Recent Posts - DAFNE Online

Mar 12, 2013

Mags2101 4 posts

Topic: General Discussion / Unexplained high bg

I am eating virtually no carbs and despite adjusting have continual high bg. Latest 18.7. I have a lot of pain in my back could this be the cause?

Mar 12, 2013

mum2westiesGill 502 posts

Topic: General Discussion / 7-day waking average

12.1 - bedtime
10.2 - this morning

- 18.28pm - tea & QA
- 22.20pm - bedtime test was done, before having supper instead of after
- supper was potato cake & tuna

Mar 12, 2013

Stew B 123 posts

Topic: General Discussion / Advise on pump please

At the end of the day, assuming that you are given the opportunity to use a pump, whether it's succesful for you will depend on whether in practice the advantages outweigh the disadvantages. As a DAFNE graduate I have pretty good control, but last Summer I was given the opportunity to go on to a pump to help deal with a larger than desired number of hypos and some difficulties with exercise. For me, I found that the pump was a real intrusion into my daily life, a constant reminder that I have diabetes. When I did my DAFNE course in 2007 it was a life-changer, allowing me to be normal(ish) again. I stuck with the pump for five months, but in the end my HCPs and I decided that it wasn't for me. In fact, my HbA1c went up with the pump (it was pretty good with DAFNE) and didn't seem to want to come down, although my hypos did reduce.

I'm now back on DAFNE and my HbA1c has come down significantly. My HCPs were brilliant, I wasn't made to feel a "failure", and they were always there for both technical advice and discussion. My advice would be to give it a go if you get the chance - the worst that can happen is that it doesn't work for you, and DAFNE is always there to return to. At least you'll know!

Good luck!

Stew

Mar 11, 2013

mum2westiesGill 502 posts

Topic: General Discussion / My Blood Glucose Diary - all comments welcomed!

Any comments/thoughts please on the last 5 days results
Thu 07/03 - Mon 11/03

Wondering what anybody thinks about my current meal time ratios:
2:10 (2u for every 10g carbs) - breakfast
1.5:10 (1.5u for every 10g cho) - lunch
1:10 (1u for everu 10g cho) - teatime

Mar 11, 2013

SimonC 78 posts

Topic: General Discussion / Advise on pump please

Sheila

Good luck with your application to get on the pump therapy list - I suspect that if the team have already discussed the possibility and said there is funding available you stand a good chance - else why mention it. Whilst they do cost a lot of money, the NHS does recognise that in the long run they save money - as the control that can be achieved can be significantly better than the multi dose way.

That said, they are not for everyone, and they do require a lot of work - esp at the beginning, so I hope it does work for you,, and it helps deal with your particular problem.

Let us know how it goes.

Mar 11, 2013

novorapidboi26 1,818 posts

Topic: General Discussion / SPLITTING Q/A INSULIN DOSES

Even with all this information the best thing to do is eat these foods and make a record, whether it be physical or mental record.........

you may find it will be only some high fat/high GI foods that justify a split.......

happy testing......... Very Happy

Mar 11, 2013

novorapidboi26 1,818 posts

Topic: General Discussion / Mealtime Ratios

My understanding of insulin sensitivity is the same, although it doesn't always work out like that.....

When you wake up your body has been inactive for many hours, and that's really inactive, not just watching the TV, so this would explain the higher amounts needed in the morning for most people.......

your pattern seems to be a good example of what happens to insulin sensitivity in general, basically you get more sensitive as the day goes on, regardless of increased activity at certain points during the day.........

Mar 11, 2013

mum2westiesGill 502 posts

Topic: General Discussion / 7-day waking average

10.7 - bedtime
8.1 - this morning

- 19.27pm - tea & QA
- 22.44pm - bedtime test was done, before having supper instead of after
- supper was butter puffs 4

Mar 11, 2013

sheila24 3 posts

Topic: General Discussion / Advise on pump please

Many thanks for the replies they have been a good help.

