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May 28, 2014
VickiA 16 posts

Topic: Questions for HCPs / Help with BG levels

Hi, I've just recently finished the DAFNE course, before the course I was having constant severe hypos with very little awareness. Since finishing the course the hypos have become a lot less frequent but every morning my BG levels are through the roof! When going to bed my sugars are at a normal level, I check them at 3 in the morning and they're still normal but by 8:30 they're sitting between 16-20. I take 7 units of BI at night between 10-10:30 then the same again in the morning about 8:30. I've tried 8 units and have hypos through the night, I've tried correcting in the morning and have hypos in the afternoon. I've checked my BG levels at 6:30 in the morning on a couple of occasions and they've still been at a normal level so it seems to be between 6:30-8:30 that they rise. Any advice anyone could give me would be appreciated as my partner and myself are desperate to start trying for a baby. Thank you. Vicki Smile
 
May 28, 2014
VickiA 16 posts

Topic: DAFNE Graduate Group (DGG) / Help with BG levels

Hi, I've just recently finished the DAFNE course, before the course I was having constant severe hypos with very little awareness. Since finishing the course the hypos have become a lot less frequent but every morning my BG levels are through the roof! When going to bed my sugars are at a normal level, I check them at 3 in the morning and they're still normal but by 8:30 they're sitting between 16-20. I take 7 units of BI at night between 10-10:30 then the same again in the morning about 8:30. I've tried 8 units and have hypos through the night, I've tried correcting in the morning and have hypos in the afternoon. I've checked my BG levels at 6:30 in the morning on a couple of occasions and they've still been at a normal level so it seems to be between 6:30-8:30 that they rise. Any advice anyone could give me would be appreciated as my partner and myself are desperate to start trying for a baby. Thank you. Vicki Smile
 
May 28, 2014
Garry 328 posts

Topic: Questions for HCPs / BG REACTIONS

I must eat on the way around the course alanG. I can need to have 5 CPs during a round. Slows me down a bit I have to say.
I'm a lot less insulin sensitive than yourself however.
Regards
Garry
 
May 27, 2014
alanG 11 posts

Topic: Questions for HCPs / BG REACTIONS

Hi Warwick.
Thanks for your response.
I think there is a pattern emerging now I am testing more. Golf seems to drop my BG to mid 4's. Surprising as a round of golf is like a 5 mile walk in 4 hours - hardly strenuous. I think I shall reduce my orange/ soda to 1 pint, and then settle for diet coke (or beer). Even though my reading is high when I get home, it seems to dissipate of its own accord, and I certainly feel ok.
I was thinking of reducing my am QA insulin on a golf day, either drop the ratio to 0.5:1, or reduce the calculated dose by 2 units. Any thoughts?
My latest HbA1c results from a couple of weeks ago was 42 - pretty good eh?
All the best
Alan
 
May 27, 2014
Garry 328 posts

Topic: Questions for HCPs / BG REACTIONS

If I'm starting to doze off in the day my Wife gets me to go and check my BG.
9 times out of 10 I'll be low and I'll get "I told you so".
So I'm like you Warwick.
Regards
Garry
 
May 27, 2014
Warwick 425 posts

Topic: Questions for HCPs / BG REACTIONS

Mate. I think your BG diary would make most other DAFNE users weep. All that green, and hardly any red. Are you sure you didn't make it up? :-)

Seriously, I would not worry about it. If it becomes a regular occurrence then that is the time to start looking at it. Can I ask what your HbA1c is? Your blood sugars are so close to perfect that I am keen to know.

One-off random results are really common.There are so many things that can affect our BGs that it is completely expected that there will be some outliers. And pottering in the garden can drop BGs. Sometimes stress makes them higher, but if you are enjoying your pottering and feeling peacefuk while you do it, then it is perfectly possible for them to drop. I find that having a day time nap is dangerous as I often wake with a hypo.

Take care,
Warwick.
 
