Recent Posts - DAFNE Online

Apr 10, 2012

Carolin 83 posts

Topic: Questions for HCPs / Accessibility for Blind/ VIP diabetics

Faulty Headlights said:
Day one and I'm finding it all ok but was wondering if I could get the book that gives the carb portions as a pdf or pref word doc?
the carb counter on this site is accessible but there isn't as much info as in the book.
I'm currently looking for other ways to help me count carb, i know there is an iphone ap that reads label, OCR but way too expensive.. i'm just wondering what i do when i'm out on my own and can't read labels or judge a portion size. Hmmm
thanks for your quick response.

Hi,
I wondered how you eventually got on through the week and what adaptations the DAFNE team made for you? What helped? What else is needed?
We are continually asked about developing resources for VIP and would really value your feedback.
Thanks,
Carolin

Apr 10, 2012

SA2010 69 posts

Topic: General Discussion / What has gone wrong with Lantus adjustments

Thanks James - will stick with 7 and 4. You see I did not want to get to recalibrarting my QA:CP ratios until I got the BI perfectly right -which does mean extending the carb free test period !

The 8th March evening meal was over an extended period and I did not know what was going to come next so that is why I split the QA dose for starter and main meal. The 14.3 BG reading at 21:55 was probably due to beetroot soup which had 1 CP which I did not count because thinking it was just a vegetable and also there was probably half an apple in one of the starters so I was 1.5 CPs out in my estimate but I think the beetroot soup was fast acting carbs!

Yes I have been doing half unit corrections and that was the reason I thought I needed the Demi pen as I believe I am senstitive to insulin. I could have had 1 QA unit this morning as correction instead of half. But yesterday's lunch time correction of 1 QA unit with BG at 9.3 should have been adequate. This was day 2 with BI @7 in the morning so any delay in the increase in Lantus should have settled down by then.

I do not want to introduce CPs yet as that would confuse the matter and make it difficult to establish what the BI should be. The trouble is that any change to BI takes 2-3 days to settle down.

[PS had the wrong time in the BG Diary for the BG 14.3, it was 50 minutes after the start of the meal - now corrected as 21:55]

Apr 10, 2012

Carolin 83 posts

Topic: Questions for HCPs / Hypos when I wake

Hi Kev,
Remember, as well as potentially requiring reduced BI overnight, it's also important to 'refuel' after exercise, particularly resistance exercises where your muscles will be re-storing glycogen for several hours afterwards.
If you cannot find anough info in your course workbook, try www.runsweet.com for more on the nutrition side of exercise.
Good luck! Smile

Apr 10, 2012

novorapidboi26 1,819 posts

Topic: General Discussion / What has gone wrong with Lantus adjustments

Pretty good results on the 6 and 4 doses, your holding steady, all be it going slightly higher by the time your evening BI dose is due, but your AM dose may be running out/low by then, so to be expected...........

I see your correcting with half units of insulin, you mat feel this is needed, but my opinion is its not........

on the 8th at 21:05 you were 10.8, this should of been corrected with 2 units, if your following the rule 1 units drops 2-3mmol/l.....later that evening wrong carb count as you day messed up those results.....also you split your dose here for whatever reason [high fat content etc...] if it was the high fat content, the glucose release from the food may have continued well into the night and effected the next morning....

Alcohol usually drops the blood sugar by inhibiting the normal functions of the liver, you could of went low, then rebounded, but I don't suspect this in your case, its more likely delayed absorption, or in fact your BI.........you need more basal tests to confirm the 4 dose, it worked 2 days in a row, all be it, without carbs.........

I would remain at 7 and 4 and continue testing, the results of your basal testing so far are positive, I think the problem lies with your insulin/carb ratios and your corrections, in that you need that little bit more to get you on target. Bear in mind the higher you are, the less 1 unit will drop you...........

