Recent Posts - DAFNE Online

Mar 10, 2011

moyesy 10 posts

Hi

I would agree with Alan Constable that each individual should complete the Census Form in accordance with his/her opinion of what a truthful answer is.

In my case diabetes has an influence in my life style and I don't climb mountains everyday of the week. I would suggest that
Alan's life may have been improved as a result of attending DAFNE. He is fortunate to have been there as am I (considering the waiting list for places/ the limited numbers that can attend.

I put forward the question to gauge the response generally and not to influence how others should respond.

Mar 10, 2011

Alan 49 284 posts

Topic: General Discussion / Census Form

The question is directed at each individual on the census form, so it is that person's opinion about whether it limits his or her activities. We should't be answering it on behalf of other people. In any case, there is no way of linking answers to medical conditions such as diabetes. The question does say 'day-to-day activities', which, for me anyway, does not include climbing up mountains.

Mar 10, 2011

meltow 78 posts

Topic: General Discussion / Census Form

Although I ensure that my diabetes does not have any control on my life, you are right we need to indicate (b) on the census. Many of us do self manage the condition, but what about the scores of us who don't, or can't. Plus, today I can manage my condition, but what about tomorrow and the day after. Reading behind the lines, if our answers on the census may have any influence on spending within the NHS we need to take care when answering this question.
My vote goes for (b).

Mar 10, 2011

moyesy 10 posts

Topic: General Discussion / Census Form

I would tend to agree with those that say it affects you. If not denying would suggest that we al can ignore diabetes and the way it influences decisions. Yes we can control it but we ignore it at our peril. How many of us would drive if we were having a hypo ?

If we all put (c) No then the Coalition Government will decide diabetes care can be cut, DAFNE can be done away with, testing strips are pointless. Remember we won't get another chance to tell Government that our daily lifes are influenced by Diabetes. How many of us would opt to have diabetes if given the choice ??

Mar 10, 2011

vic demain 87 posts

Topic: General Discussion / Census Form

Day to day activities have to be affected because, as a diabetic, you are not free to do whatever you want. You need to take regular medication and you need to eat regularly. You cannot decide that you are going to go climb up a mountain and take nothing with you, because of your illness you have to take fuel and medication, so you must be affected.

Mar 9, 2011

Stew B 125 posts

Topic: General Discussion / Census Form

Haven't had our form yet, so is this a single person question or a question to be answered in respect of every household member individually? The question doesn't ask if you have a long-term illness or disability, but whether day-to-day activities are limited by one. I'm not sure about the value of the question, presumeably the government gets its statistics about long-term illnesses and disabilites via the NHS - does the accompanying info give any idea about what the government sees as the value of its individual questions? Sorry, must stop trying to understand these things... I'll probably tick "c" when the time comes.

Stew

Mar 9, 2011

Alan 49 284 posts

Topic: General Discussion / Census Form

I agree with novorapidboi, I like to think that I control my diabetes - not the other way round. DAFNE has been a great help in this. I do much the same things as other people of my age who don't have diabetes. I put 'No' to this on the census form.

Mar 9, 2011

novorapidboi26 1,819 posts

Topic: General Discussion / Census Form

its changed in the way I think about my health and obviously the physical act of maintaining blood sugar through testing and injecting, but the course of my life and the things I have done have not been affected by the condition.

It doesn't limit me to anything, but I suppose everyone is different, some people may insist on it affecting every decision an thing they do out of fear of complications, others may take a more relaxed attitude, and we know there are a few who don't really give a toss about it

Mar 9, 2011

moyesy 10 posts

Topic: General Discussion / Census Form

I am surprised by some answers here. OK diabetes is not life-threatening (most of the time) but I do think it places limitations at times if only in some kind of restraint in food & drink.

How many people with diabetes can honestly say that their life has not been changed by it ? Not many I would think

Mar 9, 2011

novorapidboi26 1,819 posts

Topic: General Discussion / Census Form

I too don't see the condition as limiting, or in fact hypos as such either, as I can deal with them quickly and effectively 99% of the time.

However I would probably select B as it would mean I may be contributing to possible future services that might be help/accommodate diabetes and other conditions in day to day life..........what could these be,......who knows, but you never know........ Smile

Mar 9, 2011

michellem 23 posts

Topic: General Discussion / Census Form

I'm not sure. I don't think that generally my life is limited at all by my diabetes. I eat when I want, more so since DAFNE and it's never stopped me doing anything I wanted to. I do agree though that hypos can affect things but doesn't really happen enough that I find it limiting.
Hmmm, food for thought!

Mar 9, 2011

Garry 328 posts

Topic: General Discussion / Census Form

I would agree. Yes, limited a little.
We are certainly limited in terms of timing throughout the day.
I try to keep pretty consistent timings for meals. For me personally it helps me understand what is going on.

Mar 9, 2011

JayBee 587 posts

Topic: General Discussion / Census Form

I personally would put yes to b I think, because you're not always going to be 'on the ball' when it comes to things like concentrating if your sugar levels are low.

