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Apr 15, 2011
Lizzie
87 posts
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Topic: DAFNE Online Mobile / Android app Thanks for your replies. I don't have the skills needed to do this, it is about all I can manage to operate my smart phone! But if anyone does I would really appreciate it.
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Apr 15, 2011
Athena
52 posts
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Topic: Questions for HCPs / Information on menstrual cycle Hi All,This is great information. I still have not had a reply from the e-mail that I sent to the DAFNE people. I have since phoned and spoken to Sharon to ask if there was any research on gender splits in terms of success but there isn't. In fact there doesn't seem to be nay research on why people fail to get control on DAFNE. Sharon suggested that I phone the NHR inSheffield where there is someone commissioned to look at a course called DAFNE Extra. This doesn't exactly sound what we are looking for. It sounds like a refresher with added help in relation to motivation. I really would prefer a course that is to do with trouble shooting and has extra info on things like how to sort BI patterns and the hormones etc. However, I will let you know if I get a reply from the DAFNE people about hormones and the outcome of my phonecall to the NHR. The info coming from all of you though is what is helping me most.I may try the temperature thing. This is really great! I do find in relation to breast tenederness that this is when my sugars start rising and I have to start upping the BI.So amybe, if you get this, this might be a symprom that might make you think that it is now the time to up the dose. I think what is also coming through is that we are all at different life stages and that cycles change during lifetime. Like some of the younger peop le, I had irregular cycles when younger and now that I am perimenopausal, they are really regular. Being on th epill was different again of course. I also didn't used to get breast tenderness, but this started in my 30's. I think it is not going to be one size fits all. My friend also runs a site for parents of children with type 1 and they have fouond that their daughters had great control in childhood but lost it at puberty and are finding that they can't get it back. I think in genearl the dibetes professionals should be looking into this and discussing it with patients more. Until then. I hope we can all keep the topic going on the site and help one another out with this one. I will be using the temperature chart provided as my next thing to try. take care.
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Apr 15, 2011
caroline15
45 posts
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Topic: Questions for HCPs / Information on menstrual cycle
For me the breast tenderness has always come about a week before the period (along with the horrible moods). I tend to know I'm ovulating by the pain (endometriosis) which was about a week before the tenderness and 2 weeks before the period but things are all over the place at the moment. I'm 46 and my daughter is 14 so we are both at the 'extremes' of menstruation - what a lovely combination lol |
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Apr 15, 2011
novorapidboi26
1,816 posts
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Topic: General Discussion / Dawn Phenomenon I too suffer from this and for a long time stopped increasing my BI as I thought it was not making a difference.....If you do get persistently high readings in the morning then you should keep upping the dose, say by 2 each time, at 22:00. I would also offer the consideration of moving your evening BI dose to a later time, this will mean there will be more BI in your system by the time 4:00am comes, the likely time your liver releases it glucagon. I see you take your evening BI dose at bed time, moving it to later time might be difficult then if you are in the land of nod...........I personally take my morning dose at 6:30 with breakfast and used to take the PM dose at 5:00-6:00, I moved it forward to 22:00, it helped a lot.... The first thing to do would be to increase the dose though, each time doing some 3am to make sure you are not going too low overnight. |
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Apr 15, 2011
daviebear
19 posts
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Topic: General Discussion / Dawn Phenomenon Hi Guys Just wondering if anyone has any advice on the dawn phenomenon,when the morning glucose is higher than expected.I am sure I have this,as my Bg's are high at 730am,but normal to reasonable at 3am.I have increased my BI and am now on a 3:1 ratio at breakfast but still have a morning rise.Do I still have to keep increasing my BI until I get a good result at 730am.Or do I leave it alone as I only have the 2 abnormal results normally. |
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Apr 15, 2011
novorapidboi26
1,816 posts
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Topic: DAFNE Online Mobile / Android app I would love to have a bash at it, it would take a long time getting to the standard of the iphone app..........also access to dafne images and logos would be a problem, maybe best left to our current smart phone programmers....... |
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Apr 15, 2011
novorapidboi26
1,816 posts
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Topic: General Discussion / Do I adjust BI or QA first?
Exactly right, the DAFNE step wise approach........... Best place to start is overnight, have your dinner and QA, BI later, no food till next morning. Test before bed and again in morning, you should be within a few mmol the next day, a few nights doing this and you should be able to make a decision. When happy, let the daytime basal tests begin.......... 
