Recent Posts - DAFNE Online

Mar 2, 2011

graham burton 14 posts

Topic: Site Development / New Meter Upload Development

ordered metre and lead on line thanks nivz

Mar 2, 2011

Anibee 4 posts

Topic: Questions for HCPs / Carb counting-

As an ex baker and now Diabetes Dietitian - I have found that alot of the breads I used to make commercially have all changed. As mentioned, when making your own, it really depends on the carb value of your flour - but if you are making your own don't forget to add any extra bits of carb that you include - for example dried fruit or such, but depending on your additions of nuts or seeds you may find that the Glycaemic index changes too - so you may need to factor that in for a bit of a rise in BG later on.

Mar 2, 2011

Garry 328 posts

Topic: General Discussion / First week concerns

Have a search on the web for your QA insulin type michellem and when there search site for the insulin absorption graph.
This will give you a good indication about action time for your QA.
As you say you will probably find that 2 hours is too short a time for trimming off of the post meal peak.
Regards
Garry

Mar 2, 2011

michellem 23 posts

Topic: General Discussion / 4mm needles

Going to try the 5mm ones this week (have a nurse friend!). If I like them I will change over.
I also remember the glass syringe and my parents being told to use the needly until it was blunt! I was 5 and very skinny so luckily my parents were having none of that and bought them for me, bless.

Mar 2, 2011

michellem 23 posts

Topic: General Discussion / First week concerns

Hi
Thanks for your thoughts on my diary and I reluctantly agree I need to stop correcting after hypos. I knew at the time but have't quite got my head around it (I am new to this method!!)
I'm the same with my bedtime BGs as I often don't eat til 7.30/8pm then go to bed at 10 so it's not really an accurate reading.
I've still not achieved a green since breakfast on Monday which is a bit depressing. I nearly shed a tear at my18.1 last night as I don't know why it happened but then I thought of all the advice I've got on here and thought I just need to give it time and don't give up.
I am tempted to up my BI to 18 but had night hypos when I was previously on this and they are my BIG fear so I'm still thinking about it, any thoughts?
Michelle

Mar 2, 2011

HelenP 218 posts

Topic: General Discussion / Insulin Pumps

Hi Guys!

Well I go into hospital next Wednesday to be "fitted" with an Animas 2020 pump. My understanding is that I am then fairly closely monitored for 24+ hours (by nursing staff) and let loose (by the CDE) when she thinks I have "got it". I am really busy at the moment and am getting a little nervous but hope that It all goes smoothly. The sales person for the pump has been an excellent resource and has responded to my requests for info etc very quickly.

It appears that I am now fully recovered from the surgery and my TDD is back where it was 8 months (pre surgery) ago. It is probably best that this has happened before the pump. Do any of you run an Animas pump? It is not as common as the Medtronic version but as I said before I asked for info from Medtronic, gave them my email address and telephone number (last October!) and still have not heard from them! Helen

Mar 2, 2011

jackieh 4 posts

Topic: General Discussion / Insulin Pumps

Davejg

Tell me more about this Medtronic pump! I am taking part in research and there is a Medtronic Paradigm Veo minimed pump sitting on my kitchen table waiting for me. I am having to check my blood with the Contour Link BG monitor, which then sends the results to the pump, I put in the carbs I will eat and the pump comes up with a number that it would send along the tubing if it were attached. I am still actually injecting insulin at the moment. I'm taking 6 or 7 lots of insulin a day - 6 EVERY day and 7 if it goes mad like the other night! I don't know how these pumps work - the insulin: is it a mix of QA and BI? Or if it's just QA, will I still have to have BI INJECTIONS? I am on 2 Lantus jabs a day (that adds up to a whole 10 units in total).

I'm used to carb counting - have been doing it 38 years too. I was horrified a few years ago when my friends daughter was diagnosed with Type 1 diabetes and carb counting wasn't really emphasised enough. Even now I say, how many carbs was in that cake, and she says oh it doesn't matter, it tastes so good! Mmmmmmm!

Guys, just to let you know, I get a mix of green, red and orange boxes on my DAFNE charts, every day. I did actually ask, via email, if it will ever work! I got a phone call.

Jackieh

Mar 1, 2011

JayBee 582 posts

Topic: General Discussion / First week concerns

Michelle,

Based on what you've posted on page 1, I would first recommend you stop correcting so soon after hypos.

