Recent Posts - DAFNE Online

Aug 22, 2018

fred67 4 posts

Topic: Questions for HCPs / freestyle libra

Announced last year everyone to get on prescription, if you meet criteria, here Glasgow, I meet criteria, mostly, no hypo awareness, and that I do more than 6 blood tests each day...it is pretty much a postcode lottery at the moment, although more areas seem to be giving them on prescription, many are 3 months trial though,,,join freestylelibreuk on Facebook, lots more info there...I get mine 10th September, around 2 months waiting..

Aug 17, 2018

Gander 7 posts

Topic: Questions for HCPs / Splitting the bolus for fatty foods

Never heard of Fiasp but it sounds as if it is the thing of the future if what NOVO says is right!

On advice from my clinic I have started taking Novorapid ten to fifteen minutes before a meal provided I am not low-ish and that has lessened the likelihood of a carb surge considerably. Lots of brownie points! :-)

Aug 17, 2018

Anibee 4 posts

Topic: Questions for HCPs / Splitting the bolus for fatty foods

Is anyone on Fiasp & tried this? In theory it should work abit quicker with the quicker released carbs at the start of your meal & has a slightly longer profile than Novorapid, Humalog Lispro or Apidra - which is probably why the Humalog NPH works better too. It might be an idea to suggest a new section in the updated Handbook. The croissant with added nut spread or nut/chocolate spread or cream cheese may be less likely to have as big a rise if it is with jam - but that's if you don't mind having a replacement for your jam! Laughing

Aug 17, 2018

Anibee 4 posts

Topic: General Discussion / Apple Cider Vinegar

Hi there, Don't forget to get it with the 'mother' part or it will be just a seasoning for your high carb chips!! Tried it myself as a tonic but think I overdid the amount of ACV the first time! - so as Lucy suggests start with 5ml in 250ml water & see what you think Smile

Aug 16, 2018

Warwick 423 posts

Topic: General Discussion / Dexcom G6

Hi Simon, I use the G4 and love it. The G5 and G6 would work out much more expensive for me as they have hard-coded limits on the transmitter (3 months). I can get a year out of a G4 transmitter, and the sensors can last for up to 6 weeks on my body although it produces sensible readings usually only for 3-4 weeks.

If the Dexcom G4 stops being supported, then I'll probably come off CGM entirely as I use it for the alerts so Freestyle Libre wouldn't give me what I want, but the G5 and G6 too expensive for me.

Aug 16, 2018

Warwick 423 posts

Topic: General Discussion / Dawn phenomenon

Personally I don't experience DP in daily life but as soon as I go on holiday I wake up with extremely high BGLs. I suspect it is because I don't exercise much on holiday whereas in my usual daily life I am a cycle commuter, regularly run and play basketball once a week.

Weirdly, I actually find I am most sensitive to insulin in the mornings and need to have a lower insulin:carb ratio then than for the rest of the day. My DAFNE educator during the course didn't understand that and asked me to inject the same ratio as for other meals. I spent 75 minutes on day 2 of the course swallowing high-carb products in an attempt to get out of hypoland and after that we all agreed to keep me on a low dose of insulin in the mornings Idea

Aug 14, 2018

marke 681 posts

Topic: General Discussion / Dawn phenomenon

One suggestion i would have, that's not easy, is to try to get referred for a pump. I had very similar issues and diagnosed it as suggested with a freestyle libre. I took the reports it produced to my consultant who agreed it was DP and referred me for a pump. Since I have been in the pump it's all but disappeared. One of the reasons for this is the slow drop feed of insulin that absorbs more evenly and makes life a lot easier in all respects not just DP. I would still raise it with your consultant even without the freestyle if you don't have one, they should recognise the issue and recommend a pump.

Aug 12, 2018

Mike_p 4 posts

Topic: General Discussion / Apple Cider Vinegar

Hi Lucy/Pippa, did you come to any conclusion on the use of ACV? I have just stumbled across this via you tube, where there are loads of videos about using it, some recommending and some nonsensing it, so I am going have a go to see if it makes much of a difference to me?! Thanks!

Aug 12, 2018

SimonC 78 posts

Topic: General Discussion / Dexcom G6

Any users of any of the Dexcom CGM tools, esp the G5 here, and if at all possible any switched to the G6.

I have been using the Libre sensor for quite a long time now, and I love it, but the fact that it is flash rather than CGM is a bit of a downer - the ability to get alerts when you are going high or low sounds attractive and I wondered if anyone here has any experience good or bad.

