Recent Posts
Search the DAFNE Online Forums
15,721 posts found
|
Sep 10, 2013
BeccyB
50 posts
|
Topic: General Discussion / cheiroerthropathy I would advise making an appointment with Citizens Advice - they can advise on what you are/may be entitiled to, and then they also help you fill out the claim forms correctly so you get what you deserve.They were brilliant with my DLA claim a couple of years back (not diabetes related though so I can't offer specific advice on that) Best of luck |
|
Sep 10, 2013
Rafa
99 posts
|
Topic: Carbohydrate Counting / Burrito
That's great many thanks. I had one the other night and gave myself 6 qa. Totally wrong as i was just guessing. Thanks again. |
|
Sep 10, 2013
Warwick
430 posts
|
Topic: Carbohydrate Counting / Burrito Try typing it into here:http://ndb.nal.usda.gov/ndb/search/list The carb amount changes depending on what's inside - beef versus beans for example. |
|
Sep 10, 2013
Warwick
430 posts
|
Topic: General Discussion / Insulin and Side Effects My diabetes support group met last weekend. One of the women members (I'll call her Katie) has been in near constant pain for the last four years. Another member of the group had previously mentioned issues with pain and Lantus several months back, and Katie realised that her pain had started only a month after switching to Lantus from a different basal insulin.In June Katie switched from both Lantus and her synthetic QA, to beef insulin, and over the last couple of months, the pain has receded so that it is about 15% of what it was, and it continues to improve. Katie said that she had found a lot of information online about bad side effects when using Lantus. If you are concerned that you are being affected, then I'd suggest talking to your endo about it, and perhaps trialling another basal insulin such as Humalin or Levemir, or possibly beef or pork insulin if they are appropriate for you. |
|
Sep 9, 2013
Teanosugar
25 posts
|
Topic: General Discussion / Insulin and Side Effects I am just wondering if anyone has experienced side effects from using a particular type of insulin and what your experiences were? I remember a guy on my DAFNE course saying he had to come off Lantus because he felt like it was poisoning him.I've been on Lantus for a year and I think that it's the cause of my dental problems because I've had so many problems since being on Lantus it's ridiculous. I have contacted my specialist about it and I'm waiting for feedback. |
|
Sep 9, 2013
Teanosugar
25 posts
|
Topic: General Discussion / receeding gums I have had poor dental problems for a couple of years now. It's not like my hygiene has been bad; it's just I seem to get loads of problems. My current problem is hell on earth. I had an extraction in May and I've been back to the dentist about 15 times since; just constant agony and the dentists can't sort it. I think it's to do with my diabetes. My GP is involved now.It's that bad I'm on tramadol and it still isn't totally sorting it! |
|
Sep 9, 2013
Rafa
99 posts
|
Topic: Carbohydrate Counting / Burrito Hi,Just wondering if anyone has any experience of cp's for burritos please? |
|
Sep 6, 2013
Anele46
108 posts
|
Topic: General Discussion / Pumps in the UK
Thanks Vicky, that's good to know  cheers 
|
|
Sep 6, 2013
Vickyp
135 posts
|
Topic: General Discussion / Pumps in the UK No problem. My consultant wanted me to get the Medtronic as it has a cgm, but I asked for omnipod and gave him my reasons and he was happy with that. Generally omnipod is used for children but 6 other adults were at training with me!Hope it works out for you X |
|
Sep 6, 2013
Anele46
108 posts
|
Topic: General Discussion / Pumps in the UK
Hi Vicky, I'm so Sorry, I don't know why I thought you lived outside the UK, I misread where you were. I'm sorry  Nappy brain strikes again As you say it must be down to your local healthcare authority and funding. I will ask them, all they can say is no so it's worth an ask Thanks very much Vicky x |
|
Sep 6, 2013
Vickyp
135 posts
|
Topic: General Discussion / Pumps in the UK Anele, I am in the UK so omnipod is definitely available here! I happen to live in England, rather than Scotland as this is where work brought me! I know not all health authorities offer the same pumps, it all depends on funding...all you can do is ask them.Like we discussed I am on tiny amounts of insulin, and not true type1 but the pump works great for me. I'm much happier on the pump, was willing to try without as consultant wanted to see what happens...to be honest I put pump back on yesterday and already feel better and that's with only 0.6u of basal, no bolus at breakfast (to see what happens but normally 1:72 ratio) and ratios of 1:52 (1u:52g) at lunch and 1:4 at tea...the ratios work differently on a pump! My Hba1c is currently 6.1%! |
