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Apr 10, 2011
HelenP
218 posts
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Topic: General Discussion / Ideas In defence of fractional ratios!My endocrinologist was most supportive of fractional ratios. It was his idea and I was skeptical but he convinced me to give it a try. As I lived on fairly regular meals I was able to achieve these for breakfast and lunch but often had problems with evening meals (more difficult to count carbs). You need a demipen and the ability to multiply in decimals. Or, you have the same things for breakfast everyday and calculate once. It does smack of obsession but I found it fine. Helen |
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Apr 9, 2011
tweety
13 posts
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Topic: General Discussion / Ideas Hey Neil, your correction should depend on your BG level and your sensitivity to the insulin, I mean for me 1unit brings my BG down by 4. I can see where novorapidboi is coming from though, there is no consistency with amounts of corrections, therefor I wouldn't want to comment on how to fix those high BG results. If in this position i would prob have tried adjustin BI b4 changing any ratios. Hope you've been able to gain a little control now :-) |
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Apr 9, 2011
tweety
13 posts
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Topic: General Discussion / Mesntrual Cycle Although my nurse has pointed out to me that hormonal changes due to TOTM could be causing some hypo's with me, (I went through a phase that I was hypoing continuously and had to stay with my parents for a few days) I still havent thought about how to get a pattern, I just assumed it would sort itself out, in thinkin about it I guess I do still hypo quite often around my TOTM but now I certainly will try n find out exactly when and how my 3wks on and 1wk of pill will affect my BG and how to control it better. |
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Apr 9, 2011
tweety
13 posts
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Topic: General Discussion / sick day rules Thanks soooo much for all the info on ketones every1, I'm feeling a whole lot better now and eating normally although I still seem to have a trace of ketones I'm not really worried about them now. I had no idea about most of this stuff, similar to yourself JWo I was diagnosed when I was 7 so didnt really know much about anythin, gosh I didnt even know how to change my insulin b4 dafne. I would always wait till my 6 month app at hosp n the dr there would change things and ratios I thought that was stuff I did back at school till I went on the dafne course. Didnt know how the drs were changing things I just knew when I went to hosp my insulin dosages would always change for some reason. Lookin back now I think how mad it was I could have been on a wrong ratio for 6/7 months at a time n didnt even realise as I had never been taught!! |
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Apr 9, 2011
JayBee
587 posts
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Topic: General Discussion / sick day rules Thanks. ^_^; ...and I've had my nap too now. Bit of a siesta, with the sunshine blazing from the window!You're already expressing more deeper knowledge than I do about ketones, I just know what I've discovered each day - perhaps I should look at doing more research, a habit I've not really started considering you can't always trust what you read online. ;) How did you learn what you've come to understand? I had no idea that ketones bodies were used for energy for example! It's so easy to misinterpret information, which is a shame. Taking stuff at face value, typical attitude of a child really now that I think about it. I do really wish I was diagnosed later on than 5 years of age sometimes. What I've grown up with is wrong sometimes - ketones are a great example considering not all of them are bad (as you're telling me now as well as my nurse helping me to realise). I do wonder sometimes that it's because since DAFNE I've started testing for ketones a lot more (because I used to be very bad for not testing at all, ill or otherwise), that I never became more aware sooner... but oh well, you live and learn.  Its for stuff like this that I'm so glad DAFNE is in my life. My diabetes was in such a guess cloud before. -_-;; |
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Apr 9, 2011
novorapidboi26
1,819 posts
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Topic: General Discussion / sick day rules Dont worry about it, coming across the wrong way is bound to happenm with me quite often, mentioning my "opinion" is just my way of emphasising thats its what I believe with the information I have been given up to this point, but I could be wong or not know the full science of the ketone......I wouldnt say ketones are the cause of illnes, as they are a natural ocurance and are processed even in a non diabetic, when illness occurs extra glucose is provided to help in fighting the infection or virus or healing of a wound, so for diabetics this can be hard to estimate what we need to compensate, and therefore ketones are more likely.... During the night the brain actually depends on ketone bodies for energy DKA obviously occurs when the bodies functions cant cope with the acidity and lack of fuel, and will shut down eventually............... As we alaways have some ketones in our blood, I wouldnt think that it would prevent a hypo after a hypo, unless however there are elevated levels of them then obviously there is not engouh insulin to get even glusoce to the bodies cells, so the likelyhood of the BG dropping is low....... |
