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Apr 16, 2011
daviebear
19 posts
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Topic: General Discussion / Dawn Phenomenon Thanks for that novorapidboi.Was unsure as I have now increased my evening BI from 20 to 36 since starting dafne.Although this is still roughly half the evening dose I used to take,was still kind of wary about the increase.As you will see from todays results I seem to have no grip on it yet,plan to go carb free at supper tonight to see what kind of results I get from that.Thanks for the input.
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Apr 16, 2011
Simon
578 posts
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Topic: DAFNE Online Mobile / Android app We would like to broaden out into the Android app store - though I myself am an Apple fanboy through and through realise that not everybody is like me At the moment it's a question of time - Mark is currently working on updating the online Handbook, and mine is split between adding new features to the site and iPhone app. We will eventually get round to the Android/Blackberry/Windows Mobile apps, with Android being top priority, however our biggest problem is a lack of time. Any help with this is most appreciated - though we'd have to ensure that the features/functions of the iPhone and Android apps were consistent. Simon |
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Apr 16, 2011
HelenP
218 posts
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Topic: General Discussion / Travelling on a pump! i don't think it was the language rather the officiousness of the individual. The guy spoke to the girl in English! |
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Apr 16, 2011
JayBee
587 posts
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Topic: General Discussion / Travelling on a pump! What a load of hassle for you. I had a close call on my first trip home back from Japan but no hassle at all for my second trip.Would it be possible to get your Doctor's note translated into chinese for future use? I have a copy of mine translated into Japanese just in case (after what happened on the first trip) - and I keep them together, back to back in a plastic wallet within a folder when I go abroad. Best wishes for the next trip! |
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Apr 16, 2011
vic demain
87 posts
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Topic: Questions for HCPs / No change to HbA1c That hasn't been mentioned and my concern would be taking QA which works immediately, a period before eating, when already going low at that point, would potentially be dangerous. First though is to get rid of the hypos, then try and sort things out. Not so much a pain in the bum, just feel cr*p a lot of the time. |
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Apr 16, 2011
HelenP
218 posts
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Topic: General Discussion / Travelling on a pump! I had no trouble leaving Australia (took a bit of time but happy to let me walk through with the pump...although they did swab it for drugs!) bound for Hong Kong. Hong Kong was just a transfer but they still took a close look and were more interested in the cartridges of insulin I had with me than the pump. Into Incheon Airport (Seoul) and no bother getting out of the airport.Coming home was a different matter... Thorough check at Incheon but were happy to let me through with the Drs letter and the card from the pump manufacturers essentially say I am not to be separated from the pump...life sustaining etc. Arrived at Hong Kong 40 mins late (technically had no time to buggarize around as I was due in the departure lounge) and they wanted me to take the pump off and put it through the xray machine. (My pump manufacturer says that is an absolute No No!) I refused...they (the girl) refused...finally a younger more fluent English speaker arrived and asked what the problem was. I explained and he said the pump was fine and to just walk through. Determined the young girl then wanted to check all my prescription medications and when she came to the vials of insulin (for the pump) declared they were liquids! (Any research on blowing up aircraft with three 3mL vials of insulin!) Back came the young man (people who were also connecting with the Brisbane flight were getting a bit anxious at this stage as none of us wanted to miss the connection) and English speaking guy simply stated the obvious...the insulin is for the pump. Left the transfer area as they were calling final call for the flight home. No probs at Brisbane. Declared everything: the lollies, the medications, the pump and the insulin and was waved through. Thank goodness...home, a shower and a sleep. Helen |
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Apr 15, 2011
novorapidboi26
1,819 posts
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Topic: Questions for HCPs / No change to HbA1c
Sounds like a pain in the bum....going low for the next meal means either too much QA or BI, so if we assume the BI is correct its your QA. Avoiding the spikes between meals can be achieved by injecting well before you eat, you can start of with 10 mins, then go up to 20 if needed, even 30 like me, even more possible, and it can vary depending on the timw of day........... have your team mentioned that option....... |
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Apr 15, 2011
vic demain
87 posts
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Topic: Questions for HCPs / No change to HbA1c I've been having problems with my HbA1c. did the course about 18 months ago and ever since have suffered a huge amount of hypos. Was told the HbA1c should steadily drop, but that has not been the case, still around 8.2. I have dropped my BI dramatically. Trouble is, I will test between meals and am often around 13 but by next meal test I am low. Have tried really hard but getting fed up with all the hypos and the high HbA1c |
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Apr 15, 2011
novorapidboi26
1,819 posts
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Topic: DAFNE Online Mobile / Android app I have advertised the job over at diabetessupport.co.uk, there seems to be a few technical guys over there, I will defo have a wee look though.....So marke and Simon, if anyone comes a knockin from there regarding this it was me that sent them to you........ |
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Apr 15, 2011
Lizzie
87 posts
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Topic: DAFNE Online Mobile / Android app Thanks for your replies. I don't have the skills needed to do this, it is about all I can manage to operate my smart phone! But if anyone does I would really appreciate it.
