Recent Posts - DAFNE Online

Jan 31, 2011

maria51 22 posts

Topic: General Discussion / Frozen Insulin

Go and get a new lot of insulin Paul ASAP as the insulin you're using now has become ineffective due to being too cold. Have a read of the instruction leaflet that's enclosed with the insulin to find the correct temp to store it. If it becomes frozen, it's no good.

All the best,
Maria.

Jan 31, 2011

Paul F 2 posts

Topic: General Discussion / Frozen Insulin

I store my insulin in the fridge, but the temperature dial got turned up to max by mistake and everything froze. I didn't think to check my insulin, but I guess this froze too.

Anyway, I've been using this insulin for the last few days but it's not as effective at all. Looking at my readings over the last few days... they're nearly all high.

Did anyone else ever had the same experience?

-Paul

Jan 30, 2011

HelenP 218 posts

Topic: General Discussion / Weight

I have been watching my weight for years and years and have (at times become very depressed about it) I have even been put onto a protein sparing fast (in hospital for a week eating <600 calories!). i did not lose any measureable weight...the nursing staff suggested I was eating Mars bars or something but as they held all my insulin that would have resulted in interesting BG's. The explanation from the endo was that weight/insulin/insulin sensitivity was a very complex issue not simply food in. I was basically told to limit carbs to 10 CP a day and to eat a lot of salads and fat free where possible. Since that advice I have not put on weight but neither have I lost any. I have not put on any weight since Dafne! Basically my diet did not change although my HbA1c went down nearly 1%. Complex issue.

Jan 30, 2011

hld1904 5 posts

Topic: General Discussion / Weight

Hi Alan Constable, I agree if you eat less food your weight should go down but if i ate any less i would eat nothing!!! Lol

Jan 30, 2011

Alan 49 284 posts

Topic: General Discussion / Weight

My HCP told me that the best way to lose weight is to eat less. Obviously, if your intake of carbs goes down, then so should your insulin dose. This might not work for everybody, I accept, but it also seems obvious that if you eat more than you need to, the body will store the excess as fat. Eating less certainly worked for me, anyway.

Jan 30, 2011

PaulaY 2 posts

Topic: General Discussion / Weight

I have also found that my weight has increased, though I do intend to eat a lot of salads and fat free foods. Though I am concerned about my weight as is my consultant. My controls are much better since starting Dafne. And I would much rather be overweight than have poor control again.
I think what it has increased my weight, is knowing I can eat carbs and adjust my insulin accordingly. I have stopped eating so many carbs, and my weight is slowly coming off. I'm no longer raiding the biscuit barrel and saying to myself its only so many units of insulin. lol

Jan 30, 2011

MikeH 9 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

i dont think so on the diary summary at the bottom you have Corrective QA Counts (14 day) for Breakfast, Lunch, Dinner and Bed can you show the number of correcticve increases (+) and decreases(-) seperatly instead of just the total corrections for that time.

Jan 29, 2011

Simon 578 posts

Topic: General Discussion / Thank you!!

Why thank you, it's always nice to hear some positive feedback - makes the job worthwhile!

Welcome to the site, hope you enjoy using it and feel free to ask any questions / ask for new features.

Simon

Jan 29, 2011

Simon 578 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

Hi Mike, do you mean to show number of QA correctives as well as CPs?

Jan 29, 2011

MikeH 9 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

on the diary summary could you split the corrective counts and the bottom to number of ups and downs instead of just the total number of corrections, as when my HCP asked i had to do a manual look up.

Many Thanks

Jan 29, 2011

Hello_Lora 1 post

Topic: General Discussion / Thank you!!

I did DAFNE 3 years ago, and I wouldn't say its changed my life, but I certainly have less nighttime hypos.

The biggest issue I had was that I hated recording, it seemed such a hassle on top of checking my levels & injecting....

But now i've discovered this fab site, with online recording, analysis AND a mobile app......whoever you guys are I LOVE you!!! Thank you so much, hopefully I can now get my HBa1C down to a reasonable level after being stuck at 8 for years,

Thank you for this, very much apprciated!!!!

