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15,847 posts found
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May 24, 2011
Chazza
2 posts
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Topic: General Discussion / help they just sed it was trial and error and cud contact them as and when i wanted but they cannot for security reasons discuss it on a telephone. it wud be good to get them on the fone.ill try the breakfast thing and see wot that does thanx |
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May 24, 2011
michellem
23 posts
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Topic: General Discussion / BI back down? HiMy BI is Lantus and I've been on 16 units for ages. Every now and again I've put it up but had laods of hypos so put it down again. A couple of weeks ago I was running high all the time and was correcting at every meal so decided to up my Lantus to 18 again. Hypo'd all day for a couple of days so reduced to 17. I'm still having quite a few hypos and am really worried about having night hypos (my BIG fear) so am thinking about going back down to 16. Any thoughts? |
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May 24, 2011
AllanR
15 posts
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Topic: General Discussion / Diabetic Survey Interesting questions. Think they missed off the biggy though "how would you feel if they got rid of all the pointy things" though
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May 24, 2011
novorapidboi26
1,819 posts
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Topic: General Discussion / Diabetic Survey money money money.......
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May 24, 2011
novorapidboi26
1,819 posts
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Topic: General Discussion / help WOW, thats a lot of information..............I think that your PM BI dose is nearly there as you have been holding steady, however your 4 am test suggests you drop first then come back up for 8:40...........so there may also be some dawn phenomenon taking place also..............some more carb free evenings then some 3, 4, 5 am tests to see exactly whats going on overnight, but as i say you might be neary there already................. When you get up you dont have any carbs/breakfast, yet your numbers rise, this would suggest you also need to increase your morning BI, you should only try and tackle this dose when your happy with your overnight dose.................when your BI doses are right, your insulin/carb ratio should fall into place..............I suffer from dawn phenomenon and I find that not having carbs for breakfast results in my numbers rising, as my liver continues to dump glucose, when i have carbs, this stops and my numbers go down till lunch, i know from personal experience that eating is the last thing on your mind when numbers are that high, but its definetly something to consider when your numbers come down....... what advice did the DAFNE folk give you when leaving................. |
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May 24, 2011
AllanR
15 posts
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Topic: DAFNE Online Mobile / Android app 2.2 here, and that was a fight of a lot of complaints fired at the network provider to ship it. Nice thing though is Ice Cream Sandwich which is Android 3.1 for phones (there's a joke in there about CP's) is going to supposedly regain control of this mess and most phone companies and providers have signed up to a unified shipping policy for "all" phones. Now that's going to be the big question as what they mean by "all" but guess we'll see when it appears around October ish.In the mean time till there is a DAFNE app, have been using OnTrack. Very nice lil app if not quite perfectly fitting to DAFNE. But handy none the less. |
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May 24, 2011
ClaireH
14 posts
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Topic: General Discussion / Levemir versus Lantus
Thanks Melissa I'm told split lantus should make no difference I'm doing 3, 4, 5 and 6 AM tests as Im off this week and can. I have learned i start to peak just before 7 and it rose from 6.2 at all those times and 06:30 to 12.4 at 7am and 13.5 at 07:30 ....... most odd I'm waiting to be seen next week now Claire x |
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May 24, 2011
Chazza
2 posts
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Topic: General Discussion / help im not sure where i am going wrong can anyone give some more advice i only did my course last week |
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May 24, 2011
chrisinbrum
41 posts
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Topic: General Discussion / Diabetic Survey Well for a 'quality of life' questionnaire to be useful it needs to ask detailed questions about your life. I'm happy to be fully involved in the research and if that helps to make a better questionnaire so that in the future services for diabetics are better able to understand the impact they have on our quality of life I think that's a good thing. |
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May 24, 2011
Garry
328 posts
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Topic: General Discussion / Diabetic Survey I agree...and as a consequence unwilling to supply further info. |
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May 24, 2011
novorapidboi26
1,819 posts
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Topic: General Discussion / Diabetic Survey
 They seemed a tad emotional to me..........did you complete the extended section..........?
