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Apr 15, 2011
novorapidboi26 1,819 posts

Topic: DAFNE Online Mobile / Android app

I would love to have a bash at it, it would take a long time getting to the standard of the iphone app..........

also access to dafne images and logos would be a problem, maybe best left to our current smart phone programmers.......
 
Apr 15, 2011
novorapidboi26 1,819 posts

Topic: General Discussion / Do I adjust BI or QA first?

Nikki H-C said:
I'll try that first, but not both BI's on the same day...



Exactly right, the DAFNE step wise approach...........

Best place to start is overnight, have your dinner and QA, BI later, no food till next morning. Test before bed and again in morning, you should be within a few mmol the next day, a few nights doing this and you should be able to make a decision. When happy, let the daytime basal tests begin..........Wink
 
Apr 15, 2011
JackieB 3 posts

Topic: Questions for HCPs / Information on menstrual cycle

Hi again,

Sorry I've been offline for a while. I have managed to regulate (well almost) my cycle by using Glucophage which is a medicine used by Type 2 diabetics for insulin resistance. We thought I may have some insulin resistance and that is why I was prescribed it. However, it worked to regulate my cycle which is what I use it for now.

I too am delighted to see this being discussed here. However, this is the HCP forum so I am hoping some professionals are reading this and that we may be pointed towards some research in this area or else encourage the instigation of research. Even a survey of how well females have got control in comparison to males(hormonal changes not as severe).

From some of the posts here I am realising that the hormonal influences impact not only my Basal insulin but possilbly my ratios too. Is that right?

Thanks to all who contribute,
Jackie
 
Apr 14, 2011
JayBee 587 posts

Topic: DAFNE Online Mobile / Android app

No one has volunteered to develop one yet as far as I know.

If anyone is interested in volunteering for this project, you will need to use Android SDK found here to get the ball rolling.
 
Apr 14, 2011
JayBee 587 posts

Topic: Questions for HCPs / Information on menstrual cycle

caroline15 said:
Didn't people used to measure their body temperature to see when they are ovulating? (I feel old all of a sudden)



I've not heard of measuring it but I was aware of the temperature rise because I do notice it naturally sometimes (just gotta kick off those bed covers!)
It's so funny that we don't think of these things! Great thinking both of you! Smile

This has reminded me about breast tenderness that a lady from my DAFNE group said she took as a great indicator that she needed to put her insulin up - when should a symptom like that happen (if or when it does - I know I don't tend to get it myself) when it comes to ovulation? Is it during?

It's funny that you're saying about age caroline15... with all these babies being planned on the forum and the like, me sitting here with not much experience when it comes to that (besides having the period itself) I feel I'm among professional females! Smile

I'm 26 - I'm surely not the youngest female posting on this thread surely? :-.

Does anyone have a Digital Basal Thermometer that they would like to recommend? If not, I'll go hunting. Smile I did just check with my sister who's had three kids, but she never used one!

I think I will give this temp (or after a bit of research my Normal Basal Body Temperature) thing a go... It does seem that the Wikipedia Page about it is quite helpful. Do check out the chart they provide (see below):



This looks like it could be a great help.... or am I getting too carried away? Lol. Smile
My body has been hinting that it needs two weeks recently for the pre-TOTM higher doses... perhaps the higher doses are for my regular time?
Whatever the answer, I'm really confused right now... time for me to do some temp checking me thinks!

My regime (updated):

Thursday (two weeks before the pill finishing tuesday) EVE: 16 BI
Friday MORN: 9 BI (have been having post-lunchtime hypos which I have established are not QA today).

Leave it until...

Thursday (first thurs after pill is finished) EVE: 11 BI
Friday MORN: 9 BI

Period starts late sat/early sun - only lasts a few days (due to pill). Leave it until...

Monday MORN: 7 BI (Failing to change to this can cause very serious hypos post-breakfast. This happens EVERY CYCLE without fail.)
Monday EVE: 9 BI

Then when the pill starts again Wednesday EVE I'm back to "normal routine" of 6 MORN BI and 11 EVE BI. (I'm now challenging this!)

 
Apr 14, 2011
JayBee 587 posts

Topic: Questions for HCPs / No change to HbA1c

MelissaF said:
Apologies for absence - life sort of gets in the way! Hope that everything's good with you? Have your levels settled down at all?



Life certainly does! I've been STILL having "fun" with my Time of the Month (TOTM) doses. Hopefully the puzzle will be worked out soon! Been so occupied though that I've not had time to update my BG diary on here. Sad Until then, I will continue to contribute to the menstrual cycle thread...

MelissaF said:
I viewed another forum yesterday for research and every single person contributing to that forum said that their HbA1c was around 5-5.5. Maybe this was a forum for superhumans or maybe they were all lying!



It can be hard to tell can't it? I find a lot of diabetics I've met in person aren't really happy to talk openly about their results... so perhaps there are some lies involved (it is easier to lie on the internet after all).... but regardless if they are or not, I think you shouldn't worry about what's happening with them. Your body is not theirs. ;) Keep your chin up and working at it...!

