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Apr 6, 2011
JayBee 587 posts

Topic: Site Development / Glossary of Terms

I like the idea. Smile Shame, I can't find a 'diabetic slang' list I saw some time late last year - I'll post the link if I ever remember where I saw it online! Some were very strange!

See the first few threads of the General Discussion section to see some stick threads in action. ;P
 
Apr 6, 2011
JayBee 587 posts

Topic: General Discussion / sick day rules

Keep in mind also about how you're testing for ketones. If it's by ketostix (urine testing) then you're seeing delayed results that may not be reflecting your present time blood ketones (eg, ++ on your urine, but negative in your blood). The reason I'm pointing this out is because of ketones appearing still despite getting your sugar levels down.

If you are concerned about the urine testing (if you are), I recommend asking for an Optium Xceed blood testing machine that provides the option of testing for ketones in your blood instead, resulting in getting closer "present time" results. After some funny spells with ketones that I had, my DAFNE nurse suggested that I start using that blood testing machine instead and it has stopped me having some needless hypos due to applying sick day rule because my urine results were "out of date".

Get well soon!
 
Apr 6, 2011
tweety 13 posts

Topic: General Discussion / sick day rules

thankyou novorapidboi my last ketone test was down to between + and ++ so here's hoping, i cant believe how quickly this has worked. been feelin lots better since BG started coming down, Smile
 
Apr 6, 2011
novorapidboi26 1,819 posts

Topic: Site Development / Glossary of Terms

the sticky thread always stays at the top of the message board and is usually locked from posting by the staff, and can be edited only by staff.............
 
Apr 6, 2011
Alan 49 284 posts

Topic: Site Development / Glossary of Terms

I think you're just the man for the job, Novorapidboi. The trouble is, we to be that we seem to be the only ones in favour of it - apart from Mark who also warned of the amount of work involved in it.

Perhaps you could start with 'sticky thread' - what does that mean?
 
Apr 6, 2011
novorapidboi26 1,819 posts

Topic: General Discussion / sick day rules

Keep drinking lots of water, and eat if you can, giving your body fuel to use rather than its stores of fat should also bring them down, I think you just add your normal carb ratios on top of your ketone dosing......

Personally if nothing was happening to your ++ reading I would up the dose to 15% as you may be on the verge of +++, and everyone responds differently at different times of the day.........but that's only my opinion, dont do it if your not comfortable of 100% sure/prepared. Laughing
 
Apr 6, 2011
tweety 13 posts

Topic: General Discussion / sick day rules

well guys so far so good, BG is dwn to 8 but ketones are still at ++ aaargh. im still taking the every 2 hr check and insulin not sure what to do about the ketones, thinkin i'll just drink plenty and they'll flush themselves out? what do ya think?
 
Apr 6, 2011
novorapidboi26 1,819 posts

Topic: Site Development / Glossary of Terms

I can start compiling one now if you want and get back to the staff with it, it can then be posted as a sticky thread......
 
Apr 6, 2011
novorapidboi26 1,819 posts

Topic: General Discussion / sick day rules

It worked for me too when I had the FLU for the first time just before Christmas, the fact that I was not eating was even more critical as my body had no fuel, so ketones were inevitable, it was just a matter of controlling them, in fact, my blood glucose readings were at reasonable levels, but the ketones were not.........

I hope you feel better soon.......... Wink
 
Apr 5, 2011
daviebear 19 posts

Topic: General Discussion / sick day rules

No worries.Yeah include your background insulin as well.I know it seems like a lot of insulin but if you have ketones as well then it seems to help clear them as well.Of course if your sugar comes down and ketones become negative then you just revert back to 4 hourly testing.I was sceptical too,but as i say,it worked for me.Good Luck now.
 
Apr 5, 2011
tweety 13 posts

Topic: General Discussion / sick day rules

hi davie thank you didnt even see that on website. so am i right in thinkin to get your TDD you have to take your BI into account too? all sounds so complicated, but couldnt make me feel any worse than i do with my BG sittin at 15 all day, again thankyou x
 
Apr 5, 2011
daviebear 19 posts

Topic: General Discussion / sick day rules

Hi tweety.The rules are available on the site.Click the Dafne Course Handbook on the left hand side.Then click on the menu at "Coping When You Are Ill".This really does work.I had to use it 2 weeks ago,and it brought the BG's down.You shouldn't hypo as you are doing 2 hourly glucose checks so you will notice any drop.For instance if you took 100 units of ALL insulins yesterday then you would inject 10 units of QA every 2 hours(assuming you have positive ketones.Good luck.
 
Apr 5, 2011
tweety 13 posts

Topic: General Discussion / sick day rules

Please help, i finished the dafne course almost 2 years ago and have never needed the sick day rules, now i need them i cant find them, i know its got something to do with taking the 10% of your total daily QA but as im not really sure what im doin i dont want to run the risk of hypo's. HELP Please x
 
Apr 5, 2011
Alan 49 284 posts

Topic: Site Development / Glossary of Terms

Thanks for all the explanations - of course we all know CP, QA, BG and BI etc, but I didn't know what MDI and CSII meant (thanks Carolin). I was thinking more of a central repository where any diabetes-related terms or abbreviations could be accessed to get explanations. If you Google 'MDI' you get a multitude of results - including Merseyside Dance Institute (!) so that's not much help.

