Recent Posts - DAFNE Online

Nov 16, 2010

MelissaF 56 posts

Topic: Questions for HCPs / Levemir issues

Hi,

Thanks for your post. I've looked back over the Lantus results that I've kept before starting on the Levemir (only about a week's worth unfortunately) and I'm not sure that I did have a problen with the length of time that it was working for. My evening results were more or less fine and those would have been the ones affected wouldn't they (I took the Lantus dose before bed)? Can anyone else advise?

I just find the split dose really hard to manage and it just doesn't seem to be working for me. I've been on it for 5 months now and it's not getting any better. In fact, in most ways, it's getting worse. How long have you been using it for? How did you find out that Lantus was only working for 16 hours? Was it messing up your readings at the end of the 24 hour period?

When you say irregular patterns? Can you tell me more about that? I find that, even applying DAFNE principles, my results are really unpredictable and often don't seem to make any sense so it is hard to find patterns to alter doses.

Have you been given any useful advice by your DAFNE team?

I'm stressed by it all because I'm trying to regulate my control to try for another baby and I can't get it good enough. It's taking so long. My instinct just tells me to go back to Lantus again.

Nov 16, 2010

grandma carol 61 posts

Topic: General Discussion / help please

yes thsnk you the DAFNE educator told me to drop my BI is I was low in the morning. I have been doing that but there is never 2 or 3 days the same. Now today agen I have had 3 days at 17 and this morning my BGs were 3.3 on getting up. AT 8.45 last night 11.8 at 10.0013 and at 12.0 14.9 then at 4.30 6.8 so Idont know if I should drop it agen. I dident have anything to eat before bed I han had a hypo at 16.00 BGwere 2.7 so had a orange drink On the dat I had2.5 CPs befoer bed I dident have any QAs because I had had the hypo the day before when I had had QAs with the CPS I had had and dident want to hypo agen at the time I just could not get my head round it to have extra QAs at bed time think I might be getting there with it hope my bloods dont go up agen. So I think I have to drop it agen to night.

Nov 16, 2010

JayBee 587 posts

Topic: Questions for HCPs / Levemir issues

I'd might as well post considering I'm going through the same - or at least similar issues - with levemir.

I was originally on Lantus and for quite a long time I had no idea that Lantus was only working about 16 hours for me. It was thanks to DAFNE that I was able to identify this at all.... so whatever way I look at it, I'm going to be having a split dose for my BI.

After a lot of hassle with Lantus after that discovery, I moved over to Levemir which is designed to be a split dose insulin. I was so enthusiastic about it because I thought it wouldn't take me long to get my doses on track.

Unfortunately it hasn't been a quick process. Even now, I'm still working it all out - especially when the exercise or the time of the month messes it all up. The irregular patterns dominate my control as well - but I'm not going to give up.

Nov 16, 2010

JayBee 587 posts

Topic: Questions for HCPs / BGL's prior to menstration

My menstrual cycle does affect my sugar levels from what I can tell, and in fact, I was thinking about posting something about it here so well done for doing so first. For the record, I'm a 25 year old female.

Considering even a year or so after doing DAFNE, I still don't understand what my body does during that time because it seems to shift.

When I spoke to my DAFNE nurse, she made it quite clear that often it usually make your sugar levels rise however you have to also remember that it varies from woman to woman on how you need to respond to it. I wouldn't be surprised if it changes each month as well considering I've yet to see what I'm supposed to do for mine. This is why there are no set guidelines about in on DAFNE - you need to learn about your body while on DAFNE, and this is just a big part for a woman about learning about herself when it comes to her sugar level control.