 
Apr 14, 2011
Nikki H-C 23 posts

Topic: General Discussion / Do I adjust BI or QA first?

Thanks Helen, I've been told the same but it's not an exact science from what I understand.
Novorapidboi26, I'd forgotten about "testing" my BI first... this definately isn't right at the moment, am or pm!

I'll try that first, but not both BI's on the same day...

Thanks to all
 
Apr 14, 2011
Lizzie 87 posts

Topic: DAFNE Online Mobile / Android app

Hi

Is there any plan for an Android app any time soon? I know there is an iphone one but I don't have an iphone.

Thanks
 
Apr 14, 2011
DFH_17 22 posts

Topic: Questions for HCPs / Information on menstrual cycle

Have noticed that all my BG's are affected when I'm on my period - I luckily have a regular cycle - every 4 weeks and starts on the same day every month. I constantly have hypo's while I'm on my period - however, since going on the DAFNE course I automatically lower my QA doses now - it took a couple of months for the penny to drop. Its still not quite there but is slowly calming down.

JWo - I have the same problem where I've treated the hypo then I go hypo again - and that also happens outside of the period week.

Am really happy - if thats the right word that this is being discussed - as its such an important issue.
 
Apr 14, 2011
novorapidboi26 1,819 posts

Topic: Questions for HCPs / No change to HbA1c

MelissaF said:
It sounds like it really suits her Caroline and I guess it's a massive relief for you as far as her control is concerned.

So does the pump dispense QA as well as BI then? When I first read up on them I'm sure that they were BI only and you still had to inject QA when you ate but the pump made sure that your background levels were better regulated. I'm guessing that they do everything for you now then?

I have absolutely no memory whatsoever of what my HbA1cs were when I was a teenager but I should imagine that they were absolutely appalling simply because I didn't really have a clue how to manage things and I didn't really think about it very much. It's probably amazing that I'm still alive!



The pump only uses one insulin, that being a quick acting analogue, like novorapid............there is then a constant release of this which act as a background, and then as normal, a bolus dose when you eat, this can be given up front or released over a set time, or both (dual wave)......they really are amazing things, essentially you could be on target all the time.........

With regards to your statement about still being alive, the human body wont give up without a fight, its just the scars from the fight are sometime undesirable.............

 
Apr 14, 2011
MelissaF 56 posts

Topic: Questions for HCPs / No change to HbA1c

It sounds like it really suits her Caroline and I guess it's a massive relief for you as far as her control is concerned.

So does the pump dispense QA as well as BI then? When I first read up on them I'm sure that they were BI only and you still had to inject QA when you ate but the pump made sure that your background levels were better regulated. I'm guessing that they do everything for you now then?

I have absolutely no memory whatsoever of what my HbA1cs were when I was a teenager but I should imagine that they were absolutely appalling simply because I didn't really have a clue how to manage things and I didn't really think about it very much. It's probably amazing that I'm still alive!
 
Apr 14, 2011
novorapidboi26 1,819 posts

Topic: Questions for HCPs / No change to HbA1c

caroline15 said:
Novo - How did you get your DP under control? Shocked I'm glad to hear you're managing well Very Happy

Amy's been on the pump for nearly four weeks now, it is the best thing ever and I wish all diabetics were offered them Very Happy



A combination of upping the PM dose considerably and moving it to later on at night...........I kept upping my doses with no effect and then I stopped as I thought, this aint working, when really I should of continued on.....its not totally under control, I am still off target and depending on what I eat previous to bed sometimes makes me higher. At the moment they are coming down, which in turn is dropping my averages, so if I keep it up and I can get an A1c below 7 I will be happy...........
 
Apr 14, 2011
caroline15 45 posts

Topic: Questions for HCPs / No change to HbA1c

Hi Melissa, she's absolutely fine with it being connected all the time, she just takes it off for pe and showers. She hated injecting and would need a lot of nagging to do it - it is so much easier for her to just input the amount of carbs she is eating and the pump works out how much bolus she needs and also how much correction she needs as her meter sends her readings to her pump (I think by bluetooth). She had a very lumpy tummy from her injections but they seem to be going quickly now.

A couple of years ago the hospital held an event where there were people with pumps and also pump company reps, this was just for children with diabetes as apparently there was some funding that they had obtained. We registered our interest and Amy was offered a pump in February this year. The consultant and dsn were a bit dubious about Amy having one as her control was not good (lots of admissions to the ward with very high ketones) and they had a word with her and told her that they could take it away from her if she doesn't do everything properly. Her last HBA1C was 11.9, I can't wait to see how improved it is. Her next clinic appt is at the end of July so it will only show results from her pumping. Very Happy

 
Apr 14, 2011
MelissaF 56 posts

Topic: Questions for HCPs / No change to HbA1c

Here you go - I found it. Scary! http://www.diabetes-support.org.uk/forum/Blah.pl?v-print/m-1287061511/

I just can't get over the thought that you have to wear it all the time and it's permanently connected to you. I hate the idea.