Jan 29, 2011

Trudi 8 posts

Topic: General Discussion / Type 1 Diabetes 'Cure'

35 years ago I was told the cure would be 10 years away - my niece was diagnosed last year and she was told 10 years too - at some point that information is going to be correct!!
I'm not getting super excited by this but I've got to say, given the education I received during the DAFNE course, this does make sense to me. And it's kind of nice to have someone looking at the 'cure' in a different way.
Trudi

Jan 28, 2011

JayBee 587 posts

Topic: General Discussion / Type 1 Diabetes 'Cure'

I join the skeptics.... though if this sort of thing was going to work, I find it quite alarming. I mean, we're talking about cutting off the glucose release that can potentially save you from a very bad hypo.... unless they plan on relying on the gluco jab in extreme cases?

Madness.

Jan 28, 2011

Athena 52 posts

Topic: Questions for HCPs / Information on menstrual cycle

Hi All,

I agree with whoever said about the insulin pump books as I have read that too in them. They seem to accept that there are changes. there must be research papers also and if I find any I will let people know. If i even had just two basals that would be okay, but i have 3 which doesn't actually manage to cover the whole month. I still have gaps where things are really out of control and I haven't amanged to find a BI to cover these days.

good luck with it all everyone.

Helen

Jan 28, 2011

novorapidboi26 1,819 posts

Topic: Questions for HCPs / trends

Hey there........(not HCP)

Firstly I would comment on your background, you take it at night, once a day so assuming Lantus. Pretty much every night you are dropping to give you lows in the morning, quite low lows as well.

So instead of putting it up, like you did on the monday, I would put it down back to 16, try that out for a few days, I suspect you might need to come down further.

The QA ratios seem to be pretty much there, but they will never be really accurate unitl you get your background correct. You also seem to be eating quite alot, which is fine, once you know all your doses are right.....

Once you hold steady overnight with no carbs or QA working then you can start to tackle the morning to lunchtime slot, try to avoid the mid morning snack so you can see what the QA has actually done once its run its course, 4-5 hours, once your happy with the ratio you can go back to snacking if you wish, if it is over the magic 10g of CP then it would still be nice to see a blood glucose there even though you cant take any action with it...

Its good you noticed the alcohol effects on the next day and that you should of dropped your BI dose.

You may find that you hold steady over night, waking on target, but then struggle to get your numbers down during the day, even with higher ratios, or the opposite, struggle to keep them up.........this means that your livers glucagon release varies from night to day, and you would benefit from a split dose, 12 hours apart to accomodate for the different rates of release.....

To conclude, try and do an overnight BI(basal) test without any food or QA 5 hours before your bedtime BG, on Lantus, 3-4 days should be enough to see if its the right dose......

I hope I helped..............

Jan 27, 2011

marke 681 posts

Topic: General Discussion / Type 1 Diabetes 'Cure'

test

Jan 27, 2011

tsavage1990 11 posts

Topic: Questions for HCPs / trends

i have recently restarted recording my results, i sort of fell off the grid when i begun university last year, however i cant see how to improve things - any help identifying trends and/or advice on how to improve my abysmal control would be greatly appreciated

Jan 27, 2011

marke 681 posts

Topic: General Discussion / Type 1 Diabetes 'Cure'

I don't know first we get locked out of the loft due to homes being well insulated, then some quack starts removing our insulin capability, equal rights for us mice, and free cheese on the NHS ! thats what I say.
Sorry even if this article made sense, which I don't beleive it does, testing it on mice and testing it on humans is a huge difference. Any effective output from something like this would take at least 10 years minimum. Sorry but I don't believe there is a 'cure', maybe a prevention one day but thats still a long way off. Most of the source article quotes talks in maybes and perhaps' , they have no real proof of their theories as yet let alone any evidence of a cure. There are always articles like this around, when someone actually launches a mythical cure in the real world and its given to real Diabetics them I will sit up and take notice.


