack of "Local" foods and foodstuffs. Now, I understand the need of having things verified, and I have no problem with it, but it seems there is often a lag between additions and verifications. Since we at this end do not know the process of verification, all we see is the lag. Also, there is data in the Online database that doesn't seem to get to the App all that regularly. This is also likely a person power issue, and totally understandable. Perhaps I have not really explained my thoughts all that well. Do you have Skype? Could we chat it over? The rough outline of the idea would be: 1) All records in the database have a localisation field. If the field is blank, the record appears in all localities. Otherwise, it will indicate which localities it is relevant and verified to. 2) Either Online or App can be used to "suggest" or enter a local food/product. When initially entered by one person, it goes into an "unverified" status. Remember, we users don't have labs, so we are getting this info from packaging, or producers websites. Once another X number of people have entered the same food/product, the food is placed in a "verified" status, and appears permanently in the Database and App. 3) To ease data storage and calculating the CP of any food, we use Carb/100g for solids, and Carb/100ml for liquids. Average food portion sizes, in weight (g) or volume (ml) are also entered, so the user can see both. So the display shows the Carb/100g/ml for each food, and the portion size, and the user makes up their own mind which to use. I am sure this is not a stretch from where the database is right now, but a particularly useful change given most (that I know of) use this sort of logic anyway. I am happy to be wrong about this. 4) If an entry is found to be wrong by a user, they can make a "local to the app" adjustment for themselves. If more users have the same "local to the app" changes, the entry is updated to suit. Remember we are getting the info from packaging more often than not, so a change here seen by many will cause the record for that food/product updated quicker for all. What this does, is helps the Database expand and remain updated, without increasing the actual storage requirements, and without impacting the resources at your disposal. I know this is a significant body of work and a significant change to both the backend database and the app, but one well worth considering, for both DAFNE and us end users. It won't happen rapidly, but it will be a significant change for all. Also, the ability to select your weight display to match the country you are living in/travelling to is not of benefit to most I am sure. It is only useful to me rarely, when I visit family in the US. The issue is more the local foods reaching the App and online. You don't want the entire database on your iPhone. Just the "generic" foods and foods local to where you are, or where you are travelling to. The App could have a "multi-select" option so the countries you are interested in, or travel to the most, can be stored locally. Wouldn't it be good if all of us Type 1s could be contributing something back to the DAFNE programmes we have gained so much from? Cheers |
|
Jan 19, 2011
JayBee
582 posts
|
Thanks for the heads up, I'm expecting the renewal later on this year. |
|
Jan 19, 2011
Karl
83 posts
|
Topic: General Discussion / Driving Licence Renewal I have recently received a reminder that my 3 year medical driving licence will shortly be expiring. No problem there, fill the forms in and post it back, but on the form it states that by law I have to complete the enclosed Photo Renewal form (D797) - it wasn't enclosed.Google returned nothing, so I emailed DVLA to get a reply stating
Just a warning if anybody else gets one. |
|
Jan 19, 2011
vickyrees
6 posts
|
Topic: General Discussion / TYPE 1 PREGNANCY Just would like to hear other Type 1 pregnancy stories. I have had 1 child and contemplating a second but couple years go a temporary cover doctor in my clinic told me my kidneys were leaking he didnt recommend my kidneys were strong enough to cope with another pregnancy yet my long term doctor who i later saw said the other doctor was probably just being precaucious and the Ramipril drug im on is more a preventative drug and everything "probably" will be fine. I am now at a loss as to whats best to do and what I really don't have is other type 1 mums to hand and hear how they have got on. If you have any stories or things to look out for I would LOVE to hear about it GOOD and BAD! |
|
Jan 19, 2011
vickyrees
6 posts
|
Topic: General Discussion / Weight I was told the reason why you may gain weight is if you have tighter control (which DAFNE should do) your BG's will be more in range - whereas like most diabetics from time to time the BG's may go up to 15+ from time to time and this is when the ketones are passed out in your urine (even if you feel well) and this creates weight loss. So by improving your BG you are also reducing Ketone production and therefore weight might increase slightly. |
|
Jan 19, 2011
Garry
328 posts
|
Topic: Questions for HCPs / Difference in BG from different fingers! Following SimonC's post where he mentions Optium Exceed meter test solutions, as far as I remember!! the acceptable meter result range using the high solution is around 13 to 21 so that gives us a good idea of the error bound...which reminds me that I have not checked my meter for some time!You are right....Don't worry about it |
|
Jan 19, 2011
marke
646 posts
|
Topic: Site Development / DAFNE Online iPhone application - help with content/design needed John,The verified carb values on the website and thus in the app, are supplied by the DAFNE Programme's themselves so we cannot 'standardise' or change them in any way. On the site itself it shows you the AU carb values and UK members the UK values. I'm not sure what the app does without Simons input. Although 'internationalisation' is possible I'm not sure how practical and desirable it is for most people. We would need to expand the carb data substantially and that would rely on users to input it. Given that we have been running 2 years and there have not been a huge number of entries, thankls to those that have added entries though !, I'm not sure the idea would work. We how have 5 countires involved with DAFNEOnline which is again not a large base to draw carb info from. While we appreciate the suggestions I'm not sure many will actually get implemented because of the issues above. Thats not to say we won't do them just I'm not sure how we can at this stage. There is no reason on the site that I cannot add a country field to the carb entry 'add' form since the database already has a country field. I would need to decide how to filter the output though. From the site perspective I will have a think about it, with regard to the iPhone App I will let Simon repsond on that. |
|
Jan 19, 2011
novorapidboi26
1,816 posts
|
Topic: Questions for HCPs / Difference in BG from different fingers! The meters are never spot on, but they dont need to be I suppose............ |
|
Jan 18, 2011
Paul Lyons
8 posts
|
Topic: Questions for HCPs / Difference in BG from different fingers! Thanks for your replies - it is true that the fault is with the machine accuracy and possibly down to normal circulation that results in the blood being 10 minutes or so out - which can be a big difference if the test is immediately after a hypo and there is a 1/3 rd of a bottle of lucozade inside me!I have 2 new meters now so am going to see how the % difference on readings from these are - I wont think about it too much though! |
|
Jan 18, 2011
SimonC
78 posts
|
Topic: Questions for HCPs / Difference in BG from different fingers! Just to echo JWo's post - I have 3 Optium Exceed machines (one a Boots branded one), they will all produce different results from the same drop of blood - up to 20% difference.When I called the manufactures to query the results I was told that this was normal and within the permitted limits - they sent me test drops for low, and high sugar readings and they all still produced different results - I had to do the test over the phone with an operator - they decided the results were all acceptable and within the tolerances's set. I repeated the test later and got different results again, ie 1 machine wasn't always higher, they varied. As long as I use the same machine, then the results will all be reliable - for that machine, and give me an indication of what my blood sugar levels are - they are only an indication, it is not an absolute. My personnel view is that not only will the machine give different results for the same drop of blood - if you were able to test that, but your body and how it behaves is still a mystery and we are only getting an indication - not an absolute, when we do the test. The doctors and nurses know very little - obviously more than me, but they are not gods and have to make educated guesses based on indications. Some of the more enlightened will admit this, those that tell you they know and make absolute statements should be treated with some scepticism - I do. |