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15,849 posts found
Jun 24, 2010
david gillespie
1 post
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Topic: General Discussion / Exercise and high BG I have just found out about this site and it's like Christmas has just arrived.I'm 46 at got type1 5 years ago and did DAFNE 3 years ago.I do a fair bit of exercise almost daily (usually an 800m swim + 10k run + 1 weekly 70k cycle. I have done 2 marathons since being on DAFNE and took up triathlons almost 4 years ago. I have been hoping against hope I would some day find some other DAFNE exercise addicts and here you all are! I'd really love to hear from anyone who exercise but especially those doing triathlon as to how they balance carbs with insulin etc. Biggest problem I have is cramping when I finish the bike and start to run. I havn't been able to nail down as to whether this is down to the diabetes effect or simply a loss of salt. I'm now taking electrolyte tablets and found the cramps are less severe but i still have not eliminated them.So anyone who is or has been in the same boat please let me have your thoughts. I'm doing my first half Ironman in August (1.9k swim, 90K cycle and 21K run) and as this is a giant step from my usual distance to say I'm scared is an understatement! I'm very sensitive to insulin so have the usual balancing act that I see the other contributors to the forum have.My usual insulin rates are 1 x 4 units of Levemir at night.Morning ratio is 1:1 when not exercising, but maybe just 1 unit of novarapid if I am, 1 unit of Novarapid during day with exercise and same for evening with exercise plus 1 unit to 3CP with evening meal.This obviously varies according to exercise duration + carb intake etc. Look forward to replies.David G |
Jun 24, 2010
Katy B
8 posts
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Topic: General Discussion / I want an insulin pump Ah ok Rachie. The posts above all seemed rather attacking rather than supportive to me. Like why would you want one, cost to NHS and turning one down... In response to Anil, they are absolutly not like a pen, where after you have injected you cant take it out, and thinking the day in advance whether you need to adjust background because you're going to be particularly active. They can be suspended completely and the basal rate can be adjusted hour by hour. If you are heading low you turn it off rather than having to eat. You can go out on a jog on the spur of the moment. Why would anyone turn down such a clever, flexible gadget? Yes you tell it when your eating but it can calculate how much active insulin you have left from your last snack and take into consideration your glucose level there and then and it makes its own calculations and delivers the insulin acordingly based on how many carbs you told it you are about to eat! It can deliver insulin over a longer period of time, ie if eating fatty pizza or a curry, tell it so and it can deliver over 45 mins if you so wish, like a real pancreas would and not in some big ball of liquid in your leg.The cost to the NHS is irrelivant. Its what you want and how you want to be treated that matters. In other countrys they have a much higher pumping rate than the uk. DAFNE is amazing and im so pleased to hear your HbA1c is fab! Well done as it takes effort and comitment. I personally see the pump as the final step in getting the best contol. Ok it might not be for eveyone (I can not for the life of me work out why anyone wouldnt want the next best thing to having their own pancreas back) but we should support those that do. I didnt want injecting to be part of my life. I hate fiddling with them, I hate disposing of them, I hate getting them out in public or infront of my colleages or family members, I hate the little blobs of blood they leave on my clothes. I love my pump, its amazing. I didnt have to fit criteria, I showed how passionately I wanted/needed one to be how I percieved as being a normal person if I got one. I showed I had knowledge and understanding and committed to learing the ins and outs of it. My hospital were fab, I asked an I got and my specialist is the most special man to me as its given me everything about a normal life back. Bein DAFNE trained means you are one step closer to getting one if you asked as you have to carb count to use it! |
Jun 24, 2010
Sam
64 posts
