Recent Posts - DAFNE Online

Nov 20, 2018

IvanC 4 posts

Topic: General Discussion / Difference between user, graduate and hcp?

Thanks for your response Warwick, very helpful! Seeya soon Smile

Nov 19, 2018

Warwick 423 posts

Topic: Questions for HCPs / Bell's Palsy

Well said Torana. I agree with everything that you said.This explanation also seems to be fairly detailed as to the why:

https://www.medicalnewstoday.com/articles/317015.php

Warwick.

Nov 19, 2018

Warwick 423 posts

Topic: General Discussion / Difference between user, graduate and hcp?

Hello Ivan,

I see a lot of users on this forum who have not completed the DAFNE course so I believe that it is open to anyone.

See you in a few weeks.

Warwick.

Nov 19, 2018

torana 53 posts

Topic: Questions for HCPs / Bell's Palsy

Hi Steve, I am only writing from personal experience and of course my suggestions are not medical advice. Over my nearly fifty years on insulins there have been many medical procedures due to Crohns, prostate cancer, pacemaker etc. each one posing huge dilemmas on how to control my diabetes. Crohn’s disease and insulin do not go together due to the use of steroids and the inflammation of the bowel. Like yourself, with Crohn’s my sugars went through the roof due to the use of steroids and inflammation. It is so important if you can to get a team to support you through this difficult time. I had a specialist endocrinologist that was referred to me by my local hospital to assist me adjust my insulin’s whilst on the steroids. Sometimes, like yourself it was two to three times my normal dose which was of course a concern and extremely worrying with your medical issues. It is important that you contact your doctor for extra help as there must be someone who has the knowledge and ability to assist you with dosages. It seems your Bells Palsy specialist may be able to contact your endo to assist you adjust dosages with support. They should be working together for you. Why not put it in writing to your medical specialists for assistance so you get a reply hopefully straight away. Too many times in hospital for my many procedures doctors and specialists have not understood my predicament with insulin and it has been up to myself. More often than not the nurse just says you know what your doing and I’ll just watch. It was only through my initial contact with this Endo specialist whilst using steroids with insulin did I gain more confidence for dosages for my other operations. Also finally, if you can afford the libre freestyle it would be a tremendous help to constantly check your blood sugars whilst on such high dosages and your body gets back to normal.
In conclusion, a prescribing doctor should be aware of the dangers faced by the interactions between steroids and insulin. How many times have I heard of the terrible dilemma faced by diabetics with further autoimmune problems, going on steroids and then receiving little or no support. It is surely a travesty of modern medicine similar to giving a small child a loaded gun and told to go home and play. After reading of so many occurrences in the forum pages it would be highly worthwhile to make the dispensing of steroids to insulin diabetics a DAFNE issue to be more publicised within the wider community.

Nov 19, 2018

Steves88 1 post

Topic: Questions for HCPs / Bell's Palsy

Hi, I was diagnosed with Bell's Palsy last week, and have since found out this could be related to my diabetes. My blood sugar levels have gone through the roof and won't come down, even though I've now doubled the amount of insulin I'm injecting. Is this due to the steroids I'm taking? Any advice? It's now been 7 days and no improvement in the Bell's Palsy or blood sugars. Thanks Confused

Nov 17, 2018

EdTab 2 posts

Topic: General Discussion / whats the blood test called that identifies Type1 diabetes?

Hey Sarah, I was 2 -3 years misdiagnosed around 17 years ago!! and unfortunately most adult onset type 1's are misdiagnosed. Doesn't seem to bother GP's that they're messing with out lives!!
I have a bit of a bee in my bonnet about any newly diagnosed diabetics not being referred to see an Endo straight up. I can't understand, if there is a specialist available, why a G.P. wouldn't use that resource.
The title says it all. "General" Practitioner. Knowing a little bit about a lot of things. "Specialist", knows a lot about ONE thing.
The test I eventually had was a GAD test, (Glutamic Acid Decarboxylase Autoantibodies)

Hope all is well.

