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15,864 posts found
Nov 27, 2018
planehazza
4 posts
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Topic: Site Development / HbA1c Log Thanks for the reply. For now, I'm just adding them as notes like a normal BG entry.Thanks! |
Nov 27, 2018
marke
686 posts
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Topic: Site Development / HbA1c Log hhm, indeed an interesting idea, it would be possible if we find the time to add it to the site.... |
Nov 27, 2018
marke
686 posts
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Topic: General Discussion / Continuous Glucose Monitors in Australia Like my fellow diabetic in South East Kent, I look on with envy at what they are planning to do in Oz. In the UK the NHS and Abbott agreed to provide their CGM ( freestyle libre) on the NHS. Sadly that's as far as it went as none of the Health Trusts in the UK can afford to provide them. I think the key phrase in the Oz scheme is 'Clinical need' , just like in the UK that translates to you have to have very poor control and complications before they will provide a CGM by which time what you need is surgery not a device..... |
Nov 27, 2018
marke
686 posts
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Topic: General Discussion / Difference between user, graduate and hcp? sorry just noticed this thread . The replies are mostly spot on. There are a set of type of user 'types' that have different access. The type called 'user' can join the site, contribute to the forums, access the Carb counter section and Diary sections. The only thing they cannot do is access the handbook because in the UK the NHS body won't allow it and we had to sign a legal clause that said we would not allow people who have not done DAFNE to access it. that is why when you sign up you need to enter a code if you are a graduate that has been generated by the centre you attended on this site. The graduate user type has access to all features except the ability to generate codes, to do that you need to be a HCP or DAFNE Admin user type. Finally on top of it all are simon and I who manage the site and have access to everything.We are happy and indeed encourage ANY diabetic to use the site and apps to manage their blood glucose readings and given the choice would allow access to the handbook as well but rules are rules ![]() ![]() |
Nov 27, 2018
planehazza
4 posts
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Topic: General Discussion / Effects of stress on blood glucose levels Stress/anxiety half kills me, sugar wise. In fact, last night, I had a pretty violent/gory nightmare and when I tested, my sugars had risen from 9.7 (10PM) to 13.4(2AM) with no carb on board since 6PM. I have a late dawn phenomenon but it may have been the onset of that. However, I'm inclined to believe that either the high sugar caused the nightmare, or vice versa.We're strange creatures... |
Nov 27, 2018
planehazza
4 posts
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Topic: Site Development / HbA1c Log Is there anywhere I can keep track of my HbA1c history? If not, could I please mention it as an idea?![]() Thanks, |
Nov 26, 2018
michaelj
45 posts
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Topic: General Discussion / Continuous Glucose Monitors in Australia Hi ToranaMuch the same in the UK. I've been type 1 for close on 58 years and when my consultant suggested I try CGM, and sent a letter to my doctor to recommend this, they just laughed when I asked them if they would provide a unit. (Too expensive was the reply). As we are all expected to do our best to live a healthy life style, and try to keep your diabetes under control it seems you have to abandon all control, get the paramedics out every week to get you out of a hypo, or run around with very high blood sugars and then you qualify. Never mind the risk of foot and leg damage. risk of loss of sight, heart problems and and all the other problems that poor diabetes control can produce, the powers that be clearly think that spending millions on corrective procedures is cheaper than helping to improve peoples control and therefore health. I sometimes wonder if any of the so called experts that decide these things where-ever in the world you live, have any idea what it's like to live with a long term condition. I despair at the logic that says let people worse and only then we'll try to make you better. |
Nov 26, 2018
torana
53 posts
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Topic: General Discussion / Continuous Glucose Monitors in Australia “The Federal Government has announced it will invest an additional $100 million over four years to support patients with type 1 diabetes. From 1 March 2019, eligibility for fully subsidised continuous glucose monitoring devices will be expanded under the National Diabetes Services Scheme to include:>women with type 1 diabetes who are pregnant, breastfeeding or actively planning a pregnancy >people with type 1 diabetes aged 21 years or older who have concessional status, and who have a high clinical need (such as experiencing recurrent severe hypoglycaemic events) >children and young people with conditions similar to type 1 diabetes who require insulin (this includes a range of conditions such as cystic fibrosis-related diabetes or neonatal diabetes)”. (RACGP) The new scheme caters for 37,000 Australians. There are 130,000 type one diabetics in Australia. I am thrilled that nearly one third of us are being finally catered and subsidised for the CGM by our National Diabetic Scheme. How are the other two thirds feeling, many who are most probably DAFNE members? I am still working, have had diabetes for nearly 50 years and find that the eligibility criteria, likewise for most probably many DAFNE members for the CGM, will not be subsided! The decision appears to be determined by the the difficultly of personal control ie. pregnancy and under 21 years of age. I am sure many DAFNE members are also having critical problems in terms of control. Do we have to wait four years to gain eligibility to this new exceptional technology. I look forward to your response. |
