Recent Posts - DAFNE Online

Aug 31, 2012

Robyn51187 1 post

Topic: Questions for HCPs / new to this!

Hi,
I heard of DAFNE after having an eye exam yesterday, I have been diabetic for 17 years diagnosed at 7. My control has been difficult for about 3 years and this was recommended to me. The waiting list for DAFNE in my area is 18months and i really don't want to wait that long! I was wondering if i can do the change with just online support?
Eagerly awaiting your reply,
Robyn McMurray

Aug 31, 2012

Carolin 83 posts

Topic: Carbohydrate Counting / Paris bun/ rock bun

Hi,

Could be something like an English 'teacake' - see CP listing - which is 3CP for 55g, so you'd be looking at around 8CP for 145g

Hope this helps?

Carolin

Aug 31, 2012

Carolin 83 posts

Topic: General Discussion / morning highs

sjohno said:
susieq - do you take QA for the omelette, bacon and salad?

Unfortunately for me I have to take QA for all non carb foods......if I have an omelette with bacon, mushrooms and tomatoes at lunchtime this for me is 3CP, I am on a 1:1.5 ration so I take 6QA for that omelette. I can eat chicken with salad and still have to take QA

Just a little word of warning for other DAFNE grad's. There is essentially NO carbohydrate in this meal so we wouldn't advise people to count as CPs or inject QA as there is a very high risk of hypos; however clearly with experience and understanding your own diabetes and response to different foods you will leanr exactly what you need.

Often if you find you are needing QA even if not eating carbs it can be an indication of BI not being high enough.

Keep it up! Smile

Carolin

Aug 31, 2012

Carolin 83 posts

Topic: General Discussion / Diabetic jokes

Hi everyone,

Please, please, please keep this going. It's great material for the quarterly DAFNE Newsletter.... we'll try to include 1 or 2 of the best in each issue.

Cheers,

Carolin Laughing

Aug 31, 2012

vic demain 87 posts

Topic: General Discussion / Result.

Thanks for the positive feedback Garry, but this has all become a bit disheartening. Unlike you, I have never been able to achieve largely greens. In fact after 3 yrs, I have never once had a complete day of readings in the green. Was put on a mission to look at a pump a while ago but preferred to stay with the needle, perhaps a mistake. Maybe there is some other factor that we are all missing but much as I enjoyed the DAFNE course and continue to follow the principals, the results have not made a jot of difference for me Crying or Very sad

Aug 30, 2012

mum2westiesGill 502 posts

Topic: General Discussion / What did you have to eat yesterday?

HelenP said:
OK OK I have been reading these with interest and am entertained/even amused by what we consider "normal eating". However, I give up... what is an "mds"?

Helen

"Rnds" is my shortened version of rounds Smile

Aug 30, 2012

HelenP 218 posts

Topic: General Discussion / What did you have to eat yesterday?

Thanks...that makes a whole lot more sense! Here we call them slices! My G'mother used to talk about rounds when referring to bread but apparently there was a period of confusion (20-30 years ago) as to whether a round of sandwiches meant two slices of bread so the term gradually ceased to be used.

I will also have to see about my glasses!
Helen

Aug 30, 2012

meltow 78 posts

Topic: General Discussion / What did you have to eat yesterday?

RNDS not MDS!!!
Rounds Confused

Aug 30, 2012

HelenP 218 posts

Topic: General Discussion / What did you have to eat yesterday?

OK OK I have been reading these with interest and am entertained/even amused by what we consider "normal eating". However, I give up... what is an "mds"?

Helen

Aug 30, 2012

ruthhutchinson 39 posts

Topic: Carbohydrate Counting / Paris bun/ rock bun

Does anyone have any idea what the CPs would be for a rock bun/Paris bun which weighs in at 145g? I'm not sure what these are called in England but they are like a cross between a sweet crusty roll and a fruit bun. Any ideas?

