Recent Posts - DAFNE Online

Jan 29, 2011

Trudi 8 posts

Topic: General Discussion / Type 1 Diabetes 'Cure'

35 years ago I was told the cure would be 10 years away - my niece was diagnosed last year and she was told 10 years too - at some point that information is going to be correct!!
I'm not getting super excited by this but I've got to say, given the education I received during the DAFNE course, this does make sense to me. And it's kind of nice to have someone looking at the 'cure' in a different way.
Trudi

Jan 28, 2011

JayBee 582 posts

Topic: General Discussion / Type 1 Diabetes 'Cure'

I join the skeptics.... though if this sort of thing was going to work, I find it quite alarming. I mean, we're talking about cutting off the glucose release that can potentially save you from a very bad hypo.... unless they plan on relying on the gluco jab in extreme cases?

Madness.

Jan 28, 2011

Athena 52 posts

Topic: Questions for HCPs / Information on menstrual cycle

Hi All,

I agree with whoever said about the insulin pump books as I have read that too in them. They seem to accept that there are changes. there must be research papers also and if I find any I will let people know. If i even had just two basals that would be okay, but i have 3 which doesn't actually manage to cover the whole month. I still have gaps where things are really out of control and I haven't amanged to find a BI to cover these days.

good luck with it all everyone.

Helen

Jan 28, 2011

novorapidboi26 1,816 posts

Topic: Questions for HCPs / trends

Hey there........(not HCP)

Firstly I would comment on your background, you take it at night, once a day so assuming Lantus. Pretty much every night you are dropping to give you lows in the morning, quite low lows as well.

So instead of putting it up, like you did on the monday, I would put it down back to 16, try that out for a few days, I suspect you might need to come down further.

The QA ratios seem to be pretty much there, but they will never be really accurate unitl you get your background correct. You also seem to be eating quite alot, which is fine, once you know all your doses are right.....

Once you hold steady overnight with no carbs or QA working then you can start to tackle the morning to lunchtime slot, try to avoid the mid morning snack so you can see what the QA has actually done once its run its course, 4-5 hours, once your happy with the ratio you can go back to snacking if you wish, if it is over the magic 10g of CP then it would still be nice to see a blood glucose there even though you cant take any action with it...

Its good you noticed the alcohol effects on the next day and that you should of dropped your BI dose.

You may find that you hold steady over night, waking on target, but then struggle to get your numbers down during the day, even with higher ratios, or the opposite, struggle to keep them up.........this means that your livers glucagon release varies from night to day, and you would benefit from a split dose, 12 hours apart to accomodate for the different rates of release.....

To conclude, try and do an overnight BI(basal) test without any food or QA 5 hours before your bedtime BG, on Lantus, 3-4 days should be enough to see if its the right dose......

I hope I helped..............

Jan 27, 2011

marke 646 posts

Topic: General Discussion / Type 1 Diabetes 'Cure'

test

Jan 27, 2011

tsavage1990 11 posts

Topic: Questions for HCPs / trends

i have recently restarted recording my results, i sort of fell off the grid when i begun university last year, however i cant see how to improve things - any help identifying trends and/or advice on how to improve my abysmal control would be greatly appreciated

Jan 27, 2011

marke 646 posts

Topic: General Discussion / Type 1 Diabetes 'Cure'

I don't know first we get locked out of the loft due to homes being well insulated, then some quack starts removing our insulin capability, equal rights for us mice, and free cheese on the NHS ! thats what I say.
Sorry even if this article made sense, which I don't beleive it does, testing it on mice and testing it on humans is a huge difference. Any effective output from something like this would take at least 10 years minimum. Sorry but I don't believe there is a 'cure', maybe a prevention one day but thats still a long way off. Most of the source article quotes talks in maybes and perhaps' , they have no real proof of their theories as yet let alone any evidence of a cure. There are always articles like this around, when someone actually launches a mythical cure in the real world and its given to real Diabetics them I will sit up and take notice.

