Recent Posts - DAFNE Online

Jun 5, 2010

steve o 5 posts

Topic: General Discussion / I want an insulin pump

I am totally gutted last week i saw my consultant at the hospital to ask about getting an insulin pump. I am a type one diabetic have been so for 24 years and take humalog and lantus insulin. I completed the DAFNE course back in February which i found really helpful and enjoyable and would recommend it to any type one diabetics who are thinking about going on one. My consultant told me that because my HBA1C is 7.9 and i am getting hypo awareness he thinks my chances of getting a pump are very small. I insisted that he writes a letter to my PCT supporting my request for a pump because i believe this is the way forward because although my HBA1C was good other times previously it has been bad and i believe that i would get much better control and feel better in myself if i had a pump. I was wondering if any one else has been in a similar situation and if there are any organizations who can help me in my fight to get a pump.

Jun 5, 2010

Simon 578 posts

Topic: General Discussion / Holidays and Insulin

I meant I bought it 4 years ago, not 15 Smile

Jun 4, 2010

vic demain 87 posts

Topic: General Discussion / Prayer4aCure

I wish you well in your search, but, you have diabetes, it is not a life sentence and you can live happily with it for years. Good luck to you and thank the lord you don't have cancer.

Jun 4, 2010

Prayer4aCure 6 posts

Topic: General Discussion / Prayer4aCure

Of course there are always other ways to support those working on a cure in the form of a financial donation or even be involved in trials ourselves!. I would just like to say personally I have shifted my own thinking - it was all just 'false hope' that these people working on a Cure were giving me all the time to now choosing to believe in them, believing that they will do it! One professior has dedicated 50 years of his life to curing diabetes & is very excited about recent developments. It helps me on a daily basis because I forget all of my worries or fears about what's in store for tomorrow. I just do what I have to do for today, where DAFNE & self-managements comes in & tomorrow I just simply believe tomorrow there will be a cure. I can let go of all of the fears, depression etc I used to feel about tomorrow with diabetes, complications etc etc & I just worry about what I need to do for my diabetes for today! Hope you find a way to Support a Cure!!

Jun 3, 2010

Kentbabe 10 posts

Topic: General Discussion / stress

i have found that stress plays havock with my blood sugar levels. Though they do settle again fairly fast. Good luck finding a place to live tho.

Jun 3, 2010

Annette Bell 72 posts

Topic: General Discussion / Bayer Contour USB

Yes - I looked at getting a cable when I first got the meters, but found they are not (or at least weren't then) compatible with a Mac.

Jun 3, 2010

NiVZ 82 posts

Topic: General Discussion / Bayer Contour USB

Annette,

You can get a data cable and software for the One Touch Ultra and Ultra Easy for free from Lifescan. However, neither of these meters allow you to record insulin or carbs data (although the Countour USB also does not record this data)

I'm still working on my own software to allow uploading of data from OneTouch UltraEasy and UltraSmart to the online DAFNE diaries, but I've not had a chance to look at it at all lately Surprised

( but I am determined to get it finsihed one day ;o)

NiVZ

Jun 2, 2010

Karl 83 posts

Topic: General Discussion / Help how to loose weight

there is lots of info at

http://www.runsweet.com/

about Managing Diabetes with Sport

Jun 2, 2010

Rustyruss 1 post

Topic: General Discussion / Help how to loose weight

Hi,
I have also been having the same problem with hypo's in the night due to hard training night before, at the min i am training for a fight in muay thai boxing and have to loose weight and i find by splitting my Bi and also lowering it half at night and half in the morning and this is Glarjene, i'm talking about, having some carbs after training but not giving any QA for this, test again before bed because dont forget your liver wants it's glucose back from what it lent you for your exercise i normally go bed around 12 - 13 mmols then wake up around 7-8 mmols have break fast but half the QA and test again at snack time it's working for me at the moment but every ones different. hey but that diabete's for ya trial and error.

Jun 2, 2010

Tracey Bond 14 posts

Topic: General Discussion / Prayer4aCure

Hi........................ I'm afraid i'm with Stew B on this matter. No amount of prayer or positive visualisation, whether from a single person or the world on mass is going to make any difference to the fact that you have Type 1 diabetes . I can't see how anyone with a ounce of common sense could even believe that praying for it to 'go away' could make it do so...................Just think about what you have said.