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Topic: General Discussion / Anyone else having problems obtaining BG Test strips from their GP? Well saw my GP on Monday and nothing was said in terms of how much I was using. The message on my prescription was merley a message to review as they do with all patients. They asked me how I was getting on which was quite nice them. I went to the practice a few months ago to talk to their students about DAFNE and my experience, think they gained alot as I spent more time talking to my GP about DAFNE lol!I did raise a question to her as my needles has been changed to a "cheaper" version. She assures me it was not at thier end and more the chemist, perhaps they ran out of my novo fine needles. These cheap ones are crap, they leak, hurt and leave bruises..no joke. So I'll be sending in another script to get the proper ones!! Sam |
Jun 24, 2010
Rachie Wilson
9 posts
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Topic: General Discussion / I want an insulin pump Hi KatyI totally agree with you thats if it is going to help you in the long run then fight for it all the way. All I was trying to say is that since doing DAFNE i have got back some control and I can manage my diabetes really well. As my last HBA1C is now 6.2 which is in the perfect range. Everyone is different, maybe I have the wrong attitude but I have injected for over 21 years now and I can't remeber any different as far as I am concered injecting is part of my life. I am glad to hear you had no problems getting your pump, did you have any problems getting it??? As it seems to me depending on where you live depends whether you can have one or not. I am sorry if I upset anyone by what I wrote in my perious post. |
Jun 23, 2010
meltow
78 posts
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Topic: General Discussion / Holidays and Insulin Frio it is for me too. Not only do they keep the insulin at a constant cool temperature, but once the crystals expand they act as a cushion against any rough treatment of insulin pen or insulin cartidges. I do quite a lot of backpacking, usually in the UK but occasionally abroad, and the various Frio products I have, certainly have longevity, and have never failed me. I bought them at least 9 years ago and they are still going strong. Needless to say, I have never had to try any other similar products on the market. |
Jun 23, 2010
Katy B
8 posts
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Topic: General Discussion / I want an insulin pump Dear Steve o, I am sorry your consultant didnt seem very forward at helping you. Perhaps maybe he was testing you on how important it was to you and your desire to have one as there is no point in him fighting to get you one if your not passionate about having one. When you next see him, go armed with some research. Look at the different pumps that are funded in the Uk, ie The veo, Accu-chec, and the medtronic. Find some strong resons why you would benefit from one. Do you do shifts? Are you active? Is one day differnt from the next? Do you have lots of hypos? All good reasons to have a pump.I am rather offended by the other posts on here. Anyone who is trying to improve their control or quality of life should be offerd the chance of having a pump. I understand they are expensive but the cost to the NHS would be lowered due to better control with the pump and thus lowering complications with not only ie, foot ulcers but other things such as depression. I had reasonable contol after doing DAFNE. My HbA1c wasnt sky high and my hypo awareness is there. I got funding for a pump no problem. It has given me my own normal life back after it was snatched away by the GP who told me I was Type 1 down the phone. I now dont inject in public, my handset tells my pump what to do. My levels are much more stable and consistent instead of peaks and troughs and I have my very own pancreas in my pocket instead of stabbing my poor thigh/tummy/bottom with a nasty needle. I love my pump and it wasnt hard to get but it would be damn near impossible for anyone to take it away from me. Steve o fight your corner and insist you need one. |
Jun 23, 2010
Stew B
125 posts
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Topic: General Discussion / Exercise and high BG I tend to exercise after work (late afternoon / early evening) before my evening meal. This is at a time when my lunchtime QA is no longer active. I test 30 - 60 minutes before my run and take on carbs according to my level (as a rough guide for me, 1 mile running requires 1cp). By and large I am then in target when I eat after warm-down. Presumeably my background insulin (Lantus) is adequate to deal with the energy conversion stuff (although I haven't given the mechanics too much thought - it just works for me). I adopted this approach because I can't guarantee that a plan to run after work will come off (work just gets in the way sometimes), so adjusting insulin levels at lunchtime to give me a high reading to run against is risky, because if I then don't run I have a large correction to do.If I exercise when my QA insulin is still active I find life is much more complicated, and even three years after DAFNE I find that I over-compensate to ensure that I don't dip too low during the exercise, which means I end up with a correction to do at my next meal. I exercise for fun, I do the occasional 10k and play squash regularly, and also do quite a lot of cycling. I'm not a serious athlete any more, so this approach works for me on a level where performance isn't crucial. Stew |
