Recent Posts - DAFNE Online

Nov 16, 2010

Karl 83 posts

Topic: Questions for HCPs / Help with BI

Hi

No pattern needed to drop it if you had a Hypo - especially if you came from 14.9 24:00 to 3.3 7:45 without an QA!

Nov 16, 2010

grandma carol 61 posts

Topic: Questions for HCPs / Help with BI

As my BGs have been upsince 14.30 today 8.3 and 16.00 10.9 and now at 17.00 11.6 before dinner do I still need to drop BI to night as I was 3.3 at 7.45 this morning and I was told to drop BI if I had a hypo thank you. I take BI Lantus at 20.45 thanks. I had droped it on the 13.11.10 as I had 3.9 that morning do I need to do it agen so soon.

Nov 16, 2010

MelissaF 56 posts

Topic: Questions for HCPs / Levemir issues

Sorry, just read your posts again. Does that mean that you've been on Levemir since March 2009 or was that when you did the DAFNE course?

Nov 16, 2010

karaway 7 posts

Topic: Questions for HCPs / BGL's prior to menstration

Thank you everyone so much, I too get the breast tenderness and I have found that this month I have only suffered high BGL's for two days and today I am heading back to normal now that my period has arrived. Again, thanks so much it has really put my mind at ease knowing that when you're a female diabetic you're not always going to have perfect BGL's. As much as that disappoints me!!!!!

Nov 16, 2010

MelissaF 56 posts

Topic: Questions for HCPs / Levemir issues

Hi again,

Thanks for this. Did you find that your highs on the Lantus were mostly in the evenings? Would that tell you that your Lantus was running out (presuming that you used to give your Lantus dose at night)?

I've been reading other information and I've found other people saying that switching to Levemir gave them very unpredictable results, especially first thing in the morning and at night which is exactly the problem that I've been having. It appears that this might be a recognised problem with Levemir but I can't work out why. I'm really heading towards just going back on the Lantus again but I'm trying to get all my information together before I make the decision.

I'm very bad at over-correcting as well. I think that DAFNE may have made that worse with me in a way although in most respects it's been great.

Nov 16, 2010

JayBee 587 posts

Topic: Questions for HCPs / Levemir issues

I will aim to answer fully when Im next at a computer and not at work. Shall post my results even though I have been in contact with my nurse. I ran out of time on my first post so pardon the lack of info. I was on lantus years before I did DAFNE so that is a few years before March 2009. All that time I assumed that Lantus was working 24hrs and the highs were a result of guessworking everything I ate. DAFNE has been a godsend and with all the constant adjusting I used to do in response to any highs, Im amazed Im not dead. That was a hard habit to break. Applying basic DAFNE rules with pattern spotting and actually giving my body a chance to respond - sometimes it can take more than one day (an example already raised is about hypos on this thread - do not correct or you will hypo again - leaue it for 24hrs). We know its frustrating but if you over respond, patterns will be harder to see. Shall post later when Im not on a mobile. XD

Nov 16, 2010

MelissaF 56 posts

Topic: General Discussion / Levemir versus Lantus

Hi,

I've had some useful advice through the HCPs' forum but I was just wondering if anyone could give me any other feedback regarding using Levemir and Lantus for their background insulins. I'm particularly interested to hear from anyone who has switched from one to the other and which they have found to be the most effective?

Many thanks,

Melissa

Nov 16, 2010

MelissaF 56 posts

Topic: Questions for HCPs / Levemir issues

Hi,

Thanks for your post. I've looked back over the Lantus results that I've kept before starting on the Levemir (only about a week's worth unfortunately) and I'm not sure that I did have a problen with the length of time that it was working for. My evening results were more or less fine and those would have been the ones affected wouldn't they (I took the Lantus dose before bed)? Can anyone else advise?

I just find the split dose really hard to manage and it just doesn't seem to be working for me. I've been on it for 5 months now and it's not getting any better. In fact, in most ways, it's getting worse. How long have you been using it for? How did you find out that Lantus was only working for 16 hours? Was it messing up your readings at the end of the 24 hour period?

