Recent Posts - DAFNE Online

Mar 16, 2013

mum2westiesGill 502 posts

Topic: General Discussion / 7-day waking average

4.4 - bedtime
6.1 - this morning

- 21.33pm - tea & QA - @21.06 - hypo - treated with 4 jelly babies
- 01.10am - bedtime test was done
- no supper tonight due to late tea

Pizza (takeaway) for tea / garlic bread / had 2 mini choc bscts as garlic bread not eaten

100g cho/carbs

Insilin 10u humalog, split into two doses, first 6u before eating, remaining 4u 1 hour later

Before pizza = 3.3 (treated) then 6.2
+1 hour = 3.7! ( but took remaining 4u of QA!)
+2 hour = 5.3
+4 hour = 4.4 (bed)

Mar 16, 2013

HelenP 218 posts

Topic: General Discussion / Pump Accessories Questionaire

1. Sometimes especially in the hot weather.
2, I wear a band made from a flexible lycra material around my waist.
3. Local producer.
4. I have tried a baby sock pinned to the side of T shirts for bed. I have also tried a phone sock that you wore around your neck similarly to a lanyard. Hopeless.
5. Enough.
6. Yes
7.Does not matter.
8. Smaller pump. I think the secret is battery size with better batteries we ought to be able to reduce the size of the pump. The issue is wearing it to bed... especially when you wear little or no clothing to bed! Daytime does not bother me although the pump occasionally bungee jumps when getting out of the car etc.

Mar 16, 2013

JayBee 587 posts

Topic: General Discussion / Improving DAFNE online manual

If the link in marke's post isn't working for you (it doesn't for me), try this link to the insulin section.

It will only work if you're a site member and a verified graduate.

Mar 15, 2013

marke 681 posts

Topic: Carbohydrate Counting / iPhone app carbs list

Hi, I have now been sent version 10 of the Carb book that apparently came out last year but didn't get sent to us. This increases the carb value of a Jacket Potato to 10.5 from 10, it doesn't decrease it to 7 !! I am told there is a version 11 being worked on for release later in the year, Either way no one has ever told me its actually 7. When you say they gave you 'changes' where these printed and by whom since the course literature is supposed to be fixed and controlled by DAFNE Central which is why we can only publish what they send us. Any changes would have to come from them not from local HCP's making their own changes, thats not how its supposed to work.

Mar 15, 2013

marke 681 posts

Topic: General Discussion / Improving DAFNE online manual

Hi, sorry but the online handbook is an electronic version of the one given out on the course ,we cannot add or change it in anyway, we are not allowed to do so. We are also not allowed to make it available in PDF format because it could be shared to non-DAFNE Diabetics. The section on insulin injections is here its in the section on insulin. I'm not sure what your comment 1) means, as previously we cannot 'add' anything to the handbook. This response is all I can do, which tells you where to look.

Mar 15, 2013

JayBee 587 posts

Topic: General Discussion / Weight training

It'll be a thread on this forum - you'll be able to follow it easily. No worries.

Hope it all works out to help you continue your training. Smile

Mar 15, 2013

Mike87 10 posts

Topic: General Discussion / Weight training

Thanks for all the responses, very helpful. My PT has given me some references to read up on just thought I'd ask people in the same situ as me.

Jwo that sounds good, could u keep updated on this thread and what goes on??

Mar 15, 2013

JayBee 587 posts

Topic: General Discussion / Weight training

NuMo is correct. The type of exercise matters and you'll find you will need to adjust insulin as your body needs that as much as carbs
for exercise.

Warwick and I are going to start a conversation soon linked to this sort of thing after reading a book recently published call "your diabetes science experiment" by Ginger Vieira. It compliments DAFNE by adding more information detail, so I do recommend reading it generally.

We plan to start the new thread soon once a few experiments are done.

