Recent Posts - DAFNE Online

Sep 11, 2013

novorapidboi26 1,819 posts

Topic: General Discussion / Pumps in the UK

there's a few folk on here that are on doses like that, its worth a go, at least in order to get some hypo awareness back......that can be quite overwhelming for some people who are nervous about hypos.....

Sep 11, 2013

Louise1988 69 posts

Topic: DAFNE Graduate Group (DGG) / DAFNE Collab 2013

Really interesting report, thanks for this. I'm intrigued by the course relating to hypo unawareness? Is this a course possible to attend?

Sep 11, 2013

Louise1988 69 posts

Topic: General Discussion / Pumps in the UK

I've done it a few times, but maybe not for long enough to see if it works

Sep 11, 2013

novorapidboi26 1,819 posts

Topic: General Discussion / Pumps in the UK

have you tried 0.5:1....

Sep 11, 2013

Louise1988 69 posts

Topic: General Discussion / Pumps in the UK

Only 1:1. I've tried doing less than I'm supposed to, based on that ratio, but that proves to not be enough...

Sep 11, 2013

novorapidboi26 1,819 posts

Topic: General Discussion / Pumps in the UK

you must be having a lot if your awareness is away..... Shocked

what about QA ratios.....

Sep 11, 2013

Louise1988 69 posts

Topic: General Discussion / Pumps in the UK

Yes, the hypos are at any time of day. It's more frustrating that I can't feel the hypos, so am checking constantly throughout the day.

I'm taking 8 units of Levemir, which I think is right, my morning levels seem to be ok, as well as 3am checks. I'm on maybe 13 units of novorapid during the day, so not a lot. I could at least do with a pen that allows me to do half units. Would prefer the pump though, as my consultant has said that no one has had any bad experiences from it, that he knows of...

Sep 11, 2013

mum2westiesGill 502 posts

Topic: General Discussion / Increase of Lantus/BI

Comments wanted also for these

Sep 11, 2013

mum2westiesGill 502 posts

Topic: General Discussion / Increase of Lantus/BI

Comments wanted also for these

Sep 11, 2013

mum2westiesGill 502 posts

Topic: General Discussion / Increase of Lantus/BI

So a while since I've posted BG results so just wanted some comments please

Sep 11, 2013

novorapidboi26 1,819 posts

Topic: General Discussion / Pumps in the UK

It must be quite frustrating..........do you have lots of hypos at different times of the day?

how much insulin do you take on average now?

Sep 11, 2013

Louise1988 69 posts

Topic: General Discussion / Pumps in the UK

Novorapidboi, I am still producing insulin, but I was only diagnosed with diabetes 2years ago.

I am having less insulin, but it doesn't seem to have much difference. One day I can have 4 units and I have a hypo, the next day, I am originally the same level, have more insulin, and it isn't enough...

Sep 11, 2013

novorapidboi26 1,819 posts

Topic: General Discussion / Pumps in the UK

Louise1988 said:
I'm type 1.5 too! They spent a year and a half treating me as a type 2, as my body is still producing a small amount of insulin. None of that worked, so they put me on insulin March this year. I'm trying to work up the courage to ask for the pump, as I'm finding it really difficult to control my sugars. The levels are so unpredictable, even if they start the same, I have the same food, and do the same amount of insulin. I also struggle with hypo unawareness. I'm hoping these are good enough reasons for me to be considered for the pump haha.

if your struggling with hypos that is normally enough to be considered.......

Has a reduction of insulin not helped with hypos?

Are you still producing insulin after all these years....?

Sep 11, 2013

Louise1988 69 posts

Topic: General Discussion / Pumps in the UK

Anele46 said:
I am not a "typical" Type 1 or Type 2. They thought I was Type 1 when I was first diagnosed in Feb 2010 but I never came out of my "Honeymoon" phase and have been on very small ratios of Novorapid and very little Lantus.

