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Apr 11, 2012
Anele46 108 posts

Topic: Questions for HCPs / Accessibility for Blind/ VIP diabetics

Hi there,
I haven't had this issue with the iPhone app before but tend to use the full site on my Mac or iPad.
I have had a quick check in my app and in "Settings" (the bottom right icon) there is an option for Diary Upload. Mine is currently set to OFF, maybe yours is too? If so, changing it to ON, may solve your upload issues?
Also,I;m not sure if you've checked this out already but in the DAFNE Online Mobile forum there is a thread about issues with downloading to the app but I'm sure it also talks about uploading.
See link: http://www.dafneonline.co.uk/forums/5/topics/1470

Hope this has helped in some way Very Happy

Cheers,
Anele.
 
Apr 11, 2012
Anele46 108 posts

Topic: General Discussion / What has gone wrong with Lantus adjustments

Hi Simon,
Just a wee thought, how are your injection sites as I see from your results that you more often than not are using the same site (Right Thigh). If you have been using the same site for a while this can also affect the absorption rates of your QA hence rotating sites seems to help with this. Just a thought as it may also help explain some of your results?

Cheers,
Anele.
 
Apr 11, 2012
novorapidboi26 1,816 posts

Topic: Questions for HCPs / High Blood Pressure

I also have high blood pressure, 140/90, sometime slightly over. No one has told me why, but I can assume its my weight. For you it may be done to diet..........there may be some things your consuming that are contributing, I would try and do some research on the food you eat and the quantities.......

However, there can be other reasons for high BP that are genetic/hereditary etc......

Sorry, not much help.........
 
Apr 11, 2012
vic demain 87 posts

Topic: General Discussion / Night time cycle ride.

Thanks Dave, whatever happened to the other 4 members? Will give your link a look. Finding background insulin is dropping quite a lot already.
 
Apr 11, 2012
Carolin 83 posts

Topic: General Discussion / raised blood sugar after hypo.

Frank M said:
I would suggest trying a handy size (330ml) tin of Pepsi or Coca Cola (non-diet of course) = 1.5 CPs.



NB 330ml cola = 3.5 CPs
you need the 150ml cans to get 1.5 CPs
Smile
 
Apr 11, 2012
thebatoutofhull 60 posts

Topic: General Discussion / raised blood sugar after hypo.

Still learning. I am more than ok with hypo treatments. Oj is my prefered choice. To clarify more; when I have 1 cp's of o.j. my blood rebounds. When I am under 4.5 and have o.j. my BG returns to normal. My issue is when I go beyond 4.5. Under 2 or 1. If I have a BG of 0.8, (rarely) I correct with 1 or 2 cp's of oj. However, I find myself within 2 hrs having a yo yo effect thus ending up high.
It is this high I wish to battle. Should I just leave it?

I am learning to give some corrective QA insulin before I go high at other times of the day. It is a bit scary having a normal BG and giving QA. I still havent got the hang of it fully. Because I eat very little carbs and follow patterns in my diary I can predict when this is going to happen. In the past i've have tried increasing my BI to deal with the bulk of the highs but this has the effect of making me lower at other times.

Thanks for your input everyone.
 
Apr 10, 2012
Frank.M 5 posts

Topic: General Discussion / raised blood sugar after hypo.

Someone once said; 'physician heal thy self' and (ignoring uninitiated scorn) that is where to start. Although all the well known antidotes work they are different just like us, I would suggest trying a handy size (330ml) tin of Pepsi or Coca Cola (non-diet of course) = 1.5 CPs.
Lucozade is not to my taste and Glucose tablets, like most solids, take a little longer to get to to where its needed, plus with BG reading minus 3 not everyone is in the mood to count tablets, although they are a boon when travelling. The faster something puts BG up the faster it falls but followed by plain digestive biscuit(s) (1 CP each), or similar can avoid sharp peaks and troughs that can happen if a Hypo is over or under compensated.

ps. Dermot if you read this thanks for the tip, like you it works for me, having a 'six-pack' in the fridge has taken on a whole new meaning.
 