|
Sep 6, 2013
Anele46
108 posts
|
Topic: General Discussion / Pumps in the UK
Thanks but my DSNs and consultant insist I am definitely not Type 2. They thought that when I was first diagnosed but they did tests and as my mum was a Type 1 also and tablets didn't work then they said I was Type 1. When I wanted to start a family they let me do the DAFNE course and moved me from Humulin M3 to Novorapid and Lantus and was on 1:1 ratios with a split dose of 6U morn and night of Lantus. Since I gave birth my Insulin requirements have dropped and was on 1U of QA to 5 CPs for breakfast then 1:1 for all other meals which then dropped to 0.75:1 for my meals and 0.5U of QA at breakfast hence they started going down the Metformin route. I'm much happier on Insulin to be honest and feel better but I was willing to give Metformin a try but I really don't think it's for me as its really making me miserable with the side effects. That and I'm having to correct if I eat pasta or Chips or fatty foods like takeaway so I don't see the point? |
|
Sep 6, 2013
novorapidboi26
1,816 posts
|
Topic: General Discussion / Pumps in the UK Your describing type 2 symptoms..........I assume the amount you eat isn't t more than the average in take......?If they done the test and have now said type 1 it must of shown some anti bodies to confirm they are attacking your beta cells.... |
|
Sep 6, 2013
Anele46
108 posts
|
Topic: General Discussion / Pumps in the UK
Yup that sounds like me 1.5! When I was at my annual DAFNE clinic a few months ago they were actively offering Pumps so I'm thinking it should be ok for me to get one. The Metformin helped but couldn't cope with large CP intake and fatty foods so had to correct with QA. My BGs have generally been very tight - my HbA1c has always been around 5-6 % which is extremely difficult for Type 1's but again that'll be because I'm not the norm Type 1. I'm sure they did they did the Antibody test but I can't remeber what they said about that. They ran other tests and can see that my Pancreas is still producing some Insulin but not enough to cover what I eat. I also had the Synacthen test which came back negative and they sent blood tests to Exeter to test for rare Genetic forms of Diabetes but they all came back negative. My diabetes is a strange one which constantly baffles my consultant but I'm not surprised as nothing is ever simple with me! lol
|
|
Sep 6, 2013
novorapidboi26
1,816 posts
|
Topic: General Discussion / Pumps in the UK You maybe a type 1.5, which is a type 1 that takes a very long time to manifest itself.........Good luck when you ask for one........I got mine at the start of the year and this was down to funding from the government. Before the funding in Scotland at least, you would be very luck to be even having a conversation about insulin pumps........ The pump will be very good for your small insulin requirements....... So, has the metformin helped in any way.........if your still producing insulin its good to hold on to that for as long as possible........... Have you had any other tests to confirm that you are type 1, like the antibody test.....? [GAD] |
|
Sep 6, 2013
Anele46
108 posts
|
Topic: General Discussion / Pumps in the UK
Thanks Novorapidboi, Yeah, sorry I meant tubeless The Omnipod sounds great but knowing my luck the Southern General doesn't offer that model I am not a "typical" Type 1 or Type 2. They thought I was Type 1 when I was first diagnosed in Feb 2010 but I never came out of my "Honeymoon" phase and have been on very small ratios of Novorapid and very little Lantus. For the past month they have took me off my Insulin completely and have had me on Metformin but the side-affects are awful and my BGs haven't been the best hence I'm going back to see my consultant soon. I'm gradually coming back off the Metformin and would prefer to go back on Insulin as although it could be difficult to manage sometimes with very small ratios and doses it still beats the heck out of the side-effects I experience with Metformin. I've spoke to my DSN and talked about a Pump and she said that could be a very good option as it can deliver very small amounts of Insulin which may be the best solution for me which brought me to asking about which one is best Thanks for your advice, greatly appreciated |
|
Sep 6, 2013
novorapidboi26
1,816 posts
|