Eddie

Nov 15, 2018

IvanC 4 posts

Topic: General Discussion / Difference between user, graduate and hcp?

Dear all,

When I look into Users under "usertype" , I wonder what is the difference between a user, graduate and hcp? Had a quick search on the forum without success.

I used to think that dafneonline users can only be a DAFNE graduates or an HCP who delivers DAFNE, but can family and friends of DAFNE graduates now (who is neither a DAFNE graduate nor an DAFNE HCP) also join dafneonline now?

I look forward to your reply. Thanks for your help.

Kindest regards
Ivan

Nov 5, 2018

Bikerbert 2 posts

Topic: Carbohydrate Counting / Subtracting fibre carbs

Thanks that's great to know

Nov 5, 2018

michaelj 45 posts

Topic: Carbohydrate Counting / Subtracting fibre carbs

Apart from potatoes I wouldn't worry too much about carbs in veggies. One bright spark many years ago worked out that to eat 10 gms of carbohydrate in cabbage you would have to consume 32 lbs of the stuff. Most vegetables contain so little carbs that its hardly worth the worry. The Daphne handbook I have doesn't even list vegetables so there must be some truth in it.

Nov 4, 2018

Bikerbert 2 posts

Topic: Carbohydrate Counting / Subtracting fibre carbs

Hi was wondering how do we count carbs in veg. I saw a video where the carbs were calculated by subtracting fibre from the total carbs is this correct for dafne

Nov 3, 2018

ken jones 3 posts

Topic: General Discussion / Metronome course

Hi Are you on a pump ie Levemir ken

Nov 2, 2018

Simon 578 posts

Topic: Site Development / app/online issues

Hi David,

I tried sending you an email about this but it got bounced back, and also responded to your app store review as well. I think the issue may be because an incorrect username was entered into the app, and then it saved this when you changed it. A quick fix would be to fully close the app by following these instructions https://support.apple.com/en-gb/HT201330

I have added some improvements to the app in the latest version which should fix this issue without the need for a restart of the app. That's version 2.3.5 and is just waiting for a review by Apple.

Sorry for the inconvenience.

Simon

Oct 28, 2018

Simon Brown 1 post

Topic: Site Development / app/online issues

Sorry DShort610, no i’ve not had that issue but want to add my findings to yours to add weight to the app issues we’ve found.
Ive been enjoying using the app diary assuming it would be available for the DAFNE nurses to be able to see/advise. Howeve, I’ve just looked at my Diary and was not able to see yesterday’s results or any of last weeks results. Anyone else??
Decided to use the below dates to see if it drags the data out.

Oct 24, 2018

DShort610 1 post

Topic: Site Development / app/online issues

I keep getting a CONNECTION FAILED INVALID USERNAME/PASSWORD when opening the app which makes it very cumbersome to log information. Anyone experiencing the same issue? Also I have tried submitting an email through the website regarding the issue but seem unable to submit my query.

Oct 23, 2018

IvanC 4 posts

Topic: DAFNE Online Mobile / Incorrect data affecting downloading, esp middle data?

Hi everybody, it's my first post on DAFNE online so I hope I'm in the right place Smile

I got this query from a newly trained HCP whose DAFNE graduate encountered a problem, so I hope someone can shed some light for me. I have copied the relevant segment of the email enquiry describing the issue.

"one of our DAFNE participants is having [problems] downloading her results on DAFNE online, she states that when she puts them in, one entry will say incorrect data or something like that so it won’t download. She says that is she puts in 8 entries or 10 entries it’s usually the middle data entry that won’t work. hope that makes sense."

I have previously done a text search on the DAFNE online forum using "data", "download", ïncorrect" separately but not found anything helpful, hence me posting.

Apart from encouraging this new DAFNE graduate to use this forum, is there other information I can ask for that may help solve the problem?

All feedback and thoughts welcome Smile

Thanks in advance!