When you say irregular patterns? Can you tell me more about that? I find that, even applying DAFNE principles, my results are really unpredictable and often don't seem to make any sense so it is hard to find patterns to alter doses.

Have you been given any useful advice by your DAFNE team?

I'm stressed by it all because I'm trying to regulate my control to try for another baby and I can't get it good enough. It's taking so long. My instinct just tells me to go back to Lantus again.

Nov 16, 2010

grandma carol 61 posts

Topic: General Discussion / help please

yes thsnk you the DAFNE educator told me to drop my BI is I was low in the morning. I have been doing that but there is never 2 or 3 days the same. Now today agen I have had 3 days at 17 and this morning my BGs were 3.3 on getting up. AT 8.45 last night 11.8 at 10.0013 and at 12.0 14.9 then at 4.30 6.8 so Idont know if I should drop it agen. I dident have anything to eat before bed I han had a hypo at 16.00 BGwere 2.7 so had a orange drink On the dat I had2.5 CPs befoer bed I dident have any QAs because I had had the hypo the day before when I had had QAs with the CPS I had had and dident want to hypo agen at the time I just could not get my head round it to have extra QAs at bed time think I might be getting there with it hope my bloods dont go up agen. So I think I have to drop it agen to night.

Nov 16, 2010

JayBee 587 posts

Topic: Questions for HCPs / Levemir issues

I'd might as well post considering I'm going through the same - or at least similar issues - with levemir.

I was originally on Lantus and for quite a long time I had no idea that Lantus was only working about 16 hours for me. It was thanks to DAFNE that I was able to identify this at all.... so whatever way I look at it, I'm going to be having a split dose for my BI.

After a lot of hassle with Lantus after that discovery, I moved over to Levemir which is designed to be a split dose insulin. I was so enthusiastic about it because I thought it wouldn't take me long to get my doses on track.

Unfortunately it hasn't been a quick process. Even now, I'm still working it all out - especially when the exercise or the time of the month messes it all up. The irregular patterns dominate my control as well - but I'm not going to give up.

Nov 16, 2010

JayBee 587 posts

Topic: Questions for HCPs / BGL's prior to menstration

My menstrual cycle does affect my sugar levels from what I can tell, and in fact, I was thinking about posting something about it here so well done for doing so first. For the record, I'm a 25 year old female.

Considering even a year or so after doing DAFNE, I still don't understand what my body does during that time because it seems to shift.

When I spoke to my DAFNE nurse, she made it quite clear that often it usually make your sugar levels rise however you have to also remember that it varies from woman to woman on how you need to respond to it. I wouldn't be surprised if it changes each month as well considering I've yet to see what I'm supposed to do for mine. This is why there are no set guidelines about in on DAFNE - you need to learn about your body while on DAFNE, and this is just a big part for a woman about learning about herself when it comes to her sugar level control.

Just out of interest, have you noticed when the highs start karaway? I think it's about a week and a day roughly before the physical stuff starts for the cycle for me... so this is often before I've even stopped taking my pill. I've also known at least one diabetic who's erm, "lucky" enough to get breast tenderness before her highs hit, so she takes that as a signal to put her insulin up.... I sometimes wish I had a signal like that(!). XD

My DAFNE nurse felt it would it would be best to keep adjusting at each meal to help me work out how much BI I would need to put it up by once I'd gone through the week. However, this was before my last one and surprise surprise, the patterns were not clear for the whole week. Very annoying. Sad

Nov 16, 2010

karaway 7 posts

Topic: Questions for HCPs / Hypo - rebound

Alan, the liver does shoot out stored glucose but once the body recognises that your blood sugar levels are back within a normal range the liver will reabsorb that glucose. If you correct, you will be correcting for glucose that will be reabsorbed and then you will be hypo again. I hope that makes sense

Nov 15, 2010

Simon 578 posts

Topic: General Discussion / Abusive posting will not be tolerated

Earlier today somebody registered on the site and proceeded to write extremely abusive messages on the forums. This was a real person, and not a result of a breach of security in DAFNE Online. Unfortunately it is difficult to stop these, as anybody is free to register on the site.

