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Mike, it really just took more time and it really was only the one official in Hong Kong that was difficult.

Trust you get the pump up and running with appropriate settings before you go. I asked last November if I could get the pump then so it would really be an integral part of me before I went but was told by the CDE that two weeks would be fine. She set the date for pump as 9th March. I left on the 27th and no settings had been established/adjusted so I was correcting all the time (bit confusing as you can not let the pump do its job!) I am now home and working at collecting the data to make the adjustments to basal rates...from first principles! Today is a carb free day...oh @#$%^&.
Helen

Apr 17, 2011

Mike Ward 1 post

oh my im going to choose my insulin pump tomoro afternoon and im planning a holiday in june and im dredding all the hassle at the airport i understand they will be suspishus when someone is boarding a plane with a device thats wired to the passinger.... but im goingto ask for advise on this lol

glad to hear u got home all ok

Apr 17, 2011

nomis 6 posts

Think of it as this scenario pretend it is 2 armies going to battle CP's against QA&BI commecing at 22:00. The QA & BI are going to come on strong before levelling off during the early hours the CP's have seen it all before they will send in the fast acting soldiers i.e sugars and starches then the older guys slow acting CP's will kick in hours later because they seen it all before and they know "daviebear" does not send in enough troops and like to get you outside dafne target for your morning test.

That is one of a multitude of scenarios that may question you to look at different strategys if it's one that continues to persit and do not forget it's a manual system we operate so it's never without minor problems.

The other point is if your not waking up hypo the question you may have to ask are you bothered about the 3am test dipping, just a touch more QA might do the trick to bring you in target for breakfast and if you are not hypo in the early hours why worry.

Keep at it.

Apr 17, 2011

daviebear 19 posts

I amdit to being a bit greedy at 10 at night,but always match my carb to QA correctly.I may very well just inject 1 unit of QA at 3am if it stops me feeling so shitty on wakening.Am sure i'm not hypoing during night so will take the extra to see if it helps.Am now up to 40 units of BI at 10pm with no improvement.Cheers for your advice.

Apr 16, 2011

nomis 6 posts

The figures do not look that bad but you may be seeking perfection, your biggest intake of carbs are before bed at 22:00 plus you throw in the BI & QA at the same time and I have to presume you have caluclated the carbs spot on. The answers would lie in the profiles of you QA & BI plus the release of the CP's while in the horizontal mode, a touch more QA is not going to do any harm and I would try based on your own assessment of things of the day in hand I say this because you have not gone hypo mid morning and are not waking up with a headache.

On a less serious note if you intend to make a habit of getting up at 3am simply inject 1 UNIT of QA and the problem has gone, simple. Twisted Evil

Good Luck

Apr 16, 2011

novorapidboi26 1,819 posts

I agree getting the lows away comes first, so drop your insulin/carb ratio till your on target next meal, test in between to see how high you go, if its too high for your liking the you can think about dose times.........they say it works immediately, but i dont think thats accurate, after about 30 minutes its ready to go, but mainly its meeting up with the digestion....

Apr 16, 2011

daviebear 19 posts

Thanks for that novorapidboi.Was unsure as I have now increased my evening BI from 20 to 36 since starting dafne.Although this is still roughly half the evening dose I used to take,was still kind of wary about the increase.As you will see from todays results I seem to have no grip on it yet,plan to go carb free at supper tonight to see what kind of results I get from that.Thanks for the input. Very Happy

Apr 16, 2011

Simon 578 posts

Topic: DAFNE Online Mobile / Android app

We would like to broaden out into the Android app store - though I myself am an Apple fanboy through and through realise that not everybody is like me Smile

At the moment it's a question of time - Mark is currently working on updating the online Handbook, and mine is split between adding new features to the site and iPhone app. We will eventually get round to the Android/Blackberry/Windows Mobile apps, with Android being top priority, however our biggest problem is a lack of time. Any help with this is most appreciated - though we'd have to ensure that the features/functions of the iPhone and Android apps were consistent.

Simon

Apr 16, 2011

HelenP 218 posts

i don't think it was the language rather the officiousness of the individual. The guy spoke to the girl in English!

Apr 16, 2011

JayBee 587 posts

What a load of hassle for you. I had a close call on my first trip home back from Japan but no hassle at all for my second trip.

Would it be possible to get your Doctor's note translated into chinese for future use? I have a copy of mine translated into Japanese just in case (after what happened on the first trip) - and I keep them together, back to back in a plastic wallet within a folder when I go abroad.

Best wishes for the next trip!