Thank you NuMo I will have a look out for the book, it is always good to hear what other people have found helpful.

Simon I think it is wrong that you could not be considered for pump therapy due to good control, it is very frustrating. I am fortunate that my healthcare team have got funding at the moment, but that doesn't guarantee that I will be accepted for the treatment. Hopefully through time things will change for the better. I found the website you recommended very helpful. Thank you.

Thank you novorapidboi26, your information answered a lot of my questions. If I decide to go ahead I know it won't be until end of year beginning of next, I know the pct has funding at the moment but as I said to Simon there is no guarantee that I would meet all the criteria needed to go onto pump therapy, only time will tell. It is good to hear that you are doing well with the pump.

Thank you all again for taking the time to respond it has been a great help and is very much appreciated. Smile

Mar 11, 2013

mum2westiesGill 502 posts

Topic: General Discussion / Mealtime Ratios

Should these be less at the most active time of the day then more at the least active part of the day?

My most active time of the day (if you can call that being housework lol) is during the day then evening is usually spent sitting down in front of the tv.

my current ratios are:
- 2:10 - breakfast (2u for every 10g carbs)
- 1.5:10 - lunchtime (1.5u for every 10g cho)
- 1:10 - teatime (1u for every 10g cho)

Mar 11, 2013

Warwick 434 posts

Topic: General Discussion / SPLITTING Q/A INSULIN DOSES

You can use either of these web sites:

http://www.glycemicindex.com/

http://nutritiondata.self.com/ - Enter the food name and it will tell you the estimated glycemic load.

The GI is simply a dietary tool that helps us differentiate between the various carbohydrate foods we eat and how our bodies use them.

Carbohydrates with a low GI (55 or less) don't make our blood glucose levels rise very high for very long. They provide sustained energy.
Carbohydrates with a high GI (70 or more) are the ones that cause our blood glucose levels to go higher for longer. High blood glucose may cause damage to vital organs.

Hope that this helps.

Mar 10, 2013

Peter 103 posts

Topic: General Discussion / SPLITTING Q/A INSULIN DOSES

Mark, I can't access the link to the Glycaemic index you've included above. I get "You are not authorized to visit that area on the site" displayed on the home page.

Mar 10, 2013

mum2westiesGill 502 posts

Topic: General Discussion / 7-day waking average

18.4 - bedtime
15.4 - this morning
Crying or Very sad

- 19.46pm- tea & QA - sandwich 2 slices with cheese before a night out
- 00.56am - bedtime test was done, before having supper instead of after
- supper was........fish and handful of chips after a night out
- @ 12.51pm 2 hours after breakfast BS was 4.9

Mar 10, 2013

JayBee 582 posts

Topic: Site Development / How to turn off the 0.5 measure on QA's

If you're using the Android version, the closest thing you're going to get is going into "Settings" and then untick the "Auto Calculate QA" option I think.

I use a half unit pen so the 0.5 is something people like me do use a lot. Perhaps adding a setting of your pen unit amount would be a good idea?

Saying that, perhaps if you find you need half units a lot too, it may be worth speaking to your care team to arrange a half unit pen. Depends what your body does when you have to round up or down.

Best wishes and thanks for the feedback! Smile

Mar 9, 2013

Cath 1 post

Topic: Site Development / How to turn off the 0.5 measure on QA's

Hi. Absolutely loving this app but how do I stop it giving me a half measure of QA when automatically calculation is turned on? My insulin pen doesn't do half units so its annoying having to remove all the half measures the app gives me. Thanks in advance.

Mar 9, 2013

JayBee 582 posts

Topic: General Discussion / 7-day waking average

Oddly, it was 7.2 BG this morning... most of this week it's been 11BG. <_>;

Mar 9, 2013

mum2westiesGill 502 posts

Topic: General Discussion / 7-day waking average

6.1 - bedtime
3.5 - this morning
Crying or Very sad

or

?

