Recent Posts - DAFNE Online

Apr 24, 2019

sjohno 37 posts

Topic: General Discussion / Dismal Hba1c levels

I've been a T1 Diabetic for 40 years and became DAFNE educated in 2009. I'm on good old NovoRapid and Levemir.

Since completing DAFNE I have achieved a good level of Hba1c levels i.e. in April 2017 6.5, October 2017 6.3, Jun 2018 6.8 (this was due to being put on a TRUE Result BG meter) September 2018 6.3 (back on my Aviva after DAFNE writing a letter to my GP Practice). My next HBa1C will be in June 2019. Since 2010 I have regularly achieved between 6.3 and 6.5, my lowest was 5.9 in 2015.

I'm on good old insulin injected with a NovoPen, the Levemir is also in pen form.

Any food whether it be Simply, Essentials naturals, organics, home cooked, processed, vegan, low carb, low fat, low sugar etc etc foods will all contain some form of carbohydrate. Eating more often can result in more injections taken, not having true BG readings and not letting the insulin work in time for the pre food you've eaten.

I do try to eat healthily and attend 7 gym classes a week.

I think it all boils down to every T1 is different, how you get to learn your body and the curveballs it throws at you, how you wish to control, maintain and and look after everything. Very Happy

Apr 23, 2019

jh0 16 posts

Topic: General Discussion / Dismal Hba1c levels

Just one or two basic rules to your diet can go a long way to healthy eating.
1. Eliminate processed foods (the crap in plastic packaging). Focus on naturals, organics, home cooked meals. Don't buy "Simply" or "Essentials" brands from supermarkets - they are a false economy (not to mention very unhealthy albeit low in carbs too) Embarassed

2. Reduce the size of the meals but eat more often Cool

3. Try and avoid having dinner Very Happy

4. Eat (healthy) only when planning to do some exertion such as stepping out of the house, going to work or going out etc. The rest of the time you don't really need to eat. Shocked

Apr 23, 2019

novorapidboi26 1,818 posts

Topic: Questions ? / Tresiba change

Its hard to say for you personally....

with any insulin change however you should be doing a full sweep of the dose adjusting till its correct.....

you wont get the flexibility of two injections as you will with one, but I assume you know that.....

Apr 23, 2019

novorapidboi26 1,818 posts

Topic: General Discussion / Dismal Hba1c levels

I personally believe to achieve in range, consistent Hb levels you need to possess a pump, libre or CGM and pro actively choose your meals wisely......

if not, then numbers can creep up.......

I personally know what I need to do to achieve good numbers, but thats what makes it hard.....the temptations and distractions of life...

Apr 23, 2019

novorapidboi26 1,818 posts

Topic: General Discussion / DAFNE app for android

Dont think there is an android version, or not anymore at least.....I remember having it though....

Apr 23, 2019

novorapidboi26 1,818 posts

Topic: General Discussion / Background insulin

Your background wont behave like the quick acting will and so no, it will not, or should not, effect your levels after carbs, provided its the correct dose that is....

You should always take your background insulin at the same times every day, as its required to hold you steady, in the absence of carbs/quick acting over the whole 24 hours...

Apr 22, 2019

Tanisha Johns 1 post

Topic: General Discussion / Effects of stress on blood glucose levels

I will give you a decent blessing to turn into a researcher and begin to think all the more successfully, similar to a star. Use https://tonusjournal.com/weight-loss-questions/get-rid-skin-after-weight-loss/ rather than some moronic drugs. It causes me actually. What's more, I think an expectation that it will be useful to you as well. Don't hesitate to send me a message.

Apr 17, 2019

Gdorean 3 posts

Topic: Questions ? / Tresiba change

I've just switched from two Lantus injections per day to one of Tresiba. My question is this: I've been getting a lot of high blood sugars during the day and feeling rundown. When on Lantus, I took 16 at night and 12 in the morning. I am taking 22 units of Tresiba, as it was advised. Should I eventually be taking the same amount (2 Cool

of Tresiba, which I take in the morning?