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May 24, 2011
Garry
328 posts
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Topic: General Discussion / Diabetic Survey Done....a little surprised by some questions however! |
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May 24, 2011
novorapidboi26
1,819 posts
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Topic: General Discussion / Some advice please There could be many reasons for this, but if it was me, on ratios as high as that, I would, as I have ranted on before, get the BI up , right up, dont be scared..........You can get help with resistance, like metformin, but that comes with a whole load of other problems/side effects............ Any chance of not eating lunch, and no correction, and posting dinner time readings..............? |
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May 24, 2011
derekh1965
90 posts
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Topic: General Discussion / Some advice please this is a joke!!looking at all the insulin I had this morning and my BS before breakfast, which was 1 slice of toast and 2 boiled eggs. Just tested before lunch and I am 13.4!!! Just how insulin resistant am I!! |
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May 24, 2011
novorapidboi26
1,819 posts
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Topic: General Discussion / Some advice please I am on Levemir Insulin, been on Lantus and Humilin I, Lantus didn't last 24 hours and I tried Humilin I to tackle DP as it has more of a peak, but it didn't help.......I admitted defeat to DP purely because I didn't KEEP upping my dose as it wasn't having an effect, I was still high in the morning, so I stopped increasing, it took a fresh look from my DSN to get me to try and keep increasing it, that is the step wise approach we have been taught at the DAFNE courses, it sometimes easy to forget that..... Its all a process of elimination, and it may be the case that your morning highs just wont be beaten and a pump will be needed, but you need to try increasing first, starting wit the overnight dose, our BI requirements can change all the time, sometimes quite considerably, its a pain, but that's Diabetes for you........ |
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May 24, 2011
NiVZ
82 posts
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Topic: DAFNE Online Mobile / Android app
Hi Simon, Sorry, been busy as usual - moving house this Friday! Most phones out there are Android 2.x so it's probably best to aim for Android 2.1 that way it will work on all Android 2 and above phones. Biggest difficulty with Android is coding UI for different screen sizes and densities. Here's a quick guide I wrote to get the SDK all setup and ready to compile your first program: Setup Android Development Environment ------------------------------------- 1. Download and Install JDK 1.6 2. Download and Install Android SDK (if JDK not found, press back then next) 3. Use Android SDK to download required APIs (these are emulators of the Android OS - I just chose Android 2.1 and the Sample API Demo programs) 4. Create an Android Virtual Machine (AVD) - this is your emulator and can be configured to different screen sizes 5. Download Eclipse for Java (Helios) and unzip Eclipse to C:\Program Files\eclipse 6. Add Android ADT plugin to Eclipse by starting Eclipse and: Click Help -> Install New Software Click Add Enter Name: ADT plugin Enter URL: https://dl-ssl.google.com/android/eclipse/ (can try http:// if https:// fails) Click OK Click checkbox next to 'Developer Tools' Click Next Click Finish 7. Configure ADT Plugin in Eclipse Click Window -> Preferences Select Android from left panel Click Browse and choose Android SDK location Click Apply Click OK NiVZ |
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May 24, 2011
derekh1965
90 posts
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Topic: General Discussion / Some advice please Thanks for your reply novoraoidboi26. I am 19.5 stone and was under 19 before dafne, was trying to loose weight cutting out most carbs but diabetes nurse "streesed" to me my body needed carbohydrates, so I am taking carbs now and you can see the result, high BS and over 7lbs weight gain.You can see last nights bedtime BS, CP and insulin taken at 11.45 and I woke at 8.45 with a BS of 13.9!! I've tried taking upto 22 BI at night and still high. On sat 21/5 had 22 BI at 11.45, bed at 1am with an 8.4 BG and tested at 7.50am with a BG of 17.9!! What type of BI do you take? I had been on Humilin Isophane for years with the same high BS in the morning, put me on Lantus and had greater control but didn't feel right on it and asked to try animal insulin. Been off lantus for a couple months now and don't feel any better so it probably wasn't the lantus that was making me feel bad. Got DAFNE review on 6th June so see what they say. Bests regards Derek |
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May 24, 2011
MelissaF
56 posts
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Topic: General Discussion / Levemir versus Lantus Hi Claire,Just another idea for you... I've been having the same problem recently (OK at 3am tests and then high in the morning) and I assumed that it was dawn phenomenon and that I needed to up my BI to compensate. I currently have a very good diabetes nurse who said that, looking at other hypos I'd been having over the course of the day, she thought that it might be too much BI and nightime hypos between the 3am reading and waking at 7am that were causing the highs on waking. I've been doing some experiments and she was absolutely right so I've dropped the nightime Lantus right back down again. This may well not be the case with you but it's something to think about if things still don't seem to be working. Not sure how you'd know - maybe test a bit later than 3am and see if it's dropping or rising then? Maybe if you're splitting your Lantus then there's a bit of an overlap somewhere between doses that's making you low? Good luck. Melissa xx |
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May 24, 2011
novorapidboi26
1,819 posts
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Topic: General Discussion / Some advice please You cant really compare, but I am about 16-17 stone, so overweight and my BI requirements are 30 in the morning and 38 at night, with a 3:1 carb ratio at breakfast, the remainder are 1.5:1........So, although we are not the same, my point would be, get your BI doses up, and continue to do so until you hold steady, you may be resistant to insulin but I suspect you could do with more BI, BI does lower your blood sugar if the dose is too high for your livers rate of glucose secretion........... The theory of rising BGs/liver dump when there are no carbs present is correct, or at least for me, but this wouldn't normally happen overnight when your body knows it should be asleep, only when the internal clock goes off and tells the liver to start dumping glucose in the morning (Dawn Phenomenon) would carbs help in turning off/suppressing the dump........... I realised this last week when I decided to go carb free at breakfast for a few days, BGs went up until lunch......... 