May 27, 2014
Warwick 425 posts

Topic: Carbohydrate Counting / Need advise

Hey Avanella,

Your BGs look pretty good, especially since last Monday.

To be honest, I can't tell whether your BI is correct or not. To be able to tell, I'd need you to do the following.

1) Eat nothing after dinner until breakfast the next morning.
2) Take a bed-time reading at least three hours after dinner.

The problem at the moment is that the bed-time reading is often not recorded, and when it is, you are having carbs and QA with it which makes it impossible to tell whether your BI is accurate or not.

Is it possible to do what I have asked? I'd want to see three nights' readings, but they don't have to be on consecutive days. So for example, over the next week, if you followed the above on Thursday, Saturday and Tuesday nights, then I should be able to tell.

It would also be helpful if you didn't change your BI unless you really need to over the next week.

Thanks,
Warwick.
 
May 27, 2014
avanella 9 posts

Topic: Carbohydrate Counting / Need advise

Hi All,

Now my BG is better compare to last time. Please advise how to make the BG idle.
 
May 27, 2014
Garry 328 posts

Topic: Questions for HCPs / Still not too confident 😕

Welcome Joanne80. Smile
With ongoing higher Blood Glucose results you may have an infection of some sort. Were your BGs good last week?
If not, you may well need increase your BI to help control the situation. Please remember though that BI changes can take days to have any impact. I know you are concerned at the moment and want quick improvement, but you must accept that your body takes time to adjust to a changed BI. I'm on Lantus BI and it always takes me 3 days to see any real change in BGs. We are all physiologically different, but this rule seems to hold true for the vast majority of us. May be a little different when you use another BI however. So my advice is take it slowly, look at your results and analyse them. Try to think about how much exercise you get each day and note that in your diary too. In a few days you may see the BI kick in but try to be cautious. None of the BG results listed in your diary are too dire. Don't worry. You will get back on track in a few days.
Regards
Garry
 
May 26, 2014
Alan 49 284 posts

Topic: General Discussion / Important DAFNE question

1) I'm not aware that my HCP uses DAFNE online.

2) I rarely see any responses from HCPs. More HCP involvement would certainly be welcome. I have just scanned the first ten topics in the 'Questions for HCPs' forum and I haven't seen any HCP responses. It's a good job we have some very smart Graduate contributors, like Warwick, Novorapidboi and a few others, who offer sound advice to lots of questions.

3) I don't have a smart phone, so APPs don't APPeal to me.
 
May 26, 2014
alanG 11 posts

Topic: Questions for HCPs / BG REACTIONS

I have now entered the first diary week of DAFNE results, and as it contains the Saturday incident after golf. I am posting that for now to see if there is any sense in the results.
I am now progressing to week 2 (last week)
 
May 26, 2014
SimonC 78 posts

Topic: General Discussion / Important DAFNE question

1 - As far as I am aware, none of the HCP's from where I did my Dafne course are online or use this site - As another poster here said, I suspect that this is due to fears of patient confidentiality - unfortunately for the NHS (UK based) the world has moved on from the way things were done in the 1950's and it is about time they caught up. It may also be due to fears that if a HCP gives some advice, then they may be sued for giving out wrong advice, or it conflicts with other advice given by HCP's from other parts of the UK (with more or less money in the pot), or indeed other HCP's from other parts of the world - as other countries do things slightly differently. However, I have now moved to a different part of the UK, and am no longer in touch with those HCP's - However, my current GP surgery - Berks - is so backward and refusing to join the modern world, I would be surprised they even knew of this site (actually I know they do, as they promote Dafne, but refuse to consider pumps, let alone modern pumps with CGM, and they hate it when I say all my results are online, I can share them with you)

2 - Yes I would like much more HCP participation - most of us are capable and adult enough to read on here - and elsewhere on the web and work out whether a particular scenario applies to us or not - and if the patient is seeking and asking for advice - on a semi public forum, then by doing so surely the patient themselves have said - look here is my problem, I don't mind that others can read - I want them to read, as I value the advice that may come back.