Nov 26, 2018
Warwick
425 posts
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Topic: General Discussion / Effects of stress on blood glucose levels Hello David,Stress hormones such as adrenaline and cortisol blunt the action of insulin which is why more insulin is required to lower BGLs. How you control that will depend on your body's response and you will only be able to tell that by trial and error. If the stress remains in the background even after work, then you probably won't experience a sudden drop in BGLs after taking correctional insulin, but if once you leave work, you immediately lose the stress and feel calm, then your BGLs possibly would drop quickly in the absence of the stress hormones. As others have said, if you can find a way of making the work situation less stressful, then that of course will be the best way to handle this. That could be through breathing exercises, talking with a professional counsellor, going for a walk when things get stressful etc. If you are able to monitor your BGLs using a device such as the Freestyle Libre, then that is likely to also be helpful in identifying how your body is responding to stress and also the extra insulin that you are injecting. Hope it all sorts itself out soon. |
Nov 26, 2018
Warwick
425 posts
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Topic: General Discussion / Anxiety / Stress and Dose Adjustment Hello David,Stress hormones such as adrenaline and cortisol blunt the action of insulin which is why more insulin is required to lower BGLs. How you control that will depend on your body's response and you will only be able to tell that by trial and error. If the stress remains in the background even after work, then you probably won't experience a sudden drop in BGLs after taking correctional insulin, but if once you leave work, you immediately lose the stress and feel calm, then your BGLs possibly would drop quickly in the absence of the stress hormones. As others have said, if you can find a way of making the work situation less stressful, then that of course will be the best way to handle this. That could be through breathing exercises, talking with a professional counsellor, going for a walk when things get stressful etc. If you are able to monitor your BGLs using a device such as the Freestyle Libre, then that is likely to also be helpful in identifying how your body is responding to stress and also the extra insulin that you are injecting. Hope it all sorts itself out soon. |
Nov 26, 2018
Warwick
425 posts
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Topic: General Discussion / Difference between user, graduate and hcp? I also believe that non-graduates cannot see the DAFNE handbook but can see the forums and enter BGL readings into the diary. |
Nov 25, 2018
Kenny131
2 posts
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Topic: General Discussion / Effects of stress on blood glucose levels I understand your feelings. I happened to have two jobs simultaneously and stress and anxiety were my permanent "companions". And to cope with it I tried to use cbd oils. Check this informative post. I bet it'll help you. |
Nov 24, 2018
Kenny131
2 posts
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Topic: General Discussion / Difference between user, graduate and hcp? Thanks for the info! |
Nov 23, 2018
novorapidboi26
1,819 posts
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Topic: General Discussion / Help with College Unit for Top-up Degree all filled in......![]() |
Nov 23, 2018
richarde500
4 posts
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Topic: General Discussion / Help with College Unit for Top-up Degree Yeah. It’s fine. The more people who participate the better. Means once I close the survey, I can get a more accurate answer. All the data is anonymised |
Nov 22, 2018
Warwick
425 posts
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Topic: General Discussion / Help with College Unit for Top-up Degree Hello Richard,Is it OK to fill this out if we aren't based in the UK? Thanks, Warwick. |
Nov 22, 2018
richarde500
4 posts
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Topic: General Discussion / Help with College Unit for Top-up Degree Hi there. For my BSc. (Hons) Business Computing Top up degree, one of the units in this semester is called Research Methods. The research topic which I have chosen to do is "How has the advancements of technology helped you manage your diabetes?". It would be wonderful if you could fill out the online survey, it will really help me out and it shouldn't take too long to complete. The final date to complete the survey will be the 7th December as I need to analyse results and write up the findings into an academic research paper.The link can be found here ↓ https://goo.gl/forms/1i2PzmXIce8RdcG42 Thanks in advance for helping me with my research project. |