I would have to go self funded, and that is a pain, I do love the NHS, but my Dr is so limited in her support for modern tech, and no doubt focused on her costs.

Aug 12, 2018

SimonC 78 posts

Topic: General Discussion / Libre patch

I have worn mine in a sauna and a steam room, no issues.

Aug 10, 2018

novorapidboi26 1,819 posts

Topic: General Discussion / Libre patch

I think the spec sheet would suggest it can......although I think it would have to be a trial and error test to really see what effect it has....

Aug 5, 2018

Gander 7 posts

Topic: Questions for HCPs / Splitting the bolus for fatty foods

I am not surprised! Shocked

One croissant is quite enough for me for breakfast normally, although you do get some very small ones occasionally! The jam must have put you well into the 100 CHO range. They are very moreish though... Wink

Aug 5, 2018

kajobren 4 posts

Topic: Questions for HCPs / Splitting the bolus for fatty foods

I have only just started using the libre sensor.I did the DAFNE course 14 years ago and have found it great with my h b 1 being good ever since,but I was having low blood sugars at times from over estimating c.ps,however Saturday morning I had two croissants for breakfast which I rarely eat,but was horrified to see my b.g go up to 15.7 I couldn’t resist taking some more quick acting humalogue which then resulted in a hypo.I feel the fat was probably the cause,I admit I also had jam on them ,very interested about the idea of splitting bolts and wondered how this is now working for people as the posted regarding this are awhile ago.

Aug 5, 2018

Johno63 2 posts

Topic: General Discussion / Libre patch

Dose any one know if you can wear the patch in a sauna Question

Aug 3, 2018

RJIH 3 posts

Topic: Questions for HCPs / What am I?

Daveyg said:
I was diagnosed with Type 2 Diabetes back in May this year. As time went by and numerous visits to Diabetic clinics. I was told I was no longer a Type 2 but a Type 1 Diabetic. I was originally booked on a DESMOND course, but that has now been cancelled and they have told me about DAFNE. So far I have had no information, regarding carbs or diet. I am still taking tablets for my diabetes, but the specialist says I will soon be taking insulin. I have noticed that DAFNE only speaks about insulin doses. I am very confused at the moment. Especially when one specialist says that I have LADA, not a Type 1 or 2 but type 1.5 which I have never heard of.
Can anyone help/advise
Thank you

Davey

I think this is not uncommon as they get to understand dm better. On my dafne course ( absolutely brilliant) there were 3 of 10 of us with late onset type one or type 2 converts. So don't worry. You should get some basic carb info meanwhile diabetes.uk is good source of info. There's a lot of us who don't fit the box with reduced insulin rather than none. It does not seem to matter what you are called as long as you get a management plan . Dafne lets YOU take control.

Jul 31, 2018

novorapidboi26 1,819 posts

Topic: Questions for HCPs / What am I?

It makes me sad to hear of people being messed about like this.......

if your blood sugar levels indicate you need the help of insulin then DAFNE will be very helpful.....it will set in the basics that will allow you to make dose adjustments from the patterns you see.....makes you self sufficient, which is very important for a diabetic....

if you are type 1.5 then you are essentially a type 1, but its just coming on very slowly.......so you could have decent insulin production for a good while yet.....which unfortunately makes it a tad difficult to get the doses all set up, but its manageable.....

if you can get a blood glucose meter and get testing and record your results, as well as the carbs you eat, that will be a very good start...

Jul 31, 2018

novorapidboi26 1,819 posts

Topic: General Discussion / Dawn phenomenon

Did you correct the 16.7?

If you are rising up without any food and your BG at 3am is close to what it was before bed, then the dawn phenomenon is present....

Things that I tried with varying success were taking the evening BI dose immediately before bed, allowing there to be a stronger dose in my system by the time the DP started. Also getting food in and digesting as quickly as possible helped stop the continuous rise throughout the morning....

what you cant do is stop the DP though....it happens in everybody, its just its more severe in some......

reduce your carb intake should also help reduce the severity of the rise....

Jul 31, 2018

Stubedo 3 posts

Topic: General Discussion / DAFNE plus

Hi,
I've just returned to the area where I completed the DAFNE programme and I'm interested to know how far things have progressed with the roll-out of a proposed DAFNE plus programme.

I'd be grateful for any intel from anyone.

Thanks.

Jul 31, 2018

HelenP 218 posts

Topic: Questions for HCPs / What am I?