Just out of interest, have you noticed when the highs start karaway? I think it's about a week and a day roughly before the physical stuff starts for the cycle for me... so this is often before I've even stopped taking my pill. I've also known at least one diabetic who's erm, "lucky" enough to get breast tenderness before her highs hit, so she takes that as a signal to put her insulin up.... I sometimes wish I had a signal like that(!). XD

My DAFNE nurse felt it would it would be best to keep adjusting at each meal to help me work out how much BI I would need to put it up by once I'd gone through the week. However, this was before my last one and surprise surprise, the patterns were not clear for the whole week. Very annoying. Sad

Nov 16, 2010

karaway 7 posts

Topic: Questions for HCPs / Hypo - rebound

Alan, the liver does shoot out stored glucose but once the body recognises that your blood sugar levels are back within a normal range the liver will reabsorb that glucose. If you correct, you will be correcting for glucose that will be reabsorbed and then you will be hypo again. I hope that makes sense

Nov 15, 2010

Simon 578 posts

Topic: General Discussion / Abusive posting will not be tolerated

Earlier today somebody registered on the site and proceeded to write extremely abusive messages on the forums. This was a real person, and not a result of a breach of security in DAFNE Online. Unfortunately it is difficult to stop these, as anybody is free to register on the site.

That said, abuse of any nature on the forums or message threads is not tolerated and their user accounts were deleted straight away.

The computer that was used to post these messages has been identified using their unique Internet Address (IP) and we are currently following this up.

If you do see any abusive messages on the forums, please report them to us straight away by emailing [email protected].

Simon

Nov 15, 2010

marke 686 posts

Topic: General Discussion / help please

hi , the DAFNE handbook says here that its 1CP that you should not take QA for. I'm not suggesting that it caused you a problem, I just noticed it and wondered why. Your DAFNE Educator should NOT be telling you to reduce your BI without seeing your BG readings over a number of days and then they should help you work out how to reduce it not just tell you to reduce it without any detail.....

Nov 15, 2010

grandma carol 61 posts

Topic: General Discussion / help please

sorry forgot to say about the CPs before bed I was told not to give QA if CP was under 2 did have 3 one night so had 3QA and BGs at 3.20 were 3.7 they were 7.6 at 10.00 when I had the 3 CP and 3 QA so I get a but bothered now about having any dont want to go hypo through night. Sorry if this is a bit vague but my head is all over the place with all this SORRY

Nov 15, 2010

grandma carol 61 posts

Topic: General Discussion / help please

I was on 20 of BI before I went on DAFNE and they told me to drop it to 14 but then my BGs were high all the time in the 18.0 16.0 and I was unwell went to see the Doctor and she told me to put it back up so Idid the DAFNE educator then told me to put it back down I left it at 18 then had the 3.9 so put it down to 17 I will leave it like that to see if its ok. This is what I carnt get my head round I did not have bad controal before this carb counting I did have a few hypos but nothing like I am now and I was never high. Everybody says look for a patton but i dont have one. I am going to get a blood moniter on soon to see what is happening THANK YOU

Nov 15, 2010

marke 686 posts

Topic: General Discussion / help please

Hi, on what basis were you told to reduce your BI ? Did your DAFNE nurse see the results you have show us ? Novarapidboi is correct any change in BI should be given a few days to take effect. If you keep changing up and down on alternate days you won't see the real results.
There was only one day (09/11) when you were low in the morning, the rest of the time your BG's seem pretty steady overnight.
I notice that a couple of evenings you had CP's before bed but no QA, is there a reason for this ?

Nov 15, 2010

grandma carol 61 posts

Topic: General Discussion / help please

thanks vic what gets me is that my controle was not to bad before I did DAFNE and now with trying to do what they told me I am everyware and noware. Everone says how good this DAFNE IS but not for me I just want to get back to what I was before but they keep telling me to keep at it and things will be fine. But this has gone on since September now and I am just getting a bit confused with it all. Thanks for your input and its good to talk to others THANKS

Nov 15, 2010

vic demain 87 posts

Topic: General Discussion / help please

Carol,
I have very similar experiences, complete days of low readings followed by days of high reading and the odd all over the place day.
Like you, I take one hit of Lantus before bed. Never associated this with the problem but perhaps it could be.
Hope you get some answers as it is a nightmare doing all you have been taught is right only to get results which are either blue or red.
Good luck.
Vic.