Apr 10, 2012

Darren.w. 9 posts

Topic: Questions for HCPs / Doctors

novorapidboi26]Remember you can use the PM facility if you need to ask your HCPs questions.......... Wink

The docs never use this site there are on the site but have never posted on any subject raised but other members, so the chances of them looking at there msg are very slim. but thanks for the idea.

many thanks Darren

Apr 10, 2012

SA2010 69 posts

Topic: General Discussion / What has gone wrong with Lantus adjustments

I thought I was almost there getting perfect BGs after a number of days carb free test meals to get the split Lantus dose correct. 6th April was the almost perfect day achieved and then the action following a low sleep BG of 4.8 at 03:45 and the easter dinner with incorrectly estimated CPs on the 8th April things went wrong.

After the number of days of carb free meals got to Lantus split dose of 6 with breakfast and 5 with evening meal.
To deal with the BG 4.8 overnight, I reduced the evening BI from 5 to 4 and increased the morning BI from 6 to 7.
Then the Easter meal got the starter estimate wrong by about 1.5 CPs. Felt bad with BG @ 14.3 during the meal. a shot of vodka with a glass of wine might also have been a factor. But since then BGs have been high all the time

Please have a look at the BG diary extract (my earlier post shows how I got to BI doses of 6 and 5)

I probably need to reinstate the BI dose of 5 in the evening - but presumably risk overnight BG going close to 4.5 or lower ( I do feel BG going below 5). So do I go back to 6 and 5 instead of 7 and 4? Or go to 8 and 4?

Apr 10, 2012

novorapidboi26 1,819 posts

Topic: Questions for HCPs / Doctors

Remember you can use the PM facility if you need to ask your HCPs questions.......... Wink

Apr 10, 2012

novorapidboi26 1,819 posts

Topic: Questions for HCPs / Doctors

Remember you can use the PM facility if you need to ask your HCPs questions.......... Wink

Apr 10, 2012

novorapidboi26 1,819 posts

Topic: Questions for HCPs / Dawn Phenomenon possibility?

It would be hard to answer your question as there is still too many variables on the page......you took 4 correction instead of your normal 5, this is an additional change to your BI change, so it could have contributed to your blood sugar level.............on the Saturday it seems you had some more carbs after dinner, desert maybe, this is an additional dose with its own profile, this too could have contributed to blood sugar levels.......by 00:33 you are still really high, is this BI or QA? It would seem QA as your BG then dropped by 3am [you had correction] and it still went up by morning.........

So lots of variables as I say, you need to eliminate as many as possible to get accurate results that can be used.......

When basal testing overnight, try to be strict, try and refrain from supper, and try and decide on what your dinner will be, including desserts/snacks after the main meal, before your eat.........

I would get a few nights like the one described above, just to be sure if you need more.......my strategy would be to increase the PM BI dose until you go low before or at the 3am mark, then you know your maximum dose for overnight.

If still high by morning, the DP is beginning after 3am and you may need to bring your time forward to later on, before bed even........this will give your BI dose more of a kick and longer duration while still holding your levels steady......

Apr 10, 2012

novorapidboi26 1,819 posts

Topic: General Discussion / Levemir doses

AM - 6:40 Monday to Friday - 30

PM 22:00 - Monday to Friday - 36

I weight 18 stone, 6 foot tall.............so more needed for me obviously.................but you should never think of doses at too much, you need whatever you need, simple as that.........in terms of BG control anyway, obviously you don't want to be overweight and you want to be taking as little insulin as possible.........but that's another hurdle to jump........... Wink

Apr 9, 2012

Anele46 109 posts

Topic: General Discussion / DAFNE Follow-on Training

Hi Peter,
Completed mine, sorry, thought I had done this already.

Cheers,
Anele.

Apr 9, 2012

Anele46 109 posts

Topic: General Discussion / The Best Meter?

Thanks very much DaveDee and Garry for your comments, I have dealt with Abbot in the past to get spare batteries and they have always been excellent to deal with and have sent out batteries and control solution very quickly with no issues.
I do prefer the Xceed for most things, epecially not having to worry about forgetting to charge it as the meter prompts you when the battery is running low giving you plenty of time to get a replacement before it dies whereas having had my Xceed for over two years now I would worry about forgetting to charge the Contour and from experience with Lithium rechargeable batteries they have a limited lifespan and is best to run the battery flat before charging to preserve the lifespan of the battery but wouldn't be able do it with the Contour and can see my self dashing out and leaving it plugged into the Mac or Mains.
Didn't know about the CoPilot software, must check it out however I tend to eport my Diary and use the Graphs from the DAFNE website but will definitely have a look Smile

Hmmm, think I may be swinging back round to my Xceed Very Happy

Cheers,
Anele.

