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15,864 posts found
Apr 18, 2011
novorapidboi26
1,819 posts
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Topic: Questions for HCPs / menstrual cycle DAFNE Extra AHH......thanks, I understand now................that's a great idea to be honest, especially if they could figure out some kind of rules when it comes to the woman's menstrual behaviors..I personally think lifestyle plays a large part on whether people stick at it............during the 5 days there the testing actually shows the principals working, so for those five days everything is exciting and new, and making sense...........but as we all know, things change every now and again, ratios, BI requirements..........it can be hard to get motivated when you just dont know whats happening.................online support like this and other diabetic forums should be mentioned much more I think.... |
Apr 18, 2011
novorapidboi26
1,819 posts
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Topic: General Discussion / Hi All :)
Before DAFNE my weight went up and down, I was on M3 too, but the 2 years run up to me pulling the finger out, I had lost a lot, didn't really notice it to be honest, but I was in a bad way. Ever since getting on top of things my weight has gradually went up, I am overweight but its a small price to pay for good, well, getting better, HbA1c results. My theory is/was that my body was starved of fuel for so long that it got used to using its own stores of fat and muscle for energy, and then pretty much overnight it was given real carbs and then insulin to process it, so in a panic it started to store energy (fat) in case it was forced to use its own stores again. It may be a wee fantasy I have came up with but I have convinced myself there may be some truth in it, however that was a few years back now, so whats my excuse now.................getting my thyroid checked this month, so maybe that may reveal some answers. You dont seem to be on a lot of insulin, do you eat much carbs.......? Most people lose weight after DAFNE as they fine tune there doses and actually end up on less than when they started....... |
Apr 18, 2011
Hayliee-Louise
5 posts
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Topic: General Discussion / Hi All :) Ps. Thanks for the link James, I'll deffo be having a go at that, just what I need whilst i wait for my new regime! Thanks a lot.![]() |
Apr 18, 2011
Hayliee-Louise
5 posts
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Topic: General Discussion / Hi All :) I lost 5 stone in 6months once I was started on insulin. I was dress size 24, I am now a 10. Although I feel great as i never really understood why I was so big and jut couldn't shift the weight, I know it wasnt healthy. How have you guys found diabetes & weight gain/weight loss? |
Apr 18, 2011
Hayliee-Louise
5 posts
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Topic: General Discussion / Hi All :) Thanks for the replys guys, hearing other people's story's really does help you understand your own. Im going to hospital this week for a 24 hour heart tracker, doctors suspect Ectopic Beats, good or bad news it will put my mind at rest if I know once and for all. Im pushing for the course and awaiting my bolas regime, I'm currently on humalin M3 quickpen, taking 20mmol AM & 20mmol PM. I've explained to doctors I'm 21 with no real routine or structure to my life and can never really plan meal times, I have a busy job working for the NHS and it's a case of "grab lunch when you can". I love my job and the people I work with, doctors at my surgery are often giving me advice and keeping there watchful eye on me lol! At first checking my blood was a real pain so to be honest I didn't bother. I've just recently been given the Accu-check mobile tester which is making life a lot easier and now check my blood between 5/6 times a day. With stoping smoking, cutting out carbs and introducing exersize slowly until Im placed on DAFNE & Bolas, I'm hopping I can improve my sugar and maintain my weight as o l |
Apr 18, 2011
Athena
52 posts
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Topic: Questions for HCPs / menstrual cycle DAFNE Extra Hi Novorapid boi,Barriers to success are being investigated. These might be motivational , like patients feeling that DAFFNE is too much work so they give up, or they feel much iller on DAFNE sot hey give up, or, they might be physiological like there is some reasons to do with particular people's bodies that make it impossible for them to get control. By doing research with hundreds of graduates into all sorts of issues they hope to identify what the main problems are. Then they will design a course that will be part of a refresher and part new stuff with answers about how to overcome these problems. Us girls are hopig that our hormones and how they affect bg control will be covered in the course as so many of us are changing our BI all the time as our insulin requirements change over a month which is a nightmare. Hope this covers it but the course will not be delivered a s a pilot for a year or two and it will take longer for it to be rolled out nationwide. |
Apr 18, 2011
novorapidboi26
1,819 posts
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Topic: Questions for HCPs / menstrual cycle DAFNE Extra So what aspect is it that is being investigated exactly, sorry, I didn't quite follow............![]() |
Apr 18, 2011
Athena
52 posts