That said, abuse of any nature on the forums or message threads is not tolerated and their user accounts were deleted straight away.

The computer that was used to post these messages has been identified using their unique Internet Address (IP) and we are currently following this up.

If you do see any abusive messages on the forums, please report them to us straight away by emailing [email protected].

Simon

Nov 15, 2010

marke 686 posts

Topic: General Discussion / help please

hi , the DAFNE handbook says here that its 1CP that you should not take QA for. I'm not suggesting that it caused you a problem, I just noticed it and wondered why. Your DAFNE Educator should NOT be telling you to reduce your BI without seeing your BG readings over a number of days and then they should help you work out how to reduce it not just tell you to reduce it without any detail.....

Nov 15, 2010

grandma carol 61 posts

Topic: General Discussion / help please

sorry forgot to say about the CPs before bed I was told not to give QA if CP was under 2 did have 3 one night so had 3QA and BGs at 3.20 were 3.7 they were 7.6 at 10.00 when I had the 3 CP and 3 QA so I get a but bothered now about having any dont want to go hypo through night. Sorry if this is a bit vague but my head is all over the place with all this SORRY

Nov 15, 2010

grandma carol 61 posts

Topic: General Discussion / help please

I was on 20 of BI before I went on DAFNE and they told me to drop it to 14 but then my BGs were high all the time in the 18.0 16.0 and I was unwell went to see the Doctor and she told me to put it back up so Idid the DAFNE educator then told me to put it back down I left it at 18 then had the 3.9 so put it down to 17 I will leave it like that to see if its ok. This is what I carnt get my head round I did not have bad controal before this carb counting I did have a few hypos but nothing like I am now and I was never high. Everybody says look for a patton but i dont have one. I am going to get a blood moniter on soon to see what is happening THANK YOU

Nov 15, 2010

marke 686 posts

Topic: General Discussion / help please

Hi, on what basis were you told to reduce your BI ? Did your DAFNE nurse see the results you have show us ? Novarapidboi is correct any change in BI should be given a few days to take effect. If you keep changing up and down on alternate days you won't see the real results.
There was only one day (09/11) when you were low in the morning, the rest of the time your BG's seem pretty steady overnight.
I notice that a couple of evenings you had CP's before bed but no QA, is there a reason for this ?

Nov 15, 2010

grandma carol 61 posts

Topic: General Discussion / help please

thanks vic what gets me is that my controle was not to bad before I did DAFNE and now with trying to do what they told me I am everyware and noware. Everone says how good this DAFNE IS but not for me I just want to get back to what I was before but they keep telling me to keep at it and things will be fine. But this has gone on since September now and I am just getting a bit confused with it all. Thanks for your input and its good to talk to others THANKS

Nov 15, 2010

vic demain 87 posts

Topic: General Discussion / help please

Carol,
I have very similar experiences, complete days of low readings followed by days of high reading and the odd all over the place day.
Like you, I take one hit of Lantus before bed. Never associated this with the problem but perhaps it could be.
Hope you get some answers as it is a nightmare doing all you have been taught is right only to get results which are either blue or red.
Good luck.
Vic.

Nov 15, 2010

MelissaF 56 posts

Topic: Questions for HCPs / Levemir issues

Thanks Marke - that makes sense. I'll try and get that code.

Nov 15, 2010

marke 686 posts

Topic: Questions for HCPs / Levemir issues

Hi Melissa, to get access to the handbook you need to be registered as a graduate. Your DAFNE Centre should be able to give you a code for this and then you just enter it in the settings on the menu bar at the top. If you cannot get a code from your DAFNE Centre then we can get DAFNE Central to verify you as a graduate and then we can change your account to be a graduate. This is necessary because DAFNE Central don't want non-graduates accessing the course handbook and trying a DIY DAFNE Course of their own.....

Nov 15, 2010

grandma carol 61 posts

Topic: General Discussion / help please

yes and my BGs stayed at 5.0 5.7 5.3 in that range from 4.30 untill 9.30 and that is when Iwas on 19BI but they are still telling me to drop it. I am going to get a blood monitor put on for a week when it is free to see how bloods are going every 10mins . Thank you

Nov 15, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / help please

Have you tried carb free meals......

