Recent Posts - DAFNE Online

Jul 13, 2014

Pat N 13 posts

Topic: General Discussion / DAFNE MONITORING DIARIES

Could someone please give me some help or advice.
I am now having problems obtaining the DAFNE diaries from my SE region (Ashford Kent) as it's no longer running DAFNE.

Has somebody a printable version they could suggest, or maybe a hard copy alternative ?

I have started using the DAFNE IPhone app but would prefer looking at a full paper page layout to identify trends more easily. Also I find it quicker then typing it all in on my ipone.

Any help would be appreciated Thanks.

Best Regards,
Pat.

Jul 13, 2014

Vickyp 137 posts

Topic: General Discussion / Non Diabetics

Muna I am a secondary teacher and staff say the same to me, I also get 'well should you be eating that?' if I am eating chocolate or a cake. It is so annoying as I have great control over my diabetes. But they all assume that that type of food should not be eaten by a diabetic! It is very annoying, on the other hand I have my mum who constantly says i must eat...she is scared of me having hypos (was having 4/5 a day now maybe 1 a month) without the extra eating.

Jul 13, 2014

Vickyp 137 posts

Topic: General Discussion / Non Diabetics

Muna I am a secondary teacher and staff say the same to me, I also get 'well should you be eating that?' if I am eating chocolate or a cake. It is so annoying as I have great control over my diabetes. But they all assume that that type of food should not be eaten by a diabetic! It is very annoying, on the other hand I have my mum who constantly says i must eat...she is scared of me having hypos (was having 4/5 a day now maybe 1 a month) without the extra eating.

Jul 13, 2014

Muna A H 34 posts

Topic: General Discussion / Non Diabetics

Hi everyone,

This reminds with funny situations i went through at work. I work as a preschool teacher and one of our lovely staff is at least thirty kg over weight. When any child brings in a birthday cake to celebrate with the other children and teachers, that staff would come to me and say "Oh Muna, I am sorry but you can't have this" but inside I laugh and wonder who shouldn't eat that piece of cake???? Wink

with my respect to all non diabetic over weight people.

Cheers

Jul 13, 2014

Muna A H 34 posts

Topic: General Discussion / Non Diabetics

Hi everyone,

This reminds with funny situations i went through at work. I work as a preschool teacher and one of our lovely staff is at least thirty kg over weight. When any child brings in a birthday cake to celebrate with the other children and teachers, that staff would come to me and say "Oh Muna, I am sorry but you can't have this" but inside I laugh and wonder who shouldn't eat that piece of cake???? Wink

with my respect to all non diabetic over weight people.

Cheers

Jul 12, 2014

Storm 6 posts

Topic: General Discussion / Non Diabetics

Hi Phil

I was diagnosed type 1 age 29 and had it 19 years now and like you I think type 2 should be named differently as we all know its related to poor and crappy lifestyle choices etc. I hate when people say oh I couldn't inject I'm scared of needles pffftttt (angry face) I just say oh trust me on this you would inject as fast as you could if your life depended on it. I usually get how come your Diabetic you're not fat grrrrrrrr. Sorry for the rant lol.

Jul 12, 2014

JayBee 587 posts

Topic: General Discussion / Diabetic burnout

I usually explain why I feel that way by looking at the 5 stages of grief. We lost something when we were diagnosed and we'll never get it back - we're bound to feel burnout.

The 5 stages are:

Denial
Anger
Bargaining
Depression
Acceptance

I think I cycle through at least three regularly. It also explains why we're twice as likely to suffer from depression like most chronic condition sufferers.

I recommend learning about depression and anxiety treatments - particularly Cognitive Behavioural Therapy taught thinking as this is not a natural skill. It really should be taught as standard at schools imo but most only do it after reaching a point of extreme distress.

I won't be joining the FB group because I have no intention of joining FB again. Good luck with it though.

I will however take this opportunity to recommend the @OurDiabetes community on Twitter; run voluntarily by David Cragg and his team. They run weekly discussions (called "Tweetchats" - explanation here) and I have met some lovely diabetics through it to help me with the isolation that comes with being Type 1 surrounded by non-diabetics. You do not have to be on Twitter to read the latest on the #ourD tag

Take care y'all.