Depends how you see your condition...

Mar 9, 2011

JayBee 587 posts

Topic: General Discussion / Watch out for your dog!

Bit of a vague, and likely over exaggerated, report isn't it?

I think there's some hidden truths personally. Dogs are lovely creatures.

Mar 8, 2011

moyesy 10 posts

Topic: General Discussion / Census Form

This form talks about health problems expected to last at least 12 months.

Are your day to day activities limited because of a health problem or disability which has lasted or is expected to last at least 12 months ?

a Yes, limited a lot
b Yes,limited a little
c No

I ticked b but what do others think ?

Mar 8, 2011

michellem 23 posts

Topic: General Discussion / Watch out for your dog!

Urgh that's gross. Glad I don't have a dog now!!!

Mar 7, 2011

Karl 83 posts

Topic: General Discussion / Watch out for your dog!

http://news.uk.msn.com/odd-news/articles.aspx?cp-documentid=156373538&ocid=today

Mar 7, 2011

Jennypenny 34 posts

Topic: General Discussion / Insulin Pumps

Hi, as novorapidboi26 I am one of those who whatever I've tried still can't get my hypo awareness back , but since I have been on the pump my hba1c has improved greatly , I too joined the diabetes support forum at novorapidboi26 recommendation and can say the pumpers section is a big help ~ Jenny

Mar 7, 2011

novorapidboi26 1,819 posts

Topic: General Discussion / Insulin Pumps

Head along to www.diabetessupport.co.uk............they have their own pump section in their forum and lots of pumpers, some of which are using the medtronic, who will be willing to share their experiences with you.

Its unlikely you will hear them say anything negative about the pump. I am starting the ball rolling tomorrow to see if I can get one.

As you say your sensitive to insulin and have lost your hypo awareness so you really would benefit from a pump, the doses you can deliver are tiny, really tiny.

The hard work is there in terms of testing and night time tests but once you have settled into it you will never look back.

Some people have hypo unawareness all the time regardless of what they do, but for most people running your sugars high for a while will be fine, and you don't need to worry about complications, personally the risk of going low, unconscious, comma is far less appealing than running high for a while and not really increasing the risk of complications. Treatment for complications we all may get are good and getting better.

Hope to see you over at diabetessupport....................... Smile

Mar 7, 2011

HelenP 218 posts

Topic: General Discussion / weather and hypos

Just a thought Linsey re the temperatures...maybe it is the change in weather (temps) rather than the actual temps that cause the change in insulin demand. We never really get "cold" up here!
Helen


Mar 10, 2011 moyesy 10 posts	Topic: General Discussion / Census Form Hi I would agree with Alan Constable that each individual should complete the Census Form in accordance with his/her opinion of what a truthful answer is. In my case diabetes has an influence in my life style and I don't climb mountains everyday of the week. I would suggest that Alan's life may have been improved as a result of attending DAFNE. He is fortunate to have been there as am I (considering the waiting list for places/ the limited numbers that can attend. I put forward the question to gauge the response generally and not to influence how others should respond.

Mar 10, 2011 Alan 49 284 posts	Topic: General Discussion / Census Form The question is directed at each individual on the census form, so it is that person's opinion about whether it limits his or her activities. We should't be answering it on behalf of other people. In any case, there is no way of linking answers to medical conditions such as diabetes. The question does say 'day-to-day activities', which, for me anyway, does not include climbing up mountains.

Mar 10, 2011 meltow 78 posts	Topic: General Discussion / Census Form Although I ensure that my diabetes does not have any control on my life, you are right we need to indicate (b) on the census. Many of us do self manage the condition, but what about the scores of us who don't, or can't. Plus, today I can manage my condition, but what about tomorrow and the day after. Reading behind the lines, if our answers on the census may have any influence on spending within the NHS we need to take care when answering this question. My vote goes for (b).

Mar 10, 2011 moyesy 10 posts	Topic: General Discussion / Census Form I would tend to agree with those that say it affects you. If not denying would suggest that we al can ignore diabetes and the way it influences decisions. Yes we can control it but we ignore it at our peril. How many of us would drive if we were having a hypo ? If we all put (c) No then the Coalition Government will decide diabetes care can be cut, DAFNE can be done away with, testing strips are pointless. Remember we won't get another chance to tell Government that our daily lifes are influenced by Diabetes. How many of us would opt to have diabetes if given the choice ??

Mar 10, 2011 vic demain 87 posts	Topic: General Discussion / Census Form Day to day activities have to be affected because, as a diabetic, you are not free to do whatever you want. You need to take regular medication and you need to eat regularly. You cannot decide that you are going to go climb up a mountain and take nothing with you, because of your illness you have to take fuel and medication, so you must be affected.