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Apr 9, 2011
JayBee
587 posts
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Topic: General Discussion / sick day rules
LOL considering you kept saying "in my opinion" it came across as you felt you were being careful not to offend!  To be honest though, today hasn't been great. Not had a good morning/night really, I hypo'd yesterday afternoon (around 3pm), and after forgetting about my new ratio 1:1.5 for my evening meal, I didn't take the rest for the pizzahut (totalled 23 CPs) I had last night because I felt I was going to hit a low mid meal after taking the initial dose of 19.5.... naturally, my sugar levels were high this morning and instead of eating anything, I decided to risk taking 1.5 QA to get myself down (going against hypo rules). Not long after my last edit of that post, I did a blood test (this is after the 5 hours to let my correction finish) I'd only gone from 19.2 to 15.1 (I have experienced 1 QA taking me down 9 BG, so I'm surprised if I'm honest but oh well, we learn!). I did also check for ketones (were 0.1) considering 19.2 is pretty darned high! ;P Explains the rubbish mood anyway. Sorry. I've eaten now so hopefully I'll be a bit more sane lol. May even consider a nap as well.  Would you say that ketones are the cause of illness rather than the other way around? I thought of that a couple of times in the past year or so when learning more about ketones... Also, do we think that if we have ketones present, ill or not, does this affect the chances of a hypo after another hypo? Take my day today for an example... very strange not to drop so drastically! |
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Apr 9, 2011
novorapidboi26
1,819 posts
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Topic: General Discussion / sick day rules I wasn't responding to anyhing you said.....just explaining my understanding of them.........Did one get out the wrong side of the DAFNE targets this morning.......lol....... |
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Apr 9, 2011
JayBee
587 posts
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Topic: General Discussion / sick day rules
Excuse me, who said they were caused by illness only? That wasn't what I said in my post at all, if you read it. |
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Apr 9, 2011
JayBee
587 posts
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Topic: Questions for HCPs / Information on menstrual cycle I think when I first started working out my new lantus doses when I first split, I was not aware of how drastic the changes are, and it's only been since I came on to Levemir that the full extent of the problem actually came to light and the penny dropped that I would need to work hard on this problem.Working it out progress: I've still not quite worked out what is going on exactly, but while I am, I've found that if I draw myself up a chart, I've found it has helped me remember for next month instead of checking back in my DAFNE diary. I find that my highs start before the pill has even finished being taken (which (unsurprisingly) surprised one of my DAFNE nurses!)! It goes like this (roughly) considering I don't have a photo handy of it (written in pencil so it's easy to edit): Firstly, please note that I start my pill taking on a wednesday so it finishes on a tuesday. I am also on a split dose of Levemir so each change will be marked MORN or EVE. I take my insulin MANUALLY. Thursday (before the pill finishing tuesday) EVE: 16-18 BI (I'm still unsure which it is because of mixed signals )Friday MORN: 10 BI Leave it until... Thursday (first thurs after pill is finished) EVE: 11 BI Friday MORN: 9 BI Period starts late sat/early sun - only lasts a few days (due to pill). Leave it until... Monday MORN: 7 BI (If I don't do this change, I have very serious hypos - so bad that I hypo twice again after treating the first hypo again! Had to fix that ASAP! This happens EVERY TIME without fail if I don't put it down from 9 BI!) Monday EVE: 9 BI Then when the pill starts again Wednesday EVE I'm back to "normal routine" of 6 MORN BI and 11 EVE BI. Pill talk I am on the Microgynon pill currently - I do believe this has helped because patterns seem to have been consistent, but I do not want to remain on this pill. I have been considering a hormone free coil but considering the shifts of non-pill users that have been brought up in the Information on menstrual cycle thread found in the HCP section of the forum, I have been