Recent Posts - DAFNE Online

Oct 8, 2013

Jimandbillow 8 posts

A meter that measures ketones if far better and more accurate than urine sticks. There are 2 to try. Glucomen lx plus or the abbott freestyle optium.

Oct 8, 2013

Louise1988 69 posts

Topic: General Discussion / Diet Drinks

I'd love to start a campaign to get more diet drinks in pubs and restaurants! I can't drink coke, as I have an intolerance to it, so all I drink when I'm out, is water, which is incredibly boring. My local pub did order in diet lemonade, but they say it was a mistake and won't be ordering any more in Sad

Oct 8, 2013

john day 54 posts

Topic: DAFNE Online Mobile / How to upload diary from app to website

I am running the app on a Nexus 7 and, as new to Android, still getting to grips with how to drive the thing generally !

In particular , as per BMuffs query, I have not been able to work out how to delete or amend an erroneous dafne entry . I have one saved currently and it indicates error upon upload attempt and appears to prevent other, later entries being uploaded also.

Hopefully there is a simple solution!

Oct 8, 2013

Louise1988 69 posts

Topic: General Discussion / 3am tests

I need to test my basal rates, which involves a 3am test (eek). I never eat after about 8pm, so I would have no qa insulin working at 3am. Do I still need to have a carb free dinner, to test this accurately?

Oct 8, 2013

Matt Hewitt 8 posts

Topic: General Discussion / Diabetic jokes

My wife recently found out she suffers from both diabetes and hay fever.

I have tried to cheer her up by sending gifts, you know; flowers, chocolates.

Oct 7, 2013

novorapidboi26 1,819 posts

Topic: Questions for HCPs / Think my Novorapid is too slow!

That is a valid risk and one that needs to be factored in of course....if you had a habit of not finishing a meal then you could consider smaller portions....as for fire alarm situations....its good practice to have hypo resolve to hand at all times....

Its all about trial and error and weighing up the risks personal to you....

In this situation having 19 and 20s in my opinion wouldn't be good enough....I feel really bad at those levels....but dome may be OK and wouldn't see a significant effect on long term blood sugars.... Don't forget about complications that come with yo yoing BG...

;)

Oct 7, 2013

youone 102 posts

Topic: Questions for HCPs / Think my Novorapid is too slow!

When you inject before having a meal you risk putting yourself in a position where for what ever reason you can't complete your meal.
This is 1 topic I disagreed with Dafne since Dafne teaches us to inject after eating.
My view changed when I injected before I had started to eat my lunch, when the fire alarm went off, for real, complete get your self out the building quick.
I had injected 6 units of AQ humolog.
I can tell you the next 15 mins looking for and explaining to the fire marshal that I needed carbs is something that reminds me to eat then inject.
Shocked

Oct 7, 2013

novorapidboi26 1,819 posts

Topic: Questions for HCPs / Think my Novorapid is too slow!

When our dose adjusting, then the pre meal test is the most important one, but once that's all done its good to go after the mid meal numbers.....

for me these were causing problems, really tired in the afternoons and also pushing up my HbA1c.....

In Sheilas case its definitely worth tackling with numbers that high.....

If your on target by the next meal even when your getting the highs 1 hour to 2 hours after injecting then its all about timing...........you need to get the peak effectiveness of the insulin, which is quoted to be 1-2 hours after injecting, to match up with the peak of the digestion, everyone digests at different speeds, same with the insulin action........so you need to get the insulin in a lot quicker than 'at the time of eating' or 'just before you eat', you need to experiment with it, get it in 15 minutes, 20 minutes, 30 minutes, sometimes more before eating...

the results will e good...... Very Happy

Oct 7, 2013

youone 102 posts

Topic: Questions for HCPs / Think my Novorapid is too slow!

sheila said:
Hi everyone - thank you so much for your interest and speedy replies! The injecting into muscle sounds intriguing, but isn't it a bit sore? And wouldn't I need longer needles (I have 6mm at the moment)? It definitely sounds like something I'd look into, though, thanks for the suggestion. My BG seems to rise to as high as 19 or 20 an hour after I've eaten, and that's when it's at between 6 and 7 before I eat. This can't be right, surely? I wondered whether I should change my ratios, but it seems to be more to do with when it's rising rather than the amounts? I'm now also seriously considering taking my bolus dose early, though this might not be achievable ea fi
time I eat, as sometimes it's more spontaneous than others! Thanks for all your suggestions.