Mar 15, 2013

Garry 328 posts

Topic: General Discussion / Weight training

Don't be surprised Mike87.
Depending on how rigorous your training is you may well find BGs going up initially as we respond to adreniline and other hormones which make us temporarily insulin resistant.
Your liver also may also respond by releasing it's store of glucagen into your bloodstream as a 'Fight-or-Flight' preparation.
So try get as much information on what your BGs do, both before and after exercise and you'll get to know your normal response. Unusual BGs then are much more clear and you can try figure out what made them differ.
Regards
Garry

Mar 15, 2013

NuMo 28 posts

Topic: General Discussion / Weight training

Hello Mike,

I can't comment on weight training as it is not my field. However, your experience is similar to mine. I am a Yoga Teacher and I find coping with exercise quite tricky. It is so unpredictable - sometimes bg goes down, other times it goes up. According to runsweet.com, this is due to the aerobic/anaerobic quality of the exercise. They may be able to give you more detailed information than I can.

Mar 15, 2013

Rach101 3 posts

Topic: General Discussion / Pump Accessories Questionaire

Hi guys,

I'm doing a college project on Type 1 Diabetes regarding the Insulin pumps. I was just wondering if anyone would answer some questions? It would be a great help.

1. Do you use any pump accessories to wear your pump?
2. If yes, which accessories do you use?
3. Where did you buy the accessory from?
4. Would you use a phone sock to cover your pump?
5. Do you think there is a good range of accessories to choose from?
6. Are the accessories easily sourced/found?
7. What type of patterns would appeal to you? Plain/Stand out?
8. Any recommendations on what you find comfortable to wear?

If you could answer any of these questions I would really appreciate it. Very Happy

Mar 15, 2013

Mike87 10 posts

Topic: General Discussion / Weight training

Hi guys.

Can anyone tell me the effects of weight/resistance training has a blood sugars? Several times I have started training with good sugars and during training, then about an hour after I have high sugars!!

Mar 15, 2013

mum2westiesGill 502 posts

Topic: General Discussion / 7-day waking average

5.4 - bedtime
7.1 - this morning

- 18.37pm - tea & QA - @18.17pm - hypo - treated with 4 jelly babies
- 22.13pm - bedtime test was done
- supper was sandwich 1 slice (tuna & mayo)

Mar 14, 2013

mum2westiesGill 502 posts

Topic: General Discussion / 7-day waking average

5.2 - bedtime
4.2 - this morning

- 19.14pm - tea & QA - ratio is 1:10 but took 1u QA less - BS was 5.6
- 22.16pm - bedtime test was done
- supper was sandwich 1 slice (tuna & mayo)

Mar 14, 2013

JayBee 587 posts

Topic: General Discussion / Unexplained high bg

I hope you're going to be okay mags2101. Sad

It sounds like illness to me too; what are your ketone levels? Also, were they tested for by urine test or blood test?

Best wishes.

Mar 13, 2013

vinod 5 posts

Topic: General Discussion / Autoimmune Urticaria

Does anyone suffering from Autoimmune Urticaria???

Mar 13, 2013

vinod 5 posts

Topic: General Discussion / Improving DAFNE online manual

I was going through DAFNE course handbook. It's a very useful book for me and I use this as a reference document. I would like to suggest few changes in the handbook, if it's possible to make the changes.

1) Please add a note on where should we inject insulin. It may be somewhere in the document, but it's not easy to find it out from the main
menu.
2) Add *JEPG image or pictures, whenever it's required.
3) I dont know if it's possible to have this manual in *.pdf format? It'll be useful to have this as a standard pdf document.

With Regards,

Vinod Kavle

Mar 13, 2013

Stew B 125 posts

Topic: General Discussion / Apps

Would anyone like to share info about iPhone/ Android apps that are useful? I'm thinking particularly about commercial apps that give nutrition information about the company's products. For example, my old favourite McDonalds have an iPhone app that includes nutrition inf. about all their products - including up to date information about their one-off specials. Given the free wi-fi available in most McDs I find I use the app a lot.

KFC have an app which links you to the nutritional info section of their website - useful but a bit clumsy. I see that BK also have an app that provides nutrition info on their menu, and there must be loads more.

