Recent Posts - DAFNE Online

Oct 17, 2012

ladybirdov6 6 posts

Topic: General Discussion / Let's hear your story!

pfordmartin said:
Hello everyone. I am a freelance writer working on a feature piece about DAFNE for JDRFâ€™s Countdown magazine. Iâ€™m looking for a few DAFNE participant stories to share in the piece. Iâ€™d greatly appreciate you sharing your experiences to help our US readers learn more about this program. You can either post to this thread or private message me. Following is an idea of what I'm looking for...you can contribute as much or as little as you'd like:

When did you take the course?
Hi Took the course in September of this year (2012). Have recently decided to go back to the insulin that I was on before. Had enough of the side effects - not sleeping, excessive skin loss in mouth, dry mouth, itchy skin and painful joints. Hospital wanted to change basal but I have had enough. May try again later.
What was your favorite aspect of it? Overall impressions (good and bad)?

How was your control after completing DAFNE?

If itâ€™s been some time since you finished DAFNE, how is your control today?

Do you use the DAFNE Online site and tools frequently? How do they help (or not)?

And anything else you think is worth sharing!

Thanks in advance for your contributions. Iâ€™m looking forward to hearing your stories!

Best,
Paula Ford-Martn

EDIT: If you'd also like to share your diagnosis date and what brought you to DAFNE (how you were doing with diabetes control before the course), I'd love to hear about that too.

Oct 17, 2012

ladybirdov6 6 posts

Topic: General Discussion / What are you reading?

Simon said:
Just finished the 'The Girl' Series (With the Dragon Tattoo/Who Played With Fire/Who Kicked The Hornets nest). I'm not normally a reader but these has me engrossed!

After years of thinking of reading these I got round to it. SO glad I did. Did not think much of the Daniel Craig movie version. Am going to watch the original version when my son brings it home from squaddie camp.

Oct 17, 2012

ladybirdov6 6 posts

Topic: General Discussion / Flu Jabs

Refuse to have it. Had 2 several years apart and was generally unwell for 8 months plus. Would rather have flu than suffer.

Oct 17, 2012

goff 2 posts

Topic: Questions for HCPs / cla?

Cool, thanx for advice may get blood tests an body fat checked then try low dose Smile

Oct 16, 2012

SteveRowland 10 posts

Topic: Questions for HCPs / Help

Hi, everyone.

Just an update. I'm over the illness and the readings for the last week have been brilliant. How different from two weeks ago.

I really appreciate all the comments and support.

Oct 16, 2012

JayBee 587 posts

Topic: Carbohydrate Counting / pasta counting

I didn't say either because post-cooked weight isn't as reliable as pre-cooked.... Hence the explanation about water shifting the weight. :/

How long it was cooked for would matter a great deal really, especially with water absorbing foods.

Oct 16, 2012

novorapidboi26 1,819 posts

Topic: Questions for HCPs / cla?

never heard of this but from reading Wikipedia, it seems that it can be quite effective in weight management and getting some muscle on the go.......... Smile

However it did mention insulin resistance being a side effect, in obese non diabetic, and therefore causing diabetes, likely type 2, so from that information it might suggest that it would increase your resistance to insulin, making your exercise regime a lot harder to manage and pushing your insulin doses up, which would be defeating the purpose of the exercise and the CLA..........

I think though it would be a case of trial and error, so start of on a low dose of the CLA and see what it does to you blood sugars, then weigh up [excuse the PUN] the PROS and CONS......

Oct 16, 2012

novorapidboi26 1,819 posts

Topic: General Discussion / Cant get stable!!

when a change in background insulin takes place and a new job, which is physical from your description, it will require you to test your basal [levemir] again. So if it was me, I would start with the overnight dose..............go carb free/miss meals so your blood sugars have no outside influence from glucose or insulin.............repeat it a few times to confirm the numbers then make the necessary changes.........

once right, move on to your daytime dose......when these are both right, or near enough there, your QA adjustments should start to mean something meaningful......

as Alan suggested if you can get some BG entries up from the last three days at least you could get some suggestions from the forum......

Oct 16, 2012

Carolin 83 posts

Topic: Carbohydrate Counting / Carbohydrates help needed - ASDA Ready Sliced Tiger Chest

Hi Whiskysmum,

As a rule of thumb, for most breads 100g contains around 4.5 CPs (45% if you can work with the maths), so best bet is to weigh a slice; if it's say 50g that would be 2 CPs

Carolin

Oct 16, 2012

Carolin 83 posts

Topic: Carbohydrate Counting / pasta counting

Hi Paulj

JWo is right, it's about going off EITHER the dry (uncooked) value, OR the cooked value.