Jan 27, 2011

Simon 574 posts

Topic: DAFNE Online Mobile / Pump Users

Sure thing - send it to [email protected]

Thanks

Jan 27, 2011

ChrisE 2 posts

Topic: DAFNE Online Mobile / Pump Users

Hi Simon,

Thanks for the promp response. Would it be possible for me to email you a copy of the diary I was given by the hospital (in XL 2010 format) along with an explanation of the data types?

Regards

Jan 27, 2011

marke 646 posts

Topic: General Discussion / Android App

sorry, its not going to be soon. I have just not had any time to work on it recently and not sure how soon I will be able to. If there are any
android developers who can help then great otherwise it will be when I can get the time to work on it.
sorry

Jan 27, 2011

Harry 4 posts

Topic: General Discussion / Android App

Any news on the Android app for DAFNE?

Jan 27, 2011

Alan 49 280 posts

Topic: General Discussion / Type 1 Diabetes 'Cure'

I'm more than a little sceptical about this, Simon. What we need is a response from one of our HCPs.

Alan

Jan 27, 2011

Garry 328 posts

Topic: General Discussion / What are you reading?

If you like to complete sets...you may find this web site useful: -

http://www.readitswapit.co.uk

Helps with those sometimes hard to find missing book.

Regards Garry

Jan 27, 2011

Stew B 123 posts

Topic: Questions for HCPs / Difference in BG from different fingers!

I've been a one touch ultra user for some years too. I've changed meter a couple of times but both times the new meters gave consistently higher readings than my "old" one touch. This was a real issue with the last change when I was getting hypo symptoms but the meter was showing readings above 4.5. Testing with my one touch gave me readings consistent with my syptoms, so I went back to the old faithful.

That's not to say the one touch is wondeful or entirely consistent. On a couple of occasions when I've had unexpectedly high readings (above 13), thinking I might have made some kind of mistake I've re-tested immediately using the same finger and got a reading of up to 2mmols different to the original reading.

Stew

Jan 27, 2011

Stew B 123 posts

Topic: General Discussion / What are you reading?

I'm with NiVZ - my daughter bought me the latest Jack Reacher for Christmas to complete my set. I read it in practically one sitting - Lee Child certainly knows how to keep a plot bowling along! I'm a bit of a completist - got all of the Michael Connolys, all the Kathy Reichs, and after years of searching second-hand bookshops, e-bay and even providing lists to friends visiting the states I've managed to get all 85 of Earl Stanley Gardner's Perry Mason Novels. I read British authors too - Peter Robinson, Peter James among others. Not that I'm obsessed with detective and mystery novels you understand...

Stew

Jan 27, 2011

Simon Quinnell 16 posts

Topic: General Discussion / Type 1 Diabetes 'Cure'

Hi All.

What do you think of this?

http://www.physorg.com/news/2011-01-uncover-potential-diabetes.html

Simon.

Jan 26, 2011

hld1904 5 posts

Topic: General Discussion / Any issues whilst on Thyroxine?

Hi, I have been type 1 since age 3 and have been on Levothyroxine for years. As far as i know the Thyroxine doesn't interfere with Diabetes control.

Jan 26, 2011

NiVZ 82 posts

Topic: General Discussion / What are you reading?

I'm another fan of the author Lee Child's Jack Reacher series and have read them all except the latest one.

Currently reading Dan Brown's "The Lost Symbol" and have read his previous books too (Angels and Demons, Da Vinci Code, Deception Point and Digital Fortress)

I also enjoy books by Kathy Reichs, Karyn Slaughter and Harlan Coben.

As you'll notice, most are thriller, mystery, whodunnit style books which appeal to my problem solving/investigative nature Surprised

)

NiVZ

Jan 26, 2011

Paul Lyons 8 posts

Topic: General Discussion / Any issues whilst on Thyroxine?

I have been put on levothyroxine 12 months ago and recently upped to 150mcg a day. I still feel shattered and have had a few strange hypos where my blood sugar seems to dip very fast 2 hours after my evening meal.