Stew

Mar 13, 2013

mum2westiesGill 502 posts

Topic: General Discussion / 7-day waking average

3.1 - bedtime
10.0 - this morning

- 19.21pm - tea & QA
- 22.57pm - bedtime test was done - 3.1 - had 4 jelly babies - no idea where this hypo came from
- 23.14pm - 3.2 - had 2 jelly babies
- 23.27pm - 3.8 - bit fed up at this stage so had supper - sandwich 1 slice with corned beef/pkt skips/mini asda choc biscuit

Mar 12, 2013

Alan 49 284 posts

Topic: General Discussion / Unexplained high bg

Sounds like you're sickening for something. Don't forget to test for ketones.

Mar 12, 2013

Mags2101 4 posts

Topic: General Discussion / Unexplained high bg

I am eating virtually no carbs and despite adjusting have continual high bg. Latest 18.7. I have a lot of pain in my back could this be the cause?

Mar 12, 2013

mum2westiesGill 502 posts

Topic: General Discussion / 7-day waking average

12.1 - bedtime
10.2 - this morning

- 18.28pm - tea & QA
- 22.20pm - bedtime test was done, before having supper instead of after
- supper was potato cake & tuna

Mar 12, 2013

Stew B 125 posts

Topic: General Discussion / Advise on pump please

At the end of the day, assuming that you are given the opportunity to use a pump, whether it's succesful for you will depend on whether in practice the advantages outweigh the disadvantages. As a DAFNE graduate I have pretty good control, but last Summer I was given the opportunity to go on to a pump to help deal with a larger than desired number of hypos and some difficulties with exercise. For me, I found that the pump was a real intrusion into my daily life, a constant reminder that I have diabetes. When I did my DAFNE course in 2007 it was a life-changer, allowing me to be normal(ish) again. I stuck with the pump for five months, but in the end my HCPs and I decided that it wasn't for me. In fact, my HbA1c went up with the pump (it was pretty good with DAFNE) and didn't seem to want to come down, although my hypos did reduce.

I'm now back on DAFNE and my HbA1c has come down significantly. My HCPs were brilliant, I wasn't made to feel a "failure", and they were always there for both technical advice and discussion. My advice would be to give it a go if you get the chance - the worst that can happen is that it doesn't work for you, and DAFNE is always there to return to. At least you'll know!

Good luck!

Stew

Mar 16, 2013 mum2westiesGill 502 posts	Topic: General Discussion / 7-day waking average 4.4 - bedtime 6.1 - this morning - 21.33pm - tea & QA - @21.06 - hypo - treated with 4 jelly babies - 01.10am - bedtime test was done - no supper tonight due to late tea Pizza (takeaway) for tea / garlic bread / had 2 mini choc bscts as garlic bread not eaten 100g cho/carbs Insilin 10u humalog, split into two doses, first 6u before eating, remaining 4u 1 hour later Before pizza = 3.3 (treated) then 6.2 +1 hour = 3.7! ( but took remaining 4u of QA!) +2 hour = 5.3 +4 hour = 4.4 (bed)

Mar 16, 2013 HelenP 218 posts	Topic: General Discussion / Pump Accessories Questionaire 1. Sometimes especially in the hot weather. 2, I wear a band made from a flexible lycra material around my waist. 3. Local producer. 4. I have tried a baby sock pinned to the side of T shirts for bed. I have also tried a phone sock that you wore around your neck similarly to a lanyard. Hopeless. 5. Enough. 6. Yes 7.Does not matter. 8. Smaller pump. I think the secret is battery size with better batteries we ought to be able to reduce the size of the pump. The issue is wearing it to bed... especially when you wear little or no clothing to bed! Daytime does not bother me although the pump occasionally bungee jumps when getting out of the car etc.

Mar 16, 2013 JayBee 587 posts	Topic: General Discussion / Improving DAFNE online manual If the link in marke's post isn't working for you (it doesn't for me), try this link to the insulin section. It will only work if you're a site member and a verified graduate.

