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Dec 11, 2018
Deryck 2 posts

Topic: General Discussion / Mobile app

Nothing on Android just an online app. Crying or Very sad
 
Dec 9, 2018
marke 681 posts

Topic: General Discussion / Mobile app

just search for DafneOnline on the app store.....
 
Dec 7, 2018
Robert O 2 posts

Topic: Carbohydrate Counting / Vegetarian food

If you have fake meat does it have carbs that need to be counted?
 
Dec 2, 2018
DaliFan6 1 post

Topic: Questions for HCPs / Post DAFNE - stange results

Hi,

Brief history - 2010 diagnosed T2, put on Gliclazide and Metformin, went into denial, pills did not work. 2015 c-peptide done, diagnosed with LADA and my record updated to Type 1. Put on Humalog and Lantus, this brought BS down fine, but never worked out my ratios and again into denial mode with it. 2018, back at Hospital, got on Libre Sensor system and recently completed DAFNE course.

I was found to be insulin resistent and my ratio for food was found to be 2:1 and background 26 units twice daily. Exercise I took 50% reduction in both if I knew I was doing an intense workout. I am 18 stone 13lbs, and should be 15.5 to 16 stone for my height and built. It was suggested to me that metformin might help with the insulin resistence - so got a prescription for that.

Problem:- I wanted to get on the metformin before it was ready and so ordered a natural alternative as I was very keen to get started (last occasion I was on metformin it helped me loose weight also, so that was very attractive too). I found a product on Amazon that has a very good rating from Good State Health Solutions called Glyxo-X 500 - Extra Strength Berberine HCL with Banaba Leaf Extract. So for one week I've had 1 x 500 mg Metformin and 1 x 500 mg Beberine tablet three times a day with meals. This immediately held me in the green zone with my BG measurements. Even after a carb meal, I did not really see such high spikes soon after and towards the latter half of week, I was skating too close to the lower end of the scale with readings of 4, so decided to cut fast acting insulin out of a few meals and to my surprise it held me in the zone still. 2 nights back I had fish and chips and took 50% less fast acting so 1:1...and same 26 slow acting with the pills and I was in hypo over night. Yesterday took no fast acting all day....and only the 26 units slow at 9am and 9pm...work with a graph that gradually fell and at 8.22am I was 3.8 on a scan. This would indicate that the long acting is working with the pills and has pulled me down. I did also have a fair bit to drink last night being a Sat night, so that could have contirbuted.

Advice please, so I cut the background today, and if so from 26 units to what? 20?

Thanks in advance
 
Nov 30, 2018
Rob83 1 post

Topic: General Discussion / Mobile app

Is there a mobile app that can be used on iOS?
I have finished my DAFNE course today and just wondered what was available.
Thank you
Rob
 
Nov 29, 2018
Stubedo 3 posts

Topic: General Discussion / Hypo recognition by spouse

Thanks for responding - I'll have a look as you recommend.
In my mind I'm sure there was a short section of the handbook specifically for partners/spouses but I'm forgetting lots of stuff and getting muddled nowadays so could be pure imagination.
Rolling Eyes
 
Nov 29, 2018
novorapidboi26 1,819 posts

Topic: General Discussion / Hypo recognition by spouse

As a graduate you should have access to the course handbook on via the DAFNE Tools on the right hand side f the site, here is a copy/paste of the symptoms.....

Early symptoms occur as the blood glucose falls below 4 mmol/l and are due to the action of hormones released in response to the hypo. Common symptoms are:
• Hunger
• Feeling shaky
• Sweating
• Headache

If you do not recognise these early symptoms of a hypo or do not take action when you get typical symptoms, your blood glucose may continue to fall and you could feel worse. As the brain is not supplied with enough glucose you may start to:
• Feel disorientated
• Feel aggressive
• Begin to lose consciousness
• Have difficulty with speech
• Lose concentration
• Experience changes in vision

These symptoms usually occur when your blood glucose is below 2.8 mmol/l.

If possible, it is advisable to measure your blood glucose as soon as you feel the symptoms. This will help you learn more about your diabetes and your own hypos. If you feel very unwell and you think that your blood glucose is low, take your hypo treatment (rapid-acting carbohydrate) straight away. An untreated hypo may lead to loss of consciousness.

If your diabetes has not been well controlled for several weeks or months, you may experience the early symptoms of a hypo at a higher blood glucose level than you might expect (eg between 4 and 11 mmol/l). You may feel unwell at this point, but you cannot become unconscious at these levels.
 
Nov 28, 2018
carver88 1 post

Topic: General Discussion / Anxiety / Stress and Dose Adjustment

Echoing others, and from personal experience I really would advise tackling the source of stress which is appreciate is far easier said than done.

Even if you can not avoid the stressful triggers (work) taking some time out

Stress management is a life skill and is especially important those of us trying to navigate life life with diabetes. A skill I have not quite mastered yet but I do find the 10 / 10/ 10 rule really helps.