- 19.03pm - tea & QA
- 23.29pm - bedtime test was done, before having supper instead of after
- supper was butter puffs 3 with cheese
- after waking to this morning's hypo @09.09am - had 4 jelly babies
- @ 09.26am BS was 5.7

Mar 8, 2013

steve.c 2 posts

Topic: Questions ? / hypos

thanks for letting me no about the pens will try again at chemist. usually treat hypos with either glucos tabs or sugary drink. i do a lot of training so hypos can come at anytime but i
am usualy pretty much on the ball with them. the new doctor at the clinic decided to put my thyroxine up by 25mg. been to my doctor today and he thinks could be somthing to do with
that so dropped it and keeping my fingers crossed.

Mar 8, 2013

mum2westiesGill 502 posts

Topic: General Discussion / 7-day waking average

5.2 - bedtime
3.4 - this morning

- 19.17pm - tea & QA
- 22.35pm - bedtime test was done, before having supper instead of after
- supper was butter puffs 3 with cheese
- after waking to this morning's hypo @ 7.52am - had 4 jelly babies
- @ 8.08am BS was 3.3 - had 3 jelly babies as didn't want to really overdo things
- @ 8.28am BS was 8.4
- @ 11.05am BS was 11.0 - have done QA for breakfast - toast 1 slice

Mar 8, 2013

mum2westiesGill 502 posts

Topic: General Discussion / 7-day waking average

novorapidboi26 said:
have you considered testing the daytime dose with carb free meals......

Is it still a 50:50 split........?

Re the daytime dose which one would this be ie breakfast, lunch or tea?

Yes it's still a 50/50 split

Mar 8, 2013

NuMo 28 posts

Topic: General Discussion / Advise on pump please

Gosh Simon, that does seem harsh - being denied access to new technology because you are doing so well!

We are lucky here in that the local trust recognises the long term cost savings of Dafne and pumps. In fact I was told on my Dafne course that I was a good candidate for a pump as, like Sheila, I am highly sensitive to insulin and take miniscule amounts. This makes control difficult as small errors have a big impact. So it does seem that one's postcode effects one's treatment.

I would hardly call your grumble a rant - if we can't voice our feelings on this website where can we?

Mar 12, 2013 Mags2101 4 posts	Topic: General Discussion / Unexplained high bg I am eating virtually no carbs and despite adjusting have continual high bg. Latest 18.7. I have a lot of pain in my back could this be the cause?

Mar 12, 2013 mum2westiesGill 502 posts	Topic: General Discussion / 7-day waking average 12.1 - bedtime 10.2 - this morning - 18.28pm - tea & QA - 22.20pm - bedtime test was done, before having supper instead of after - supper was potato cake & tuna

Mar 12, 2013 Stew B 123 posts	Topic: General Discussion / Advise on pump please At the end of the day, assuming that you are given the opportunity to use a pump, whether it's succesful for you will depend on whether in practice the advantages outweigh the disadvantages. As a DAFNE graduate I have pretty good control, but last Summer I was given the opportunity to go on to a pump to help deal with a larger than desired number of hypos and some difficulties with exercise. For me, I found that the pump was a real intrusion into my daily life, a constant reminder that I have diabetes. When I did my DAFNE course in 2007 it was a life-changer, allowing me to be normal(ish) again. I stuck with the pump for five months, but in the end my HCPs and I decided that it wasn't for me. In fact, my HbA1c went up with the pump (it was pretty good with DAFNE) and didn't seem to want to come down, although my hypos did reduce. I'm now back on DAFNE and my HbA1c has come down significantly. My HCPs were brilliant, I wasn't made to feel a "failure", and they were always there for both technical advice and discussion. My advice would be to give it a go if you get the chance - the worst that can happen is that it doesn't work for you, and DAFNE is always there to return to. At least you'll know! Good luck! Stew

