Recent Posts - DAFNE Online

Mar 31, 2011

DFH_17 22 posts

Topic: Questions for HCPs / Cant stop BG Levels going up

Hi both,

novorapidboi - is interesting that you've said that stress leads to insulin resistance - it does feel as though my insulin isnt working v well so thats a good point. Have lots of stomach pains and last year had to go into hospital due to kidney stones due to covering 2 roles for over 6 mths.

Chris - my situation is slightly different in the fact that people I care about in the company are being potentially booted out of their jobs and not being treated well plus I had a situation all last week where I was being treated well by a few staff members - my boss intervened and sorted the situation out but am still stressed as I sit with these people! Plus 1 of my pals who has been a great support is leaving tomorrow so more upset. My BG's have calmed a bit but will need to hoik (sp) my BI again tonight as I'm still not quite there yet.
Thank you

Mar 31, 2011

novorapidboi26 1,819 posts

Topic: General Discussion / Mentoring

I dont think many would be up to the challenge, so its how to select people........ Question

Mar 31, 2011

Edentherapies 8 posts

Topic: General Discussion / dafne app/carb calculator for Blackberry phones

oh yes my mum has saved me a few times in the house!!! I have just got myself some pocket scales for out and about lol!

Should be all set now really Razz

Mar 31, 2011

Alan 49 284 posts

Topic: General Discussion / Mentoring

I think it was the idea of the DSN at my GP surgery and was tried experimentally. I don't know whether they are going to pursue it.

Mar 31, 2011

novorapidboi26 1,819 posts

Topic: Questions for HCPs / Cant stop BG Levels going up

Sounds like a plan to me........ Idea

.......fortunately in my life I haven't had to many stressful times so haven't really noticed an obvious effect but if definitely effects your BGs, or more precisely your resistance to insulin as a result of the abnormal levels of hormones swimming about when we are stressed out...........

Mar 31, 2011

novorapidboi26 1,819 posts

Topic: General Discussion / dafne app/carb calculator for Blackberry phones

It always be a struggle when out and about...... Twisted Evil

But when in the home, a set of scales and/or a good woman is all you need.......... Wink

Mar 31, 2011

chrisg9 7 posts

Topic: Questions for HCPs / Cant stop BG Levels going up

Hi,
I kicked off this thread and interesting to see from yours that you mention stress. I know that sometimes this can be something of a "catch-all" to explain high BGs, so my observations here are purely regarding my own experience. During the DAFNE week, I mentioned that stress, being roller-coaster in nature, tended to lead both to consistently high BGs and, because of how it impacts the "working day", a likely drift from the DAFNE regime. I usually go from meeting to meeting and as currently the company is being acquired, its even worse; futures (along with eating and injections) are uncertain. As much as I try to stand back from all of this and calmly observe from a distance (i.e what will be, will be), it is simply not possible and BGs inevitably suffer - despite adjustments/corrections etc. My approach has been to try to introduce some non-work related activities (I may be having more of this than planned if the work situation goes belly-up) somewhere into the week to address the stress because if that's not under control (both biochemically and psychologically) the BGs wont ever be. Sorry, not very scientific I know... perhaps just more of a shared experience.
I hope it works out for you
Chris

Mar 30, 2011

Edentherapies 8 posts

Topic: General Discussion / dafne app/carb calculator for Blackberry phones

Aye, it's just being able to regonise the cps in portions! i'll get there Laughing

Mar 30, 2011

daviebear 19 posts

Topic: General Discussion / Ideas

Hi Neil,Hope you're doing ok.It looks to me that like me you have that old chestnut the dawn phenomenon.Which is a bugger.You could maybe try increasing the nightime BI to see if that helps.And again maybe the morning QA.This is what I had to do last week and it worked for me.I know that like me you want to sort everything out at once,and I know how much of pain it is that you have to wait 2 days to see if changes are working.I upped my monring ratio 2:1,2.5:1 then3:1,with good affect,it does seem safer( and I would have disagreed if anyone said this to me last week)to change backgrounds first though.Contact Margaret as well as she was great at keeping me right with my probs last week.How are your injection sites doing as I remember they were casuing you a lot of trouble as well.One last point(I know I drone on).Are thes Bg's at work or at home as my BI has to change quite a bit it would seem depending on wether i'm at work or on days off.Let me know how you get on . Smile

Mar 30, 2011

novorapidboi26 1,819 posts

Topic: General Discussion / dafne app/carb calculator for Blackberry phones

As times goes on Cool

, you wont need any help apart from when your eating out as you can only guess...............................

