Recent Posts - DAFNE Online

Oct 5, 2013

izzi1234 5 posts

thanks i thought it would be something of nothing.

my mind has definitely been put more at rest

Oct 5, 2013

youone 102 posts

Topic: General Discussion / Exercise & BG levels

HI
Warwick: is the guy for exercise knowledge
when I started running especially when I switched to the omnipod2 from MDI I wanted to know what was happing to my BG after exercise.
test before and soon as you finish
all but a small fraction of my tests are around mid 4 when I finish a 10km run, I always carry QA carb with me,
and try and run with a buddy
I don't react on this test,
I test again 15mins later, surprise its 9 or 10
this is the test I correct on.
I've asked sport professionals, doctors what causes this, the answer Adrenalin
The good point is the exercise is working when your body produces this chemical, a bit like a de-toxt clears the system.
I know from experience after a run I feel better my BG are good and over time my insulin intake has drop considerable.

Oct 5, 2013

youone 102 posts

Topic: General Discussion / working nights

hi
When you say you've been told, is this with your agreement or is this been forced upon you?
if you feel you will benefit from working night shifts and willingly to do this that's fine,
as a type 1 diabetic under the 2010 disability act and the 2008 act before that your company / employer must make adjustments for your condition, this covers time away from your work station to do BG take insulin and provide a room to do these(not a toilet) also other areas are covered,
if your in a union I would seek advice.
Of course its your decision and you know your employer best, like all diabetics we think where just as good as none diabetics and can do the same if not better, where certainly better working with detail and don't like to draw attention to ourselves, the thing to remember is if your insulin was removed could you continue , of course the answer is no, that's the reason we are different.
and adjustments need to be put in place for you to control your condition.
there not major, but will help you work the most difficult shift for a type 1
there are advisory packs available from Diabetic UK to download

http://www.diabetes.org.uk/How_we_help/Advocacy/Advocacy-packs/Your-rights-at-work---discrimination-and-how-to-resolve-it/

Oct 5, 2013

youone 102 posts

Topic: General Discussion / swimming/watersports

I switched to the omnipod2 back in September of this year, has/ does anyone know of a dressing that covers the pod that's water proof that would last an hours + time in water,
I'm ok in the shower that's ok also with running its ok, but I had an
intense swim in the pool and the pod worked lose.
I've been told about tagederm, but I'm unable to find 1 that's water proof, a reference number would be helpful?
type1 MDI 42 yrs
omnipod2 1 month

Oct 4, 2013

davidcragg 17 posts

Topic: Carbohydrate Counting / carbs and cal iphone app

On the 27th September they tweeted:

"Apologies to iPhone users who have updated to v3.0. We've taken the app off the AppStore for now but are hoping to release version 3.1 ASAP."

but I haven't heard anything since from them Sad

If you are eating out, I've been pulling together details that companies provide on their carb content here:
http://t1ramblings.blogspot.co.uk/2013/07/eating-and-drinking-out-who-helps-you.html
which may or may not be useful to you. Any additions would be most welcome too!

David

Oct 3, 2013

marke 681 posts

Topic: General Discussion / eye scan

i would agree its nothing to worry about but I also agree the letters are very poor in the extreme. I got one and the next time I saw my consultant before I even asked he had got the scans on the screen because he knew I would ask. He showed me the 'issue' found had been there for years and was infact a minor issue with my retina that had always been there and was not caused by Diabetes. He said it was an over zealous checker.
I think this letter is completely pointless in that generally unless the condition worsens they will take no action and will wait a year before checking again. Its always a good idea to keep your BG in range if possible to avoid all complications not just retinopathy.

Oct 3, 2013

Vickyp 137 posts

Topic: Carbohydrate Counting / carbs and cal iphone app

I gave an android, which has recently updated and no issues with app on that...don't know about iPhone.

Oct 3, 2013

Vickyp 137 posts

Topic: General Discussion / eye scan

I have background retinopathy...as shown by last 2 eye scans. Have only been diagnosed diabetic for 18 months!
When having a recent eye test I told the opthalmologist and he had a good check and said its must be minor as he couldn't see any issues, and no change to sight since last eye test. He also said that background retinopathy can come and go and it depends on when scan taken, but it's nothing to worry about!

Oct 3, 2013

Robbo 1 post

Topic: Carbohydrate Counting / carbs and cal iphone app

Just wondering if anybody is having trouble using the very useful app " Carbs and Cals". Since doing the update to new software the app appears to freeze.
Find this app very good for eating out etc. Saves carrying the book with you .

