Recent Posts

Search the DAFNE Online Forums

15,866 posts found

Apr 14, 2011
DFH_17 22 posts

Topic: Questions for HCPs / Information on menstrual cycle

Have noticed that all my BG's are affected when I'm on my period - I luckily have a regular cycle - every 4 weeks and starts on the same day every month. I constantly have hypo's while I'm on my period - however, since going on the DAFNE course I automatically lower my QA doses now - it took a couple of months for the penny to drop. Its still not quite there but is slowly calming down.

JWo - I have the same problem where I've treated the hypo then I go hypo again - and that also happens outside of the period week.

Am really happy - if thats the right word that this is being discussed - as its such an important issue.
 
Apr 14, 2011
novorapidboi26 1,819 posts

Topic: Questions for HCPs / No change to HbA1c

MelissaF said:
It sounds like it really suits her Caroline and I guess it's a massive relief for you as far as her control is concerned.

So does the pump dispense QA as well as BI then? When I first read up on them I'm sure that they were BI only and you still had to inject QA when you ate but the pump made sure that your background levels were better regulated. I'm guessing that they do everything for you now then?

I have absolutely no memory whatsoever of what my HbA1cs were when I was a teenager but I should imagine that they were absolutely appalling simply because I didn't really have a clue how to manage things and I didn't really think about it very much. It's probably amazing that I'm still alive!



The pump only uses one insulin, that being a quick acting analogue, like novorapid............there is then a constant release of this which act as a background, and then as normal, a bolus dose when you eat, this can be given up front or released over a set time, or both (dual wave)......they really are amazing things, essentially you could be on target all the time.........

With regards to your statement about still being alive, the human body wont give up without a fight, its just the scars from the fight are sometime undesirable.............

 
Apr 14, 2011
MelissaF 56 posts

Topic: Questions for HCPs / No change to HbA1c

It sounds like it really suits her Caroline and I guess it's a massive relief for you as far as her control is concerned.

So does the pump dispense QA as well as BI then? When I first read up on them I'm sure that they were BI only and you still had to inject QA when you ate but the pump made sure that your background levels were better regulated. I'm guessing that they do everything for you now then?

I have absolutely no memory whatsoever of what my HbA1cs were when I was a teenager but I should imagine that they were absolutely appalling simply because I didn't really have a clue how to manage things and I didn't really think about it very much. It's probably amazing that I'm still alive!
 
Apr 14, 2011
novorapidboi26 1,819 posts

Topic: Questions for HCPs / No change to HbA1c

caroline15 said:
Novo - How did you get your DP under control? Shocked I'm glad to hear you're managing well Very Happy

Amy's been on the pump for nearly four weeks now, it is the best thing ever and I wish all diabetics were offered them Very Happy



A combination of upping the PM dose considerably and moving it to later on at night...........I kept upping my doses with no effect and then I stopped as I thought, this aint working, when really I should of continued on.....its not totally under control, I am still off target and depending on what I eat previous to bed sometimes makes me higher. At the moment they are coming down, which in turn is dropping my averages, so if I keep it up and I can get an A1c below 7 I will be happy...........
 
Apr 14, 2011
caroline15 45 posts

Topic: Questions for HCPs / No change to HbA1c

Hi Melissa, she's absolutely fine with it being connected all the time, she just takes it off for pe and showers. She hated injecting and would need a lot of nagging to do it - it is so much easier for her to just input the amount of carbs she is eating and the pump works out how much bolus she needs and also how much correction she needs as her meter sends her readings to her pump (I think by bluetooth). She had a very lumpy tummy from her injections but they seem to be going quickly now.

A couple of years ago the hospital held an event where there were people with pumps and also pump company reps, this was just for children with diabetes as apparently there was some funding that they had obtained. We registered our interest and Amy was offered a pump in February this year. The consultant and dsn were a bit dubious about Amy having one as her control was not good (lots of admissions to the ward with very high ketones) and they had a word with her and told her that they could take it away from her if she doesn't do everything properly. Her last HBA1C was 11.9, I can't wait to see how improved it is. Her next clinic appt is at the end of July so it will only show results from her pumping. Very Happy

 
Apr 14, 2011
MelissaF 56 posts

Topic: Questions for HCPs / No change to HbA1c

Here you go - I found it. Scary! http://www.diabetes-support.org.uk/forum/Blah.pl?v-print/m-1287061511/

I just can't get over the thought that you have to wear it all the time and it's permanently connected to you. I hate the idea.

How has Amy found that respect of it Caroline? How come she started using it in the first place?