For the past month they have took me off my Insulin completely and have had me on Metformin but the side-affects are awful and my BGs haven't been the best hence I'm going back to see my consultant soon.
I'm gradually coming back off the Metformin and would prefer to go back on Insulin as although it could be difficult to manage sometimes with very small ratios and doses it still beats the heck out of the side-effects I experience with Metformin.
I've spoke to my DSN and talked about a Pump and she said that could be a very good option as it can deliver very small amounts of Insulin which may be the best solution for me which brought me to asking about which one is best

Thanks for your advice, greatly appreciated

I'm type 1.5 too! They spent a year and a half treating me as a type 2, as my body is still producing a small amount of insulin. None of that worked, so they put me on insulin March this year. I'm trying to work up the courage to ask for the pump, as I'm finding it really difficult to control my sugars. The levels are so unpredictable, even if they start the same, I have the same food, and do the same amount of insulin. I also struggle with hypo unawareness. I'm hoping these are good enough reasons for me to be considered for the pump haha.

Sep 10, 2013

BeccyB 50 posts

Topic: General Discussion / cheiroerthropathy

ps. You may have only just been diagnosed but I imagine you've been suffering from it for longer so you may not have to wait the 3 months Smile

Sep 10, 2013

BeccyB 50 posts

Topic: General Discussion / cheiroerthropathy

I would advise making an appointment with Citizens Advice - they can advise on what you are/may be entitiled to, and then they also help you fill out the claim forms correctly so you get what you deserve.

They were brilliant with my DLA claim a couple of years back (not diabetes related though so I can't offer specific advice on that)

Best of luck

Sep 10, 2013

Rafa 99 posts

Topic: Carbohydrate Counting / Burrito

Warwick said:
Try typing it into here:

http://ndb.nal.usda.gov/ndb/search/list

The carb amount changes depending on what's inside - beef versus beans for example.

That's great many thanks. I had one the other night and gave myself 6 qa. Totally wrong as i was just guessing. Thanks again.

Sep 10, 2013

Warwick 423 posts

Topic: Carbohydrate Counting / Burrito

Try typing it into here:

http://ndb.nal.usda.gov/ndb/search/list

The carb amount changes depending on what's inside - beef versus beans for example.

Sep 10, 2013

Warwick 423 posts

Topic: General Discussion / Insulin and Side Effects

My diabetes support group met last weekend. One of the women members (I'll call her Katie) has been in near constant pain for the last four years. Another member of the group had previously mentioned issues with pain and Lantus several months back, and Katie realised that her pain had started only a month after switching to Lantus from a different basal insulin.

In June Katie switched from both Lantus and her synthetic QA, to beef insulin, and over the last couple of months, the pain has receded so that it is about 15% of what it was, and it continues to improve. Katie said that she had found a lot of information online about bad side effects when using Lantus.

If you are concerned that you are being affected, then I'd suggest talking to your endo about it, and perhaps trialling another basal insulin such as Humalin or Levemir, or possibly beef or pork insulin if they are appropriate for you.

Sep 9, 2013

Teanosugar 25 posts

Topic: General Discussion / Insulin and Side Effects

I am just wondering if anyone has experienced side effects from using a particular type of insulin and what your experiences were? I remember a guy on my DAFNE course saying he had to come off Lantus because he felt like it was poisoning him.

I've been on Lantus for a year and I think that it's the cause of my dental problems because I've had so many problems since being on Lantus it's ridiculous. I have contacted my specialist about it and I'm waiting for feedback.

Sep 9, 2013

Teanosugar 25 posts

Topic: General Discussion / receeding gums

I have had poor dental problems for a couple of years now. It's not like my hygiene has been bad; it's just I seem to get loads of problems. My current problem is hell on earth. I had an extraction in May and I've been back to the dentist about 15 times since; just constant agony and the dentists can't sort it. I think it's to do with my diabetes. My GP is involved now.

It's that bad I'm on tramadol and it still isn't totally sorting it!

Sep 9, 2013

Rafa 99 posts

Topic: Carbohydrate Counting / Burrito

Hi,

Just wondering if anyone has any experience of cp's for burritos please?