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May 23, 2011
derekh1965
90 posts
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Topic: General Discussion / Some advice please Hi markeThanks for your reply. The HCP told me BI does not lower your BS, although I suspected it did. You are right about me having to take a lot of insulin, never used to be like that. I would never have dreamed of taking that amount of insulin. If I have a portion of rice (200g) I need 24 units. Before I would have maybe taken 14. Last night bedtime you can see what carbs and insulin had and I woke this morning with a BS of 13.7!! This is really p^^ing me off, Tonight my BS was in the normal range, had 2 CPs and 8 units of QA so will see what my BS is in the morning. If it is high then I am very confused and clueless. I took 18 BI last night and 18 tonight as you are right I was chopping and changing too often. thanks and best regards Derek |
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May 23, 2011
marke
681 posts
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Topic: General Discussion / Some advice please Hi, well BI won't affect Dawn Phenomenon so don't try to use it to do that. Also I'm a bit worried about the variations in your BI in the evening. You shouldn't be changing it that radically and that often. You won't see a pattern if you keep changing it so much so quickly. You need small changes and slowly (2-3 days at least between changes).The tues/weds/thurs you hypo-ed and so this could case fluctuations in your BG's. You need to settle on getting your BG right and changing it slowly. A few days of high BG's is NOT going to cause any damage and it will let you get things under control slowly. ALL insulin affects your BG, thats its whole purpose so I don't know who told you BI doesn't affect it. Yes BI is primarily to keep you BG steady not cover CP's but it does have an effect and it is the key to good control. Get it correct and you will find things much easier. It does look though from your readings that you are insulin resistant, you seem to need a lot of insulin for not much CP and if I injected that much QA I would be straight to A&E ! Have your Diabetes team not discussed insulin resistance with you ? |
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May 23, 2011
marke
681 posts
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Topic: DAFNE Graduate Group (DGG) / DUAG and Hospital Staff Hi wullie, as the DAFNEOnline DUAG Rep I will take your suggestion to the relevant people. I'm not totally clear what you mean in point 1. In theory all DAFNE educators receive the same training and are all quality assessed, so the course should be the same regardless of where and when you do it. How do you mean there were differences in the way people where trained. With regard to point 2, it sounds like a good idea in theory how easy it will be to achieve in reality is hard to say but I will certainly take the suggestion forward and let you know what feedback I get. One of the objectives of the DUAG is to increase awareness of DAFNE and this certainly fits in that description. By the way I too had similiar experiences in hospital, fortunately/unfortunately depending on your viewpoint no one tells me how to treat my Diabetes. A Nurse did try and found out pretty quickly I wasn't going to do what she said rather than what I wanted. Without exception all medical staff I encountered had never heard of DAFNE and found the idea of a Diabetic managing their own care an unusual concept. I did my bit to educate them  I would urge anyone who has done DAFNE and is told by medical staff not to follow it, stand your ground and insist unless they can provide a clear and reasonable explination as to why you should not. This is 2011 and nowadays doctor doesn't necessarily know best. |
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May 23, 2011
JayBee
587 posts
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Topic: General Discussion / Diabetic Survey Consider it now done! ^_^ |
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May 23, 2011
novorapidboi26
1,819 posts
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Topic: General Discussion / Diabetic Survey On my way over now..............
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May 23, 2011
marke
681 posts
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Topic: General Discussion / Diabetic Survey All,We have been requested by someone at University College London to post a link to a survey they are conducting on Type 1 Diabetes. The link is here and we would encourage everyone to follow the link and do the survey. The results of this survey may not benefit us immediately however it is a chance to express your opinions to people that want to listen and compile results besed on what we say. It might not make a difference to anything, but then again it just might and unless we try we will never know. so go on click on the link you know it makes sense
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