 
Apr 14, 2011
caroline15 45 posts

Topic: Questions for HCPs / No change to HbA1c

Novo - How did you get your DP under control? Shocked I'm glad to hear you're managing well Very Happy

Amy's been on the pump for nearly four weeks now, it is the best thing ever and I wish all diabetics were offered them Very Happy
 
Apr 14, 2011
novorapidboi26 1,819 posts

Topic: Questions for HCPs / No change to HbA1c

Because I have embraced DAFNE and I put in a lot of work with what seems like not a lot of effort (I actually enjoy taking control), I would settle in quite nicely with a pump, and I was nearly at that point a month ago, well at least approaching the subject.

But I have got my DP under control, well better anyway, so I dont really need one. Even if I wanted one, I would have a fight on my hands as would most people, some however seem to ask and get with the click of a finger.

If one is offered and you think you can commit yourself, then grab it with both hands............... Very Happy

Can you remember the site.....? Would be interested to visit........
 
Apr 14, 2011
MelissaF 56 posts

Topic: Questions for HCPs / No change to HbA1c

I think that some were on pumps but not all. Definitely T1s.

Have you ever been tempted by a pump? Personally I hate the idea but then I feel guilty that maybe I should over-come that for the sake of better control.
 
Apr 14, 2011
novorapidboi26 1,819 posts

Topic: Questions for HCPs / No change to HbA1c

MelissaF said:
Hi J,

Apologies for absence - life sort of gets in the way! Hope that everything's good with you? Have your levels settled down at all?

I viewed another forum yesterday for research and every single person contributing to that forum said that their HbA1c was around 5-5.5. Maybe this was a forum for superhumans or maybe they were all lying!

M xx



What site was this.............? Maybe they were Type 2s or pumpers.................Wink
 
Apr 14, 2011
MelissaF 56 posts

Topic: Questions for HCPs / Information on menstrual cycle

Hi Caroline,

You're absolutely right. How typical of me to think of the most expensive option first!

You need to chart your temperature when you wake up in the morning, at roughly the same time every day and before you do anything. You should notice that your temperature elevates for a few days around the time of ovulation and then drops again. Ovulation typically takes 48 hrs so I'm not sure if you would just notice two days or whether there would be an additional day or two of raised temperatures around that time as well.

You can buy charting kits in chemists for around £20 or obviously just make something up yourself. Once you've been doing it for a couple of months you might notice patterns.

This probably sounds like a bit of a pain but possibly, once you've been charting for a while, you will be able to tell when you're ovulating naturally as it might make you a bit more in tune with what your body's doing. I've never really noticed as my cycle is really irregular too but, now I'm actually recording it, I am much more aware of what's going on. Certainly a lot of my friends say that they know naturally anyway.

Once you've pinpointed that, it should be much easier to tell when you might need to raise insulin levels to cope for the impending week of PMT.

Good luck!

Melissa
 
Apr 14, 2011
MelissaF 56 posts

Topic: Questions for HCPs / Postop patients using DAFNE

Hi Larissa,

It's really encouraging to hear that you've been appointed in a role like this as I think it's so important and I'm glad that your hospital or health trust appreciates that. I'm also a little bit jealous as I would love to do something like that!

Good luck with what you're doing and I hope that it all goes well.

Melissa
 
Apr 14, 2011
MelissaF 56 posts

Topic: Questions for HCPs / No change to HbA1c

Hi J,

Apologies for absence - life sort of gets in the way! Hope that everything's good with you? Have your levels settled down at all?

I viewed another forum yesterday for research and every single person contributing to that forum said that their HbA1c was around 5-5.5. Maybe this was a forum for superhumans or maybe they were all lying!

M xx
 
Apr 14, 2011
novorapidboi26 1,819 posts

Topic: General Discussion / Do I adjust BI or QA first?

Three consecutive days high at lunchtime would suggest that you should up your insulin/carb ratio and for me personally this would be my first course of action, however I have established the correct doses of BI, am and pm.

So it really is up to you. When did you last test your BI doses.....? If its not been in a while, you just do a test one day, and you should see the results pretty quickly from the Levemir.

In theory, no dose changes should be considered until your background needs have been sussed out......
 
Apr 14, 2011
HelenP 218 posts

Topic: General Discussion / Do I adjust BI or QA first?