Nov 15, 2010

MelissaF 56 posts

Topic: Questions for HCPs / Levemir issues

Thanks Marke - that makes sense. I'll try and get that code.

Nov 15, 2010

marke 686 posts

Topic: Questions for HCPs / Levemir issues

Hi Melissa, to get access to the handbook you need to be registered as a graduate. Your DAFNE Centre should be able to give you a code for this and then you just enter it in the settings on the menu bar at the top. If you cannot get a code from your DAFNE Centre then we can get DAFNE Central to verify you as a graduate and then we can change your account to be a graduate. This is necessary because DAFNE Central don't want non-graduates accessing the course handbook and trying a DIY DAFNE Course of their own.....

Nov 15, 2010

grandma carol 61 posts

Topic: General Discussion / help please

yes and my BGs stayed at 5.0 5.7 5.3 in that range from 4.30 untill 9.30 and that is when Iwas on 19BI but they are still telling me to drop it. I am going to get a blood monitor put on for a week when it is free to see how bloods are going every 10mins . Thank you

Nov 15, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / help please

Have you tried carb free meals......

Nov 15, 2010

MelissaF 56 posts

Topic: Questions for HCPs / Levemir issues

My DM team recommend staying with the Levemir but it's been 5 months now and I'm still not getting the results that I want. I'm not sure that I need so much flexibility - I'd settle for stability!

Nov 15, 2010

grandma carol 61 posts

Topic: General Discussion / help please

thanks for your reply I think I am doing it right but have just had a test and its 2.7 at 4.00 so had to do aorange juce now. to day i had toast 4 cp at 1.5 to 1 unit so had at breakfast 6+2 BG10.4 and at 12.00 had 4.5 CPs at 2-1 so had 9QA and BGs 4.8 and have just had hypo at 4.00 BGs 2.7 this is driving me mad

Nov 15, 2010

MelissaF 56 posts

Topic: Questions for HCPs / Levemir issues

Hi,

I see what you're saying - I will try to have breakfast as soon as possible and make corrective doses at the same time.

In an ideal world I would rather wake up with a good BG reading and not have to correct as it worries me waking with such high readings.

I will check back to my diaries when I was on Lantus. If my evening readings were in target then does that mean that the Lantus was lasting OK for me (I took it before bed)?

I can't seem to access the "Graduate" section with the handbook link. Is there something that I need to do first?

Nov 15, 2010

diet_79 8 posts

Topic: Questions for HCPs / Levemir issues

Levemir can give you more flexibilty, particulary adjusting for exercise. It takes longer to see chnges in bg levels when adjusting Lantus.

BI needs to suit your needs , would discuss it with your DM team.

Nov 15, 2010

diet_79 8 posts

Topic: Questions for HCPs / Levemir issues

I can understand you are concerned about high morning bg levels. Trying looking for patterns , if you find that you are always needing a corrective dose QA before breakfast BI and rations may to be changed. I would suggest only to give corrective dose at Breakfast if you are unable to have CPs, otherwise use your B//fast ration and correct.
If you are correcting every morning bedtime ration or BI should be adjusted. Hope this helps.

For some Lantus does not last for 24hrs, taking Levelmir bd ensures you have 24hr cover, ideally taken 12hrs apart.

Nov 15, 2010

MelissaF 56 posts

Topic: Questions for HCPs / Levemir issues

So do you think that, so long as Lantus spanned the 24 hours OK for me then there wouldn't be any advantage using Levemir instead? My DAFNE educator told me that it gave me more flexibility which I guess it does as you have two different doses to play with but I just find that makes things more complicated.

I will check the handbook - thanks for the tip.

Nov 15, 2010

novorapidboi26 1,819 posts

Topic: Questions for HCPs / Levemir issues

I am acutally on Humilin I now, trying to tackle dawn phenomonon, but if it wasnt that it would be levemir as lantus does not last 24 hours in me.

The exact time it runs out (levemir) is different in everyone, think it 12-18 hours.