Many thanks

Apr 16, 2019

torana 53 posts

Topic: Site Development / We're sorry, but something went wrong. We've been notified about this issue and we'll take a look at it shortly.

Hi Simon
Previously, I just went into the website through a bookmark and the error message appeared. I deleted the bookmark thinking that it would help and then started to type “DAFNE online” to bring up the forum page. The error message has still appeared. Basically, I have done nothing out of the usual or different in bringing up the forum page over the years being a member. It is the first such error I have ever received whilst searching any subject matter on the web.

Apr 16, 2019

Simon 574 posts

Topic: Site Development / We're sorry, but something went wrong. We've been notified about this issue and we'll take a look at it shortly.

Hi torana,

Sorry to hear that you've had that error - it shouldn't happen and it is correct in that something has gone wrong - could you let us know what you were doing on the site just before it was triggered?

Thanks,

Simon

Apr 16, 2019

NottsKnots 10 posts

Topic: Site Development / We're sorry, but something went wrong. We've been notified about this issue and we'll take a look at it shortly.

I did see it today when I retruned to a page that I had previously visited whilst logged on. I then logged back on and havent seen it since. Not sure about this site, but quite often that kind on message appears after a site update if your device hasnt got the latest updates (operating system or browser); the site updates tend to fix security flaws, and unless your device is up to date, you tend to get log-in related errors like that. Cant be sure thats your problem, but worth checking Smile

Apr 16, 2019

torana 53 posts

Topic: Site Development / We're sorry, but something went wrong. We've been notified about this issue and we'll take a look at it shortly.

Hi everyone,
Just recently I have had repeatedly a notice after logging onto the DAFNE website stating
“We're sorry, but something went wrong.
We've been notified about this issue and we'll take a look at it shortly.”

It is quite inconvenient after just logging onto the site and I was wondering if anyone else is receiving these messages.

Apr 14, 2019

Diaqueen 1 post

Topic: General Discussion / Background insulin

I have had a snack with cp of 6.5. I was wondering whether I need to take my usual 12 background insulin or reduce it.

Apr 14, 2019

Levitt01 1 post

Topic: General Discussion / DAFNE app for android

Hi,

I'm newly graduated and was looking at downloading the app but I can't find it in the app store. Has anyone else had the same problem? My friend found the app for the iPhone but had the same issue as me with the android version.

Thanks in advance,

Levitt Very Happy

Apr 13, 2019

tommo 7 posts

Topic: Carbohydrate Counting / extremely high blood first thing in the morning

[Hi Spuds,

Thank you for your thoughts on my problem. My blood sugar readings seem to be better now, partly down to my HCPs and partly my own feelings - after all it is my body!. I have a check up with the Doctor next Thursday so hopefully he/she will be able to help me further.

Tommo.

Apr 8, 2019

Kate_Spuds 1 post

Topic: Carbohydrate Counting / extremely high blood first thing in the morning

Hi tommo,

I didn't read the whole discussion, so someone might've mentioned it already.

I was on Levemir for quite a long time and always had my sugar spiking. After a bit of research it was found that it doesn't last 12 hours. Not for me at least. So one of the options might be a change of a basal Insulin. Was also suggested a pump, but going to try different basal first.

Apr 8, 2019

Mehreen 1 post

Topic: General Discussion / Travel and diabetes

People with both Type 1 and Type 2 diabetes can travel all over the world. It is not a barrier in travelling. There are some major things like tablets, or some prescription from GP that you should have to do while packing your bags. I have done tour to Hunza valley 2019 last month with my family; my aunt is also a diabetic patient and she had a great trip without any travel insurance.

Apr 5, 2019

jh0 16 posts

Topic: General Discussion / Top tips that people have learnt from their diabetes education course

Over the last few years I have very little exposure to media, marketing or hype. My levels have been < 65 consistently. Come to think about it, I've also had limited exposure to DAFNE over this time too.
All this and that is going but there's very little actual progress being made. What I've seen in the past 15-20 years is a cultural and industrial bias shifting towards "showing" to do something regardless of actual achievements, results, outcomes.