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Apr 15, 2011
JackieB
3 posts
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Topic: Questions for HCPs / Information on menstrual cycle Hi again,Sorry I've been offline for a while. I have managed to regulate (well almost) my cycle by using Glucophage which is a medicine used by Type 2 diabetics for insulin resistance. We thought I may have some insulin resistance and that is why I was prescribed it. However, it worked to regulate my cycle which is what I use it for now. I too am delighted to see this being discussed here. However, this is the HCP forum so I am hoping some professionals are reading this and that we may be pointed towards some research in this area or else encourage the instigation of research. Even a survey of how well females have got control in comparison to males(hormonal changes not as severe). From some of the posts here I am realising that the hormonal influences impact not only my Basal insulin but possilbly my ratios too. Is that right? Thanks to all who contribute, Jackie |
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Apr 14, 2011
JayBee
582 posts
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Topic: DAFNE Online Mobile / Android app No one has volunteered to develop one yet as far as I know.If anyone is interested in volunteering for this project, you will need to use Android SDK found here to get the ball rolling. |
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Apr 14, 2011
JayBee
582 posts
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Topic: Questions for HCPs / Information on menstrual cycle
I've not heard of measuring it but I was aware of the temperature rise because I do notice it naturally sometimes (just gotta kick off those bed covers!) It's so funny that we don't think of these things! Great thinking both of you! This has reminded me about breast tenderness that a lady from my DAFNE group said she took as a great indicator that she needed to put her insulin up - when should a symptom like that happen (if or when it does - I know I don't tend to get it myself) when it comes to ovulation? Is it during? It's funny that you're saying about age caroline15... with all these babies being planned on the forum and the like, me sitting here with not much experience when it comes to that (besides having the period itself) I feel I'm among professional females! I'm 26 - I'm surely not the youngest female posting on this thread surely? :-. Does anyone have a Digital Basal Thermometer that they would like to recommend? If not, I'll go hunting. I did just check with my sister who's had three kids, but she never used one!I think I will give this temp (or after a bit of research my Normal Basal Body Temperature) thing a go... It does seem that the Wikipedia Page about it is quite helpful. Do check out the chart they provide (see below):  This looks like it could be a great help.... or am I getting too carried away? Lol. My body has been hinting that it needs two weeks recently for the pre-TOTM higher doses... perhaps the higher doses are for my regular time? Whatever the answer, I'm really confused right now... time for me to do some temp checking me thinks! My regime (updated):
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Apr 14, 2011
JayBee
582 posts
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Topic: Questions for HCPs / No change to HbA1c
Life certainly does! I've been STILL having "fun" with my Time of the Month (TOTM) doses. Hopefully the puzzle will be worked out soon! Been so occupied though that I've not had time to update my BG diary on here.  Until then, I will continue to contribute to the menstrual cycle thread...
It can be hard to tell can't it? I find a lot of diabetics I've met in person aren't really happy to talk openly about their results... so perhaps there are some lies involved (it is easier to lie on the internet after all).... but regardless if they are or not, I think you shouldn't worry about what's happening with them. Your body is not theirs. ;) Keep your chin up and working at it...! |
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Apr 14, 2011
Nikki H-C
23 posts
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Topic: General Discussion / Do I adjust BI or QA first? Thanks Helen, I've been told the same but it's not an exact science from what I understand.Novorapidboi26, I'd forgotten about "testing" my BI first... this definately isn't right at the moment, am or pm! I'll try that first, but not both BI's on the same day... Thanks to all |
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Apr 14, 2011
Lizzie
87 posts
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Topic: DAFNE Online Mobile / Android app HiIs there any plan for an Android app any time soon? I know there is an iphone one but I don't have an iphone. Thanks |
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Apr 14, 2011
DFH_17
22 posts
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Topic: Questions for HCPs / Information on menstrual cycle Have noticed that all my BG's are affected when I'm on my period - I luckily have a regular cycle - every 4 weeks and starts on the same day every month. I constantly have hypo's while I'm on my period - however, since going on the DAFNE course I automatically lower my QA doses now - it took a couple of months for the penny to drop. Its still not quite there but is slowly calming down.JWo - I have the same problem where I've treated the hypo then I go hypo again - and that also happens outside of the period week. Am really happy - if thats the right word that this is being discussed - as its such an important issue. |
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Apr 14, 2011
novorapidboi26
1,816 posts
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Topic: Questions for HCPs / No change to HbA1c
The pump only uses one insulin, that being a quick acting analogue, like novorapid............there is then a constant release of this which act as a background, and then as normal, a bolus dose when you eat, this can be given up front or released over a set time, or both (dual wave)......they really are amazing things, essentially you could be on target all the time......... With regards to your statement about still being alive, the human body wont give up without a fight, its just the scars from the fight are sometime undesirable............. |
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Apr 14, 2011
MelissaF
56 posts
