Recent Posts - DAFNE Online

Nov 7, 2012

mum2westiesGill 502 posts

Topic: General Discussion / Dafne Diary - looking for some comments / help (3)

Results continued

Nov 7, 2012

mum2westiesGill 502 posts

Topic: General Discussion / Dafne Diary - looking for some comments / help (3)

Results continued. Any comments are welcomed!

Nov 6, 2012

Simon 578 posts

Topic: General Discussion / Logging hb1ac

Hi Richard,

Not at the moment but ill put it on the to do list.

Thanks,

Simon

Nov 6, 2012

richard.arkle 16 posts

Topic: Site Development / Injection site list

Site description is very personal and so it should be, I will save you the sordid details of my own body shape and how difficult different parts are to reach.

Different folks are different shapes and have fat in different areas. For example I cannot imagine or reaching to inject into my arm or calf.

So for me and maybe others the places we inject are very specific and quite personal. Without a detailed anatomy not everyone will be satisfied with a restricted list of body areas.

As an alternative can I suggest a simple numeric system. You choose how to number your injecion sites from 1 to say 9 and those are the choices on the DAFNE App.

Personally I would go for:

1 - Left thigh
2 - Right thigh
3 - Left buttock
4 - Right buttock
5 - Left back
6 - Right back
7 - Left stomach
8 - Right stomach

Not everyone is going to agree on this so why not a simple 1 - 9 pick list

Alternatively just have a free text entry like the comments field and people can input their own patricular code for the sites, eg LT, RT, LB, RB etc

What do you think?

Cheers Richard

Nov 6, 2012

richard.arkle 16 posts

Topic: General Discussion / Logging hb1ac

Am I missing something, I thought that there was a place to log my latest hb1ac but I cant find where it is?

Cheers Richard Question

Nov 6, 2012

mac57 2 posts

Topic: Carbohydrate Counting / Pasta!

hi phil ive just read your msg about pasta and ive had problems for years with pasta and blood sugars.I tend to have low bs and ive tried all kinds of things but it got so bad that i tend to avoid pasta now even though i like it,its just not worth the trouble.I think it needs further investigation ,also have trouble with rice sometimes.

Nov 5, 2012

Mark26 2 posts

Topic: General Discussion / Hypos and testing

Could be a problem with your Background Insulin, especially if you inject it at night-time. I think we all worry about night time hypos, we wouldn't be human if we didn't! :-) In my experience, once you've got your BI correct, everything else fits nicely into place and within a bit my morning readings are normally 5 - 10.

Nov 5, 2012

NuMo 28 posts

Topic: General Discussion / Hypos and testing

I know what you mean - I HATE night time hypos. They are very scary and leave you shattered the next day. Have you talked to your Dafne rep about your night time BI?

Nov 5, 2012

mtspider 4 posts

Topic: General Discussion / unstable b/g's

Has anybody on DAFNE, with BOVINE NEUTRAL and LENTE insulin and using DAFNE. Any remarks , as I cannot get any stable B/G's other than first thing in morning. I have high readings during he day with on average 5-6 doses of Neutral and one a.m. dose of Lente.

Any comments

Slightly dis illusioned Sad

Malcolm

Nov 4, 2012

mum2westiesGill 502 posts

Topic: General Discussion / Insulin Pens with insulin cartridges

For QA / Bolus - I use the Humapen Luxura which goes up in 1 units - this is the one
https://www.mylillypen.com/luxura.aspx

For BI / Basal - I use the Autopen 24, the blue one which goes up in 2 units - it's the 2nd one down
http://www.owenmumford.com/en/range/6/autopen.html

Please can anyone tell me
1. what would happen with either of these pens if the device wasn't delivering correctly
and
2. how often do you think you should start using a new one

Thanks in advance for any replies Smile

Nov 2, 2012

DianeW 115 posts

Topic: General Discussion / Hypos and testing

Ah i understand now! Thanks for that. I have a problem with night time hypos in that i wake up in a panic and over treat in fear of not being high enough when i go back to sleep..must try not to i suppose so that i dont have to stay high until lunch

Nov 2, 2012

NuMo 28 posts

Topic: General Discussion / Hypos and testing

As I understand it, when you have a hypo the glucose reserves in your liver are used up. If you then have a further hypo your liver has no reserves to call upon. It needs the extra glucose to recharge its stores.