Apr 10, 2012
Faulty Headl... 18 posts

Topic: Questions for HCPs / Accessibility for Blind/ VIP diabetics

It's a company called Pancreum. I got an email back from them not so long ago. they are the only company to answer any of my questions.
I'm using a wifi connection and i'm still on able to upload, just download.
 
Apr 10, 2012
SA2010 69 posts

Topic: General Discussion / What has gone wrong with Lantus adjustments

Thanks James for all the advice. Noticed an error in the time for the measurement during the evening meal of the 8th April. Corrected now. I will tackle evening BI testing separately from the morning one. I wonder when Saofi will admit that Lantus is not a 1-dose 24 hour insulin !!!
 
Apr 10, 2012
Kev Singh 4 posts

Topic: Questions for HCPs / High Blood Pressure

Hi guys,

To add to my previous post about the hypos I've just been told I have high blood pressure (155/60)

I don't smoke or drink, I exercise a lot (gym, football, squash, taekwondo), I'm vegetarian (I eat a good amount of fruit and veg although I could eat more veg)

My weight is ok for my height..I'm 11 stone and 5 ft 8

I was also diagnosed with pre-proliferative retionpathy in my left eye last year but since it's been ok (I'm due for my nbext check up next week, hopefully I won't need anymore laser surgery..although this obviously doesn't mean it's getting better)

What could be the cause of the high blood pressure? The doctor gave me little to no explanation and just sent me away with a prescription for lisinopryl (as far as I know this is for diabetic patients with high blood pressure)

What do you think?
 
Apr 10, 2012
novorapidboi26 1,816 posts

Topic: Questions for HCPs / Accessibility for Blind/ VIP diabetics

Who makes this pump?

I don't see why you cant get it, unless it was significantly more expensive then the rest [pump and consumables].........but even then it should still be considered/investigated.......

Make sure your connected to a wireless router at home or elsewhere when uploading, you might be more successful, however I do know ppl have been having problems.......
 
Apr 10, 2012
Carolin 83 posts

Topic: General Discussion / raised blood sugar after hypo.

thebatoutofhull said:
Can anyone tell me how to lower my BG after a hypo? When I go down to under 2mmol/l my body gives me glycogen. How do I pre-empt the resulting BG high which follows?



Remember, for ANY BG <3.5mmol/l you MUST treat with 1.5 - 2 CPs rapid acting carbs, which should be sufficient to get your BG back into a safe target range without making you too high.

Although your body will generate a hormonal response to a falling BG, when you have had diabetes for many years you will have very little glucagon production and adrenaline is usually not sufficient to counteract your injected insulin. So please do not rely on your 'liver kicking in' ... it's simply not safe and can lead to severe hypos and hypo unawareness.

If your BG is a little high after a hypo that you've only treated with max 2 CPs, there may have been a little glycogen release from the liver, but this can usually settle down in the following hours, which is why we stress in DAFNE NOT to correct a raised BG follwing a hypo, or you risk just going hypo again.

Quick reminder:
100ml Lucozade = 1.5 CPs
200ml orange juice = 2 CPS
4 jelly babies = 2 CPS
5 Lucozade tablets = 1.5 CPs
5 'GlucoTabs' = 2 CPs

Carolin
 
Apr 10, 2012
Faulty Headl... 18 posts

Topic: Questions for HCPs / Accessibility for Blind/ VIP diabetics

I finally gave in and bought an iphone. Coss me an arm and a leg, most of my savings gone but I am now using DAFNE ap on it to record my sugars and it has the carb counter on it too. I can download my results ok from the computer to iphone but am havng trouble getting it to upload from my iphone to computer. so some of my results are stuck on my iphone ap. other than that it is a great job. I can use my iphone with the voice over fine, all seems to work great. I haven't used any other carb counting aps as i'm not sure which are accessible and don't want to fork out more money for something that might not work. and like I said above, the online DAFNE carb counter is limited.