Apr 16, 2011

vic demain 87 posts

That hasn't been mentioned and my concern would be taking QA which works immediately, a period before eating, when already going low at that point, would potentially be dangerous. First though is to get rid of the hypos, then try and sort things out. Not so much a pain in the bum, just feel cr*p a lot of the time.

Apr 16, 2011

HelenP 218 posts

I had no trouble leaving Australia (took a bit of time but happy to let me walk through with the pump...although they did swab it for drugs!) bound for Hong Kong. Hong Kong was just a transfer but they still took a close look and were more interested in the cartridges of insulin I had with me than the pump. Into Incheon Airport (Seoul) and no bother getting out of the airport.

Coming home was a different matter... Thorough check at Incheon but were happy to let me through with the Drs letter and the card from the pump manufacturers essentially say I am not to be separated from the pump...life sustaining etc. Arrived at Hong Kong 40 mins late (technically had no time to buggarize around as I was due in the departure lounge) and they wanted me to take the pump off and put it through the xray machine. (My pump manufacturer says that is an absolute No No!) I refused...they (the girl) refused...finally a younger more fluent English speaker arrived and asked what the problem was. I explained and he said the pump was fine and to just walk through. Determined the young girl then wanted to check all my prescription medications and when she came to the vials of insulin (for the pump) declared they were liquids! (Any research on blowing up aircraft with three 3mL vials of insulin!) Back came the young man (people who were also connecting with the Brisbane flight were getting a bit anxious at this stage as none of us wanted to miss the connection) and English speaking guy simply stated the obvious...the insulin is for the pump. Left the transfer area as they were calling final call for the flight home. No probs at Brisbane. Declared everything: the lollies, the medications, the pump and the insulin and was waved through. Thank goodness...home, a shower and a sleep. Helen

Apr 15, 2011

novorapidboi26 1,819 posts

vic demain said:
I've been having problems with my HbA1c. did the course about 18 months ago and ever since have suffered a huge amount of hypos. Was told the HbA1c should steadily drop, but that has not been the case, still around 8.2. I have dropped my BI dramatically. Trouble is, I will test between meals and am often around 13 but by next meal test I am low. Have tried really hard but getting fed up with all the hypos and the high HbA1c

Sounds like a pain in the bum....going low for the next meal means either too much QA or BI, so if we assume the BI is correct its your QA. Avoiding the spikes between meals can be achieved by injecting well before you eat, you can start of with 10 mins, then go up to 20 if needed, even 30 like me, even more possible, and it can vary depending on the timw of day...........

have your team mentioned that option.......

Apr 15, 2011

vic demain 87 posts

I've been having problems with my HbA1c. did the course about 18 months ago and ever since have suffered a huge amount of hypos. Was told the HbA1c should steadily drop, but that has not been the case, still around 8.2. I have dropped my BI dramatically. Trouble is, I will test between meals and am often around 13 but by next meal test I am low. Have tried really hard but getting fed up with all the hypos and the high HbA1c

Apr 15, 2011

novorapidboi26 1,819 posts

Topic: DAFNE Online Mobile / Android app

I have advertised the job over at diabetessupport.co.uk, there seems to be a few technical guys over there, I will defo have a wee look though.....

So marke and Simon, if anyone comes a knockin from there regarding this it was me that sent them to you........

Apr 15, 2011

Lizzie 87 posts

Topic: DAFNE Online Mobile / Android app

Thanks for your replies. I don't have the skills needed to do this, it is about all I can manage to operate my smart phone! Very Happy

But if anyone does I would really appreciate it.

Apr 15, 2011

Athena 52 posts

Topic: Questions for HCPs / Information on menstrual cycle

Hi All,
This is great information. I still have not had a reply from the e-mail that I sent to the DAFNE people. I have since phoned and spoken to Sharon to ask if there was any research on gender splits in terms of success but there isn't. In fact there doesn't seem to be nay research on why people fail to get control on DAFNE. Sharon suggested that I phone the NHR inSheffield where there is someone commissioned to look at a course called DAFNE Extra. This doesn't exactly sound what we are looking for. It sounds like a refresher with added help in relation to motivation. I really would prefer a course that is to do with trouble shooting and has extra info on things like how to sort BI patterns and the hormones etc. However, I will let you know if I get a reply from the DAFNE people about hormones and the outcome of my phonecall to the NHR.

The info coming from all of you though is what is helping me most.I may try the temperature thing. This is really great!
I do find in relation to breast tenederness that this is when my sugars start rising and I have to start upping the BI.So amybe, if you get this, this might be a symprom that might make you think that it is now the time to up the dose.