Apr 5, 2019

torana 53 posts

Topic: General Discussion / Top tips that people have learnt from their diabetes education course

Hi jh0. You’re no dimmy diabetic, just conned like many of us by short term studies, tips and fake media highlighting “success” whilst as stated many times “92% of Type1 are outside the normative Hba1c range.” A tip is not enough! We want key guidance how to maintain Hba1c with range over the long term!
How does this happen? Global pharmaceuticals pushing apps, research and medicinals. Their market is in the billions and influence on government bodies unimaginable. Isn’t it just great to hear about success. Theresa May with her app surrounded by her endos and advisors so she can get through a parliamentary session or a sportsman with a medical crew in the background kicking the winning goal. This is not “real” life and leaves the rest of us feeling sh…….

Apr 5, 2019

jh0 16 posts

Topic: General Discussion / Top tips that people have learnt from their diabetes education course

When is there going to be a cure? 30 years ago they were talking about a cure. So where is it?
I wanted to become an aircraft pilot 20 years ago but I couldn't be allowed.
Guess will have to settle for being a dimmy diabetic.

Apr 5, 2019

jh0 16 posts

Topic: General Discussion / Top tips that people have learnt from their diabetes education course

The only thing I learnt from it was reading the carbohydrate label on foods. Let's face it, the rest of it is essentially just massaged BS.

Exclamation

Apr 4, 2019

torana 53 posts

Topic: General Discussion / HbA1c news

Thanks for your reply jh0. You’re spot on.
It’s critical to understand how to achieve success from those who gain long term stable Hba1c in order to assist and support each other. This is the survey/ study/top tips we really need when 92% of British Type1’s have hba1c outside the normative range. Something ain’t working!
Why do we struggle everyday and go to so much trouble when there is an overwhelming chance of being outside the normative range? For example, if there were a 92% failure rate of students at a school or university, teachers heads would be on the chopping block. If car drivers had only an 8% success rate in getting home safely from work no doubt road rules would be changed. Etc etc…
Why are we then not told by our doctors of the difficulties in maintaining and achieving a satisfactory long term Hba1c level and directed to the best practices to maintain a stable range over many years?
Like jh0, I will take a guess at “best practices” in stating those 8% of Type1 diabetics within range over many years may;

 Be highly structured with their mealtimes and food intake,
 limit the amount of extra insulin taken in dose adjustments over a 24 hour period,
 have regular timing of meals

Apr 1, 2019

jh0 16 posts

Topic: General Discussion / DAFNE Diary Spreadsheet

I created a DAFNE diary spreadsheet that people might be interested in using instead of the hard copy notebooks they provide. The file is XXXX.ods in LibreCalc format. You can get LibreOffice here:

https://www.libreoffice.org/download/download/

If people need a Microsoft Excel format then give me a shout and I'll make the necessary amendments.

I also show a few sample diaries on how to fill the diary. These are my own diaries.

https://www.dropbox.com/sh/dhvidqnzp8c1ifs/AABQANzmZs89F_W4X-JqEY2ca?dl=0

Apr 1, 2019

jh0 16 posts

Topic: General Discussion / HbA1c news

If you're testing so much then its possible that you "over control" the levels. This isn't exactly what happens in a normal human body. No one seems to know or be interested in discussing the mapping of diabetic control with that of a normal functioning non-diabetic.

This isn't exactly rocket science. People should understand the problem and consider moulding the app and devices to their specific requirements.

Apr 1, 2019

jh0 16 posts

Topic: General Discussion / Dismal Hba1c levels

Achieving control isn't easy. DAFNE isn't perfect either, there are huge gaps in the principles. Equally NHS staff in the UK fall short of quality standards. Like robots they apply the principles and they're the first to blame the patient if things aren't going right. Any monkey can understand the DAFNE principles.

