Recent Posts - DAFNE Online

Jan 21, 2013

tcmonkey80 41 posts

Topic: General Discussion / Pumping at last......

Best of luck Smile

Jan 21, 2013

tcmonkey80 41 posts

Topic: General Discussion / Insulin pump

Sarahfergo, when u say messed up are you have the whole fatty lumps? I guess in the long ru the pump isnt great then?

Jan 21, 2013

tcmonkey80 41 posts

Topic: General Discussion / Insulin pump

Hi stewb,
Thanks for your post, its nice to know im not alone feeling I cant cope with the pump. The only reason I have the pump is for pre pregnancy, I know this is something to really aim for but to be honest I am struggling

Jan 21, 2013

Derek Brown 32 posts

Topic: General Discussion / Insulin pump

@novorapidboi26,

Hope all goes well starting the pump on insulin today Smile

Jan 20, 2013

richard_g 14 posts

Topic: Carbohydrate Counting / Greggs baguette sandwiches

Greggs web site has a pdf nutritional guide but I couldn't identify your particular baguette. The sandwiches listed are typically 4 to 5 CPs. http://www.greggs.co.uk/assets/Uploads/NutritionalInfo-July2011.pdf

Jan 20, 2013

richard_g 14 posts

Topic: General Discussion / B G Diary Comments please

Hi,

Couple of observations. On Wed and Thursday you tested BG very close together and ate about 3CPs this would be expected to add about 9 to your BG and this is what seemed to happen your BG went up. However the general drift up during the day may suggest insufficient back ground. The higher ratios your applying in the later readings may be compensating for this. Have a look at the online Dafne manual on background insulins. Maybe you need some professional advice on whether you can take lantus twice a day manual mentions this possibility, or even consider a different background insulin like levimir which you can take twice a day. I would also have a look at the hypo treatment in the manual as its very easy to over compensate when your low BG and then you may have to consider taking more insulin to bring BG back down.

Jan 20, 2013

mum2westiesGill 502 posts

Topic: General Discussion / B G Diary Comments please

Here are my next 2 days 19/01 & part of 20/01.

Please keep those comments coming in.

Thanks

Gill Smile

Jan 20, 2013

mum2westiesGill 502 posts

Topic: General Discussion / B G Diary Comments please

Hi Warwick,

Thanks for your reply/comment. Everything has been taken into account.

Gill

Jan 20, 2013

Warwick 425 posts

Topic: General Discussion / B G Diary Comments please

Wow, there certainly is a lot of red in that diary, isn't there. That would indicate that the basal insulin is too low, but you keep having hypos overnight, so increasing basal doesn't seem to be an option.

Do you have a diabetes educator that you can see? I would suggest having a chat to them about the possibility of taking your Lantus in the mornings instead of at night. Because Lantus doesn't always last a full 24 hours (and your BGs seem to be going pretty high before you take your next dose, switching to a mrning dose may stop the highs in the evenings and the hypos overnight.

Cheers,
Warwick.

Jan 19, 2013

marke 686 posts

Topic: Carbohydrate Counting / Greggs baguette sandwiches

Hi, there is a link in the Carb Counter, Carb links on this site to a Greggs PDF of bagettes etc. It is from August2010 but still seems to work and I guess is still largely correct.

Jan 19, 2013

vic demain 87 posts

Topic: General Discussion / Diabulemia is becoming a growing problem

Great shame that young women feel the need to do this, however, it is a reflection in the perfection driven world which many younsters feel they have to conform with in order to be accepted and appreciated.

Jan 19, 2013

JayBee 587 posts

Topic: Carbohydrate Counting / New food labelling

I hope they finally add carbohydrates. Such a pain that they don't usually.

Oh yes! Please yes for the "per pack" or "per bar" or... even "per 4 sweets" for hypo options! Very Happy

Jan 19, 2013

JayBee 587 posts

Topic: Carbohydrate Counting / UK carb counters

The Android app currently does not have the option to add entries to the carbs listing. This should hopefully come in the future.

Jan 19, 2013

JayBee 587 posts

Topic: Carbohydrate Counting / Greggs baguette sandwiches

When you're next in Greggs, ask them for their nutritional information leaflet. I did hope that they had a PDF version on their website but because foods vary in their shops (apparently), they only give out the leaflet they hand out in local shops.

Sadly I cannot see your particular bagette on my local store's leaflet... they only show for me:

Chicken Club (77g)
Honey roast ham and mature cheddar cheese (69.5g)
Mexican bandit (84.5g)
Tuna crunch (7.6.5g)

You may have been okay assuming something like 7CP based on these numbers... and making a note of it for next time in case it wasn't quite right and so you can tweek it.