Hi Davey,

I am not an HCP but I have had all the diagnoses you have...and gestational diabetes! I was initially diagnosed "gestational" in 1974, very quickly (6 months after baby delivered) went to Type 2, then shortly after a coma and Type 1 and then back to Type 1.5, LADA!

Basically I do not care what they call it as long as the treatment deals with the blood sugar levels. We have settled on Type 1 because the only medication I take is insulin but in relatively high doses so insulin sensitivity is also an issue.

DAFNE will answer a lot of questions but basically it is a very individual condition and thus in some part, the issue over terminology. Trust it all gets sorted but you will come to realise there are no absolute answers...they vary. Helen

Jul 30, 2018

Daveyg 1 post

Topic: Questions for HCPs / What am I?

I was diagnosed with Type 2 Diabetes back in May this year. As time went by and numerous visits to Diabetic clinics. I was told I was no longer a Type 2 but a Type 1 Diabetic. I was originally booked on a DESMOND course, but that has now been cancelled and they have told me about DAFNE. So far I have had no information, regarding carbs or diet. I am still taking tablets for my diabetes, but the specialist says I will soon be taking insulin. I have noticed that DAFNE only speaks about insulin doses. I am very confused at the moment. Especially when one specialist says that I have LADA, not a Type 1 or 2 but type 1.5 which I have never heard of.
Can anyone help/advise
Thank you

Davey

Jul 29, 2018

RJIH 3 posts

Topic: General Discussion / Dawn phenomenon

I found the abbott freestyle libre invaluable in understanding my readings which go up from about 0600 and trough at about 0100. Giving BI later the night before or increasing BI has no effect for me just made me more likely to hypo overnight. I just give 1.5 units when I wake to correct for dawn and do BI calculations based on my pre 0600 - even if I have not woken to test I just take from meter record.

Jul 28, 2018

Amylouise Mc... 1 post

Topic: General Discussion / Dawn phenomenon

Hello, I’ve just finished my DAFNE course and over the week I’ve upped my BI in the evening to a total of 40% because of the patterns. I have just done a 3am and 5am test as I was dubious that I had the dawn phenomenon. My blood was high before bed at 16.7 stayed stable at 3am however has risen to 22 at 5am?

Is there any thing other diabetics have done to counteract dawn phenomenon?, if so what works?

Amylouise x

Aug 22, 2018 fred67 4 posts	Topic: Questions for HCPs / freestyle libra Announced last year everyone to get on prescription, if you meet criteria, here Glasgow, I meet criteria, mostly, no hypo awareness, and that I do more than 6 blood tests each day...it is pretty much a postcode lottery at the moment, although more areas seem to be giving them on prescription, many are 3 months trial though,,,join freestylelibreuk on Facebook, lots more info there...I get mine 10th September, around 2 months waiting..

Aug 17, 2018 Gander 7 posts	Topic: Questions for HCPs / Splitting the bolus for fatty foods Never heard of Fiasp but it sounds as if it is the thing of the future if what NOVO says is right! On advice from my clinic I have started taking Novorapid ten to fifteen minutes before a meal provided I am not low-ish and that has lessened the likelihood of a carb surge considerably. Lots of brownie points! :-)

Aug 17, 2018 Anibee 4 posts	Topic: Questions for HCPs / Splitting the bolus for fatty foods Is anyone on Fiasp & tried this? In theory it should work abit quicker with the quicker released carbs at the start of your meal & has a slightly longer profile than Novorapid, Humalog Lispro or Apidra - which is probably why the Humalog NPH works better too. It might be an idea to suggest a new section in the updated Handbook. The croissant with added nut spread or nut/chocolate spread or cream cheese may be less likely to have as big a rise if it is with jam - but that's if you don't mind having a replacement for your jam!

Aug 17, 2018 Anibee 4 posts	Topic: General Discussion / Apple Cider Vinegar Hi there, Don't forget to get it with the 'mother' part or it will be just a seasoning for your high carb chips!! Tried it myself as a tonic but think I overdid the amount of ACV the first time! - so as Lucy suggests start with 5ml in 250ml water & see what you think

Aug 16, 2018 Warwick 423 posts	Topic: General Discussion / Dexcom G6 Hi Simon, I use the G4 and love it. The G5 and G6 would work out much more expensive for me as they have hard-coded limits on the transmitter (3 months). I can get a year out of a G4 transmitter, and the sensors can last for up to 6 weeks on my body although it produces sensible readings usually only for 3-4 weeks. If the Dexcom G4 stops being supported, then I'll probably come off CGM entirely as I use it for the alerts so Freestyle Libre wouldn't give me what I want, but the G5 and G6 too expensive for me.

