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May 25, 2014
Joanne80 3 posts

Topic: Questions for HCPs / Still not too confident 😕

I had never thought of overnight hypos ... Think will stick to what I'm having for a few more days then and check in night to make sure then will increase if nothing changes. I have only been on insulin for just under 2 weeks so it's all a bit new to me. I'm on levemir and novo rapid. Could have done with being on DAFNE course for another week just to get that bit more confident but I'm sure that it will come with time and the support from this group. I appreciate your input 😊
 
May 25, 2014
Stew B 125 posts

Topic: Questions for HCPs / Still not too confident 😕

In principle you're right, and on the face of it there's scope for an increase, but it looks like it's only a couple of nights since a previous increase of 2 units from 14 to 16. In my head I can hear my DAFNE Educators advising a couple of during-the-night tests, just to make sure that things are OK (e.g. that your morning highs aren't your body's auto-reaction to undetected overnight hypos). Also, my understanding is that increases in BI don't always kick-in immediately, and you might want to be certain that the previous increase has impacted before you make another one. Having said all that, patience isn't one of my virtues and I suspect that in your position I'd be keen to get it sorted!
 
May 25, 2014
Joanne80 3 posts

Topic: Questions for HCPs / Still not too confident 😕

Hi I'm newly graduated from DAFNE and just need a bit of advice to see if I'm going right. Will post my diary too. My blood glucose levels are rising overnight for the past 2 days upon waking does this mean I need to increase my bi on a night ?? Just needing a second opinion until I'm a bit more confident. Thanks
 
May 25, 2014
alanG 11 posts

Topic: Questions for HCPs / BG REACTIONS

Hi Warwick.
Thanks for your response.
The rules in the UK are similar to Australia, less than 4 you take fast-acting glucose and then recheck after 45mins. Between 4 and 5 you eat sufficient glucose to push you above 5, and off you go.
The orange/ soda mix I have is 50;50 , and therefore I estimate 2 pints as 5CP. I had not considered this before the DAFNE course.
I have a tendency on a limited activity day to reduce my BG during the morning, and I am doing some evaluations to try and isolate which insulin needs to reduce.
I have moved from QA at 1:1 to 0.75:1, and the BI level from 12 units to 10 units. When I play golf, I drop the BI to allow for an activity level. On the particular day I took QA at 3 units for a CP intake of 3.5, and a BI of 7units. All at 7am. I finished golf and checked my BG at 13.00 at 4.1.
After my 2 pints and returning home I checked my BG at 14.30 as 10.6.
Without any intake of carbs. I rechecked my BG at 17.30 as 5.3, so I am really confused as to where the glucose disappeared to.
The main activity between the two readings was pottering in the garden.
I will start to record my BG Diary on-line to build up a better picture.
Regards
Alan
 
May 25, 2014
Stew B 125 posts

Topic: General Discussion / Important DAFNE question

Hi Marke

1) I don't think any HCPs from my centre are active on DAFNE on-line. Generally I've found that HCPs are prevented by their trusts from communicating with patients by e mail because of fears (unfounded in my view) about patient confidentiality, and perhaps this extends to any form of electronic communication.
2) I would like to see more HCP involvement - it can only enrich the forums.
3) I use the carbs and cals app for iPhone a lot. I find the Diabetes UK email newsletter quite interesting, but that's about it for me.

Stew
 
May 25, 2014
Warwick 423 posts

Topic: General Discussion / Important DAFNE question

Hi Marke,

1) No - DAFNE isn't as well known in Australia as in the UK.

2) I like it a lot as it is. Occasionally, it would be nice to have more HCP input, but the forums seem to cope well without too much.

3) DAFNE is pretty much it for me. I read books about T1D too, but for the most part, just stick to DAFNE.

Thanks,
Warwick.
 
May 25, 2014
Warwick 423 posts

Topic: Questions for HCPs / BG REACTIONS

Hi Alan,

It would be helpful to see your BG diary. Is there any chance you can record it for a few days and then share it in this forum post?

It's really hard to tell from what you have said.Do you know how many carbs would be in the orange and soda mix? Is it mainly soda, or a lot of orange juice. Being only 4.1 would seem to indicate that you might have had a hypo and were recovering from it.

Are you allowed to drive in the UK at 4.1? Here in Australia, the law is that we have to "Be five to drive" and we can't drive for an hour after a known hypo (<4).

Do you know what your BGs were before the drink?

If your basal insulin is too high, then it can easily drop your BGs by 5 units over three hours. Exercise has a similar effect, and often hypos occur post-exercise because the muscles are converting the blood glucose into glycogen to store in the muscles after the exercise has depleted muscle stores of glycogen.

Cheers,
Warwick.
 