For example, pasta is approx 70g (7 CP) per 100g dried, but 30g (3 CP) per 100g cooked. So if your 220g was dry pasta that would be around 15.5 CPs. However, if the 220g was the cooked weight, that's only around 7 CPs.

Hope this helps?

Carolin

Oct 16, 2012

goff 2 posts

Topic: Questions for HCPs / cla?

Hi new to this whole site/app and finding it v useful! My specific question concerns CLA supplementation which some of my gym buddies use for weight control. Any advice for a diabetic??

Oct 15, 2012

richard.arkle 16 posts

Topic: Site Development / Different "Snacks" for different times of day

I wonder if anyone else is interested in this

Is it possible to have different "Snacks" such as:- 1000hrs, 1500hrs, 1800hrs and 2200hrs as my ratio varies throughout the day. A 1000hr snack is 1.5:1 but 1800hr is 3:1

At the moment I just manually enter the value of the units

Lovely App and very very useful, impresses my GP !!

Oct 14, 2012

JayBee 587 posts

Topic: Carbohydrate Counting / pasta counting

Did you get the weight before it was cooked or after?

Pasta is one of the foods where the CP amount changes due to water being absorbed... The best thing to do is get the pre-cooked/raw weight and then you know for sure what you're working with before the weight shift.

Other foods like this to watch out for are jacket potatoes (tend to lose water) and rice (tends to gain water). I'm sure others can think of more to be wary of. Smile

Best wishes!

Oct 14, 2012

paulj 36 posts

Topic: Carbohydrate Counting / pasta counting

i had 220 grams of pasta last night with my spaghetti bolognaise and with being on a one to one ratio for my CP S injected 22 units of quick acting insulin for the totral meal consumed (including pudding) the pack of pasta said it was 78carbs per 100 grams consumed. one and a half hours later my blood level was 3.4 and i had a hypo. anyone got any thoughts on the above?

i have just finished a DAFNE course last week and look forward to hearing from anyone who is interested in the future

cheers
paul

Oct 14, 2012

Alan 49 284 posts

Topic: General Discussion / Cant get stable!!

Hello Mike
If you keep an online Blood Glucose Diary on this site, include the entries for the last week or so, so that we can make comments and suggestions for improvements. This facility is just underneath the 'POST REPLY' box.

Oct 14, 2012

Mike87 10 posts

Topic: General Discussion / Cant get stable!!

Iv just recently moved house, got a new job and to top it all of changed by back ground insulin to levemir. The problem is the last couple of weeks my bloods have gone haywire!!! Im counting carbs, eating as healthy as possible, jobs pretty physical so good exercise and hitting the gym when I can. I cant get my bs back to how it was, feeling pretty clueless and lost right now and feeling rough!!! Trying to get into see a diabetic nurse is hard work as im still trying to join a new surgery!! Really dont no what to do!!! Could this all be down to the change of insulin?

Oct 13, 2012

Nicky 72 4 posts

Topic: General Discussion / What are you reading?

reading dawn french's dear fatty , haven't laughed this much in ages Very Happy

Oct 13, 2012

Nicky 72 4 posts

Topic: General Discussion / new meter

i have the contour usb its small with no need to calabrate Laughing

Oct 12, 2012

RichFreed 51 posts

Topic: General Discussion / new meter

My own conclusions were reached finaly on a side by side comparison with the another meter (Optium Exceed- now called freestyle exceed), as it became more apparent it was prone to spurious reading I found myself more & more, testing with the 2 meters for safety.

From the same sample area the exceed would read the same result consistantly, the Mobile would vary and hardly ever agree with the exceed (especially outside of normal target range). I may be wrong but the testing solutions for meters give test results in the target range which is indeed where I found the mobile to be the most accurate.

It remminded me very much of the the very first meter I had (early 90s) in terms of varing results. I believe it's because it uses the older type light technology to analyse the sample rather than the newer method which looks at electron flow (non technical description).

When I compare my Exceed to my Hospital's, calibrated daily, meter it is always within 0.1 mmol/L.