Mar 30, 2011

Edentherapies 8 posts

Topic: General Discussion / dafne app/carb calculator for Blackberry phones

Cheers Novorapidboi,

It was mainly as a back up for when I'm oot and aboot. Been using the DAFNE handbook and keeping a note of what I have been eating regularly but still making mistakes at the moment! Just a matter of getting used to counting. I used to roughly count carbs but now I now exactly what QA's I can take I'm trying to be more precise!

Ta for the info, Hope your well.
Sam Laughing

Mar 30, 2011

caroline15 45 posts

Topic: Site Development / Glossary of Terms

Mar 30, 2011

novorapidboi26 1,819 posts

Topic: Site Development / Glossary of Terms

BAsal..............BAckground................................ Razz

Mar 30, 2011

caroline15 45 posts

Topic: Site Development / Glossary of Terms

My daughter has just gone on a pump last week and her dsn says to remember it by bolus/bowl of food. Hope this helps. Smile

Mar 30, 2011

novorapidboi26 1,819 posts

Topic: General Discussion / Ratios etc

I think that's getting a bit to complicated for me, I can understand what your getting at though, but I believe trying to master this is pushing the boundaries........we dont know how long our sensitivity/resistance to insulin lasts on an hourly basis...........

I suppose you could say the same for insulin/carb ratios...........I need 3 units to every 10 grams for breakfast, so why then do I not go low for lunch as my resistance to the insulin decreases to 2 units to every 10 grams

Mar 30, 2011

Aneirin 15 posts

Topic: General Discussion / Ratios etc

It seems to work for you, but when your blood sugars decrease, wouldn't your insulin resistance change? So giving 12 at 17, the first 7 or so unit will take you down to ten, at what point your insulin resistance will decrease and you now have a dose of insulin and the next 5 units (working at 1 unit taking down 2 blood sugars) may take you down to zero.

Wouldn't it be preferable if this high and working off these rules, to give yourself an initial dose at 1:1 to bring you to 10 and then a further dose once down to take you down the rest (on the assumption 1 takes you down 2 instead of one)

Mar 30, 2011

novorapidboi26 1,819 posts

Topic: General Discussion / Ratios etc

This is purely my own personal experiences............................

But my theory behind these corrections is that the higher your blood sugar the less effective 1 unit of insulin is, ie.....higher resistance...........

As a general principle:
1 unit of quick-acting insulin lowers blood glucose by 2-3mmol/l. For blood glucose levels above 11mmol/l this rule does not necessarily apply.

This statement can be found here........just realized you wont be able to access this link if your not signed up as a graduate, sorry........but its there believe me....... Wink

So I actually investigated how much 1 unit dropped me by at different levels and came up with 4 categories of blood glucose readings and a matching drop by 1 unit...........

Everyone is different in terms of their response to 1 unit, but for me at a level of 17 or above, 1 unit only drops me by 1mmol/l...............so to return to 5.5 from 17.2 I would need to drop 12mmol/l, hence the 12 units.......... Very Happy

Mar 30, 2011

india 2 posts

Topic: General Discussion / Ratios etc

hi..i am new to this site but am wondering about the 'if you were 17.5 then a dose of 12 would get you back to normal'?....i have been instructed always to take 1 unit to get me down 2 numbers......so if my blood weere 15 then to get to say 5....then 5 units of novorapid would in theory do the job.....i understand it doesn't always work like that.

but please tell me if i have got this wrong...but 12 units for a 17.5....wouldn't that throw you into severe hypo? as 12 would get you down a possible 24 numbers and therefore well past a blood of 5 - ish?

sorry if i have got this completely wrong....but i needed to ask....thanks

Mar 30, 2011

novorapidboi26 1,819 posts

Topic: Site Development / Glossary of Terms

Its a good idea I think............