Jun 2, 2010

Simon 578 posts

Topic: General Discussion / Holidays and Insulin

I second Karl's link to frio - they are fantastic bits of kit. You can fold them up when not in use (the crystals inside dry up in a couple of days) and they are great at keeping insulin cool. As they only require water to activate you can even top them up when out and about (I used drinking water fountains in Germany, worked fine).

Well worth it for the fifteen quid I spent on it 15 years ago.

Cheers,

Simon

Jun 2, 2010

cupcake 3 posts

Topic: General Discussion / New to Dafne

Hi just thought I would share my first 10 day diarys to see if anyone had any ideas of how to move forward. Felt very supported at the course but now im on my own some little doubts about my ability to see the whole picture are creeping in. Any advice welcome.

Thank you
Sue

Jun 2, 2010

Karl 83 posts

Topic: General Discussion / Holidays and Insulin

Hi

http://www.friouk.com/ is a great start

Jun 2, 2010

Annette Bell 72 posts

Topic: General Discussion / Bayer Contour USB

I am actually using the One Touch Ultra of which I have two versions - the Ultra 2 for use at home, & the Ultra Easy to take out as it is smaller.

Jun 2, 2010

melissa_coleman 4 posts

Topic: General Discussion / stress

I have just found out that my mum is getting married to this guy she has known for just over a week and I have one month to find somewhere to live! And my blood sugars are now really playing up!

Jun 2, 2010

DavidJ 23 posts

Topic: General Discussion / stress

I think so. I was told once that adrenalin counters the effect of insulin and I would imagine other hormones can have similar effects.

Jun 2, 2010

melissa_coleman 4 posts

Topic: General Discussion / stress

Can stress increase your blood sugars?

Jun 2, 2010

Prayer4aCure 6 posts

Topic: General Discussion / Prayer4aCure

Hi Stew, sorry you feel that way I'm not really a preacher in fact probably the opposite so I am sorry if I came across that way to you & I would like to say from the outset that if offended you or anyone else perhaps I should have added that you are welcome to take what helps & leave the rest - it's really up to you.... I respect the fact that we all have the right to do it our own way. I have had diabetes for many years now, did DAFNE myself in the first group in Australia so I am very familiar with DAFNE principles & perfectly happy to chat about how we manage day to day that's why I am thrilled that someone has set up a site for DAFNE Graduates in fact I think it's really important to have a place for support & follow up because it is easy to let it slide. I really do believe now that one day there will be a cure for Type 1 Diabetes & I do believe that there is a possibility I will be alive to see it. This research that I spoke of is at the forefront of a cure for diabetes & I like to keep up with that as well & give praise the wonderful people who are putting a lot of time & effort into this research - that's it... take it or leave it I don't mind at all... it's just my way I don't expect it to be everyone's & do not wish to push it on anyone in anyway. Take Care - Said with the best of intentions & from an interest in the discussion on research & a cure - very sorry again if I offended anyone with my thoughts in no way do they reflect a desire to preach it sincerely comes from the heart nor do I wish to ignore DAFNE in fact DAFNE saved my life & I am forever grateful for that - Sue J

Jun 1, 2010

Stew B 125 posts

Topic: General Discussion / Prayer4aCure

Oh dear. I take a practical approach to my diabetes - that's why DAFNE has been such a success for me. I don't want to offend others whose spiritual or religious beliefs are central to their lives, but the emotional support which I need in the daily reality of living with diabetes does not come from those sources for me. I am afraid that I am offended by the original post. A brief post inviting personal replies, or a link to a non-DAFNE forum for those who are of a similar mind to the person starting the thread would have been OK, but this lengthy post feels like being preached at - not something I want from DAFNE online.

