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Jan 14, 2019
sjohno 37 posts

Topic: Carbohydrate Counting / extremely high blood first thing in the morning

Hi Tommo

Have you tested your bloods around the 3amish in the early mornings? It's a pain but you can see if you are dipping into a hypo as suggested by your HCP.

You could also be subject to the Dawn Phenomenon please find below a link that you can read up on.

https://www.diabetes.co.uk/blood-glucose/dawn-phenomenon.html

With your Levemir are you on one dose or a split dose? I too am on one dose of Levemir 13 units daily at 5pm and with me it does last 24 hours BUT I understand from reading other T1 diabetics it doesn't last the full 24hrs so they are on a split dose i.e. morning/night.

Good luck with sorting it all out Smile

Sarah
 
Jan 11, 2019
tommo 7 posts

Topic: Carbohydrate Counting / extremely high blood first thing in the morning

Just recently I have been experiencing blood sugars of 11.0 to 18.3. My HCP has changed the timing of my Levemer from last thing at night to after breakfast as she believes I am hypoing in the middle of the night without knowing it.
Has anybody else experienced this? What is the remedy as at present I am tweeking my Novarapid at meal times to try to reduce the high blood sugars during the day.

I would welcome anyone's thoughts!

 
Jan 7, 2019
Elisavet 2 posts

Topic: DAFNE Online Mobile / Mobile apps, Sensors and medication

Hello everyone!
I am a type 1 diabetic for the past 32 years. After working in different industries I have decided to focus on research and I am currently doing my PhD in University of Portsmouth. I am currently recruiting participants for my study. The participation involves an one-off 30 minute telephone interview and a 5 minute online survey.
I am trying to find out how we can design hypertension or arrhythmia based mobile apps, websites and sensors like Freestyle Libre better, in order to take our medication better so as we can improve our health.
I am aware that I might be asking much but if you are interested in sharing your experiences with me and help me with my research I will be honoured.
The study’s website is: http://www.prayance.co.uk/ephrma/ and if you decide to participate, you need to fill in the form at: http://www.prayance.co.uk/ephrma/take-part/
My deepest appreciations.
 
Jan 7, 2019
Elisavet 2 posts

Topic: General Discussion / Mobile apps, Sensors and medication

Hello everyone!
I am a type 1 diabetic for the past 32 years. After working in different industries I have decided to focus on research and I am currently doing my PhD in University of Portsmouth. I am currently recruiting participants for my study. The participation involves an one-off 30 minute telephone interview and a 5 minute online survey.
I am trying to find out how we can design hypertension or arrhythmia based mobile apps, websites and sensors like Freestyle Libre better, in order to take our medication better so as we can improve our health.
I am aware that I might be asking much but if you are interested in sharing your experiences with me and help me with my research I will be honored.

The study’s website is: http://www.prayance.co.uk/ephrma/ and if you decide to participate, you need to fill in the form at: http://www.prayance.co.uk/ephrma/take-part/
My deepest appreciations.
 
Dec 25, 2018
torana 53 posts

Topic: General Discussion / CBD and Nepal



I have found some interesting information on CBD oil and tablets. Any personal claims regarding CBD products are correct as are any claims from non medicinal products. In fact, I will claim that Kellogg’s Corn flakes derives from a reputable company, makes me feel less anxious in the morning especially with two cups of coffee and assists me in balancing my glucose levels. Just check the corn flakes packet for further information and contact numbers.
In reality, if you are going on a huge trip to Nepal, Tibet or wherever, please discuss time differences, dosages, gastro problems, anxiety over diabetic complications and levels with your GP and endocrinologist. Further, at 65 years of age and travelling in areas that have very different medical and hospitals setups from Britain, I would be super cautious and had planned and discussed with my health professionals. I don’t think they’ve heard of DAFNE in Nepal.

Here are some more details on CBD taken from various websites.
1. CBD oil extracted from hemp is often marketed as a food supplement to promote well-being – similar to other herbals like Echinacea – and boost the immune system. Although Hemp CBD oil is legal, it is not a medicine and should not be confused with the recent confiscation of 12-year-old Billy Caldwell’s CBD oil at Heathrow airport.

2. It is a strict violation of the Food and Drug Administration DSHEA guidelines to make medical claims about the efficacy of CBD products in the treatment of any medical condition or symptom. Although preliminary research has shown tremendous promise of CBD oil helping people in pretty remarkable ways, legitimate CBD companies will refrain from making any direct medical claims. Be very wary of companies that defy this guideline, because if they disregard this particular rule, what other rules are they willing to ignore?