It's entirely posible I had a faulty one, but the meer fact that it came with a warning to be cautious with it's results from my HCPs, does not help it's cause.

Oct 11, 2012

mum2westiesGill 502 posts

Topic: General Discussion / Dafne Diary - looking for some comments / help (2)

LadyNovo777 said:
Why do you only test three times per day? --- no bedtime test! I test six to eight times per day (and always before driving. Am I alone in this?? I used to experience a lot of hypos during the night resulting in medical attention being required,

Yeah well the bed time testing I'm trying to get back into the habit of doing this but mainly it's because I go to bed about 2300pm ish or there abouts and am too tired at that time to do testing so just do my injection of BI Evil or Very Mad

any help or suggestions for this I would be very greatful of Very Happy

Oct 11, 2012

LadyNovo777 9 posts

Topic: General Discussion / Dafne Diary - looking for some comments / help (2)

whiskysmum said:
Just a bit of a continuation from when i did my last topic "Dafne Diary - looking for some comments / help" with dates from 20/8 - 27/8

Why do you only test three times per day? --- no bedtime test! I test six to eight times per day (and always before driving. Am I alone in this?? I used to experience a lot of hypos during the night resulting in medical attention being required,

Oct 11, 2012

meltow 78 posts

Topic: General Discussion / Flu Jabs

Like LadyNovo777 I'm sure I was told the pneumococcal was "once a lifetime" vaccine. Had mine several years ago, and has never been discussed with the Dr. again since.

Oct 11, 2012

mum2westiesGill 502 posts

Topic: General Discussion / Flu Jabs

Mines booked for Monday afternoon 15th October. After it i usually get a red patch on my arm, warm to the touch & the area sewlls up like a balloon for a couple of days Sad

I also thought the pneumonia vaccine was a 'one off'.

Oct 11, 2012

LadyNovo777 9 posts

Topic: General Discussion / Flu Jabs

Alan Jock Nisbet said:
I had my Flu Jag last Saturday, like Marke no real reaction, not even a tenter arm.

My pneumonia vaccine booster is due, the last time It felt like my left arm was about to fall off and my left side was tender so I am not looking forward to that jag.

Alan

I thought the pneumonia vaccine was a 'one off'. Am I wrong??

Oct 11, 2012

Alan 49 284 posts

Topic: General Discussion / Flu Jabs

I've been having the flu jabs since they first started and never suffered any adverse reactions.

Oct 17, 2012 ladybirdov6 6 posts	Topic: General Discussion / Let's hear your story! pfordmartin said: Hello everyone. I am a freelance writer working on a feature piece about DAFNE for JDRFâ€™s Countdown magazine. Iâ€™m looking for a few DAFNE participant stories to share in the piece. Iâ€™d greatly appreciate you sharing your experiences to help our US readers learn more about this program. You can either post to this thread or private message me. Following is an idea of what I'm looking for...you can contribute as much or as little as you'd like: When did you take the course? Hi Took the course in September of this year (2012). Have recently decided to go back to the insulin that I was on before. Had enough of the side effects - not sleeping, excessive skin loss in mouth, dry mouth, itchy skin and painful joints. Hospital wanted to change basal but I have had enough. May try again later. What was your favorite aspect of it? Overall impressions (good and bad)? How was your control after completing DAFNE? If itâ€™s been some time since you finished DAFNE, how is your control today? Do you use the DAFNE Online site and tools frequently? How do they help (or not)? And anything else you think is worth sharing! Thanks in advance for your contributions. Iâ€™m looking forward to hearing your stories! Best, Paula Ford-Martn EDIT: If you'd also like to share your diagnosis date and what brought you to DAFNE (how you were doing with diabetes control before the course), I'd love to hear about that too.

Oct 17, 2012 ladybirdov6 6 posts	Topic: General Discussion / What are you reading? Simon said: Just finished the 'The Girl' Series (With the Dragon Tattoo/Who Played With Fire/Who Kicked The Hornets nest). I'm not normally a reader but these has me engrossed! After years of thinking of reading these I got round to it. SO glad I did. Did not think much of the Daniel Craig movie version. Am going to watch the original version when my son brings it home from squaddie camp.

Oct 17, 2012 ladybirdov6 6 posts	Topic: General Discussion / Flu Jabs Refuse to have it. Had 2 several years apart and was generally unwell for 8 months plus. Would rather have flu than suffer.