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Apr 15, 2011
Athena
52 posts
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Topic: Questions for HCPs / Information on menstrual cycle Hi All,This is great information. I still have not had a reply from the e-mail that I sent to the DAFNE people. I have since phoned and spoken to Sharon to ask if there was any research on gender splits in terms of success but there isn't. In fact there doesn't seem to be nay research on why people fail to get control on DAFNE. Sharon suggested that I phone the NHR inSheffield where there is someone commissioned to look at a course called DAFNE Extra. This doesn't exactly sound what we are looking for. It sounds like a refresher with added help in relation to motivation. I really would prefer a course that is to do with trouble shooting and has extra info on things like how to sort BI patterns and the hormones etc. However, I will let you know if I get a reply from the DAFNE people about hormones and the outcome of my phonecall to the NHR. The info coming from all of you though is what is helping me most.I may try the temperature thing. This is really great! I do find in relation to breast tenederness that this is when my sugars start rising and I have to start upping the BI.So amybe, if you get this, this might be a symprom that might make you think that it is now the time to up the dose. I think what is also coming through is that we are all at different life stages and that cycles change during lifetime. Like some of the younger peop le, I had irregular cycles when younger and now that I am perimenopausal, they are really regular. Being on th epill was different again of course. I also didn't used to get breast tenderness, but this started in my 30's. I think it is not going to be one size fits all. My friend also runs a site for parents of children with type 1 and they have fouond that their daughters had great control in childhood but lost it at puberty and are finding that they can't get it back. I think in genearl the dibetes professionals should be looking into this and discussing it with patients more. Until then. I hope we can all keep the topic going on the site and help one another out with this one. I will be using the temperature chart provided as my next thing to try. take care.
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Apr 15, 2011
caroline15
45 posts
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Topic: Questions for HCPs / Information on menstrual cycle
For me the breast tenderness has always come about a week before the period (along with the horrible moods). I tend to know I'm ovulating by the pain (endometriosis) which was about a week before the tenderness and 2 weeks before the period but things are all over the place at the moment. I'm 46 and my daughter is 14 so we are both at the 'extremes' of menstruation - what a lovely combination lol |
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Apr 15, 2011
novorapidboi26
1,819 posts
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Topic: General Discussion / Dawn Phenomenon I too suffer from this and for a long time stopped increasing my BI as I thought it was not making a difference.....If you do get persistently high readings in the morning then you should keep upping the dose, say by 2 each time, at 22:00. I would also offer the consideration of moving your evening BI dose to a later time, this will mean there will be more BI in your system by the time 4:00am comes, the likely time your liver releases it glucagon. I see you take your evening BI dose at bed time, moving it to later time might be difficult then if you are in the land of nod...........I personally take my morning dose at 6:30 with breakfast and used to take the PM dose at 5:00-6:00, I moved it forward to 22:00, it helped a lot.... The first thing to do would be to increase the dose though, each time doing some 3am to make sure you are not going too low overnight. |
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Apr 15, 2011
daviebear
19 posts
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Topic: General Discussion / Dawn Phenomenon Hi Guys Just wondering if anyone has any advice on the dawn phenomenon,when the morning glucose is higher than expected.I am sure I have this,as my Bg's are high at 730am,but normal to reasonable at 3am.I have increased my BI and am now on a 3:1 ratio at breakfast but still have a morning rise.Do I still have to keep increasing my BI until I get a good result at 730am.Or do I leave it alone as I only have the 2 abnormal results normally. |
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Apr 15, 2011
novorapidboi26
1,819 posts
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Topic: DAFNE Online Mobile / Android app I would love to have a bash at it, it would take a long time getting to the standard of the iphone app..........also access to dafne images and logos would be a problem, maybe best left to our current smart phone programmers....... |
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Apr 15, 2011
novorapidboi26
1,819 posts
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Topic: General Discussion / Do I adjust BI or QA first?
Exactly right, the DAFNE step wise approach........... Best place to start is overnight, have your dinner and QA, BI later, no food till next morning. Test before bed and again in morning, you should be within a few mmol the next day, a few nights doing this and you should be able to make a decision. When happy, let the daytime basal tests begin.......... 