Stew B

Jun 1, 2010

mwendon 1 post

Topic: DAFNE Online Mobile / Rationale - Please read

I have an iPhone and would be willing to test. I would also love to have an onboard dafne iPhone app... The best I have found is Diabetes pilot but it doesnt yet do reports in a dafne format which is a drag when trying to analyse readings the way dafne does it. Mark

Jun 1, 2010

Prayer4aCure 6 posts

Topic: General Discussion / Prayer4aCure

Hi all, Just wanted to introduce myself & explain that I have called myself Prayer4aCure because I would love all Type 1 Diabetics (family & friends) to join me in a collective Prayer 4 a Cure for Type 1 diabetes!!! Generally I am just another 'everyday' diabetic who is a graduate of one of the very first DAFNE workshops in Australia & have had diabetes since 1985.... I never believed early on that I would ever see a cure for Diabetes now I live in hope that I will see a cure because I do feel it is possible now!!! Anyway I will share my prayer & the research I have been doing on collective prayer & if you have a little time I would love it if you would join me in this prayer! Firstly, just wanted to send my gratitude to those who got this site up & running for us, it is a valuable resource for DAFNE graduates!!! Awesome thanks!! I also hope that everyone can join in with my Visualisation for a Cure for Type 1 Diabetes!! I have been studying spiritual work for a few years now & recently I saw a show on the Auckland Island Pigs & the Hope for a Cure & at the same time thought of the power of positive visualisations & thoughts as a form of prayer on a GRAND SCALE collective basis and thought WOW if we could only combine these two concepts & have every Type 1 Diabetic contribute to this vibration of energy, this Visualisation or Prayer! We could expect Miracles to happen!!! The power of this prayer or positive vibrational energy, if you like, comes from going into your HEART CENTRE (it must come from the HEART, not mind power) & you must feel in your whole being that it has already happened, visualise anything that would have changed for you once your TYPE 1 Diabetes is cured, no more syringes - so imagine throwing them out permanently, no more blood tests - throw out your machine, visualise yourself going through this new ground breaking treatment, feel the islet cells pour into your body like a flow of gold & then feel them taking & producing insulin for you, feel these golden cells of insulin throughout your body, feel the pure joy & freedom in your heart & soul as you are cured (I felt an overwhelming emotion to think of myself as cured) - feel yourself living to an old age, feel yourself telling the story of your cure to your grandchildren, this vibrational energy will go out to our Universal Source and so it shall be that what we have put out there comes back in to us, an answered prayer, a MIRACLE! So as I imagined this on a grand scale the positive vibration of hundreds of thousands of Type 1 Diabetics taking part & felt a vibrational energy would be so amazing & at the same time bingo I received this address for this amazing web site and thought I am going to pass this on - So please everyone, just imagine yourself giving thanks & gratitude for receiving this cure, when it is done, how you feel to be cured - I felt there would barely be words to describe the feeling of receiving such a grand MIRACLE!!!I invite you to my Prayer4aCure mission & ask you to give 20 to 30 seconds a day, more than once a day if you feel so moved, to add to this positive vibrational energy THAT WE ARE ALL CURED, OUR MIRACLE!!! Remember we must visualise that it is so, not want it to be so or we will be forever wanting, imagine the universe has sent the cure already! Imagine for yourself everyone's vibrational energy together as one! WOW!!! Anyway if you are interested in further information about this vibrational energy of "feeling in your heart as if it has already happened" you can check it out at youtube - Gregg Braden - The Science of Miracles I would also love it if anyone else wants to share their visualisation on this topic that would be great! Take Care all, here's to a cure through our positive prayer & through the hard work & dedication of scientists world wide working on it at this very moment & potentially through the wonderful genetic material from these Auckland Island Pigs (article on Channel 7 website/Sunday Programme ) - Cheers to all Sue J from Australia

May 31, 2010

Pol 2 posts

Topic: General Discussion / "Balance" letter about injecting in public

I personally wouldn't take a shot in public although i certainly admire anyone who has no problem doing it. I agree it shouldn't be a big deal and some non-diabetics should be more open minded. I saw one girl taking her shot in a restaurant and she was getting some strange looks but it didn't seem to bother her. My mother and grandmother were both type 1 diabetics and when they took their insulin they always did it in private so maybe that's where i got it from. I was told at the Dafne course that if your mother is diabetic then you have roughly a 100/1 chance of getting it.....pity i can't get a bloody horse to come in at those odds Sad