Jul 12, 2014

JayBee 587 posts

Topic: General Discussion / Non Diabetics

I've rarely known any other diabetics in person for most of my life (I was diagnosed age 5, now almost 30). They haven't really got any incentive to know unless they know someone with it, but even then, still common to fail to understand that there is a difference.

What has annoyed me more recently is working in an office full of weight insecure people, I get laughed at for being okay with going to somewhere like Greggs as a diabetic. Even after telling people that I only carb count for my meds, the assumption that I'm weight watching remains. Might as well be talking to a brick wall.

Another thing is explaining that the reason I don't want to visit a restaurant is because it is too carb guessworky. People think I'm on a diet (never have been, and never will be) or if I ask a restaurant if they have the nutritional information for their food, they answer like I asked "what is your healthiest dish". Example: https://twitter.com/chopstixuk/status/463749193858035712 They didn't even offer the per 100g. Great way to lose custom imo - and a great way for me to lose yet another socialising opportunity.

People and businesses don't care enough to listen. On the plus side, you know who your friends are more easily.

Jul 11, 2014

glen4 46 posts

Topic: General Discussion / Injecting

Had any luck with your needles Lucy? Smile

Jul 11, 2014

glen4 46 posts

Topic: General Discussion / Non Diabetics

Yeah know what you mean! I've had type 1 since I was 5 & never been fat/overweight! I'm 34 now! You get narrow minded or uneducated people that seem to think either a mars bar or dose of insulin will do the trick! Not knowing at the time which would be effective! You get asked silly questions- 'did you eat too many sweets when you we're a child'?

Jul 11, 2014

Phil Maskell 194 posts

Topic: General Discussion / How to Remember If You've Done an Injection

Like the Novopen Echo there is Timesulin - http://timesulin.com/ a replacement lid that knows when you've taken the lid off for long enough to have done an injection, not just a check of amount in cartridge. Not 100% fool proff as you could take the lid off leave it then not inject, but its better than nothing and might be easier than changing your current pens/insulin.

Jul 11, 2014

Phil Maskell 194 posts

Topic: General Discussion / Bionic Pancreas

Never mind a bionic pancreas, I would be happy with a real time CGM on the NHS. The hba1c and control could be so much better, like SimonC said reducing costs in complications down the line.

Jul 11, 2014

Phil Maskell 194 posts

Topic: General Discussion / Diabetic burnout

I get this alot, just naffed off with all the BG tests etc... I am a keen cyclist and the constant BG tests / hypos / gels on the bike, it just gets me down having to do it, plus when high I feel lethargic and can't keep up with the group (which naffs me off), so I give more insulin, then I'm hypo and don't have the energy or too busy eating to keep up!

I guess most diabetics must get this judging by the need for a thread and facebook group. Mentioned it to the GP once, he was shocked that I still felt like this after 30 years, I feel like its because of the 30 years I feel like this.

Phil

Jul 11, 2014

Phil Maskell 194 posts

Topic: General Discussion / Non Diabetics

Hi,

Just thought I'd put this out to see what other people had experienced.

I use Accu-Chek mobile, which if you don't know is a BG meter that doesn't use strips, but looks like an 90s mobile phone in design. I had it on my desk at work and someone came over and we were talking and she asked what it was I showed her and said it was a BG meter and I was diabetic, she didn't realise that BG changed and that having a few injections didn't just make diabetes better. I had to explain (felt the need to) about the yo-yo balancing act of being an artificial pancreas and keeping BG between 4 and 8 is blinking hard work, showed her the graphs on this site.

The only diabetes she had come into contact with was Type 2 where they had a few pills and tested once a day if they remembered, bit dif to DAFNE and a sporty Type 1, I do more than 10 BGs a day when doing a days cycling Shocked

What are other peoples experiences of non diabetics and there understanding of the issues. I hate it when you see something like 'Embarrassing Fat Bodies' and they keep talking about the risks of Diabetes due to being fat, I have never been huge, since cycling less so, but when I say I'm diabetic I know what alot of people must think! I wish Type 2 had a different name as we get the stigma for something that is managed completely differently.