How has Amy found that respect of it Caroline? How come she started using it in the first place?


 
Apr 14, 2011
caroline15 45 posts

Topic: Questions for HCPs / No change to HbA1c

Novo - How did you get your DP under control? Shocked I'm glad to hear you're managing well Very Happy

Amy's been on the pump for nearly four weeks now, it is the best thing ever and I wish all diabetics were offered them Very Happy
 
Apr 14, 2011
novorapidboi26 1,819 posts

Topic: Questions for HCPs / No change to HbA1c

Because I have embraced DAFNE and I put in a lot of work with what seems like not a lot of effort (I actually enjoy taking control), I would settle in quite nicely with a pump, and I was nearly at that point a month ago, well at least approaching the subject.

But I have got my DP under control, well better anyway, so I dont really need one. Even if I wanted one, I would have a fight on my hands as would most people, some however seem to ask and get with the click of a finger.

If one is offered and you think you can commit yourself, then grab it with both hands............... Very Happy

Can you remember the site.....? Would be interested to visit........
 
Apr 14, 2011
MelissaF 56 posts

Topic: Questions for HCPs / No change to HbA1c

I think that some were on pumps but not all. Definitely T1s.

Have you ever been tempted by a pump? Personally I hate the idea but then I feel guilty that maybe I should over-come that for the sake of better control.
 
Apr 14, 2011
novorapidboi26 1,819 posts

Topic: Questions for HCPs / No change to HbA1c

MelissaF said:
Hi J,

Apologies for absence - life sort of gets in the way! Hope that everything's good with you? Have your levels settled down at all?

I viewed another forum yesterday for research and every single person contributing to that forum said that their HbA1c was around 5-5.5. Maybe this was a forum for superhumans or maybe they were all lying!

M xx



What site was this.............? Maybe they were Type 2s or pumpers.................Wink
 
Apr 14, 2011
MelissaF 56 posts

Topic: Questions for HCPs / Information on menstrual cycle

Hi Caroline,

You're absolutely right. How typical of me to think of the most expensive option first!

You need to chart your temperature when you wake up in the morning, at roughly the same time every day and before you do anything. You should notice that your temperature elevates for a few days around the time of ovulation and then drops again. Ovulation typically takes 48 hrs so I'm not sure if you would just notice two days or whether there would be an additional day or two of raised temperatures around that time as well.

You can buy charting kits in chemists for around £20 or obviously just make something up yourself. Once you've been doing it for a couple of months you might notice patterns.

This probably sounds like a bit of a pain but possibly, once you've been charting for a while, you will be able to tell when you're ovulating naturally as it might make you a bit more in tune with what your body's doing. I've never really noticed as my cycle is really irregular too but, now I'm actually recording it, I am much more aware of what's going on. Certainly a lot of my friends say that they know naturally anyway.

Once you've pinpointed that, it should be much easier to tell when you might need to raise insulin levels to cope for the impending week of PMT.

Good luck!

Melissa
 
Apr 14, 2011
MelissaF 56 posts

Topic: Questions for HCPs / Postop patients using DAFNE

Hi Larissa,

It's really encouraging to hear that you've been appointed in a role like this as I think it's so important and I'm glad that your hospital or health trust appreciates that. I'm also a little bit jealous as I would love to do something like that!

Good luck with what you're doing and I hope that it all goes well.

Melissa
 
Apr 14, 2011
MelissaF 56 posts

Topic: Questions for HCPs / No change to HbA1c

Hi J,

Apologies for absence - life sort of gets in the way! Hope that everything's good with you? Have your levels settled down at all?

I viewed another forum yesterday for research and every single person contributing to that forum said that their HbA1c was around 5-5.5. Maybe this was a forum for superhumans or maybe they were all lying!

M xx
 
Apr 14, 2011
novorapidboi26 1,819 posts

Topic: General Discussion / Do I adjust BI or QA first?

Three consecutive days high at lunchtime would suggest that you should up your insulin/carb ratio and for me personally this would be my first course of action, however I have established the correct doses of BI, am and pm.

So it really is up to you. When did you last test your BI doses.....? If its not been in a while, you just do a test one day, and you should see the results pretty quickly from the Levemir.

In theory, no dose changes should be considered until your background needs have been sussed out......
 
Apr 14, 2011
HelenP 218 posts

Topic: General Discussion / Do I adjust BI or QA first?

Someone...can not remember whom, told me that my BI ought to be about 2/3 of my total daily dose. This guideline worked well for me when I was eating 10-12 CPs a day. Sorry but I can not quote a definitive source. Helen
 
Apr 13, 2011
RobT 7 posts

Topic: DAFNE Online Mobile / Bug with iPhone app (& site diary)

Hi Simon,
Would be happy with site for BI and site for QA. That would suit well. Have got used to the app on the iPhone and the iPad - they work together. It is a shame that I have to use a laptop or a desktop to view the graphs - flash is not available on the iPad and iPhone ...
I for one would like a left and right buttock option!
Thanks for all the work you are doing.
Rob.