Jan 31, 2011 maria51 22 posts	Topic: General Discussion / Frozen Insulin Go and get a new lot of insulin Paul ASAP as the insulin you're using now has become ineffective due to being too cold. Have a read of the instruction leaflet that's enclosed with the insulin to find the correct temp to store it. If it becomes frozen, it's no good. All the best, Maria.

Jan 31, 2011 Paul F 2 posts	Topic: General Discussion / Frozen Insulin I store my insulin in the fridge, but the temperature dial got turned up to max by mistake and everything froze. I didn't think to check my insulin, but I guess this froze too. Anyway, I've been using this insulin for the last few days but it's not as effective at all. Looking at my readings over the last few days... they're nearly all high. Did anyone else ever had the same experience? -Paul

Jan 30, 2011 HelenP 218 posts	Topic: General Discussion / Weight I have been watching my weight for years and years and have (at times become very depressed about it) I have even been put onto a protein sparing fast (in hospital for a week eating <600 calories!). i did not lose any measureable weight...the nursing staff suggested I was eating Mars bars or something but as they held all my insulin that would have resulted in interesting BG's. The explanation from the endo was that weight/insulin/insulin sensitivity was a very complex issue not simply food in. I was basically told to limit carbs to 10 CP a day and to eat a lot of salads and fat free where possible. Since that advice I have not put on weight but neither have I lost any. I have not put on any weight since Dafne! Basically my diet did not change although my HbA1c went down nearly 1%. Complex issue.

Jan 30, 2011 hld1904 5 posts	Topic: General Discussion / Weight Hi Alan Constable, I agree if you eat less food your weight should go down but if i ate any less i would eat nothing!!! Lol

Jan 30, 2011 Alan 49 284 posts	Topic: General Discussion / Weight My HCP told me that the best way to lose weight is to eat less. Obviously, if your intake of carbs goes down, then so should your insulin dose. This might not work for everybody, I accept, but it also seems obvious that if you eat more than you need to, the body will store the excess as fat. Eating less certainly worked for me, anyway.

Jan 30, 2011 PaulaY 2 posts	Topic: General Discussion / Weight I have also found that my weight has increased, though I do intend to eat a lot of salads and fat free foods. Though I am concerned about my weight as is my consultant. My controls are much better since starting Dafne. And I would much rather be overweight than have poor control again. I think what it has increased my weight, is knowing I can eat carbs and adjust my insulin accordingly. I have stopped eating so many carbs, and my weight is slowly coming off. I'm no longer raiding the biscuit barrel and saying to myself its only so many units of insulin. lol

Jan 30, 2011 MikeH 9 posts	Topic: Site Development / DAFNE Online iPhone application - help with content/design needed i dont think so on the diary summary at the bottom you have Corrective QA Counts (14 day) for Breakfast, Lunch, Dinner and Bed can you show the number of correcticve increases (+) and decreases(-) seperatly instead of just the total corrections for that time.

Jan 29, 2011 Simon 578 posts	Topic: General Discussion / Thank you!! Why thank you, it's always nice to hear some positive feedback - makes the job worthwhile! Welcome to the site, hope you enjoy using it and feel free to ask any questions / ask for new features. Simon

Jan 29, 2011 Simon 578 posts	Topic: Site Development / DAFNE Online iPhone application - help with content/design needed Hi Mike, do you mean to show number of QA correctives as well as CPs?

Jan 29, 2011 MikeH 9 posts	Topic: Site Development / DAFNE Online iPhone application - help with content/design needed on the diary summary could you split the corrective counts and the bottom to number of ups and downs instead of just the total number of corrections, as when my HCP asked i had to do a manual look up. Many Thanks

Jan 29, 2011 Hello_Lora 1 post	Topic: General Discussion / Thank you!! I did DAFNE 3 years ago, and I wouldn't say its changed my life, but I certainly have less nighttime hypos. The biggest issue I had was that I hated recording, it seemed such a hassle on top of checking my levels & injecting.... But now i've discovered this fab site, with online recording, analysis AND a mobile app......whoever you guys are I LOVE you!!! Thank you so much, hopefully I can now get my HBa1C down to a reasonable level after being stuck at 8 for years, Thank you for this, very much apprciated!!!!