Back to your main question summing up, one needs to practise a certain life style in order to maintain some semblance of control. Dieting plays a very significant role in this I have since found out, aside from DAFNE. Now, the west isn't particularly renowned for healthy eating habits. I think that's why you see this correlation.

Apr 24, 2019 sjohno 37 posts	Topic: General Discussion / Dismal Hba1c levels I've been a T1 Diabetic for 40 years and became DAFNE educated in 2009. I'm on good old NovoRapid and Levemir. Since completing DAFNE I have achieved a good level of Hba1c levels i.e. in April 2017 6.5, October 2017 6.3, Jun 2018 6.8 (this was due to being put on a TRUE Result BG meter) September 2018 6.3 (back on my Aviva after DAFNE writing a letter to my GP Practice). My next HBa1C will be in June 2019. Since 2010 I have regularly achieved between 6.3 and 6.5, my lowest was 5.9 in 2015. I'm on good old insulin injected with a NovoPen, the Levemir is also in pen form. Any food whether it be Simply, Essentials naturals, organics, home cooked, processed, vegan, low carb, low fat, low sugar etc etc foods will all contain some form of carbohydrate. Eating more often can result in more injections taken, not having true BG readings and not letting the insulin work in time for the pre food you've eaten. I do try to eat healthily and attend 7 gym classes a week. I think it all boils down to every T1 is different, how you get to learn your body and the curveballs it throws at you, how you wish to control, maintain and and look after everything.

Apr 23, 2019 jh0 16 posts	Topic: General Discussion / Dismal Hba1c levels Just one or two basic rules to your diet can go a long way to healthy eating. 1. Eliminate processed foods (the crap in plastic packaging). Focus on naturals, organics, home cooked meals. Don't buy "Simply" or "Essentials" brands from supermarkets - they are a false economy (not to mention very unhealthy albeit low in carbs too) 2. Reduce the size of the meals but eat more often 3. Try and avoid having dinner 4. Eat (healthy) only when planning to do some exertion such as stepping out of the house, going to work or going out etc. The rest of the time you don't really need to eat.

Apr 23, 2019 novorapidboi26 1,818 posts	Topic: Questions ? / Tresiba change Its hard to say for you personally.... with any insulin change however you should be doing a full sweep of the dose adjusting till its correct..... you wont get the flexibility of two injections as you will with one, but I assume you know that.....

Apr 23, 2019 novorapidboi26 1,818 posts	Topic: General Discussion / Dismal Hba1c levels I personally believe to achieve in range, consistent Hb levels you need to possess a pump, libre or CGM and pro actively choose your meals wisely...... if not, then numbers can creep up....... I personally know what I need to do to achieve good numbers, but thats what makes it hard.....the temptations and distractions of life...

Apr 23, 2019 novorapidboi26 1,818 posts	Topic: General Discussion / DAFNE app for android Dont think there is an android version, or not anymore at least.....I remember having it though....

Apr 23, 2019 novorapidboi26 1,818 posts	Topic: General Discussion / Background insulin Your background wont behave like the quick acting will and so no, it will not, or should not, effect your levels after carbs, provided its the correct dose that is.... You should always take your background insulin at the same times every day, as its required to hold you steady, in the absence of carbs/quick acting over the whole 24 hours...

Apr 22, 2019 Tanisha Johns 1 post	Topic: General Discussion / Effects of stress on blood glucose levels I will give you a decent blessing to turn into a researcher and begin to think all the more successfully, similar to a star. Use https://tonusjournal.com/weight-loss-questions/get-rid-skin-after-weight-loss/ rather than some moronic drugs. It causes me actually. What's more, I think an expectation that it will be useful to you as well. Don't hesitate to send me a message.

