Recent Posts - DAFNE Online

Apr 2, 2011

tweety 13 posts

Topic: General Discussion / What The Hell Happened Today.

hi davie, what had your results been b4 you reduced your bi frm 22 to 20? if i had the results you've shared i would prob reduce the am bi again. i had a similar situation in work a few months back and had to stay for a couple of hours after work till my bg went up so i understand your frustration, but remember dont do loads of changes at once. hope this helps, good luck.

Apr 2, 2011

nomis 6 posts

Topic: General Discussion / What The Hell Happened Today.

Very interesting results I would say the 3.1 ratio is fine to get you right for mid day it would seem then a 1.1 but it makes me think from what I have picked up recently when going on the dafen regime should you start Lantus dose from scratch with one injection per day ?

Apr 2, 2011

daviebear 19 posts

Topic: General Discussion / What The Hell Happened Today.

Forgot to mention.I definately didn't use the wrong kind of insulin,as you can hopfully see by these charts.I use 2 different pens.I remember being told years ago,that I could be releasing insulin from the lumps I have required over the years.Has anyone else heard of this?The results here as as close as i could enter on the online form,but as you can see it was a lot of CP's with no gain in Blood Glucose.

Apr 2, 2011

daviebear 19 posts

Topic: General Discussion / What The Hell Happened Today.

Sorry about that .Here are those results now.

Apr 1, 2011

Edentherapies 8 posts

Topic: Site Development / Glossary of Terms

Aye,

When I was on my DAFNE course I had No idea what either were in reference to! Knew it was regarding the types of insuline but not sure which. Bit embarassed and didn't want to say! So it would be good to know exactly what they refer to as both were mentioned through out the course.

Apr 1, 2011

marke 643 posts

Topic: Site Development / Glossary of Terms

Its a good idea, but....
We need to find someone to do it, preferably a HCP rather an Simon or I. This is more to ensure accuracy and get good explinations, we are after all IT people, not a group known for their literary skills ( or their spelling skills Wink

)

Apr 1, 2011

marke 643 posts

Topic: General Discussion / Ideas

novorapidboi26 said:
Wow, the advice of not going above 4 for a correction is news to me, the curriculum of the course is always changing I suppose but I personally would say that is not the best advice, not going over 4 is fine if you blood sugar is not far off target ranges, but 26s are quite uncomfortably high.....

Don't worry you are not out of date Wink

, I am currently toiling over the conversion of the new handbook to the online version and it states:
'Until you have worked out your own sensitivity to your quick acting insulin , it is recommended that no more than a 4 unit correction is given at one time'

The figure 4 is therefore not a hard and fast maximum rather a guide when you are first working out your individual requirements. If you need more then you can give more. They are just urging caution initially.

Apr 1, 2011

marke 643 posts

Topic: General Discussion / Ideas

Until you have worked out your own sensitivity to your quick acting insulin , it is recommended that no more than a 4 unit correction is given at one time

Apr 1, 2011

marke 643 posts

Topic: General Discussion / What The Hell Happened Today.

Davie, as others have mentioned on other posts, its far easier if you put figures into the online diary and post a setion of that into the formum. Its very hard to give advice based on your free form description of CP's and insulin, especially with no context. I would say its very unlikely one hypo would cause this and given the amount of CP's you pumped into yourself it sounds like you potentailly used the wrong insulin. That could potentially cause what you describe and is one possible explination.

Apr 1, 2011

daviebear 19 posts

Topic: General Discussion / What The Hell Happened Today.

I was under the impression that hypo would be easier to treat under the dafne regime.So I am wondering what the hell happened today.1240pm BG 2.3,2Cp's taken along with 8.5 as lunch.16 units of QA taken so as to reduce insulin dose as well.Background dose was 20 at 10am(reduced from 22 yesterday).Blood glucose refused to go up,with a total of 2 380ml bottles of Lucozde and 500ml bottle of coke and 2 packets of crisps taken between 1250 and 1640.Doses of lucozade taken every 10 to 20 mins.Now at 1700 Bg now at 4.4.Is this maybe beacause I hypo'd yesterday and used up my glucagon store.Haven't had a day like this for while,but before I had the excuse of being on massive doses of insulin.Any ideas?