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Topic: Questions for HCPs / menstrual cycle DAFNE Extra Hi All,Spoke as promised to people doing research into DAFNE with a view to designing an additioanl course for graduates. this will be called DAFNE Extra and will help people who ahve not managed to get control. They are currently investigating barriers to control. These could be psychological/ motivational for instance. They are also looking at physiological barriers which is where we come in. I explained our problems and they found this quite interesting. It was great talking to the researcher. In MAy, there will be another meeting and she will raise this issue with the people investigating the physiological barriers. I mentioned that it wasn't jsut me, there was plently of other people on the on- line discussion who were all experiencing the same problems. Unfortunatley, the underpinning research and then subsequent design of a course means that we won't see DAFNE Extra pilot courses in some of our centres for at least a couple of years! However, you may be interested to know that there is research going on with hundred of DAFNE graduates, some of which should be published soon. This looks at quality of life after DAFNE, and all sorts of issues about controland how people are getting on, not just HBA1c results. It will be really interesting to see if anything comes up.If I find anything, I will post the links here. In the meantime, I think we should keep the discussion going in order that there is recognition of what we all feel is a gap in the DAFNE education. take care everyone. Take |
Apr 18, 2011
novorapidboi26
1,819 posts
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Topic: Site Development / Online Diary......... Always a quick and efficient service.............thanks......![]() |
Apr 18, 2011
novorapidboi26
1,819 posts
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Topic: General Discussion / Hi All :) Hi Hayliee-Louise, welcome to the site..........You haven't been diagnosed very long so although your control has been bad for a while, you can turn it around and reverse some of the symptoms you may be having. The fact that you have acknowledged you should start to make an effort is really good, and a lot quicker than I realized, took me 10 years really. The quicker you get on DAFNE the better, the things your told about just make it seem so simple, its amazing, dont get me wrong, Diabetes is still a pain the ass and you can get blood glucose readings that just dont make sense, but for the majority of the time it does really work. An HbA1c of 10.2 is not too bad, I was 11.8 pre DAFNE, any higher and they were going to say NO..... ![]() What insulin regime are you on now....?DAFNE will teach you to spot patterns with your blood sugars, establish how much background insulin you need over a 24 hour period and successfully change your own doses of both your background and meal time insulin. In the meantime you could visit the Bournemouth Online Carb Counting course, basically DAFNE but online........you can find it HERE.......might give you a head start and let you see some good blood sugars. If there are any general questions or information you would like, dont hesitate to ask, no question is silly..... Hope to hear from you soon..... James.... ![]() |
Apr 18, 2011
vic demain
87 posts
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Topic: General Discussion / Hi All :) Hi Hayliee-Louise, welcome. First thing you are obviously very bright, that comes over in your post. Second, you have now accepted the fact that you have a problem and cannot continue to ignore it. So you are half way there. It is not easy and no one should tell you that it is. I have had Type 1 for 30 years and still my control is poor even though I have done DAFNE and worked bloody hard at it. But we both have choice, try and improve to hopefully enjoy a happy long life or ignore it and suffer the consequences. Badger your GP to get on a DAFNE education course, point them to this site, they will fight you but don't give in, show them that improved control will save the NHS money in the long term.You shouldn't have to live through the worries that you have, they are not necessary, with help and your commitment you can cope with diabetes. Good luck to you, you have a life to enjoy. |
Apr 18, 2011
Hayliee-Louise
5 posts
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Topic: General Discussion / Hi All :) Haha well now I feel a tool, bloody touch screen, anyway I'm 21 and I was diagnosed with type 1 diabetes on Xmas day 2010. If I'm honest the severity of the disease is only just starting to sink in recently. At first I stuck my head in the sand hoping it would all dissapear, sadly as you all know, that's not the case. It's 3:30am and i am currently led in bed scared to sleep due to palpitations and constant heart flutters that I have been experiencing recently. I found this forum just as I was mooching on the net about DAFNE as I'm hoping to be placed on a course in my area soon (Lancashire). My sugar control is terrible, I know little about the disease and how to control it and as a result I'm not, my blood sugar levels have been in the region of 18 - 30 for around 18 months now. Shocking I know, but I was stupid and really just couldn't get my head around this. I also suffer from Neuphrotic Syndrome I was diagnosed when I was 12 months old. When I was diagnosed with Diabetes I was having many personal & family problems which led to me having poor control, like I said I didn't understand the severity and to be Frank at that time I didn't care. 18 months on and a little wiser and after some research and interest on my wellbeing (I know