Mar 11, 2013 mum2westiesGill 502 posts	Topic: General Discussion / My Blood Glucose Diary - all comments welcomed! Any comments/thoughts please on the last 5 days results Thu 07/03 - Mon 11/03 Wondering what anybody thinks about my current meal time ratios: 2:10 (2u for every 10g carbs) - breakfast 1.5:10 (1.5u for every 10g cho) - lunch 1:10 (1u for everu 10g cho) - teatime

Mar 11, 2013 SimonC 78 posts	Topic: General Discussion / Advise on pump please Sheila Good luck with your application to get on the pump therapy list - I suspect that if the team have already discussed the possibility and said there is funding available you stand a good chance - else why mention it. Whilst they do cost a lot of money, the NHS does recognise that in the long run they save money - as the control that can be achieved can be significantly better than the multi dose way. That said, they are not for everyone, and they do require a lot of work - esp at the beginning, so I hope it does work for you,, and it helps deal with your particular problem. Let us know how it goes.

Mar 11, 2013 novorapidboi26 1,818 posts	Topic: General Discussion / SPLITTING Q/A INSULIN DOSES Even with all this information the best thing to do is eat these foods and make a record, whether it be physical or mental record......... you may find it will be only some high fat/high GI foods that justify a split....... happy testing.........

Mar 11, 2013 novorapidboi26 1,818 posts	Topic: General Discussion / Mealtime Ratios My understanding of insulin sensitivity is the same, although it doesn't always work out like that..... When you wake up your body has been inactive for many hours, and that's really inactive, not just watching the TV, so this would explain the higher amounts needed in the morning for most people....... your pattern seems to be a good example of what happens to insulin sensitivity in general, basically you get more sensitive as the day goes on, regardless of increased activity at certain points during the day.........

Mar 11, 2013 mum2westiesGill 502 posts	Topic: General Discussion / 7-day waking average 10.7 - bedtime 8.1 - this morning - 19.27pm - tea & QA - 22.44pm - bedtime test was done, before having supper instead of after - supper was butter puffs 4

Mar 11, 2013 sheila24 3 posts	Topic: General Discussion / Advise on pump please Many thanks for the replies they have been a good help. Thank you NuMo I will have a look out for the book, it is always good to hear what other people have found helpful. Simon I think it is wrong that you could not be considered for pump therapy due to good control, it is very frustrating. I am fortunate that my healthcare team have got funding at the moment, but that doesn't guarantee that I will be accepted for the treatment. Hopefully through time things will change for the better. I found the website you recommended very helpful. Thank you. Thank you novorapidboi26, your information answered a lot of my questions. If I decide to go ahead I know it won't be until end of year beginning of next, I know the pct has funding at the moment but as I said to Simon there is no guarantee that I would meet all the criteria needed to go onto pump therapy, only time will tell. It is good to hear that you are doing well with the pump. Thank you all again for taking the time to respond it has been a great help and is very much appreciated.

Mar 11, 2013 mum2westiesGill 502 posts	Topic: General Discussion / Mealtime Ratios Should these be less at the most active time of the day then more at the least active part of the day? My most active time of the day (if you can call that being housework lol) is during the day then evening is usually spent sitting down in front of the tv. my current ratios are: - 2:10 - breakfast (2u for every 10g carbs) - 1.5:10 - lunchtime (1.5u for every 10g cho) - 1:10 - teatime (1u for every 10g cho)

Mar 11, 2013 Warwick 434 posts	Topic: General Discussion / SPLITTING Q/A INSULIN DOSES You can use either of these web sites: http://www.glycemicindex.com/ http://nutritiondata.self.com/ - Enter the food name and it will tell you the estimated glycemic load. The GI is simply a dietary tool that helps us differentiate between the various carbohydrate foods we eat and how our bodies use them. Carbohydrates with a low GI (55 or less) don't make our blood glucose levels rise very high for very long. They provide sustained energy. Carbohydrates with a high GI (70 or more) are the ones that cause our blood glucose levels to go higher for longer. High blood glucose may cause damage to vital organs. Hope that this helps.