Can always trust the eat-out option to be a pain in the bum, eh? Hope you enjoyed your food! Smile

Jan 19, 2013

mum2westiesGill 502 posts

Topic: General Discussion / B G Diary Comments please

Hi,

Just wanting some comments on my B G Diary. All comments are accepted.

In the Wed 16/01 entry @ 08:01 hychk and the Thu 17/01 entry @ 09:11 hychk have I done the entry correctly? I had 2 shortcake biscuits which were 8.4g each and no insulin.

Taking after meal levels into account do you think my meal time ratios are ok: bfast = 2:1 (2u for every 10g carbs) / lnch = 1.5:1 and dinnr = 1:1?
Also which is the best way to enter this into my diary 2:1 or 2:10?

On Fri 11/01 following a visit to my GP I increased my lantus/BI from 22u to 24u. Then as you can see on Fri 18/01 I increased it again by 2u so from 24u to 26u.

Gill Smile

Carb counting (or trying my best to from what I learn on the forum) (as mentioned before on the forum, I can't get on a DAFNE course due to there not being one in my local area & can't travel/be away from home due to family commitments)

Taking - Humalog - before meals/eating depending on how many carbs in the food.
Lantus - before bed.

Jan 19, 2013

catherinesouth 4 posts

Topic: Carbohydrate Counting / Greggs baguette sandwiches

Hi I'm a new dafne grad.

Finding I've got know problem with labelled foods, but struggled yesterday with a greggs crusty baguette ham and coleslaw . Had to guess using pics from carbs and cals book .
Does anyone know roughly how many cp's .

Any advice appreciated.
Cheers

Jan 19, 2013

novorapidboi26 1,819 posts

Topic: General Discussion / Diabulemia is becoming a growing problem

I don't understand it personally, but I suppose there are girls out there very self conscious about there bodies.........

education i suppose is a good way forward......being told that hey WILL suffer, not maybe suffer if they continue would be real, maybe not ethical......

Jan 18, 2013

JayBee 587 posts

Topic: General Discussion / Diabulemia is becoming a growing problem

Original article from the diabetes.co.uk website:
Diabulemia becoming a growing problem

"An increasing number of women with diabetes are putting their health at risk by avoiding vital insulin treatment in order to lose weight."

What is your opinion on this topic/article?

My heart goes out to those that are desperate enough to take that route. Sad

This is a great example of why an educational course like DAFNE is needed because we know as graduates that the way forward is exercise and dose reduction to compensate for the changes that occur from exercising in order to assist with weight loss - not starving your body of insulin, running the risk of hospitalising yourself just to lose a few pounds.

As I've grown up, I have thought about this option for keeping my weight stable but (like the majority I hope) I chose to acknowledge the risks and avoid actively choosing to do it because I want to take care of myself and live as long as I can.

Saying that, I have never ever been over weight (yet) and I've never ever been on a diet (nor do I ever plan to) so I've not ever really experienced the extremes that others sometimes face. If I ever worry about my weight, I tend to just become a bit more select about what I eat for a while to make sure it doesn't get out of hand.

A lot goes unsaid for the positives of moderation too...

Thoughts? Smile

Jan 18, 2013

Stew B 125 posts

Topic: General Discussion / Insulin pump

I went on to a pump last July, mainly because of problems with hypos and difficulties with exercise. Other than these issues, DAFNE had been working for me. In practical terms the pump wasn't a problem and the support from my hcps was really excellent. I mastered canulas and got to grips with calculating background basal rates and bolus amounts. I found temporary basal rates really useful for my lifestle, and extended and multi-wave boluses added a frison of excitemet! I confess I did find the minutiae of making changes to pump settings a bit tedious (with DAFNE you work it out and simply change the ratio/amount you inject, with the pump there are a range of options - which is why it's so flexible - which require some patience and perseverance, certainly in the early stages).

For me the down-side was being reminded 24/7 that I have diabetes. I found wearing the pump in bed, taking it off for showers / baths, and noticing it everytime I dropped my trousers (I know - too much information) became very wearisome. It did largely address the hypo issue, but I damaged my knee and wasn't able to properly test any benefit re. exercise. Because DAFNE had worked pretty well for me I didn't see any benefit in reduced HbA1c - in fact my HbA1c was raised over the five and a bit months of pump useage.

Eventually, after a lot of discussion with my hcps I decided to come off the pump and return to DAFNE. Again, this wasn't straightforward and it has taken just over a month to get back to roughly where I was before embarking on the pump. My hcps were incredibly supportive, and worked hard to overcome any sense of "failure" on my part. Any guilt is eased by knowing that my pump will be recycled and will give someone else the chance to benefit.