Nov 20, 2018
IvanC
4 posts
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Topic: General Discussion / Difference between user, graduate and hcp? Thanks for your response Warwick, very helpful! Seeya soon![]() |
Nov 19, 2018
Warwick
425 posts
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Topic: Questions for HCPs / Bell's Palsy Well said Torana. I agree with everything that you said.This explanation also seems to be fairly detailed as to the why:https://www.medicalnewstoday.com/articles/317015.php Warwick. |
Nov 19, 2018
Warwick
425 posts
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Topic: General Discussion / Difference between user, graduate and hcp? Hello Ivan,I see a lot of users on this forum who have not completed the DAFNE course so I believe that it is open to anyone. See you in a few weeks. Warwick. |
Nov 19, 2018
torana
53 posts
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Topic: Questions for HCPs / Bell's Palsy Hi Steve, I am only writing from personal experience and of course my suggestions are not medical advice. Over my nearly fifty years on insulins there have been many medical procedures due to Crohns, prostate cancer, pacemaker etc. each one posing huge dilemmas on how to control my diabetes. Crohn’s disease and insulin do not go together due to the use of steroids and the inflammation of the bowel. Like yourself, with Crohn’s my sugars went through the roof due to the use of steroids and inflammation. It is so important if you can to get a team to support you through this difficult time. I had a specialist endocrinologist that was referred to me by my local hospital to assist me adjust my insulin’s whilst on the steroids. Sometimes, like yourself it was two to three times my normal dose which was of course a concern and extremely worrying with your medical issues. It is important that you contact your doctor for extra help as there must be someone who has the knowledge and ability to assist you with dosages. It seems your Bells Palsy specialist may be able to contact your endo to assist you adjust dosages with support. They should be working together for you. Why not put it in writing to your medical specialists for assistance so you get a reply hopefully straight away. Too many times in hospital for my many procedures doctors and specialists have not understood my predicament with insulin and it has been up to myself. More often than not the nurse just says you know what your doing and I’ll just watch. It was only through my initial contact with this Endo specialist whilst using steroids with insulin did I gain more confidence for dosages for my other operations. Also finally, if you can afford the libre freestyle it would be a tremendous help to constantly check your blood sugars whilst on such high dosages and your body gets back to normal.In conclusion, a prescribing doctor should be aware of the dangers faced by the interactions between steroids and insulin. How many times have I heard of the terrible dilemma faced by diabetics with further autoimmune problems, going on steroids and then receiving little or no support. It is surely a travesty of modern medicine similar to giving a small child a loaded gun and told to go home and play. After reading of so many occurrences in the forum pages it would be highly worthwhile to make the dispensing of steroids to insulin diabetics a DAFNE issue to be more publicised within the wider community. |
Nov 19, 2018
Steves88
1 post
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Topic: Questions for HCPs / Bell's Palsy Hi, I was diagnosed with Bell's Palsy last week, and have since found out this could be related to my diabetes. My blood sugar levels have gone through the roof and won't come down, even though I've now doubled the amount of insulin I'm injecting. Is this due to the steroids I'm taking? Any advice? It's now been 7 days and no improvement in the Bell's Palsy or blood sugars. Thanks![]() |
Nov 17, 2018
EdTab
2 posts
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Topic: General Discussion / whats the blood test called that identifies Type1 diabetes? Hey Sarah, I was 2 -3 years misdiagnosed around 17 years ago!! and unfortunately most adult onset type 1's are misdiagnosed. Doesn't seem to bother GP's that they're messing with out lives!!I have a bit of a bee in my bonnet about any newly diagnosed diabetics not being referred to see an Endo straight up. I can't understand, if there is a specialist available, why a G.P. wouldn't use that resource. The title says it all. "General" Practitioner. Knowing a little bit about a lot of things. "Specialist", knows a lot about ONE thing. The test I eventually had was a GAD test, (Glutamic Acid Decarboxylase Autoantibodies) Hope all is well. Eddie |
Nov 15, 2018
IvanC
4 posts
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Topic: General Discussion / Difference between user, graduate and hcp? Dear all,When I look into Users under "usertype" , I wonder what is the difference between a user, graduate and hcp? Had a quick search on the forum without success. I used to think that dafneonline users can only be a DAFNE graduates or an HCP who delivers DAFNE, but can family and friends of DAFNE graduates now (who is neither a DAFNE graduate nor an DAFNE HCP) also join dafneonline now? I look forward to your reply. Thanks for your help. Kindest regards Ivan |