Mar 10, 2013 Peter 103 posts	Topic: General Discussion / SPLITTING Q/A INSULIN DOSES Mark, I can't access the link to the Glycaemic index you've included above. I get "You are not authorized to visit that area on the site" displayed on the home page.

Mar 10, 2013 mum2westiesGill 502 posts	Topic: General Discussion / 7-day waking average 18.4 - bedtime 15.4 - this morning - 19.46pm- tea & QA - sandwich 2 slices with cheese before a night out - 00.56am - bedtime test was done, before having supper instead of after - supper was........fish and handful of chips after a night out - @ 12.51pm 2 hours after breakfast BS was 4.9

Mar 10, 2013 JayBee 582 posts	Topic: Site Development / How to turn off the 0.5 measure on QA's If you're using the Android version, the closest thing you're going to get is going into "Settings" and then untick the "Auto Calculate QA" option I think. I use a half unit pen so the 0.5 is something people like me do use a lot. Perhaps adding a setting of your pen unit amount would be a good idea? Saying that, perhaps if you find you need half units a lot too, it may be worth speaking to your care team to arrange a half unit pen. Depends what your body does when you have to round up or down. Best wishes and thanks for the feedback!

Mar 9, 2013 Cath 1 post	Topic: Site Development / How to turn off the 0.5 measure on QA's Hi. Absolutely loving this app but how do I stop it giving me a half measure of QA when automatically calculation is turned on? My insulin pen doesn't do half units so its annoying having to remove all the half measures the app gives me. Thanks in advance.

Mar 9, 2013 JayBee 582 posts	Topic: General Discussion / 7-day waking average Oddly, it was 7.2 BG this morning... most of this week it's been 11BG. <_>;

Mar 9, 2013 mum2westiesGill 502 posts	Topic: General Discussion / 7-day waking average 6.1 - bedtime 3.5 - this morning or ? - 19.03pm - tea & QA - 23.29pm - bedtime test was done, before having supper instead of after - supper was butter puffs 3 with cheese - after waking to this morning's hypo @09.09am - had 4 jelly babies - @ 09.26am BS was 5.7

Mar 8, 2013 steve.c 2 posts	Topic: Questions ? / hypos thanks for letting me no about the pens will try again at chemist. usually treat hypos with either glucos tabs or sugary drink. i do a lot of training so hypos can come at anytime but i am usualy pretty much on the ball with them. the new doctor at the clinic decided to put my thyroxine up by 25mg. been to my doctor today and he thinks could be somthing to do with that so dropped it and keeping my fingers crossed.

Mar 8, 2013 mum2westiesGill 502 posts	Topic: General Discussion / 7-day waking average 5.2 - bedtime 3.4 - this morning - 19.17pm - tea & QA - 22.35pm - bedtime test was done, before having supper instead of after - supper was butter puffs 3 with cheese - after waking to this morning's hypo @ 7.52am - had 4 jelly babies - @ 8.08am BS was 3.3 - had 3 jelly babies as didn't want to really overdo things - @ 8.28am BS was 8.4 - @ 11.05am BS was 11.0 - have done QA for breakfast - toast 1 slice

Mar 8, 2013 mum2westiesGill 502 posts	Topic: General Discussion / 7-day waking average novorapidboi26 said: have you considered testing the daytime dose with carb free meals...... Is it still a 50:50 split........? Re the daytime dose which one would this be ie breakfast, lunch or tea? Yes it's still a 50/50 split

Mar 8, 2013 NuMo 28 posts	Topic: General Discussion / Advise on pump please Gosh Simon, that does seem harsh - being denied access to new technology because you are doing so well! We are lucky here in that the local trust recognises the long term cost savings of Dafne and pumps. In fact I was told on my Dafne course that I was a good candidate for a pump as, like Sheila, I am highly sensitive to insulin and take miniscule amounts. This makes control difficult as small errors have a big impact. So it does seem that one's postcode effects one's treatment. I would hardly call your grumble a rant - if we can't voice our feelings on this website where can we?