Nov 2, 2012

Mark26 2 posts

Topic: General Discussion / Hypos and testing

Hi. I think the main concern is a 'double dip' hypo, possibly caused by using very fast acting carbs. As you went low at 3am a further hypo may have occurred while you were asleep and less likely to feel the consequences. Finally, many people experience a BG above expected before breakfast as our bodies naturally release extra BG to assist with getting ourselves ready for the day. Best advice, monitor as normal and talk through your results with Diabetic nurse/doc if you think there is a problem. Mark

Nov 1, 2012

DianeW 115 posts

Topic: General Discussion / Hypos and testing

Can anyone explain again why we are not supposed to correct a high post hypo BG at the next mealtime? I had a hypo at 3am, at 8am I was 17 and it just doesn't feel right not to correct that. So I did, and at lunchtime I was 7.0.

Nov 1, 2012

mac57 2 posts

Topic: General Discussion / Post Readings

I was one of the first to try the dafne system and it has been great for me and gives me a lot more freedom and choice but you do have to put a bit more effort into regular blood testing etc.I have been diabetic since i was 13 years old,and so far i havent had any of the bad things that i know can happen. Very Happy

mac57

Nov 1, 2012

novorapidboi26 1,819 posts

Topic: General Discussion / Post Readings

They are high between meals as your food is digesting and releasing glucose into the blood stream, this will always happen, the trick is trying to keep the 'spike' as its called as low as you can.

This is done by trying to match up the theoretical digestion activity curve with the theoretical insulin activity curve. I don't know if theoretical is the right word but you know what I mean....

If you find your getting up to 13+ mmol/l 1.5-2 hours post meal then you should think about increasing the time between your injection and actually eating the meal. I use novo rapid as my QA and that takes 5-10 minutes to start working' however I need t least 15 minutes for it to be on par with my 'average' digestion date. Obviously everyone is different and every meal is different to, so its trail and error for each individual, as it is with all thing diabetes......;)

So to conclude its don to the timing of your per meal injection.........you should see the spikes drop

Oct 31, 2012

HelenP 218 posts

Topic: General Discussion / Cant get stable!!

Hi Sarah,
The blood infection aarrrggggghhhhhhhhhhhhhhhhhh!

I went overseas (Korea) to visit my daughter and her family and when In Korea i have to work really hard to keep the BGs down as they eat a lot of various rices and tend to put honey or palm sugar in their meat dishes. No one will hazard a guess as to exactly how I picked it up but it seems like I got it in Korea and actually had it for a couple of weeks.Drs say I could have caught it here and cooked it in Korea.

I felt tired and often went to bed very early and on one day when they had arranged a special outing I opted out as I was too tired (unlike me). I spent the day in bed but did not feel much better. So the only symptom I had was extreme tiredness. On the day I was to come home I had to change the infusion set at about 3:00am and when I got up to do that I passed out (I occasionally feel faint...low BP). Did not think much about it continued and went back to bed. The plane left at about 20:00 and when at the airport I felt unwell but not SICK. I ate an icecream and felt a little cold but as I was flying into Australia and dressed for that, I thought it was simply the outside temp. The plane trip back was unpleasant (very full) and cramped with several children who cried rather than slept! 10hour flight.