I just wondered if there was any connection between levothyroxine or treatment of thyroid problems and diabetes control?

Has anyone else experienced any issues please?

Jan 26, 2011

Paul Lyons 8 posts

Topic: Questions for HCPs / Difference in BG from different fingers!

Having used a one touch ultra for maybe 8 years now (I have 3 of them between work, home and my car) I feel that even if the meters werent that accurate, I know that when I start feeling the signs of a hypo, I will most likely read 3.5 to 4.0 on my meters. That for me is more than adequate.

I suppose that if I used a variety of meters when testing throughout the course of a day (bfast, car drive to work, car to clients, lunch, car to clients, car drive home, dinner time, before bed - probably 10 tests a day) that I am just adding another factor into differing readings.

Best to keep as many things stable as possible for better control.

The one thing I find affects my readings more than anything else is my 2 sweetheart children at home. After eating at 6pm I may get 2 hours of playing, rolling around on the floor, dancing etc, whereas other nights they may watch a film and we do nothing. Its the difference between a hypo around 8pm and a high reading before bed after I have topped myself up (then correcting in the morning) or a 6mmol and a great start to the next day!

Jan 25, 2011

Carolin 83 posts

Topic: Carbohydrate Counting / glucogel

Hi,

There's only 9g (1 CP) glucose in 1 of the 'single dose' tubes of GlucoGel, therefore to treat your hypo with the recommended 1.5 - 2 CPs rapid acting carbohydrate you would need to take 2 tubes!

Carolin

Jan 25, 2011

Carolin 83 posts

Topic: Questions for HCPs / sport and high bloods

Hi Carl,
It is highly likely your Lantus has run out by that time in the evening, resulting in adrenaline-release of glucose from your muscles and liver during the exercise.
If you refer back to your DAFNE handbook as JWo suggests, you should find some guidance in there, but your options may be:
take a small dose of QA with CPs prior to the kickboxing
consider changing to a twice daily Background Insulin to get better 24-hr coverage (best to discuss this with your local DAFNE Educators)
A very useful source of information is:
www.runsweet.com
Good luck,
Carolin

Jan 29, 2011 Trudi 8 posts	Topic: General Discussion / Type 1 Diabetes 'Cure' 35 years ago I was told the cure would be 10 years away - my niece was diagnosed last year and she was told 10 years too - at some point that information is going to be correct!! I'm not getting super excited by this but I've got to say, given the education I received during the DAFNE course, this does make sense to me. And it's kind of nice to have someone looking at the 'cure' in a different way. Trudi

Jan 28, 2011 JayBee 582 posts	Topic: General Discussion / Type 1 Diabetes 'Cure' I join the skeptics.... though if this sort of thing was going to work, I find it quite alarming. I mean, we're talking about cutting off the glucose release that can potentially save you from a very bad hypo.... unless they plan on relying on the gluco jab in extreme cases? Madness.

Jan 28, 2011 Athena 52 posts	Topic: Questions for HCPs / Information on menstrual cycle Hi All, I agree with whoever said about the insulin pump books as I have read that too in them. They seem to accept that there are changes. there must be research papers also and if I find any I will let people know. If i even had just two basals that would be okay, but i have 3 which doesn't actually manage to cover the whole month. I still have gaps where things are really out of control and I haven't amanged to find a BI to cover these days. good luck with it all everyone. Helen