Best
Ivan

Oct 16, 2018

ChilliP 1 post

Topic: DAFNE Online Mobile / Dafne app on android

Hi, sorry I am new here, but I will get round to introducing myself later on. I saw your post and just to update you that a manual search on Google Play and using the link provided on the homepage (which directs to https://play.google.com/store/apps/details?id=dafneonline.android) shows no results and the app is not found. I would say that either Google have pulled it or the app maker has. Crying or Very sad

Oct 16, 2018

Nat-Sav 15 posts

Topic: DAFNE Online Mobile / Dafne app on android

I have the same problem. I am stuck without this app!

Oct 15, 2018

ScottW 1 post

Topic: Site Development / Dafne online... App

Got a new android phone and went to the play store to reinstall all my app, Once they all downloaded I couldn't see the Dafne online app so I did a search for it and could not find it, Has it been discontinued for Android as its still on iOS or is there a problem that's getting looked in to?

Oct 9, 2018

hamisharchie 2 posts

Topic: DAFNE Online Mobile / Dafne app on android

Why can't I find the Dafne app on Google play anymore. Had my phone replaced after a theft and now I can't find the Dafne app. Is it still available?
I can't always get a decent WiFi to access the food diary online.

Oct 9, 2018

planehazza 4 posts

Topic: General Discussion / Split Levemir dose

Hi all, first message here. Some very good tips and looks similar to me. I've just adjusted my PM BI to 15u of levimir and am still confirming that that is correct. Before bed last night, BG was 8.4, 3AM it was 6.5, and 7AM it was 6.0. I had 2CPs for breakfast at 8:30 and now, at 11:30, it is 16.6. My gut feeling is that my breakfast QA ratio needs upping from 1:1 to 1.5:1 or higher, as I've always need a little more insulin in the mornings before DAFNE (when I was on lantus).

Assuming my PM BI is correct, what is the best way to adjust morning basal? Is it a case of seeing if all meals are causing high BIs and relying on QA ration adjustments if only one meal is out?

Oct 9, 2018

JimJamRS 2 posts

Topic: General Discussion / HGV 1 licences

Hi all I am starting a new job next week. And they want to put me through my Class1 driving licence I thought I was not possible as when. I was diagnosed I could only drive up to 3.5 ton and 9passengers. It seem the rules have changed now probably as no one wants to drive an HGV. Any how has anyone got a class 1 license since becoming diabetic? How easy or hard was it? And can I get more log books to keep track of my levels?

Thanks. James

Oct 8, 2018

Sarahlawlor 4 posts

Topic: General Discussion / whats the blood test called that identifies Type1 diabetes?

Hi Clare,

Thanks for taking the time to respond, as I recall I thought they asked me to have an additional blood test? I was diagnosed as a Type 2 diabetic at the age of 42 then 5 years later referred to Hospital to see a DSN who later confirmed I was actually Type 1.

Sarah

Oct 4, 2018

Warwick 423 posts

Topic: General Discussion / Splitting lantus dose

I also had a skin reaction when injecting Levemir, although the first 14 months on it were wonderful. I've also split-dose Lantus previously although I am currently on a single daily dose now for reasons that I can't quite remember - I was probably having too many hypos on the split dose.

I find that Lantus usually lasts about 18 hours for me, not the full 24, but because I have it in the evening, and I cycle home 5 days a week, it works out OK as otherwise I tend to go a bit low on the cycle home.

I do find with Lantus though that any changes seem to take a couple of days before they take effect which makes it difficult to work out what I need to change. Levemir on the other hand tended to be gone from my body pretty quickly (within 12-16 hours) making it much better for tweaking. Just a shame about the reaction.

Oct 4, 2018

Warwick 423 posts

Topic: Questions for HCPs / ½ a f n ¾ using libre freestyle for2 months

It could be stress. It could also be a lot of other things. Do you inject, or use a pump? If you inject, how often do you inject basal insulin and what sort of basal do you inject? On days where you take more insulin than your carb counting would indicate that you require, do you then have a dip in blood glucose levels before dinner or are they fairly stable? If they stay stable, then it may just be that your insulin:carb ratio is a bit higher at lunchtime than at other times of the day.

Skipping lunch may also help you see if your BGLs continue to rise from breakfast until dinner time without any food which would indicate that your basal dose is too low.