Apr 9, 2012

moflaherty 5 posts

Topic: Carbohydrate Counting / Croissant the Rubicon

Thanks for that.

Apr 9, 2012

JayBee 587 posts

Topic: Questions for HCPs / Dawn Phenomenon possibility?

How interesting... and frustrating... looks like it's been made worse! XD
Do I really need more than 20 BI in the evening? Let's see what happens tomorrow I guess.

Apr 9, 2012

Peter 109 posts

Topic: General Discussion / DAFNE Follow-on Training

The DAFNE User Action Group (DUAG) is still looking for your feedback on the type of follow-on training being offered to graduates, and whether or not it meets your needs. If you haven't yet completed the short survey (10 questions), please take the time to do so. We would like the data we have to be as representative as possible of the community.

The survey can be found here: DAFNE Follow-on Training Survey

Many thanks.

Apr 9, 2012

JayBee 587 posts

Topic: General Discussion / Levemir doses

Hi all.

There seems to be quite a few threads about Levemir timings but I'm very curious about doses right now... and total taken.

I currently take:

Morning BI 9, between 6.46am and 8am (whenever I wake up, I aim for 7am mostly)

Evening BI 20, between 6.30pm and 8pm (aim for 7pm)

My over night dose does not seem to be enough, hence this thread because 20 already seems a lot...

My total is 29. What's yours?

Many thanks advance! Smile

Apr 9, 2012

Darren.w. 9 posts

Topic: Questions for HCPs / Doctors

Thanks Stew,

Answers that one.
some times when you just want general answers like new dairies etc it just seems silly that they cant answer them.
Confused

Apr 9, 2012

Stew B 125 posts

Topic: Questions for HCPs / Doctors

I think there's an issue about confidentiality for some NHS organisations - this is an open forum, and posting advice / info about individual patients might be construed by some employers as breaching confidentiality. Even sharing / commenting on BG diaries in a non-secure environment can be seen as potentially risky (we in the public sector have become increasingly risk-averse, to a degree that is seen as ridiculous by many) Sad

.

Stew

Apr 9, 2012

Darren.w. 9 posts

Topic: Questions for HCPs / Doctors

Hi, All

Why do the doctors from glan clwyd hospital never use this site/ forum and there always tell us how good it is. Yes this site is great and full of help and info from other diabetics, but the doc's never use it.

Apr 9, 2012

Darren.w. 9 posts

Topic: General Discussion / Holiday turkey

Thanks Natalie,
I'm not going for a few weeks yet so i still have time to get hold of them.

Apr 8, 2012

novorapidboi26 1,819 posts

Topic: General Discussion / raised blood sugar after hypo.

Natalie,

How many CPs of the lucozade and dextrose are you having....

Apr 8, 2012

Natalie b 2 posts

Topic: General Discussion / raised blood sugar after hypo.

What do you use to treat your hypo? If I have lucozade I find my levels go very high. If I have dextrose tablets the level later on is about 10 which is alot better.
Natb

Apr 8, 2012

Natalie b 2 posts

Topic: General Discussion / Holiday turkey

Hi there Darren,
I went to turkey October 2010 and my diabetic nurse did a letter for me to take away with me. There was no charge.
Hope you have a great time.
Natb Very Happy

Apr 8, 2012

novorapidboi26 1,819 posts

Topic: Questions for HCPs / Dawn Phenomenon possibility?

i agree............... Wink

Apr 8, 2012

novorapidboi26 1,819 posts

Topic: Carbohydrate Counting / Croissant the Rubicon

your injection site will definitely be playing a part if you have got problems there, if you do you should really get into the habit of injecting elsewhere, like your arms maybe......

in all honesty i actually never heard of the 4 unit maximum when doing dafne, however i then discovered it was a number in place when attending the course, so purely for safety reasons, so now your out, if you have attended a course, i would disregard that maximum.....

what if you were 23mmol/l, take 4 units..................unlikely.........

