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May 6, 2014
Simon 578 posts

Topic: DAFNE Online Mobile / iPhone app redesign

Hi both,

Thanks for the feedback - glad to hear it's working well for both sighted and non-sighted users. I'll look to move Snack nearer to the top (but not at the top) of the list and have a think about the decimal point idea.

The connection failed problem sounds like a real one so I'll take a look at that too.

Simon
 
May 6, 2014
Libby 5 posts

Topic: Questions for HCPs / Fevertree Tonic Water

Thanks Garry. I think this boils down to a more basic question of when is a sugary drink too sugary. I wouldn't drink a normal coke as I couldn't correct for it in time, bit what is the deal with this not really slimline tonic water?

Libby
 
May 6, 2014
Garry 328 posts

Topic: Questions for HCPs / Fevertree Tonic Water

I wouldn't worry about it. Might be good policy to stop at 10 drinks though!
Less than 1 CP between meals...just think of it as a snack. If any correction is needed - make it when you have checked your pre-meal BG and take suitable matching insulin dose. Take care not to overcompensate however. If you have a lot to drink, remember your liver is already occupied processing the drinks and is less able to release it's safety store of glucose into your blood stream to protect against hypoglycemia.
Regards
Garry
 
May 6, 2014
Sharon doodle 15 posts

Topic: General Discussion / Help...AWOL bm's

Here they are....
 
May 6, 2014
Warwick 425 posts

Topic: General Discussion / Help...AWOL bm's

Hello Sharon,

Are you able to share some of your diary with this thread? It will make it easier to assist.

Thank,s
Warwick.
 
May 5, 2014
Sharon doodle 15 posts

Topic: General Discussion / Help...AWOL bm's

My bm's were at a pretty stable high last week whilst on DAFNE. For the last 3 days of eating and exercising normally my bm' are on a sea saw. Hypo one minute, high sugars the next. It's making me feel unwell.
Is this just my bm's settling? I'm doing everything as directed and am using the DAFNE app to work out my insulin doses.

Any ideas? Cheers
 
May 4, 2014
Libby 5 posts

Topic: Questions for HCPs / Fevertree Tonic Water

I don't drink that much, but when I go out I like to have the occasional gin and slimline tonic. Recently, I have noted that a lot of bars (in London at least) are serving Fevertree "naturally light" tonic water as slimline tonic. However, whereas every other slimline tonic is completely carb free, the Fevertree version has 3.9g carbs per 100ml. Even when I asked for a sugar free tonic I was presented with Fevertree.

This annoys me as I feel that I am not getting what I ask for. Most of the other normal tonic waters I have looked at (i.e. not slimline) contain 5.1g per 100ml and as such I am not sure there is a major difference between the Fevertree slimline and the normal tonics (the normal version of Fevertree has 9g so it is really sweet).

But what I really want to know is if that amount of carbs per 100ml (i.e. 3.9) is too much? Should I not drink this stuff? Or could I drink it and inject for it? I am not sure of the size of the mixer bottle they serve it with but it is probably a 200ml one as that is all they advertise on their site, so it would be 8g per serving give or take, plus the gin.

Many thanks

Libby
 
May 4, 2014
Neville COL 23 posts

Topic: General Discussion / Workplace Injections

Luckily as a recent graduate, my stomach is in good condition! I have in the past used arms/legs, but the leg I save for when I m home! Luckily my work clothes consist, generally, of a polo or short sleeved shirt which does give a little flexibility.... ! Cool
 
May 4, 2014
Politikaal 6 posts

Topic: DAFNE Online Mobile / iPhone app redesign

Hi Faulty headlight,
Yeah I like it fine the way it is too. I was merely making suggestions about what would enhance it for me personally and make it even better. I'm sure the developers won't act on every suggestion that I, or anyone else, makes. They asked for feedback though, so I'm giving feedback, to be read along with everyone elses. I don't think that Snack should be at the top of the list, just a bit further up so that it is onscreen would be nice though.

No it's not hard to press a button, but minor improvements like that can make for a better experience by the user when all added up. LogFrog DB did it really well for their UI and I was surprised at the difference it made.

