Recent Posts - DAFNE Online

Mar 13, 2011

marke 681 posts

ha, and I thought I wasn't tactful :-) I agree with what you say, not sure I would have been quite so blunt about it but each to their own !

I refuse to let Diabetes limit me in what I do, I might have to be a bit more organised and prepared than some but thats probably a good thing. The world is minus
plenty of people that went climbing mountains/skydiving/etc without being prepared properly.....

Mar 11, 2011

HelenP 218 posts

Topic: General Discussion / Insulin Pumps

Well my pump and I have been friends since Wednesday...initially very concerned but am now beginning to trust it more! Doing BG tests very frequently (hourly). The Credentialled Diabetic Educator (not a pumper) failed to "enable" a function on the pump that allowed for boluses! before she went home. So there was some s..t hitting the fan for a while but I now think my endo is impressed with my manual reading skills! (and confidence to fiddle!). Helen

Mar 11, 2011

PNThompson 57 posts

Mar 13, 2011 marke 681 posts	Topic: General Discussion / Census Form ha, and I thought I wasn't tactful :-) I agree with what you say, not sure I would have been quite so blunt about it but each to their own ! I refuse to let Diabetes limit me in what I do, I might have to be a bit more organised and prepared than some but thats probably a good thing. The world is minus plenty of people that went climbing mountains/skydiving/etc without being prepared properly.....

Mar 11, 2011 HelenP 218 posts	Topic: General Discussion / Insulin Pumps Well my pump and I have been friends since Wednesday...initially very concerned but am now beginning to trust it more! Doing BG tests very frequently (hourly). The Credentialled Diabetic Educator (not a pumper) failed to "enable" a function on the pump that allowed for boluses! before she went home. So there was some s..t hitting the fan for a while but I now think my endo is impressed with my manual reading skills! (and confidence to fiddle!). Helen

Mar 11, 2011 PNThompson 57 posts	Topic: General Discussion / Census Form I feel that it has changed my life and does limit my activities. Simple things like driving a car is not a case of just jumping in the car and driving off. Technically we should check our blood prior to driving, so there is an impact. Since completing DAFNE we need to calculate the CP and have an injection so diabetes does effect my life though it isn't that significant.

Mar 11, 2011 HelenP 218 posts	Topic: General Discussion / Census Form Think how your life would change if you were suddenly not diabetic...then you would realize how effected your life is. Maybe we have all been diabetic for too long and have lost our sense of "normal". I'd tick b). Helen

Mar 11, 2011 caroline15 45 posts	Topic: General Discussion / App Just an update. Amy got her pump today, (Paradigm Veo) we go live on 21st March. She had yet another dose of DKA this week, four weeks after the last one - definitely hormone related.

Mar 11, 2011 moyesy 10 posts	Topic: General Discussion / Census Form Seems to have caused quite a lot of different opinion and that's to be expected. I think that I'll stick with my answer b as i do feel that diabetes certainly limits what I do if only being aware that if I were to decide to climb a mountain (God forbid) then I would certainly think would it be sensible to do in the light of my diabetes

Mar 11, 2011 vic demain 87 posts	Topic: General Discussion / Census Form Be it climbing a mountain, jumping out of an aeroplane, scuba diving or more mundane activities like dancing the night away, rowing down the Thames or getting lashed, all are affected by diabetes.

Mar 11, 2011 novorapidboi26 1,819 posts	Topic: General Discussion / Census Form Well put marke................. Some people may feel limited, others not.........so answering honestly is the moral of the story as the census is all about getting a feel for the people taking part...........

Mar 11, 2011 marke 681 posts	Topic: General Discussion / Census Form Vic, for me there is a difference between 'affected' and 'limited'. I agree we are all affected but I don't consider myself 'limited' in anyway. For any activity regardless of your condition you should do some sort of preperation be it climbing a mountain our just going to work. I ticked 'c', but that just a personnal opinion and others may feel 'b' or even 'a' is more applicable.

Mar 10, 2011 moyesy 10 posts	Topic: General Discussion / Census Form Hi I would agree with Alan Constable that each individual should complete the Census Form in accordance with his/her opinion of what a truthful answer is. In my case diabetes has an influence in my life style and I don't climb mountains everyday of the week. I would suggest that Alan's life may have been improved as a result of attending DAFNE. He is fortunate to have been there as am I (considering the waiting list for places/ the limited numbers that can attend. I put forward the question to gauge the response generally and not to influence how others should respond.