Apr 1, 2011

novorapidboi26 1,816 posts

Topic: General Discussion / Mentoring

Your words are kind, thanks........

I dont think I would walk away from the opportunity, would be scary though........ Twisted Evil

Mar 31, 2011

Edentherapies 8 posts

Topic: General Discussion / Mentoring

Novorapidboi, I think you ARE a fab mentor! You have been really helpfull and you seem very open and always have sound advise.

Bravo!

Real shame there isn't enough funding or trained people to offer more people the DAFNE courses. I really do feel privileged to have had a place!

Alan, dont take it personally. You never know what might be going on with the mentoree. Hope it hasn't put you off!

Laughing

Mar 31, 2011

nomis 6 posts

Topic: General Discussion / Ideas

Hi Neil

Its all a numbers game as I am sure you are aware. For instance look at your actual results and then say to yourself what if I had injected x instead of y to get me into dafne targets and in theory it should be that simple and I no it never is.

In summary dafne targets have to be hit and use your historic results as an aid and you rid yourself of peak highs by increasing QA all else being equal.

Eventually you will be fed up with stable BG's around the 5 mark and not looking like daily temperature readouts Laughing

not that mine are.

all the best

Mar 31, 2011

novorapidboi26 1,816 posts

Topic: Questions for HCPs / Cant stop BG Levels going up

My understanding of resistance with regards to hormones, is that the main hormone responsible for this is the alpha cell secretion - Glucagon. This has the opposite effect against insulin and also contributes to the livers dump of glucose into the blood stream.

However when stressed glucagon may only be released in small amounts and with the help of other hormones released at this time, insulin effectiveness could be knocked out from normal behavior. Thats my basic understanding/theory of it anyway......... Smile

Mar 31, 2011

DFH_17 22 posts

Topic: Questions for HCPs / Cant stop BG Levels going up

Sorry - in 2nd paragraph meant to say I wasnt being treated very well by some colleagues.

Mar 31, 2011

DFH_17 22 posts

Topic: Questions for HCPs / Cant stop BG Levels going up

Hi both,

novorapidboi - is interesting that you've said that stress leads to insulin resistance - it does feel as though my insulin isnt working v well so thats a good point. Have lots of stomach pains and last year had to go into hospital due to kidney stones due to covering 2 roles for over 6 mths.

Chris - my situation is slightly different in the fact that people I care about in the company are being potentially booted out of their jobs and not being treated well plus I had a situation all last week where I was being treated well by a few staff members - my boss intervened and sorted the situation out but am still stressed as I sit with these people! Plus 1 of my pals who has been a great support is leaving tomorrow so more upset. My BG's have calmed a bit but will need to hoik (sp) my BI again tonight as I'm still not quite there yet.
Thank you

Mar 31, 2011

novorapidboi26 1,816 posts

Topic: General Discussion / Mentoring

I dont think many would be up to the challenge, so its how to select people........ Question

Mar 31, 2011

Edentherapies 8 posts

Topic: General Discussion / dafne app/carb calculator for Blackberry phones

oh yes my mum has saved me a few times in the house!!! I have just got myself some pocket scales for out and about lol!

Should be all set now really Razz

Mar 31, 2011

Alan 49 280 posts

Topic: General Discussion / Mentoring

I think it was the idea of the DSN at my GP surgery and was tried experimentally. I don't know whether they are going to pursue it.

Mar 31, 2011

novorapidboi26 1,816 posts

Topic: Questions for HCPs / Cant stop BG Levels going up

Sounds like a plan to me........ Idea

.......fortunately in my life I haven't had to many stressful times so haven't really noticed an obvious effect but if definitely effects your BGs, or more precisely your resistance to insulin as a result of the abnormal levels of hormones swimming about when we are stressed out...........