All the best
 
May 3, 2014
JayBee 587 posts

Topic: General Discussion / Workplace Injections

I've mainly used my stomach as well. When I started doing another background dose, I did try doing a buttock injection as well at my desk by putting my coat over my lap and making sure I was not in full view of anyone coming near my desk (thankfully I was in a corner bit)... but I eventually started injecting it into my stomach along side my meal dose.

I'm lucky that the toilets are huge rooms in my workplace so I'm not so worried to pop in and stab my leg quick but that is more time consuming than staying at my desk. I don't even touch the toilet or even the floor; aim to use only my pockets or bag to put items like my one-use needle cap down only.

I'll never inject through my clothing. It may be convenient in practice but you run the risk of injecting threads into your skin that won't be easily removable from what my HCPs told me. It's even worse/more likely if you're someone who fails to change their needle every time as well. Changing every time will help minimise damage caused by injecting generally too as you won't be injecting a blunt, curled needle, as shown here:

 
May 3, 2014
JayBee 587 posts

Topic: DAFNE Graduate Group (DGG) / Formation of DAFNE Graduate Group (DGG)

I got that email too.

First page of the PDF:

Dear DAFNE User Group Member,

Formation of DAFNE Graduate Group (DGG)

We are writing to you, via Central DAFNE, to inform you that the members of the DAFNE User Group (DUG) and eligible DAFNE Online users are joining together to form the DAFNE Graduate Group. Membership is open to all existing DUG members and all DAFNE Online users who: Are DAFNE Graduates who attended a DAFNE course in the UK or Republic of Ireland Agree to accept occasional communication by e-mail from the DAFNE User Action Group (DUAG).

Benefits of the combined membership for all members will be:

Access to DAFNE Online Apps for iPhone & Android devices

Access to DAFNE Online Forums to discuss questions, issues or topics of interest to other users

Ability to ask questions direct to Health Care Professionals both in your own DAFNE centre and through a specific forum

Information updates from DUAG through a regular newsletter and specific updates e.g. on announcements made at the annual DAFNE Collaborative

Opportunity to get more involved in running the DAFNE programme in the UK & Republic of Ireland

On-line access to the DAFNE workbook and information on changes made during updates

Briefings on the latest DAFNE research and its impact on the DAFNE programme

Interaction with a social network of nearly 9,000 DAFNE Graduates and a total of nearly 14,000 users with an interest in DAFNE plus the ability to directly interact with other users from your own DAFNE centre

The e-mail communication from DUAG will include a newsletter produced every 3-6 months and occasional other requests (e.g. for feedback on initiatives being run by DUAG or for patient input on focus points for DUAG or questions being considered by the DAFNE Executive). We will not swamp your e-mail inbox and DUAG commit not to share your e-mail address with any other party, including Central DAFNE.



Good grief, I hope this means they'll be updating the Android app along side the Apple app finally. :/

The "talking to HCP directly through your centre's forum" will be new considering none of my HCP DAFNE team have ever posted on here (except for PMs with one of them that is now no longer part of my HCP team).

I wonder if this is the start of an effort to get patients and HCPs talking more online? Hope so.
 
May 3, 2014
Faulty Headl... 18 posts

Topic: DAFNE Online Mobile / iPhone app redesign

Not sure how old this post is but could you please please not mess around with the set up of the app too much. I am a blind user and find it great the way it is. make sure all the tags, headings and buttons are labeled properly and I'm happy. the floating decimal point idea? not sure how it works but how difficult is it to press that button, and putting snacks to top of list? they aren't just going to change that to suit one person. as there will be people who hypo a lot who use that reading type more or people who exercise a lot and so on. Big thumbs up for how the app is working at the moment. just learnt yesterday that to update results from diary tab you just go to top page and swipe fingers to make it renew page and sync results from computer.
 
May 1, 2014
davidcragg 17 posts

Topic: DAFNE Graduate Group (DGG) / Formation of DAFNE Graduate Group (DGG)

I received an email today telling me that "As of 1 May 2014 DUG will cease to exist. Attached is a letter sent on behalf of DUAG which explains their decision and recommendations moving forward."