Nov 16, 2010 Karl 83 posts	Topic: Questions for HCPs / Help with BI Hi No pattern needed to drop it if you had a Hypo - especially if you came from 14.9 24:00 to 3.3 7:45 without an QA!

Nov 16, 2010 grandma carol 61 posts	Topic: Questions for HCPs / Help with BI As my BGs have been upsince 14.30 today 8.3 and 16.00 10.9 and now at 17.00 11.6 before dinner do I still need to drop BI to night as I was 3.3 at 7.45 this morning and I was told to drop BI if I had a hypo thank you. I take BI Lantus at 20.45 thanks. I had droped it on the 13.11.10 as I had 3.9 that morning do I need to do it agen so soon.

Nov 16, 2010 MelissaF 56 posts	Topic: Questions for HCPs / Levemir issues Sorry, just read your posts again. Does that mean that you've been on Levemir since March 2009 or was that when you did the DAFNE course?

Nov 16, 2010 karaway 7 posts	Topic: Questions for HCPs / BGL's prior to menstration Thank you everyone so much, I too get the breast tenderness and I have found that this month I have only suffered high BGL's for two days and today I am heading back to normal now that my period has arrived. Again, thanks so much it has really put my mind at ease knowing that when you're a female diabetic you're not always going to have perfect BGL's. As much as that disappoints me!!!!!

Nov 16, 2010 MelissaF 56 posts	Topic: Questions for HCPs / Levemir issues Hi again, Thanks for this. Did you find that your highs on the Lantus were mostly in the evenings? Would that tell you that your Lantus was running out (presuming that you used to give your Lantus dose at night)? I've been reading other information and I've found other people saying that switching to Levemir gave them very unpredictable results, especially first thing in the morning and at night which is exactly the problem that I've been having. It appears that this might be a recognised problem with Levemir but I can't work out why. I'm really heading towards just going back on the Lantus again but I'm trying to get all my information together before I make the decision. I'm very bad at over-correcting as well. I think that DAFNE may have made that worse with me in a way although in most respects it's been great.

Nov 16, 2010 JayBee 587 posts	Topic: Questions for HCPs / Levemir issues I will aim to answer fully when Im next at a computer and not at work. Shall post my results even though I have been in contact with my nurse. I ran out of time on my first post so pardon the lack of info. I was on lantus years before I did DAFNE so that is a few years before March 2009. All that time I assumed that Lantus was working 24hrs and the highs were a result of guessworking everything I ate. DAFNE has been a godsend and with all the constant adjusting I used to do in response to any highs, Im amazed Im not dead. That was a hard habit to break. Applying basic DAFNE rules with pattern spotting and actually giving my body a chance to respond - sometimes it can take more than one day (an example already raised is about hypos on this thread - do not correct or you will hypo again - leaue it for 24hrs). We know its frustrating but if you over respond, patterns will be harder to see. Shall post later when Im not on a mobile. XD

Nov 16, 2010 MelissaF 56 posts	Topic: General Discussion / Levemir versus Lantus Hi, I've had some useful advice through the HCPs' forum but I was just wondering if anyone could give me any other feedback regarding using Levemir and Lantus for their background insulins. I'm particularly interested to hear from anyone who has switched from one to the other and which they have found to be the most effective? Many thanks, Melissa

Nov 16, 2010 MelissaF 56 posts	Topic: Questions for HCPs / Levemir issues Hi, Thanks for your post. I've looked back over the Lantus results that I've kept before starting on the Levemir (only about a week's worth unfortunately) and I'm not sure that I did have a problen with the length of time that it was working for. My evening results were more or less fine and those would have been the ones affected wouldn't they (I took the Lantus dose before bed)? Can anyone else advise? I just find the split dose really hard to manage and it just doesn't seem to be working for me. I've been on it for 5 months now and it's not getting any better. In fact, in most ways, it's getting worse. How long have you been using it for? How did you find out that Lantus was only working for 16 hours? Was it messing up your readings at the end of the 24 hour period? When you say irregular patterns? Can you tell me more about that? I find that, even applying DAFNE principles, my results are really unpredictable and often don't seem to make any sense so it is hard to find patterns to alter doses. Have you been given any useful advice by your DAFNE team? I'm stressed by it all because I'm trying to regulate my control to try for another baby and I can't get it good enough. It's taking so long. My instinct just tells me to go back to Lantus again.