Aug 16, 2018 Warwick 423 posts	Topic: General Discussion / Dawn phenomenon Personally I don't experience DP in daily life but as soon as I go on holiday I wake up with extremely high BGLs. I suspect it is because I don't exercise much on holiday whereas in my usual daily life I am a cycle commuter, regularly run and play basketball once a week. Weirdly, I actually find I am most sensitive to insulin in the mornings and need to have a lower insulin:carb ratio then than for the rest of the day. My DAFNE educator during the course didn't understand that and asked me to inject the same ratio as for other meals. I spent 75 minutes on day 2 of the course swallowing high-carb products in an attempt to get out of hypoland and after that we all agreed to keep me on a low dose of insulin in the mornings

Aug 14, 2018 marke 681 posts	Topic: General Discussion / Dawn phenomenon One suggestion i would have, that's not easy, is to try to get referred for a pump. I had very similar issues and diagnosed it as suggested with a freestyle libre. I took the reports it produced to my consultant who agreed it was DP and referred me for a pump. Since I have been in the pump it's all but disappeared. One of the reasons for this is the slow drop feed of insulin that absorbs more evenly and makes life a lot easier in all respects not just DP. I would still raise it with your consultant even without the freestyle if you don't have one, they should recognise the issue and recommend a pump.

Aug 12, 2018 Mike_p 4 posts	Topic: General Discussion / Apple Cider Vinegar Hi Lucy/Pippa, did you come to any conclusion on the use of ACV? I have just stumbled across this via you tube, where there are loads of videos about using it, some recommending and some nonsensing it, so I am going have a go to see if it makes much of a difference to me?! Thanks!

Aug 12, 2018 SimonC 78 posts	Topic: General Discussion / Dexcom G6 Any users of any of the Dexcom CGM tools, esp the G5 here, and if at all possible any switched to the G6. I have been using the Libre sensor for quite a long time now, and I love it, but the fact that it is flash rather than CGM is a bit of a downer - the ability to get alerts when you are going high or low sounds attractive and I wondered if anyone here has any experience good or bad. I would have to go self funded, and that is a pain, I do love the NHS, but my Dr is so limited in her support for modern tech, and no doubt focused on her costs.

Aug 12, 2018 SimonC 78 posts	Topic: General Discussion / Libre patch I have worn mine in a sauna and a steam room, no issues.

Aug 10, 2018 novorapidboi26 1,819 posts	Topic: General Discussion / Libre patch I think the spec sheet would suggest it can......although I think it would have to be a trial and error test to really see what effect it has....

Aug 5, 2018 Gander 7 posts	Topic: Questions for HCPs / Splitting the bolus for fatty foods I am not surprised! One croissant is quite enough for me for breakfast normally, although you do get some very small ones occasionally! The jam must have put you well into the 100 CHO range. They are very moreish though...

Aug 5, 2018 kajobren 4 posts	Topic: Questions for HCPs / Splitting the bolus for fatty foods I have only just started using the libre sensor.I did the DAFNE course 14 years ago and have found it great with my h b 1 being good ever since,but I was having low blood sugars at times from over estimating c.ps,however Saturday morning I had two croissants for breakfast which I rarely eat,but was horrified to see my b.g go up to 15.7 I couldn’t resist taking some more quick acting humalogue which then resulted in a hypo.I feel the fat was probably the cause,I admit I also had jam on them ,very interested about the idea of splitting bolts and wondered how this is now working for people as the posted regarding this are awhile ago.

Aug 5, 2018 Johno63 2 posts	Topic: General Discussion / Libre patch Dose any one know if you can wear the patch in a sauna

Aug 3, 2018 RJIH 3 posts	Topic: Questions for HCPs / What am I? Daveyg said: I was diagnosed with Type 2 Diabetes back in May this year. As time went by and numerous visits to Diabetic clinics. I was told I was no longer a Type 2 but a Type 1 Diabetic. I was originally booked on a DESMOND course, but that has now been cancelled and they have told me about DAFNE. So far I have had no information, regarding carbs or diet. I am still taking tablets for my diabetes, but the specialist says I will soon be taking insulin. I have noticed that DAFNE only speaks about insulin doses. I am very confused at the moment. Especially when one specialist says that I have LADA, not a Type 1 or 2 but type 1.5 which I have never heard of. Can anyone help/advise Thank you Davey I think this is not uncommon as they get to understand dm better. On my dafne course ( absolutely brilliant) there were 3 of 10 of us with late onset type one or type 2 converts. So don't worry. You should get some basic carb info meanwhile diabetes.uk is good source of info. There's a lot of us who don't fit the box with reduced insulin rather than none. It does not seem to matter what you are called as long as you get a management plan . Dafne lets YOU take control.