Aug 30, 2012

susieq 19 posts

Topic: General Discussion / morning highs

Sounds like I should be happy with what Ive got....My HbA1c is 7.3 and it's just the morning highs that bug me. I correct at breakfast and the rest of the day is ok. some lows when I am walking or shopping/housework etc. but then I have an excuse to have a biscuit lol. I am happy to read that you think I might be beating myself up about it. I reckon you're right. I worry toooooo much. I suppose 10.7 isn't way too off the scale to not be able to live with it.

I don't want a pump, and I don't really want to go without my usual food. so perhaps this is what it's gonna be... and I certainly don't want to wake up at 3am to inject!!!!!! Mad

Option 2 then. Smile

DAFNE was good, I loved the week, and it did give me confidence to tweak around and not be scared of what I was doing. don't get me wrong. they were great. I suppose I did expect too much in the fact that I wanted to be able to stick at one bi dose and be satisfied that my overnight levels would be stable. But asking that of the dreaded diabetes is asking for pigs to fly!

Aug 30, 2012

Phil Maskell 194 posts

Topic: General Discussion / morning highs

sjohno said:
Since taking the DAFNE course in November 2009 my HbA1c tests have been 6.8,6.1, 6.2,6.2, 6.1.

I have had T1 for 33 years and DAFNE is the best thing that has happened, it's been a bit of a bumpy learning process but I believe I have a good handle on it now

Nice, even with DAFNE I am more 7 than 6 Mad

Aug 30, 2012

Phil Maskell 194 posts

Topic: General Discussion / morning highs

sjohno said:
susieq - do you take QA for the omelette, bacon and salad?

Unfortunately for me I have to take QA for all non carb foods......if I have an omelette with bacon, mushrooms and tomatoes at lunchtime this for me is 3CP, I am on a 1:1.5 ration so I take 6QA for that omelette. I can eat chicken with salad and still have to take QA

For 3CP to 6QA isn't that a ratio of 2:1? 1:1.5 on 3CP would be 2QA?

Just don't want to confuse things (any more than sorting this lot out) Wink

Aug 30, 2012

Garry 328 posts

Topic: General Discussion / morning highs

Many of us find that BI changes can take some days to kick in with an effect.
It may be the same for you, particularly if on Lantus BI.
For me, BI changes take 3 days to show signs of any possible improvement.

I think Confused

I eat a NORMAL diet, which when I look at my diary, averages 23 CPs a day.
We always have lots of unmeasured stuff going on in our blood which is difficult to manage the outcome of.
Take a few days to make any further changes - so you are sure of cause and effect.
Regards
Garry

Aug 30, 2012

Garry 328 posts

Topic: General Discussion / Result.

Cheer up vic. Just look back and review the good advice that you have given others through this forum.
Take heart from that. Smile

We are all in the same boat. Like you, I work hard at achieving a balance and felt like I was doing really well, with a graph largely in the green - but whilst on holiday....the wheels have come off......and 5 days on, I'm still trying to get things back in control. Goodness knows what has gone wrong but I'll keep day-by-day trying to get back on an even keel.

Regards
Garry

Aug 30, 2012

Phil Maskell 194 posts

Topic: General Discussion / morning highs

Hi,

Whats your 3am test like, has it risen by then? When I was getting 10+ in the mornings my Consultant said if it was DP there were 3 options...

1. wake about 4/5am and test/inject (he said he had one person do this, very keen)
2. if morning BG was at most 12 then live with it and correct at breakfast (even with higher morning BG my HBA1c was around 7.5)
3. consider pump to get the increased insulin needed gradually.

