Recent Posts - DAFNE Online

Jan 17, 2013

sarahfergo 6 posts

Topic: General Discussion / Insulin pump

canulas can cause more damage because you have something inserted in you all the time and can cause infections if you leave it in too long, which i made the mistake of doing once i had a nasty infection! also with the fatty bumps you need to be careful because your pump will sometimes not absorb the insulin and not warn you of an occlusion which has also happened to me many of times and ended up in hospital with dka, to be honest i was on injections for about 14 years and eventually didnt work for me so went on pupm which have been on for 4years now and im constanly having problems with canula sites im always changing sites but end up occluding, bending, blleding out etc its a no win situation!! sorry for the doom and gloom but could do with some advise Smile

Jan 17, 2013

tcmonkey80 41 posts

Topic: General Discussion / Insulin pump

Yes they are. I did try the top of my leg but that was painful for a few days. You always have an area that favourite site and yes mine was always lower tummy.
Have you started the pump now?

Jan 17, 2013

novorapidboi26 1,819 posts

Topic: General Discussion / Insulin pump

are you cannulas' inserted in your stomach mostly..............?

did you inject there most when on MDI?

Jan 17, 2013

tcmonkey80 41 posts

Topic: General Discussion / Insulin pump

Hey,
Well to be honest no but I think maybe have done injections for a long time I dont know if I have fatty lumps that cause them to bend? Just my theory really. The tough part is not know they bend until its too late really.

Jan 17, 2013

tcmonkey80 41 posts

Topic: General Discussion / Insulin pump

Hey,
Well to be honest no but I think maybe have done injections for a long time I dont know if I have fatty lumps that cause them to bend? Just my theory really. The tough part is not know they bend until its too late really.

Jan 17, 2013

novorapidboi26 1,819 posts

Topic: General Discussion / Insulin pump

Do the cannulas cause more damage than injections..........

Jan 17, 2013

sarahfergo 6 posts

Topic: General Discussion / Insulin pump

You should carry spare canulas where ever you go! how often do you change them? I have problems where my canula leaks all the time becuase ive been using canulas for that long my legs and stomach is messed up.

Jan 17, 2013

tcmonkey80 41 posts

Topic: General Discussion / Where do I wear my pump?

Hey Helen,
I have looked at these websites but they all seem a little boring and more child like. I am really going to think about this idea lol.
Hope u enjoy the hot weather as we have snow he he can we swop? He he

Jan 17, 2013

HelenP 218 posts

Topic: General Discussion / Where do I wear my pump?

have you tried:

I just googled insulin pump accessories and searched for UK.
www.pumpfashion.co.uk/
www.funkypumpers.com/aboutus.html
www.childrenwithdiabetesuk.org/diabetes.accessories

Sorry I can not put this in as a link.....computer skills not up to it!

I know there are people already making money in Australia. I have bought several waist somethings for when i go to bed with just a T shirt on. It is 35 degrees (Celsius) here today.

I also believe there is a site "100 places to wear your pump" some are a bit amazing but it is basically wherever you can!

Helen

Jan 16, 2013

tcmonkey80 41 posts

Topic: General Discussion / Where do I wear my pump?

Does anybody know of a good website that actually has adult insulin pump accessories?
I have looked all over the internet, and can only seem to find either a bra/leg pouch in white. I just thought baby something funky would be fun, I dont want to hide my pump as it is part of me and mylife. At the moment I do slide my pump down my bra, or where it on my belt but I find that sticks out, and I end up knock it.
Any suggestions would be good!!
Maybe this would be a great money making idea??!!! Cool

Jan 16, 2013

tcmonkey80 41 posts

Topic: General Discussion / Insulin pump

Well I have been on the pump now for over 2 months, on a whole I think its the best thing since slice bread, however I am having trouble with set changes in as much as I have a 1-3 ratio for bent canulas. Yesterday I was sent home from work as sugars had reached 17.5. I was so worried and getting more and more stressed. I did use my insulin pens but nothing helped until I was able to get home and change the set.
I wouldnt go back to pens as I love the fact the little pump does everything for you (well its as good as the person entering the information)
Has anybody else found problems with set changes?!

Jan 16, 2013

JayBee 587 posts

Topic: DAFNE Online Mobile / Android- CP Lists don't match?!

I was told back in August 2012 that an update was eventually coming... Nothing yet though. I've noticed other changes o the site that don't match up (even my ketones aren't being recorded correctly any more).