Mar 15, 2013 marke 681 posts	Topic: Carbohydrate Counting / iPhone app carbs list Hi, I have now been sent version 10 of the Carb book that apparently came out last year but didn't get sent to us. This increases the carb value of a Jacket Potato to 10.5 from 10, it doesn't decrease it to 7 !! I am told there is a version 11 being worked on for release later in the year, Either way no one has ever told me its actually 7. When you say they gave you 'changes' where these printed and by whom since the course literature is supposed to be fixed and controlled by DAFNE Central which is why we can only publish what they send us. Any changes would have to come from them not from local HCP's making their own changes, thats not how its supposed to work.

Mar 15, 2013 marke 681 posts	Topic: General Discussion / Improving DAFNE online manual Hi, sorry but the online handbook is an electronic version of the one given out on the course ,we cannot add or change it in anyway, we are not allowed to do so. We are also not allowed to make it available in PDF format because it could be shared to non-DAFNE Diabetics. The section on insulin injections is here its in the section on insulin. I'm not sure what your comment 1) means, as previously we cannot 'add' anything to the handbook. This response is all I can do, which tells you where to look.

Mar 15, 2013 JayBee 587 posts	Topic: General Discussion / Weight training It'll be a thread on this forum - you'll be able to follow it easily. No worries. Hope it all works out to help you continue your training.

Mar 15, 2013 Mike87 10 posts	Topic: General Discussion / Weight training Thanks for all the responses, very helpful. My PT has given me some references to read up on just thought I'd ask people in the same situ as me. Jwo that sounds good, could u keep updated on this thread and what goes on??

Mar 15, 2013 JayBee 587 posts	Topic: General Discussion / Weight training NuMo is correct. The type of exercise matters and you'll find you will need to adjust insulin as your body needs that as much as carbs for exercise. Warwick and I are going to start a conversation soon linked to this sort of thing after reading a book recently published call "your diabetes science experiment" by Ginger Vieira. It compliments DAFNE by adding more information detail, so I do recommend reading it generally. We plan to start the new thread soon once a few experiments are done.

Mar 15, 2013 Garry 328 posts	Topic: General Discussion / Weight training Don't be surprised Mike87. Depending on how rigorous your training is you may well find BGs going up initially as we respond to adreniline and other hormones which make us temporarily insulin resistant. Your liver also may also respond by releasing it's store of glucagen into your bloodstream as a 'Fight-or-Flight' preparation. So try get as much information on what your BGs do, both before and after exercise and you'll get to know your normal response. Unusual BGs then are much more clear and you can try figure out what made them differ. Regards Garry

Mar 15, 2013 NuMo 28 posts	Topic: General Discussion / Weight training Hello Mike, I can't comment on weight training as it is not my field. However, your experience is similar to mine. I am a Yoga Teacher and I find coping with exercise quite tricky. It is so unpredictable - sometimes bg goes down, other times it goes up. According to runsweet.com, this is due to the aerobic/anaerobic quality of the exercise. They may be able to give you more detailed information than I can.

Mar 15, 2013 Rach101 3 posts	Topic: General Discussion / Pump Accessories Questionaire Hi guys, I'm doing a college project on Type 1 Diabetes regarding the Insulin pumps. I was just wondering if anyone would answer some questions? It would be a great help. 1. Do you use any pump accessories to wear your pump? 2. If yes, which accessories do you use? 3. Where did you buy the accessory from? 4. Would you use a phone sock to cover your pump? 5. Do you think there is a good range of accessories to choose from? 6. Are the accessories easily sourced/found? 7. What type of patterns would appeal to you? Plain/Stand out? 8. Any recommendations on what you find comfortable to wear? If you could answer any of these questions I would really appreciate it.

Mar 15, 2013 Mike87 10 posts	Topic: General Discussion / Weight training Hi guys. Can anyone tell me the effects of weight/resistance training has a blood sugars? Several times I have started training with good sugars and during training, then about an hour after I have high sugars!!