When I'm triggered I ask my self :

Will it matter in 10 hours, 10 days , 10 weeks.

If the answer is 'no' and I have no control over it, I write down things that either do matter or do make me happy. This may sound off kilter but it works for me.
 
Nov 28, 2018
nonochocolate 2 posts

Topic: General Discussion / Anxiety / Stress and Dose Adjustment

Deadly said:
Hi All, my job changed just a couple of weeks ago so that I regularly find myself in positions where I am suffering from anxiety, and I notice that at the times of high anxiety my BG rises. What is the best way to deal with this? Does adrenaline cause your BG to fall sharply a bit later as much as it causes it to rise? Should I increase my quick acting insulin to cover it or my background nasal?

If you have any ideas please let me know.

Thanks, David



Hey, I moved earlier this year to a horrifically stressful high pressured job that I do not stop worrying about and it has definitely had a detrimental effect on my BG.

Nothing from the GP has really helped as the anxiety gets worse and worse. I've read a few articles about CBD and diabetes and decided to self-medicate.

I don't think CBD did much to help my BG BUT what it did have a side effect of reducing my anxiety which was a welcome surprise which in turn helps my diabetes... do kinda sorta lol
 
Nov 28, 2018
nonochocolate 2 posts

Topic: General Discussion / Travel and diabetes

I recently came back from a Trip to Lisbon - I used staysure.co.uk they were pretty good tbf and was fairly simple to get set up.
 
Nov 27, 2018
torana 53 posts

Topic: General Discussion / Continuous Glucose Monitors in Australia

Hi Marke,
No wonder you’re envious. When I first saw the CGM on Theresa May’s arm on the news last year I was also envious of the British NHS. As we all know envy is one of the deadly sins. It appears that Theresa May is just a reflection of the higher end socio economic group being able to afford the latest health saving technology whilst others as Michaelj and myself wait till we are totally out of control, in dire straits with diabetic complications to receive the needed support. While in emergency at my local hospital I have spoken to many young doctors who have come from England who deride the British system and come out here. At least in France they riot to be heard over inequality even if it is over petrol tax. To conclude, as Michaelj inferred, we are all living with this chronic debilitating diabetic condition together and to pit one group with subsidised new technology whether it be postcodes, age, pregnancy, concession holders against another with similar conditions is simply wrong and unethical.
 
Nov 27, 2018
IvanC 4 posts

Topic: General Discussion / Difference between user, graduate and hcp?

Thanks Mark for explaining the different types of users. We here in Australia also think the same around risk management of DAFNE information for people who have not done the course, so we are on the same page!

Really appreciate the outstanding work that you and Simon are doing Very Happy

And we now need a thumbs-up emoticon, hahahaha!!!!!
 
Nov 27, 2018
Stubedo 3 posts

Topic: General Discussion / Hypo recognition by spouse

Hi,
My 70+ year old close friend's wife has recently been T1-diagnosed.
I asked him if he knew what hypo symptoms looked like in case he needs to assist his wife and he said no.
I cannot find my DAFNE course handbook to copy the information for spouses about hypo symptom recognition and management ... just wondering if anyone can send me a link to where I might find such online.
Many thanks.
Stu Very Happy
 
Nov 27, 2018
planehazza 4 posts

Topic: Site Development / HbA1c Log

Thanks for the reply. For now, I'm just adding them as notes like a normal BG entry.

Thanks!
 
Nov 27, 2018
marke 681 posts

Topic: Site Development / HbA1c Log

hhm, indeed an interesting idea, it would be possible if we find the time to add it to the site....
 
Nov 27, 2018
marke 681 posts

Topic: General Discussion / Continuous Glucose Monitors in Australia

Like my fellow diabetic in South East Kent, I look on with envy at what they are planning to do in Oz. In the UK the NHS and Abbott agreed to provide their CGM ( freestyle libre) on the NHS. Sadly that's as far as it went as none of the Health Trusts in the UK can afford to provide them. I think the key phrase in the Oz scheme is 'Clinical need' , just like in the UK that translates to you have to have very poor control and complications before they will provide a CGM by which time what you need is surgery not a device.....
 
Nov 27, 2018
marke 681 posts

Topic: General Discussion / Difference between user, graduate and hcp?

sorry just noticed this thread . The replies are mostly spot on. There are a set of type of user 'types' that have different access. The type called 'user' can join the site, contribute to the forums, access the Carb counter section and Diary sections. The only thing they cannot do is access the handbook because in the UK the NHS body won't allow it and we had to sign a legal clause that said we would not allow people who have not done DAFNE to access it. that is why when you sign up you need to enter a code if you are a graduate that has been generated by the centre you attended on this site. The graduate user type has access to all features except the ability to generate codes, to do that you need to be a HCP or DAFNE Admin user type. Finally on top of it all are simon and I who manage the site and have access to everything.