Oct 3, 2013

dinaelshurafa 1 post

Topic: General Discussion / eye scan

I have had the same thing - "background retinopathy" - my consultant said to keep a closer eye on my sugars and as long as I have better control, this shouldn't be a problem..

Oct 3, 2013

izzi1234 5 posts

Topic: General Discussion / eye scan

Thanks for the replies im hoping its just back ground retinopathathy.

Think the letter which is obviously a template should be worded better. I have only been type 1 for 5 years so is a bit worrying im only 26.

Oct 3, 2013

Auffea 2 posts

Topic: General Discussion / eye scan

I had a letter like that last year saying that I had "background retinopathy" I was so worried that i asked the diabetes specialist at my local hospital who explained that most of the population has background retinopathy and that it doesn't mean that you are in imminent danger of losing your eyesight. He said just keep your blood glucose down within target and everything should be alright. I have had diabetes now for 15 years and that was the first time I'd heard of background retinopathy.

Oct 3, 2013

Warwick 423 posts

Topic: General Discussion / eye scan

It may of course be something other than diabetic retinopathy. Hopefully your letter will tell you what it is.

Oct 3, 2013

Warwick 423 posts

Topic: General Discussion / eye scan

Sounds like Diabetic Retinopathy to me:

http://en.wikipedia.org/wiki/Diabetic_retinopathy

The management section of this article may be helpful.

Definitely talk to someone - opthalmologist or doctor about this. If you aren't happy with the response you get, then get a second opinion. Part of a medical professional's job is to answer your questions and help your management, and if they aren't doing that effectively, then you are well within your rights to find that one does.

Oct 2, 2013

izzi1234 5 posts

Topic: General Discussion / eye scan

I have recently had an eye scan and been sent a letter saying that diabetes is affecting my eyes. no treatment required.

I rung my doctors as it says to ring them for more info but they just left a voicemail saying basically nothing other than that its affecting my eyes and will go for another scan in a year.

has any one had this before can it go? its left me a bit worried

thanks

Oct 1, 2013

Warwick 423 posts

Topic: Questions for HCPs / Think my Novorapid is too slow!

Hello,

I don't find it sore at all injecting into my bicep. I think it may have hurt a bit injecting into my calf, but I stopped doing that. Everyone is different though, so it would be a case of experimentation.

I use 4 mm needles whether injecting into fat or muscle, but I have very little fat between the skin and muscle of the bicep. An 8 mm needle may be required if more body fat is carried.

If your BGLs are back in a normal zone 3-4 hours after eating, then increasing your QA dose would be a bad idea as it will likely lead to hypos. You would want to look at injecting earlier before meals so that the peak action of the QA matches the peaking of the BGs after eating, or trying the muscle injections.

Oct 1, 2013

sheila 2 posts

Topic: Questions for HCPs / Think my Novorapid is too slow!

Hi everyone - thank you so much for your interest and speedy replies! The injecting into muscle sounds intriguing, but isn't it a bit sore? Sad

And wouldn't I need longer needles (I have 6mm at the moment)? It definitely sounds like something I'd look into, though, thanks for the suggestion. My BG seems to rise to as high as 19 or 20 an hour after I've eaten, and that's when it's at between 6 and 7 before I eat. This can't be right, surely? I wondered whether I should change my ratios, but it seems to be more to do with when it's rising rather than the amounts? I'm now also seriously considering taking my bolus dose early, though this might not be achievable each time I eat, as sometimes it's more spontaneous than others! Thanks for all your suggestions.

Oct 1, 2013

jlyall 8 posts

Topic: Carbohydrate Counting / carbs in turnip

a good helping of mashed turnip instead of potatoes and a bit of butter
possibly count it the next time and see what happens

Oct 1, 2013

Eatonmywords 2 posts

Topic: Questions for HCPs / Ketones at Night

Thanks novorapidboi26 - I think that my BI is holding me steady once I have got rid of the ketones I am back in target and it holds me there. I wondered about increasing my dinnertime ratio in the hope that it would help hold the ketones off. I am on soluble (Humulin S) QA so it hangs around for up to 8 hours.

Oct 1, 2013

novorapidboi26 1,819 posts

Topic: Questions for HCPs / Think my Novorapid is too slow!

Experimenting with the timing as Garry suggested would be my personal choice. Allowing the insulin to get in and going strong would be advantageous to your quick digestion. I injected, and still do bolus with pump, 30 minutes before I eat, in order to get the mid meal spike down as low as possible, so 1.5 to 2 hours later. It works a treat. So definitely worth experimenting with.