Nov 16, 2010 grandma carol 61 posts	Topic: General Discussion / help please yes thsnk you the DAFNE educator told me to drop my BI is I was low in the morning. I have been doing that but there is never 2 or 3 days the same. Now today agen I have had 3 days at 17 and this morning my BGs were 3.3 on getting up. AT 8.45 last night 11.8 at 10.0013 and at 12.0 14.9 then at 4.30 6.8 so Idont know if I should drop it agen. I dident have anything to eat before bed I han had a hypo at 16.00 BGwere 2.7 so had a orange drink On the dat I had2.5 CPs befoer bed I dident have any QAs because I had had the hypo the day before when I had had QAs with the CPS I had had and dident want to hypo agen at the time I just could not get my head round it to have extra QAs at bed time think I might be getting there with it hope my bloods dont go up agen. So I think I have to drop it agen to night.

Nov 16, 2010 JayBee 587 posts	Topic: Questions for HCPs / Levemir issues I'd might as well post considering I'm going through the same - or at least similar issues - with levemir. I was originally on Lantus and for quite a long time I had no idea that Lantus was only working about 16 hours for me. It was thanks to DAFNE that I was able to identify this at all.... so whatever way I look at it, I'm going to be having a split dose for my BI. After a lot of hassle with Lantus after that discovery, I moved over to Levemir which is designed to be a split dose insulin. I was so enthusiastic about it because I thought it wouldn't take me long to get my doses on track. Unfortunately it hasn't been a quick process. Even now, I'm still working it all out - especially when the exercise or the time of the month messes it all up. The irregular patterns dominate my control as well - but I'm not going to give up.

Nov 16, 2010 JayBee 587 posts	Topic: Questions for HCPs / BGL's prior to menstration My menstrual cycle does affect my sugar levels from what I can tell, and in fact, I was thinking about posting something about it here so well done for doing so first. For the record, I'm a 25 year old female. Considering even a year or so after doing DAFNE, I still don't understand what my body does during that time because it seems to shift. When I spoke to my DAFNE nurse, she made it quite clear that often it usually make your sugar levels rise however you have to also remember that it varies from woman to woman on how you need to respond to it. I wouldn't be surprised if it changes each month as well considering I've yet to see what I'm supposed to do for mine. This is why there are no set guidelines about in on DAFNE - you need to learn about your body while on DAFNE, and this is just a big part for a woman about learning about herself when it comes to her sugar level control. Just out of interest, have you noticed when the highs start karaway? I think it's about a week and a day roughly before the physical stuff starts for the cycle for me... so this is often before I've even stopped taking my pill. I've also known at least one diabetic who's erm, "lucky" enough to get breast tenderness before her highs hit, so she takes that as a signal to put her insulin up.... I sometimes wish I had a signal like that(!). XD My DAFNE nurse felt it would it would be best to keep adjusting at each meal to help me work out how much BI I would need to put it up by once I'd gone through the week. However, this was before my last one and surprise surprise, the patterns were not clear for the whole week. Very annoying.

Nov 16, 2010 karaway 7 posts	Topic: Questions for HCPs / Hypo - rebound Alan, the liver does shoot out stored glucose but once the body recognises that your blood sugar levels are back within a normal range the liver will reabsorb that glucose. If you correct, you will be correcting for glucose that will be reabsorbed and then you will be hypo again. I hope that makes sense

Nov 15, 2010 Simon 578 posts	Topic: General Discussion / Abusive posting will not be tolerated Earlier today somebody registered on the site and proceeded to write extremely abusive messages on the forums. This was a real person, and not a result of a breach of security in DAFNE Online. Unfortunately it is difficult to stop these, as anybody is free to register on the site. That said, abuse of any nature on the forums or message threads is not tolerated and their user accounts were deleted straight away. The computer that was used to post these messages has been identified using their unique Internet Address (IP) and we are currently following this up. If you do see any abusive messages on the forums, please report them to us straight away by emailing [email protected]. Simon