Being able to see your diary would be helpful to see trends.

Thanks,
Warwick.

Nov 20, 2018 IvanC 4 posts	Topic: General Discussion / Difference between user, graduate and hcp? Thanks for your response Warwick, very helpful! Seeya soon

Nov 19, 2018 Warwick 423 posts	Topic: Questions for HCPs / Bell's Palsy Well said Torana. I agree with everything that you said.This explanation also seems to be fairly detailed as to the why: https://www.medicalnewstoday.com/articles/317015.php Warwick.

Nov 19, 2018 Warwick 423 posts	Topic: General Discussion / Difference between user, graduate and hcp? Hello Ivan, I see a lot of users on this forum who have not completed the DAFNE course so I believe that it is open to anyone. See you in a few weeks. Warwick.

Nov 19, 2018 torana 53 posts	Topic: Questions for HCPs / Bell's Palsy Hi Steve, I am only writing from personal experience and of course my suggestions are not medical advice. Over my nearly fifty years on insulins there have been many medical procedures due to Crohns, prostate cancer, pacemaker etc. each one posing huge dilemmas on how to control my diabetes. Crohn’s disease and insulin do not go together due to the use of steroids and the inflammation of the bowel. Like yourself, with Crohn’s my sugars went through the roof due to the use of steroids and inflammation. It is so important if you can to get a team to support you through this difficult time. I had a specialist endocrinologist that was referred to me by my local hospital to assist me adjust my insulin’s whilst on the steroids. Sometimes, like yourself it was two to three times my normal dose which was of course a concern and extremely worrying with your medical issues. It is important that you contact your doctor for extra help as there must be someone who has the knowledge and ability to assist you with dosages. It seems your Bells Palsy specialist may be able to contact your endo to assist you adjust dosages with support. They should be working together for you. Why not put it in writing to your medical specialists for assistance so you get a reply hopefully straight away. Too many times in hospital for my many procedures doctors and specialists have not understood my predicament with insulin and it has been up to myself. More often than not the nurse just says you know what your doing and I’ll just watch. It was only through my initial contact with this Endo specialist whilst using steroids with insulin did I gain more confidence for dosages for my other operations. Also finally, if you can afford the libre freestyle it would be a tremendous help to constantly check your blood sugars whilst on such high dosages and your body gets back to normal. In conclusion, a prescribing doctor should be aware of the dangers faced by the interactions between steroids and insulin. How many times have I heard of the terrible dilemma faced by diabetics with further autoimmune problems, going on steroids and then receiving little or no support. It is surely a travesty of modern medicine similar to giving a small child a loaded gun and told to go home and play. After reading of so many occurrences in the forum pages it would be highly worthwhile to make the dispensing of steroids to insulin diabetics a DAFNE issue to be more publicised within the wider community.

Nov 19, 2018 Steves88 1 post	Topic: Questions for HCPs / Bell's Palsy Hi, I was diagnosed with Bell's Palsy last week, and have since found out this could be related to my diabetes. My blood sugar levels have gone through the roof and won't come down, even though I've now doubled the amount of insulin I'm injecting. Is this due to the steroids I'm taking? Any advice? It's now been 7 days and no improvement in the Bell's Palsy or blood sugars. Thanks

Nov 17, 2018 EdTab 2 posts	Topic: General Discussion / whats the blood test called that identifies Type1 diabetes? Hey Sarah, I was 2 -3 years misdiagnosed around 17 years ago!! and unfortunately most adult onset type 1's are misdiagnosed. Doesn't seem to bother GP's that they're messing with out lives!! I have a bit of a bee in my bonnet about any newly diagnosed diabetics not being referred to see an Endo straight up. I can't understand, if there is a specialist available, why a G.P. wouldn't use that resource. The title says it all. "General" Practitioner. Knowing a little bit about a lot of things. "Specialist", knows a lot about ONE thing. The test I eventually had was a GAD test, (Glutamic Acid Decarboxylase Autoantibodies) Hope all is well. Eddie