Mar 31, 2011

novorapidboi26 1,816 posts

Topic: General Discussion / dafne app/carb calculator for Blackberry phones

It always be a struggle when out and about...... Twisted Evil

But when in the home, a set of scales and/or a good woman is all you need.......... Wink

Mar 31, 2011

chrisg9 7 posts

Topic: Questions for HCPs / Cant stop BG Levels going up

Hi,
I kicked off this thread and interesting to see from yours that you mention stress. I know that sometimes this can be something of a "catch-all" to explain high BGs, so my observations here are purely regarding my own experience. During the DAFNE week, I mentioned that stress, being roller-coaster in nature, tended to lead both to consistently high BGs and, because of how it impacts the "working day", a likely drift from the DAFNE regime. I usually go from meeting to meeting and as currently the company is being acquired, its even worse; futures (along with eating and injections) are uncertain. As much as I try to stand back from all of this and calmly observe from a distance (i.e what will be, will be), it is simply not possible and BGs inevitably suffer - despite adjustments/corrections etc. My approach has been to try to introduce some non-work related activities (I may be having more of this than planned if the work situation goes belly-up) somewhere into the week to address the stress because if that's not under control (both biochemically and psychologically) the BGs wont ever be. Sorry, not very scientific I know... perhaps just more of a shared experience.
I hope it works out for you
Chris

Mar 30, 2011

Edentherapies 8 posts

Topic: General Discussion / dafne app/carb calculator for Blackberry phones

Aye, it's just being able to regonise the cps in portions! i'll get there Laughing

Mar 30, 2011

daviebear 19 posts

Topic: General Discussion / Ideas

Hi Neil,Hope you're doing ok.It looks to me that like me you have that old chestnut the dawn phenomenon.Which is a bugger.You could maybe try increasing the nightime BI to see if that helps.And again maybe the morning QA.This is what I had to do last week and it worked for me.I know that like me you want to sort everything out at once,and I know how much of pain it is that you have to wait 2 days to see if changes are working.I upped my monring ratio 2:1,2.5:1 then3:1,with good affect,it does seem safer( and I would have disagreed if anyone said this to me last week)to change backgrounds first though.Contact Margaret as well as she was great at keeping me right with my probs last week.How are your injection sites doing as I remember they were casuing you a lot of trouble as well.One last point(I know I drone on).Are thes Bg's at work or at home as my BI has to change quite a bit it would seem depending on wether i'm at work or on days off.Let me know how you get on . Smile

Apr 2, 2011 tweety 13 posts	Topic: General Discussion / What The Hell Happened Today. hi davie, what had your results been b4 you reduced your bi frm 22 to 20? if i had the results you've shared i would prob reduce the am bi again. i had a similar situation in work a few months back and had to stay for a couple of hours after work till my bg went up so i understand your frustration, but remember dont do loads of changes at once. hope this helps, good luck.

Apr 2, 2011 nomis 6 posts	Topic: General Discussion / What The Hell Happened Today. Very interesting results I would say the 3.1 ratio is fine to get you right for mid day it would seem then a 1.1 but it makes me think from what I have picked up recently when going on the dafen regime should you start Lantus dose from scratch with one injection per day ?

Apr 2, 2011 daviebear 19 posts	Topic: General Discussion / What The Hell Happened Today. Forgot to mention.I definately didn't use the wrong kind of insulin,as you can hopfully see by these charts.I use 2 different pens.I remember being told years ago,that I could be releasing insulin from the lumps I have required over the years.Has anyone else heard of this?The results here as as close as i could enter on the online form,but as you can see it was a lot of CP's with no gain in Blood Glucose.

Apr 2, 2011 daviebear 19 posts	Topic: General Discussion / What The Hell Happened Today. Sorry about that .Here are those results now.

Apr 1, 2011 Edentherapies 8 posts	Topic: Site Development / Glossary of Terms Aye, When I was on my DAFNE course I had No idea what either were in reference to! Knew it was regarding the types of insuline but not sure which. Bit embarassed and didn't want to say! So it would be good to know exactly what they refer to as both were mentioned through out the course.