Nov 15, 2010 marke 686 posts	Topic: General Discussion / help please hi , the DAFNE handbook says here that its 1CP that you should not take QA for. I'm not suggesting that it caused you a problem, I just noticed it and wondered why. Your DAFNE Educator should NOT be telling you to reduce your BI without seeing your BG readings over a number of days and then they should help you work out how to reduce it not just tell you to reduce it without any detail.....

Nov 15, 2010 grandma carol 61 posts	Topic: General Discussion / help please sorry forgot to say about the CPs before bed I was told not to give QA if CP was under 2 did have 3 one night so had 3QA and BGs at 3.20 were 3.7 they were 7.6 at 10.00 when I had the 3 CP and 3 QA so I get a but bothered now about having any dont want to go hypo through night. Sorry if this is a bit vague but my head is all over the place with all this SORRY

Nov 15, 2010 grandma carol 61 posts	Topic: General Discussion / help please I was on 20 of BI before I went on DAFNE and they told me to drop it to 14 but then my BGs were high all the time in the 18.0 16.0 and I was unwell went to see the Doctor and she told me to put it back up so Idid the DAFNE educator then told me to put it back down I left it at 18 then had the 3.9 so put it down to 17 I will leave it like that to see if its ok. This is what I carnt get my head round I did not have bad controal before this carb counting I did have a few hypos but nothing like I am now and I was never high. Everybody says look for a patton but i dont have one. I am going to get a blood moniter on soon to see what is happening THANK YOU

Nov 15, 2010 marke 686 posts	Topic: General Discussion / help please Hi, on what basis were you told to reduce your BI ? Did your DAFNE nurse see the results you have show us ? Novarapidboi is correct any change in BI should be given a few days to take effect. If you keep changing up and down on alternate days you won't see the real results. There was only one day (09/11) when you were low in the morning, the rest of the time your BG's seem pretty steady overnight. I notice that a couple of evenings you had CP's before bed but no QA, is there a reason for this ?

Nov 15, 2010 grandma carol 61 posts	Topic: General Discussion / help please thanks vic what gets me is that my controle was not to bad before I did DAFNE and now with trying to do what they told me I am everyware and noware. Everone says how good this DAFNE IS but not for me I just want to get back to what I was before but they keep telling me to keep at it and things will be fine. But this has gone on since September now and I am just getting a bit confused with it all. Thanks for your input and its good to talk to others THANKS

Nov 15, 2010 vic demain 87 posts	Topic: General Discussion / help please Carol, I have very similar experiences, complete days of low readings followed by days of high reading and the odd all over the place day. Like you, I take one hit of Lantus before bed. Never associated this with the problem but perhaps it could be. Hope you get some answers as it is a nightmare doing all you have been taught is right only to get results which are either blue or red. Good luck. Vic.

Nov 15, 2010 MelissaF 56 posts	Topic: Questions for HCPs / Levemir issues Thanks Marke - that makes sense. I'll try and get that code.

Nov 15, 2010 marke 686 posts	Topic: Questions for HCPs / Levemir issues Hi Melissa, to get access to the handbook you need to be registered as a graduate. Your DAFNE Centre should be able to give you a code for this and then you just enter it in the settings on the menu bar at the top. If you cannot get a code from your DAFNE Centre then we can get DAFNE Central to verify you as a graduate and then we can change your account to be a graduate. This is necessary because DAFNE Central don't want non-graduates accessing the course handbook and trying a DIY DAFNE Course of their own.....

Nov 15, 2010 grandma carol 61 posts	Topic: General Discussion / help please yes and my BGs stayed at 5.0 5.7 5.3 in that range from 4.30 untill 9.30 and that is when Iwas on 19BI but they are still telling me to drop it. I am going to get a blood monitor put on for a week when it is free to see how bloods are going every 10mins . Thank you

Nov 15, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / help please Have you tried carb free meals......