You can check the handbook on here, click on insulin when your in and it shows you the action graphs

Nov 16, 2010 MelissaF 56 posts	Topic: Questions for HCPs / Levemir issues Hi, Thanks for your post. I've looked back over the Lantus results that I've kept before starting on the Levemir (only about a week's worth unfortunately) and I'm not sure that I did have a problen with the length of time that it was working for. My evening results were more or less fine and those would have been the ones affected wouldn't they (I took the Lantus dose before bed)? Can anyone else advise? I just find the split dose really hard to manage and it just doesn't seem to be working for me. I've been on it for 5 months now and it's not getting any better. In fact, in most ways, it's getting worse. How long have you been using it for? How did you find out that Lantus was only working for 16 hours? Was it messing up your readings at the end of the 24 hour period? When you say irregular patterns? Can you tell me more about that? I find that, even applying DAFNE principles, my results are really unpredictable and often don't seem to make any sense so it is hard to find patterns to alter doses. Have you been given any useful advice by your DAFNE team? I'm stressed by it all because I'm trying to regulate my control to try for another baby and I can't get it good enough. It's taking so long. My instinct just tells me to go back to Lantus again.

Nov 16, 2010 grandma carol 61 posts	Topic: General Discussion / help please yes thsnk you the DAFNE educator told me to drop my BI is I was low in the morning. I have been doing that but there is never 2 or 3 days the same. Now today agen I have had 3 days at 17 and this morning my BGs were 3.3 on getting up. AT 8.45 last night 11.8 at 10.0013 and at 12.0 14.9 then at 4.30 6.8 so Idont know if I should drop it agen. I dident have anything to eat before bed I han had a hypo at 16.00 BGwere 2.7 so had a orange drink On the dat I had2.5 CPs befoer bed I dident have any QAs because I had had the hypo the day before when I had had QAs with the CPS I had had and dident want to hypo agen at the time I just could not get my head round it to have extra QAs at bed time think I might be getting there with it hope my bloods dont go up agen. So I think I have to drop it agen to night.

Nov 16, 2010 JayBee 587 posts	Topic: Questions for HCPs / Levemir issues I'd might as well post considering I'm going through the same - or at least similar issues - with levemir. I was originally on Lantus and for quite a long time I had no idea that Lantus was only working about 16 hours for me. It was thanks to DAFNE that I was able to identify this at all.... so whatever way I look at it, I'm going to be having a split dose for my BI. After a lot of hassle with Lantus after that discovery, I moved over to Levemir which is designed to be a split dose insulin. I was so enthusiastic about it because I thought it wouldn't take me long to get my doses on track. Unfortunately it hasn't been a quick process. Even now, I'm still working it all out - especially when the exercise or the time of the month messes it all up. The irregular patterns dominate my control as well - but I'm not going to give up.

Nov 16, 2010 JayBee 587 posts	Topic: Questions for HCPs / BGL's prior to menstration My menstrual cycle does affect my sugar levels from what I can tell, and in fact, I was thinking about posting something about it here so well done for doing so first. For the record, I'm a 25 year old female. Considering even a year or so after doing DAFNE, I still don't understand what my body does during that time because it seems to shift. When I spoke to my DAFNE nurse, she made it quite clear that often it usually make your sugar levels rise however you have to also remember that it varies from woman to woman on how you need to respond to it. I wouldn't be surprised if it changes each month as well considering I've yet to see what I'm supposed to do for mine. This is why there are no set guidelines about in on DAFNE - you need to learn about your body while on DAFNE, and this is just a big part for a woman about learning about herself when it comes to her sugar level control. Just out of interest, have you noticed when the highs start karaway? I think it's about a week and a day roughly before the physical stuff starts for the cycle for me... so this is often before I've even stopped taking my pill. I've also known at least one diabetic who's erm, "lucky" enough to get breast tenderness before her highs hit, so she takes that as a signal to put her insulin up.... I sometimes wish I had a signal like that(!). XD My DAFNE nurse felt it would it would be best to keep adjusting at each meal to help me work out how much BI I would need to put it up by once I'd gone through the week. However, this was before my last one and surprise surprise, the patterns were not clear for the whole week. Very annoying.