I went with option 2 Very Happy

What do your Diabetic people think? Was this an issue before DAFNE? I don't know what your BGs are like, but when I'm not dieting 10.7 is actually a reasonable level for me. Are you beating yourself up too much? How are these higher morning BG effecting your HBA1c? Relax and go with option 2 Very Happy

Phil

Aug 30, 2012

susieq 19 posts

Topic: General Discussion / morning highs

Sjohno

Yes usually they're around 6 or 7 before bed. that's what's so frustrating. I have tea about 5 - 6pm then that's it, last night an omelette with bacon and salad. then it rose to 10.5 overnight. That's with an increase of basal by 2u.

The thing is...... DAFNE was meant to assist with NORMAL eating, am I right, not low/no carbs?? shame that. I was expecting too much then, I still have to eliminate all the carbs before I can get to normal readings.

Aug 30, 2012

mum2westiesGill 502 posts

Topic: General Discussion / What did you have to eat yesterday?

My catch up from the last few days (I know, very boring & unhealthy Sad

)

Sunday - 26/08/2012

Breakfast - toast (2 x rnds)

Lunch - McDonald's Filet-o-Fish
Fries (med ptn)

Dinner - chinese (king prawn in black bean sce
fried rice

Monday - 27/08/2012

Breakfast - bread (2 x rnds)
tomatoes (tinned)

Lunch -

Dinner - Chicken & Vegetable Bake
garlic brd rnds (3 x)

Tuesday - 28/08/2012

Breakfast - toast (2 x rnds)

Lunch - paste sandwich (2 x rnds brd)
crisps (1 x 25g bag)

Dinner - Young's Chip Shop Fish & Chips

Wednesday - 29/08/2012

Breakfast - toast (2 x rnds)

Lunch - paste sandwich (2 x rnds brd)
crisps (1 x 25g bag)

Dinner - Chicken & Vegetable Bake
garlic brd rnds (3 x)

Aug 30, 2012

Phil Maskell 194 posts

Topic: General Discussion / morning highs

sjohno said:
susieq - is your pre-bed BG in range?

With low carbs and increased exercise often a bit low now, not too bad about 4.5 to 5.5, used to be a bit on the high side 8 to 10 when dinner was carb loaded. For me I'm not sure its the bedtime BG as in the old days I often went to bed with BG 6 or 7 and woke with 14+. I think for me its the no carbs in the system floating around overnight.

Aug 30, 2012

Phil Maskell 194 posts

Topic: General Discussion / morning highs

Hi,

I am on a bit of a fitness/diet at the moment and used to get this problem, I now have next to no carbs after lunch so my bedtime BG is around 4 or 5 (often need a few carbs to keep me up). Going to bed with this lower BG and no pasta/pizza floating around seems to have done the trick, I am now having to lower my background as I am low in the morning. In the 25 years of Type 1 I have never had low morning BG until now.

I know this isn't a life long fix as I am going to want to eat in the evening again at some point, but it proves its the carbs over night that are causing my issue and probably yours.

If you find a solution without starving yourself let me know Very Happy

Phil

Aug 30, 2012

Alan 49 284 posts

Topic: General Discussion / Dafne Diary - looking for some comments / help

I am not qualified to give advice, but I find it useful to enter the total CPs, BI and the ratios in the table part of the diary. This makes it easier to spot trends and then make decisions where needed. I also enter my bedtime BGs and any corrections in the table. I also keep a separate list of meals and my CP estimates which I can refer to before I inject.

Aug 30, 2012

susieq 19 posts

Topic: General Discussion / morning highs

No, it's OK all throughout the day... really good, but it's just the waking numbers, I've increased my bi by 2u, and for 3 days now it's still been 10.7 ! Question

Aug 30, 2012

vic demain 87 posts

Topic: General Discussion / Result.

Did the course about 3 yrs ago. Thought it was brilliant, learnt so much about the condition. Came out of it really hopeful of a better future. Worked tirelessly since, measuring, balancing, adjusting. Unfortunately control is still no better, still up and down readings all over the place, went for MOT yesterday and feel like we have gone backwards. Sad

Aug 29, 2012

Moris 9 posts

Topic: General Discussion / morning highs

I can normally get it down by lunchtime.