that sentence sounds bizarre) I have come to realise the damage I am doing and have already done. I'm already suffering from numbness, tingled in my arms and legs, palpitations, blurred vision. I haven't slept at all really for the past week as my palpitations are getting out of hand, truth is in scared to sleep, scared I might not wake up. I've had 1 "hypo" since diagnosis and it was a scary thing. I'm hyperglycaemic so when my blood sugar does drop (lowest I've ever seen is 10) I feel like in having a hypo. I often have ketones and I was smoking also, thing of the past now though. Truth be told I'm so angry at myself for not realising how serious control is earlier on, and Im disgusted with myself. I'm finding it very hard to adapt. My last Hba1c was 10.6. I have taken it upon myself to research calorie counting as Im waiting to be placed on a define course and awaiting my bolas plan. The nurses at my hospital often find it hard to help me as they say I'm specialist. I really do hope things get better if I'm placed on a course, because at the moment I can't cope it's really effecting me day to day. I know what I need to do just dont really know how to get there. Please tell me with education it gets better! Hope I haven't bored you all death lol! Look forward to any replies guys![]() |
Apr 18, 2011
Hayliee-Louise
5 posts
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Topic: General Discussion / Hi All :) Just thought I'd introduce myself, I'm Hayliee and I'm 21 years old and I was diagn |
Apr 17, 2011
Simon
578 posts
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Topic: Site Development / Online Diary......... And its now on the done list. |
Apr 17, 2011
HelenP
218 posts
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Topic: General Discussion / Travelling on a pump! Mike, it really just took more time and it really was only the one official in Hong Kong that was difficult.Trust you get the pump up and running with appropriate settings before you go. I asked last November if I could get the pump then so it would really be an integral part of me before I went but was told by the CDE that two weeks would be fine. She set the date for pump as 9th March. I left on the 27th and no settings had been established/adjusted so I was correcting all the time (bit confusing as you can not let the pump do its job!) I am now home and working at collecting the data to make the adjustments to basal rates...from first principles! Today is a carb free day...oh @#$%^&. Helen |
Apr 17, 2011
Mike Ward
1 post
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Topic: General Discussion / Travelling on a pump! ![]() glad to hear u got home all ok |
Apr 17, 2011
nomis
6 posts
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Topic: General Discussion / Dawn Phenomenon Think of it as this scenario pretend it is 2 armies going to battle CP's against QA&BI commecing at 22:00. The QA & BI are going to come on strong before levelling off during the early hours the CP's have seen it all before they will send in the fast acting soldiers i.e sugars and starches then the older guys slow acting CP's will kick in hours later because they seen it all before and they know "daviebear" does not send in enough troops and like to get you outside dafne target for your morning test.That is one of a multitude of scenarios that may question you to look at different strategys if it's one that continues to persit and do not forget it's a manual system we operate so it's never without minor problems. The other point is if your not waking up hypo the question you may have to ask are you bothered about the 3am test dipping, just a touch more QA might do the trick to bring you in target for breakfast and if you are not hypo in the early hours why worry. Keep at it. |
Apr 17, 2011
daviebear
19 posts
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Topic: General Discussion / Dawn Phenomenon I amdit to being a bit greedy at 10 at night,but always match my carb to QA correctly.I may very well just inject 1 unit of QA at 3am if it stops me feeling so shitty on wakening.Am sure i'm not hypoing during night so will take the extra to see if it helps.Am now up to 40 units of BI at 10pm with no improvement.Cheers for your advice. |
Apr 16, 2011
nomis
6 posts
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Topic: General Discussion / Dawn Phenomenon The figures do not look that bad but you may be seeking perfection, your biggest intake of carbs are before bed at 22:00 plus you throw in the BI & QA at the same time and I have to presume you have caluclated the carbs spot on. The answers would lie in the profiles of you QA & BI plus the release of the CP's while in the horizontal mode, a touch more QA is not going to do any harm and I would try based on your own assessment of things of the day in hand I say this because you have not gone hypo mid morning and are not waking up with a headache.On a less serious note if you intend to make a habit of getting up at 3am simply inject 1 UNIT of QA and the problem has gone, simple. ![]() Good Luck |
Apr 16, 2011
novorapidboi26
1,819 posts
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Topic: Questions for HCPs / No change to HbA1c I agree getting the lows away comes first, so drop your insulin/carb ratio till your on target next meal, test in between to see how high you go, if its too high for your liking the you can think about dose times.........they say it works immediately, but i dont think thats accurate, after about 30 minutes its ready to go, but mainly its meeting up with the digestion.... |