Nov 16, 2010 karaway 7 posts	Topic: Questions for HCPs / Hypo - rebound Alan, the liver does shoot out stored glucose but once the body recognises that your blood sugar levels are back within a normal range the liver will reabsorb that glucose. If you correct, you will be correcting for glucose that will be reabsorbed and then you will be hypo again. I hope that makes sense

Nov 15, 2010 Simon 578 posts	Topic: General Discussion / Abusive posting will not be tolerated Earlier today somebody registered on the site and proceeded to write extremely abusive messages on the forums. This was a real person, and not a result of a breach of security in DAFNE Online. Unfortunately it is difficult to stop these, as anybody is free to register on the site. That said, abuse of any nature on the forums or message threads is not tolerated and their user accounts were deleted straight away. The computer that was used to post these messages has been identified using their unique Internet Address (IP) and we are currently following this up. If you do see any abusive messages on the forums, please report them to us straight away by emailing [email protected]. Simon

Nov 15, 2010 marke 686 posts	Topic: General Discussion / help please hi , the DAFNE handbook says here that its 1CP that you should not take QA for. I'm not suggesting that it caused you a problem, I just noticed it and wondered why. Your DAFNE Educator should NOT be telling you to reduce your BI without seeing your BG readings over a number of days and then they should help you work out how to reduce it not just tell you to reduce it without any detail.....

Nov 15, 2010 grandma carol 61 posts	Topic: General Discussion / help please sorry forgot to say about the CPs before bed I was told not to give QA if CP was under 2 did have 3 one night so had 3QA and BGs at 3.20 were 3.7 they were 7.6 at 10.00 when I had the 3 CP and 3 QA so I get a but bothered now about having any dont want to go hypo through night. Sorry if this is a bit vague but my head is all over the place with all this SORRY

Nov 15, 2010 grandma carol 61 posts	Topic: General Discussion / help please I was on 20 of BI before I went on DAFNE and they told me to drop it to 14 but then my BGs were high all the time in the 18.0 16.0 and I was unwell went to see the Doctor and she told me to put it back up so Idid the DAFNE educator then told me to put it back down I left it at 18 then had the 3.9 so put it down to 17 I will leave it like that to see if its ok. This is what I carnt get my head round I did not have bad controal before this carb counting I did have a few hypos but nothing like I am now and I was never high. Everybody says look for a patton but i dont have one. I am going to get a blood moniter on soon to see what is happening THANK YOU

Nov 15, 2010 marke 686 posts	Topic: General Discussion / help please Hi, on what basis were you told to reduce your BI ? Did your DAFNE nurse see the results you have show us ? Novarapidboi is correct any change in BI should be given a few days to take effect. If you keep changing up and down on alternate days you won't see the real results. There was only one day (09/11) when you were low in the morning, the rest of the time your BG's seem pretty steady overnight. I notice that a couple of evenings you had CP's before bed but no QA, is there a reason for this ?

Nov 15, 2010 grandma carol 61 posts	Topic: General Discussion / help please thanks vic what gets me is that my controle was not to bad before I did DAFNE and now with trying to do what they told me I am everyware and noware. Everone says how good this DAFNE IS but not for me I just want to get back to what I was before but they keep telling me to keep at it and things will be fine. But this has gone on since September now and I am just getting a bit confused with it all. Thanks for your input and its good to talk to others THANKS

Nov 15, 2010 vic demain 87 posts	Topic: General Discussion / help please Carol, I have very similar experiences, complete days of low readings followed by days of high reading and the odd all over the place day. Like you, I take one hit of Lantus before bed. Never associated this with the problem but perhaps it could be. Hope you get some answers as it is a nightmare doing all you have been taught is right only to get results which are either blue or red. Good luck. Vic.