Your insulin sensitivity is increased due to a hypo (section in DAFNE book: Hypo -> Increased sensitivity to insulin) and this means when you correct afterwards (even with a meal), it will usually result in another hypo. Correcting soon after often causes that annoying problem called "BG boomeranging" which can leave you feeling tired and run down if left to continue.

Leave it for 24 hours so your body gets a chance to recover after a hypo and then see what patterns arise after (this just means - no corrections - just take usual BI and only inject required QA for CPs for the next 24 hours after a hypo).
Try not be afraid to go high after a hypo - it is normal and your BI will bring it down for you. Smile

If you stick to the hypo rules, you will have a controlled rise after a hypo as well.

To help put things into perspective, I have witnessed 1QA bring my BG down by 9BG points (I think it was from 20 BG down to 11 BG - this was just the QA on it's own, no food QA at all).
On another occasion when I decided to test what happened if I ate as well as corrected - I just shot down straight down into another hypo. This was with food!

Yes, I am a "hard way learner". I used to be very bad for correcting when I shouldn't have been - it was a hard habit to break when all I wanted was to never be high! It's not worth the hassle that comes from being impatient with your body.

The unexpected highs may be a result of your body releasing glucose to cope with the extra insulin you're injecting.

Best of luck! Keep your chin up - and I completely understand your frustration!

--------

I've only had trouble once where the doctors thought I was a Type 2 Diabetic and therefore shouldn't be testing as much as I was... soon got that cleared up! XD

--------

I'm not sure if I've had an all green day... My evening meals often are a few hours from my evening BI jab and test (my QA's working time seems to be 5 hours), so I'm almost always still processing meal QA when I get around to doing my before bed BI which often is around 11BG ... so red most evenings.

I don't think I will ever have a "all green day" because of this, not that it matters really. As long as my results go back to green when the insulin is done, then I'm happy as a bunny. Smile

Mar 1, 2011

marke 643 posts

Topic: Site Development / Web Service

Hi, I suggest you email us about this at [email protected] since its a bit technical for the general forums. I brief answer is it very much depends on what your definition of a web service is.

Mar 1, 2011

michellem 23 posts

Topic: General Discussion / First week concerns

I seem to be allowed to order as many strips as I need, they've never queried so hope this continues now!
I was highish again before tea as I've been all day. Had the same dinner as last night and increased my QA so hope to be green before bed!!

Mar 1, 2011

grandma carol 61 posts

Topic: General Discussion / First week concerns

I have been the same and since doing Dafne last SEP. could not get Bgs down and thought that it was not for me but things are starting to get better now and untill this week was not to bad for a week but I hve a chest infection now and things have gone to pot agen. B ut I am going to keep at it as even though things are not right yet I do feel better than I did.
vic demain I get 2 cassettes in 1 box and thats 100 tests and thats every 2 weeks I have just asked for more as I test about 10 - 14 times a day as i DRIVE and need to test with that as well as with the food carb counting. T hey have just agreed to increase what I get and with no argument or anything said about it.

Mar 1, 2011

vic demain 87 posts

Topic: General Discussion / First week concerns

3 boxes of 50 every 8 weeks.

Mar 1, 2011

Karl 83 posts

Topic: General Discussion / First week concerns

I get 4 boxs of 50 every 4 weeks - This was due to a letter from my DAFNE course to GP to up it to that. If they wont increase dont forget you 'should test everytime you drive' as a good argument

Mar 1, 2011

vic demain 87 posts

Topic: General Discussion / First week concerns

novorapidboi26, how many test strips do you use and is your GP happy to supply them? I have trouble getting enough for 4/5 tests per day.

Mar 1, 2011

novorapidboi26 1,816 posts

Topic: General Discussion / First week concerns

I suppose you can have all green days, well done Garry................my results resemble these Monday to Friday so dont really see all green days as I test in between meals, for no other reason other than curiosity and well, seeing how injecting 20, 30, 40 minutes before meals effect the post meal spike, the results are promising..........Dawn Phenomenon is a pain, but hopefully I will be pumping soon

Mar 1, 2011

michellem 23 posts

Topic: General Discussion / First week concerns

Hi
Thanks for your supportive messages, it helsp a lot! It's good to know it can take a while to settle, think I want too much too quickly!
I think I've included my results so have a look and comment
Michelle

Mar 1, 2011

Garry 328 posts

Topic: General Discussion / First week concerns

It took me nearly 5 months to get things back after doing DAFNE in November 2009.
Here is some encouragement for me though ..... the latest in about 3 green days that I have had since then!
Stick with it.
Once you completely trust the strong framework provided by DAFNE it will work for you.