Users on the site I believe should be familiar with the DAFNE abbreviations like, QA, BI, BG, etc............but it wouldn't hurt...........I think basal and bolus is a more general term and is used more in the pumping world to differentiate between two different dose purposes with one type of insulin. But there are a few pumpers in our midst so it would be a good idea I suppose.

Mar 30, 2011

Alan 49 284 posts

Topic: Site Development / Glossary of Terms

Would it be worth putting a Glossary of Terms on the website? Searching the Handbook for 'bolus' or 'basal' yields no results, so I'm still not sure which is quick-acting and which is background insulin. Abbreviations could also be there, so a newcomer to the site could find out what CP or BG mean or non-medical abbreviations, like 'lol' - which I only recently found out means 'laugh out loud'.

What do you think?

Mar 30, 2011

novorapidboi26 1,819 posts

Topic: General Discussion / dafne app/carb calculator for Blackberry phones

I am on the android market and there are many apps for recording results, producing graphs etc.........not like the DAFNE app but useful none the less. I would expect there to be something similar on the BB market.

Are you looking for and app to count carbs, dont know if there are many out there to be honest. Are you looking for convenience or do you have a specific problem with counting carbs......?

There is a book called carbs and cals which has been recommended by many in the diabetic community, I do believe there is an iPhone app to accompany this also, you could try searching for this on the BB....

Good Luck............ Smile

Mar 30, 2011

JackieB 3 posts

Topic: Questions for HCPs / Information on menstrual cycle

Hi Athena,

Yes, variations in insulin requirements due to hormonal variation over my menstrual cycle have .... been the bain of my life. My cycle was very irregular which made it impossible to track. I only recognise this now after many years! I was on the first DAFNE course in Ireland and yes I learnt a huge amount but like you say the stepwise approach didn't work because of these variations. I used to think I was doing something wrong which didn't help motivation at all. I also have the dawn rises which I am still working on controlling with a pump.

I haven't got it sorted yet as I have a 5 week cycle with about 3 phases of insulin requirements over those 5 weeks.

However, I do believe that there should be more information available on this issue. Not knowing this has caused years of grief for me as I just wasn't getting it right(or near to it). I thought I was doing it all wrong but alot of the time it was my body. It should be mentioned in the DAFNE course even if there are no answers/research yet so that one can start to recognise this higher level pattern(over weeks/months). Maybe this was already obvious to people with regular cycles but for me I could have a 3 to 8 week cycle which meant I didn't see a pattern.

Sorry for the rant but I hope it may help others if they have the same issues.

Jackie

Mar 29, 2011

Edentherapies 8 posts

Topic: General Discussion / dafne app/carb calculator for Blackberry phones

Hi all,

I know that the Iphone has an app for DAFNE but does any one have any idea if there is one or something similar for the Blackberry? Been surfin the net for hours now and I'm getting nowhere! Rolling Eyes

Ta peeps,

Sam

Mar 29, 2011

DFH_17 22 posts

Topic: General Discussion / What made you smile today?

Getting the new Avil Lavigne album via play.com yesterday andlovin all the tracks :-)

Mar 29, 2011

DFH_17 22 posts

Topic: Questions for HCPs / Cant stop BG Levels going up

Hi,

Thanks for giving the advice. Started on the higher amount of 36BI from 34BI 2 nights ago - BG's are still a little bit high but are gradually calming down. will see how it goes tomorrow as well. Have gone a bit low this evening so more than likely will need to have a go at the QA tomorrow.

Thats what I hope to get - has been better today - had 1 high reading today at lunch - jumped from 6,7 at breakfast to 12,2 at lunch :-( But by dinner had calmed down to 7.9. I'll see how it goes before sharing my results with all - am hoping it will keep going the way it should do.