I arrived in Brisbane feeling OK but very tired. Through immigration, customs etc and into a cab to go home. I showered and went to bed. Woke up several hours later shivering. Into the shower to warm up and back to bed. This happened again later in the afternoon but when I woke at about 6:00pm I could not get off the bed. I rang the ambulance and again passed out when I went to open the door to make sure the ambos could get in! Short story: temperature 39.1, BP 110/40 and BG of 5.3. Diagnosis...very sick.
initially isolated but after tests moved to a ward and filled up with saline and antibiotics. Six days in hospital with BGs all over the place. I left hospital with TDD of close to 100 instead of my usual 65-75 and started working to get BGs and TDD down. TDD yesterday was 70.3 and all readings were between 3.8 and 10.1 (10 readings!). Heading in the right direction!

It has taken me some time but I now think that when Drs and nurses lay blame it is often because they do not have a good grasp of just how complex the whole thing is and how individual. It si not one size fits all!

I am on an Animas pump and what I have learnt is that it will take time and being impatient and reactive does you no good.

I seem to take a long time to bounce back and I just have to take my time and not expect instant results.

You sound like a younger version of me!

I usually target the midnight to dawn readings then the breakfast to lunch if you can get those right first it seems to make the afternoons more manageable. The last lot I work on are the 16:00-22:00. I do not eat after 18:00 so that makes it a bit easier.

I'd love to say be patient but I know what I think when I am told that, so ...tackle it bit by bit and good luck. Helen

Oct 31, 2012

sarahfergo 6 posts

Topic: General Discussion / Cant get stable!!

Hi Helen,

Thans for your reply how did you get the blood infection and how did you know you had it?

Im very impatient because i feel ill when my sugars are not great and it gets me down just wanting to jack it in, yes i know not the attitude to have but when you end up in hospital and the doctors make out its my fault its rather annoying.

What pump are you on Helen?

Oct 31, 2012

paulj 36 posts

Topic: General Discussion / new contour next usb blood glucose monitor

thanjks for all your help and advice.whilst on the subject i have a downloading cable and a computer disk sent from bayer on request to hopefully download my metre readings onto computer.do i need to download the software from the BAYER website as well as this is currently unavailable? has anyone done this previously and experienced any problems?
cheers
paulj Very Happy

Oct 31, 2012

paulj 36 posts

Topic: General Discussion / Post Readings

i was and am of the impression that as long as your blood glucose readings are within target at meal times then thats what matters.when i was recently on my DAFNE course a couple of weeks ago when i asked about taking readings between meals the nurse said why would i want to under normal circumstances? i used to (prior to dafne) take a reading 2 hours after a meal but apparently, unless i was pregnant, then there was no need to do this.the only timew i take readings now is when i am going to have a meal/snack to see if i need to make some corrections to my intended insulin dose.please if this is wrong can someone advise me as well as i am only a newbee to all this
cheers
paulj Very Happy

Oct 31, 2012

GarethAckrill 1 post

Topic: General Discussion / Post Readings

What should your BI be between meals?
I run high between meals but at some point before the next meal its within target but on the highside.
What is causing it to be so high?
How high would you expect it to be between meals and for how long?

I just worry that my average levels are high because they are always high between meals and on on target at meal times giving me a high Hb1c

Oct 31, 2012

mum2westiesGill 502 posts

Topic: General Discussion / Dafne Diary - looking for some comments / help (3)

My disastrous results continued Sad

Oct 31, 2012

mum2westiesGill 502 posts

Topic: General Discussion / Dafne Diary - looking for some comments / help (3)

As you can see my results are disastrous! My HB1AC was 9.6% in August 2011 then it went to 6.8% in December 2011. I've got an app on my smartphone called 'On Track' which is near enough with HB1AC results and it's currently showing my HB1AC as 8.2%!! Not as high as the 9.6% but still high enough. As you can see in my diary from my first topic I did 'looking for comments' I now enter CPs, ratios & I'm doing bedtime tests. I've upped my BI (lantus) twice each time by just 2u in the last couple of weeks. I'm not doing anything or eating anything different. Does anyone have any ideas as to what I can do to try to put this right? I currently don't need jelly babies but my poor OH (who's not diabetic) does!