So, I suppose I'm saying what my hcps said all along. Pump therapy isn't for everyone! I am glad that I gave it a real go, but am much happier now that I'm back with DAFNE. It wasn't the practical aspects of the pump as much as the emotional effects that tipped the balance for me. Clearly pump therapy provides lots of benefits for the vast majority of those that get the chance to use it, but bear in mind that for a small number of users it doesn't work out, and it isn't the end of the world.

Good luck to anyone embarking on pumps. I'm still in touch with some of my DAFNE graduate colleagues from 2007, two of whom are now on pumps and they are really happy with the experience.

Stew

Jan 17, 2013

tcmonkey80 41 posts

Topic: General Discussion / Insulin pump

Sarah I totally know where your coming from. The pump is brilliant when it works ha ha wish they could make something that was full proof
My nurse wants me to try metal canula but o haven't got the nerve for them tbh.

Jan 17, 2013

tcmonkey80 41 posts

Topic: General Discussion / Insulin pump

Sarah I totally know where your coming from. The pump is brilliant when it works ha ha wish they could make something that was full proof
My nurse wants me to try metal canula but o haven't got the nerve for them tbh.

Jan 17, 2013

tcmonkey80 41 posts

Topic: General Discussion / Insulin pump

That happened to me with the saline doesn't happen with novorapid. The weirdest thing I've had is when I have taken the canula out I have bleed, little like if u hit a vein with pens. Did take my breath away lol

Jan 17, 2013

ruthhutchinson 39 posts

Topic: General Discussion / exercise

Thanks for all your advice. Have been out a couple of times now and already notice an improvement in my readings.

Jan 17, 2013

ruthhutchinson 39 posts

Topic: General Discussion / exercise

Thanks for all your advice. Have been out a couple of times now and already notice an improvement in my readings.

Jan 17, 2013

novorapidboi26 1,819 posts

Topic: General Discussion / Insulin pump

tcmonkey80 said:
Yes they are. I did try the top of my leg but that was painful for a few days. You always have an area that favourite site and yes mine was always lower tummy.
Have you started the pump now?

i go live on monday

i tend to only inject in my stomach occasionally so i asm confident it will be full of ripe flesh......

what i did find weird was wehen i removed the cannula, there was some leakage from the hole......it was just weird......not weird enough to put me off.....

Jan 21, 2013 tcmonkey80 41 posts	Topic: General Discussion / Pumping at last...... Best of luck

Jan 21, 2013 tcmonkey80 41 posts	Topic: General Discussion / Insulin pump Sarahfergo, when u say messed up are you have the whole fatty lumps? I guess in the long ru the pump isnt great then?

Jan 21, 2013 tcmonkey80 41 posts	Topic: General Discussion / Insulin pump Hi stewb, Thanks for your post, its nice to know im not alone feeling I cant cope with the pump. The only reason I have the pump is for pre pregnancy, I know this is something to really aim for but to be honest I am struggling

Jan 21, 2013 Derek Brown 32 posts	Topic: General Discussion / Insulin pump @novorapidboi26, Hope all goes well starting the pump on insulin today

Jan 20, 2013 richard_g 14 posts	Topic: Carbohydrate Counting / Greggs baguette sandwiches Greggs web site has a pdf nutritional guide but I couldn't identify your particular baguette. The sandwiches listed are typically 4 to 5 CPs. http://www.greggs.co.uk/assets/Uploads/NutritionalInfo-July2011.pdf

Jan 20, 2013 richard_g 14 posts	Topic: General Discussion / B G Diary Comments please Hi, Couple of observations. On Wed and Thursday you tested BG very close together and ate about 3CPs this would be expected to add about 9 to your BG and this is what seemed to happen your BG went up. However the general drift up during the day may suggest insufficient back ground. The higher ratios your applying in the later readings may be compensating for this. Have a look at the online Dafne manual on background insulins. Maybe you need some professional advice on whether you can take lantus twice a day manual mentions this possibility, or even consider a different background insulin like levimir which you can take twice a day. I would also have a look at the hypo treatment in the manual as its very easy to over compensate when your low BG and then you may have to consider taking more insulin to bring BG back down.