Sep 6, 2013

Anele46 109 posts

Topic: General Discussion / Pumps in the UK

Vickyp said:
No problem. My consultant wanted me to get the Medtronic as it has a cgm, but I asked for omnipod and gave him my reasons and he was happy with that. Generally omnipod is used for children but 6 other adults were at training with me!
Hope it works out for you
X

Thanks Vicky, that's good to know Smile

cheers

Sep 11, 2013 novorapidboi26 1,819 posts	Topic: General Discussion / Pumps in the UK there's a few folk on here that are on doses like that, its worth a go, at least in order to get some hypo awareness back......that can be quite overwhelming for some people who are nervous about hypos.....

Sep 11, 2013 Louise1988 69 posts	Topic: DAFNE Graduate Group (DGG) / DAFNE Collab 2013 Really interesting report, thanks for this. I'm intrigued by the course relating to hypo unawareness? Is this a course possible to attend?

Sep 11, 2013 Louise1988 69 posts	Topic: General Discussion / Pumps in the UK I've done it a few times, but maybe not for long enough to see if it works

Sep 11, 2013 novorapidboi26 1,819 posts	Topic: General Discussion / Pumps in the UK have you tried 0.5:1....

Sep 11, 2013 Louise1988 69 posts	Topic: General Discussion / Pumps in the UK Only 1:1. I've tried doing less than I'm supposed to, based on that ratio, but that proves to not be enough...

Sep 11, 2013 novorapidboi26 1,819 posts	Topic: General Discussion / Pumps in the UK you must be having a lot if your awareness is away..... what about QA ratios.....

Sep 11, 2013 Louise1988 69 posts	Topic: General Discussion / Pumps in the UK Yes, the hypos are at any time of day. It's more frustrating that I can't feel the hypos, so am checking constantly throughout the day. I'm taking 8 units of Levemir, which I think is right, my morning levels seem to be ok, as well as 3am checks. I'm on maybe 13 units of novorapid during the day, so not a lot. I could at least do with a pen that allows me to do half units. Would prefer the pump though, as my consultant has said that no one has had any bad experiences from it, that he knows of...

Sep 11, 2013 mum2westiesGill 502 posts	Topic: General Discussion / Increase of Lantus/BI Comments wanted also for these

Sep 11, 2013 mum2westiesGill 502 posts	Topic: General Discussion / Increase of Lantus/BI Comments wanted also for these

Sep 11, 2013 mum2westiesGill 502 posts	Topic: General Discussion / Increase of Lantus/BI So a while since I've posted BG results so just wanted some comments please

Sep 11, 2013 novorapidboi26 1,819 posts	Topic: General Discussion / Pumps in the UK It must be quite frustrating..........do you have lots of hypos at different times of the day? how much insulin do you take on average now?

Sep 11, 2013 Louise1988 69 posts	Topic: General Discussion / Pumps in the UK Novorapidboi, I am still producing insulin, but I was only diagnosed with diabetes 2years ago. I am having less insulin, but it doesn't seem to have much difference. One day I can have 4 units and I have a hypo, the next day, I am originally the same level, have more insulin, and it isn't enough...

Sep 11, 2013 novorapidboi26 1,819 posts	Topic: General Discussion / Pumps in the UK Louise1988 said: I'm type 1.5 too! They spent a year and a half treating me as a type 2, as my body is still producing a small amount of insulin. None of that worked, so they put me on insulin March this year. I'm trying to work up the courage to ask for the pump, as I'm finding it really difficult to control my sugars. The levels are so unpredictable, even if they start the same, I have the same food, and do the same amount of insulin. I also struggle with hypo unawareness. I'm hoping these are good enough reasons for me to be considered for the pump haha. if your struggling with hypos that is normally enough to be considered....... Has a reduction of insulin not helped with hypos? Are you still producing insulin after all these years....?

