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Feb 27, 2011
graham burton
14 posts
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Topic: Site Development / New Meter Upload Development great news that you have re started thisit looks like i may have to gewt a ultra scan unless you can than do it for the other metres but i think the ultra scan does the carb counting as well |
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Feb 27, 2011
JayBee
587 posts
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Topic: General Discussion / Old habits die hard... Sounds like you've both come a long way since doing DAFNE already... keep your chin up even when faced with highs! I went through that too but never forget that once you've sussed those highs, you'll have much better results at the end. Keep up the good work - you will get there!Sorry to hear you're not feeling well at the moment grandma carol. How have you found the sick day rules in response to your chest infection? Is this the first time you've been ill since DAFNE? Pre-DAFNE, I don't think I would've done anything like the sick day rules DAFNE teaches! Take care all! |
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Feb 27, 2011
grandma carol
61 posts
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Topic: General Discussion / Old habits die hard... I was the same and keeped over corecting and then went on Dafne last SEP. and thought that it was not right for me as I was realy unwell with doing things that different from what I had been doing for years. From SEP. I have had very high reading I allways thought that I was ok before as I never had high readings like I was getting. But things have started to get better now and even though its not right yet I am a lot better and feel it and I dont have the hypos like I did before and my HbA1c has come down from 9.8 to7.6 so gess this must me doing me good then.Bloods are back down in the 6.0 and 7.0 well most of the time except this week as I have a chest infection and they have gone up agen butgetting there. Wanted to go back to what I was doing before but not now think this carb-countings a lot better for me. |
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Feb 27, 2011
michellem
23 posts
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Topic: General Discussion / Old habits die hard... HiI'm the same and guilty of over correcting, especially after hypos, need to key an eye on that now (only did the course last week!) I also wasn't testing much and have done loads more since the course started last week. I sadly feel that at the moment by control is loads worse but really I think it's because I'm testing more!! I haven't changed my BI but my amounts I take of QA are much more varied now. I used to have an amount I took then I took a bit less or more depending on what I was eating/doing. Now I have no idea of a set amount and it's just worked out on the foods I'm eating, feels very odd and hope I can carry on doing it once I'm back to work. Michelle |
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Feb 27, 2011
Karl
83 posts
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Found my lead - is there a link to the software |
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Feb 27, 2011
Stew B
125 posts
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Topic: General Discussion / Blog: "DIY DAFNE" - An Diabetic Outsider's View There are lots of positives about DAFNE above and beyond developing good carb counting expertise. The key thing is that it has helped ME to deal with MY diabetes, the point being that it isn't a one-size-fits-all methodology. I spent a (brilliant) week learning about the "engine" which is my body and the impact which diabetes can have. The week, given my new understanding, then gave me a "toolkit" to use to keep my body in good running order and to effect any corrections when things change or go wrong. DAFNE completely changed my relationship with my consultant and my diabetes team; they are now very much true "consultants" in supporting me with managing the impact of my diabetes. DAFNE empowers its users - empowers us to manage our condition effectively rather than being ruled by it, and empowers us in our relationships with the clinicians who support us.I couldn't agree more about positive experiences during the DAFNE course - discussing our personal diabetes experiences with fellow students for the first time, the awakening to a real understanding of why we have those weird and often previously unpredictable symptom,s and some light-bulb moments about my own condition are things I can still recall clearly. But again, DAFNE is about so much more than those five days. Four years after I did my course I am still using the knowledge gained every day and can't envisage a time when I won't be. |
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Feb 26, 2011
Karl
83 posts
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Topic: General Discussion / Blood monitors HiWhat are you programming in ? Karl |
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Feb 26, 2011
JayBee
587 posts
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Topic: General Discussion / local meetings My JPH forum is very very quiet, but if anyone needs any inspiration for their forum bit, here's my post:
We're welcome to post ideas and thoughts here too of course. 