Nov 7, 2012 mum2westiesGill 502 posts	Topic: General Discussion / Dafne Diary - looking for some comments / help (3) Results continued

Nov 7, 2012 mum2westiesGill 502 posts	Topic: General Discussion / Dafne Diary - looking for some comments / help (3) Results continued. Any comments are welcomed!

Nov 6, 2012 Simon 578 posts	Topic: General Discussion / Logging hb1ac Hi Richard, Not at the moment but ill put it on the to do list. Thanks, Simon

Nov 6, 2012 richard.arkle 16 posts	Topic: Site Development / Injection site list Site description is very personal and so it should be, I will save you the sordid details of my own body shape and how difficult different parts are to reach. Different folks are different shapes and have fat in different areas. For example I cannot imagine or reaching to inject into my arm or calf. So for me and maybe others the places we inject are very specific and quite personal. Without a detailed anatomy not everyone will be satisfied with a restricted list of body areas. As an alternative can I suggest a simple numeric system. You choose how to number your injecion sites from 1 to say 9 and those are the choices on the DAFNE App. Personally I would go for: 1 - Left thigh 2 - Right thigh 3 - Left buttock 4 - Right buttock 5 - Left back 6 - Right back 7 - Left stomach 8 - Right stomach Not everyone is going to agree on this so why not a simple 1 - 9 pick list Alternatively just have a free text entry like the comments field and people can input their own patricular code for the sites, eg LT, RT, LB, RB etc What do you think? Cheers Richard

Nov 6, 2012 richard.arkle 16 posts	Topic: General Discussion / Logging hb1ac Am I missing something, I thought that there was a place to log my latest hb1ac but I cant find where it is? Cheers Richard

Nov 6, 2012 mac57 2 posts	Topic: Carbohydrate Counting / Pasta! hi phil ive just read your msg about pasta and ive had problems for years with pasta and blood sugars.I tend to have low bs and ive tried all kinds of things but it got so bad that i tend to avoid pasta now even though i like it,its just not worth the trouble.I think it needs further investigation ,also have trouble with rice sometimes.

Nov 5, 2012 Mark26 2 posts	Topic: General Discussion / Hypos and testing Could be a problem with your Background Insulin, especially if you inject it at night-time. I think we all worry about night time hypos, we wouldn't be human if we didn't! :-) In my experience, once you've got your BI correct, everything else fits nicely into place and within a bit my morning readings are normally 5 - 10.

Nov 5, 2012 NuMo 28 posts	Topic: General Discussion / Hypos and testing I know what you mean - I HATE night time hypos. They are very scary and leave you shattered the next day. Have you talked to your Dafne rep about your night time BI?

Nov 5, 2012 mtspider 4 posts	Topic: General Discussion / unstable b/g's Has anybody on DAFNE, with BOVINE NEUTRAL and LENTE insulin and using DAFNE. Any remarks , as I cannot get any stable B/G's other than first thing in morning. I have high readings during he day with on average 5-6 doses of Neutral and one a.m. dose of Lente. Any comments Slightly dis illusioned Malcolm

Nov 4, 2012 mum2westiesGill 502 posts	Topic: General Discussion / Insulin Pens with insulin cartridges For QA / Bolus - I use the Humapen Luxura which goes up in 1 units - this is the one https://www.mylillypen.com/luxura.aspx For BI / Basal - I use the Autopen 24, the blue one which goes up in 2 units - it's the 2nd one down http://www.owenmumford.com/en/range/6/autopen.html Please can anyone tell me 1. what would happen with either of these pens if the device wasn't delivering correctly and 2. how often do you think you should start using a new one Thanks in advance for any replies

Nov 2, 2012 DianeW 115 posts	Topic: General Discussion / Hypos and testing Ah i understand now! Thanks for that. I have a problem with night time hypos in that i wake up in a panic and over treat in fear of not being high enough when i go back to sleep..must try not to i suppose so that i dont have to stay high until lunch

Nov 2, 2012 NuMo 28 posts	Topic: General Discussion / Hypos and testing As I understand it, when you have a hypo the glucose reserves in your liver are used up. If you then have a further hypo your liver has no reserves to call upon. It needs the extra glucose to recharge its stores.