Mega thanks for your help - have been really worried.

Mar 31, 2011 DFH_17 22 posts	Topic: Questions for HCPs / Cant stop BG Levels going up Hi both, novorapidboi - is interesting that you've said that stress leads to insulin resistance - it does feel as though my insulin isnt working v well so thats a good point. Have lots of stomach pains and last year had to go into hospital due to kidney stones due to covering 2 roles for over 6 mths. Chris - my situation is slightly different in the fact that people I care about in the company are being potentially booted out of their jobs and not being treated well plus I had a situation all last week where I was being treated well by a few staff members - my boss intervened and sorted the situation out but am still stressed as I sit with these people! Plus 1 of my pals who has been a great support is leaving tomorrow so more upset. My BG's have calmed a bit but will need to hoik (sp) my BI again tonight as I'm still not quite there yet. Thank you

Mar 31, 2011 novorapidboi26 1,819 posts	Topic: General Discussion / Mentoring I dont think many would be up to the challenge, so its how to select people........

Mar 31, 2011 Edentherapies 8 posts	Topic: General Discussion / dafne app/carb calculator for Blackberry phones oh yes my mum has saved me a few times in the house!!! I have just got myself some pocket scales for out and about lol! Should be all set now really

Mar 31, 2011 Alan 49 284 posts	Topic: General Discussion / Mentoring I think it was the idea of the DSN at my GP surgery and was tried experimentally. I don't know whether they are going to pursue it.

Mar 31, 2011 novorapidboi26 1,819 posts	Topic: Questions for HCPs / Cant stop BG Levels going up Sounds like a plan to me........ .......fortunately in my life I haven't had to many stressful times so haven't really noticed an obvious effect but if definitely effects your BGs, or more precisely your resistance to insulin as a result of the abnormal levels of hormones swimming about when we are stressed out...........

Mar 31, 2011 novorapidboi26 1,819 posts	Topic: General Discussion / dafne app/carb calculator for Blackberry phones It always be a struggle when out and about...... But when in the home, a set of scales and/or a good woman is all you need..........

Mar 31, 2011 chrisg9 7 posts	Topic: Questions for HCPs / Cant stop BG Levels going up Hi, I kicked off this thread and interesting to see from yours that you mention stress. I know that sometimes this can be something of a "catch-all" to explain high BGs, so my observations here are purely regarding my own experience. During the DAFNE week, I mentioned that stress, being roller-coaster in nature, tended to lead both to consistently high BGs and, because of how it impacts the "working day", a likely drift from the DAFNE regime. I usually go from meeting to meeting and as currently the company is being acquired, its even worse; futures (along with eating and injections) are uncertain. As much as I try to stand back from all of this and calmly observe from a distance (i.e what will be, will be), it is simply not possible and BGs inevitably suffer - despite adjustments/corrections etc. My approach has been to try to introduce some non-work related activities (I may be having more of this than planned if the work situation goes belly-up) somewhere into the week to address the stress because if that's not under control (both biochemically and psychologically) the BGs wont ever be. Sorry, not very scientific I know... perhaps just more of a shared experience. I hope it works out for you Chris

Mar 30, 2011 Edentherapies 8 posts	Topic: General Discussion / dafne app/carb calculator for Blackberry phones Aye, it's just being able to regonise the cps in portions! i'll get there

Mar 30, 2011 daviebear 19 posts	Topic: General Discussion / Ideas Hi Neil,Hope you're doing ok.It looks to me that like me you have that old chestnut the dawn phenomenon.Which is a bugger.You could maybe try increasing the nightime BI to see if that helps.And again maybe the morning QA.This is what I had to do last week and it worked for me.I know that like me you want to sort everything out at once,and I know how much of pain it is that you have to wait 2 days to see if changes are working.I upped my monring ratio 2:1,2.5:1 then3:1,with good affect,it does seem safer( and I would have disagreed if anyone said this to me last week)to change backgrounds first though.Contact Margaret as well as she was great at keeping me right with my probs last week.How are your injection sites doing as I remember they were casuing you a lot of trouble as well.One last point(I know I drone on).Are thes Bg's at work or at home as my BI has to change quite a bit it would seem depending on wether i'm at work or on days off.Let me know how you get on .