Hi
The important BG is the 1 after 4 to 5 hours after your QA dose this is the BG you correct from.
The only time you would correct after an 1 hour period is when its below the starting BG number the correction then would be with a QA carb.
If you find the number to high and it worry's you don't test at this stage unless you feel hot and sweaty which points to you been to low.
The injection into muscle worry's me, over time even a single injection would cause sores which take a long time to heal.
I've seen many people who injected into the arm with very sore and not good looking brusing
But this is new to me,I never over 40 yrs injected directly into muscle.
I'm glad i'm now on the omnipod 2 MDI sounds like a medieval torture.

Oct 7, 2013

youone 102 posts

Topic: General Discussion / Background insulin (BI)

Glad it helped SueA
The numbers I showed worked up to a point and are only a guide.
The best thing any type 1 can do is exercise even a walk helps you reduce your insulin amounts
Good luck with you hitting both your BG and weight targets
Type1 MDI 42 yes
Omnipod2 2months

Oct 7, 2013

novorapidboi26 1,819 posts

Topic: General Discussion / eye scan

I have had background retinopathy for five years, and it was my last appointment that flagged up maculopathy in one of my eyes.......

A trip to the hospital eye doctor confirmed in fact it had not progressed further in........

I think after having diabetes for a long time, maybe 10 years plus, its perfectly normal to have background reitnopathy. As long as blood sugars are stable and not high and low, and your BP is under control, the leaks can heal themselves without causing problems......

the letter does need changed though.........

Oct 7, 2013

SueA 9 posts

Topic: General Discussion / Background insulin (BI)

I just read this topic for the first time and have found it really helpful. Smile

Since Dafne I have put on weight and at present I am trying to reverse this. Brian's post has explained why I have had to put up my BI and the figures confirm that I am on the right amount. It will also help with adjustments as I loose weight.
Thank you
SueA

Oct 6, 2013

marke 686 posts

Topic: Carbohydrate Counting / Dominoes

There is a link to the Dominos carb data in our carb content list here

Oct 6, 2013

marke 686 posts

Topic: Carbohydrate Counting / carbs and cal iphone app

I should probably point out that this site also has a carb content list here, which any additions would also be most welcome Laughing

Oct 6, 2013

Louise1988 69 posts

Topic: Carbohydrate Counting / Dominoes

It depends what toppings you go for...pepperoni for example is 2cp's per slice. Carbs 'n' cals seems to be pretty comprehensive when it comes to takeaway food.

Oct 6, 2013

Jonbaldwin1 1 post

Topic: Carbohydrate Counting / Dominoes

Hi does anyone know how many cps are in a large dominoes pizza?

Oct 6, 2013

Alan 49 284 posts

Topic: General Discussion / Mendor Discreet meter

I received in the post a Mendor Discreet blood glucose meter yesterday. It came with a letter from a company called Merck Serono, thanking me for applying for it. I don't remember applying for it, but I suppose I might have ticked a box on a website or something.

Anyway, I followed the User Guide and set it up. When I tried to use it, the test-strip appeared at the side if the meter, I inserted a lancet in the side of the mete (this bit isn't mentioned in the Guide) and primed it, as shown in the Guide, but I couldn't get the finger-pricker to work.

Has anybody managed to get it to work?

Oct 5, 2013

izzi1234 5 posts

Topic: General Discussion / eye scan

thanks i thought it would be something of nothing.

my mind has definitely been put more at rest

Oct 5, 2013

youone 102 posts

Topic: General Discussion / Exercise & BG levels

HI
Warwick: is the guy for exercise knowledge
when I started running especially when I switched to the omnipod2 from MDI I wanted to know what was happing to my BG after exercise.
test before and soon as you finish
all but a small fraction of my tests are around mid 4 when I finish a 10km run, I always carry QA carb with me,
and try and run with a buddy
I don't react on this test,
I test again 15mins later, surprise its 9 or 10
this is the test I correct on.
I've asked sport professionals, doctors what causes this, the answer Adrenalin
The good point is the exercise is working when your body produces this chemical, a bit like a de-toxt clears the system.
I know from experience after a run I feel better my BG are good and over time my insulin intake has drop considerable.

