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Feb 25, 2011
DianeH 7 posts

Topic: DAFNE Online Mobile / How to download data from iphone app

Hi again. I have recorded today's results in real time and it's a great improvement. When I came home I set the app to "Diary Sync" but it hasn't done anything, even when docked with the computer. Do I have to tell the main programme that I want to upload and if so, where? I don't try on the iPod cos he print is tiny but I think the site contents is the same as on the computer.

Thanks for any help. I am new to this gadget (iPod touch)
 
Feb 25, 2011
vickyrees 6 posts

Topic: General Discussion / TYPE 1 PREGNANCY

Thank you all for your advice - it is greatly appreciated
 
Feb 25, 2011
vickyrees 6 posts

Topic: General Discussion / Losing Control

I feel very lost and out of control I put everyone elses needs before my own and as a result this impacts my usual pretty good control. I am 33 and was diagnosed with diabetes when I was 13/14 years old so thats 19/20 years ago. I have had a daughter five years ago and a temporary diabetic doctor doubted that another pregnancy would be a good idea due to a very slightly leaking kidney now my health care team who I have known and trusted and took great care of me during my first pregnancy are saying yes there are risk but if I have good control then everything "Should" be fine! I got the green light to start trying as my HbA1c was under 7% but Polysistic Ovaries kicked in and cause me to have fertility issues, I am now seeing this as a sign and after speaking to a number of people some say go for it and some say that I should think about the risks "is it worth it". I don't think I have ever been this lost ever and which direction to take.

Due to my uncertainty I have given up on myself, gained weight, lost control with my usual BG routine and I just feel that I can't take anymore. I think all I need is a day to get my head on track but that day is always put off for the next and next and I just want someone to motivate me to get up off my bum and get healthy again. I don't mind REALLY i don't if the doctor said look Vicky it really looks like if you were to have another pregnancy that you are at very high risk therefore we wouldn't recommend it but I have mixed messages and I really don't know what to do. I know Diabetes is not an exact science but I don't know what i'm doing.
 
Feb 24, 2011
Garry 328 posts

Topic: General Discussion / 4mm needles

Seem to remember when I started out on insulin that I was give two reusable needles to put on my one glass syringe. They were 2" long 21 gauge. Many moons ago however.
Then revolution.... disposables..... and at that time the smallest diameter 12.5 mm disposables were 26 gauge. Pleased to say that much smaller needle diameters are now available.
There are so many pen types out there now. Your HCP should provide you with sufficient info to help you make an informed choice and supply you with some options to try. Bear in mind that syringes mean that the needle you use has already been used once in piercing the insulin bottle cap seal before you use it on yourself.
BD disposable needles are available in all the sizes mentioned and some lengths in between too. Length to use really depends upon where you inject and how much subcutaneous fat you have in those areas. I don't carry much fat so am happy with 4 mm and I rarely bruise using them in stomach and thighs.
Current 4 mm long are now 0.23 mm diameter - or old 34 gauge.
Smaller diameters are so much more comfortable to use.
Regards
Garry
 
Feb 24, 2011
caroline15 45 posts

Topic: General Discussion / Type 1 Diabetes and the Art of Parenting...

It's funny you say about the "I'd give anything to take it away from you". I thought I'd done that - when Amy was four I was diagnosed with MS and when she was seven I was diagnosed with T1 - I was grateful that it was me that got something wrong and not Amy (she is my only child). Unfortunately it didn't stay that way and she was diagnosed with T1 at age 11. At least we both know what a hypo feels like, so we can empathise with each other and she helps with finding fast acting carbs Smile

On the memories of first day of diagnosis, I took Amy to the hospital after school for a blood test (having already got the form from my GP as she'd started having wetting problems) and to reward her for being brave about the big needle I bought her a big bar of galaxy on the way home (what an idiot!). We were eating our tea when we got a phone call telling us to go straight to the children's ward. I can't believe that I didn't realise she was diabetic.

 
Feb 24, 2011
ReNZoR 5 posts

Topic: General Discussion / 4mm needles

I am still on 12mm syringes as I have been since I was diagnosed in 1993 (Dislike the NovoPen). My doctor is being slow at changing my prescription. Going to have to book an appointment soon and see what is going on. Are the shorter syringes more comfortable?
 