Phil

Jul 10, 2014

glen4 46 posts

Topic: General Discussion / Injecting

If you're injecting into slim/lean areas then 4mm is fine! Bigger needles & pinching up of the skin is intended for fattier skin tissue! You're changing sites regularly?

Jul 10, 2014

Lucyx78 11 posts

Topic: General Discussion / Injecting

Do you think I should be using a bigger needle? The insulin stings when it's goes in everytime yes

Jul 10, 2014

glen4 46 posts

Topic: General Discussion / Injecting

You shouldn't need to pinch with 4mm needles! Have you got any firm areas of skin? Does it hurt to inject?

Jul 9, 2014

Warwick 425 posts

Topic: General Discussion / Injecting

I find it happens less if I stop pinching the skin before withdrawing the needle.

Jul 9, 2014

Lucyx78 11 posts

Topic: General Discussion / Injecting

It happens more in my stomach. I'm on the 4mm too. I was on 8mm. I'm considering ringing and speaking to my diabetes nurse. It happens on every injection now.

Jul 9, 2014

glen4 46 posts

Topic: General Discussion / Injecting

Yeah, you're not the only one Lucy! I've switched to the 4mm needles for the past 14 months. We're told to count to 6 before withdrawing! It happens occasionally. But like you say once can be enough! It seems like the whole dose has been wasted! Sad

I have 2 Novopens,- 1 for Levemir 1 for Novorapid! Checking the dial with 2units from time to time! Does it happen when you inject in certain areas?

Jul 9, 2014

Lucyx78 11 posts

Topic: General Discussion / Injecting

Hi

I just wondering if anyone is or has experienced that when injecting as you are pulling the needle out that all the insulin hasn't been injected as it drops out and I'm worried that I'm not getting all the insulin. I hold the pen in for 10-15 seconds before withdrawing and I frequently change my injection sites. It's happened more since I changed to smaller needles and disposable pens. Please can anyone help?

Jul 8, 2014

JayBee 587 posts

Topic: DAFNE Online Mobile / Android App - Correction for high BG

You also cannot add your own entries to the CP listing apparently.

Android user here too.

Edit: Does the fact ketones don't display correctly too also an Android only thing? I keep having to add the ketones to the notes because showing "true" in the ketones bit is pretty poor.

Jul 13, 2014 Pat N 13 posts	Topic: General Discussion / DAFNE MONITORING DIARIES Could someone please give me some help or advice. I am now having problems obtaining the DAFNE diaries from my SE region (Ashford Kent) as it's no longer running DAFNE. Has somebody a printable version they could suggest, or maybe a hard copy alternative ? I have started using the DAFNE IPhone app but would prefer looking at a full paper page layout to identify trends more easily. Also I find it quicker then typing it all in on my ipone. Any help would be appreciated Thanks. Best Regards, Pat.

Jul 13, 2014 Vickyp 137 posts	Topic: General Discussion / Non Diabetics Muna I am a secondary teacher and staff say the same to me, I also get 'well should you be eating that?' if I am eating chocolate or a cake. It is so annoying as I have great control over my diabetes. But they all assume that that type of food should not be eaten by a diabetic! It is very annoying, on the other hand I have my mum who constantly says i must eat...she is scared of me having hypos (was having 4/5 a day now maybe 1 a month) without the extra eating.

Jul 13, 2014 Vickyp 137 posts	Topic: General Discussion / Non Diabetics Muna I am a secondary teacher and staff say the same to me, I also get 'well should you be eating that?' if I am eating chocolate or a cake. It is so annoying as I have great control over my diabetes. But they all assume that that type of food should not be eaten by a diabetic! It is very annoying, on the other hand I have my mum who constantly says i must eat...she is scared of me having hypos (was having 4/5 a day now maybe 1 a month) without the extra eating.