Nov 15, 2018 IvanC 4 posts	Topic: General Discussion / Difference between user, graduate and hcp? Dear all, When I look into Users under "usertype" , I wonder what is the difference between a user, graduate and hcp? Had a quick search on the forum without success. I used to think that dafneonline users can only be a DAFNE graduates or an HCP who delivers DAFNE, but can family and friends of DAFNE graduates now (who is neither a DAFNE graduate nor an DAFNE HCP) also join dafneonline now? I look forward to your reply. Thanks for your help. Kindest regards Ivan

Nov 5, 2018 Bikerbert 2 posts	Topic: Carbohydrate Counting / Subtracting fibre carbs Thanks that's great to know

Nov 5, 2018 michaelj 45 posts	Topic: Carbohydrate Counting / Subtracting fibre carbs Apart from potatoes I wouldn't worry too much about carbs in veggies. One bright spark many years ago worked out that to eat 10 gms of carbohydrate in cabbage you would have to consume 32 lbs of the stuff. Most vegetables contain so little carbs that its hardly worth the worry. The Daphne handbook I have doesn't even list vegetables so there must be some truth in it.

Nov 4, 2018 Bikerbert 2 posts	Topic: Carbohydrate Counting / Subtracting fibre carbs Hi was wondering how do we count carbs in veg. I saw a video where the carbs were calculated by subtracting fibre from the total carbs is this correct for dafne

Nov 3, 2018 ken jones 3 posts	Topic: General Discussion / Metronome course Hi Are you on a pump ie Levemir ken

Nov 2, 2018 Simon 578 posts	Topic: Site Development / app/online issues Hi David, I tried sending you an email about this but it got bounced back, and also responded to your app store review as well. I think the issue may be because an incorrect username was entered into the app, and then it saved this when you changed it. A quick fix would be to fully close the app by following these instructions https://support.apple.com/en-gb/HT201330 I have added some improvements to the app in the latest version which should fix this issue without the need for a restart of the app. That's version 2.3.5 and is just waiting for a review by Apple. Sorry for the inconvenience. Simon

Oct 28, 2018 Simon Brown 1 post	Topic: Site Development / app/online issues Sorry DShort610, no i’ve not had that issue but want to add my findings to yours to add weight to the app issues we’ve found. Ive been enjoying using the app diary assuming it would be available for the DAFNE nurses to be able to see/advise. Howeve, I’ve just looked at my Diary and was not able to see yesterday’s results or any of last weeks results. Anyone else?? Decided to use the below dates to see if it drags the data out.

Oct 24, 2018 DShort610 1 post	Topic: Site Development / app/online issues I keep getting a CONNECTION FAILED INVALID USERNAME/PASSWORD when opening the app which makes it very cumbersome to log information. Anyone experiencing the same issue? Also I have tried submitting an email through the website regarding the issue but seem unable to submit my query.

Oct 23, 2018 IvanC 4 posts	Topic: DAFNE Online Mobile / Incorrect data affecting downloading, esp middle data? Hi everybody, it's my first post on DAFNE online so I hope I'm in the right place I got this query from a newly trained HCP whose DAFNE graduate encountered a problem, so I hope someone can shed some light for me. I have copied the relevant segment of the email enquiry describing the issue. "one of our DAFNE participants is having [problems] downloading her results on DAFNE online, she states that when she puts them in, one entry will say incorrect data or something like that so it won’t download. She says that is she puts in 8 entries or 10 entries it’s usually the middle data entry that won’t work. hope that makes sense." I have previously done a text search on the DAFNE online forum using "data", "download", ïncorrect" separately but not found anything helpful, hence me posting. Apart from encouraging this new DAFNE graduate to use this forum, is there other information I can ask for that may help solve the problem? All feedback and thoughts welcome Thanks in advance! Best Ivan

Oct 16, 2018 ChilliP 1 post	Topic: DAFNE Online Mobile / Dafne app on android Hi, sorry I am new here, but I will get round to introducing myself later on. I saw your post and just to update you that a manual search on Google Play and using the link provided on the homepage (which directs to https://play.google.com/store/apps/details?id=dafneonline.android) shows no results and the app is not found. I would say that either Google have pulled it or the app maker has.