Warwick suggestion is good too, if your up for that....

How much of a rise in BG have you observed.....?

Oct 1, 2013

novorapidboi26 1,819 posts

Topic: Questions for HCPs / Ketones at Night

how many ketones are you registering? Is it blood ketones?

Ketones usually present them selves when there is lack of glucose energy getting in to the cells and so fat is burned to satisfy that glucose requirement. You seem to be having carbs every few hours with insulin, so you would expect ketone levels to be lower during this time, which is during the day, the time your ketone levels are lower....

I cant really say if its normal for ketones to come and go. I know once they are there they have to processed with insulin just as glucose does....

If the ketone levels are low, so + or ++, then I would recommend doing a BI check overnight. Only if you feel up to it. You would be up every 2 hours anyway, so it would be an excellent opportunity to see what your BI is doing overnight.

Ultimately you aren't getting enough insulin during the night, which is causing the ketones, so getting your BI to do the heavy lifting rather than breaking sleep and giving QA to compensate would be much more appealing....

Very Happy

Oct 1, 2013

novorapidboi26 1,819 posts

Topic: Carbohydrate Counting / carbs in turnip

was there a lot of turnip?

either way, a few more test with it should confirm if you need insulin........the amount of which will likely be unique to you.... Smile

Oct 1, 2013

novorapidboi26 1,819 posts

Topic: General Discussion / working nights

I agree with Wawrick, taking it at the same time would be the preferred option...

There is no reason why this wont be possible, unless your shift starts at 10 pm. An hour either side of 10 pm wont matter though.......

Enjoy the night shift........

I was on 2 injections a day when I done night shift, it killed me........

Oct 1, 2013

Eatonmywords 2 posts

Topic: Questions for HCPs / Ketones at Night

I discovered two skin infection sites on 27th. The GP nurse prescribed antibiotics to fight the infection. Alongside hot compresses this seems to have worked quite well. I am checking Ketones as I also have a cold. But I am finding that I am clear of Ketones during the day, but they reappear before I go to bed meaning I am having to check 2 hourly through the night (according to the sick day rules).

Is it normal for Ketones to come and go like this? Could I make a change to my INSULIN regime during the day to counteract the Ketones at night?


Oct 5, 2013 izzi1234 5 posts	Topic: General Discussion / eye scan thanks i thought it would be something of nothing. my mind has definitely been put more at rest

Oct 5, 2013 youone 102 posts	Topic: General Discussion / Exercise & BG levels HI Warwick: is the guy for exercise knowledge when I started running especially when I switched to the omnipod2 from MDI I wanted to know what was happing to my BG after exercise. test before and soon as you finish all but a small fraction of my tests are around mid 4 when I finish a 10km run, I always carry QA carb with me, and try and run with a buddy I don't react on this test, I test again 15mins later, surprise its 9 or 10 this is the test I correct on. I've asked sport professionals, doctors what causes this, the answer Adrenalin The good point is the exercise is working when your body produces this chemical, a bit like a de-toxt clears the system. I know from experience after a run I feel better my BG are good and over time my insulin intake has drop considerable.

Oct 5, 2013 youone 102 posts	Topic: General Discussion / working nights hi When you say you've been told, is this with your agreement or is this been forced upon you? if you feel you will benefit from working night shifts and willingly to do this that's fine, as a type 1 diabetic under the 2010 disability act and the 2008 act before that your company / employer must make adjustments for your condition, this covers time away from your work station to do BG take insulin and provide a room to do these(not a toilet) also other areas are covered, if your in a union I would seek advice. Of course its your decision and you know your employer best, like all diabetics we think where just as good as none diabetics and can do the same if not better, where certainly better working with detail and don't like to draw attention to ourselves, the thing to remember is if your insulin was removed could you continue , of course the answer is no, that's the reason we are different. and adjustments need to be put in place for you to control your condition. there not major, but will help you work the most difficult shift for a type 1 there are advisory packs available from Diabetic UK to download http://www.diabetes.org.uk/How_we_help/Advocacy/Advocacy-packs/Your-rights-at-work---discrimination-and-how-to-resolve-it/