3. Cannabidiol (CBD) oil has become increasingly popular as a natural way to help people try to manage pain, reduce inflammation, and cope with anxiety.* Though the number of prescriptions has risen sharply in the United States over the past 20 years, many Americans are trying to limit the number of prescribed drugs they take – instead, searching for all-natural solutions to the aches, pains, and discomfort they begin to face as they age.
 
Dec 23, 2018
torana 53 posts

Topic: General Discussion / Managing diabetes on a holiday to Nepal

Hi Ruperto, I was a bit stunned being redirected to a commercial site on hemp oil. I’m a “real person” and although not a contributor to this CBD site I’ll put forward a few comments here so we are all safe over Christmas and the festive season or on a trip overseas. Firstly, Ruperto write down in this forum the comments derived from the web site pertaining to how CBD oil “can significantly alleviate the suffering” of diabetics and “control the disease.” Secondly, diabetics have to be extremely circumspect on any alternative therapies due to past deaths of diabetics changing their regimes or even stopping insulin dosages from the false claims of some therapists, spiritualists, religious ministers, dieticians and the list goes on and on and not following conventional medical conventions and their endocrinologists.
Ruperto, personally I would weigh up the expense of buying “Natural wellness CBD oil” against purchasing the latest in technological advances for diabetics, such as the Medtronic CGM. I’m sure this may be also extremely beneficial for many diabetics and DGK on an overseas trip. Be safe, have a merry Christmas and a healthy new year
 
Dec 17, 2018
novorapidboi26 1,819 posts

Topic: Carbohydrate Counting / Vegetarian food

potentially yes......

for example a quick search on myfitnesspal for quorn hot dogs gives a result of 26g CHO for 1 hotdog.....

so the more processed items could have carbs in the region of above, but most of the items may only have small amounts...

so best to check packaging and adopt the rules unique to you when considering carbs less than 10g etc....
 
Dec 14, 2018
caergeiliog 1 post

Topic: General Discussion / Dafne Diary

marke said:
I'm a bit more prmitive, I print onto A4 and cut it in half to get A5 Very Happy Same result and just use a heavy grade paper or cardboard for the cover. One important point is word documents might need adjusting on your printer as all printers set their own non-printable parts to the page unless they are 'photo' printing but you can usually get it to print ok.... If you want my templates I'm also happy to send them to you. We should find a place on the site to make them available I guess....

I would be very grateful if you could send me your templates please. Not very technical so not sure how it works! Smile
 
Dec 11, 2018
Deryck 2 posts

Topic: General Discussion / Mobile app

Nothing on Android just an online app. Crying or Very sad
 
Dec 9, 2018
marke 686 posts

Topic: General Discussion / Mobile app

just search for DafneOnline on the app store.....
 
Dec 7, 2018
Robert O 2 posts

Topic: Carbohydrate Counting / Vegetarian food

If you have fake meat does it have carbs that need to be counted?
 
Dec 2, 2018
DaliFan6 1 post

Topic: Questions for HCPs / Post DAFNE - stange results

Hi,

Brief history - 2010 diagnosed T2, put on Gliclazide and Metformin, went into denial, pills did not work. 2015 c-peptide done, diagnosed with LADA and my record updated to Type 1. Put on Humalog and Lantus, this brought BS down fine, but never worked out my ratios and again into denial mode with it. 2018, back at Hospital, got on Libre Sensor system and recently completed DAFNE course.

I was found to be insulin resistent and my ratio for food was found to be 2:1 and background 26 units twice daily. Exercise I took 50% reduction in both if I knew I was doing an intense workout. I am 18 stone 13lbs, and should be 15.5 to 16 stone for my height and built. It was suggested to me that metformin might help with the insulin resistence - so got a prescription for that.

Problem:- I wanted to get on the metformin before it was ready and so ordered a natural alternative as I was very keen to get started (last occasion I was on metformin it helped me loose weight also, so that was very attractive too). I found a product on Amazon that has a very good rating from Good State Health Solutions called Glyxo-X 500 - Extra Strength Berberine HCL with Banaba Leaf Extract. So for one week I've had 1 x 500 mg Metformin and 1 x 500 mg Beberine tablet three times a day with meals. This immediately held me in the green zone with my BG measurements. Even after a carb meal, I did not really see such high spikes soon after and towards the latter half of week, I was skating too close to the lower end of the scale with readings of 4, so decided to cut fast acting insulin out of a few meals and to my surprise it held me in the zone still. 2 nights back I had fish and chips and took 50% less fast acting so 1:1...and same 26 slow acting with the pills and I was in hypo over night. Yesterday took no fast acting all day....and only the 26 units slow at 9am and 9pm...work with a graph that gradually fell and at 8.22am I was 3.8 on a scan. This would indicate that the long acting is working with the pills and has pulled me down. I did also have a fair bit to drink last night being a Sat night, so that could have contirbuted.