Nov 2, 2012 Mark26 2 posts	Topic: General Discussion / Hypos and testing Hi. I think the main concern is a 'double dip' hypo, possibly caused by using very fast acting carbs. As you went low at 3am a further hypo may have occurred while you were asleep and less likely to feel the consequences. Finally, many people experience a BG above expected before breakfast as our bodies naturally release extra BG to assist with getting ourselves ready for the day. Best advice, monitor as normal and talk through your results with Diabetic nurse/doc if you think there is a problem. Mark

Nov 1, 2012 DianeW 115 posts	Topic: General Discussion / Hypos and testing Can anyone explain again why we are not supposed to correct a high post hypo BG at the next mealtime? I had a hypo at 3am, at 8am I was 17 and it just doesn't feel right not to correct that. So I did, and at lunchtime I was 7.0.

Nov 1, 2012 mac57 2 posts	Topic: General Discussion / Post Readings I was one of the first to try the dafne system and it has been great for me and gives me a lot more freedom and choice but you do have to put a bit more effort into regular blood testing etc.I have been diabetic since i was 13 years old,and so far i havent had any of the bad things that i know can happen. mac57

Nov 1, 2012 novorapidboi26 1,819 posts	Topic: General Discussion / Post Readings They are high between meals as your food is digesting and releasing glucose into the blood stream, this will always happen, the trick is trying to keep the 'spike' as its called as low as you can. This is done by trying to match up the theoretical digestion activity curve with the theoretical insulin activity curve. I don't know if theoretical is the right word but you know what I mean.... If you find your getting up to 13+ mmol/l 1.5-2 hours post meal then you should think about increasing the time between your injection and actually eating the meal. I use novo rapid as my QA and that takes 5-10 minutes to start working' however I need t least 15 minutes for it to be on par with my 'average' digestion date. Obviously everyone is different and every meal is different to, so its trail and error for each individual, as it is with all thing diabetes......;) So to conclude its don to the timing of your per meal injection.........you should see the spikes drop

Oct 31, 2012 HelenP 218 posts	Topic: General Discussion / Cant get stable!! Hi Sarah, The blood infection aarrrggggghhhhhhhhhhhhhhhhhh! I went overseas (Korea) to visit my daughter and her family and when In Korea i have to work really hard to keep the BGs down as they eat a lot of various rices and tend to put honey or palm sugar in their meat dishes. No one will hazard a guess as to exactly how I picked it up but it seems like I got it in Korea and actually had it for a couple of weeks.Drs say I could have caught it here and cooked it in Korea. I felt tired and often went to bed very early and on one day when they had arranged a special outing I opted out as I was too tired (unlike me). I spent the day in bed but did not feel much better. So the only symptom I had was extreme tiredness. On the day I was to come home I had to change the infusion set at about 3:00am and when I got up to do that I passed out (I occasionally feel faint...low BP). Did not think much about it continued and went back to bed. The plane left at about 20:00 and when at the airport I felt unwell but not SICK. I ate an icecream and felt a little cold but as I was flying into Australia and dressed for that, I thought it was simply the outside temp. The plane trip back was unpleasant (very full) and cramped with several children who cried rather than slept! 10hour flight. I arrived in Brisbane feeling OK but very tired. Through immigration, customs etc and into a cab to go home. I showered and went to bed. Woke up several hours later shivering. Into the shower to warm up and back to bed. This happened again later in the afternoon but when I woke at about 6:00pm I could not get off the bed. I rang the ambulance and again passed out when I went to open the door to make sure the ambos could get in! Short story: temperature 39.1, BP 110/40 and BG of 5.3. Diagnosis...very sick. initially isolated but after tests moved to a ward and filled up with saline and antibiotics. Six days in hospital with BGs all over the place. I left hospital with TDD of close to 100 instead of my usual 65-75 and started working to get BGs and TDD down. TDD yesterday was 70.3 and all readings were between 3.8 and 10.1 (10 readings!). Heading in the right direction! It has taken me some time but I now think that when Drs and nurses lay blame it is often because they do not have a good grasp of just how complex the whole thing is and how individual. It si not one size fits all! I am on an Animas pump and what I have learnt is that it will take time and being impatient and reactive does you no good. I seem to take a long time to bounce back and I just have to take my time and not expect instant results. You sound like a younger version of me! I usually target the midnight to dawn readings then the breakfast to lunch if you can get those right first it seems to make the afternoons more manageable. The last lot I work on are the 16:00-22:00. I do not eat after 18:00 so that makes it a bit easier. I'd love to say be patient but I know what I think when I am told that, so ...tackle it bit by bit and good luck. Helen