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Feb 26, 2011
JayBee
587 posts
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Topic: General Discussion / Old habits die hard... On some occasions, I really need to work on my overnight testing to make sure it's not a hypo occurring.Don't you hate it when you have to wake up more than two days in a row to check at 3am? |
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Feb 26, 2011
NiVZ
82 posts
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Topic: General Discussion / Blood monitors Hi Graham,I'm the one that was having a go at writing the meter upload software. As Marke said I've not had the time to progress it as much as I'd have liked to, but I know it will work with the Lifescan OneTouch UltraEASY and Lifescan OneTouch UltraSMART. At the moment, the Lifescan OneTouch UltraSMART is the ONLY meter I know of that lets you record Insulin and Carb intake as well as your BG. I am hoping to get back to it at some point (not easy with 2 young children and moving house), but I would be happy to share the project with anyone that wants to lend a hand with coding and testing. NiVZ |
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Feb 26, 2011
JayBee
587 posts
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Topic: General Discussion / DAFNE Diabetes Blogs Do you keep a diabetes related blog?Now you're a DAFNE graduate, do you use it to help promote DAFNE to other diabetics and show the benefits (or perhaps lack of?) you have gained from the course? On a related note to this question, do you tend to write for yourself or for others? Feel free to post your blog links here - we'd love to read your stories! I unfortunately do not write a diabetes blog, though I do touch from time to time in my private and personal general-life blog. I have thought about it though - I'm just not sure how interesting I would be able to keep it! |
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Feb 26, 2011
JayBee
587 posts
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Topic: General Discussion / Blog: "DIY DAFNE" - An Diabetic Outsider's View Liking the posts, it is incredibly sad that this sort of thing goes on... but at the same time, I'm not surprised. If PCT includes GP practices, then absolutely not surprised.For example, late last year, I changed my GP because I needed a more conveniently placed doctor because of where my workplace had stationed me (far off from my last GP!). When I met my new GP for the first time, he said he didn't understand DAFNE and seemed very dismissive of it. Instead of showing more interest (like one of the nurses kind of did), he just asked me what doses I was taking at the time (which was in a situation of shifting because I was dose adjusting at the time - I said this and he wanted to know anyway), typed it into the computer and then it now appears on the label when I ask for insulin. Um, bit pointless really... There has been another occasion - which someone else on this forum started a thread here - I was told I could not have my usual amount of blood testing strips because I was not supposed to be testing as much as I should. I couldn't believe what I was hearing - I thought my GP surgery had gone mad. I was quick to point out that my life depends on testing regularly because I am a Type 1 Diabetic. They actually had to CALL someone to confirm what I was saying was true - I'd been with this GP for YEARS and they had to do that! O_O After experiences like this, I completely understand why diabetics of either type are being let down by their care team. They can't even tell the difference between the two types! On this note though, I can understand why some members of care teams would not be prepared to educate without training - anyone in their positions, without correct training, would... no, should not be prepared to apply advice such as DAFNE guidelines. It's got "legal mess" written all over it and them holding back is safer in the long run for the diabetic. There is also the situation of T1Diabetics feeling that they're either happy where they are, or if they have problems but don't want to change. Even though I had good intentions, when I talked about DAFNE and recommended it to a fellow non-DAFNE diabetic, I must of not explained myself too well or something because even though I was able to explain that DAFNE could assist them with all the problems they had come up, they were too quick to take offence (she latest posted to friends: "How dare she criticise my control when she clearly cannot control herself!" completely missing the point of the conversation (because there was no mention of DAFNE in her rant so that sadly failed to sink in) and my enthusiasm for DAFNE) and shrug it off at the time to say "I'm no good with numbers, I don't think it'll be something for me" and "my brother does that". Sadly two-faced I realise now, but I think this is a great example of what kind of mindset some diabetics have towards anything new - try to run away from it as quickly as they can. I can relate to a certain extent to the phobia of change - I used to be afraid to put my insulin up! Has any one else had this sort of negative response when trying to introduce DAFNE to someone who's not heard of it? Just out of interest - do we have any idea why the carb counting stuff was stopped 10 odd years ago? Were the benefits of it not being realised? I've been T1 Diabetic for about 21 years now and I was never introduced to carb counting until DAFNE. When I was first diagnosed at the age of 5, I was put on something like two-three injections a day of mixed insulin (which I dread to think what my BGs were like at that time with the education I've had now!) then eventually the basal-bolus system (this name still is very strange to me - I just call it "I take 4 injections a day with two types of insulin, one fast, one slow" LOL ;) ) which I cannot remember what age I started. If I had any carb counting education involved, it may have not been passed on to me by my parents (I was only a kid) but I can't be sure of this. I do hope these local DAFNE meet up ideas being discussed at the moment help the cause. I think a more detailed outline of DAFNE would be a great starting point. Considering the problems we've been facing for years with professional help, it's great we have the will to do something about it. Edit: Suggestions for the DAFNE Online site: Pros (and cons?) listing of DAFNE (part of the outline perhaps). Possibly look at adding a forum section so members can start DAFNE orientated blog threads (will give more material for the dafneonline Twitter feed as a bonus). |
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Feb 26, 2011
PNThompson
57 posts
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Topic: General Discussion / BG Graphs I haven't used them myself, but one option maybe is to take a screen shot (Windows = ALT or CTRL and Prt SCN) Think ALT takes an image of the Window open while CTRL take the whole screen image.Mac has an Application 'GRAB' to capture a screenshot. Depending on software you should be able to convert to PDF Format, though the JPEG Screen Shots could be added to an email. |