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Apr 15, 2011
JackieB
3 posts
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Topic: Questions for HCPs / Information on menstrual cycle Hi again,Sorry I've been offline for a while. I have managed to regulate (well almost) my cycle by using Glucophage which is a medicine used by Type 2 diabetics for insulin resistance. We thought I may have some insulin resistance and that is why I was prescribed it. However, it worked to regulate my cycle which is what I use it for now. I too am delighted to see this being discussed here. However, this is the HCP forum so I am hoping some professionals are reading this and that we may be pointed towards some research in this area or else encourage the instigation of research. Even a survey of how well females have got control in comparison to males(hormonal changes not as severe). From some of the posts here I am realising that the hormonal influences impact not only my Basal insulin but possilbly my ratios too. Is that right? Thanks to all who contribute, Jackie |
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Apr 14, 2011
JayBee
587 posts
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Topic: DAFNE Online Mobile / Android app No one has volunteered to develop one yet as far as I know.If anyone is interested in volunteering for this project, you will need to use Android SDK found here to get the ball rolling. |
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Apr 14, 2011
JayBee
587 posts
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Topic: Questions for HCPs / Information on menstrual cycle
I've not heard of measuring it but I was aware of the temperature rise because I do notice it naturally sometimes (just gotta kick off those bed covers!) It's so funny that we don't think of these things! Great thinking both of you! This has reminded me about breast tenderness that a lady from my DAFNE group said she took as a great indicator that she needed to put her insulin up - when should a symptom like that happen (if or when it does - I know I don't tend to get it myself) when it comes to ovulation? Is it during? It's funny that you're saying about age caroline15... with all these babies being planned on the forum and the like, me sitting here with not much experience when it comes to that (besides having the period itself) I feel I'm among professional females! I'm 26 - I'm surely not the youngest female posting on this thread surely? :-. Does anyone have a Digital Basal Thermometer that they would like to recommend? If not, I'll go hunting. I did just check with my sister who's had three kids, but she never used one!I think I will give this temp (or after a bit of research my Normal Basal Body Temperature) thing a go... It does seem that the Wikipedia Page about it is quite helpful. Do check out the chart they provide (see below):  This looks like it could be a great help.... or am I getting too carried away? Lol. My body has been hinting that it needs two weeks recently for the pre-TOTM higher doses... perhaps the higher doses are for my regular time? Whatever the answer, I'm really confused right now... time for me to do some temp checking me thinks! My regime (updated):
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Apr 14, 2011
JayBee
587 posts
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Topic: Questions for HCPs / No change to HbA1c
Life certainly does! I've been STILL having "fun" with my Time of the Month (TOTM) doses. Hopefully the puzzle will be worked out soon! Been so occupied though that I've not had time to update my BG diary on here.  Until then, I will continue to contribute to the menstrual cycle thread...
It can be hard to tell can't it? I find a lot of diabetics I've met in person aren't really happy to talk openly about their results... so perhaps there are some lies involved (it is easier to lie on the internet after all).... but regardless if they are or not, I think you shouldn't worry about what's happening with them. Your body is not theirs. ;) Keep your chin up and working at it...! |
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Apr 14, 2011
Nikki H-C
23 posts
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Topic: General Discussion / Do I adjust BI or QA first? Thanks Helen, I've been told the same but it's not an exact science from what I understand.Novorapidboi26, I'd forgotten about "testing" my BI first... this definately isn't right at the moment, am or pm! I'll try that first, but not both BI's on the same day... Thanks to all |
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Apr 14, 2011
Lizzie
87 posts
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Topic: DAFNE Online Mobile / Android app HiIs there any plan for an Android app any time soon? I know there is an iphone one but I don't have an iphone. Thanks |
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Apr 14, 2011
DFH_17
22 posts
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Topic: Questions for HCPs / Information on menstrual cycle Have noticed that all my BG's are affected when I'm on my period - I luckily have a regular cycle - every 4 weeks and starts on the same day every month. I constantly have hypo's while I'm on my period - however, since going on the DAFNE course I automatically lower my QA doses now - it took a couple of months for the penny to drop. Its still not quite there but is slowly calming down.JWo - I have the same problem where I've treated the hypo then I go hypo again - and that also happens outside of the period week. Am really happy - if thats the right word that this is being discussed - as its such an important issue. |
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Apr 14, 2011
novorapidboi26
1,819 posts
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Topic: Questions for HCPs / No change to HbA1c
The pump only uses one insulin, that being a quick acting analogue, like novorapid............there is then a constant release of this which act as a background, and then as normal, a bolus dose when you eat, this can be given up front or released over a set time, or both (dual wave)......they really are amazing things, essentially you could be on target all the time......... With regards to your statement about still being alive, the human body wont give up without a fight, its just the scars from the fight are sometime undesirable............. |