Mar 10, 2011 Alan 49 284 posts	Topic: General Discussion / Census Form The question is directed at each individual on the census form, so it is that person's opinion about whether it limits his or her activities. We should't be answering it on behalf of other people. In any case, there is no way of linking answers to medical conditions such as diabetes. The question does say 'day-to-day activities', which, for me anyway, does not include climbing up mountains.

Mar 10, 2011 meltow 78 posts	Topic: General Discussion / Census Form Although I ensure that my diabetes does not have any control on my life, you are right we need to indicate (b) on the census. Many of us do self manage the condition, but what about the scores of us who don't, or can't. Plus, today I can manage my condition, but what about tomorrow and the day after. Reading behind the lines, if our answers on the census may have any influence on spending within the NHS we need to take care when answering this question. My vote goes for (b).

Mar 10, 2011 moyesy 10 posts	Topic: General Discussion / Census Form I would tend to agree with those that say it affects you. If not denying would suggest that we al can ignore diabetes and the way it influences decisions. Yes we can control it but we ignore it at our peril. How many of us would drive if we were having a hypo ? If we all put (c) No then the Coalition Government will decide diabetes care can be cut, DAFNE can be done away with, testing strips are pointless. Remember we won't get another chance to tell Government that our daily lifes are influenced by Diabetes. How many of us would opt to have diabetes if given the choice ??

Mar 10, 2011 vic demain 87 posts	Topic: General Discussion / Census Form Day to day activities have to be affected because, as a diabetic, you are not free to do whatever you want. You need to take regular medication and you need to eat regularly. You cannot decide that you are going to go climb up a mountain and take nothing with you, because of your illness you have to take fuel and medication, so you must be affected.

Mar 9, 2011 Stew B 125 posts	Topic: General Discussion / Census Form Haven't had our form yet, so is this a single person question or a question to be answered in respect of every household member individually? The question doesn't ask if you have a long-term illness or disability, but whether day-to-day activities are limited by one. I'm not sure about the value of the question, presumeably the government gets its statistics about long-term illnesses and disabilites via the NHS - does the accompanying info give any idea about what the government sees as the value of its individual questions? Sorry, must stop trying to understand these things... I'll probably tick "c" when the time comes. Stew

Mar 9, 2011 Alan 49 284 posts	Topic: General Discussion / Census Form I agree with novorapidboi, I like to think that I control my diabetes - not the other way round. DAFNE has been a great help in this. I do much the same things as other people of my age who don't have diabetes. I put 'No' to this on the census form.

Mar 9, 2011 novorapidboi26 1,819 posts	Topic: General Discussion / Census Form its changed in the way I think about my health and obviously the physical act of maintaining blood sugar through testing and injecting, but the course of my life and the things I have done have not been affected by the condition. It doesn't limit me to anything, but I suppose everyone is different, some people may insist on it affecting every decision an thing they do out of fear of complications, others may take a more relaxed attitude, and we know there are a few who don't really give a toss about it

Mar 9, 2011 moyesy 10 posts	Topic: General Discussion / Census Form I am surprised by some answers here. OK diabetes is not life-threatening (most of the time) but I do think it places limitations at times if only in some kind of restraint in food & drink. How many people with diabetes can honestly say that their life has not been changed by it ? Not many I would think

Mar 9, 2011 novorapidboi26 1,819 posts	Topic: General Discussion / Census Form I too don't see the condition as limiting, or in fact hypos as such either, as I can deal with them quickly and effectively 99% of the time. However I would probably select B as it would mean I may be contributing to possible future services that might be help/accommodate diabetes and other conditions in day to day life..........what could these be,......who knows, but you never know........

Mar 9, 2011 michellem 23 posts	Topic: General Discussion / Census Form I'm not sure. I don't think that generally my life is limited at all by my diabetes. I eat when I want, more so since DAFNE and it's never stopped me doing anything I wanted to. I do agree though that hypos can affect things but doesn't really happen enough that I find it limiting. Hmmm, food for thought!

Mar 9, 2011 Garry 328 posts	Topic: General Discussion / Census Form I would agree. Yes, limited a little. We are certainly limited in terms of timing throughout the day. I try to keep pretty consistent timings for meals. For me personally it helps me understand what is going on.

Mar 9, 2011 JayBee 587 posts	Topic: General Discussion / Census Form I personally would put yes to b I think, because you're not always going to be 'on the ball' when it comes to things like concentrating if your sugar levels are low. Depends how you see your condition...