Jul 31, 2018 novorapidboi26 1,819 posts	Topic: Questions for HCPs / What am I? It makes me sad to hear of people being messed about like this....... if your blood sugar levels indicate you need the help of insulin then DAFNE will be very helpful.....it will set in the basics that will allow you to make dose adjustments from the patterns you see.....makes you self sufficient, which is very important for a diabetic.... if you are type 1.5 then you are essentially a type 1, but its just coming on very slowly.......so you could have decent insulin production for a good while yet.....which unfortunately makes it a tad difficult to get the doses all set up, but its manageable..... if you can get a blood glucose meter and get testing and record your results, as well as the carbs you eat, that will be a very good start...

Jul 31, 2018 novorapidboi26 1,819 posts	Topic: General Discussion / Dawn phenomenon Did you correct the 16.7? If you are rising up without any food and your BG at 3am is close to what it was before bed, then the dawn phenomenon is present.... Things that I tried with varying success were taking the evening BI dose immediately before bed, allowing there to be a stronger dose in my system by the time the DP started. Also getting food in and digesting as quickly as possible helped stop the continuous rise throughout the morning.... what you cant do is stop the DP though....it happens in everybody, its just its more severe in some...... reduce your carb intake should also help reduce the severity of the rise....

Jul 31, 2018 Stubedo 3 posts	Topic: General Discussion / DAFNE plus Hi, I've just returned to the area where I completed the DAFNE programme and I'm interested to know how far things have progressed with the roll-out of a proposed DAFNE plus programme. I'd be grateful for any intel from anyone. Thanks.

Jul 31, 2018 HelenP 218 posts	Topic: Questions for HCPs / What am I? Hi Davey, I am not an HCP but I have had all the diagnoses you have...and gestational diabetes! I was initially diagnosed "gestational" in 1974, very quickly (6 months after baby delivered) went to Type 2, then shortly after a coma and Type 1 and then back to Type 1.5, LADA! Basically I do not care what they call it as long as the treatment deals with the blood sugar levels. We have settled on Type 1 because the only medication I take is insulin but in relatively high doses so insulin sensitivity is also an issue. DAFNE will answer a lot of questions but basically it is a very individual condition and thus in some part, the issue over terminology. Trust it all gets sorted but you will come to realise there are no absolute answers...they vary. Helen

Jul 30, 2018 Daveyg 1 post	Topic: Questions for HCPs / What am I? I was diagnosed with Type 2 Diabetes back in May this year. As time went by and numerous visits to Diabetic clinics. I was told I was no longer a Type 2 but a Type 1 Diabetic. I was originally booked on a DESMOND course, but that has now been cancelled and they have told me about DAFNE. So far I have had no information, regarding carbs or diet. I am still taking tablets for my diabetes, but the specialist says I will soon be taking insulin. I have noticed that DAFNE only speaks about insulin doses. I am very confused at the moment. Especially when one specialist says that I have LADA, not a Type 1 or 2 but type 1.5 which I have never heard of. Can anyone help/advise Thank you Davey

Jul 29, 2018 RJIH 3 posts	Topic: General Discussion / Dawn phenomenon I found the abbott freestyle libre invaluable in understanding my readings which go up from about 0600 and trough at about 0100. Giving BI later the night before or increasing BI has no effect for me just made me more likely to hypo overnight. I just give 1.5 units when I wake to correct for dawn and do BI calculations based on my pre 0600 - even if I have not woken to test I just take from meter record.

Jul 28, 2018 Amylouise Mc... 1 post	Topic: General Discussion / Dawn phenomenon Hello, I’ve just finished my DAFNE course and over the week I’ve upped my BI in the evening to a total of 40% because of the patterns. I have just done a 3am and 5am test as I was dubious that I had the dawn phenomenon. My blood was high before bed at 16.7 stayed stable at 3am however has risen to 22 at 5am? Is there any thing other diabetics have done to counteract dawn phenomenon?, if so what works? Amylouise x