Apr 17, 2019 Gdorean 3 posts	Topic: Questions ? / Tresiba change I've just switched from two Lantus injections per day to one of Tresiba. My question is this: I've been getting a lot of high blood sugars during the day and feeling rundown. When on Lantus, I took 16 at night and 12 in the morning. I am taking 22 units of Tresiba, as it was advised. Should I eventually be taking the same amount (2 of Tresiba, which I take in the morning? Many thanks

Apr 16, 2019 torana 53 posts	Topic: Site Development / We're sorry, but something went wrong. We've been notified about this issue and we'll take a look at it shortly. Hi Simon Previously, I just went into the website through a bookmark and the error message appeared. I deleted the bookmark thinking that it would help and then started to type “DAFNE online” to bring up the forum page. The error message has still appeared. Basically, I have done nothing out of the usual or different in bringing up the forum page over the years being a member. It is the first such error I have ever received whilst searching any subject matter on the web.

Apr 16, 2019 Simon 574 posts	Topic: Site Development / We're sorry, but something went wrong. We've been notified about this issue and we'll take a look at it shortly. Hi torana, Sorry to hear that you've had that error - it shouldn't happen and it is correct in that something has gone wrong - could you let us know what you were doing on the site just before it was triggered? Thanks, Simon

Apr 16, 2019 NottsKnots 10 posts	Topic: Site Development / We're sorry, but something went wrong. We've been notified about this issue and we'll take a look at it shortly. I did see it today when I retruned to a page that I had previously visited whilst logged on. I then logged back on and havent seen it since. Not sure about this site, but quite often that kind on message appears after a site update if your device hasnt got the latest updates (operating system or browser); the site updates tend to fix security flaws, and unless your device is up to date, you tend to get log-in related errors like that. Cant be sure thats your problem, but worth checking

Apr 16, 2019 torana 53 posts	Topic: Site Development / We're sorry, but something went wrong. We've been notified about this issue and we'll take a look at it shortly. Hi everyone, Just recently I have had repeatedly a notice after logging onto the DAFNE website stating “We're sorry, but something went wrong. We've been notified about this issue and we'll take a look at it shortly.” It is quite inconvenient after just logging onto the site and I was wondering if anyone else is receiving these messages.

Apr 14, 2019 Diaqueen 1 post	Topic: General Discussion / Background insulin I have had a snack with cp of 6.5. I was wondering whether I need to take my usual 12 background insulin or reduce it.

Apr 14, 2019 Levitt01 1 post	Topic: General Discussion / DAFNE app for android Hi, I'm newly graduated and was looking at downloading the app but I can't find it in the app store. Has anyone else had the same problem? My friend found the app for the iPhone but had the same issue as me with the android version. Thanks in advance, Levitt

Apr 13, 2019 tommo 7 posts	Topic: Carbohydrate Counting / extremely high blood first thing in the morning [Hi Spuds, Thank you for your thoughts on my problem. My blood sugar readings seem to be better now, partly down to my HCPs and partly my own feelings - after all it is my body!. I have a check up with the Doctor next Thursday so hopefully he/she will be able to help me further. Tommo.

Apr 8, 2019 Kate_Spuds 1 post	Topic: Carbohydrate Counting / extremely high blood first thing in the morning Hi tommo, I didn't read the whole discussion, so someone might've mentioned it already. I was on Levemir for quite a long time and always had my sugar spiking. After a bit of research it was found that it doesn't last 12 hours. Not for me at least. So one of the options might be a change of a basal Insulin. Was also suggested a pump, but going to try different basal first.

Apr 8, 2019 Mehreen 1 post	Topic: General Discussion / Travel and diabetes People with both Type 1 and Type 2 diabetes can travel all over the world. It is not a barrier in travelling. There are some major things like tablets, or some prescription from GP that you should have to do while packing your bags. I have done tour to Hunza valley 2019 last month with my family; my aunt is also a diabetic patient and she had a great trip without any travel insurance.

Apr 5, 2019 jh0 16 posts	Topic: General Discussion / Top tips that people have learnt from their diabetes education course Over the last few years I have very little exposure to media, marketing or hype. My levels have been < 65 consistently. Come to think about it, I've also had limited exposure to DAFNE over this time too. All this and that is going but there's very little actual progress being made. What I've seen in the past 15-20 years is a cultural and industrial bias shifting towards "showing" to do something regardless of actual achievements, results, outcomes.