Oct 16, 2018 Nat-Sav 15 posts	Topic: DAFNE Online Mobile / Dafne app on android I have the same problem. I am stuck without this app!

Oct 15, 2018 ScottW 1 post	Topic: Site Development / Dafne online... App Got a new android phone and went to the play store to reinstall all my app, Once they all downloaded I couldn't see the Dafne online app so I did a search for it and could not find it, Has it been discontinued for Android as its still on iOS or is there a problem that's getting looked in to?

Oct 9, 2018 hamisharchie 2 posts	Topic: DAFNE Online Mobile / Dafne app on android Why can't I find the Dafne app on Google play anymore. Had my phone replaced after a theft and now I can't find the Dafne app. Is it still available? I can't always get a decent WiFi to access the food diary online.

Oct 9, 2018 planehazza 4 posts	Topic: General Discussion / Split Levemir dose Hi all, first message here. Some very good tips and looks similar to me. I've just adjusted my PM BI to 15u of levimir and am still confirming that that is correct. Before bed last night, BG was 8.4, 3AM it was 6.5, and 7AM it was 6.0. I had 2CPs for breakfast at 8:30 and now, at 11:30, it is 16.6. My gut feeling is that my breakfast QA ratio needs upping from 1:1 to 1.5:1 or higher, as I've always need a little more insulin in the mornings before DAFNE (when I was on lantus). Assuming my PM BI is correct, what is the best way to adjust morning basal? Is it a case of seeing if all meals are causing high BIs and relying on QA ration adjustments if only one meal is out?

Oct 9, 2018 JimJamRS 2 posts	Topic: General Discussion / HGV 1 licences Hi all I am starting a new job next week. And they want to put me through my Class1 driving licence I thought I was not possible as when. I was diagnosed I could only drive up to 3.5 ton and 9passengers. It seem the rules have changed now probably as no one wants to drive an HGV. Any how has anyone got a class 1 license since becoming diabetic? How easy or hard was it? And can I get more log books to keep track of my levels? Thanks. James

Oct 8, 2018 Sarahlawlor 4 posts	Topic: General Discussion / whats the blood test called that identifies Type1 diabetes? Hi Clare, Thanks for taking the time to respond, as I recall I thought they asked me to have an additional blood test? I was diagnosed as a Type 2 diabetic at the age of 42 then 5 years later referred to Hospital to see a DSN who later confirmed I was actually Type 1. Sarah

Oct 4, 2018 Warwick 423 posts	Topic: General Discussion / Splitting lantus dose I also had a skin reaction when injecting Levemir, although the first 14 months on it were wonderful. I've also split-dose Lantus previously although I am currently on a single daily dose now for reasons that I can't quite remember - I was probably having too many hypos on the split dose. I find that Lantus usually lasts about 18 hours for me, not the full 24, but because I have it in the evening, and I cycle home 5 days a week, it works out OK as otherwise I tend to go a bit low on the cycle home. I do find with Lantus though that any changes seem to take a couple of days before they take effect which makes it difficult to work out what I need to change. Levemir on the other hand tended to be gone from my body pretty quickly (within 12-16 hours) making it much better for tweaking. Just a shame about the reaction.

Oct 4, 2018 Warwick 423 posts	Topic: Questions for HCPs / ½ a f n ¾ using libre freestyle for2 months It could be stress. It could also be a lot of other things. Do you inject, or use a pump? If you inject, how often do you inject basal insulin and what sort of basal do you inject? On days where you take more insulin than your carb counting would indicate that you require, do you then have a dip in blood glucose levels before dinner or are they fairly stable? If they stay stable, then it may just be that your insulin:carb ratio is a bit higher at lunchtime than at other times of the day. Skipping lunch may also help you see if your BGLs continue to rise from breakfast until dinner time without any food which would indicate that your basal dose is too low. Being able to see your diary would be helpful to see trends. Thanks, Warwick.