Jun 5, 2010 steve o 5 posts	Topic: General Discussion / I want an insulin pump I am totally gutted last week i saw my consultant at the hospital to ask about getting an insulin pump. I am a type one diabetic have been so for 24 years and take humalog and lantus insulin. I completed the DAFNE course back in February which i found really helpful and enjoyable and would recommend it to any type one diabetics who are thinking about going on one. My consultant told me that because my HBA1C is 7.9 and i am getting hypo awareness he thinks my chances of getting a pump are very small. I insisted that he writes a letter to my PCT supporting my request for a pump because i believe this is the way forward because although my HBA1C was good other times previously it has been bad and i believe that i would get much better control and feel better in myself if i had a pump. I was wondering if any one else has been in a similar situation and if there are any organizations who can help me in my fight to get a pump.

Jun 5, 2010 Simon 578 posts	Topic: General Discussion / Holidays and Insulin I meant I bought it 4 years ago, not 15

Jun 4, 2010 vic demain 87 posts	Topic: General Discussion / Prayer4aCure I wish you well in your search, but, you have diabetes, it is not a life sentence and you can live happily with it for years. Good luck to you and thank the lord you don't have cancer.

Jun 4, 2010 Prayer4aCure 6 posts	Topic: General Discussion / Prayer4aCure Of course there are always other ways to support those working on a cure in the form of a financial donation or even be involved in trials ourselves!. I would just like to say personally I have shifted my own thinking - it was all just 'false hope' that these people working on a Cure were giving me all the time to now choosing to believe in them, believing that they will do it! One professior has dedicated 50 years of his life to curing diabetes & is very excited about recent developments. It helps me on a daily basis because I forget all of my worries or fears about what's in store for tomorrow. I just do what I have to do for today, where DAFNE & self-managements comes in & tomorrow I just simply believe tomorrow there will be a cure. I can let go of all of the fears, depression etc I used to feel about tomorrow with diabetes, complications etc etc & I just worry about what I need to do for my diabetes for today! Hope you find a way to Support a Cure!!

Jun 3, 2010 Kentbabe 10 posts	Topic: General Discussion / stress i have found that stress plays havock with my blood sugar levels. Though they do settle again fairly fast. Good luck finding a place to live tho.

Jun 3, 2010 Annette Bell 72 posts	Topic: General Discussion / Bayer Contour USB Yes - I looked at getting a cable when I first got the meters, but found they are not (or at least weren't then) compatible with a Mac.

Jun 3, 2010 NiVZ 82 posts	Topic: General Discussion / Bayer Contour USB Annette, You can get a data cable and software for the One Touch Ultra and Ultra Easy for free from Lifescan. However, neither of these meters allow you to record insulin or carbs data (although the Countour USB also does not record this data) I'm still working on my own software to allow uploading of data from OneTouch UltraEasy and UltraSmart to the online DAFNE diaries, but I've not had a chance to look at it at all lately ( but I am determined to get it finsihed one day ;o) NiVZ

Jun 2, 2010 Karl 83 posts	Topic: General Discussion / Help how to loose weight there is lots of info at http://www.runsweet.com/ about Managing Diabetes with Sport

Jun 2, 2010 Rustyruss 1 post	Topic: General Discussion / Help how to loose weight Hi, I have also been having the same problem with hypo's in the night due to hard training night before, at the min i am training for a fight in muay thai boxing and have to loose weight and i find by splitting my Bi and also lowering it half at night and half in the morning and this is Glarjene, i'm talking about, having some carbs after training but not giving any QA for this, test again before bed because dont forget your liver wants it's glucose back from what it lent you for your exercise i normally go bed around 12 - 13 mmols then wake up around 7-8 mmols have break fast but half the QA and test again at snack time it's working for me at the moment but every ones different. hey but that diabete's for ya trial and error.

Jun 2, 2010 Tracey Bond 14 posts	Topic: General Discussion / Prayer4aCure Hi........................ I'm afraid i'm with Stew B on this matter. No amount of prayer or positive visualisation, whether from a single person or the world on mass is going to make any difference to the fact that you have Type 1 diabetes . I can't see how anyone with a ounce of common sense could even believe that praying for it to 'go away' could make it do so...................Just think about what you have said.