Jan 20, 2013 mum2westiesGill 502 posts	Topic: General Discussion / B G Diary Comments please Here are my next 2 days 19/01 & part of 20/01. Please keep those comments coming in. Thanks Gill

Jan 20, 2013 mum2westiesGill 502 posts	Topic: General Discussion / B G Diary Comments please Hi Warwick, Thanks for your reply/comment. Everything has been taken into account. Gill

Jan 20, 2013 Warwick 425 posts	Topic: General Discussion / B G Diary Comments please Wow, there certainly is a lot of red in that diary, isn't there. That would indicate that the basal insulin is too low, but you keep having hypos overnight, so increasing basal doesn't seem to be an option. Do you have a diabetes educator that you can see? I would suggest having a chat to them about the possibility of taking your Lantus in the mornings instead of at night. Because Lantus doesn't always last a full 24 hours (and your BGs seem to be going pretty high before you take your next dose, switching to a mrning dose may stop the highs in the evenings and the hypos overnight. Cheers, Warwick.

Jan 19, 2013 marke 686 posts	Topic: Carbohydrate Counting / Greggs baguette sandwiches Hi, there is a link in the Carb Counter, Carb links on this site to a Greggs PDF of bagettes etc. It is from August2010 but still seems to work and I guess is still largely correct.

Jan 19, 2013 vic demain 87 posts	Topic: General Discussion / Diabulemia is becoming a growing problem Great shame that young women feel the need to do this, however, it is a reflection in the perfection driven world which many younsters feel they have to conform with in order to be accepted and appreciated.

Jan 19, 2013 JayBee 587 posts	Topic: Carbohydrate Counting / New food labelling I hope they finally add carbohydrates. Such a pain that they don't usually. Oh yes! Please yes for the "per pack" or "per bar" or... even "per 4 sweets" for hypo options!

Jan 19, 2013 JayBee 587 posts	Topic: Carbohydrate Counting / UK carb counters The Android app currently does not have the option to add entries to the carbs listing. This should hopefully come in the future.

Jan 19, 2013 JayBee 587 posts	Topic: Carbohydrate Counting / Greggs baguette sandwiches When you're next in Greggs, ask them for their nutritional information leaflet. I did hope that they had a PDF version on their website but because foods vary in their shops (apparently), they only give out the leaflet they hand out in local shops. Sadly I cannot see your particular bagette on my local store's leaflet... they only show for me: Chicken Club (77g) Honey roast ham and mature cheddar cheese (69.5g) Mexican bandit (84.5g) Tuna crunch (7.6.5g) You may have been okay assuming something like 7CP based on these numbers... and making a note of it for next time in case it wasn't quite right and so you can tweek it. Can always trust the eat-out option to be a pain in the bum, eh? Hope you enjoyed your food!

Jan 19, 2013 mum2westiesGill 502 posts	Topic: General Discussion / B G Diary Comments please Hi, Just wanting some comments on my B G Diary. All comments are accepted. In the Wed 16/01 entry @ 08:01 hychk and the Thu 17/01 entry @ 09:11 hychk have I done the entry correctly? I had 2 shortcake biscuits which were 8.4g each and no insulin. Taking after meal levels into account do you think my meal time ratios are ok: bfast = 2:1 (2u for every 10g carbs) / lnch = 1.5:1 and dinnr = 1:1? Also which is the best way to enter this into my diary 2:1 or 2:10? On Fri 11/01 following a visit to my GP I increased my lantus/BI from 22u to 24u. Then as you can see on Fri 18/01 I increased it again by 2u so from 24u to 26u. Gill Carb counting (or trying my best to from what I learn on the forum) (as mentioned before on the forum, I can't get on a DAFNE course due to there not being one in my local area & can't travel/be away from home due to family commitments) Taking - Humalog - before meals/eating depending on how many carbs in the food. Lantus - before bed.

Jan 19, 2013 catherinesouth 4 posts	Topic: Carbohydrate Counting / Greggs baguette sandwiches Hi I'm a new dafne grad. Finding I've got know problem with labelled foods, but struggled yesterday with a greggs crusty baguette ham and coleslaw . Had to guess using pics from carbs and cals book . Does anyone know roughly how many cp's . Any advice appreciated. Cheers

Jan 19, 2013 novorapidboi26 1,819 posts	Topic: General Discussion / Diabulemia is becoming a growing problem I don't understand it personally, but I suppose there are girls out there very self conscious about there bodies......... education i suppose is a good way forward......being told that hey WILL suffer, not maybe suffer if they continue would be real, maybe not ethical......