Jul 13, 2014 Muna A H 34 posts	Topic: General Discussion / Non Diabetics Hi everyone, This reminds with funny situations i went through at work. I work as a preschool teacher and one of our lovely staff is at least thirty kg over weight. When any child brings in a birthday cake to celebrate with the other children and teachers, that staff would come to me and say "Oh Muna, I am sorry but you can't have this" but inside I laugh and wonder who shouldn't eat that piece of cake???? with my respect to all non diabetic over weight people. Cheers

Jul 13, 2014 Muna A H 34 posts	Topic: General Discussion / Non Diabetics Hi everyone, This reminds with funny situations i went through at work. I work as a preschool teacher and one of our lovely staff is at least thirty kg over weight. When any child brings in a birthday cake to celebrate with the other children and teachers, that staff would come to me and say "Oh Muna, I am sorry but you can't have this" but inside I laugh and wonder who shouldn't eat that piece of cake???? with my respect to all non diabetic over weight people. Cheers

Jul 12, 2014 Storm 6 posts	Topic: General Discussion / Non Diabetics Hi Phil I was diagnosed type 1 age 29 and had it 19 years now and like you I think type 2 should be named differently as we all know its related to poor and crappy lifestyle choices etc. I hate when people say oh I couldn't inject I'm scared of needles pffftttt (angry face) I just say oh trust me on this you would inject as fast as you could if your life depended on it. I usually get how come your Diabetic you're not fat grrrrrrrr. Sorry for the rant lol.

Jul 12, 2014 JayBee 587 posts	Topic: General Discussion / Diabetic burnout I usually explain why I feel that way by looking at the 5 stages of grief. We lost something when we were diagnosed and we'll never get it back - we're bound to feel burnout. The 5 stages are: Denial Anger Bargaining Depression Acceptance I think I cycle through at least three regularly. It also explains why we're twice as likely to suffer from depression like most chronic condition sufferers. I recommend learning about depression and anxiety treatments - particularly Cognitive Behavioural Therapy taught thinking as this is not a natural skill. It really should be taught as standard at schools imo but most only do it after reaching a point of extreme distress. I won't be joining the FB group because I have no intention of joining FB again. Good luck with it though. I will however take this opportunity to recommend the @OurDiabetes community on Twitter; run voluntarily by David Cragg and his team. They run weekly discussions (called "Tweetchats" - explanation here) and I have met some lovely diabetics through it to help me with the isolation that comes with being Type 1 surrounded by non-diabetics. You do not have to be on Twitter to read the latest on the #ourD tag Take care y'all.

Jul 12, 2014 JayBee 587 posts	Topic: General Discussion / Non Diabetics I've rarely known any other diabetics in person for most of my life (I was diagnosed age 5, now almost 30). They haven't really got any incentive to know unless they know someone with it, but even then, still common to fail to understand that there is a difference. What has annoyed me more recently is working in an office full of weight insecure people, I get laughed at for being okay with going to somewhere like Greggs as a diabetic. Even after telling people that I only carb count for my meds, the assumption that I'm weight watching remains. Might as well be talking to a brick wall. Another thing is explaining that the reason I don't want to visit a restaurant is because it is too carb guessworky. People think I'm on a diet (never have been, and never will be) or if I ask a restaurant if they have the nutritional information for their food, they answer like I asked "what is your healthiest dish". Example: https://twitter.com/chopstixuk/status/463749193858035712 They didn't even offer the per 100g. Great way to lose custom imo - and a great way for me to lose yet another socialising opportunity. People and businesses don't care enough to listen. On the plus side, you know who your friends are more easily.

Jul 11, 2014 glen4 46 posts	Topic: General Discussion / Injecting Had any luck with your needles Lucy?

Jul 11, 2014 glen4 46 posts	Topic: General Discussion / Non Diabetics Yeah know what you mean! I've had type 1 since I was 5 & never been fat/overweight! I'm 34 now! You get narrow minded or uneducated people that seem to think either a mars bar or dose of insulin will do the trick! Not knowing at the time which would be effective! You get asked silly questions- 'did you eat too many sweets when you we're a child'?

Jul 11, 2014 Phil Maskell 194 posts	Topic: General Discussion / How to Remember If You've Done an Injection Like the Novopen Echo there is Timesulin - http://timesulin.com/ a replacement lid that knows when you've taken the lid off for long enough to have done an injection, not just a check of amount in cartridge. Not 100% fool proff as you could take the lid off leave it then not inject, but its better than nothing and might be easier than changing your current pens/insulin.