Mar 1, 2011

novorapidboi26 1,816 posts

Topic: General Discussion / Old habits die hard...

stick at it carol, your dedication so far has been outstanding........

Mar 1, 2011

novorapidboi26 1,816 posts

Topic: General Discussion / First week concerns

vic your absolutely right about a whole day of good results, its possible but can be very rare.

After leaving the consistencies of the DAFNE classrooms your body is bound to start behaving differently, but hopefully it should settle down after you get back into your normal routine, this usually requires you to keep an eye on your BI dose as you liver dumping changes to suit your daily needs.

Feel free to ask anything......

Mar 1, 2011

vic demain 87 posts

Topic: General Discussion / First week concerns

Michelle,
I did the course about 18 months ago and not to this day have I achieved a day of completely green results. It's frustrating but stick with it and good luck.
Vic.

Mar 1, 2011

JL 1 post

Topic: Site Development / Web Service

Would you mind wrapping the http://www.dafneonline.co.uk/diary.xml page as a web service and parameterise the username and password? I want to download the XML directly in excel without having to first login, download and save the data

Feb 28, 2011

marke 643 posts

Topic: General Discussion / BG Graphs

I would suggest the original request is posted in the site development forum. It is technically possible to get the graphs output to an email via the site, however its the level of work needed to do it and the time for us to implement it. Simon is the expert in this area and hes away on business at the moment so I can't give any indication of how simple it will be.

Feb 28, 2011

JayBee 582 posts

Topic: General Discussion / First week concerns

That's quite fine Michelle! I know I've been frustrated too so it's easy to relate! ^_^

Feel free to post some results through the BG diary option on this site... shall try to help!

Feb 28, 2011

michellem 23 posts

Topic: General Discussion / First week concerns

Hi
I did the course last week and found it very inspirational however I'm really concerned that my tests seem a little uncontrolled. I've had very few tests within the recommended ranges and seem to be running mainly high but not consistently enough for me to change my ratio or BI. Feel a bit down about it tonight especially after being so positive last week. Think I need to just keep at it, needed a rant, hope that's OK!
Michelle

Mar 2, 2011 graham burton 14 posts	Topic: Site Development / New Meter Upload Development ordered metre and lead on line thanks nivz

Mar 2, 2011 Anibee 4 posts	Topic: Questions for HCPs / Carb counting- As an ex baker and now Diabetes Dietitian - I have found that alot of the breads I used to make commercially have all changed. As mentioned, when making your own, it really depends on the carb value of your flour - but if you are making your own don't forget to add any extra bits of carb that you include - for example dried fruit or such, but depending on your additions of nuts or seeds you may find that the Glycaemic index changes too - so you may need to factor that in for a bit of a rise in BG later on.

Mar 2, 2011 Garry 328 posts	Topic: General Discussion / First week concerns Have a search on the web for your QA insulin type michellem and when there search site for the insulin absorption graph. This will give you a good indication about action time for your QA. As you say you will probably find that 2 hours is too short a time for trimming off of the post meal peak. Regards Garry

Mar 2, 2011 michellem 23 posts	Topic: General Discussion / 4mm needles Going to try the 5mm ones this week (have a nurse friend!). If I like them I will change over. I also remember the glass syringe and my parents being told to use the needly until it was blunt! I was 5 and very skinny so luckily my parents were having none of that and bought them for me, bless.

Mar 2, 2011 michellem 23 posts	Topic: General Discussion / First week concerns Hi Thanks for your thoughts on my diary and I reluctantly agree I need to stop correcting after hypos. I knew at the time but have't quite got my head around it (I am new to this method!!) I'm the same with my bedtime BGs as I often don't eat til 7.30/8pm then go to bed at 10 so it's not really an accurate reading. I've still not achieved a green since breakfast on Monday which is a bit depressing. I nearly shed a tear at my18.1 last night as I don't know why it happened but then I thought of all the advice I've got on here and thought I just need to give it time and don't give up. I am tempted to up my BI to 18 but had night hypos when I was previously on this and they are my BIG fear so I'm still thinking about it, any thoughts? Michelle