Jan 18, 2013 JayBee 587 posts	Topic: General Discussion / Diabulemia is becoming a growing problem Original article from the diabetes.co.uk website: Diabulemia becoming a growing problem "An increasing number of women with diabetes are putting their health at risk by avoiding vital insulin treatment in order to lose weight." What is your opinion on this topic/article? My heart goes out to those that are desperate enough to take that route. This is a great example of why an educational course like DAFNE is needed because we know as graduates that the way forward is exercise and dose reduction to compensate for the changes that occur from exercising in order to assist with weight loss - not starving your body of insulin, running the risk of hospitalising yourself just to lose a few pounds. As I've grown up, I have thought about this option for keeping my weight stable but (like the majority I hope) I chose to acknowledge the risks and avoid actively choosing to do it because I want to take care of myself and live as long as I can. Saying that, I have never ever been over weight (yet) and I've never ever been on a diet (nor do I ever plan to) so I've not ever really experienced the extremes that others sometimes face. If I ever worry about my weight, I tend to just become a bit more select about what I eat for a while to make sure it doesn't get out of hand. A lot goes unsaid for the positives of moderation too... Thoughts?

Jan 18, 2013 Stew B 125 posts	Topic: General Discussion / Insulin pump I went on to a pump last July, mainly because of problems with hypos and difficulties with exercise. Other than these issues, DAFNE had been working for me. In practical terms the pump wasn't a problem and the support from my hcps was really excellent. I mastered canulas and got to grips with calculating background basal rates and bolus amounts. I found temporary basal rates really useful for my lifestle, and extended and multi-wave boluses added a frison of excitemet! I confess I did find the minutiae of making changes to pump settings a bit tedious (with DAFNE you work it out and simply change the ratio/amount you inject, with the pump there are a range of options - which is why it's so flexible - which require some patience and perseverance, certainly in the early stages). For me the down-side was being reminded 24/7 that I have diabetes. I found wearing the pump in bed, taking it off for showers / baths, and noticing it everytime I dropped my trousers (I know - too much information) became very wearisome. It did largely address the hypo issue, but I damaged my knee and wasn't able to properly test any benefit re. exercise. Because DAFNE had worked pretty well for me I didn't see any benefit in reduced HbA1c - in fact my HbA1c was raised over the five and a bit months of pump useage. Eventually, after a lot of discussion with my hcps I decided to come off the pump and return to DAFNE. Again, this wasn't straightforward and it has taken just over a month to get back to roughly where I was before embarking on the pump. My hcps were incredibly supportive, and worked hard to overcome any sense of "failure" on my part. Any guilt is eased by knowing that my pump will be recycled and will give someone else the chance to benefit. So, I suppose I'm saying what my hcps said all along. Pump therapy isn't for everyone! I am glad that I gave it a real go, but am much happier now that I'm back with DAFNE. It wasn't the practical aspects of the pump as much as the emotional effects that tipped the balance for me. Clearly pump therapy provides lots of benefits for the vast majority of those that get the chance to use it, but bear in mind that for a small number of users it doesn't work out, and it isn't the end of the world. Good luck to anyone embarking on pumps. I'm still in touch with some of my DAFNE graduate colleagues from 2007, two of whom are now on pumps and they are really happy with the experience. Stew

Jan 17, 2013 tcmonkey80 41 posts	Topic: General Discussion / Insulin pump Sarah I totally know where your coming from. The pump is brilliant when it works ha ha wish they could make something that was full proof My nurse wants me to try metal canula but o haven't got the nerve for them tbh.

Jan 17, 2013 tcmonkey80 41 posts	Topic: General Discussion / Insulin pump Sarah I totally know where your coming from. The pump is brilliant when it works ha ha wish they could make something that was full proof My nurse wants me to try metal canula but o haven't got the nerve for them tbh.

Jan 17, 2013 tcmonkey80 41 posts	Topic: General Discussion / Insulin pump That happened to me with the saline doesn't happen with novorapid. The weirdest thing I've had is when I have taken the canula out I have bleed, little like if u hit a vein with pens. Did take my breath away lol

Jan 17, 2013 ruthhutchinson 39 posts	Topic: General Discussion / exercise Thanks for all your advice. Have been out a couple of times now and already notice an improvement in my readings.

Jan 17, 2013 ruthhutchinson 39 posts	Topic: General Discussion / exercise Thanks for all your advice. Have been out a couple of times now and already notice an improvement in my readings.

Jan 17, 2013 novorapidboi26 1,819 posts	Topic: General Discussion / Insulin pump tcmonkey80 said: Yes they are. I did try the top of my leg but that was painful for a few days. You always have an area that favourite site and yes mine was always lower tummy. Have you started the pump now? i go live on monday i tend to only inject in my stomach occasionally so i asm confident it will be full of ripe flesh...... what i did find weird was wehen i removed the cannula, there was some leakage from the hole......it was just weird......not weird enough to put me off.....