Apr 10, 2012 Carolin 83 posts	Topic: Questions for HCPs / Accessibility for Blind/ VIP diabetics Faulty Headlights said: Day one and I'm finding it all ok but was wondering if I could get the book that gives the carb portions as a pdf or pref word doc? the carb counter on this site is accessible but there isn't as much info as in the book. I'm currently looking for other ways to help me count carb, i know there is an iphone ap that reads label, OCR but way too expensive.. i'm just wondering what i do when i'm out on my own and can't read labels or judge a portion size. Hmmm thanks for your quick response. Hi, I wondered how you eventually got on through the week and what adaptations the DAFNE team made for you? What helped? What else is needed? We are continually asked about developing resources for VIP and would really value your feedback. Thanks, Carolin

Apr 10, 2012 SA2010 69 posts	Topic: General Discussion / What has gone wrong with Lantus adjustments Thanks James - will stick with 7 and 4. You see I did not want to get to recalibrarting my QA:CP ratios until I got the BI perfectly right -which does mean extending the carb free test period ! The 8th March evening meal was over an extended period and I did not know what was going to come next so that is why I split the QA dose for starter and main meal. The 14.3 BG reading at 21:55 was probably due to beetroot soup which had 1 CP which I did not count because thinking it was just a vegetable and also there was probably half an apple in one of the starters so I was 1.5 CPs out in my estimate but I think the beetroot soup was fast acting carbs! Yes I have been doing half unit corrections and that was the reason I thought I needed the Demi pen as I believe I am senstitive to insulin. I could have had 1 QA unit this morning as correction instead of half. But yesterday's lunch time correction of 1 QA unit with BG at 9.3 should have been adequate. This was day 2 with BI @7 in the morning so any delay in the increase in Lantus should have settled down by then. I do not want to introduce CPs yet as that would confuse the matter and make it difficult to establish what the BI should be. The trouble is that any change to BI takes 2-3 days to settle down. [PS had the wrong time in the BG Diary for the BG 14.3, it was 50 minutes after the start of the meal - now corrected as 21:55]

Apr 10, 2012 Carolin 83 posts	Topic: Questions for HCPs / Hypos when I wake Hi Kev, Remember, as well as potentially requiring reduced BI overnight, it's also important to 'refuel' after exercise, particularly resistance exercises where your muscles will be re-storing glycogen for several hours afterwards. If you cannot find anough info in your course workbook, try www.runsweet.com for more on the nutrition side of exercise. Good luck!

Apr 10, 2012 novorapidboi26 1,819 posts	Topic: General Discussion / What has gone wrong with Lantus adjustments Pretty good results on the 6 and 4 doses, your holding steady, all be it going slightly higher by the time your evening BI dose is due, but your AM dose may be running out/low by then, so to be expected........... I see your correcting with half units of insulin, you mat feel this is needed, but my opinion is its not........ on the 8th at 21:05 you were 10.8, this should of been corrected with 2 units, if your following the rule 1 units drops 2-3mmol/l.....later that evening wrong carb count as you day messed up those results.....also you split your dose here for whatever reason [high fat content etc...] if it was the high fat content, the glucose release from the food may have continued well into the night and effected the next morning.... Alcohol usually drops the blood sugar by inhibiting the normal functions of the liver, you could of went low, then rebounded, but I don't suspect this in your case, its more likely delayed absorption, or in fact your BI.........you need more basal tests to confirm the 4 dose, it worked 2 days in a row, all be it, without carbs......... I would remain at 7 and 4 and continue testing, the results of your basal testing so far are positive, I think the problem lies with your insulin/carb ratios and your corrections, in that you need that little bit more to get you on target. Bear in mind the higher you are, the less 1 unit will drop you...........