Nov 15, 2010 MelissaF 56 posts	Topic: Questions for HCPs / Levemir issues Thanks Marke - that makes sense. I'll try and get that code.

Nov 15, 2010 marke 686 posts	Topic: Questions for HCPs / Levemir issues Hi Melissa, to get access to the handbook you need to be registered as a graduate. Your DAFNE Centre should be able to give you a code for this and then you just enter it in the settings on the menu bar at the top. If you cannot get a code from your DAFNE Centre then we can get DAFNE Central to verify you as a graduate and then we can change your account to be a graduate. This is necessary because DAFNE Central don't want non-graduates accessing the course handbook and trying a DIY DAFNE Course of their own.....

Nov 15, 2010 grandma carol 61 posts	Topic: General Discussion / help please yes and my BGs stayed at 5.0 5.7 5.3 in that range from 4.30 untill 9.30 and that is when Iwas on 19BI but they are still telling me to drop it. I am going to get a blood monitor put on for a week when it is free to see how bloods are going every 10mins . Thank you

Nov 15, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / help please Have you tried carb free meals......

Nov 15, 2010 MelissaF 56 posts	Topic: Questions for HCPs / Levemir issues My DM team recommend staying with the Levemir but it's been 5 months now and I'm still not getting the results that I want. I'm not sure that I need so much flexibility - I'd settle for stability!

Nov 15, 2010 grandma carol 61 posts	Topic: General Discussion / help please thanks for your reply I think I am doing it right but have just had a test and its 2.7 at 4.00 so had to do aorange juce now. to day i had toast 4 cp at 1.5 to 1 unit so had at breakfast 6+2 BG10.4 and at 12.00 had 4.5 CPs at 2-1 so had 9QA and BGs 4.8 and have just had hypo at 4.00 BGs 2.7 this is driving me mad

Nov 15, 2010 MelissaF 56 posts	Topic: Questions for HCPs / Levemir issues Hi, I see what you're saying - I will try to have breakfast as soon as possible and make corrective doses at the same time. In an ideal world I would rather wake up with a good BG reading and not have to correct as it worries me waking with such high readings. I will check back to my diaries when I was on Lantus. If my evening readings were in target then does that mean that the Lantus was lasting OK for me (I took it before bed)? I can't seem to access the "Graduate" section with the handbook link. Is there something that I need to do first?

Nov 15, 2010 diet_79 8 posts	Topic: Questions for HCPs / Levemir issues Levemir can give you more flexibilty, particulary adjusting for exercise. It takes longer to see chnges in bg levels when adjusting Lantus. BI needs to suit your needs , would discuss it with your DM team.

Nov 15, 2010 diet_79 8 posts	Topic: Questions for HCPs / Levemir issues I can understand you are concerned about high morning bg levels. Trying looking for patterns , if you find that you are always needing a corrective dose QA before breakfast BI and rations may to be changed. I would suggest only to give corrective dose at Breakfast if you are unable to have CPs, otherwise use your B//fast ration and correct. If you are correcting every morning bedtime ration or BI should be adjusted. Hope this helps. For some Lantus does not last for 24hrs, taking Levelmir bd ensures you have 24hr cover, ideally taken 12hrs apart.

Nov 15, 2010 MelissaF 56 posts	Topic: Questions for HCPs / Levemir issues So do you think that, so long as Lantus spanned the 24 hours OK for me then there wouldn't be any advantage using Levemir instead? My DAFNE educator told me that it gave me more flexibility which I guess it does as you have two different doses to play with but I just find that makes things more complicated. I will check the handbook - thanks for the tip.

Nov 15, 2010 novorapidboi26 1,819 posts	Topic: Questions for HCPs / Levemir issues I am acutally on Humilin I now, trying to tackle dawn phenomonon, but if it wasnt that it would be levemir as lantus does not last 24 hours in me. The exact time it runs out (levemir) is different in everyone, think it 12-18 hours. You can check the handbook on here, click on insulin when your in and it shows you the action graphs