Mar 15, 2013 mum2westiesGill 502 posts	Topic: General Discussion / 7-day waking average 5.4 - bedtime 7.1 - this morning - 18.37pm - tea & QA - @18.17pm - hypo - treated with 4 jelly babies - 22.13pm - bedtime test was done - supper was sandwich 1 slice (tuna & mayo)

Mar 14, 2013 mum2westiesGill 502 posts	Topic: General Discussion / 7-day waking average 5.2 - bedtime 4.2 - this morning - 19.14pm - tea & QA - ratio is 1:10 but took 1u QA less - BS was 5.6 - 22.16pm - bedtime test was done - supper was sandwich 1 slice (tuna & mayo)

Mar 14, 2013 JayBee 587 posts	Topic: General Discussion / Unexplained high bg I hope you're going to be okay mags2101. It sounds like illness to me too; what are your ketone levels? Also, were they tested for by urine test or blood test? Best wishes.

Mar 13, 2013 vinod 5 posts	Topic: General Discussion / Autoimmune Urticaria Does anyone suffering from Autoimmune Urticaria???

Mar 13, 2013 vinod 5 posts	Topic: General Discussion / Improving DAFNE online manual I was going through DAFNE course handbook. It's a very useful book for me and I use this as a reference document. I would like to suggest few changes in the handbook, if it's possible to make the changes. 1) Please add a note on where should we inject insulin. It may be somewhere in the document, but it's not easy to find it out from the main menu. 2) Add JEPG image or pictures, whenever it's required. 3) I dont know if it's possible to have this manual in .pdf format? It'll be useful to have this as a standard pdf document. With Regards, Vinod Kavle

Mar 13, 2013 Stew B 125 posts	Topic: General Discussion / Apps Would anyone like to share info about iPhone/ Android apps that are useful? I'm thinking particularly about commercial apps that give nutrition information about the company's products. For example, my old favourite McDonalds have an iPhone app that includes nutrition inf. about all their products - including up to date information about their one-off specials. Given the free wi-fi available in most McDs I find I use the app a lot. KFC have an app which links you to the nutritional info section of their website - useful but a bit clumsy. I see that BK also have an app that provides nutrition info on their menu, and there must be loads more. Stew

Mar 13, 2013 mum2westiesGill 502 posts	Topic: General Discussion / 7-day waking average 3.1 - bedtime 10.0 - this morning - 19.21pm - tea & QA - 22.57pm - bedtime test was done - 3.1 - had 4 jelly babies - no idea where this hypo came from - 23.14pm - 3.2 - had 2 jelly babies - 23.27pm - 3.8 - bit fed up at this stage so had supper - sandwich 1 slice with corned beef/pkt skips/mini asda choc biscuit

Mar 12, 2013 Alan 49 284 posts	Topic: General Discussion / Unexplained high bg Sounds like you're sickening for something. Don't forget to test for ketones.

Mar 12, 2013 Mags2101 4 posts	Topic: General Discussion / Unexplained high bg I am eating virtually no carbs and despite adjusting have continual high bg. Latest 18.7. I have a lot of pain in my back could this be the cause?

Mar 12, 2013 mum2westiesGill 502 posts	Topic: General Discussion / 7-day waking average 12.1 - bedtime 10.2 - this morning - 18.28pm - tea & QA - 22.20pm - bedtime test was done, before having supper instead of after - supper was potato cake & tuna

Mar 12, 2013 Stew B 125 posts	Topic: General Discussion / Advise on pump please At the end of the day, assuming that you are given the opportunity to use a pump, whether it's succesful for you will depend on whether in practice the advantages outweigh the disadvantages. As a DAFNE graduate I have pretty good control, but last Summer I was given the opportunity to go on to a pump to help deal with a larger than desired number of hypos and some difficulties with exercise. For me, I found that the pump was a real intrusion into my daily life, a constant reminder that I have diabetes. When I did my DAFNE course in 2007 it was a life-changer, allowing me to be normal(ish) again. I stuck with the pump for five months, but in the end my HCPs and I decided that it wasn't for me. In fact, my HbA1c went up with the pump (it was pretty good with DAFNE) and didn't seem to want to come down, although my hypos did reduce. I'm now back on DAFNE and my HbA1c has come down significantly. My HCPs were brilliant, I wasn't made to feel a "failure", and they were always there for both technical advice and discussion. My advice would be to give it a go if you get the chance - the worst that can happen is that it doesn't work for you, and DAFNE is always there to return to. At least you'll know! Good luck! Stew