Oct 5, 2013

youone 102 posts

Topic: General Discussion / working nights

hi
When you say you've been told, is this with your agreement or is this been forced upon you?
if you feel you will benefit from working night shifts and willingly to do this that's fine,
as a type 1 diabetic under the 2010 disability act and the 2008 act before that your company / employer must make adjustments for your condition, this covers time away from your work station to do BG take insulin and provide a room to do these(not a toilet) also other areas are covered,
if your in a union I would seek advice.
Of course its your decision and you know your employer best, like all diabetics we think where just as good as none diabetics and can do the same if not better, where certainly better working with detail and don't like to draw attention to ourselves, the thing to remember is if your insulin was removed could you continue , of course the answer is no, that's the reason we are different.
and adjustments need to be put in place for you to control your condition.
there not major, but will help you work the most difficult shift for a type 1
there are advisory packs available from Diabetic UK to download

http://www.diabetes.org.uk/How_we_help/Advocacy/Advocacy-packs/Your-rights-at-work---discrimination-and-how-to-resolve-it/

Oct 5, 2013

youone 102 posts

Topic: General Discussion / swimming/watersports

I switched to the omnipod2 back in September of this year, has/ does anyone know of a dressing that covers the pod that's water proof that would last an hours + time in water,
I'm ok in the shower that's ok also with running its ok, but I had an
intense swim in the pool and the pod worked lose.
I've been told about tagederm, but I'm unable to find 1 that's water proof, a reference number would be helpful?
type1 MDI 42 yrs
omnipod2 1 month

Oct 4, 2013

davidcragg 17 posts

Topic: Carbohydrate Counting / carbs and cal iphone app

On the 27th September they tweeted:

"Apologies to iPhone users who have updated to v3.0. We've taken the app off the AppStore for now but are hoping to release version 3.1 ASAP."

but I haven't heard anything since from them Sad

If you are eating out, I've been pulling together details that companies provide on their carb content here:
http://t1ramblings.blogspot.co.uk/2013/07/eating-and-drinking-out-who-helps-you.html
which may or may not be useful to you. Any additions would be most welcome too!

David

Oct 3, 2013

marke 686 posts

Topic: General Discussion / eye scan

i would agree its nothing to worry about but I also agree the letters are very poor in the extreme. I got one and the next time I saw my consultant before I even asked he had got the scans on the screen because he knew I would ask. He showed me the 'issue' found had been there for years and was infact a minor issue with my retina that had always been there and was not caused by Diabetes. He said it was an over zealous checker.
I think this letter is completely pointless in that generally unless the condition worsens they will take no action and will wait a year before checking again. Its always a good idea to keep your BG in range if possible to avoid all complications not just retinopathy.

Oct 3, 2013

Vickyp 137 posts

Topic: Carbohydrate Counting / carbs and cal iphone app

I gave an android, which has recently updated and no issues with app on that...don't know about iPhone.

Oct 8, 2013 Jimandbillow 8 posts	Topic: General Discussion / ketones A meter that measures ketones if far better and more accurate than urine sticks. There are 2 to try. Glucomen lx plus or the abbott freestyle optium.

Oct 8, 2013 Louise1988 69 posts	Topic: General Discussion / Diet Drinks I'd love to start a campaign to get more diet drinks in pubs and restaurants! I can't drink coke, as I have an intolerance to it, so all I drink when I'm out, is water, which is incredibly boring. My local pub did order in diet lemonade, but they say it was a mistake and won't be ordering any more in

Oct 8, 2013 john day 54 posts	Topic: DAFNE Online Mobile / How to upload diary from app to website I am running the app on a Nexus 7 and, as new to Android, still getting to grips with how to drive the thing generally ! In particular , as per BMuffs query, I have not been able to work out how to delete or amend an erroneous dafne entry . I have one saved currently and it indicates error upon upload attempt and appears to prevent other, later entries being uploaded also. Hopefully there is a simple solution!

Oct 8, 2013 Louise1988 69 posts	Topic: General Discussion / 3am tests I need to test my basal rates, which involves a 3am test (eek). I never eat after about 8pm, so I would have no qa insulin working at 3am. Do I still need to have a carb free dinner, to test this accurately?

Oct 8, 2013 Matt Hewitt 8 posts	Topic: General Discussion / Diabetic jokes My wife recently found out she suffers from both diabetes and hay fever. I have tried to cheer her up by sending gifts, you know; flowers, chocolates.

Oct 7, 2013 novorapidboi26 1,819 posts	Topic: Questions for HCPs / Think my Novorapid is too slow! That is a valid risk and one that needs to be factored in of course....if you had a habit of not finishing a meal then you could consider smaller portions....as for fire alarm situations....its good practice to have hypo resolve to hand at all times.... Its all about trial and error and weighing up the risks personal to you.... In this situation having 19 and 20s in my opinion wouldn't be good enough....I feel really bad at those levels....but dome may be OK and wouldn't see a significant effect on long term blood sugars.... Don't forget about complications that come with yo yoing BG... ;)

Oct 7, 2013 youone 102 posts	Topic: Questions for HCPs / Think my Novorapid is too slow! When you inject before having a meal you risk putting yourself in a position where for what ever reason you can't complete your meal. This is 1 topic I disagreed with Dafne since Dafne teaches us to inject after eating. My view changed when I injected before I had started to eat my lunch, when the fire alarm went off, for real, complete get your self out the building quick. I had injected 6 units of AQ humolog. I can tell you the next 15 mins looking for and explaining to the fire marshal that I needed carbs is something that reminds me to eat then inject.