Jun 2, 2010 Simon 578 posts	Topic: General Discussion / Holidays and Insulin I second Karl's link to frio - they are fantastic bits of kit. You can fold them up when not in use (the crystals inside dry up in a couple of days) and they are great at keeping insulin cool. As they only require water to activate you can even top them up when out and about (I used drinking water fountains in Germany, worked fine). Well worth it for the fifteen quid I spent on it 15 years ago. Cheers, Simon

Jun 2, 2010 cupcake 3 posts	Topic: General Discussion / New to Dafne Hi just thought I would share my first 10 day diarys to see if anyone had any ideas of how to move forward. Felt very supported at the course but now im on my own some little doubts about my ability to see the whole picture are creeping in. Any advice welcome. Thank you Sue

Jun 2, 2010 Karl 83 posts	Topic: General Discussion / Holidays and Insulin Hi http://www.friouk.com/ is a great start

Jun 2, 2010 Annette Bell 72 posts	Topic: General Discussion / Bayer Contour USB I am actually using the One Touch Ultra of which I have two versions - the Ultra 2 for use at home, & the Ultra Easy to take out as it is smaller.

Jun 2, 2010 melissa_coleman 4 posts	Topic: General Discussion / stress I have just found out that my mum is getting married to this guy she has known for just over a week and I have one month to find somewhere to live! And my blood sugars are now really playing up!

Jun 2, 2010 DavidJ 23 posts	Topic: General Discussion / stress I think so. I was told once that adrenalin counters the effect of insulin and I would imagine other hormones can have similar effects.

Jun 2, 2010 melissa_coleman 4 posts	Topic: General Discussion / stress Can stress increase your blood sugars?

Jun 2, 2010 Prayer4aCure 6 posts	Topic: General Discussion / Prayer4aCure Hi Stew, sorry you feel that way I'm not really a preacher in fact probably the opposite so I am sorry if I came across that way to you & I would like to say from the outset that if offended you or anyone else perhaps I should have added that you are welcome to take what helps & leave the rest - it's really up to you.... I respect the fact that we all have the right to do it our own way. I have had diabetes for many years now, did DAFNE myself in the first group in Australia so I am very familiar with DAFNE principles & perfectly happy to chat about how we manage day to day that's why I am thrilled that someone has set up a site for DAFNE Graduates in fact I think it's really important to have a place for support & follow up because it is easy to let it slide. I really do believe now that one day there will be a cure for Type 1 Diabetes & I do believe that there is a possibility I will be alive to see it. This research that I spoke of is at the forefront of a cure for diabetes & I like to keep up with that as well & give praise the wonderful people who are putting a lot of time & effort into this research - that's it... take it or leave it I don't mind at all... it's just my way I don't expect it to be everyone's & do not wish to push it on anyone in anyway. Take Care - Said with the best of intentions & from an interest in the discussion on research & a cure - very sorry again if I offended anyone with my thoughts in no way do they reflect a desire to preach it sincerely comes from the heart nor do I wish to ignore DAFNE in fact DAFNE saved my life & I am forever grateful for that - Sue J

Jun 1, 2010 Stew B 125 posts	Topic: General Discussion / Prayer4aCure Oh dear. I take a practical approach to my diabetes - that's why DAFNE has been such a success for me. I don't want to offend others whose spiritual or religious beliefs are central to their lives, but the emotional support which I need in the daily reality of living with diabetes does not come from those sources for me. I am afraid that I am offended by the original post. A brief post inviting personal replies, or a link to a non-DAFNE forum for those who are of a similar mind to the person starting the thread would have been OK, but this lengthy post feels like being preached at - not something I want from DAFNE online. Stew B

Jun 1, 2010 mwendon 1 post	Topic: DAFNE Online Mobile / Rationale - Please read I have an iPhone and would be willing to test. I would also love to have an onboard dafne iPhone app... The best I have found is Diabetes pilot but it doesnt yet do reports in a dafne format which is a drag when trying to analyse readings the way dafne does it. Mark