Mar 9, 2011 Stew B 125 posts	Topic: General Discussion / Census Form Haven't had our form yet, so is this a single person question or a question to be answered in respect of every household member individually? The question doesn't ask if you have a long-term illness or disability, but whether day-to-day activities are limited by one. I'm not sure about the value of the question, presumeably the government gets its statistics about long-term illnesses and disabilites via the NHS - does the accompanying info give any idea about what the government sees as the value of its individual questions? Sorry, must stop trying to understand these things... I'll probably tick "c" when the time comes. Stew

Mar 9, 2011 Alan 49 284 posts	Topic: General Discussion / Census Form I agree with novorapidboi, I like to think that I control my diabetes - not the other way round. DAFNE has been a great help in this. I do much the same things as other people of my age who don't have diabetes. I put 'No' to this on the census form.

Mar 9, 2011 novorapidboi26 1,819 posts	Topic: General Discussion / Census Form its changed in the way I think about my health and obviously the physical act of maintaining blood sugar through testing and injecting, but the course of my life and the things I have done have not been affected by the condition. It doesn't limit me to anything, but I suppose everyone is different, some people may insist on it affecting every decision an thing they do out of fear of complications, others may take a more relaxed attitude, and we know there are a few who don't really give a toss about it

Mar 9, 2011 moyesy 10 posts	Topic: General Discussion / Census Form I am surprised by some answers here. OK diabetes is not life-threatening (most of the time) but I do think it places limitations at times if only in some kind of restraint in food & drink. How many people with diabetes can honestly say that their life has not been changed by it ? Not many I would think

Mar 9, 2011 novorapidboi26 1,819 posts	Topic: General Discussion / Census Form I too don't see the condition as limiting, or in fact hypos as such either, as I can deal with them quickly and effectively 99% of the time. However I would probably select B as it would mean I may be contributing to possible future services that might be help/accommodate diabetes and other conditions in day to day life..........what could these be,......who knows, but you never know........

Mar 9, 2011 michellem 23 posts	Topic: General Discussion / Census Form I'm not sure. I don't think that generally my life is limited at all by my diabetes. I eat when I want, more so since DAFNE and it's never stopped me doing anything I wanted to. I do agree though that hypos can affect things but doesn't really happen enough that I find it limiting. Hmmm, food for thought!

Mar 9, 2011 Garry 328 posts	Topic: General Discussion / Census Form I would agree. Yes, limited a little. We are certainly limited in terms of timing throughout the day. I try to keep pretty consistent timings for meals. For me personally it helps me understand what is going on.

Mar 9, 2011 JayBee 587 posts	Topic: General Discussion / Census Form I personally would put yes to b I think, because you're not always going to be 'on the ball' when it comes to things like concentrating if your sugar levels are low. Depends how you see your condition...

Mar 9, 2011 JayBee 587 posts	Topic: General Discussion / Watch out for your dog! Bit of a vague, and likely over exaggerated, report isn't it? I think there's some hidden truths personally. Dogs are lovely creatures.

Mar 8, 2011 moyesy 10 posts	Topic: General Discussion / Census Form This form talks about health problems expected to last at least 12 months. Are your day to day activities limited because of a health problem or disability which has lasted or is expected to last at least 12 months ? a Yes, limited a lot b Yes,limited a little c No I ticked b but what do others think ?

Mar 8, 2011 michellem 23 posts	Topic: General Discussion / Watch out for your dog! Urgh that's gross. Glad I don't have a dog now!!!

Mar 7, 2011 Karl 83 posts	Topic: General Discussion / Watch out for your dog! http://news.uk.msn.com/odd-news/articles.aspx?cp-documentid=156373538&ocid=today

Mar 7, 2011 Jennypenny 34 posts	Topic: General Discussion / Insulin Pumps Hi, as novorapidboi26 I am one of those who whatever I've tried still can't get my hypo awareness back , but since I have been on the pump my hba1c has improved greatly , I too joined the diabetes support forum at novorapidboi26 recommendation and can say the pumpers section is a big help ~ Jenny

Mar 7, 2011 novorapidboi26 1,819 posts	Topic: General Discussion / Insulin Pumps Head along to www.diabetessupport.co.uk............they have their own pump section in their forum and lots of pumpers, some of which are using the medtronic, who will be willing to share their experiences with you. Its unlikely you will hear them say anything negative about the pump. I am starting the ball rolling tomorrow to see if I can get one. As you say your sensitive to insulin and have lost your hypo awareness so you really would benefit from a pump, the doses you can deliver are tiny, really tiny. The hard work is there in terms of testing and night time tests but once you have settled into it you will never look back. Some people have hypo unawareness all the time regardless of what they do, but for most people running your sugars high for a while will be fine, and you don't need to worry about complications, personally the risk of going low, unconscious, comma is far less appealing than running high for a while and not really increasing the risk of complications. Treatment for complications we all may get are good and getting better. Hope to see you over at diabetessupport.......................

Mar 7, 2011 HelenP 218 posts	Topic: General Discussion / weather and hypos Just a thought Linsey re the temperatures...maybe it is the change in weather (temps) rather than the actual temps that cause the change in insulin demand. We never really get "cold" up here! Helen