Mar 30, 2011 novorapidboi26 1,819 posts	Topic: General Discussion / dafne app/carb calculator for Blackberry phones As times goes on , you wont need any help apart from when your eating out as you can only guess...............................

Mar 30, 2011 Edentherapies 8 posts	Topic: General Discussion / dafne app/carb calculator for Blackberry phones Cheers Novorapidboi, It was mainly as a back up for when I'm oot and aboot. Been using the DAFNE handbook and keeping a note of what I have been eating regularly but still making mistakes at the moment! Just a matter of getting used to counting. I used to roughly count carbs but now I now exactly what QA's I can take I'm trying to be more precise! Ta for the info, Hope your well. Sam

Mar 30, 2011 caroline15 45 posts	Topic: Site Development / Glossary of Terms

Mar 30, 2011 novorapidboi26 1,819 posts	Topic: Site Development / Glossary of Terms BAsal..............BAckground................................

Mar 30, 2011 caroline15 45 posts	Topic: Site Development / Glossary of Terms My daughter has just gone on a pump last week and her dsn says to remember it by bolus/bowl of food. Hope this helps.

Mar 30, 2011 novorapidboi26 1,819 posts	Topic: General Discussion / Ratios etc I think that's getting a bit to complicated for me, I can understand what your getting at though, but I believe trying to master this is pushing the boundaries........we dont know how long our sensitivity/resistance to insulin lasts on an hourly basis........... I suppose you could say the same for insulin/carb ratios...........I need 3 units to every 10 grams for breakfast, so why then do I not go low for lunch as my resistance to the insulin decreases to 2 units to every 10 grams

Mar 30, 2011 Aneirin 15 posts	Topic: General Discussion / Ratios etc It seems to work for you, but when your blood sugars decrease, wouldn't your insulin resistance change? So giving 12 at 17, the first 7 or so unit will take you down to ten, at what point your insulin resistance will decrease and you now have a dose of insulin and the next 5 units (working at 1 unit taking down 2 blood sugars) may take you down to zero. Wouldn't it be preferable if this high and working off these rules, to give yourself an initial dose at 1:1 to bring you to 10 and then a further dose once down to take you down the rest (on the assumption 1 takes you down 2 instead of one)

Mar 30, 2011 novorapidboi26 1,819 posts	Topic: General Discussion / Ratios etc This is purely my own personal experiences............................ But my theory behind these corrections is that the higher your blood sugar the less effective 1 unit of insulin is, ie.....higher resistance........... As a general principle: 1 unit of quick-acting insulin lowers blood glucose by 2-3mmol/l. For blood glucose levels above 11mmol/l this rule does not necessarily apply. This statement can be found here........just realized you wont be able to access this link if your not signed up as a graduate, sorry........but its there believe me....... So I actually investigated how much 1 unit dropped me by at different levels and came up with 4 categories of blood glucose readings and a matching drop by 1 unit........... Everyone is different in terms of their response to 1 unit, but for me at a level of 17 or above, 1 unit only drops me by 1mmol/l...............so to return to 5.5 from 17.2 I would need to drop 12mmol/l, hence the 12 units..........