Apr 5, 2019 torana 53 posts	Topic: General Discussion / Top tips that people have learnt from their diabetes education course Hi jh0. You’re no dimmy diabetic, just conned like many of us by short term studies, tips and fake media highlighting “success” whilst as stated many times “92% of Type1 are outside the normative Hba1c range.” A tip is not enough! We want key guidance how to maintain Hba1c with range over the long term! How does this happen? Global pharmaceuticals pushing apps, research and medicinals. Their market is in the billions and influence on government bodies unimaginable. Isn’t it just great to hear about success. Theresa May with her app surrounded by her endos and advisors so she can get through a parliamentary session or a sportsman with a medical crew in the background kicking the winning goal. This is not “real” life and leaves the rest of us feeling sh…….

Apr 5, 2019 jh0 16 posts	Topic: General Discussion / Top tips that people have learnt from their diabetes education course When is there going to be a cure? 30 years ago they were talking about a cure. So where is it? I wanted to become an aircraft pilot 20 years ago but I couldn't be allowed. Guess will have to settle for being a dimmy diabetic.

Apr 5, 2019 jh0 16 posts	Topic: General Discussion / Top tips that people have learnt from their diabetes education course The only thing I learnt from it was reading the carbohydrate label on foods. Let's face it, the rest of it is essentially just massaged BS.

Apr 4, 2019 torana 53 posts	Topic: General Discussion / HbA1c news Thanks for your reply jh0. You’re spot on. It’s critical to understand how to achieve success from those who gain long term stable Hba1c in order to assist and support each other. This is the survey/ study/top tips we really need when 92% of British Type1’s have hba1c outside the normative range. Something ain’t working! Why do we struggle everyday and go to so much trouble when there is an overwhelming chance of being outside the normative range? For example, if there were a 92% failure rate of students at a school or university, teachers heads would be on the chopping block. If car drivers had only an 8% success rate in getting home safely from work no doubt road rules would be changed. Etc etc… Why are we then not told by our doctors of the difficulties in maintaining and achieving a satisfactory long term Hba1c level and directed to the best practices to maintain a stable range over many years? Like jh0, I will take a guess at “best practices” in stating those 8% of Type1 diabetics within range over many years may;  Be highly structured with their mealtimes and food intake,  limit the amount of extra insulin taken in dose adjustments over a 24 hour period,  have regular timing of meals

Apr 1, 2019 jh0 16 posts	Topic: General Discussion / DAFNE Diary Spreadsheet I created a DAFNE diary spreadsheet that people might be interested in using instead of the hard copy notebooks they provide. The file is XXXX.ods in LibreCalc format. You can get LibreOffice here: https://www.libreoffice.org/download/download/ If people need a Microsoft Excel format then give me a shout and I'll make the necessary amendments. I also show a few sample diaries on how to fill the diary. These are my own diaries. https://www.dropbox.com/sh/dhvidqnzp8c1ifs/AABQANzmZs89F_W4X-JqEY2ca?dl=0

Apr 1, 2019 jh0 16 posts	Topic: General Discussion / HbA1c news If you're testing so much then its possible that you "over control" the levels. This isn't exactly what happens in a normal human body. No one seems to know or be interested in discussing the mapping of diabetic control with that of a normal functioning non-diabetic. This isn't exactly rocket science. People should understand the problem and consider moulding the app and devices to their specific requirements.

Apr 1, 2019 jh0 16 posts	Topic: General Discussion / Dismal Hba1c levels Achieving control isn't easy. DAFNE isn't perfect either, there are huge gaps in the principles. Equally NHS staff in the UK fall short of quality standards. Like robots they apply the principles and they're the first to blame the patient if things aren't going right. Any monkey can understand the DAFNE principles. Back to your main question summing up, one needs to practise a certain life style in order to maintain some semblance of control. Dieting plays a very significant role in this I have since found out, aside from DAFNE. Now, the west isn't particularly renowned for healthy eating habits. I think that's why you see this correlation.