Apr 10, 2012 Darren.w. 9 posts	Topic: Questions for HCPs / Doctors novorapidboi26]Remember you can use the PM facility if you need to ask your HCPs questions.......... The docs never use this site there are on the site but have never posted on any subject raised but other members, so the chances of them looking at there msg are very slim. but thanks for the idea. many thanks Darren

Apr 10, 2012 SA2010 69 posts	Topic: General Discussion / What has gone wrong with Lantus adjustments I thought I was almost there getting perfect BGs after a number of days carb free test meals to get the split Lantus dose correct. 6th April was the almost perfect day achieved and then the action following a low sleep BG of 4.8 at 03:45 and the easter dinner with incorrectly estimated CPs on the 8th April things went wrong. After the number of days of carb free meals got to Lantus split dose of 6 with breakfast and 5 with evening meal. To deal with the BG 4.8 overnight, I reduced the evening BI from 5 to 4 and increased the morning BI from 6 to 7. Then the Easter meal got the starter estimate wrong by about 1.5 CPs. Felt bad with BG @ 14.3 during the meal. a shot of vodka with a glass of wine might also have been a factor. But since then BGs have been high all the time Please have a look at the BG diary extract (my earlier post shows how I got to BI doses of 6 and 5) I probably need to reinstate the BI dose of 5 in the evening - but presumably risk overnight BG going close to 4.5 or lower ( I do feel BG going below 5). So do I go back to 6 and 5 instead of 7 and 4? Or go to 8 and 4?

Apr 10, 2012 novorapidboi26 1,819 posts	Topic: Questions for HCPs / Doctors Remember you can use the PM facility if you need to ask your HCPs questions..........

Apr 10, 2012 novorapidboi26 1,819 posts	Topic: Questions for HCPs / Doctors Remember you can use the PM facility if you need to ask your HCPs questions..........

Apr 10, 2012 novorapidboi26 1,819 posts	Topic: Questions for HCPs / Dawn Phenomenon possibility? It would be hard to answer your question as there is still too many variables on the page......you took 4 correction instead of your normal 5, this is an additional change to your BI change, so it could have contributed to your blood sugar level.............on the Saturday it seems you had some more carbs after dinner, desert maybe, this is an additional dose with its own profile, this too could have contributed to blood sugar levels.......by 00:33 you are still really high, is this BI or QA? It would seem QA as your BG then dropped by 3am [you had correction] and it still went up by morning......... So lots of variables as I say, you need to eliminate as many as possible to get accurate results that can be used....... When basal testing overnight, try to be strict, try and refrain from supper, and try and decide on what your dinner will be, including desserts/snacks after the main meal, before your eat......... I would get a few nights like the one described above, just to be sure if you need more.......my strategy would be to increase the PM BI dose until you go low before or at the 3am mark, then you know your maximum dose for overnight. If still high by morning, the DP is beginning after 3am and you may need to bring your time forward to later on, before bed even........this will give your BI dose more of a kick and longer duration while still holding your levels steady......

Apr 10, 2012 novorapidboi26 1,819 posts	Topic: General Discussion / Levemir doses AM - 6:40 Monday to Friday - 30 PM 22:00 - Monday to Friday - 36 I weight 18 stone, 6 foot tall.............so more needed for me obviously.................but you should never think of doses at too much, you need whatever you need, simple as that.........in terms of BG control anyway, obviously you don't want to be overweight and you want to be taking as little insulin as possible.........but that's another hurdle to jump...........

Apr 9, 2012 Anele46 109 posts	Topic: General Discussion / DAFNE Follow-on Training Hi Peter, Completed mine, sorry, thought I had done this already. Cheers, Anele.

Apr 9, 2012 Anele46 109 posts	Topic: General Discussion / The Best Meter? Thanks very much DaveDee and Garry for your comments, I have dealt with Abbot in the past to get spare batteries and they have always been excellent to deal with and have sent out batteries and control solution very quickly with no issues. I do prefer the Xceed for most things, epecially not having to worry about forgetting to charge it as the meter prompts you when the battery is running low giving you plenty of time to get a replacement before it dies whereas having had my Xceed for over two years now I would worry about forgetting to charge the Contour and from experience with Lithium rechargeable batteries they have a limited lifespan and is best to run the battery flat before charging to preserve the lifespan of the battery but wouldn't be able do it with the Contour and can see my self dashing out and leaving it plugged into the Mac or Mains. Didn't know about the CoPilot software, must check it out however I tend to eport my Diary and use the Graphs from the DAFNE website but will definitely have a look Hmmm, think I may be swinging back round to my Xceed Cheers, Anele.