Sep 11, 2013 Louise1988 69 posts	Topic: General Discussion / Pumps in the UK Anele46 said: I am not a "typical" Type 1 or Type 2. They thought I was Type 1 when I was first diagnosed in Feb 2010 but I never came out of my "Honeymoon" phase and have been on very small ratios of Novorapid and very little Lantus. For the past month they have took me off my Insulin completely and have had me on Metformin but the side-affects are awful and my BGs haven't been the best hence I'm going back to see my consultant soon. I'm gradually coming back off the Metformin and would prefer to go back on Insulin as although it could be difficult to manage sometimes with very small ratios and doses it still beats the heck out of the side-effects I experience with Metformin. I've spoke to my DSN and talked about a Pump and she said that could be a very good option as it can deliver very small amounts of Insulin which may be the best solution for me which brought me to asking about which one is best Thanks for your advice, greatly appreciated I'm type 1.5 too! They spent a year and a half treating me as a type 2, as my body is still producing a small amount of insulin. None of that worked, so they put me on insulin March this year. I'm trying to work up the courage to ask for the pump, as I'm finding it really difficult to control my sugars. The levels are so unpredictable, even if they start the same, I have the same food, and do the same amount of insulin. I also struggle with hypo unawareness. I'm hoping these are good enough reasons for me to be considered for the pump haha.

Sep 10, 2013 BeccyB 50 posts	Topic: General Discussion / cheiroerthropathy ps. You may have only just been diagnosed but I imagine you've been suffering from it for longer so you may not have to wait the 3 months

Sep 10, 2013 BeccyB 50 posts	Topic: General Discussion / cheiroerthropathy I would advise making an appointment with Citizens Advice - they can advise on what you are/may be entitiled to, and then they also help you fill out the claim forms correctly so you get what you deserve. They were brilliant with my DLA claim a couple of years back (not diabetes related though so I can't offer specific advice on that) Best of luck

Sep 10, 2013 Rafa 99 posts	Topic: Carbohydrate Counting / Burrito Warwick said: Try typing it into here: http://ndb.nal.usda.gov/ndb/search/list The carb amount changes depending on what's inside - beef versus beans for example. That's great many thanks. I had one the other night and gave myself 6 qa. Totally wrong as i was just guessing. Thanks again.

Sep 10, 2013 Warwick 423 posts	Topic: Carbohydrate Counting / Burrito Try typing it into here: http://ndb.nal.usda.gov/ndb/search/list The carb amount changes depending on what's inside - beef versus beans for example.

Sep 10, 2013 Warwick 423 posts	Topic: General Discussion / Insulin and Side Effects My diabetes support group met last weekend. One of the women members (I'll call her Katie) has been in near constant pain for the last four years. Another member of the group had previously mentioned issues with pain and Lantus several months back, and Katie realised that her pain had started only a month after switching to Lantus from a different basal insulin. In June Katie switched from both Lantus and her synthetic QA, to beef insulin, and over the last couple of months, the pain has receded so that it is about 15% of what it was, and it continues to improve. Katie said that she had found a lot of information online about bad side effects when using Lantus. If you are concerned that you are being affected, then I'd suggest talking to your endo about it, and perhaps trialling another basal insulin such as Humalin or Levemir, or possibly beef or pork insulin if they are appropriate for you.

Sep 9, 2013 Teanosugar 25 posts	Topic: General Discussion / Insulin and Side Effects I am just wondering if anyone has experienced side effects from using a particular type of insulin and what your experiences were? I remember a guy on my DAFNE course saying he had to come off Lantus because he felt like it was poisoning him. I've been on Lantus for a year and I think that it's the cause of my dental problems because I've had so many problems since being on Lantus it's ridiculous. I have contacted my specialist about it and I'm waiting for feedback.

Sep 9, 2013 Teanosugar 25 posts	Topic: General Discussion / receeding gums I have had poor dental problems for a couple of years now. It's not like my hygiene has been bad; it's just I seem to get loads of problems. My current problem is hell on earth. I had an extraction in May and I've been back to the dentist about 15 times since; just constant agony and the dentists can't sort it. I think it's to do with my diabetes. My GP is involved now. It's that bad I'm on tramadol and it still isn't totally sorting it!

Sep 9, 2013 Rafa 99 posts	Topic: Carbohydrate Counting / Burrito Hi, Just wondering if anyone has any experience of cp's for burritos please?

Sep 6, 2013 Anele46 109 posts	Topic: General Discussion / Pumps in the UK Vickyp said: No problem. My consultant wanted me to get the Medtronic as it has a cgm, but I asked for omnipod and gave him my reasons and he was happy with that. Generally omnipod is used for children but 6 other adults were at training with me! Hope it works out for you X Thanks Vicky, that's good to know cheers