a bit afraid to proceed with the change considering I don't yet understand what's happening while on a pill. At the moment during the time of the month (TOTM), I am only adjusting my BI. Recently though, I'm beginning to doubt that my 'off TOTM' insulin is still not quite right, but I have been very stressed lately with work changing my environment again and the like, so results have been messed up yet again. I have also done a new adjustment of putting my evening meal ratio up to 1:1.5 but considering I've been 1:1 for such a long time and currently under stress, I will be keeping an eye out for hypos. This TOTM stuff used to frustrate me no end, but it's slowly got easier... but the fact I don't understand it all is keeping the annoyance there. Back to back pills Before I forget, I recently went on holiday and I was expecting to have to take two pill backs back to back to prevent period... but I knew that my hormones kicked in before the end of my pill taking so I was very concerned about what would happen if I did take pills back to back. I did ask one of my DAFNE nurses and she said that instead of risking a hypo from my body going straight back to normal doses straight away. Thankfully, I didn't have to in the end because my TOTM didn't start until after I got home so I didn't back to back in the end. With this, has anyone established what happens? I know the doctors recommend that you only do pack to pack once or twice a year at most (because it mucks up your hormone patterns - I can vouch - I was stupid enough to do it one on, one off, for a few months) so it's not likely it will get much attention as the straight forward pill taking. |
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Apr 9, 2011
JayBee
587 posts
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Topic: General Discussion / Mesntrual Cycle (I will post this in both threads considering I've already posted in that HCP thread you mention)I think when I first started working out my new lantus doses when I first split, I was not aware of how drastic the changes are, and it's only been since I came on to Levemir that the full extent of the problem actually came to light and the penny dropped that I would need to work hard on this problem. Working it out progress: I've still not quite worked out what is going on exactly, but while I am, I've found that if I draw myself up a chart, I've found it has helped me remember for next month instead of checking back in my DAFNE diary. I find that my highs start before the pill has even finished being taken (which (unsurprisingly) surprised one of my DAFNE nurses!)! It goes like this (roughly) considering I don't have a photo handy of it (written in pencil so it's easy to edit): Firstly, please note that I start my pill taking on a wednesday so it finishes on a tuesday. I am also on a split dose of Levemir so each change will be marked MORN or EVE. I take my insulin MANUALLY. Thursday (before the pill finishing tuesday) EVE: 16-18 BI (I'm still unsure which it is because of mixed signals )Friday MORN: 10 BI Leave it until... Thursday (first thurs after pill is finished) EVE: 11 BI Friday MORN: 9 BI Period starts late sat/early sun - only lasts a few days (due to pill). Leave it until... Monday MORN: 7 BI (If I don't do this change, I have very serious hypos - so bad that I hypo twice again after treating the first hypo again! Had to fix that ASAP! This happens EVERY TIME without fail if I don't put it down from 9 BI!) Monday EVE: 9 BI Then when the pill starts again Wednesday EVE I'm back to "normal routine" of 6 MORN BI and 11 EVE BI. Pill talk I am on the Microgynon pill currently - I do believe this has helped because patterns seem to have been consistent, but I do not want to remain on this pill. I have been considering a hormone free coil but considering the shifts of non-pill users that have been brought up in the Information on menstrual cycle thread found in the HCP section of the forum, I have been a bit afraid to proceed with the change considering I don't yet understand what's happening while on a pill. At the moment during the time of the month (TOTM), I am only adjusting my BI. Recently though, I'm beginning to doubt that my 'off TOTM' insulin is still not quite right, but I have been very stressed lately with work changing my environment again and the like, so results have been messed up yet again. I have also done a new adjustment of putting my evening meal ratio up to 1:1.5 but considering I've been 1:1 for such a long time and currently under stress, I will be keeping an eye out for hypos. This TOTM stuff used to frustrate me no end, but it's slowly got easier... but the fact I don't understand it all is keeping the annoyance there. Back to back pills Before I forget, I recently went on holiday and I was expecting to have to take two pill backs back to back to prevent period... but I knew that my hormones kicked in before the end of my pill taking so I was very concerned about what would happen if I did take pills back to back. I did ask one of my DAFNE nurses and she said that instead of risking a hypo from my body going straight back to normal doses straight away. Thankfully, I didn't have to in the end because my TOTM didn't start until after I got home so I didn't back to back in the end. With this, has anyone established what happens? I know the doctors recommend that you only do pack to pack once or twice a year at most (because it mucks up your hormone patterns - I can vouch - I was stupid enough to do it one on, one off, for a few months) so it's not likely it will get much attention as the straight forward pill taking. |