Advice please, so I cut the background today, and if so from 26 units to what? 20?

Thanks in advance
 
Nov 30, 2018
Rob83 1 post

Topic: General Discussion / Mobile app

Is there a mobile app that can be used on iOS?
I have finished my DAFNE course today and just wondered what was available.
Thank you
Rob
 
Nov 29, 2018
Stubedo 3 posts

Topic: General Discussion / Hypo recognition by spouse

Thanks for responding - I'll have a look as you recommend.
In my mind I'm sure there was a short section of the handbook specifically for partners/spouses but I'm forgetting lots of stuff and getting muddled nowadays so could be pure imagination.
Rolling Eyes
 
Nov 29, 2018
novorapidboi26 1,819 posts

Topic: General Discussion / Hypo recognition by spouse

As a graduate you should have access to the course handbook on via the DAFNE Tools on the right hand side f the site, here is a copy/paste of the symptoms.....

Early symptoms occur as the blood glucose falls below 4 mmol/l and are due to the action of hormones released in response to the hypo. Common symptoms are:
• Hunger
• Feeling shaky
• Sweating
• Headache

If you do not recognise these early symptoms of a hypo or do not take action when you get typical symptoms, your blood glucose may continue to fall and you could feel worse. As the brain is not supplied with enough glucose you may start to:
• Feel disorientated
• Feel aggressive
• Begin to lose consciousness
• Have difficulty with speech
• Lose concentration
• Experience changes in vision

These symptoms usually occur when your blood glucose is below 2.8 mmol/l.

If possible, it is advisable to measure your blood glucose as soon as you feel the symptoms. This will help you learn more about your diabetes and your own hypos. If you feel very unwell and you think that your blood glucose is low, take your hypo treatment (rapid-acting carbohydrate) straight away. An untreated hypo may lead to loss of consciousness.

If your diabetes has not been well controlled for several weeks or months, you may experience the early symptoms of a hypo at a higher blood glucose level than you might expect (eg between 4 and 11 mmol/l). You may feel unwell at this point, but you cannot become unconscious at these levels.
 
Nov 28, 2018
carver88 1 post

Topic: General Discussion / Anxiety / Stress and Dose Adjustment

Echoing others, and from personal experience I really would advise tackling the source of stress which is appreciate is far easier said than done.

Even if you can not avoid the stressful triggers (work) taking some time out

Stress management is a life skill and is especially important those of us trying to navigate life life with diabetes. A skill I have not quite mastered yet but I do find the 10 / 10/ 10 rule really helps.

When I'm triggered I ask my self :

Will it matter in 10 hours, 10 days , 10 weeks.

If the answer is 'no' and I have no control over it, I write down things that either do matter or do make me happy. This may sound off kilter but it works for me.
 
Nov 28, 2018
nonochocolate 2 posts

Topic: General Discussion / Anxiety / Stress and Dose Adjustment

Deadly said:
Hi All, my job changed just a couple of weeks ago so that I regularly find myself in positions where I am suffering from anxiety, and I notice that at the times of high anxiety my BG rises. What is the best way to deal with this? Does adrenaline cause your BG to fall sharply a bit later as much as it causes it to rise? Should I increase my quick acting insulin to cover it or my background nasal?

If you have any ideas please let me know.

Thanks, David



Hey, I moved earlier this year to a horrifically stressful high pressured job that I do not stop worrying about and it has definitely had a detrimental effect on my BG.

Nothing from the GP has really helped as the anxiety gets worse and worse. I've read a few articles about CBD and diabetes and decided to self-medicate.

I don't think CBD did much to help my BG BUT what it did have a side effect of reducing my anxiety which was a welcome surprise which in turn helps my diabetes... do kinda sorta lol
 
Nov 28, 2018
nonochocolate 2 posts

Topic: General Discussion / Travel and diabetes

I recently came back from a Trip to Lisbon - I used staysure.co.uk they were pretty good tbf and was fairly simple to get set up.