Jun 23, 2010
Rachie Wilson
9 posts
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Topic: General Discussion / How good is dafne Hi I have being doing DAFNE now since January this year and I just had my second HBA1c done and it is now 6.2. Since doing DAFNE my HBA1c has come down the the 8's and now seems to be sticking in the 6's. |
Jun 23, 2010
Karl
83 posts
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Topic: Carbohydrate Counting / Toffee bon bons 1/4 Bon Bonshttp://caloriecount.about.com/calories-bassetts-bon-bons-i70402 Wine Gums http://www.ciao.co.uk/Maynards_Wine_Gums__Review_5404422 |
Jun 23, 2010
meltow
78 posts
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Topic: Carbohydrate Counting / Toffee bon bons 1/4 Interesting one!I have taken to a "treat" on Friday evenings on my drive home from work. I buy a quarter of wine gums and have managed to eat the lot just as I park the car up. Needless to say, when I take my BG in front of my evening meal it is in the region of 18 - 20! So I have some adjusting to do....in my case +4 or +5 insulin units. |
Jun 23, 2010
meltow
78 posts
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Topic: General Discussion / How good is dafne First post - here goes!Type 1 diabetes from January 2000; DAFNE in November 2008. For me the most enlightening part of DAFNE was actually being able to put a bit of practical maths behind the amount of Novarapid I took with my meal. Before being educated with DAFNE, I had reasonable control, but looking back, it was luck rather than anything else. Knowing my ratio and how to count carbohydrates within any foods I choose to eat, is a complete revelation, and one which does work for me. Although like anyone, I can sometimes have a snack which doesn't always get accounted for! We are only human.... I had never encountered "adjustment" doses of insulin prior to DAFNE, so again, that is a useful tool to have in my locker. I also felt DAFNE was a complete revision course about the condition, which is no bad thing. Plus I like to be responsible for my own health and well-being so far as I can, and DAFNE has allowed me to do that. So far, so good, and would happily recommend the course to anyone |
Jun 23, 2010
novorapidboi26
1,819 posts
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Topic: General Discussion / Ratio for first insulin of the day I think the ratios refer to resistance levels to insulin at those three or four main times in the day........Mostly everyone is more so in the monrning as the body wants glucose to start off the day..... Stick to the times of day |
Jun 23, 2010
novorapidboi26
1,819 posts
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Topic: General Discussion / Weight wanted I have been diabetic for 11 years and wee brother has been for 24 years.He is stick thin and I am 15 stone (6foot). He eats collosol amounts of food yet does not put on weight, he does not follow the dafne principles and is on 2 jags a day. It really puzzles me. The only time I was skinny, or at a healthy weight, was just before diagnosis and a few years back when I didnt bother with my diabetes (wasting away). So why now when my bloods are good do I retain so much fat, I excercise moderately. Is insulin involved with the production of fat cells? |
Jun 23, 2010
novorapidboi26
1,819 posts
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Topic: General Discussion / Exercise and high BG I have also started some moderate escercise every night.I always new that if your blood was over a certain level, for me 12 is the maximum, then I will not excercise till my blood has came down, this has always ensured that my blood drops instead of risings as the glucose is used from my blood then muscles. And I also beleive that following said rules will ensure that the excercise I am doing is effectvie, in terms of building muscle. If my blood sugar rises, it means your muscles essentially start eating themselves to provide the energy they need as there is no insulin present to open the cell doors to the wating glucose. So that would be pointless. If anyone thinks this is wrong or has any more advice please respond...... |
Jun 23, 2010
novorapidboi26
1,819 posts
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Topic: General Discussion / New Job L McPhillips describing the Dawn Phenomonon.......... |
Jun 23, 2010
novorapidboi26
1,819 posts