Apr 1, 2011 marke 643 posts	Topic: Site Development / Glossary of Terms Its a good idea, but.... We need to find someone to do it, preferably a HCP rather an Simon or I. This is more to ensure accuracy and get good explinations, we are after all IT people, not a group known for their literary skills ( or their spelling skills )

Apr 1, 2011 marke 643 posts	Topic: General Discussion / Ideas novorapidboi26 said: Wow, the advice of not going above 4 for a correction is news to me, the curriculum of the course is always changing I suppose but I personally would say that is not the best advice, not going over 4 is fine if you blood sugar is not far off target ranges, but 26s are quite uncomfortably high..... Don't worry you are not out of date , I am currently toiling over the conversion of the new handbook to the online version and it states: 'Until you have worked out your own sensitivity to your quick acting insulin , it is recommended that no more than a 4 unit correction is given at one time' The figure 4 is therefore not a hard and fast maximum rather a guide when you are first working out your individual requirements. If you need more then you can give more. They are just urging caution initially.

Apr 1, 2011 marke 643 posts	Topic: General Discussion / Ideas Until you have worked out your own sensitivity to your quick acting insulin , it is recommended that no more than a 4 unit correction is given at one time

Apr 1, 2011 marke 643 posts	Topic: General Discussion / What The Hell Happened Today. Davie, as others have mentioned on other posts, its far easier if you put figures into the online diary and post a setion of that into the formum. Its very hard to give advice based on your free form description of CP's and insulin, especially with no context. I would say its very unlikely one hypo would cause this and given the amount of CP's you pumped into yourself it sounds like you potentailly used the wrong insulin. That could potentially cause what you describe and is one possible explination.

Apr 1, 2011 daviebear 19 posts	Topic: General Discussion / What The Hell Happened Today. I was under the impression that hypo would be easier to treat under the dafne regime.So I am wondering what the hell happened today.1240pm BG 2.3,2Cp's taken along with 8.5 as lunch.16 units of QA taken so as to reduce insulin dose as well.Background dose was 20 at 10am(reduced from 22 yesterday).Blood glucose refused to go up,with a total of 2 380ml bottles of Lucozde and 500ml bottle of coke and 2 packets of crisps taken between 1250 and 1640.Doses of lucozade taken every 10 to 20 mins.Now at 1700 Bg now at 4.4.Is this maybe beacause I hypo'd yesterday and used up my glucagon store.Haven't had a day like this for while,but before I had the excuse of being on massive doses of insulin.Any ideas?

Apr 1, 2011 novorapidboi26 1,816 posts	Topic: General Discussion / Mentoring Your words are kind, thanks........ I dont think I would walk away from the opportunity, would be scary though........

Mar 31, 2011 Edentherapies 8 posts	Topic: General Discussion / Mentoring Novorapidboi, I think you ARE a fab mentor! You have been really helpfull and you seem very open and always have sound advise. Bravo! Real shame there isn't enough funding or trained people to offer more people the DAFNE courses. I really do feel privileged to have had a place! Alan, dont take it personally. You never know what might be going on with the mentoree. Hope it hasn't put you off!

Mar 31, 2011 nomis 6 posts	Topic: General Discussion / Ideas Hi Neil Its all a numbers game as I am sure you are aware. For instance look at your actual results and then say to yourself what if I had injected x instead of y to get me into dafne targets and in theory it should be that simple and I no it never is. In summary dafne targets have to be hit and use your historic results as an aid and you rid yourself of peak highs by increasing QA all else being equal. Eventually you will be fed up with stable BG's around the 5 mark and not looking like daily temperature readouts not that mine are. all the best

Mar 31, 2011 novorapidboi26 1,816 posts	Topic: Questions for HCPs / Cant stop BG Levels going up My understanding of resistance with regards to hormones, is that the main hormone responsible for this is the alpha cell secretion - Glucagon. This has the opposite effect against insulin and also contributes to the livers dump of glucose into the blood stream. However when stressed glucagon may only be released in small amounts and with the help of other hormones released at this time, insulin effectiveness could be knocked out from normal behavior. Thats my basic understanding/theory of it anyway.........

Mar 31, 2011 DFH_17 22 posts	Topic: Questions for HCPs / Cant stop BG Levels going up Sorry - in 2nd paragraph meant to say I wasnt being treated very well by some colleagues.