Aug 29, 2012

susieq 19 posts

Topic: General Discussion / morning highs

Thanks Moris, I'll try this, gotta try everything haven't you. try and get off this roller coaster ! Confused

Aug 31, 2012 Robyn51187 1 post	Topic: Questions for HCPs / new to this! Hi, I heard of DAFNE after having an eye exam yesterday, I have been diabetic for 17 years diagnosed at 7. My control has been difficult for about 3 years and this was recommended to me. The waiting list for DAFNE in my area is 18months and i really don't want to wait that long! I was wondering if i can do the change with just online support? Eagerly awaiting your reply, Robyn McMurray

Aug 31, 2012 Carolin 83 posts	Topic: Carbohydrate Counting / Paris bun/ rock bun Hi, Could be something like an English 'teacake' - see CP listing - which is 3CP for 55g, so you'd be looking at around 8CP for 145g Hope this helps? Carolin

Aug 31, 2012 Carolin 83 posts	Topic: General Discussion / morning highs sjohno said: susieq - do you take QA for the omelette, bacon and salad? Unfortunately for me I have to take QA for all non carb foods......if I have an omelette with bacon, mushrooms and tomatoes at lunchtime this for me is 3CP, I am on a 1:1.5 ration so I take 6QA for that omelette. I can eat chicken with salad and still have to take QA Just a little word of warning for other DAFNE grad's. There is essentially NO carbohydrate in this meal so we wouldn't advise people to count as CPs or inject QA as there is a very high risk of hypos; however clearly with experience and understanding your own diabetes and response to different foods you will leanr exactly what you need. Often if you find you are needing QA even if not eating carbs it can be an indication of BI not being high enough. Keep it up! Carolin

Aug 31, 2012 Carolin 83 posts	Topic: General Discussion / Diabetic jokes Hi everyone, Please, please, please keep this going. It's great material for the quarterly DAFNE Newsletter.... we'll try to include 1 or 2 of the best in each issue. Cheers, Carolin

Aug 31, 2012 vic demain 87 posts	Topic: General Discussion / Result. Thanks for the positive feedback Garry, but this has all become a bit disheartening. Unlike you, I have never been able to achieve largely greens. In fact after 3 yrs, I have never once had a complete day of readings in the green. Was put on a mission to look at a pump a while ago but preferred to stay with the needle, perhaps a mistake. Maybe there is some other factor that we are all missing but much as I enjoyed the DAFNE course and continue to follow the principals, the results have not made a jot of difference for me

Aug 30, 2012 mum2westiesGill 502 posts	Topic: General Discussion / What did you have to eat yesterday? HelenP said: OK OK I have been reading these with interest and am entertained/even amused by what we consider "normal eating". However, I give up... what is an "mds"? Helen "Rnds" is my shortened version of rounds

Aug 30, 2012 HelenP 218 posts	Topic: General Discussion / What did you have to eat yesterday? Thanks...that makes a whole lot more sense! Here we call them slices! My G'mother used to talk about rounds when referring to bread but apparently there was a period of confusion (20-30 years ago) as to whether a round of sandwiches meant two slices of bread so the term gradually ceased to be used. I will also have to see about my glasses! Helen

Aug 30, 2012 meltow 78 posts	Topic: General Discussion / What did you have to eat yesterday? RNDS not MDS!!! Rounds

Aug 30, 2012 HelenP 218 posts	Topic: General Discussion / What did you have to eat yesterday? OK OK I have been reading these with interest and am entertained/even amused by what we consider "normal eating". However, I give up... what is an "mds"? Helen

Aug 30, 2012 ruthhutchinson 39 posts	Topic: Carbohydrate Counting / Paris bun/ rock bun Does anyone have any idea what the CPs would be for a rock bun/Paris bun which weighs in at 145g? I'm not sure what these are called in England but they are like a cross between a sweet crusty roll and a fruit bun. Any ideas?