May 24, 2014
alanG 11 posts

Topic: Questions for HCPs / BG REACTIONS

I play golf regularly, and afterwards I have two pints of fresh orange and soda mix. Prior to going on a DAFNE course I was quite cavalier, in then getting in the car and driving home.
Now I check my blood glucose level when I finished golf. This was about 4.1, so by pure coincidence the drinks were moving me into a safe level to drive.
When I returned home I checked my BG level prior a snack and it was 10.6. I have never registered that high a level before, so I scrubbed my hands again, and retested with the same result.
This reading was 7 hours after breakfast and both QA and BI injections.
I decided not to eat, and wait until my evening meal to retest and apply any correction.
3 hours later, prior to eating, I checked my BG and it was 5.3.
I would not have thought that the Background insulin could dissipate over 5 units of BG in 3 hours.
I could have assumed that excess glucose is absorbed by the liver, but my experience of the DAFNE course is that most of my assumptions tend to be misguided.
I am looking for some explanation as to where all this glucose has disappeared to, on the basis that if I understand the mechanics, I can manage the situation properly
 
May 24, 2014
alanG 11 posts

Topic: General Discussion / unexplained blood glucose levels

I play golf regularly, and afterwards I have two pints of fresh orange and soda mix. Prior to going on a DAFNE course I was quite cavalier, in then getting in the car and driving home.
Now I check my blood glucose level when I finished golf. This was about 4.1, so by pure coincidence the drinks were moving me into a safe level to drive.
When I returned home I checked my BG level prior a snack and it was 10.6. I have never registered that high a level before, so I scrubbed my hands again, and retested with the same result.
This reading was 7 hours after breakfast and both QA and BI injections.
I decided not to eat, and wait until my evening meal to retest and apply any correction.
3 hours later, prior to eating, I checked my BG and it was 5.3.
I would not have thought that the Background insulin could dissipate over 5 units of BG in 3 hours.
I could have assumed that excess glucose is absorbed by the liver, but my experience of the DAFNE course is that most of my assumptions tend to be misguided.
I am looking for some explanation as to where all this glucose has disappeared to, on the basis that if I understand the mechanics, I can manage the situation properly
 
May 24, 2014
hypo 18 posts

Topic: General Discussion / Weight

Hi NatalieThree years ago I went to 13stone and decided I needed help to lose a couple of stone and joined a Slimming world group there diet worked for me and I lost 3 stone without affecting my BG control I don't go to the group any more but have managed to maintain my weight better.
 
May 24, 2014
Joanne80 3 posts

Topic: General Discussion / Weight

Hi I'm new to all this but so desperate to lose weight aswell. I've just finished the DAFNE course and found it really helpful. Have really cut down on my eating but finding it hard to shift weight as at the min on high doses of insulin until we get it sorted. Any advice or tips would be helpful please Smile
 
May 24, 2014
natalie fitch 5 posts

Topic: General Discussion / Weight

I desperately need to loose weight. I need help with this.
My weight is 80.5kg, 12st 8.4lbs with a BMI of 32.66
I have high blood pressure, and feel exhausted all the time. It's got to where I cannot do trousers up. I feel very unwell with this.
All I've been told to do is to keep a food diary. I've done this before and been told they can't cut anything out as eat very healthily.
I've been taking 3 different slimming tablets without any improvement, so have just brought my fourth slimming tablet today. I'm going to start taking laxatives as well, I know they will help with the other, as am on 2 Ferrous Fumarate iron tablets a day.
Anyone who can help, please do


 
May 24, 2014
natalie fitch 5 posts

Topic: Questions for HCPs / Weight

I desperately need to loose weight. I need help with this.
My weight is 80.5kg, 12st 8.4lbs with a BMI of 32.66
I have high blood pressure, and feel exhausted all the time. It's got to where I cannot do trousers up. I feel very unwell with this.
All I've been told to do is to keep a food diary. I've done this before and been told they can't cut anything out as eat very healthily.
I've been taking 3 different slimming tablets without any improvement, so have just brought my fourth slimming tablet today. I'm going to start taking laxatives as well, I know they will help with the other, as am on 2 Ferrous Fumarate iron tablets a day.
Anyone who can help, please do


 
May 23, 2014
marke 681 posts

Topic: General Discussion / Important DAFNE question

All, Simon and I are going to be doing a workshop on DAFNE Online at this years DAFNE Collaborative ( a conference for all DAFNE Educators). As part of it
we want to find out about HCP contributions to the site and the barriers for doing so. Related to this we agreed we would run a little survey to get your opinions so
that we can present these to the educators that come to the workshop. So as many answers as possible please Smile


Does your HCP use DAFNE Online ?

Do you think HCP's should be involved in/contribute to DAFNE Online or should it graduate led ?

What other apps / social media do you use / find useful with relation to your Diabetes ?
 
May 23, 2014
Rafa 99 posts

Topic: Carbohydrate Counting / Carbs n cals app

I find carbs n cals great myself.
 
May 23, 2014
Garry 328 posts

Topic: General Discussion / Pregnancy - what was HbA1c when you got the go-ahead

Here is a copy/paste from an old discussion:

A guide to the new values expressed as mmol/mol is:

Current DCCT aligned HbA1c(%) New IFCC HbA1c (mmol/mol)
4.0 - 20
5.0 - 31
6.0 - 42
6.5 - 48
7.0 - 53
7.5 - 58
8.0 - 64
9.0 - 75
10.0 - 86
What are the targets in new units?
The equivalent of the current DCCT HbA1c targets of 6.5% and 7.5% are 48mmol/mol and 58mmol/mol in the new units, with the non-diabetic reference range of 4.0% to 6.0% being 20 mmol/mol to 42 mmol/mol.