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Apr 8, 2011
Pat N
13 posts
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Topic: Site Development / Sending diary as an E-mail (ipod touch) Hello Simon,Thank you it works a treat. I really appreciate the many long hours of work that you must be putting in to developing and making these great improvements. I have also just noticed that you have had a recent app update on apple. It too was well worth downloading. Many improvments. Thanks again, Pat |
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Apr 8, 2011
Karl
83 posts
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Topic: DAFNE Online Mobile / Bug with iPhone app (& site diary) Hi Simonyes it does show in the correction - my mistake. |
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Apr 8, 2011
Simon
578 posts
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Topic: Site Development / Sending diary as an E-mail (ipod touch) Hi Pat,Finally got round to doing this - if you look at the site diary, above the table of entries, there is an option to 'Export as CSV for Excel' which will give you a .csv file which can then be opened up in Excel. Apologies for the delay! Simon |
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Apr 8, 2011
Simon
578 posts
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Topic: DAFNE Online Mobile / Bug with iPhone app (& site diary) Karl - you raise an interesting point. The app doesn't take away negative corrections from the TDD at the moment (something for us to fix), however it should show the total number of negative corrections given - does this work for you?RobT - Yes we are using an open source stack. The app and diary have been based on the DAFNE Paper Diary, where (at least when I took the course) you entered the QA and BI dose under the same entry. Indeed, the Injection Site logging has only been implemented as a user request on this site. Would it be acceptable to add Injection Site (QA) and Injection Site (BI) as options in the app/site? We want to stay as faithful to the DAFNE way of doing things as possible.Finally, re the Injection Sites - we got the list of sites by canvsssing users for what they wanted in the list. Simon |
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Apr 8, 2011
RobT
7 posts
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Topic: DAFNE Online Mobile / Bug with iPhone app (& site diary) OK, I have worked out that you can enter units of insulin of the form a+/-b. The system correctly identifies corrective entries in this case. However, the assumption must be that a is the usual amount of insulin and b is the corrective value. Which I can cope with.BUT As the system only allows entry of a single site for injection I cannot record separate locations for BI and QA. Additionally I would like to say that you have successfully identified that humans have left and right legs but no left and right buttocks, it appears! My original, and actually more important bug report, is that I cannot make contemporaneous entries... I don't wish to come across as complaining, but as I write software for part of my living (i.e. Professionally) I do feel reasonably qualified to suggest improvements. I fully appreciate the time and effort that has gone into creating the website, the apps and the synchronisation of the data between the two is just the right thing to do. I have an iPad and an iPhone which appear to work seamlessly with it all. Congratulations, well done, I dearly hope that you are not hosting under IIS and that you are using open source database ( e.g. MySQL) and other open source platforms ... ?  Finally, Is there a user manual for the app? |
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Apr 8, 2011
emmahope
17 posts
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Topic: General Discussion / POST HYPO HIGHS Hi novorapidboi26Gastro paresis is the pits.its unpredictable too but im ever hopeful that the more i watch things the more i'll understand what affects what. This week still working on BI and am trying for usual targets after having been intentionally high for a bit for hypo unawareness. My bi has not been right and now think this has been more a cause of highs and lows than thought before. its a struggle to see patterns (they dont last-brittle diabetes and gastro-paresis). i will bring question to renal-diabetology consultant re tablets for Gastro-P. when i see him. I'm going to a pump open-evening soon also, Some of your suggestions i may try. its encouraging to see you be so on top of things and aware,and how helpful you are to people on the site Thank you, emma |