Aug 30, 2012 susieq 19 posts	Topic: General Discussion / morning highs Sounds like I should be happy with what Ive got....My HbA1c is 7.3 and it's just the morning highs that bug me. I correct at breakfast and the rest of the day is ok. some lows when I am walking or shopping/housework etc. but then I have an excuse to have a biscuit lol. I am happy to read that you think I might be beating myself up about it. I reckon you're right. I worry toooooo much. I suppose 10.7 isn't way too off the scale to not be able to live with it. I don't want a pump, and I don't really want to go without my usual food. so perhaps this is what it's gonna be... and I certainly don't want to wake up at 3am to inject!!!!!! Option 2 then. DAFNE was good, I loved the week, and it did give me confidence to tweak around and not be scared of what I was doing. don't get me wrong. they were great. I suppose I did expect too much in the fact that I wanted to be able to stick at one bi dose and be satisfied that my overnight levels would be stable. But asking that of the dreaded diabetes is asking for pigs to fly!

Aug 30, 2012 Phil Maskell 194 posts	Topic: General Discussion / morning highs sjohno said: Since taking the DAFNE course in November 2009 my HbA1c tests have been 6.8,6.1, 6.2,6.2, 6.1. I have had T1 for 33 years and DAFNE is the best thing that has happened, it's been a bit of a bumpy learning process but I believe I have a good handle on it now Nice, even with DAFNE I am more 7 than 6

Aug 30, 2012 Phil Maskell 194 posts	Topic: General Discussion / morning highs sjohno said: susieq - do you take QA for the omelette, bacon and salad? Unfortunately for me I have to take QA for all non carb foods......if I have an omelette with bacon, mushrooms and tomatoes at lunchtime this for me is 3CP, I am on a 1:1.5 ration so I take 6QA for that omelette. I can eat chicken with salad and still have to take QA For 3CP to 6QA isn't that a ratio of 2:1? 1:1.5 on 3CP would be 2QA? Just don't want to confuse things (any more than sorting this lot out)

Aug 30, 2012 Garry 328 posts	Topic: General Discussion / morning highs Many of us find that BI changes can take some days to kick in with an effect. It may be the same for you, particularly if on Lantus BI. For me, BI changes take 3 days to show signs of any possible improvement. I think I eat a NORMAL diet, which when I look at my diary, averages 23 CPs a day. We always have lots of unmeasured stuff going on in our blood which is difficult to manage the outcome of. Take a few days to make any further changes - so you are sure of cause and effect. Regards Garry

Aug 30, 2012 Garry 328 posts	Topic: General Discussion / Result. Cheer up vic. Just look back and review the good advice that you have given others through this forum. Take heart from that. We are all in the same boat. Like you, I work hard at achieving a balance and felt like I was doing really well, with a graph largely in the green - but whilst on holiday....the wheels have come off......and 5 days on, I'm still trying to get things back in control. Goodness knows what has gone wrong but I'll keep day-by-day trying to get back on an even keel. Regards Garry

Aug 30, 2012 Phil Maskell 194 posts	Topic: General Discussion / morning highs Hi, Whats your 3am test like, has it risen by then? When I was getting 10+ in the mornings my Consultant said if it was DP there were 3 options... 1. wake about 4/5am and test/inject (he said he had one person do this, very keen) 2. if morning BG was at most 12 then live with it and correct at breakfast (even with higher morning BG my HBA1c was around 7.5) 3. consider pump to get the increased insulin needed gradually. I went with option 2 What do your Diabetic people think? Was this an issue before DAFNE? I don't know what your BGs are like, but when I'm not dieting 10.7 is actually a reasonable level for me. Are you beating yourself up too much? How are these higher morning BG effecting your HBA1c? Relax and go with option 2 Phil

Aug 30, 2012 susieq 19 posts	Topic: General Discussion / morning highs Sjohno Yes usually they're around 6 or 7 before bed. that's what's so frustrating. I have tea about 5 - 6pm then that's it, last night an omelette with bacon and salad. then it rose to 10.5 overnight. That's with an increase of basal by 2u. The thing is...... DAFNE was meant to assist with NORMAL eating, am I right, not low/no carbs?? shame that. I was expecting too much then, I still have to eliminate all the carbs before I can get to normal readings.