Oct 17, 2012 goff 2 posts	Topic: Questions for HCPs / cla? Cool, thanx for advice may get blood tests an body fat checked then try low dose

Oct 16, 2012 SteveRowland 10 posts	Topic: Questions for HCPs / Help Hi, everyone. Just an update. I'm over the illness and the readings for the last week have been brilliant. How different from two weeks ago. I really appreciate all the comments and support.

Oct 16, 2012 JayBee 587 posts	Topic: Carbohydrate Counting / pasta counting I didn't say either because post-cooked weight isn't as reliable as pre-cooked.... Hence the explanation about water shifting the weight. :/ How long it was cooked for would matter a great deal really, especially with water absorbing foods.

Oct 16, 2012 novorapidboi26 1,819 posts	Topic: Questions for HCPs / cla? never heard of this but from reading Wikipedia, it seems that it can be quite effective in weight management and getting some muscle on the go.......... However it did mention insulin resistance being a side effect, in obese non diabetic, and therefore causing diabetes, likely type 2, so from that information it might suggest that it would increase your resistance to insulin, making your exercise regime a lot harder to manage and pushing your insulin doses up, which would be defeating the purpose of the exercise and the CLA.......... I think though it would be a case of trial and error, so start of on a low dose of the CLA and see what it does to you blood sugars, then weigh up [excuse the PUN] the PROS and CONS......

Oct 16, 2012 novorapidboi26 1,819 posts	Topic: General Discussion / Cant get stable!! when a change in background insulin takes place and a new job, which is physical from your description, it will require you to test your basal [levemir] again. So if it was me, I would start with the overnight dose..............go carb free/miss meals so your blood sugars have no outside influence from glucose or insulin.............repeat it a few times to confirm the numbers then make the necessary changes......... once right, move on to your daytime dose......when these are both right, or near enough there, your QA adjustments should start to mean something meaningful...... as Alan suggested if you can get some BG entries up from the last three days at least you could get some suggestions from the forum......

Oct 16, 2012 Carolin 83 posts	Topic: Carbohydrate Counting / Carbohydrates help needed - ASDA Ready Sliced Tiger Chest Hi Whiskysmum, As a rule of thumb, for most breads 100g contains around 4.5 CPs (45% if you can work with the maths), so best bet is to weigh a slice; if it's say 50g that would be 2 CPs Carolin

Oct 16, 2012 Carolin 83 posts	Topic: Carbohydrate Counting / pasta counting Hi Paulj JWo is right, it's about going off EITHER the dry (uncooked) value, OR the cooked value. For example, pasta is approx 70g (7 CP) per 100g dried, but 30g (3 CP) per 100g cooked. So if your 220g was dry pasta that would be around 15.5 CPs. However, if the 220g was the cooked weight, that's only around 7 CPs. Hope this helps? Carolin

Oct 16, 2012 goff 2 posts	Topic: Questions for HCPs / cla? Hi new to this whole site/app and finding it v useful! My specific question concerns CLA supplementation which some of my gym buddies use for weight control. Any advice for a diabetic??

Oct 15, 2012 richard.arkle 16 posts	Topic: Site Development / Different "Snacks" for different times of day I wonder if anyone else is interested in this Is it possible to have different "Snacks" such as:- 1000hrs, 1500hrs, 1800hrs and 2200hrs as my ratio varies throughout the day. A 1000hr snack is 1.5:1 but 1800hr is 3:1 At the moment I just manually enter the value of the units Lovely App and very very useful, impresses my GP !!

Oct 14, 2012 JayBee 587 posts	Topic: Carbohydrate Counting / pasta counting Did you get the weight before it was cooked or after? Pasta is one of the foods where the CP amount changes due to water being absorbed... The best thing to do is get the pre-cooked/raw weight and then you know for sure what you're working with before the weight shift. Other foods like this to watch out for are jacket potatoes (tend to lose water) and rice (tends to gain water). I'm sure others can think of more to be wary of. Best wishes!

Oct 14, 2012 paulj 36 posts	Topic: Carbohydrate Counting / pasta counting i had 220 grams of pasta last night with my spaghetti bolognaise and with being on a one to one ratio for my CP S injected 22 units of quick acting insulin for the totral meal consumed (including pudding) the pack of pasta said it was 78carbs per 100 grams consumed. one and a half hours later my blood level was 3.4 and i had a hypo. anyone got any thoughts on the above? i have just finished a DAFNE course last week and look forward to hearing from anyone who is interested in the future cheers paul

Oct 14, 2012 Alan 49 284 posts	Topic: General Discussion / Cant get stable!! Hello Mike If you keep an online Blood Glucose Diary on this site, include the entries for the last week or so, so that we can make comments and suggestions for improvements. This facility is just underneath the 'POST REPLY' box.