Oct 5, 2013 youone 102 posts	Topic: General Discussion / swimming/watersports I switched to the omnipod2 back in September of this year, has/ does anyone know of a dressing that covers the pod that's water proof that would last an hours + time in water, I'm ok in the shower that's ok also with running its ok, but I had an intense swim in the pool and the pod worked lose. I've been told about tagederm, but I'm unable to find 1 that's water proof, a reference number would be helpful? type1 MDI 42 yrs omnipod2 1 month

Oct 4, 2013 davidcragg 17 posts	Topic: Carbohydrate Counting / carbs and cal iphone app On the 27th September they tweeted: "Apologies to iPhone users who have updated to v3.0. We've taken the app off the AppStore for now but are hoping to release version 3.1 ASAP." but I haven't heard anything since from them If you are eating out, I've been pulling together details that companies provide on their carb content here: http://t1ramblings.blogspot.co.uk/2013/07/eating-and-drinking-out-who-helps-you.html which may or may not be useful to you. Any additions would be most welcome too! David

Oct 3, 2013 marke 681 posts	Topic: General Discussion / eye scan i would agree its nothing to worry about but I also agree the letters are very poor in the extreme. I got one and the next time I saw my consultant before I even asked he had got the scans on the screen because he knew I would ask. He showed me the 'issue' found had been there for years and was infact a minor issue with my retina that had always been there and was not caused by Diabetes. He said it was an over zealous checker. I think this letter is completely pointless in that generally unless the condition worsens they will take no action and will wait a year before checking again. Its always a good idea to keep your BG in range if possible to avoid all complications not just retinopathy.

Oct 3, 2013 Vickyp 137 posts	Topic: Carbohydrate Counting / carbs and cal iphone app I gave an android, which has recently updated and no issues with app on that...don't know about iPhone.

Oct 3, 2013 Vickyp 137 posts	Topic: General Discussion / eye scan I have background retinopathy...as shown by last 2 eye scans. Have only been diagnosed diabetic for 18 months! When having a recent eye test I told the opthalmologist and he had a good check and said its must be minor as he couldn't see any issues, and no change to sight since last eye test. He also said that background retinopathy can come and go and it depends on when scan taken, but it's nothing to worry about!

Oct 3, 2013 Robbo 1 post	Topic: Carbohydrate Counting / carbs and cal iphone app Just wondering if anybody is having trouble using the very useful app " Carbs and Cals". Since doing the update to new software the app appears to freeze. Find this app very good for eating out etc. Saves carrying the book with you .

Oct 3, 2013 dinaelshurafa 1 post	Topic: General Discussion / eye scan I have had the same thing - "background retinopathy" - my consultant said to keep a closer eye on my sugars and as long as I have better control, this shouldn't be a problem..

Oct 3, 2013 izzi1234 5 posts	Topic: General Discussion / eye scan Thanks for the replies im hoping its just back ground retinopathathy. Think the letter which is obviously a template should be worded better. I have only been type 1 for 5 years so is a bit worrying im only 26.

Oct 3, 2013 Auffea 2 posts	Topic: General Discussion / eye scan I had a letter like that last year saying that I had "background retinopathy" I was so worried that i asked the diabetes specialist at my local hospital who explained that most of the population has background retinopathy and that it doesn't mean that you are in imminent danger of losing your eyesight. He said just keep your blood glucose down within target and everything should be alright. I have had diabetes now for 15 years and that was the first time I'd heard of background retinopathy.

Oct 3, 2013 Warwick 423 posts	Topic: General Discussion / eye scan It may of course be something other than diabetic retinopathy. Hopefully your letter will tell you what it is.

Oct 3, 2013 Warwick 423 posts	Topic: General Discussion / eye scan Sounds like Diabetic Retinopathy to me: http://en.wikipedia.org/wiki/Diabetic_retinopathy The management section of this article may be helpful. Definitely talk to someone - opthalmologist or doctor about this. If you aren't happy with the response you get, then get a second opinion. Part of a medical professional's job is to answer your questions and help your management, and if they aren't doing that effectively, then you are well within your rights to find that one does.

Oct 2, 2013 izzi1234 5 posts	Topic: General Discussion / eye scan I have recently had an eye scan and been sent a letter saying that diabetes is affecting my eyes. no treatment required. I rung my doctors as it says to ring them for more info but they just left a voicemail saying basically nothing other than that its affecting my eyes and will go for another scan in a year. has any one had this before can it go? its left me a bit worried thanks

Oct 1, 2013 Warwick 423 posts	Topic: Questions for HCPs / Think my Novorapid is too slow! Hello, I don't find it sore at all injecting into my bicep. I think it may have hurt a bit injecting into my calf, but I stopped doing that. Everyone is different though, so it would be a case of experimentation. I use 4 mm needles whether injecting into fat or muscle, but I have very little fat between the skin and muscle of the bicep. An 8 mm needle may be required if more body fat is carried. If your BGLs are back in a normal zone 3-4 hours after eating, then increasing your QA dose would be a bad idea as it will likely lead to hypos. You would want to look at injecting earlier before meals so that the peak action of the QA matches the peaking of the BGs after eating, or trying the muscle injections.