Jun 1, 2010 Prayer4aCure 6 posts	Topic: General Discussion / Prayer4aCure Hi all, Just wanted to introduce myself & explain that I have called myself Prayer4aCure because I would love all Type 1 Diabetics (family & friends) to join me in a collective Prayer 4 a Cure for Type 1 diabetes!!! Generally I am just another 'everyday' diabetic who is a graduate of one of the very first DAFNE workshops in Australia & have had diabetes since 1985.... I never believed early on that I would ever see a cure for Diabetes now I live in hope that I will see a cure because I do feel it is possible now!!! Anyway I will share my prayer & the research I have been doing on collective prayer & if you have a little time I would love it if you would join me in this prayer! Firstly, just wanted to send my gratitude to those who got this site up & running for us, it is a valuable resource for DAFNE graduates!!! Awesome thanks!! I also hope that everyone can join in with my Visualisation for a Cure for Type 1 Diabetes!! I have been studying spiritual work for a few years now & recently I saw a show on the Auckland Island Pigs & the Hope for a Cure & at the same time thought of the power of positive visualisations & thoughts as a form of prayer on a GRAND SCALE collective basis and thought WOW if we could only combine these two concepts & have every Type 1 Diabetic contribute to this vibration of energy, this Visualisation or Prayer! We could expect Miracles to happen!!! The power of this prayer or positive vibrational energy, if you like, comes from going into your HEART CENTRE (it must come from the HEART, not mind power) & you must feel in your whole being that it has already happened, visualise anything that would have changed for you once your TYPE 1 Diabetes is cured, no more syringes - so imagine throwing them out permanently, no more blood tests - throw out your machine, visualise yourself going through this new ground breaking treatment, feel the islet cells pour into your body like a flow of gold & then feel them taking & producing insulin for you, feel these golden cells of insulin throughout your body, feel the pure joy & freedom in your heart & soul as you are cured (I felt an overwhelming emotion to think of myself as cured) - feel yourself living to an old age, feel yourself telling the story of your cure to your grandchildren, this vibrational energy will go out to our Universal Source and so it shall be that what we have put out there comes back in to us, an answered prayer, a MIRACLE! So as I imagined this on a grand scale the positive vibration of hundreds of thousands of Type 1 Diabetics taking part & felt a vibrational energy would be so amazing & at the same time bingo I received this address for this amazing web site and thought I am going to pass this on - So please everyone, just imagine yourself giving thanks & gratitude for receiving this cure, when it is done, how you feel to be cured - I felt there would barely be words to describe the feeling of receiving such a grand MIRACLE!!!I invite you to my Prayer4aCure mission & ask you to give 20 to 30 seconds a day, more than once a day if you feel so moved, to add to this positive vibrational energy THAT WE ARE ALL CURED, OUR MIRACLE!!! Remember we must visualise that it is so, not want it to be so or we will be forever wanting, imagine the universe has sent the cure already! Imagine for yourself everyone's vibrational energy together as one! WOW!!! Anyway if you are interested in further information about this vibrational energy of "feeling in your heart as if it has already happened" you can check it out at youtube - Gregg Braden - The Science of Miracles I would also love it if anyone else wants to share their visualisation on this topic that would be great! Take Care all, here's to a cure through our positive prayer & through the hard work & dedication of scientists world wide working on it at this very moment & potentially through the wonderful genetic material from these Auckland Island Pigs (article on Channel 7 website/Sunday Programme ) - Cheers to all Sue J from Australia

May 31, 2010 Pol 2 posts	Topic: General Discussion / "Balance" letter about injecting in public I personally wouldn't take a shot in public although i certainly admire anyone who has no problem doing it. I agree it shouldn't be a big deal and some non-diabetics should be more open minded. I saw one girl taking her shot in a restaurant and she was getting some strange looks but it didn't seem to bother her. My mother and grandmother were both type 1 diabetics and when they took their insulin they always did it in private so maybe that's where i got it from. I was told at the Dafne course that if your mother is diabetic then you have roughly a 100/1 chance of getting it.....pity i can't get a bloody horse to come in at those odds