We are happy and indeed encourage ANY diabetic to use the site and apps to manage their blood glucose readings and given the choice would allow access to the handbook as well but rules are rules Sad Sad
 
Nov 27, 2018
planehazza 4 posts

Topic: General Discussion / Effects of stress on blood glucose levels

Stress/anxiety half kills me, sugar wise. In fact, last night, I had a pretty violent/gory nightmare and when I tested, my sugars had risen from 9.7 (10PM) to 13.4(2AM) with no carb on board since 6PM. I have a late dawn phenomenon but it may have been the onset of that. However, I'm inclined to believe that either the high sugar caused the nightmare, or vice versa.

We're strange creatures...
 
Nov 27, 2018
planehazza 4 posts

Topic: Site Development / HbA1c Log

Is there anywhere I can keep track of my HbA1c history? If not, could I please mention it as an idea? Smile

Thanks,
 
Nov 26, 2018
michaelj 45 posts

Topic: General Discussion / Continuous Glucose Monitors in Australia

Hi Torana
Much the same in the UK. I've been type 1 for close on 58 years and when my consultant suggested I try CGM, and sent a letter to my doctor to recommend this, they just laughed when I asked them if they would provide a unit. (Too expensive was the reply). As we are all expected to do our best to live a healthy life style, and try to keep your diabetes under control it seems you have to abandon all control, get the paramedics out every week to get you out of a hypo, or run around with very high blood sugars and then you qualify. Never mind the risk of foot and leg damage. risk of loss of sight, heart problems and and all the other problems that poor diabetes control can produce, the powers that be clearly think that spending millions on corrective procedures is cheaper than helping to improve peoples control and therefore health. I sometimes wonder if any of the so called experts that decide these things where-ever in the world you live, have any idea what it's like to live with a long term condition. I despair at the logic that says let people worse and only then we'll try to make you better.
 
Nov 26, 2018
torana 53 posts

Topic: General Discussion / Continuous Glucose Monitors in Australia

“The Federal Government has announced it will invest an additional $100 million over four years to support patients with type 1 diabetes. From 1 March 2019, eligibility for fully subsidised continuous glucose monitoring devices will be expanded under the National Diabetes Services Scheme to include:

>women with type 1 diabetes who are pregnant, breastfeeding or actively planning a pregnancy
>people with type 1 diabetes aged 21 years or older who have concessional status, and who have a high clinical need (such as experiencing recurrent severe hypoglycaemic events)
>children and young people with conditions similar to type 1 diabetes who require insulin (this includes a range of conditions such as cystic fibrosis-related diabetes or neonatal diabetes)”. (RACGP)

The new scheme caters for 37,000 Australians. There are 130,000 type one diabetics in Australia.

I am thrilled that nearly one third of us are being finally catered and subsidised for the CGM by our National Diabetic Scheme.
How are the other two thirds feeling, many who are most probably DAFNE members?
I am still working, have had diabetes for nearly 50 years and find that the eligibility criteria, likewise for most probably many DAFNE members for the CGM, will not be subsided! The decision appears to be determined by the the difficultly of personal control ie. pregnancy and under 21 years of age.
I am sure many DAFNE members are also having critical problems in terms of control. Do we have to wait four years to gain eligibility to this new exceptional technology.
I look forward to your response.
 
Nov 26, 2018
Warwick 425 posts

Topic: General Discussion / Effects of stress on blood glucose levels

Hello David,

Stress hormones such as adrenaline and cortisol blunt the action of insulin which is why more insulin is required to lower BGLs.

How you control that will depend on your body's response and you will only be able to tell that by trial and error. If the stress remains in the background even after work, then you probably won't experience a sudden drop in BGLs after taking correctional insulin, but if once you leave work, you immediately lose the stress and feel calm, then your BGLs possibly would drop quickly in the absence of the stress hormones.

As others have said, if you can find a way of making the work situation less stressful, then that of course will be the best way to handle this. That could be through breathing exercises, talking with a professional counsellor, going for a walk when things get stressful etc.

If you are able to monitor your BGLs using a device such as the Freestyle Libre, then that is likely to also be helpful in identifying how your body is responding to stress and also the extra insulin that you are injecting.

Hope it all sorts itself out soon.
 
Nov 26, 2018
Warwick 425 posts

Topic: General Discussion / Anxiety / Stress and Dose Adjustment

Hello David,

Stress hormones such as adrenaline and cortisol blunt the action of insulin which is why more insulin is required to lower BGLs.

How you control that will depend on your body's response and you will only be able to tell that by trial and error. If the stress remains in the background even after work, then you probably won't experience a sudden drop in BGLs after taking correctional insulin, but if once you leave work, you immediately lose the stress and feel calm, then your BGLs possibly would drop quickly in the absence of the stress hormones.

As others have said, if you can find a way of making the work situation less stressful, then that of course will be the best way to handle this. That could be through breathing exercises, talking with a professional counsellor, going for a walk when things get stressful etc.

If you are able to monitor your BGLs using a device such as the Freestyle Libre, then that is likely to also be helpful in identifying how your body is responding to stress and also the extra insulin that you are injecting.

Hope it all sorts itself out soon.