I didn't see any explanation or recommendations in the attachment
It listed a bunch of benefits of the combined membership but I couldn't see anything that wasn't already available.

Could someone explain to me what is actually happening here?
All I see is I'm being "bribed" with the possibility of a bottle of champagne if I allow the new group to email me occassionally.

thanks,
David
 
Apr 30, 2014
Politikaal 6 posts

Topic: DAFNE Online Mobile / iPhone app redesign

oh.....one more thing:

I am a snacker. I think most people would have snacks on a fairly regular basis. If you have to change the "type" to enter a record when you have a snack, you currently have to scroll through all the regular types, hypos and exercise to find "snack" I would personally like to see this closer to the top so you don't have to scroll. Call me anal but as above.....its the little things that make a good app brilliant. I have an iPhone 4S, on the iPhone 5 with its longer screen this may no longer be an issue and "snack" may be visible without scrolling.
Cheers
Karl
 
Apr 30, 2014
Politikaal 6 posts

Topic: DAFNE Online Mobile / iPhone app redesign

Hi Simon,
Here are my thoughts and suggestions regarding the App:

1. When I start it up, I quite often get the "Connection failed" pop up almost immediately, even though I have 3G, or am at home with WiFi. When I click retry, it always connects the second go. Maybe the timeout for generating this message needs to be lengthened by say, a second, to give the App a bit longer to sort out its connection to DAFNE Online.
2.when entering BG, it would be a small improvement to have a floating decimal point so that you don't have to press the decimal point button. For a reading of 5.0, you just have to press 5 then 0, and the numbers shift to the left accordingly. This would also keep the decimal point for whole numbers (5.0 instead of 5) but I think this is a good thing. There is an App called LogFrog DB that I used to use before DAFNE that does this very well. It seems like a small thing but little things like that really do make a difference to the users experience.

Cheers
Karl
 
Apr 29, 2014
meltow 78 posts

Topic: General Discussion / Workplace Injections

Probably not a suggestion you want to read..........when I'm in company I inject through my clothes, and so don't have to reveal anything to anyone. Yes, not hygienic either, but for the few occasions I do it, I've never had any problems. Shocked ..............and my needles are long enough!
 
Apr 27, 2014
Vickyp 137 posts

Topic: General Discussion / Workplace Injections

Glad issue at work is sorted Very Happy
 
Apr 27, 2014
Teanosugar 25 posts

Topic: General Discussion / Workplace Injections

I've just been lazy for a fair few months so my stomach needs a total rest, but in the future I'll mix it up once I haven't used my stomach for a couple of months. I've actually asked my employers now and they have a sterilized room I can use which they sorted out for a person who had to change her colostomy bag every so often. She's left now so problem's solved. Very Happy

On a separate but similar note note my right ring finger is about ready to drop off because I haven't changed that in years when doing blood samples. Fortunately switching to another finger isn't quite as embarrassing...
 
Apr 27, 2014
rick71 1 post

Topic: General Discussion / Workplace Injections

have you tryed rotaiting arround weakly. i.e right hip 1 wk. stomac 1 wk then left hip 1 wk. this gives each area a 2wk rest at a time with no need to frighten the rest of ur staff with ur butt hanging out Shocked
 
Apr 26, 2014
David Paine 1 post

Topic: General Discussion / Travelling Abroad

Just got back from 3 weeks travelling from Australia to Brazil. It probably depends who you fly with, but Emirates are fantastic for T1 diabetics.They also have good diabetic meals and bring them out before any of the other meals. I carried all my Lantus and Novo Rapid in a tupperware container with an ice pack in it. After boarding the aircraft, the flight attendants put a sticker on my tupperware container and stuck it in the chilled compartment for me access whenever I needed. I split my supplies when I arrived and carried this tupperware container on my travels away from Rio base.
Specifically for Brazil;
- it is really hard to find coffee without half a cup of sugar in it by default - so make sure you let them know you don't want sugar
- 'comida a quilo' - is a common type of restaurant which has a large variety of foods which have a pay-by-weight payment system and really good for diabetics to dine;
- artificial sweetener 'adoçante' (pronounced ar-do-sun-gee) is a useful substitute for the sugar in Caipirinhas. Many of the street vendors stock it - only a few drops are needed per drink.
Finally, don't forget to wear some sort of ID. I have one of those mediband wristbands and inverted it when I went out running.
Have fun in Brazil! Enjoy the WC!
 