3 - I use the carbsandcals app, as well as this one, and belong to a FB group - and whilst I don't contribute much on the FB of here, I do read the forums on here - and take what I need.

Sorry to waffle on, many thanks, keep up the good work.
 
May 26, 2014
Warwick 425 posts

Topic: Questions for HCPs / BG REACTIONS

Cool. Will look forward to seeing the diary when it gets posted.
 
May 25, 2014
Vickyp 137 posts

Topic: General Discussion / Important DAFNE question

Hi Marke,

1) dont know about HCPs using it from my centre
2) would like to see more HCP involvement
I use carbsandcals app, and myfitnesspal app. I am on 2 facebook groups for users of Omnipod (both in UK and US).
 
May 25, 2014
Joanne80 3 posts

Topic: Questions for HCPs / Still not too confident 😕

I had never thought of overnight hypos ... Think will stick to what I'm having for a few more days then and check in night to make sure then will increase if nothing changes. I have only been on insulin for just under 2 weeks so it's all a bit new to me. I'm on levemir and novo rapid. Could have done with being on DAFNE course for another week just to get that bit more confident but I'm sure that it will come with time and the support from this group. I appreciate your input 😊
 
May 25, 2014
Stew B 125 posts

Topic: Questions for HCPs / Still not too confident 😕

In principle you're right, and on the face of it there's scope for an increase, but it looks like it's only a couple of nights since a previous increase of 2 units from 14 to 16. In my head I can hear my DAFNE Educators advising a couple of during-the-night tests, just to make sure that things are OK (e.g. that your morning highs aren't your body's auto-reaction to undetected overnight hypos). Also, my understanding is that increases in BI don't always kick-in immediately, and you might want to be certain that the previous increase has impacted before you make another one. Having said all that, patience isn't one of my virtues and I suspect that in your position I'd be keen to get it sorted!
 
May 25, 2014
Joanne80 3 posts

Topic: Questions for HCPs / Still not too confident 😕

Hi I'm newly graduated from DAFNE and just need a bit of advice to see if I'm going right. Will post my diary too. My blood glucose levels are rising overnight for the past 2 days upon waking does this mean I need to increase my bi on a night ?? Just needing a second opinion until I'm a bit more confident. Thanks
 
May 25, 2014
alanG 11 posts

Topic: Questions for HCPs / BG REACTIONS

Hi Warwick.
Thanks for your response.
The rules in the UK are similar to Australia, less than 4 you take fast-acting glucose and then recheck after 45mins. Between 4 and 5 you eat sufficient glucose to push you above 5, and off you go.
The orange/ soda mix I have is 50;50 , and therefore I estimate 2 pints as 5CP. I had not considered this before the DAFNE course.
I have a tendency on a limited activity day to reduce my BG during the morning, and I am doing some evaluations to try and isolate which insulin needs to reduce.
I have moved from QA at 1:1 to 0.75:1, and the BI level from 12 units to 10 units. When I play golf, I drop the BI to allow for an activity level. On the particular day I took QA at 3 units for a CP intake of 3.5, and a BI of 7units. All at 7am. I finished golf and checked my BG at 13.00 at 4.1.
After my 2 pints and returning home I checked my BG at 14.30 as 10.6.
Without any intake of carbs. I rechecked my BG at 17.30 as 5.3, so I am really confused as to where the glucose disappeared to.
The main activity between the two readings was pottering in the garden.
I will start to record my BG Diary on-line to build up a better picture.
Regards
Alan
 
May 25, 2014
Stew B 125 posts

Topic: General Discussion / Important DAFNE question

Hi Marke

1) I don't think any HCPs from my centre are active on DAFNE on-line. Generally I've found that HCPs are prevented by their trusts from communicating with patients by e mail because of fears (unfounded in my view) about patient confidentiality, and perhaps this extends to any form of electronic communication.
2) I would like to see more HCP involvement - it can only enrich the forums.
3) I use the carbs and cals app for iPhone a lot. I find the Diabetes UK email newsletter quite interesting, but that's about it for me.