Feb 24, 2011
marke 681 posts

Topic: General Discussion / Blog: "DIY DAFNE" - An Diabetic Outsider's View

My thoughts will come as no suprise, I did after all start this site with Simon, the article like most that have not done DAFNE misses the point conpletely. Just becasue the name of the course includes a reference to eating people presume thats all it is. Those that have done the course know different. Unfortunately it seems that even some of those in the medical profession don't get the point.
DAFNE is evidence based, this means it is based on lots of research and a large amount of data that proves it works. Doing it DIY or doing a PCT version of DAFNE is NOT the same. Changing the course to 5 x 1 day a week is NOT the same. Evidence is base on fact not presumption. This sadly is where it does need a louder voice, to make people understand its more than just carb exchanges and the body of evidence that supports it.
I have no problem with people adjusting their insulin themselves and I too did it pre-DAFNE, however it is niave to compare this to DAFNE and believe you are doing 'the same' as DAFNE. You are not.
Anyway, my views, interested to hear what others think.
 
Feb 24, 2011
JayBee 587 posts

Topic: General Discussion / Blog: "DIY DAFNE" - An Diabetic Outsider's View

Blog entry: DIY DAFNE

Came across this blog today and found it interesting because I understand what they see when it comes to DAFNE (I used to do the guesstimation stuff pre-DAFNE!) but I don't think they see everything DAFNE has to offer at the same time. I feel there is a possibility of DAFNE being shrugged off due to a brief outside view!

For example, how does this person cope when it comes to serious sickness?
Do they just go to the hospital like most of us would have done pre-DAFNE?

I don't know about you, but I was genuinely amazed and frightened about how the DAFNE sick day rules worked - but they do work! It's quite natural for someone who has not done DAFNE to think "oh I couldn't possibly do that" because of the risk of taking the action - it is a lot of insulin to take on such a regular and hourly basis!

Before I did the DAFNE course, my doctor's rough explaination of DAFNE was along the lines of "it's what you do now, but with a bit more information" ... something like that - and I think that's a great thing, not a reason to pass it by.

It's all well and good you DIY'ing your control, but if you can get the research results from day one - good golly, it sure saves a lot of hassle! I don't think it'll be possible to figure out post-hypo sensitivity on DIY alone as well - another hassle saver from DAFNE!

What are your thoughts on this? How do we feel about how well DAFNE stands out within the diabetic community?
Does it need a stronger or louder voice?
 
Feb 24, 2011
JayBee 587 posts

Topic: General Discussion / Type 1 Diabetes and the Art of Parenting...

Thanks for your posts, I think this is a great subject to talk about... even though it can be a touch sensitive.

It can be quite sad how life works out when it comes to having the condition. I've never really had any one to relate to so I'm glad your daughter has you caroline15. Your post does remind me of all the times when I wasn't feeling very well my Mom would say to me "I'd give anything to take it away from you." ... even now, I don't think I'd be prepared to give it to either of my parents.

Fascinating video interviewing 4 families that have a Type 1 Diabetic child

One of the questions: What sort of memories do you have of your first day of diagnosis?

All I remember is my Mom getting me into the car and driving me to the hospital. For some reason me looking out the window at the sky particularly stands out in my memories.
Not long after my diagnosis, my Mom bought me a regular can of coke and at the time, I became very sick. For years I thought it was because of the coke - turned out I had a stomach bug!
 
Feb 24, 2011
grandma carol 61 posts

Topic: General Discussion / Not impressed x 2

I was the same since last Sep. when I went on the Dafne and had very high readings all day and even with the corections it would not come down. I have been testing through night and have been hypoing through night and dident know it. I have now got my BI down from 20 to 8, and from the start of this year have not been to bad. Because of the highs in the mornings I had been putting the BI up. I injected for years in my stomach but now I move it around and things have started to get better it has taken a long time and I thought that this wasent working for me but with sticking with it, its starting to work.
Hope things get better for you keep at it good look.
 
Feb 24, 2011
Karl 83 posts

Topic: General Discussion / BG Graphs

Yes - it comes up as a printer - just pick that and print
 
Feb 24, 2011
Garry 328 posts

Topic: General Discussion / Not impressed x 2

I see you use your stomach for all injections.
Do you have any lumps or bruising problem areas Jo?
I found when using large doses that it was necessary to spread things around to get repeatable insulin absorption.
Have you discussed alternate injection sites with your HCP?
Try not to miss BED result - and possibly some 03:00 am results especially when changing BI - you need as much info as you can get.
Stick with it. I can imagine that you may be a little dispirited at the minute - but your results seem more controlled. You will put it right.

Garry
 
Feb 24, 2011
Jo Penn 24 posts

Topic: General Discussion / Not impressed x 2

Well here are the next lot of readings - including an increase in basal to 32u BD :-( bring on the weight gain.. my team are well confused and not sure whats happening and feel very out of the loop.

So gonna write a complaint; compile correspondence (lack of) and get some pump info

Jo
 
Feb 24, 2011
DianeH 7 posts

Topic: DAFNE Online Mobile / How to download data from iphone app

Thanks Dr.Jamie. I'll have a go!
 