I think what is also coming through is that we are all at different life stages and that cycles change during lifetime.
Like some of the younger peop le, I had irregular cycles when younger and now that I am perimenopausal, they are really regular. Being on th epill was different again of course.
I also didn't used to get breast tenderness, but this started in my 30's. I think it is not going to be one size fits all.
My friend also runs a site for parents of children with type 1 and they have fouond that their daughters had great control in childhood but lost it at puberty and are finding that they can't get it back. I think in genearl the dibetes professionals should be looking into this and discussing it with patients more. Until then. I hope we can all keep the topic going on the site and help one another out with this one.

I will be using the temperature chart provided as my next thing to try.

take care.

JWo said:
caroline15 said:
Didn't people used to measure their body temperature to see when they are ovulating? (I feel old all of a sudden)

I've not heard of measuring it but I was aware of the temperature rise because I do notice it naturally sometimes (just gotta kick off those bed covers!)
It's so funny that we don't think of these things! Great thinking both of you!

This has reminded me about breast tenderness that a lady from my DAFNE group said she took as a great indicator that she needed to put her insulin up - when should a symptom like that happen (if or when it does - I know I don't tend to get it myself) when it comes to ovulation? Is it during?

It's funny that you're saying about age caroline15... with all these babies being planned on the forum and the like, me sitting here with not much experience when it comes to that (besides having the period itself) I feel I'm among professional females!

I'm 26 - I'm surely not the youngest female posting on this thread surely? :-.

Does anyone have a Digital Basal Thermometer that they would like to recommend? If not, I'll go hunting. I did just check with my sister who's had three kids, but she never used one!

I think I will give this temp (or after a bit of research my Normal Basal Body Temperature) thing a go... It does seem that the Wikipedia Page about it is quite helpful. Do check out the chart they provide (see below):

This looks like it could be a great help.... or am I getting too carried away? Lol.
My body has been hinting that it needs two weeks recently for the pre-TOTM higher doses... perhaps the higher doses are for my regular time?
Whatever the answer, I'm really confused right now... time for me to do some temp checking me thinks!

My regime (updated):

Thursday (two weeks before the pill finishing tuesday) EVE: 16 BI
Friday MORN: 9 BI (have been having post-lunchtime hypos which I have established are not QA today).

Leave it until...

Thursday (first thurs after pill is finished) EVE: 11 BI
Friday MORN: 9 BI

Period starts late sat/early sun - only lasts a few days (due to pill). Leave it until...

Monday MORN: 7 BI (Failing to change to this can cause very serious hypos post-breakfast. This happens EVERY CYCLE without fail.)
Monday EVE: 9 BI

Then when the pill starts again Wednesday EVE I'm back to "normal routine" of ~~6 MORN BI and 11 EVE BI~~. (I'm now challenging this!)

Apr 15, 2011

caroline15 45 posts

Topic: Questions for HCPs / Information on menstrual cycle

JWo said:
This has reminded me about breast tenderness that a lady from my DAFNE group said she took as a great indicator that she needed to put her insulin up - when should a symptom like that happen (if or when it does - I know I don't tend to get it myself) when it comes to ovulation? Is it during?

It's funny that you're saying about age caroline15... with all these babies being planned on the forum and the like, me sitting here with not much experience when it comes to that (besides having the period itself) I feel I'm among professional females!

I'm 26 - I'm surely not the youngest female posting on this thread surely? :-.

For me the breast tenderness has always come about a week before the period (along with the horrible moods). I tend to know I'm ovulating by the pain (endometriosis) which was about a week before the tenderness and 2 weeks before the period but things are all over the place at the moment.

I'm 46 and my daughter is 14 so we are both at the 'extremes' of menstruation - what a lovely combination lol

Apr 15, 2011

novorapidboi26 1,819 posts

I too suffer from this and for a long time stopped increasing my BI as I thought it was not making a difference.....

If you do get persistently high readings in the morning then you should keep upping the dose, say by 2 each time, at 22:00. I would also offer the consideration of moving your evening BI dose to a later time, this will mean there will be more BI in your system by the time 4:00am comes, the likely time your liver releases it glucagon.

I see you take your evening BI dose at bed time, moving it to later time might be difficult then if you are in the land of nod...........I personally take my morning dose at 6:30 with breakfast and used to take the PM dose at 5:00-6:00, I moved it forward to 22:00, it helped a lot....

The first thing to do would be to increase the dose though, each time doing some 3am to make sure you are not going too low overnight.

Apr 15, 2011

daviebear 19 posts