help please

15 posts, 5 contributors

Search the DAFNE Online Forums

 
grandma carol DAFNE Graduate
North Cumbria Integrated Care NHS Foundation Trust
61 posts
[Shared diary only visible when logged in]

I was told to drop BI agen by DAFNE nurse as I was still geting low in the mornings I had put BI back up because I had high reading all the time and was realy unwell. SO I have droped it agen and up they are going anybody got any idears what to do thanks

novorapidboi26 DAFNE Graduate
NHS Lanarkshire
1,819 posts

Hey,

Your results seem all over the place, some morning you hold steady, or, not hold steady , but wake up roughly as you went to sleep.

I am tempted to say either try your background dose in the morning, to see th effects and maybe also to split the dose to see if its a coverage issue. On one injection so assuming Lantus which takes 2-3 days to see any effect of dose change. You have been changing the dose by the day, you cant do that, you need to change and observe for a few days, thats if its Lantus.

The problem is it works some days and doesnt other.

How would you say your carb counting skills are......could you give an example of one of the meals displayed...I hope that doesnt sound cheecky.

grandma carol DAFNE Graduate
North Cumbria Integrated Care NHS Foundation Trust
61 posts

thanks for your reply I think I am doing it right but have just had a test and its 2.7 at 4.00 so had to do aorange juce now. to day i had toast 4 cp at 1.5 to 1 unit so had at breakfast 6+2 BG10.4 and at 12.00 had 4.5 CPs at 2-1 so had 9QA and BGs 4.8 and have just had hypo at 4.00 BGs 2.7 this is driving me mad

novorapidboi26 DAFNE Graduate
NHS Lanarkshire
1,819 posts

Have you tried carb free meals......

grandma carol DAFNE Graduate
North Cumbria Integrated Care NHS Foundation Trust
61 posts

yes and my BGs stayed at 5.0 5.7 5.3 in that range from 4.30 untill 9.30 and that is when Iwas on 19BI but they are still telling me to drop it. I am going to get a blood monitor put on for a week when it is free to see how bloods are going every 10mins . Thank you

vic demain DAFNE Graduate
Hillingdon Hospital NHS Trust
87 posts

Carol,
I have very similar experiences, complete days of low readings followed by days of high reading and the odd all over the place day.
Like you, I take one hit of Lantus before bed. Never associated this with the problem but perhaps it could be.
Hope you get some answers as it is a nightmare doing all you have been taught is right only to get results which are either blue or red.
Good luck.
Vic.

grandma carol DAFNE Graduate
North Cumbria Integrated Care NHS Foundation Trust
61 posts

thanks vic what gets me is that my controle was not to bad before I did DAFNE and now with trying to do what they told me I am everyware and noware. Everone says how good this DAFNE IS but not for me I just want to get back to what I was before but they keep telling me to keep at it and things will be fine. But this has gone on since September now and I am just getting a bit confused with it all. Thanks for your input and its good to talk to others THANKS

marke Site Administrator
South East Kent PCT
681 posts

Hi, on what basis were you told to reduce your BI ? Did your DAFNE nurse see the results you have show us ? Novarapidboi is correct any change in BI should be given a few days to take effect. If you keep changing up and down on alternate days you won't see the real results.
There was only one day (09/11) when you were low in the morning, the rest of the time your BG's seem pretty steady overnight.
I notice that a couple of evenings you had CP's before bed but no QA, is there a reason for this ?

grandma carol DAFNE Graduate
North Cumbria Integrated Care NHS Foundation Trust
61 posts

I was on 20 of BI before I went on DAFNE and they told me to drop it to 14 but then my BGs were high all the time in the 18.0 16.0 and I was unwell went to see the Doctor and she told me to put it back up so Idid the DAFNE educator then told me to put it back down I left it at 18 then had the 3.9 so put it down to 17 I will leave it like that to see if its ok. This is what I carnt get my head round I did not have bad controal before this carb counting I did have a few hypos but nothing like I am now and I was never high. Everybody says look for a patton but i dont have one. I am going to get a blood moniter on soon to see what is happening THANK YOU

grandma carol DAFNE Graduate
North Cumbria Integrated Care NHS Foundation Trust
61 posts

sorry forgot to say about the CPs before bed I was told not to give QA if CP was under 2 did have 3 one night so had 3QA and BGs at 3.20 were 3.7 they were 7.6 at 10.00 when I had the 3 CP and 3 QA so I get a but bothered now about having any dont want to go hypo through night. Sorry if this is a bit vague but my head is all over the place with all this SORRY