Jan 29, 2011 Trudi 8 posts	Topic: General Discussion / Type 1 Diabetes 'Cure' 35 years ago I was told the cure would be 10 years away - my niece was diagnosed last year and she was told 10 years too - at some point that information is going to be correct!! I'm not getting super excited by this but I've got to say, given the education I received during the DAFNE course, this does make sense to me. And it's kind of nice to have someone looking at the 'cure' in a different way. Trudi

Jan 28, 2011 JayBee 587 posts	Topic: General Discussion / Type 1 Diabetes 'Cure' I join the skeptics.... though if this sort of thing was going to work, I find it quite alarming. I mean, we're talking about cutting off the glucose release that can potentially save you from a very bad hypo.... unless they plan on relying on the gluco jab in extreme cases? Madness.

Jan 28, 2011 Athena 52 posts	Topic: Questions for HCPs / Information on menstrual cycle Hi All, I agree with whoever said about the insulin pump books as I have read that too in them. They seem to accept that there are changes. there must be research papers also and if I find any I will let people know. If i even had just two basals that would be okay, but i have 3 which doesn't actually manage to cover the whole month. I still have gaps where things are really out of control and I haven't amanged to find a BI to cover these days. good luck with it all everyone. Helen

Jan 28, 2011 novorapidboi26 1,819 posts	Topic: Questions for HCPs / trends Hey there........(not HCP) Firstly I would comment on your background, you take it at night, once a day so assuming Lantus. Pretty much every night you are dropping to give you lows in the morning, quite low lows as well. So instead of putting it up, like you did on the monday, I would put it down back to 16, try that out for a few days, I suspect you might need to come down further. The QA ratios seem to be pretty much there, but they will never be really accurate unitl you get your background correct. You also seem to be eating quite alot, which is fine, once you know all your doses are right..... Once you hold steady overnight with no carbs or QA working then you can start to tackle the morning to lunchtime slot, try to avoid the mid morning snack so you can see what the QA has actually done once its run its course, 4-5 hours, once your happy with the ratio you can go back to snacking if you wish, if it is over the magic 10g of CP then it would still be nice to see a blood glucose there even though you cant take any action with it... Its good you noticed the alcohol effects on the next day and that you should of dropped your BI dose. You may find that you hold steady over night, waking on target, but then struggle to get your numbers down during the day, even with higher ratios, or the opposite, struggle to keep them up.........this means that your livers glucagon release varies from night to day, and you would benefit from a split dose, 12 hours apart to accomodate for the different rates of release..... To conclude, try and do an overnight BI(basal) test without any food or QA 5 hours before your bedtime BG, on Lantus, 3-4 days should be enough to see if its the right dose...... I hope I helped..............

Jan 27, 2011 marke 681 posts	Topic: General Discussion / Type 1 Diabetes 'Cure' test

Jan 27, 2011 tsavage1990 11 posts	Topic: Questions for HCPs / trends i have recently restarted recording my results, i sort of fell off the grid when i begun university last year, however i cant see how to improve things - any help identifying trends and/or advice on how to improve my abysmal control would be greatly appreciated

Jan 27, 2011 marke 681 posts	Topic: General Discussion / Type 1 Diabetes 'Cure' I don't know first we get locked out of the loft due to homes being well insulated, then some quack starts removing our insulin capability, equal rights for us mice, and free cheese on the NHS ! thats what I say. Sorry even if this article made sense, which I don't beleive it does, testing it on mice and testing it on humans is a huge difference. Any effective output from something like this would take at least 10 years minimum. Sorry but I don't believe there is a 'cure', maybe a prevention one day but thats still a long way off. Most of the source article quotes talks in maybes and perhaps' , they have no real proof of their theories as yet let alone any evidence of a cure. There are always articles like this around, when someone actually launches a mythical cure in the real world and its given to real Diabetics them I will sit up and take notice.