I was told recently that there is a talking pump coming on the market in 2015? but when I mentioned this to my hospital I was told that they didn't deal with the company who made them. So after all that hope and research I'm maybe not going to get the chance of getting one? Grrr! I'm sure i'm not the only blind or visually impaired person pi**ed off at this.
After years of hearing about other people being given pumps and being told I couldn't use one because i'm blind I had got kind of excited when I heard about this new talking one, now my hopes seem to be dashed again.

I probably should be posting this on another topic but hope to hear from other blind and VIP type 1's on here.
 
Apr 10, 2012
novorapidboi26 1,816 posts

Topic: General Discussion / What has gone wrong with Lantus adjustments

One of the many benefits of Levemir, however not everyone gets on with it I suppose...........

When you corrected your 9.3 with 1 unit that should of been sufficient, however you forgot about the possibility of your AM BI dose running low/out by the time 19.29 came.....

Remember you only have to do carb free for the night time testing, once your confident the dose is right, then move on to daytime basal testing with no carbs..............you may be fine with having low/no carbs, but I know I wouldn't be, I would definitely be producing ketones.....just as long as you know you don't need to be so strict on yourself. I realize getting a clear a picture as possible is important though.....

you might be sensitive to insulin, so don't take my word as gospel................its just seems from the results that the corrections are not enough........

Keep up the good work.................. Very Happy
 
Apr 10, 2012
Carolin 83 posts

Topic: Questions for HCPs / Accessibility for Blind/ VIP diabetics

Faulty Headlights said:
Smile Day one and I'm finding it all ok but was wondering if I could get the book that gives the carb portions as a pdf or pref word doc?
the carb counter on this site is accessible but there isn't as much info as in the book.
I'm currently looking for other ways to help me count carb, i know there is an iphone ap that reads label, OCR but way too expensive.. i'm just wondering what i do when i'm out on my own and can't read labels or judge a portion size. Hmmm
thanks for your quick response.


Hi,
I wondered how you eventually got on through the week and what adaptations the DAFNE team made for you? What helped? What else is needed?
We are continually asked about developing resources for VIP and would really value your feedback.
Thanks,
Carolin
 
Apr 10, 2012
SA2010 69 posts

Topic: General Discussion / What has gone wrong with Lantus adjustments

Thanks James - will stick with 7 and 4. You see I did not want to get to recalibrarting my QA:CP ratios until I got the BI perfectly right -which does mean extending the carb free test period !

The 8th March evening meal was over an extended period and I did not know what was going to come next so that is why I split the QA dose for starter and main meal. The 14.3 BG reading at 21:55 was probably due to beetroot soup which had 1 CP which I did not count because thinking it was just a vegetable and also there was probably half an apple in one of the starters so I was 1.5 CPs out in my estimate but I think the beetroot soup was fast acting carbs!

Yes I have been doing half unit corrections and that was the reason I thought I needed the Demi pen as I believe I am senstitive to insulin. I could have had 1 QA unit this morning as correction instead of half. But yesterday's lunch time correction of 1 QA unit with BG at 9.3 should have been adequate. This was day 2 with BI @7 in the morning so any delay in the increase in Lantus should have settled down by then.

I do not want to introduce CPs yet as that would confuse the matter and make it difficult to establish what the BI should be. The trouble is that any change to BI takes 2-3 days to settle down.

[PS had the wrong time in the BG Diary for the BG 14.3, it was 50 minutes after the start of the meal - now corrected as 21:55]
 
Apr 10, 2012
Carolin 83 posts

Topic: Questions for HCPs / Hypos when I wake

Hi Kev,
Remember, as well as potentially requiring reduced BI overnight, it's also important to 'refuel' after exercise, particularly resistance exercises where your muscles will be re-storing glycogen for several hours afterwards.
If you cannot find anough info in your course workbook, try www.runsweet.com for more on the nutrition side of exercise.
Good luck! Smile
 
Apr 10, 2012
novorapidboi26 1,816 posts

Topic: General Discussion / What has gone wrong with Lantus adjustments

Pretty good results on the 6 and 4 doses, your holding steady, all be it going slightly higher by the time your evening BI dose is due, but your AM dose may be running out/low by then, so to be expected...........