Jan 28, 2011 novorapidboi26 1,816 posts	Topic: Questions for HCPs / trends Hey there........(not HCP) Firstly I would comment on your background, you take it at night, once a day so assuming Lantus. Pretty much every night you are dropping to give you lows in the morning, quite low lows as well. So instead of putting it up, like you did on the monday, I would put it down back to 16, try that out for a few days, I suspect you might need to come down further. The QA ratios seem to be pretty much there, but they will never be really accurate unitl you get your background correct. You also seem to be eating quite alot, which is fine, once you know all your doses are right..... Once you hold steady overnight with no carbs or QA working then you can start to tackle the morning to lunchtime slot, try to avoid the mid morning snack so you can see what the QA has actually done once its run its course, 4-5 hours, once your happy with the ratio you can go back to snacking if you wish, if it is over the magic 10g of CP then it would still be nice to see a blood glucose there even though you cant take any action with it... Its good you noticed the alcohol effects on the next day and that you should of dropped your BI dose. You may find that you hold steady over night, waking on target, but then struggle to get your numbers down during the day, even with higher ratios, or the opposite, struggle to keep them up.........this means that your livers glucagon release varies from night to day, and you would benefit from a split dose, 12 hours apart to accomodate for the different rates of release..... To conclude, try and do an overnight BI(basal) test without any food or QA 5 hours before your bedtime BG, on Lantus, 3-4 days should be enough to see if its the right dose...... I hope I helped..............

Jan 27, 2011 marke 646 posts	Topic: General Discussion / Type 1 Diabetes 'Cure' test

Jan 27, 2011 tsavage1990 11 posts	Topic: Questions for HCPs / trends i have recently restarted recording my results, i sort of fell off the grid when i begun university last year, however i cant see how to improve things - any help identifying trends and/or advice on how to improve my abysmal control would be greatly appreciated

Jan 27, 2011 marke 646 posts	Topic: General Discussion / Type 1 Diabetes 'Cure' I don't know first we get locked out of the loft due to homes being well insulated, then some quack starts removing our insulin capability, equal rights for us mice, and free cheese on the NHS ! thats what I say. Sorry even if this article made sense, which I don't beleive it does, testing it on mice and testing it on humans is a huge difference. Any effective output from something like this would take at least 10 years minimum. Sorry but I don't believe there is a 'cure', maybe a prevention one day but thats still a long way off. Most of the source article quotes talks in maybes and perhaps' , they have no real proof of their theories as yet let alone any evidence of a cure. There are always articles like this around, when someone actually launches a mythical cure in the real world and its given to real Diabetics them I will sit up and take notice.

Jan 27, 2011 Simon 574 posts	Topic: DAFNE Online Mobile / Pump Users Sure thing - send it to [email protected] Thanks

Jan 27, 2011 ChrisE 2 posts	Topic: DAFNE Online Mobile / Pump Users Hi Simon, Thanks for the promp response. Would it be possible for me to email you a copy of the diary I was given by the hospital (in XL 2010 format) along with an explanation of the data types? Regards

Jan 27, 2011 marke 646 posts	Topic: General Discussion / Android App sorry, its not going to be soon. I have just not had any time to work on it recently and not sure how soon I will be able to. If there are any android developers who can help then great otherwise it will be when I can get the time to work on it. sorry

Jan 27, 2011 Harry 4 posts	Topic: General Discussion / Android App Any news on the Android app for DAFNE?

Jan 27, 2011 Alan 49 280 posts	Topic: General Discussion / Type 1 Diabetes 'Cure' I'm more than a little sceptical about this, Simon. What we need is a response from one of our HCPs. Alan

Jan 27, 2011 Garry 328 posts	Topic: General Discussion / What are you reading? If you like to complete sets...you may find this web site useful: - http://www.readitswapit.co.uk Helps with those sometimes hard to find missing book. Regards Garry

Jan 27, 2011 Stew B 123 posts	Topic: Questions for HCPs / Difference in BG from different fingers! I've been a one touch ultra user for some years too. I've changed meter a couple of times but both times the new meters gave consistently higher readings than my "old" one touch. This was a real issue with the last change when I was getting hypo symptoms but the meter was showing readings above 4.5. Testing with my one touch gave me readings consistent with my syptoms, so I went back to the old faithful. That's not to say the one touch is wondeful or entirely consistent. On a couple of occasions when I've had unexpectedly high readings (above 13), thinking I might have made some kind of mistake I've re-tested immediately using the same finger and got a reading of up to 2mmols different to the original reading. Stew