Mar 2, 2011 HelenP 218 posts	Topic: General Discussion / Insulin Pumps Hi Guys! Well I go into hospital next Wednesday to be "fitted" with an Animas 2020 pump. My understanding is that I am then fairly closely monitored for 24+ hours (by nursing staff) and let loose (by the CDE) when she thinks I have "got it". I am really busy at the moment and am getting a little nervous but hope that It all goes smoothly. The sales person for the pump has been an excellent resource and has responded to my requests for info etc very quickly. It appears that I am now fully recovered from the surgery and my TDD is back where it was 8 months (pre surgery) ago. It is probably best that this has happened before the pump. Do any of you run an Animas pump? It is not as common as the Medtronic version but as I said before I asked for info from Medtronic, gave them my email address and telephone number (last October!) and still have not heard from them! Helen

Mar 2, 2011 jackieh 4 posts	Topic: General Discussion / Insulin Pumps Davejg Tell me more about this Medtronic pump! I am taking part in research and there is a Medtronic Paradigm Veo minimed pump sitting on my kitchen table waiting for me. I am having to check my blood with the Contour Link BG monitor, which then sends the results to the pump, I put in the carbs I will eat and the pump comes up with a number that it would send along the tubing if it were attached. I am still actually injecting insulin at the moment. I'm taking 6 or 7 lots of insulin a day - 6 EVERY day and 7 if it goes mad like the other night! I don't know how these pumps work - the insulin: is it a mix of QA and BI? Or if it's just QA, will I still have to have BI INJECTIONS? I am on 2 Lantus jabs a day (that adds up to a whole 10 units in total). I'm used to carb counting - have been doing it 38 years too. I was horrified a few years ago when my friends daughter was diagnosed with Type 1 diabetes and carb counting wasn't really emphasised enough. Even now I say, how many carbs was in that cake, and she says oh it doesn't matter, it tastes so good! Mmmmmmm! Guys, just to let you know, I get a mix of green, red and orange boxes on my DAFNE charts, every day. I did actually ask, via email, if it will ever work! I got a phone call. Jackieh

Mar 1, 2011 JayBee 582 posts	Topic: General Discussion / First week concerns Michelle, Based on what you've posted on page 1, I would first recommend you stop correcting so soon after hypos. Your insulin sensitivity is increased due to a hypo (section in DAFNE book: Hypo -> Increased sensitivity to insulin) and this means when you correct afterwards (even with a meal), it will usually result in another hypo. Correcting soon after often causes that annoying problem called "BG boomeranging" which can leave you feeling tired and run down if left to continue. Leave it for 24 hours so your body gets a chance to recover after a hypo and then see what patterns arise after (this just means - no corrections - just take usual BI and only inject required QA for CPs for the next 24 hours after a hypo). Try not be afraid to go high after a hypo - it is normal and your BI will bring it down for you. If you stick to the hypo rules, you will have a controlled rise after a hypo as well. To help put things into perspective, I have witnessed 1QA bring my BG down by 9BG points (I think it was from 20 BG down to 11 BG - this was just the QA on it's own, no food QA at all). On another occasion when I decided to test what happened if I ate as well as corrected - I just shot down straight down into another hypo. This was with food! Yes, I am a "hard way learner". I used to be very bad for correcting when I shouldn't have been - it was a hard habit to break when all I wanted was to never be high! It's not worth the hassle that comes from being impatient with your body. The unexpected highs may be a result of your body releasing glucose to cope with the extra insulin you're injecting. Best of luck! Keep your chin up - and I completely understand your frustration! -------- I've only had trouble once where the doctors thought I was a Type 2 Diabetic and therefore shouldn't be testing as much as I was... soon got that cleared up! XD -------- I'm not sure if I've had an all green day... My evening meals often are a few hours from my evening BI jab and test (my QA's working time seems to be 5 hours), so I'm almost always still processing meal QA when I get around to doing my before bed BI which often is around 11BG ... so red most evenings. I don't think I will ever have a "all green day" because of this, not that it matters really. As long as my results go back to green when the insulin is done, then I'm happy as a bunny.

Mar 1, 2011 marke 643 posts	Topic: Site Development / Web Service Hi, I suggest you email us about this at [email protected] since its a bit technical for the general forums. I brief answer is it very much depends on what your definition of a web service is.

Mar 1, 2011 michellem 23 posts	Topic: General Discussion / First week concerns I seem to be allowed to order as many strips as I need, they've never queried so hope this continues now! I was highish again before tea as I've been all day. Had the same dinner as last night and increased my QA so hope to be green before bed!!