Apr 9, 2012 moflaherty 5 posts	Topic: Carbohydrate Counting / Croissant the Rubicon Thanks for that.

Apr 9, 2012 JayBee 587 posts	Topic: Questions for HCPs / Dawn Phenomenon possibility? How interesting... and frustrating... looks like it's been made worse! XD Do I really need more than 20 BI in the evening? Let's see what happens tomorrow I guess.

Apr 9, 2012 Peter 109 posts	Topic: General Discussion / DAFNE Follow-on Training The DAFNE User Action Group (DUAG) is still looking for your feedback on the type of follow-on training being offered to graduates, and whether or not it meets your needs. If you haven't yet completed the short survey (10 questions), please take the time to do so. We would like the data we have to be as representative as possible of the community. The survey can be found here: DAFNE Follow-on Training Survey Many thanks.

Apr 9, 2012 JayBee 587 posts	Topic: General Discussion / Levemir doses Hi all. There seems to be quite a few threads about Levemir timings but I'm very curious about doses right now... and total taken. I currently take: Morning BI 9, between 6.46am and 8am (whenever I wake up, I aim for 7am mostly) Evening BI 20, between 6.30pm and 8pm (aim for 7pm) My over night dose does not seem to be enough, hence this thread because 20 already seems a lot... My total is 29. What's yours? Many thanks advance!

Apr 9, 2012 Darren.w. 9 posts	Topic: Questions for HCPs / Doctors Thanks Stew, Answers that one. some times when you just want general answers like new dairies etc it just seems silly that they cant answer them.

Apr 9, 2012 Stew B 125 posts	Topic: Questions for HCPs / Doctors I think there's an issue about confidentiality for some NHS organisations - this is an open forum, and posting advice / info about individual patients might be construed by some employers as breaching confidentiality. Even sharing / commenting on BG diaries in a non-secure environment can be seen as potentially risky (we in the public sector have become increasingly risk-averse, to a degree that is seen as ridiculous by many) . Stew

Apr 9, 2012 Darren.w. 9 posts	Topic: Questions for HCPs / Doctors Hi, All Why do the doctors from glan clwyd hospital never use this site/ forum and there always tell us how good it is. Yes this site is great and full of help and info from other diabetics, but the doc's never use it.

Apr 9, 2012 Darren.w. 9 posts	Topic: General Discussion / Holiday turkey Thanks Natalie, I'm not going for a few weeks yet so i still have time to get hold of them.

Apr 8, 2012 novorapidboi26 1,819 posts	Topic: General Discussion / raised blood sugar after hypo. Natalie, How many CPs of the lucozade and dextrose are you having....

Apr 8, 2012 Natalie b 2 posts	Topic: General Discussion / raised blood sugar after hypo. What do you use to treat your hypo? If I have lucozade I find my levels go very high. If I have dextrose tablets the level later on is about 10 which is alot better. Natb

Apr 8, 2012 Natalie b 2 posts	Topic: General Discussion / Holiday turkey Hi there Darren, I went to turkey October 2010 and my diabetic nurse did a letter for me to take away with me. There was no charge. Hope you have a great time. Natb

Apr 8, 2012 novorapidboi26 1,819 posts	Topic: Questions for HCPs / Dawn Phenomenon possibility? i agree...............

Apr 8, 2012 novorapidboi26 1,819 posts	Topic: Carbohydrate Counting / Croissant the Rubicon your injection site will definitely be playing a part if you have got problems there, if you do you should really get into the habit of injecting elsewhere, like your arms maybe...... in all honesty i actually never heard of the 4 unit maximum when doing dafne, however i then discovered it was a number in place when attending the course, so purely for safety reasons, so now your out, if you have attended a course, i would disregard that maximum..... what if you were 23mmol/l, take 4 units..................unlikely.........