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Sep 11, 2013
mum2westiesGill 502 posts

Topic: General Discussion / Increase of Lantus/BI

Comments wanted also for these
 
Sep 11, 2013
mum2westiesGill 502 posts

Topic: General Discussion / Increase of Lantus/BI

So a while since I've posted BG results so just wanted some comments please
 
Sep 11, 2013
novorapidboi26 1,819 posts

Topic: General Discussion / Pumps in the UK

It must be quite frustrating..........do you have lots of hypos at different times of the day?

how much insulin do you take on average now?
 
Sep 11, 2013
Louise1988 69 posts

Topic: General Discussion / Pumps in the UK

Novorapidboi, I am still producing insulin, but I was only diagnosed with diabetes 2years ago.

I am having less insulin, but it doesn't seem to have much difference. One day I can have 4 units and I have a hypo, the next day, I am originally the same level, have more insulin, and it isn't enough...
 
Sep 11, 2013
novorapidboi26 1,819 posts

Topic: General Discussion / Pumps in the UK

Louise1988 said:
I'm type 1.5 too! They spent a year and a half treating me as a type 2, as my body is still producing a small amount of insulin. None of that worked, so they put me on insulin March this year. I'm trying to work up the courage to ask for the pump, as I'm finding it really difficult to control my sugars. The levels are so unpredictable, even if they start the same, I have the same food, and do the same amount of insulin. I also struggle with hypo unawareness. I'm hoping these are good enough reasons for me to be considered for the pump haha.



if your struggling with hypos that is normally enough to be considered.......

Has a reduction of insulin not helped with hypos?

Are you still producing insulin after all these years....?
 
Sep 11, 2013
Louise1988 69 posts

Topic: General Discussion / Pumps in the UK

Anele46 said:
I am not a "typical" Type 1 or Type 2. They thought I was Type 1 when I was first diagnosed in Feb 2010 but I never came out of my "Honeymoon" phase and have been on very small ratios of Novorapid and very little Lantus.

For the past month they have took me off my Insulin completely and have had me on Metformin but the side-affects are awful and my BGs haven't been the best hence I'm going back to see my consultant soon.
I'm gradually coming back off the Metformin and would prefer to go back on Insulin as although it could be difficult to manage sometimes with very small ratios and doses it still beats the heck out of the side-effects I experience with Metformin.
I've spoke to my DSN and talked about a Pump and she said that could be a very good option as it can deliver very small amounts of Insulin which may be the best solution for me which brought me to asking about which one is best Smile

Thanks for your advice, greatly appreciated Very Happy



I'm type 1.5 too! They spent a year and a half treating me as a type 2, as my body is still producing a small amount of insulin. None of that worked, so they put me on insulin March this year. I'm trying to work up the courage to ask for the pump, as I'm finding it really difficult to control my sugars. The levels are so unpredictable, even if they start the same, I have the same food, and do the same amount of insulin. I also struggle with hypo unawareness. I'm hoping these are good enough reasons for me to be considered for the pump haha.
 
Sep 10, 2013
BeccyB 50 posts

Topic: General Discussion / cheiroerthropathy

ps. You may have only just been diagnosed but I imagine you've been suffering from it for longer so you may not have to wait the 3 months Smile
 
Sep 10, 2013
BeccyB 50 posts

Topic: General Discussion / cheiroerthropathy

I would advise making an appointment with Citizens Advice - they can advise on what you are/may be entitiled to, and then they also help you fill out the claim forms correctly so you get what you deserve.

They were brilliant with my DLA claim a couple of years back (not diabetes related though so I can't offer specific advice on that)

Best of luck
 
Sep 10, 2013
Rafa 99 posts

Topic: Carbohydrate Counting / Burrito

Warwick said:
Try typing it into here:

http://ndb.nal.usda.gov/ndb/search/list

The carb amount changes depending on what's inside - beef versus beans for example.



That's great many thanks. I had one the other night and gave myself 6 qa. Totally wrong as i was just guessing. Thanks again.
 
Sep 10, 2013
Warwick 425 posts

Topic: Carbohydrate Counting / Burrito

Try typing it into here:

http://ndb.nal.usda.gov/ndb/search/list

The carb amount changes depending on what's inside - beef versus beans for example.
 
Sep 10, 2013
Warwick 425 posts

Topic: General Discussion / Insulin and Side Effects

My diabetes support group met last weekend. One of the women members (I'll call her Katie) has been in near constant pain for the last four years. Another member of the group had previously mentioned issues with pain and Lantus several months back, and Katie realised that her pain had started only a month after switching to Lantus from a different basal insulin.