As Mark pointed out, a Glossary of Terms would take someone a lot of effort to compile - so it couldn't be done quickly. Nevertheless I think it would be a useful addition to the dafneonline website.

 
Apr 5, 2011
novorapidboi26 1,819 posts

Topic: General Discussion / POST HYPO HIGHS

It looks like you are very sensitive to insulin only being on 2 units at night, this in turn means your liver is also very sensitive to hormone changes and by the looks of it alcohol. I also tried lowering my BI on nights when I was drinking but I realized that my liver response to the alcohol didn't effect its glucose release until the next day, roughly mid morning.

If you do have alcohol its all about trial and error and seeing how much your liver is effected by it and more importantly how long. The effect could last well into the next day and if your splitting your BI dose a further reduction may be required.

With regards to your calories, would that mean your carb intake is lower those days too, I think the carbohydrate intake is the most critical value with regards to blood sugar as this is what is used as fuel [glucose]. Being prone to hypos the next day after a lower intake of carbs/calories is a mystery to me though. If insulin/carb ratios are sussed then these should do the job, most of the time... Rolling Eyes.......which would leave your BI, which is low anyway and it seems your liver is very sensitive as well, this may be the problem in terms of the lows you re experiencing, the highs, they are probably as a result of the lows, a delayed liver reaction maybe...

I think your diabetes may be a bit brittle and your liver has a mind of its own..........can I ask what does of BI your on and insulin type, what are your insulin/carb ratios like.......?
 
Apr 5, 2011
novorapidboi26 1,819 posts

Topic: General Discussion / Children are our future

I think supporting this cause is very important and I will be inquiring to see if I can help out whether it be only a small contribution.
 
Apr 5, 2011
marke 684 posts

Topic: General Discussion / Children are our future

I have just posted a news item here , which I would like to draw your attention too.
I'm also happy to discuss it in this thread and would be interested to here peoples views.
 
Apr 4, 2011
emmahope 17 posts

Topic: General Discussion / POST HYPO HIGHS

Hi novorapidboi26.I've come to think when I have a glass of wine with dinner (say twice a month-and it is only one glass) It seems I need to reduce my night time BI from 2 down to one unit. The other thing is if my calories are less one day, the next day I may be more prone to a hypo, in that my normal BI seems to become too much but not sure this explains the sky rocketing later in the day (and maybe into the next day too)...
 
Apr 4, 2011
Carolin 83 posts

Topic: Site Development / Glossary of Terms

As Novorapidboi said, anyone who has attended a 5-day DAFNE course should have gained familiarity with the basic terminology by the end of the week, however the handbook/workbook is there as a refresher as required.

The handbook does list the most common QAs and BIs in use in the UK if you're still unsure which is which Smile
 
Apr 4, 2011
Alan 49 284 posts

Topic: Site Development / Glossary of Terms

So, no need for a Glossary of Terms, then?
 
Apr 4, 2011
Carolin 83 posts

Topic: Site Development / Glossary of Terms

Hi

The terms we use in DAFNE and throughout all the resources, workbook, diaries, etc are:

Quick Acting (QA) to refer to meal-related insulin, which covers CPs and 'corrects' high BGs
Background Insulin (BI) to refer to the long-acting insulin, taken once or more effectively twice each day

With multiple dose insulin (MDI) therapy these are 2 completely different insulins.

In continuous subcutaneous insulin infusion (CSII) pump therapy, there is only one type of insulin taken as it is all delivered from the pump as a continuous 'Basal' infusion (i.e. replacing BI), with additional 'Boluses' taken with CPs.

Is this any help?

Carolin
 
Apr 4, 2011
novorapidboi26 1,819 posts

Topic: General Discussion / POST HYPO HIGHS

Have the hypos got any pattern, often hypos can breed more hypos................
 
Apr 3, 2011
emmahope 17 posts

Topic: General Discussion / POST HYPO HIGHS

It's rare for me that the day after a hypo I don't struggle to get my blood sugars at a reasonable level after they've shot up -well into the twenties sometimes.
I have at least two hypos per week and maybe 4. This happens even when I've had 1.5cp,fast acting to treat the hypo-ie not from over treating a hypo. Maybe the treatment I often use is problematic (not speedy enough?) I use 4 M&S jelly babies. I think my hormones are over reactive and my liver goes into overdrive... I get hypo unawareness sometimes so maybe I'm in hypo too long before I treat it??? My diabetes has always been brittle.
Any ideas or experiences out there that could be helpful? Thanks,Emma
 
Apr 3, 2011
JayBee 587 posts

Topic: General Discussion / Norwich DAFNE Evening Meet!

Hello all! (I will update this first post as and when changes to details occur! ;))

Emily2556 and I have been discussing the possibility of running a DAFNE meet and we've come to this conclusion so far:

Place: Norwich Riverside Wetherspoons: Queen of the Iceni - very close to parking and the train station!
Time: 7pm - 7.30pm; anyone is welcome to turn up earlier if want.
Date / Day: (Our individual options so far) Mon, Tues, Wednesday (both of us, possibly)... and Saturday or Sunday (just me). The date itself is undecided however we are looking at later on this month, 10th April at the earliest.

If you are interested in coming along, how well do these arrangements suit you? Partners can come along too - I'm sure they'll have much to discuss as well! Very Happy
Has anyone got a good suggestion on how to identify each other? Walk around with our DAFNE guidebooks out perhaps? ;)