Oct 7, 2013 novorapidboi26 1,819 posts	Topic: Questions for HCPs / Think my Novorapid is too slow! When our dose adjusting, then the pre meal test is the most important one, but once that's all done its good to go after the mid meal numbers..... for me these were causing problems, really tired in the afternoons and also pushing up my HbA1c..... In Sheilas case its definitely worth tackling with numbers that high..... If your on target by the next meal even when your getting the highs 1 hour to 2 hours after injecting then its all about timing...........you need to get the peak effectiveness of the insulin, which is quoted to be 1-2 hours after injecting, to match up with the peak of the digestion, everyone digests at different speeds, same with the insulin action........so you need to get the insulin in a lot quicker than 'at the time of eating' or 'just before you eat', you need to experiment with it, get it in 15 minutes, 20 minutes, 30 minutes, sometimes more before eating... the results will e good......

Oct 7, 2013 youone 102 posts	Topic: Questions for HCPs / Think my Novorapid is too slow! sheila said: Hi everyone - thank you so much for your interest and speedy replies! The injecting into muscle sounds intriguing, but isn't it a bit sore? And wouldn't I need longer needles (I have 6mm at the moment)? It definitely sounds like something I'd look into, though, thanks for the suggestion. My BG seems to rise to as high as 19 or 20 an hour after I've eaten, and that's when it's at between 6 and 7 before I eat. This can't be right, surely? I wondered whether I should change my ratios, but it seems to be more to do with when it's rising rather than the amounts? I'm now also seriously considering taking my bolus dose early, though this might not be achievable ea fi time I eat, as sometimes it's more spontaneous than others! Thanks for all your suggestions. Hi The important BG is the 1 after 4 to 5 hours after your QA dose this is the BG you correct from. The only time you would correct after an 1 hour period is when its below the starting BG number the correction then would be with a QA carb. If you find the number to high and it worry's you don't test at this stage unless you feel hot and sweaty which points to you been to low. The injection into muscle worry's me, over time even a single injection would cause sores which take a long time to heal. I've seen many people who injected into the arm with very sore and not good looking brusing But this is new to me,I never over 40 yrs injected directly into muscle. I'm glad i'm now on the omnipod 2 MDI sounds like a medieval torture.

Oct 7, 2013 youone 102 posts	Topic: General Discussion / Background insulin (BI) Glad it helped SueA The numbers I showed worked up to a point and are only a guide. The best thing any type 1 can do is exercise even a walk helps you reduce your insulin amounts Good luck with you hitting both your BG and weight targets Type1 MDI 42 yes Omnipod2 2months

Oct 7, 2013 novorapidboi26 1,819 posts	Topic: General Discussion / eye scan I have had background retinopathy for five years, and it was my last appointment that flagged up maculopathy in one of my eyes....... A trip to the hospital eye doctor confirmed in fact it had not progressed further in........ I think after having diabetes for a long time, maybe 10 years plus, its perfectly normal to have background reitnopathy. As long as blood sugars are stable and not high and low, and your BP is under control, the leaks can heal themselves without causing problems...... the letter does need changed though.........

Oct 7, 2013 SueA 9 posts	Topic: General Discussion / Background insulin (BI) I just read this topic for the first time and have found it really helpful. Since Dafne I have put on weight and at present I am trying to reverse this. Brian's post has explained why I have had to put up my BI and the figures confirm that I am on the right amount. It will also help with adjustments as I loose weight. Thank you SueA

Oct 6, 2013 marke 686 posts	Topic: Carbohydrate Counting / Dominoes There is a link to the Dominos carb data in our carb content list here

Oct 6, 2013 marke 686 posts	Topic: Carbohydrate Counting / carbs and cal iphone app I should probably point out that this site also has a carb content list here, which any additions would also be most welcome

Oct 6, 2013 Louise1988 69 posts	Topic: Carbohydrate Counting / Dominoes It depends what toppings you go for...pepperoni for example is 2cp's per slice. Carbs 'n' cals seems to be pretty comprehensive when it comes to takeaway food.