Stew
 
May 25, 2014
Warwick 425 posts

Topic: General Discussion / Important DAFNE question

Hi Marke,

1) No - DAFNE isn't as well known in Australia as in the UK.

2) I like it a lot as it is. Occasionally, it would be nice to have more HCP input, but the forums seem to cope well without too much.

3) DAFNE is pretty much it for me. I read books about T1D too, but for the most part, just stick to DAFNE.

Thanks,
Warwick.
 
May 25, 2014
Warwick 425 posts

Topic: Questions for HCPs / BG REACTIONS

Hi Alan,

It would be helpful to see your BG diary. Is there any chance you can record it for a few days and then share it in this forum post?

It's really hard to tell from what you have said.Do you know how many carbs would be in the orange and soda mix? Is it mainly soda, or a lot of orange juice. Being only 4.1 would seem to indicate that you might have had a hypo and were recovering from it.

Are you allowed to drive in the UK at 4.1? Here in Australia, the law is that we have to "Be five to drive" and we can't drive for an hour after a known hypo (<4).

Do you know what your BGs were before the drink?

If your basal insulin is too high, then it can easily drop your BGs by 5 units over three hours. Exercise has a similar effect, and often hypos occur post-exercise because the muscles are converting the blood glucose into glycogen to store in the muscles after the exercise has depleted muscle stores of glycogen.

Cheers,
Warwick.
 
May 24, 2014
alanG 11 posts

Topic: Questions for HCPs / BG REACTIONS

I play golf regularly, and afterwards I have two pints of fresh orange and soda mix. Prior to going on a DAFNE course I was quite cavalier, in then getting in the car and driving home.
Now I check my blood glucose level when I finished golf. This was about 4.1, so by pure coincidence the drinks were moving me into a safe level to drive.
When I returned home I checked my BG level prior a snack and it was 10.6. I have never registered that high a level before, so I scrubbed my hands again, and retested with the same result.
This reading was 7 hours after breakfast and both QA and BI injections.
I decided not to eat, and wait until my evening meal to retest and apply any correction.
3 hours later, prior to eating, I checked my BG and it was 5.3.
I would not have thought that the Background insulin could dissipate over 5 units of BG in 3 hours.
I could have assumed that excess glucose is absorbed by the liver, but my experience of the DAFNE course is that most of my assumptions tend to be misguided.
I am looking for some explanation as to where all this glucose has disappeared to, on the basis that if I understand the mechanics, I can manage the situation properly
 
May 24, 2014
alanG 11 posts

Topic: General Discussion / unexplained blood glucose levels

I play golf regularly, and afterwards I have two pints of fresh orange and soda mix. Prior to going on a DAFNE course I was quite cavalier, in then getting in the car and driving home.
Now I check my blood glucose level when I finished golf. This was about 4.1, so by pure coincidence the drinks were moving me into a safe level to drive.
When I returned home I checked my BG level prior a snack and it was 10.6. I have never registered that high a level before, so I scrubbed my hands again, and retested with the same result.
This reading was 7 hours after breakfast and both QA and BI injections.
I decided not to eat, and wait until my evening meal to retest and apply any correction.
3 hours later, prior to eating, I checked my BG and it was 5.3.
I would not have thought that the Background insulin could dissipate over 5 units of BG in 3 hours.
I could have assumed that excess glucose is absorbed by the liver, but my experience of the DAFNE course is that most of my assumptions tend to be misguided.
I am looking for some explanation as to where all this glucose has disappeared to, on the basis that if I understand the mechanics, I can manage the situation properly
 
May 24, 2014
hypo 18 posts

Topic: General Discussion / Weight

Hi NatalieThree years ago I went to 13stone and decided I needed help to lose a couple of stone and joined a Slimming world group there diet worked for me and I lost 3 stone without affecting my BG control I don't go to the group any more but have managed to maintain my weight better.