Jul 11, 2014 Phil Maskell 194 posts	Topic: General Discussion / Bionic Pancreas Never mind a bionic pancreas, I would be happy with a real time CGM on the NHS. The hba1c and control could be so much better, like SimonC said reducing costs in complications down the line.

Jul 11, 2014 Phil Maskell 194 posts	Topic: General Discussion / Diabetic burnout I get this alot, just naffed off with all the BG tests etc... I am a keen cyclist and the constant BG tests / hypos / gels on the bike, it just gets me down having to do it, plus when high I feel lethargic and can't keep up with the group (which naffs me off), so I give more insulin, then I'm hypo and don't have the energy or too busy eating to keep up! I guess most diabetics must get this judging by the need for a thread and facebook group. Mentioned it to the GP once, he was shocked that I still felt like this after 30 years, I feel like its because of the 30 years I feel like this. Phil

Jul 11, 2014 Phil Maskell 194 posts	Topic: General Discussion / Non Diabetics Hi, Just thought I'd put this out to see what other people had experienced. I use Accu-Chek mobile, which if you don't know is a BG meter that doesn't use strips, but looks like an 90s mobile phone in design. I had it on my desk at work and someone came over and we were talking and she asked what it was I showed her and said it was a BG meter and I was diabetic, she didn't realise that BG changed and that having a few injections didn't just make diabetes better. I had to explain (felt the need to) about the yo-yo balancing act of being an artificial pancreas and keeping BG between 4 and 8 is blinking hard work, showed her the graphs on this site. The only diabetes she had come into contact with was Type 2 where they had a few pills and tested once a day if they remembered, bit dif to DAFNE and a sporty Type 1, I do more than 10 BGs a day when doing a days cycling What are other peoples experiences of non diabetics and there understanding of the issues. I hate it when you see something like 'Embarrassing Fat Bodies' and they keep talking about the risks of Diabetes due to being fat, I have never been huge, since cycling less so, but when I say I'm diabetic I know what alot of people must think! I wish Type 2 had a different name as we get the stigma for something that is managed completely differently. Phil

Jul 10, 2014 glen4 46 posts	Topic: General Discussion / Injecting If you're injecting into slim/lean areas then 4mm is fine! Bigger needles & pinching up of the skin is intended for fattier skin tissue! You're changing sites regularly?

Jul 10, 2014 Lucyx78 11 posts	Topic: General Discussion / Injecting Do you think I should be using a bigger needle? The insulin stings when it's goes in everytime yes

Jul 10, 2014 glen4 46 posts	Topic: General Discussion / Injecting You shouldn't need to pinch with 4mm needles! Have you got any firm areas of skin? Does it hurt to inject?

Jul 9, 2014 Warwick 425 posts	Topic: General Discussion / Injecting I find it happens less if I stop pinching the skin before withdrawing the needle.

Jul 9, 2014 Lucyx78 11 posts	Topic: General Discussion / Injecting It happens more in my stomach. I'm on the 4mm too. I was on 8mm. I'm considering ringing and speaking to my diabetes nurse. It happens on every injection now.

Jul 9, 2014 glen4 46 posts	Topic: General Discussion / Injecting Yeah, you're not the only one Lucy! I've switched to the 4mm needles for the past 14 months. We're told to count to 6 before withdrawing! It happens occasionally. But like you say once can be enough! It seems like the whole dose has been wasted! I have 2 Novopens,- 1 for Levemir 1 for Novorapid! Checking the dial with 2units from time to time! Does it happen when you inject in certain areas?

Jul 9, 2014 Lucyx78 11 posts	Topic: General Discussion / Injecting Hi I just wondering if anyone is or has experienced that when injecting as you are pulling the needle out that all the insulin hasn't been injected as it drops out and I'm worried that I'm not getting all the insulin. I hold the pen in for 10-15 seconds before withdrawing and I frequently change my injection sites. It's happened more since I changed to smaller needles and disposable pens. Please can anyone help?

Jul 8, 2014 JayBee 587 posts	Topic: DAFNE Online Mobile / Android App - Correction for high BG You also cannot add your own entries to the CP listing apparently. Android user here too. Edit: Does the fact ketones don't display correctly too also an Android only thing? I keep having to add the ketones to the notes because showing "true" in the ketones bit is pretty poor.