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Feb 25, 2011
Simon
578 posts
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Topic: DAFNE Online Mobile / How to download data from iphone app DianeH - not yet - planning to do this soon on the site, will let you know when I get it done!Thanks for getting the app, please feel free to leave feedback on the app store if you like it. Simon |
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Feb 25, 2011
marke
686 posts
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Topic: General Discussion / Blog: "DIY DAFNE" - An Diabetic Outsider's View Mike,I take your point about the huge variation from PCT to PCT. Mine reduced the DESMOND course down to a half-day 'brief' which pretty much defeated the point of it. Sadly there are no strict rules over what constitutes structured education. There is/was an initiative to ensure courses ARE to an approved standard its called QISMET and they now have a website. I volunteered to be part of its user committee but didn't make the grade ;-) However I should get the documents and outputs from it. Will it make an difference ? Who knows, but if you don't try.... P.S DESMOND doesn't include insulin education I don't think its aimed at Diet and Exercise I believe. With regards to michelle's comments, I think you hit the nail on the head ! The best thing for me about DAFNE was being in a room for a week with 7 other Diabetics who fully understood me becasue they went through the same things. I learned a lot from them as well as the course. For me it was one of the big pluses of the course, realising that lots of others have all the same problems and challenges as me. |
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Feb 25, 2011
graham burton
14 posts
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Topic: General Discussion / Blood monitors thnaks all but i want to make it easier for me and others with the metres to find a way of doing this if dafen can do some software design for the differnet metres to uplaod into the dafne online dairy be great |
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Feb 25, 2011
michellem
23 posts
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Topic: General Discussion / Blog: "DIY DAFNE" - An Diabetic Outsider's View I've just got home from finishing my DAFNE course after 29 years of DIY and have learned loads. I was also previously told it was what I was doing now with a bit more info and didn't really need to do it. I was never encouraged to do it but after some research of my own I asked to be referred. Sadly I had to wait a year before I got on the course.Although theoretically it is, as I was told, what I was already doing with a bit more info, the qualtiy of the info is the important thing. There is actual sound research, evidence behind it and I'm all for that. In terms of the ratio, the vast majority of the people on my course were put on 1:1 but only because that was similar to what we were taking already. The 2 people with vastly differing amounts were put on different ratios and one even altered hers during the course so it didn't feel overly prescriptive at all. The sick day rules are scary but make complete sense so when I am next ill I will acutually test for ketones (oops!) and give the rules a try. May help me feel better a bit quicker! The best thing for me about it all is feeling like I have some support at last from people actually going through the same stuff as me. Being with other Type 1's for a whole week and now having a forum like this is fantastic. |
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Feb 25, 2011
everydayupsa...
2 posts
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Topic: General Discussion / Blog: "DIY DAFNE" - An Diabetic Outsider's View Hi MarkDon't worry, I didn't feel there was any criticism in the posts here, I was interested to see some this forum in the blog stats and popped by out of curiosity. NovoRapidBoi has spoken highly of the support he finds here on another forum. Regarding the 'default values' thing... here's a snippet of a forum post I read earlier this year:
I've heard of DESMOND, though I've not really looked into the content of the course, I'm not sure if it deals with insulin dose-adjustment strategies (though I don't think it does unless that is covered on the 'Foundation' version of the course). I suspect some sort of structured approach would massively benefit insulin-using T2s especially since there are more insulin-using T2s than there are insulin-using T1s(!) I got quite fired-up about the dreadful lack of carb-counting (and other) education which diabetics are subject to up and down the country and ended up writing to everyone and anyone to highlight the issue. Sadly, National Diabetes Framework or no, it is down to the individual PCTs (or whatever comes next to replace them) to decide what constitutes an appropriate, structured education/support programme for diabetics as suggested in the NICE guidelines. If they decide an afternoon in clinic and an A4 handout is enough, then as far as I can tell they are not obliged to put any more budget toward it than that. As you say, there is more to DAFNE than the carb-counting support, and it is important that this is understood by the (many) long-standing diabetics who don't follow up on DAFNE because they think it has little to teach them. You might find this interesting: The carb counting black hole |
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Feb 25, 2011
novorapidboi26
1,819 posts
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Topic: General Discussion / Blood monitors I use both the online diary and my own homemade booklet for recording my results.............I find that a paper copy is very valuable as it is the basis of all things DAFNE, you can spot patterns there and then and get a picture of what is happening more accurately, for me the online diary gives a clean tidy format to present to your HCPs and conveniently gives you some BG averages which is nice when attempting to predict your HbA1c............... Each to their own eh........... |
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Feb 25, 2011
graham burton
14 posts
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Topic: General Discussion / Blood monitors JWO - yes i am, i have the one of the accu-chek metres that i use where i have to than write doen the blood level in the dafne book.i want a metre where i can do the blood test and also within the metre to say how much insulin i have given and than upload it to the internet via usb, wi fi etc. marke - i think yes that sounds like what i am looking for any info on this be great when you busy running around you have to try and find the book or than find a pen to write it in and than come to the computer to uload the data on to the dafne dairy which is look at the book and type in. |