Oct 6, 2013 Jonbaldwin1 1 post	Topic: Carbohydrate Counting / Dominoes Hi does anyone know how many cps are in a large dominoes pizza?

Oct 6, 2013 Alan 49 284 posts	Topic: General Discussion / Mendor Discreet meter I received in the post a Mendor Discreet blood glucose meter yesterday. It came with a letter from a company called Merck Serono, thanking me for applying for it. I don't remember applying for it, but I suppose I might have ticked a box on a website or something. Anyway, I followed the User Guide and set it up. When I tried to use it, the test-strip appeared at the side if the meter, I inserted a lancet in the side of the mete (this bit isn't mentioned in the Guide) and primed it, as shown in the Guide, but I couldn't get the finger-pricker to work. Has anybody managed to get it to work?

Oct 5, 2013 izzi1234 5 posts	Topic: General Discussion / eye scan thanks i thought it would be something of nothing. my mind has definitely been put more at rest

Oct 5, 2013 youone 102 posts	Topic: General Discussion / Exercise & BG levels HI Warwick: is the guy for exercise knowledge when I started running especially when I switched to the omnipod2 from MDI I wanted to know what was happing to my BG after exercise. test before and soon as you finish all but a small fraction of my tests are around mid 4 when I finish a 10km run, I always carry QA carb with me, and try and run with a buddy I don't react on this test, I test again 15mins later, surprise its 9 or 10 this is the test I correct on. I've asked sport professionals, doctors what causes this, the answer Adrenalin The good point is the exercise is working when your body produces this chemical, a bit like a de-toxt clears the system. I know from experience after a run I feel better my BG are good and over time my insulin intake has drop considerable.

Oct 5, 2013 youone 102 posts	Topic: General Discussion / working nights hi When you say you've been told, is this with your agreement or is this been forced upon you? if you feel you will benefit from working night shifts and willingly to do this that's fine, as a type 1 diabetic under the 2010 disability act and the 2008 act before that your company / employer must make adjustments for your condition, this covers time away from your work station to do BG take insulin and provide a room to do these(not a toilet) also other areas are covered, if your in a union I would seek advice. Of course its your decision and you know your employer best, like all diabetics we think where just as good as none diabetics and can do the same if not better, where certainly better working with detail and don't like to draw attention to ourselves, the thing to remember is if your insulin was removed could you continue , of course the answer is no, that's the reason we are different. and adjustments need to be put in place for you to control your condition. there not major, but will help you work the most difficult shift for a type 1 there are advisory packs available from Diabetic UK to download http://www.diabetes.org.uk/How_we_help/Advocacy/Advocacy-packs/Your-rights-at-work---discrimination-and-how-to-resolve-it/

Oct 5, 2013 youone 102 posts	Topic: General Discussion / swimming/watersports I switched to the omnipod2 back in September of this year, has/ does anyone know of a dressing that covers the pod that's water proof that would last an hours + time in water, I'm ok in the shower that's ok also with running its ok, but I had an intense swim in the pool and the pod worked lose. I've been told about tagederm, but I'm unable to find 1 that's water proof, a reference number would be helpful? type1 MDI 42 yrs omnipod2 1 month

Oct 4, 2013 davidcragg 17 posts	Topic: Carbohydrate Counting / carbs and cal iphone app On the 27th September they tweeted: "Apologies to iPhone users who have updated to v3.0. We've taken the app off the AppStore for now but are hoping to release version 3.1 ASAP." but I haven't heard anything since from them If you are eating out, I've been pulling together details that companies provide on their carb content here: http://t1ramblings.blogspot.co.uk/2013/07/eating-and-drinking-out-who-helps-you.html which may or may not be useful to you. Any additions would be most welcome too! David

Oct 3, 2013 marke 686 posts	Topic: General Discussion / eye scan i would agree its nothing to worry about but I also agree the letters are very poor in the extreme. I got one and the next time I saw my consultant before I even asked he had got the scans on the screen because he knew I would ask. He showed me the 'issue' found had been there for years and was infact a minor issue with my retina that had always been there and was not caused by Diabetes. He said it was an over zealous checker. I think this letter is completely pointless in that generally unless the condition worsens they will take no action and will wait a year before checking again. Its always a good idea to keep your BG in range if possible to avoid all complications not just retinopathy.

Oct 3, 2013 Vickyp 137 posts	Topic: Carbohydrate Counting / carbs and cal iphone app I gave an android, which has recently updated and no issues with app on that...don't know about iPhone.