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Topic: General Discussion / Eporting Diary XML Code I would quite like to do this so I can email my results to my Nurses.Previously I have made up my own spreadsheets but I really cant be bothered. Does anyone know what to do with the xml code? |
Jun 22, 2010
EMS
15 posts
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Topic: General Discussion / Holidays and Insulin Hi there,I've had type 1 for eight years now. I've never had any big problems with security checks, but i always make sure to put everything into the plastic bag. the only time i've ever been questioned was on a recent trip to new york (extra security checks before getting on the plane) and, although i didn't have the doctor's letter, my explaination was accepted without too much trouble. as to temperature issues, i wouldn't worry too much; we take a couple of sun holidays every year and it's never occured to me to get a cold bag for travelling, so far i haven't noticed any problems keeping the insulin in my beach bag or in the hotel room. Enjoy your holiday! Elli |
Jun 22, 2010
Anil
39 posts
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Topic: General Discussion / Calling all budding artists! Hi Simon,I can edit the size as you wish, but any ideas of the dimension you want it to be? (In pixels). If you give us approx dimensions of how big you want it, I will scale them down accordingly. also, I will have to check this, but i suspect the Logo will not contrast well with the navigation bar at the top, is the navigation bar background a repeated image? Looking at the source code I cant tell, but maybe I could create a repeat image to place in the background of the navigation bar to contrast better with the Logo. I'll also include a Favi-icon (For bookmarking) and anything else you need, just let us know. A little busy at the moment, but i'll work on this ASAP, hopefully within the next few days. Thanks |
Jun 22, 2010
Simon
578 posts
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Topic: General Discussion / Calling all budding artists! Hi Anil,Great work - these look really good, I especially like the last one you did (Redesign 3). Do you think there could be a smaller version (say half the height, same width) that we could use in the top navigation bar? Cheers, Simon |
Jun 22, 2010
Simon
578 posts
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Topic: General Discussion / Chinese Takeaway. Hi Oldtulip, as the guys have already mentioned - your diary is a bit off as you seem to have the incorrect times. When inputting your diary entries the idea is to use the time that you took your BG/Insulin/CPs rather than the time you are recording the results. This will give you a better view of trends during the day, and possibly allow others to help you spot the trends too.Simon |
Jun 22, 2010
novorapidboi26
1,819 posts
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Topic: General Discussion / Insulin Pens Hi kestle,It sound to me that your memory might be a bit shaky.......... The way DAFNE works to me is you inject anytime you have a meal or large snack, this means ideally five minutes before this meal or snack. I think you might need to be a bit more vigilant with your injecting. On the other hand there is a pen available, dont know about Australia though, that actually records your last injection time and amounts and displays them to you on a digital display. Its called the Humapen Memoir (Memoir referring to the ability to stor info in its memory). http://medgadget.com/archives/2007/02/huma-pen_memoir.html This is the first document on google......... Maybe you can investigate and see if something similar is availoable were you are... Good Luck |
Jun 22, 2010
kestle
3 posts
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Topic: General Discussion / Insulin Pens Hi AllIf there is one thing that irks me with the insulin pens is that there is no real way to tell weather or not you have taken your insulin just by looking at it and btw i dont suffer from short term memory loss. IN my experience the only real bad hypos ive had stem from me doubling up on my insulin dose, this doesnt happen very often but often enough that its a worry. To my way of thinking surely the development gurus could work on a pen that would indicate when its been used, maybe by some kind of color code. I would be interested to hear if anyone else has experienced any problems in this are or its just me lol. It would also be helpful to hear from anyone who knows if there is any work being done in this area |
Jun 21, 2010
Karl
83 posts
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Topic: General Discussion / Chinese Takeaway. as for the chinese - if you always go hypo - there is probably not as much CP's as you think. Reduce your QA next time and keep testing and learning :-) |