Mar 30, 2011 india 2 posts	Topic: General Discussion / Ratios etc hi..i am new to this site but am wondering about the 'if you were 17.5 then a dose of 12 would get you back to normal'?....i have been instructed always to take 1 unit to get me down 2 numbers......so if my blood weere 15 then to get to say 5....then 5 units of novorapid would in theory do the job.....i understand it doesn't always work like that. but please tell me if i have got this wrong...but 12 units for a 17.5....wouldn't that throw you into severe hypo? as 12 would get you down a possible 24 numbers and therefore well past a blood of 5 - ish? sorry if i have got this completely wrong....but i needed to ask....thanks

Mar 30, 2011 novorapidboi26 1,819 posts	Topic: Site Development / Glossary of Terms Its a good idea I think............ Users on the site I believe should be familiar with the DAFNE abbreviations like, QA, BI, BG, etc............but it wouldn't hurt...........I think basal and bolus is a more general term and is used more in the pumping world to differentiate between two different dose purposes with one type of insulin. But there are a few pumpers in our midst so it would be a good idea I suppose.

Mar 30, 2011 Alan 49 284 posts	Topic: Site Development / Glossary of Terms Would it be worth putting a Glossary of Terms on the website? Searching the Handbook for 'bolus' or 'basal' yields no results, so I'm still not sure which is quick-acting and which is background insulin. Abbreviations could also be there, so a newcomer to the site could find out what CP or BG mean or non-medical abbreviations, like 'lol' - which I only recently found out means 'laugh out loud'. What do you think?

Mar 30, 2011 novorapidboi26 1,819 posts	Topic: General Discussion / dafne app/carb calculator for Blackberry phones I am on the android market and there are many apps for recording results, producing graphs etc.........not like the DAFNE app but useful none the less. I would expect there to be something similar on the BB market. Are you looking for and app to count carbs, dont know if there are many out there to be honest. Are you looking for convenience or do you have a specific problem with counting carbs......? There is a book called carbs and cals which has been recommended by many in the diabetic community, I do believe there is an iPhone app to accompany this also, you could try searching for this on the BB.... Good Luck............

Mar 30, 2011 JackieB 3 posts	Topic: Questions for HCPs / Information on menstrual cycle Hi Athena, Yes, variations in insulin requirements due to hormonal variation over my menstrual cycle have .... been the bain of my life. My cycle was very irregular which made it impossible to track. I only recognise this now after many years! I was on the first DAFNE course in Ireland and yes I learnt a huge amount but like you say the stepwise approach didn't work because of these variations. I used to think I was doing something wrong which didn't help motivation at all. I also have the dawn rises which I am still working on controlling with a pump. I haven't got it sorted yet as I have a 5 week cycle with about 3 phases of insulin requirements over those 5 weeks. However, I do believe that there should be more information available on this issue. Not knowing this has caused years of grief for me as I just wasn't getting it right(or near to it). I thought I was doing it all wrong but alot of the time it was my body. It should be mentioned in the DAFNE course even if there are no answers/research yet so that one can start to recognise this higher level pattern(over weeks/months). Maybe this was already obvious to people with regular cycles but for me I could have a 3 to 8 week cycle which meant I didn't see a pattern. Sorry for the rant but I hope it may help others if they have the same issues. Jackie

Mar 29, 2011 Edentherapies 8 posts	Topic: General Discussion / dafne app/carb calculator for Blackberry phones Hi all, I know that the Iphone has an app for DAFNE but does any one have any idea if there is one or something similar for the Blackberry? Been surfin the net for hours now and I'm getting nowhere! Ta peeps, Sam

Mar 29, 2011 DFH_17 22 posts	Topic: General Discussion / What made you smile today? Getting the new Avil Lavigne album via play.com yesterday andlovin all the tracks :-)

Mar 29, 2011 DFH_17 22 posts	Topic: Questions for HCPs / Cant stop BG Levels going up Hi, Thanks for giving the advice. Started on the higher amount of 36BI from 34BI 2 nights ago - BG's are still a little bit high but are gradually calming down. will see how it goes tomorrow as well. Have gone a bit low this evening so more than likely will need to have a go at the QA tomorrow. Thats what I hope to get - has been better today - had 1 high reading today at lunch - jumped from 6,7 at breakfast to 12,2 at lunch :-( But by dinner had calmed down to 7.9. I'll see how it goes before sharing my results with all - am hoping it will keep going the way it should do. Mega thanks for your help - have been really worried.