I see your correcting with half units of insulin, you mat feel this is needed, but my opinion is its not........

on the 8th at 21:05 you were 10.8, this should of been corrected with 2 units, if your following the rule 1 units drops 2-3mmol/l.....later that evening wrong carb count as you day messed up those results.....also you split your dose here for whatever reason [high fat content etc...] if it was the high fat content, the glucose release from the food may have continued well into the night and effected the next morning....

Alcohol usually drops the blood sugar by inhibiting the normal functions of the liver, you could of went low, then rebounded, but I don't suspect this in your case, its more likely delayed absorption, or in fact your BI.........you need more basal tests to confirm the 4 dose, it worked 2 days in a row, all be it, without carbs.........

I would remain at 7 and 4 and continue testing, the results of your basal testing so far are positive, I think the problem lies with your insulin/carb ratios and your corrections, in that you need that little bit more to get you on target. Bear in mind the higher you are, the less 1 unit will drop you...........
 
Apr 10, 2012
Darren.w. 9 posts

Topic: Questions for HCPs / Doctors

novorapidboi26]Remember you can use the PM facility if you need to ask your HCPs questions.......... Wink



The docs never use this site there are on the site but have never posted on any subject raised but other members, so the chances of them looking at there msg are very slim. but thanks for the idea.

many thanks Darren
 
Apr 10, 2012
SA2010 69 posts

Topic: General Discussion / What has gone wrong with Lantus adjustments

I thought I was almost there getting perfect BGs after a number of days carb free test meals to get the split Lantus dose correct. 6th April was the almost perfect day achieved and then the action following a low sleep BG of 4.8 at 03:45 and the easter dinner with incorrectly estimated CPs on the 8th April things went wrong.

After the number of days of carb free meals got to Lantus split dose of 6 with breakfast and 5 with evening meal.
To deal with the BG 4.8 overnight, I reduced the evening BI from 5 to 4 and increased the morning BI from 6 to 7.
Then the Easter meal got the starter estimate wrong by about 1.5 CPs. Felt bad with BG @ 14.3 during the meal. a shot of vodka with a glass of wine might also have been a factor. But since then BGs have been high all the time

Please have a look at the BG diary extract (my earlier post shows how I got to BI doses of 6 and 5)

I probably need to reinstate the BI dose of 5 in the evening - but presumably risk overnight BG going close to 4.5 or lower ( I do feel BG going below 5). So do I go back to 6 and 5 instead of 7 and 4? Or go to 8 and 4?

 
Apr 10, 2012
novorapidboi26 1,816 posts

Topic: Questions for HCPs / Doctors

Remember you can use the PM facility if you need to ask your HCPs questions.......... Wink
 
Apr 10, 2012
novorapidboi26 1,816 posts

Topic: Questions for HCPs / Doctors

Remember you can use the PM facility if you need to ask your HCPs questions.......... Wink
 
Apr 10, 2012
novorapidboi26 1,816 posts

Topic: Questions for HCPs / Dawn Phenomenon possibility?

It would be hard to answer your question as there is still too many variables on the page......you took 4 correction instead of your normal 5, this is an additional change to your BI change, so it could have contributed to your blood sugar level.............on the Saturday it seems you had some more carbs after dinner, desert maybe, this is an additional dose with its own profile, this too could have contributed to blood sugar levels.......by 00:33 you are still really high, is this BI or QA? It would seem QA as your BG then dropped by 3am [you had correction] and it still went up by morning.........

So lots of variables as I say, you need to eliminate as many as possible to get accurate results that can be used.......

When basal testing overnight, try to be strict, try and refrain from supper, and try and decide on what your dinner will be, including desserts/snacks after the main meal, before your eat.........

I would get a few nights like the one described above, just to be sure if you need more.......my strategy would be to increase the PM BI dose until you go low before or at the 3am mark, then you know your maximum dose for overnight.

If still high by morning, the DP is beginning after 3am and you may need to bring your time forward to later on, before bed even........this will give your BI dose more of a kick and longer duration while still holding your levels steady......