Oct 1, 2013 sheila 2 posts	Topic: Questions for HCPs / Think my Novorapid is too slow! Hi everyone - thank you so much for your interest and speedy replies! The injecting into muscle sounds intriguing, but isn't it a bit sore? And wouldn't I need longer needles (I have 6mm at the moment)? It definitely sounds like something I'd look into, though, thanks for the suggestion. My BG seems to rise to as high as 19 or 20 an hour after I've eaten, and that's when it's at between 6 and 7 before I eat. This can't be right, surely? I wondered whether I should change my ratios, but it seems to be more to do with when it's rising rather than the amounts? I'm now also seriously considering taking my bolus dose early, though this might not be achievable each time I eat, as sometimes it's more spontaneous than others! Thanks for all your suggestions.

Oct 1, 2013 jlyall 8 posts	Topic: Carbohydrate Counting / carbs in turnip a good helping of mashed turnip instead of potatoes and a bit of butter possibly count it the next time and see what happens

Oct 1, 2013 Eatonmywords 2 posts	Topic: Questions for HCPs / Ketones at Night Thanks novorapidboi26 - I think that my BI is holding me steady once I have got rid of the ketones I am back in target and it holds me there. I wondered about increasing my dinnertime ratio in the hope that it would help hold the ketones off. I am on soluble (Humulin S) QA so it hangs around for up to 8 hours.

Oct 1, 2013 novorapidboi26 1,819 posts	Topic: Questions for HCPs / Think my Novorapid is too slow! Experimenting with the timing as Garry suggested would be my personal choice. Allowing the insulin to get in and going strong would be advantageous to your quick digestion. I injected, and still do bolus with pump, 30 minutes before I eat, in order to get the mid meal spike down as low as possible, so 1.5 to 2 hours later. It works a treat. So definitely worth experimenting with. Warwick suggestion is good too, if your up for that.... How much of a rise in BG have you observed.....?

Oct 1, 2013 novorapidboi26 1,819 posts	Topic: Questions for HCPs / Ketones at Night how many ketones are you registering? Is it blood ketones? Ketones usually present them selves when there is lack of glucose energy getting in to the cells and so fat is burned to satisfy that glucose requirement. You seem to be having carbs every few hours with insulin, so you would expect ketone levels to be lower during this time, which is during the day, the time your ketone levels are lower.... I cant really say if its normal for ketones to come and go. I know once they are there they have to processed with insulin just as glucose does.... If the ketone levels are low, so + or ++, then I would recommend doing a BI check overnight. Only if you feel up to it. You would be up every 2 hours anyway, so it would be an excellent opportunity to see what your BI is doing overnight. Ultimately you aren't getting enough insulin during the night, which is causing the ketones, so getting your BI to do the heavy lifting rather than breaking sleep and giving QA to compensate would be much more appealing....

Oct 1, 2013 novorapidboi26 1,819 posts	Topic: Carbohydrate Counting / carbs in turnip was there a lot of turnip? either way, a few more test with it should confirm if you need insulin........the amount of which will likely be unique to you....

Oct 1, 2013 novorapidboi26 1,819 posts	Topic: General Discussion / working nights I agree with Wawrick, taking it at the same time would be the preferred option... There is no reason why this wont be possible, unless your shift starts at 10 pm. An hour either side of 10 pm wont matter though....... Enjoy the night shift........ I was on 2 injections a day when I done night shift, it killed me........

Oct 1, 2013 Eatonmywords 2 posts	Topic: Questions for HCPs / Ketones at Night I discovered two skin infection sites on 27th. The GP nurse prescribed antibiotics to fight the infection. Alongside hot compresses this seems to have worked quite well. I am checking Ketones as I also have a cold. But I am finding that I am clear of Ketones during the day, but they reappear before I go to bed meaning I am having to check 2 hourly through the night (according to the sick day rules). Is it normal for Ketones to come and go like this? Could I make a change to my INSULIN regime during the day to counteract the Ketones at night?