Jan 27, 2011 Stew B 123 posts	Topic: General Discussion / What are you reading? I'm with NiVZ - my daughter bought me the latest Jack Reacher for Christmas to complete my set. I read it in practically one sitting - Lee Child certainly knows how to keep a plot bowling along! I'm a bit of a completist - got all of the Michael Connolys, all the Kathy Reichs, and after years of searching second-hand bookshops, e-bay and even providing lists to friends visiting the states I've managed to get all 85 of Earl Stanley Gardner's Perry Mason Novels. I read British authors too - Peter Robinson, Peter James among others. Not that I'm obsessed with detective and mystery novels you understand... Stew

Jan 27, 2011 Simon Quinnell 16 posts	Topic: General Discussion / Type 1 Diabetes 'Cure' Hi All. What do you think of this? http://www.physorg.com/news/2011-01-uncover-potential-diabetes.html Simon.

Jan 26, 2011 hld1904 5 posts	Topic: General Discussion / Any issues whilst on Thyroxine? Hi, I have been type 1 since age 3 and have been on Levothyroxine for years. As far as i know the Thyroxine doesn't interfere with Diabetes control.

Jan 26, 2011 NiVZ 82 posts	Topic: General Discussion / What are you reading? I'm another fan of the author Lee Child's Jack Reacher series and have read them all except the latest one. Currently reading Dan Brown's "The Lost Symbol" and have read his previous books too (Angels and Demons, Da Vinci Code, Deception Point and Digital Fortress) I also enjoy books by Kathy Reichs, Karyn Slaughter and Harlan Coben. As you'll notice, most are thriller, mystery, whodunnit style books which appeal to my problem solving/investigative nature ) NiVZ

Jan 26, 2011 Paul Lyons 8 posts	Topic: General Discussion / Any issues whilst on Thyroxine? I have been put on levothyroxine 12 months ago and recently upped to 150mcg a day. I still feel shattered and have had a few strange hypos where my blood sugar seems to dip very fast 2 hours after my evening meal. I just wondered if there was any connection between levothyroxine or treatment of thyroid problems and diabetes control? Has anyone else experienced any issues please?

Jan 26, 2011 Paul Lyons 8 posts	Topic: Questions for HCPs / Difference in BG from different fingers! Having used a one touch ultra for maybe 8 years now (I have 3 of them between work, home and my car) I feel that even if the meters werent that accurate, I know that when I start feeling the signs of a hypo, I will most likely read 3.5 to 4.0 on my meters. That for me is more than adequate. I suppose that if I used a variety of meters when testing throughout the course of a day (bfast, car drive to work, car to clients, lunch, car to clients, car drive home, dinner time, before bed - probably 10 tests a day) that I am just adding another factor into differing readings. Best to keep as many things stable as possible for better control. The one thing I find affects my readings more than anything else is my 2 sweetheart children at home. After eating at 6pm I may get 2 hours of playing, rolling around on the floor, dancing etc, whereas other nights they may watch a film and we do nothing. Its the difference between a hypo around 8pm and a high reading before bed after I have topped myself up (then correcting in the morning) or a 6mmol and a great start to the next day!

Jan 25, 2011 Carolin 83 posts	Topic: Carbohydrate Counting / glucogel Hi, There's only 9g (1 CP) glucose in 1 of the 'single dose' tubes of GlucoGel, therefore to treat your hypo with the recommended 1.5 - 2 CPs rapid acting carbohydrate you would need to take 2 tubes! Carolin

Jan 25, 2011 Carolin 83 posts	Topic: Questions for HCPs / sport and high bloods Hi Carl, It is highly likely your Lantus has run out by that time in the evening, resulting in adrenaline-release of glucose from your muscles and liver during the exercise. If you refer back to your DAFNE handbook as JWo suggests, you should find some guidance in there, but your options may be: take a small dose of QA with CPs prior to the kickboxing consider changing to a twice daily Background Insulin to get better 24-hr coverage (best to discuss this with your local DAFNE Educators) A very useful source of information is: www.runsweet.com Good luck, Carolin