Apr 24, 2014
Punk 1 post

Topic: General Discussion / Travelling Abroad

Can I suggest that It can be very beneficial telling the airline companies that you DO have type 1 Diabetes for the very reason that on two trips my wife and I have been able to use this fact to, firstly, stop us from being taken off a plane because they have over booked, and secondly, to make sure we got on our plane from Hong Kong to Paris after a hurricane had delayed all flights out of Hong Kong and the airport was in a complete shambles. When you say you have TYPE 1 DIABETES it seems to pull a few more strings as far as preferential treatment is concerned. True, I have had some pretty awful "diabetic" meals on some aircrafts but you can always ask for some bread rolls or someone elses "sweets" if you are looking for more carbohydrates. The meals are, however, improving as more and more diabetics are travelling all around the world.
 
Apr 23, 2014
Teanosugar 25 posts

Topic: General Discussion / Workplace Injections

Hi Vicky. It's reassuring to know that you've raised the same objections as me regarding the toilet cubicle. I didn't know if diabetics are just expected to just accept this as being reasonable.

Unfortunately I wear office pants which are too tight to roll up so that's not really possible for me. We have spare rooms in the office but, as far as I'm aware, people are free to walk in and out of them at any point (for example to make a telephone call) so there wouldn't be guaranteed privacy unless they arranged something just for me. Another option would be to leave the building and inject myself which wouldn't work because I'd still face the above problems and more. I'm going to ask my manager when she's back in the office and see if I can get something arranged. However, I've got a feeling that whatever they propose won't be 100% ideal. I may need to go to another floor or something. I can't think of any reason why I should object to something like that providing it's a guarantee that I can, ahem, get my bum out and inject without feeling paranoid that someone is going to walk in on me or that I'm at risk of catching something!

It's all a bit ridiculous because it will only take me about thirty seconds to inject myself. If there are any developments then I'll report back! Smile
 
Apr 23, 2014
Vickyp 137 posts

Topic: General Discussion / Workplace Injections

I work in a school and occasionally need to change my pump during school hours, I was directed towards the toilets but told them this was unsuitable as not hygienic for using sterile needles and insulin etc....they eventually found a room in the school that is lockable and doesn't have a glass panel on the door! The room is used for storage, however they have put a table in for me and have moved some of the storage so that I can access the sink (which was already in the room) easier.
I really wouldn't be happy injecting in a rotten toilet cubicle, is it not possible to roll trouser leg up to inject in leg (I did this when on MDI)?
 
Apr 23, 2014
Teanosugar 25 posts

Topic: General Discussion / Workplace Injections

Type 1 since I was 13 years old; now 31. This is the mountain out of the molehill I'm probably making...

I work an office job, wear office clothes and take a packed lunch to work. I don't mind testing my blood and injecting in front of people, and I normally eat at my desk while I browse the internet. I always inject in my tummy at work as this is the most discrete and nobody bats an eyelid. However, I need to give my tummy a rest for a bit. I think I have those horrible bumps full of insulin that cause random hypos. The problem is I now need to inject in my buttocks, arms or legs for the next couple of months (I hate injecting in my legs though!). Anyway. I can't really do this at my desk as it's not discrete. I'd either have to pull my pants down or partly take off my shirt in a busy office environment. However, I don't want to go to the toilet to inject myself because this doesn't seem hygienic. The toilets are a disgrace in my office so there is a risk of catching something. I am going to ask my manager if there is anywhere I can go to do an injection in private. Does this sound far fetched or unreasonable? I don't expect them to accommodate and I won't kick up a fuss if they don't, but I think I'll at least ask. I know the obvious answer is to go to the toilet, but this doesn't seem right to me. Even if they were clean, it just seems like something that should be avoided because of hygiene issues.

Does anyone out there experience similar problems with injecting in the workplace, college, in public etc.? I take it some environments are better than others for this. What do people think to injecting in a rotten toilet cubicle?

Thanks.