Mar 1, 2011 grandma carol 61 posts	Topic: General Discussion / First week concerns I have been the same and since doing Dafne last SEP. could not get Bgs down and thought that it was not for me but things are starting to get better now and untill this week was not to bad for a week but I hve a chest infection now and things have gone to pot agen. B ut I am going to keep at it as even though things are not right yet I do feel better than I did. vic demain I get 2 cassettes in 1 box and thats 100 tests and thats every 2 weeks I have just asked for more as I test about 10 - 14 times a day as i DRIVE and need to test with that as well as with the food carb counting. T hey have just agreed to increase what I get and with no argument or anything said about it.

Mar 1, 2011 vic demain 87 posts	Topic: General Discussion / First week concerns 3 boxes of 50 every 8 weeks.

Mar 1, 2011 Karl 83 posts	Topic: General Discussion / First week concerns I get 4 boxs of 50 every 4 weeks - This was due to a letter from my DAFNE course to GP to up it to that. If they wont increase dont forget you 'should test everytime you drive' as a good argument

Mar 1, 2011 vic demain 87 posts	Topic: General Discussion / First week concerns novorapidboi26, how many test strips do you use and is your GP happy to supply them? I have trouble getting enough for 4/5 tests per day.

Mar 1, 2011 novorapidboi26 1,816 posts	Topic: General Discussion / First week concerns I suppose you can have all green days, well done Garry................my results resemble these Monday to Friday so dont really see all green days as I test in between meals, for no other reason other than curiosity and well, seeing how injecting 20, 30, 40 minutes before meals effect the post meal spike, the results are promising..........Dawn Phenomenon is a pain, but hopefully I will be pumping soon

Mar 1, 2011 michellem 23 posts	Topic: General Discussion / First week concerns Hi Thanks for your supportive messages, it helsp a lot! It's good to know it can take a while to settle, think I want too much too quickly! I think I've included my results so have a look and comment Michelle

Mar 1, 2011 Garry 328 posts	Topic: General Discussion / First week concerns It took me nearly 5 months to get things back after doing DAFNE in November 2009. Here is some encouragement for me though ..... the latest in about 3 green days that I have had since then! Stick with it. Once you completely trust the strong framework provided by DAFNE it will work for you.

Mar 1, 2011 novorapidboi26 1,816 posts	Topic: General Discussion / Old habits die hard... stick at it carol, your dedication so far has been outstanding........

Mar 1, 2011 novorapidboi26 1,816 posts	Topic: General Discussion / First week concerns vic your absolutely right about a whole day of good results, its possible but can be very rare. After leaving the consistencies of the DAFNE classrooms your body is bound to start behaving differently, but hopefully it should settle down after you get back into your normal routine, this usually requires you to keep an eye on your BI dose as you liver dumping changes to suit your daily needs. Feel free to ask anything......

Mar 1, 2011 vic demain 87 posts	Topic: General Discussion / First week concerns Michelle, I did the course about 18 months ago and not to this day have I achieved a day of completely green results. It's frustrating but stick with it and good luck. Vic.

Mar 1, 2011 JL 1 post	Topic: Site Development / Web Service Would you mind wrapping the http://www.dafneonline.co.uk/diary.xml page as a web service and parameterise the username and password? I want to download the XML directly in excel without having to first login, download and save the data

Feb 28, 2011 marke 643 posts	Topic: General Discussion / BG Graphs I would suggest the original request is posted in the site development forum. It is technically possible to get the graphs output to an email via the site, however its the level of work needed to do it and the time for us to implement it. Simon is the expert in this area and hes away on business at the moment so I can't give any indication of how simple it will be.

Feb 28, 2011 JayBee 582 posts	Topic: General Discussion / First week concerns That's quite fine Michelle! I know I've been frustrated too so it's easy to relate! ^_^ Feel free to post some results through the BG diary option on this site... shall try to help!

Feb 28, 2011 michellem 23 posts	Topic: General Discussion / First week concerns Hi I did the course last week and found it very inspirational however I'm really concerned that my tests seem a little uncontrolled. I've had very few tests within the recommended ranges and seem to be running mainly high but not consistently enough for me to change my ratio or BI. Feel a bit down about it tonight especially after being so positive last week. Think I need to just keep at it, needed a rant, hope that's OK! Michelle