In June Katie switched from both Lantus and her synthetic QA, to beef insulin, and over the last couple of months, the pain has receded so that it is about 15% of what it was, and it continues to improve. Katie said that she had found a lot of information online about bad side effects when using Lantus.

If you are concerned that you are being affected, then I'd suggest talking to your endo about it, and perhaps trialling another basal insulin such as Humalin or Levemir, or possibly beef or pork insulin if they are appropriate for you.
 
Sep 9, 2013
Teanosugar 25 posts

Topic: General Discussion / Insulin and Side Effects

I am just wondering if anyone has experienced side effects from using a particular type of insulin and what your experiences were? I remember a guy on my DAFNE course saying he had to come off Lantus because he felt like it was poisoning him.

I've been on Lantus for a year and I think that it's the cause of my dental problems because I've had so many problems since being on Lantus it's ridiculous. I have contacted my specialist about it and I'm waiting for feedback.
 
Sep 9, 2013
Teanosugar 25 posts

Topic: General Discussion / receeding gums

I have had poor dental problems for a couple of years now. It's not like my hygiene has been bad; it's just I seem to get loads of problems. My current problem is hell on earth. I had an extraction in May and I've been back to the dentist about 15 times since; just constant agony and the dentists can't sort it. I think it's to do with my diabetes. My GP is involved now.

It's that bad I'm on tramadol and it still isn't totally sorting it!
 
Sep 9, 2013
Rafa 99 posts

Topic: Carbohydrate Counting / Burrito

Hi,

Just wondering if anyone has any experience of cp's for burritos please?
 
Sep 6, 2013
Anele46 109 posts

Topic: General Discussion / Pumps in the UK

Vickyp said:
No problem. My consultant wanted me to get the Medtronic as it has a cgm, but I asked for omnipod and gave him my reasons and he was happy with that. Generally omnipod is used for children but 6 other adults were at training with me!
Hope it works out for you
X



Thanks Vicky, that's good to know Smile cheers Very Happy
 
Sep 6, 2013
Vickyp 137 posts

Topic: General Discussion / Pumps in the UK

No problem. My consultant wanted me to get the Medtronic as it has a cgm, but I asked for omnipod and gave him my reasons and he was happy with that. Generally omnipod is used for children but 6 other adults were at training with me!
Hope it works out for you
X
 
Sep 6, 2013
Anele46 109 posts

Topic: General Discussion / Pumps in the UK

Vickyp said:
Anele, I am in the UK so omnipod is definitely available here! I happen to live in England, rather than Scotland as this is where work brought me! I know not all health authorities offer the same pumps, it all depends on funding...all you can do is ask them.
Like we discussed I am on tiny amounts of insulin, and not true type1 but the pump works great for me. I'm much happier on the pump, was willing to try without as consultant wanted to see what happens...to be honest I put pump back on yesterday and already feel better and that's with only 0.6u of basal, no bolus at breakfast (to see what happens but normally 1:72 ratio) and ratios of 1:52 (1u:52g) at lunch and 1:4 at tea...the ratios work differently on a pump! My Hba1c is currently 6.1%!



Hi Vicky,
I'm so Sorry, I don't know why I thought you lived outside the UK, I misread where you were. I'm sorry Sad Nappy brain strikes again Sad
As you say it must be down to your local healthcare authority and funding.
I will ask them, all they can say is no so it's worth an ask Smile
Thanks very much Vicky x
 
Sep 6, 2013
Vickyp 137 posts

Topic: General Discussion / Pumps in the UK

Anele, I am in the UK so omnipod is definitely available here! I happen to live in England, rather than Scotland as this is where work brought me! I know not all health authorities offer the same pumps, it all depends on funding...all you can do is ask them.
Like we discussed I am on tiny amounts of insulin, and not true type1 but the pump works great for me. I'm much happier on the pump, was willing to try without as consultant wanted to see what happens...to be honest I put pump back on yesterday and already feel better and that's with only 0.6u of basal, no bolus at breakfast (to see what happens but normally 1:72 ratio) and ratios of 1:52 (1u:52g) at lunch and 1:4 at tea...the ratios work differently on a pump! My Hba1c is currently 6.1%!
 
Sep 6, 2013
Anele46 109 posts

Topic: General Discussion / Pumps in the UK

novorapidboi26 said:
Your describing type 2 symptoms..........I assume the amount you eat isn't t more than the average in take......?

If they done the test and have now said type 1 it must of shown some anti bodies to confirm they are attacking your beta cells....