Mar 31, 2011 DFH_17 22 posts	Topic: Questions for HCPs / Cant stop BG Levels going up Hi both, novorapidboi - is interesting that you've said that stress leads to insulin resistance - it does feel as though my insulin isnt working v well so thats a good point. Have lots of stomach pains and last year had to go into hospital due to kidney stones due to covering 2 roles for over 6 mths. Chris - my situation is slightly different in the fact that people I care about in the company are being potentially booted out of their jobs and not being treated well plus I had a situation all last week where I was being treated well by a few staff members - my boss intervened and sorted the situation out but am still stressed as I sit with these people! Plus 1 of my pals who has been a great support is leaving tomorrow so more upset. My BG's have calmed a bit but will need to hoik (sp) my BI again tonight as I'm still not quite there yet. Thank you

Mar 31, 2011 novorapidboi26 1,816 posts	Topic: General Discussion / Mentoring I dont think many would be up to the challenge, so its how to select people........

Mar 31, 2011 Edentherapies 8 posts	Topic: General Discussion / dafne app/carb calculator for Blackberry phones oh yes my mum has saved me a few times in the house!!! I have just got myself some pocket scales for out and about lol! Should be all set now really

Mar 31, 2011 Alan 49 280 posts	Topic: General Discussion / Mentoring I think it was the idea of the DSN at my GP surgery and was tried experimentally. I don't know whether they are going to pursue it.

Mar 31, 2011 novorapidboi26 1,816 posts	Topic: Questions for HCPs / Cant stop BG Levels going up Sounds like a plan to me........ .......fortunately in my life I haven't had to many stressful times so haven't really noticed an obvious effect but if definitely effects your BGs, or more precisely your resistance to insulin as a result of the abnormal levels of hormones swimming about when we are stressed out...........

Mar 31, 2011 novorapidboi26 1,816 posts	Topic: General Discussion / dafne app/carb calculator for Blackberry phones It always be a struggle when out and about...... But when in the home, a set of scales and/or a good woman is all you need..........

Mar 31, 2011 chrisg9 7 posts	Topic: Questions for HCPs / Cant stop BG Levels going up Hi, I kicked off this thread and interesting to see from yours that you mention stress. I know that sometimes this can be something of a "catch-all" to explain high BGs, so my observations here are purely regarding my own experience. During the DAFNE week, I mentioned that stress, being roller-coaster in nature, tended to lead both to consistently high BGs and, because of how it impacts the "working day", a likely drift from the DAFNE regime. I usually go from meeting to meeting and as currently the company is being acquired, its even worse; futures (along with eating and injections) are uncertain. As much as I try to stand back from all of this and calmly observe from a distance (i.e what will be, will be), it is simply not possible and BGs inevitably suffer - despite adjustments/corrections etc. My approach has been to try to introduce some non-work related activities (I may be having more of this than planned if the work situation goes belly-up) somewhere into the week to address the stress because if that's not under control (both biochemically and psychologically) the BGs wont ever be. Sorry, not very scientific I know... perhaps just more of a shared experience. I hope it works out for you Chris

Mar 30, 2011 Edentherapies 8 posts	Topic: General Discussion / dafne app/carb calculator for Blackberry phones Aye, it's just being able to regonise the cps in portions! i'll get there

Mar 30, 2011 daviebear 19 posts	Topic: General Discussion / Ideas Hi Neil,Hope you're doing ok.It looks to me that like me you have that old chestnut the dawn phenomenon.Which is a bugger.You could maybe try increasing the nightime BI to see if that helps.And again maybe the morning QA.This is what I had to do last week and it worked for me.I know that like me you want to sort everything out at once,and I know how much of pain it is that you have to wait 2 days to see if changes are working.I upped my monring ratio 2:1,2.5:1 then3:1,with good affect,it does seem safer( and I would have disagreed if anyone said this to me last week)to change backgrounds first though.Contact Margaret as well as she was great at keeping me right with my probs last week.How are your injection sites doing as I remember they were casuing you a lot of trouble as well.One last point(I know I drone on).Are thes Bg's at work or at home as my BI has to change quite a bit it would seem depending on wether i'm at work or on days off.Let me know how you get on .