Someone...can not remember whom, told me that my BI ought to be about 2/3 of my total daily dose. This guideline worked well for me when I was eating 10-12 CPs a day. Sorry but I can not quote a definitive source. Helen
 
Apr 13, 2011
RobT 7 posts

Topic: DAFNE Online Mobile / Bug with iPhone app (& site diary)

Hi Simon,
Would be happy with site for BI and site for QA. That would suit well. Have got used to the app on the iPhone and the iPad - they work together. It is a shame that I have to use a laptop or a desktop to view the graphs - flash is not available on the iPad and iPhone ...
I for one would like a left and right buttock option!
Thanks for all the work you are doing.
Rob.
 
Apr 13, 2011
Larissa 2 posts

Topic: Questions for HCPs / Postop patients using DAFNE

Hi Melissa,

Thank you for your response Smile

I agree that DAFNE isn't fully understood by people in the medical and healthcare profession and that everyone working with diabetes should be aware of the basic priniciples of DAFNE. Which is why I have been assigned to find information to enable my colleagues to be more aware about Type 1 diabetes and patients using DAFNE, who are admitted to our ward.

I can understand in your situation, that you would have managed better without the insulin sliding scale. Like you say, we expect people looking after us to know what they're doing, so i hope that I can help educate people and make them more 'DAFNE aware' with my experience and also with information i have received from other diabetics like yourself Smile.

Larissa
 
Apr 13, 2011
caroline15 45 posts

Topic: Questions for HCPs / Information on menstrual cycle

Didn't people used to measure their body temperature to see when they are ovulating? (I feel old all of a sudden)

Think I'm in the peri-menopause now so can't really join in the discussion myself. My daughter (T1 too) seems to be settling into some sort of pattern now so will be keeping an eye on this thread Smile
 
Apr 13, 2011
JayBee 587 posts

Topic: General Discussion / Norwich DAFNE Evening Meet!

Has been a bit lacking in interest.... Sad Shall be patient!
 
Apr 13, 2011
JayBee 587 posts

Topic: Questions for HCPs / No change to HbA1c

Welcome back to the forum MelissaF! After what everyone else has put, I'm not sure what else to contribute apart from keep up the good work (your HbA1c is better than some!) and you'll get there! Smile
 
Apr 13, 2011
Nikki H-C 23 posts

Topic: General Discussion / Do I adjust BI or QA first?

Evening all,
Can anyone help me to descide if I should be increasing my background Levemir or if I should increase my Novorapid ratio first?
I am look specifically at my breakfast background and breakfast insulin.

I've nearly always been on a 1:1 ration for my breakfast, normally getting me to about 5/6 mmols by a 12/12.30 lunch. Over the last few weeks my lunchtime reading has been about 8 mmol. Still not hugely high I know but more than I would like it to be.
I've already increased my background from 5 units to 6 units in the morning (split 6u at 8.30am & 6u 8.30pm)and am trying to decide if I should increase my quick acting ratio now or keep putting up my background by a unit and then monitoring it.

What are the general rules for increasing units? Background or quick acting first?
Many thanks for any guideance.
 
Apr 13, 2011
JayBee 587 posts

Topic: Questions for HCPs / Information on menstrual cycle

I think MelissaF is making a great suggestion here, gals.... Smile What do we think?
That sort of thing would never had occurred to me to use!
Considering the cost, is any individuals prepared to give it a go? Does any one of us already have them on prescription?
I don't unfortunately, but I've not really attempted for a baby really, and don't really have any near future plans to...

We shall solve this biological puzzle! ^0^
 
Apr 13, 2011
JayBee 587 posts

Topic: General Discussion / Mesntrual Cycle

To bring it even more into light how worthwhile it is to chart the changes... I've not hit the first thursday yet and I'm already taking the "hormonal time" high doses! Madness!

I'm really not sure what to expect now you say that Edentherapies! The main great thing I find about taking a pill generally is the regularity of it. I was often around a week late when I was a teenager and off the pill so I wonder if that will still be the case now... it's madness to think what it's going to be like for my doses. Sad

I completely agree with the reoccurring statement that DAFNE's waiting rule does not help the situation of working this all out, but I would like to bring to light about some advice one of my DAFNE nurses gave me after I showed that I'd been adjusting my BI a lot... she told me that I should give it at least a week before adjusting my BI again. With this, I've been concentrating on adjusting my ratios more for now before I go "that's definitely BI" like I was before and only leaving it for 2 days.

I think leaving the BI for a week odd has made me aware of the need to put the higher dose on earlier... (I am really confused by this now though - it completely throws out the idea that it's just the week before the TOTM!).

I really ought to mark on my calendar when my periods are expected considering I tend to avoid taking packs back to back if I can.
 
Apr 13, 2011
MelissaF 56 posts

Topic: Questions for HCPs / No change to HbA1c

Yes, that's a total nightmare. I remember it well!