Aug 30, 2012 mum2westiesGill 502 posts	Topic: General Discussion / What did you have to eat yesterday? My catch up from the last few days (I know, very boring & unhealthy ) Sunday - 26/08/2012 Breakfast - toast (2 x rnds) Lunch - McDonald's Filet-o-Fish Fries (med ptn) Dinner - chinese (king prawn in black bean sce fried rice Monday - 27/08/2012 Breakfast - bread (2 x rnds) tomatoes (tinned) Lunch - Dinner - Chicken & Vegetable Bake garlic brd rnds (3 x) Tuesday - 28/08/2012 Breakfast - toast (2 x rnds) Lunch - paste sandwich (2 x rnds brd) crisps (1 x 25g bag) Dinner - Young's Chip Shop Fish & Chips Wednesday - 29/08/2012 Breakfast - toast (2 x rnds) Lunch - paste sandwich (2 x rnds brd) crisps (1 x 25g bag) Dinner - Chicken & Vegetable Bake garlic brd rnds (3 x)

Aug 30, 2012 Phil Maskell 194 posts	Topic: General Discussion / morning highs sjohno said: susieq - is your pre-bed BG in range? With low carbs and increased exercise often a bit low now, not too bad about 4.5 to 5.5, used to be a bit on the high side 8 to 10 when dinner was carb loaded. For me I'm not sure its the bedtime BG as in the old days I often went to bed with BG 6 or 7 and woke with 14+. I think for me its the no carbs in the system floating around overnight.

Aug 30, 2012 Phil Maskell 194 posts	Topic: General Discussion / morning highs Hi, I am on a bit of a fitness/diet at the moment and used to get this problem, I now have next to no carbs after lunch so my bedtime BG is around 4 or 5 (often need a few carbs to keep me up). Going to bed with this lower BG and no pasta/pizza floating around seems to have done the trick, I am now having to lower my background as I am low in the morning. In the 25 years of Type 1 I have never had low morning BG until now. I know this isn't a life long fix as I am going to want to eat in the evening again at some point, but it proves its the carbs over night that are causing my issue and probably yours. If you find a solution without starving yourself let me know Phil

Aug 30, 2012 Alan 49 284 posts	Topic: General Discussion / Dafne Diary - looking for some comments / help I am not qualified to give advice, but I find it useful to enter the total CPs, BI and the ratios in the table part of the diary. This makes it easier to spot trends and then make decisions where needed. I also enter my bedtime BGs and any corrections in the table. I also keep a separate list of meals and my CP estimates which I can refer to before I inject.

Aug 30, 2012 susieq 19 posts	Topic: General Discussion / morning highs No, it's OK all throughout the day... really good, but it's just the waking numbers, I've increased my bi by 2u, and for 3 days now it's still been 10.7 !

Aug 30, 2012 vic demain 87 posts	Topic: General Discussion / Result. Did the course about 3 yrs ago. Thought it was brilliant, learnt so much about the condition. Came out of it really hopeful of a better future. Worked tirelessly since, measuring, balancing, adjusting. Unfortunately control is still no better, still up and down readings all over the place, went for MOT yesterday and feel like we have gone backwards.

Aug 29, 2012 Moris 9 posts	Topic: General Discussion / morning highs I can normally get it down by lunchtime.

Aug 29, 2012 susieq 19 posts	Topic: General Discussion / morning highs Thanks Moris, I'll try this, gotta try everything haven't you. try and get off this roller coaster !