Oct 14, 2012 Mike87 10 posts	Topic: General Discussion / Cant get stable!! Iv just recently moved house, got a new job and to top it all of changed by back ground insulin to levemir. The problem is the last couple of weeks my bloods have gone haywire!!! Im counting carbs, eating as healthy as possible, jobs pretty physical so good exercise and hitting the gym when I can. I cant get my bs back to how it was, feeling pretty clueless and lost right now and feeling rough!!! Trying to get into see a diabetic nurse is hard work as im still trying to join a new surgery!! Really dont no what to do!!! Could this all be down to the change of insulin?

Oct 13, 2012 Nicky 72 4 posts	Topic: General Discussion / What are you reading? reading dawn french's dear fatty , haven't laughed this much in ages

Oct 13, 2012 Nicky 72 4 posts	Topic: General Discussion / new meter i have the contour usb its small with no need to calabrate

Oct 12, 2012 RichFreed 51 posts	Topic: General Discussion / new meter My own conclusions were reached finaly on a side by side comparison with the another meter (Optium Exceed- now called freestyle exceed), as it became more apparent it was prone to spurious reading I found myself more & more, testing with the 2 meters for safety. From the same sample area the exceed would read the same result consistantly, the Mobile would vary and hardly ever agree with the exceed (especially outside of normal target range). I may be wrong but the testing solutions for meters give test results in the target range which is indeed where I found the mobile to be the most accurate. It remminded me very much of the the very first meter I had (early 90s) in terms of varing results. I believe it's because it uses the older type light technology to analyse the sample rather than the newer method which looks at electron flow (non technical description). When I compare my Exceed to my Hospital's, calibrated daily, meter it is always within 0.1 mmol/L. It's entirely posible I had a faulty one, but the meer fact that it came with a warning to be cautious with it's results from my HCPs, does not help it's cause.

Oct 11, 2012 mum2westiesGill 502 posts	Topic: General Discussion / Dafne Diary - looking for some comments / help (2) LadyNovo777 said: Why do you only test three times per day? --- no bedtime test! I test six to eight times per day (and always before driving. Am I alone in this?? I used to experience a lot of hypos during the night resulting in medical attention being required, Yeah well the bed time testing I'm trying to get back into the habit of doing this but mainly it's because I go to bed about 2300pm ish or there abouts and am too tired at that time to do testing so just do my injection of BI any help or suggestions for this I would be very greatful of

Oct 11, 2012 LadyNovo777 9 posts	Topic: General Discussion / Dafne Diary - looking for some comments / help (2) whiskysmum said: Just a bit of a continuation from when i did my last topic "Dafne Diary - looking for some comments / help" with dates from 20/8 - 27/8 Why do you only test three times per day? --- no bedtime test! I test six to eight times per day (and always before driving. Am I alone in this?? I used to experience a lot of hypos during the night resulting in medical attention being required,

Oct 11, 2012 meltow 78 posts	Topic: General Discussion / Flu Jabs Like LadyNovo777 I'm sure I was told the pneumococcal was "once a lifetime" vaccine. Had mine several years ago, and has never been discussed with the Dr. again since.

Oct 11, 2012 mum2westiesGill 502 posts	Topic: General Discussion / Flu Jabs Mines booked for Monday afternoon 15th October. After it i usually get a red patch on my arm, warm to the touch & the area sewlls up like a balloon for a couple of days I also thought the pneumonia vaccine was a 'one off'.

Oct 11, 2012 LadyNovo777 9 posts	Topic: General Discussion / Flu Jabs Alan Jock Nisbet said: I had my Flu Jag last Saturday, like Marke no real reaction, not even a tenter arm. My pneumonia vaccine booster is due, the last time It felt like my left arm was about to fall off and my left side was tender so I am not looking forward to that jag. Alan I thought the pneumonia vaccine was a 'one off'. Am I wrong??

Oct 11, 2012 Alan 49 284 posts	Topic: General Discussion / Flu Jabs I've been having the flu jabs since they first started and never suffered any adverse reactions.