Topic: General Discussion / Pumps in the UK By wireless do you mean tubeless.......?If so the omnipod is the one for you, and yes, I do believe it is available in the UK....... My pump clinic does the Medtronic Minimed Veo, which comes in 2 models, one holding a larger reservoir for folk like me who need more due to my size....and a Roche model, so only 2 options, which I thought was crap, but they said it allowed them to be better equipped to train their patients only having 2 to learn about...... Does you consultant know your coming to talk about the pump........? |
|
Sep 6, 2013
Rafa
99 posts
|
Topic: Questions for HCPs / Blood Glucose in the morning
Ahh right thanks. Probably won't be eating until 10pm tonight and going to bed at 12 so was afraid of an overlap with the carbs only two hours in my system when taking my BI. Thanks again. |
|
Sep 6, 2013
Anele46
108 posts
|
Topic: General Discussion / Pumps in the UK Hello all,I'm going to see my Consultant in less than 2 weeks time and am going to ask about being put on a Pump and was wondering if anyone can recommend a particular one in the UK? I have been chatting with VickyP who has the OmniPod which looks perfect as it is Tubeless but I'm not sure but this may not be available in the UK? Is there a Tubeless pump available in the UK does anyone know? Thanks in advance if anyone can assist Cheers, Anele. |
|
Sep 6, 2013
novorapidboi26
1,816 posts
|
Topic: Questions for HCPs / Blood Glucose in the morning No need to apologize, this is the place to ask the questions........You can take your BI whenever you like, its completely independent from your digestion and carb in take..... Just take it every night before bed, which obviously could be at different times every day, as long as your getting a full 24 hours coverage with a small overlap your fine...... I took my AM BI at 6:45 am and my PM BI at 10:30 pm. I would have taken my PM BI later however I started to run out of my AM BI earlier than bed time so had to tweak in order to not have higher numbers at night but also to assist in dropping my waking levels...... |
|
Sep 6, 2013
Rafa
99 posts
|
Topic: Questions for HCPs / Blood Glucose in the morning
Thanks. I never really have supper at all so my last carbs would be 8pm or shortly afterwards. The early days of this week threw me a bit with the high BG in the mornings but last night seemed to work out ok. If you had a late dinner say between 9pm - 10pm would you still take the BI when going to bed between 11pm-12 or would you wait the four hours and set the alarm to take the BI then? Sorry with all the questions. |
|
Sep 6, 2013
Louise1988
68 posts
|
Topic: General Discussion / cheiroerthropathy Laura, sorry to hear you've had to stop working. I agree with novorapidboi, you should definitely try to get benefits, if you think you might be entitled to them. You don't get if you don't ask
|
|
Sep 6, 2013
novorapidboi26
1,816 posts
|
Topic: Questions for HCPs / Blood Glucose in the morning Basically she means no carbs working during the night, so for most that would mean they could have dinner, just no supper.....If you have your dinner at 7-8 pm,. your carbs and insulin should be expired by 11-12 pm........you would test at 11-12, then wake up at 3 am and test...... the 3 am test is purely because it the time of day when the body is at it lowest production of hormones and so will not effect the blood sugar reading, when it hits 4, 5, 6, people will normally see a rise due to the dawn phenomenon effect......which would mislead you when evaluating your overnight background dose... Your background was OK the last time you checked was it not........? Last nights 7.6, then 9.0, then 7.6 may be as a result of either some small amount of carbs still going, or a need for more BI insulin overnight........ as its within 1-2mmol/l I would assume the BI dose is OK...... Your dinner blood sugars are good also, you stayed in single figures and peaked at 8.9........ All these results are showing me that your doses are pretty much bang on....... |
|
Sep 6, 2013
novorapidboi26
1,816 posts
|
Topic: General Discussion / cheiroerthropathy Got this from the gov.uk website for DLA benefit:Your disability or health condition must mean one or both of the following are true: you need help looking after yourself you have walking difficulties You must have had these difficulties for at least 3 months and expect them to last for at least 6 months. If you’re terminally ill (ie not expected to live more than 6 months), you don’t need to have had these difficulties for 3 months. So I would say that yes you can claim benefit, at least after the 3 months mark....... One things for sure, you will no doubt need to try anyway, so you will find out one way or another..... Good luck and welcome to the forum.....
|
|
Sep 6, 2013
Rafa
99 posts
|
Topic: Questions for HCPs / Blood Glucose in the morning
Carb free test at 3am as in no carbs for my dinner the previous night? Thanks. |