Thanks but my DSNs and consultant insist I am definitely not Type 2. They thought that when I was first diagnosed but they did tests and as my mum was a Type 1 also and tablets didn't work then they said I was Type 1.
When I wanted to start a family they let me do the DAFNE course and moved me from Humulin M3 to Novorapid and Lantus and was on 1:1 ratios with a split dose of 6U morn and night of Lantus.
Since I gave birth my Insulin requirements have dropped and was on 1U of QA to 5 CPs for breakfast then 1:1 for all other meals which then dropped to 0.75:1 for my meals and 0.5U of QA at breakfast hence they started going down the Metformin route.
I'm much happier on Insulin to be honest and feel better but I was willing to give Metformin a try but I really don't think it's for me as its really making me miserable with the side effects. That and I'm having to correct if I eat pasta or Chips or fatty foods like takeaway so I don't see the point?
 
Sep 6, 2013
novorapidboi26 1,819 posts

Topic: General Discussion / Pumps in the UK

Your describing type 2 symptoms..........I assume the amount you eat isn't t more than the average in take......?

If they done the test and have now said type 1 it must of shown some anti bodies to confirm they are attacking your beta cells....
 
Sep 6, 2013
Anele46 109 posts

Topic: General Discussion / Pumps in the UK

novorapidboi26 said:
You maybe a type 1.5, which is a type 1 that takes a very long time to manifest itself.........

Good luck when you ask for one........I got mine at the start of the year and this was down to funding from the government. Before the funding in Scotland at least, you would be very luck to be even having a conversation about insulin pumps........

The pump will be very good for your small insulin requirements.......

So, has the metformin helped in any way.........if your still producing insulin its good to hold on to that for as long as possible...........

Have you had any other tests to confirm that you are type 1, like the antibody test.....? [GAD]



Yup that sounds like me Smile 1.5! Very Happy
When I was at my annual DAFNE clinic a few months ago they were actively offering Pumps so I'm thinking it should be ok for me to get one.

The Metformin helped but couldn't cope with large CP intake and fatty foods so had to correct with QA.
My BGs have generally been very tight - my HbA1c has always been around 5-6 % which is extremely difficult for Type 1's but again that'll be because I'm not the norm Type 1.
I'm sure they did they did the Antibody test but I can't remeber what they said about that.
They ran other tests and can see that my Pancreas is still producing some Insulin but not enough to cover what I eat.
I also had the Synacthen test which came back negative and they sent blood tests to Exeter to test for rare Genetic forms of Diabetes but they all came back negative.
My diabetes is a strange one which constantly baffles my consultant but I'm not surprised as nothing is ever simple with me! lol Very Happy
 
Sep 6, 2013
novorapidboi26 1,819 posts

Topic: General Discussion / Pumps in the UK

You maybe a type 1.5, which is a type 1 that takes a very long time to manifest itself.........

Good luck when you ask for one........I got mine at the start of the year and this was down to funding from the government. Before the funding in Scotland at least, you would be very luck to be even having a conversation about insulin pumps........

The pump will be very good for your small insulin requirements.......

So, has the metformin helped in any way.........if your still producing insulin its good to hold on to that for as long as possible...........

Have you had any other tests to confirm that you are type 1, like the antibody test.....? [GAD]
 
Sep 6, 2013
Anele46 109 posts

Topic: General Discussion / Pumps in the UK

novorapidboi26 said:
By wireless do you mean tubeless.......?

If so the omnipod is the one for you, and yes, I do believe it is available in the UK.......

My pump clinic does the Medtronic Minimed Veo, which comes in 2 models, one holding a larger reservoir for folk like me who need more due to my size....and a Roche model, so only 2 options, which I thought was crap, but they said it allowed them to be better equipped to train their patients only having 2 to learn about......

Does you consultant know your coming to talk about the pump........?



Thanks Novorapidboi,
Yeah, sorry I meant tubeless Smile

The Omnipod sounds great but knowing my luck the Southern General doesn't offer that model Sad

I am not a "typical" Type 1 or Type 2. They thought I was Type 1 when I was first diagnosed in Feb 2010 but I never came out of my "Honeymoon" phase and have been on very small ratios of Novorapid and very little Lantus.

For the past month they have took me off my Insulin completely and have had me on Metformin but the side-affects are awful and my BGs haven't been the best hence I'm going back to see my consultant soon.
I'm gradually coming back off the Metformin and would prefer to go back on Insulin as although it could be difficult to manage sometimes with very small ratios and doses it still beats the heck out of the side-effects I experience with Metformin.
I've spoke to my DSN and talked about a Pump and she said that could be a very good option as it can deliver very small amounts of Insulin which may be the best solution for me which brought me to asking about which one is best Smile

Thanks for your advice, greatly appreciated Very Happy