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Topic: Questions for HCPs / No change to HbA1c It sounds like it really suits her Caroline and I guess it's a massive relief for you as far as her control is concerned.So does the pump dispense QA as well as BI then? When I first read up on them I'm sure that they were BI only and you still had to inject QA when you ate but the pump made sure that your background levels were better regulated. I'm guessing that they do everything for you now then? I have absolutely no memory whatsoever of what my HbA1cs were when I was a teenager but I should imagine that they were absolutely appalling simply because I didn't really have a clue how to manage things and I didn't really think about it very much. It's probably amazing that I'm still alive! |
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Apr 14, 2011
novorapidboi26
1,816 posts
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Topic: Questions for HCPs / No change to HbA1c
A combination of upping the PM dose considerably and moving it to later on at night...........I kept upping my doses with no effect and then I stopped as I thought, this aint working, when really I should of continued on.....its not totally under control, I am still off target and depending on what I eat previous to bed sometimes makes me higher. At the moment they are coming down, which in turn is dropping my averages, so if I keep it up and I can get an A1c below 7 I will be happy........... |
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Apr 14, 2011
caroline15
45 posts
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Topic: Questions for HCPs / No change to HbA1c Hi Melissa, she's absolutely fine with it being connected all the time, she just takes it off for pe and showers. She hated injecting and would need a lot of nagging to do it - it is so much easier for her to just input the amount of carbs she is eating and the pump works out how much bolus she needs and also how much correction she needs as her meter sends her readings to her pump (I think by bluetooth). She had a very lumpy tummy from her injections but they seem to be going quickly now.A couple of years ago the hospital held an event where there were people with pumps and also pump company reps, this was just for children with diabetes as apparently there was some funding that they had obtained. We registered our interest and Amy was offered a pump in February this year. The consultant and dsn were a bit dubious about Amy having one as her control was not good (lots of admissions to the ward with very high ketones) and they had a word with her and told her that they could take it away from her if she doesn't do everything properly. Her last HBA1C was 11.9, I can't wait to see how improved it is. Her next clinic appt is at the end of July so it will only show results from her pumping. |
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Apr 14, 2011
MelissaF
56 posts
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Topic: Questions for HCPs / No change to HbA1c Here you go - I found it. Scary! http://www.diabetes-support.org.uk/forum/Blah.pl?v-print/m-1287061511/I just can't get over the thought that you have to wear it all the time and it's permanently connected to you. I hate the idea. How has Amy found that respect of it Caroline? How come she started using it in the first place? |
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Apr 14, 2011
caroline15
45 posts
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Topic: Questions for HCPs / No change to HbA1c Novo - How did you get your DP under control? I'm glad to hear you're managing well Amy's been on the pump for nearly four weeks now, it is the best thing ever and I wish all diabetics were offered them
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Apr 14, 2011
novorapidboi26
1,816 posts
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Topic: Questions for HCPs / No change to HbA1c Because I have embraced DAFNE and I put in a lot of work with what seems like not a lot of effort (I actually enjoy taking control), I would settle in quite nicely with a pump, and I was nearly at that point a month ago, well at least approaching the subject.But I have got my DP under control, well better anyway, so I dont really need one. Even if I wanted one, I would have a fight on my hands as would most people, some however seem to ask and get with the click of a finger. If one is offered and you think you can commit yourself, then grab it with both hands............... Can you remember the site.....? Would be interested to visit........ |
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Apr 14, 2011
MelissaF
56 posts
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Topic: Questions for HCPs / No change to HbA1c I think that some were on pumps but not all. Definitely T1s.Have you ever been tempted by a pump? Personally I hate the idea but then I feel guilty that maybe I should over-come that for the sake of better control. |
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Apr 14, 2011
novorapidboi26
1,816 posts
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Topic: Questions for HCPs / No change to HbA1c
What site was this.............? Maybe they were Type 2s or pumpers.................
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Apr 14, 2011
MelissaF
56 posts
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Topic: Questions for HCPs / Information on menstrual cycle Hi Caroline,You're absolutely right. How typical of me to think of the most expensive option first! You need to chart your temperature when you wake up in the morning, at roughly the same time every day and before you do anything. You should notice that your temperature elevates for a few days around the time of ovulation and then drops again. Ovulation typically takes 48 hrs so I'm not sure if you would just notice two days or whether there would be an additional day or two of raised temperatures around that time as well. You can buy charting kits in chemists for around £20 or obviously just make something up yourself. Once you've been doing it for a couple of months you might notice patterns. This probably sounds like a bit of a pain but possibly, once you've been charting for a while, you will be able to tell when you're ovulating naturally as it might make you a bit more in tune with what your body's doing. I've never really noticed as my cycle is really irregular too but, now I'm actually recording it, I am much more aware of what's going on. Certainly a lot of my friends say that they know naturally anyway. Once you've pinpointed that, it should be much easier to tell when you might need to raise insulin levels to cope for the impending week of PMT. Good luck! Melissa |