Oct 31, 2012 sarahfergo 6 posts	Topic: General Discussion / Cant get stable!! Hi Helen, Thans for your reply how did you get the blood infection and how did you know you had it? Im very impatient because i feel ill when my sugars are not great and it gets me down just wanting to jack it in, yes i know not the attitude to have but when you end up in hospital and the doctors make out its my fault its rather annoying. What pump are you on Helen?

Oct 31, 2012 paulj 36 posts	Topic: General Discussion / new contour next usb blood glucose monitor thanjks for all your help and advice.whilst on the subject i have a downloading cable and a computer disk sent from bayer on request to hopefully download my metre readings onto computer.do i need to download the software from the BAYER website as well as this is currently unavailable? has anyone done this previously and experienced any problems? cheers paulj

Oct 31, 2012 paulj 36 posts	Topic: General Discussion / Post Readings i was and am of the impression that as long as your blood glucose readings are within target at meal times then thats what matters.when i was recently on my DAFNE course a couple of weeks ago when i asked about taking readings between meals the nurse said why would i want to under normal circumstances? i used to (prior to dafne) take a reading 2 hours after a meal but apparently, unless i was pregnant, then there was no need to do this.the only timew i take readings now is when i am going to have a meal/snack to see if i need to make some corrections to my intended insulin dose.please if this is wrong can someone advise me as well as i am only a newbee to all this cheers paulj

Oct 31, 2012 GarethAckrill 1 post	Topic: General Discussion / Post Readings What should your BI be between meals? I run high between meals but at some point before the next meal its within target but on the highside. What is causing it to be so high? How high would you expect it to be between meals and for how long? I just worry that my average levels are high because they are always high between meals and on on target at meal times giving me a high Hb1c

Oct 31, 2012 mum2westiesGill 502 posts	Topic: General Discussion / Dafne Diary - looking for some comments / help (3) My disastrous results continued

Oct 31, 2012 mum2westiesGill 502 posts	Topic: General Discussion / Dafne Diary - looking for some comments / help (3) As you can see my results are disastrous! My HB1AC was 9.6% in August 2011 then it went to 6.8% in December 2011. I've got an app on my smartphone called 'On Track' which is near enough with HB1AC results and it's currently showing my HB1AC as 8.2%!! Not as high as the 9.6% but still high enough. As you can see in my diary from my first topic I did 'looking for comments' I now enter CPs, ratios & I'm doing bedtime tests. I've upped my BI (lantus) twice each time by just 2u in the last couple of weeks. I'm not doing anything or eating anything different. Does anyone have any ideas as to what I can do to try to put this right? I currently don't need jelly babies but my poor OH (who's not diabetic) does!