End of Quote from diabetes.org.uk

I would have thought that your HCPs would be talking to you and using the worldwide accepted IFCC HbA1c (mmol/mol) units now.

Regards
Garry

 
May 23, 2014
EPS 3 posts

Topic: General Discussion / Workplace Injections

Ole said:
I reckon you're being a tad over cautious with this one.
If your personal hygiene is good, each disposable needle is new &amp; not re-used,
then the immediate surroundings are irrelevant.
I've discreetly injected in outdoor public places, restaurants, work places, lakeside shores &amp; scrub while fishing,
&amp; bushwalking without issue.
Each injection takes less than 10 seconds &amp; it's never been an issue in almost 40 years as a diabetic.


I agree that with self-contained pens less attention to surroundings is necessary. However, I still use disposable syringes and larger, multi-dose phials on occasion and - because of fifty years of injections - my abdomen sites are not always ideal so a bit more attention is needed. Placing a phial and syringe on a filthy shelf or toilet cistern lid in a pub lavatory is not an option as far as I am concerned and the same goes for blood testing. The risk of contamination is not worth taking when that risk can be eliminated easily - and I'm no Howard Hughes! Soap and water still have their uses.

 
May 23, 2014
Vickyp 137 posts

Topic: General Discussion / Pregnancy - what was HbA1c when you got the go-ahead

At my preconception clinic I have to keep HbA1c around 43...not sure what that is in %. I did get it to 40 once but was having about 3 hypos a day...a risk of a low HbA1c. The target range for BGs I was given is between 4-6 pre-parandial and below 7.5 post-parandial. It is hard work trying to keep to the tight targets...my insulin pump has helped loads with this!
 
May 23, 2014
Ole 1 post

Topic: General Discussion / Workplace Injections

I reckon you're being a tad over cautious with this one.
If your personal hygiene is good, each disposable needle is new & not re-used,
then the immediate surroundings are irrelevant.
I've discreetly injected in outdoor public places, restaurants, work places, lakeside shores & scrub while fishing,
& bushwalking without issue.
Each injection takes less than 10 seconds & it's never been an issue in almost 40 years as a diabetic.


 
May 22, 2014
snow123 13 posts

Topic: Carbohydrate Counting / Carbs n cals app

I need to get a new phone and would like to get some apps for when I'm out and about as I'm sick of lugging books around any suggestions for good apps/phones that work well?. Thanks
 
May 22, 2014
kdg100 1 post

Topic: General Discussion / Pregnancy - what was HbA1c when you got the go-ahead

Hi,

My husband and I are planning to start trying for a family later this year. I have an appointment at the end of June with the consultant to discuss this. My last HbA1c was 6.8%, but have read that the ideal for pregnancy is 6.1% or below. I'm worried then the hospital will not give me the 'go-ahead' with my levels as they are and am struggling to drive things down further.

Just wondering what other people's experiences were when they kicked off the pre-conception stage of having a baby with diabetes? Thanks!
 
May 20, 2014
joanne78 8 posts

Topic: General Discussion / Levemir clogging needles

Ive never noticed increased pressure, ive had diabetes 18years so im all too aware that the needles get blunt however im sure you can safetly use the needles twice. Ive never had infections or the like so i think this is just paranoia, yes its not wise to use them for several times but like alan i think you should be able to use one needle for the day. This is the fault of the company that makes levimir, most insulin pens are very durable.
 
May 20, 2014
Sharon doodle 15 posts

Topic: General Discussion / Going walking

If you know you are going to be walking, You could reduce your QA a bit before. I have some strange reaction to exercise, so if I know I'm going on a long walk I halve my QA before.
 
May 20, 2014
Bananaman 34 posts

Topic: General Discussion / Levemir clogging needles

Alan Constable said:
Until recently, I was on one daily dose of Levemir. This meant I used one needle for my QA (Humalog) and one needle for my Levemir each day (hopefully saving the NHS a bit of money - plus I don't like wasting things) and this worked well.

My HCP suggested that my control could be better and I should change to 2 daily doses of Levemir. I intended to continue using one needle for my QA and one needle for my BI. I found that that when it came to my second dose of Levemir, the needle that I had used for my morning dose was clogged, so I had to use a new one.

Has anybody else noticed this?



Always use a new needle, the needles go blunt after use which could create lumps and your vial of insulin is supposed to be kept sealed but you have a needle going through the seal it's not sealed also your needles will get clogged which could damage your pen (ever noticed the increased pressure when you try to inject) Embarassed
Not to mention your probably risking an infection

 
May 20, 2014
Bananaman 34 posts

Topic: General Discussion / Going walking

Can anyone tell me what to do if I want to go for a walk, up till now ive been eating carbohydrate before I walk and its hit or miss with blood sugars Mad