Feb 24, 2011
novorapidboi26 1,819 posts

Topic: General Discussion / BG Graphs

Good call Karl, I take it once installed it gives you the cute pdf option within the print options.....
 
Feb 24, 2011
Dr.Jamie 2 posts

Topic: DAFNE Online Mobile / How to download data from iphone app

Hi Guys
Thanks for your help I have now managed to get my results to the online records. It was really easy when I was shown how. Thanks

Dianne
To answer your question the dafne app allows you to record your results without being online I am terrible at recording results in a paper diary but I always have my mobile with me so it's simple.
If you need any help just ask as I am pretty confident on how to use the app now
 
Feb 23, 2011
DianeH 7 posts

Topic: DAFNE Online Mobile / How to download data from iphone app

Hi

I have just acquired an iPod touch. I have the carbs and cals app but where can I get the diary one? I have been logging some of my results but have poor wi-fi access near my work locations and cannot get onto the site without internet. Does the app help?
 
Feb 23, 2011
Karl 83 posts

Topic: General Discussion / BG Graphs

install CUTEPDF http://www.cutepdf.com/products/cutepdf/Writer.asp then print but pick cutepdf - it will ask you to name the file and make a PDF instead of printing - best of all its FREE
 
Feb 23, 2011
Stew B 125 posts

Topic: General Discussion / BG Graphs

Or perhaps you could persuade him to sign up as a HCP, and then you could share them with him...

Stew
 
Feb 23, 2011
Steve Whitfield 8 posts

Topic: General Discussion / BG Graphs

Hi Novo

Yeah i have done this before so will do that for him. Thanks for your help.
 
Feb 23, 2011
SimonC 78 posts

Topic: General Discussion / Dispatches - Hospital Food

I have also had similar issues to Marke.

Twice in my Diabetic life I have been hospitalised - shattered my left leg twice, 5 years apart. At the first hospital they had me rigged up to a drip and a sliding scale, which was playing havoc, plus the food was rubbish - it got to the point where after the second day I told them in no uncertain terms that if they didn't remove the drip, I would a) remove it my self, and b) make an allegation of criminal assault against them as I was withdrawing my consent as their treatment of me was not in my best interests. This obviously didn't go down well with the control freak ward sister, but it had the desired effect and I was able to test and control my diabetes myself.

The second time I had learnt my lesson - all be it at a different hospital, and I told them they could only put me on the sliding scale whilst I was under the general anaesthetic, but as soon as I was awake and aware I would be managing my condition myself - this prompted a very terse meeting with the ward sister and (for some reason) some administrator, but I got my own way.

This was all pre Dafne, but I am sure not much has changed, as wards are areas of generalism not diabetic specialists, but remember - it is your body, and they need your consent - unless you are unconscious, when they will act to save your life - and they are very good at this, but once awake, it is for you to decide, not them, don't be pressured by them, be firm - or down right rude in my case, you know far more about your condition and your body than they do.

It was also interesting to watch the C4 (I think) program on last night with the chef (can't spell his name, but you know the one I mean, the fancy one who makes stuff out of liquid nitrogen) and see the rapid improvement in the quality of food at the Alder Hay.
 
Feb 23, 2011
novorapidboi26 1,819 posts

Topic: Carbohydrate Counting / Spirits and Wines

Depending on your sensitivity to carbs and insulin of course, you could just round up, that's what I do all the time, that means I can be sure I will be on target, even if on the lower side, but I seldomly am on the lower side strangely, if your having something that is 1.5CPs (15g) and only that then just disregard it, if more than one you could try even numbers, then you will be sorted.........

As I say, some people need to count there carbs right down to one decimal place, but if that's the case then pumping is the best option....

Try rounding up, record your results and then make a decision on whether you should be so accurate...
 
Feb 23, 2011
novorapidboi26 1,819 posts

Topic: General Discussion / LOL

That made me LOL, I think it should be changed to Levemir or Lantus..........
 
Feb 23, 2011
novorapidboi26 1,819 posts

Topic: General Discussion / BG Graphs

Dont think I have came across a way either, this might be a bit technical but if you get the graph up on the screen so as you see it in its entirety, then hit the 'print screen' button, up the top right of the keyboard, open up paint or some similar picture editing tool, edit then paste..............this then pastes the graph as a picture which you can then save, you can then email them as picture attachment......not the best but works.........
 
Feb 23, 2011
ReNZoR 5 posts

Topic: DAFNE Online Mobile / How to download data from iphone app

Hey Smile

Open the app, tap Settings in bottom right corner, and turn on "Diary Upload". That should do it Smile

I run the app on my iPod Touch, so I have to wait until I am back home within the range of my Wireless router before anything gets uploaded, but if you have roaming internet - I assume that should upload from wherever you are.

Stu