Is the android app going to get an update to accommodate the new changes?
Thread here: http://dafneonline.co.uk/forums/5/topics/1817

Jan 16, 2013

Phil Maskell 194 posts

Topic: General Discussion / exercise

Lows after exercise are caused by muscles taking sugar to replenish themselves (so I've read/been told). Its this replenshiment that helps them rebuild themselves slightly better each time you exercise.

If I'm going out on a proper ride (more than 20 miles) I will half my BI before and lower my meal before (usually breakfast) ratio to 05:1 from 1:1 for short rides (about 10 miles) to 1.5:1 for no ride. For long rides I will also lower the ratio for meal after (usually lunch) from 1.5:1 to 1:1 to stop after exercise lows.

I also find SIS energy bars are great as they are 40g carbs, but only 20 is sugar so they keep you up as well as bring you out of a hypo, pockects on the back of cycling tops are great for a handful of bars and my trusty Accu-chek mobile (no strips so can test while riding Very Happy

This is what I do, but never seem to get it completely right though, all trial and alot of error!

Hope some of the insulin/carb ideas help.

Phil

Jan 15, 2013

HelenP 218 posts

Topic: General Discussion / Ratio - Two Units QA to every 10g Carbs

Gill, You can put another row in your cheat card. The 2:1 is really just doubling your 1:1. Helen

Jan 15, 2013

mum2westiesGill 502 posts

Topic: General Discussion / Ratio - Two Units QA to every 10g Carbs

Thank you JWo! Smile

Jan 15, 2013

JayBee 587 posts

Topic: General Discussion / Ratio - Two Units QA to every 10g Carbs

Yes. That is correct.

Enjoy your food! Smile

Jan 15, 2013

mum2westiesGill 502 posts

Topic: General Discussion / Ratio - Two Units QA to every 10g Carbs

Have I calculated this one right please?

CP 4 (40g cho)
QA 8

(2:10 or 2:1 - I suppose it depends how you prefer to write this down)

Gill Smile

Jan 15, 2013

Warwick 425 posts

Topic: General Discussion / Insulin Docking

Some recent articles about how the key to how insulin binds to its receptors has been uncovered. Potentially very exciting as it may one day lead to taking insulin without injections or a pump.

http://www.sbs.com.au/news/article/1725780/Diabetics-may-be-closer-to-needle-free-cure

http://www.gizmag.com/insulin-receptor-docking-diabetes/25721/

https://asweetlife.org/news/diabetes-research-breakthrough-how-insulin-binds/

Jan 15, 2013

vic demain 87 posts

Topic: General Discussion / exercise

I do a bit of cycling and like Warwick, I don't eat meals before exercise. I regularly check blood sugars before during and after the ride and try to maintain around 8-10. If at the lower end before I start, then a couple of bisuits I find are fine.
When I joined a charity event which was 7 hrs during the night, I didn't take my BI that night and just controlled with QA, checking every 20km and found energy bars to be great.
Always have a bottle of cola (full fat) on the bike as well as water.
Never experienced hypos afterwards thankfully. Good luck with the exercise, with DAFNE training, exercise should be enjoyable for all.

Jan 14, 2013

Warwick 425 posts

Topic: General Discussion / exercise

I have been regularly running for ten years now, so I can generally eat whenever I like before a run, even during a run if necessary (bananas etc, not pizza). When I started though, if I had food before running, I would get a stitch, or feel nauseous. I'd recommend having some carbs like a banana, piece of bread etc about 90-120 minutes before you run. That way you shouldn't be troubled by the food during the run, and it should keep your blood sugars pretty stable during the run.

I also find that sipping sports drink at regular intervals during a run helps, but you probably need to get a running belt that holds a drink bottle for this.

All the best with it. Exercising with T1 diabetes is like everything else - needs experimentation, but you will be able to work out pretty quickly what works for you and what doesn't. Just check your BGs a little more often than you usually would and you will be able to build up a pattern of how your body responds to exercise.

Warwick.

Jan 14, 2013

ruthhutchinson 39 posts

Topic: General Discussion / exercise

Perhaps some of you experts can help out a novice. I am going running tonight for the first time with a group. We will be running (slowly I hope) from 6.15 to 7.15. I intend to eat dinner when I get home. I will change my ratio at that time as you have advised above but I wondered when is the best time to eat beforehand and how many Carbs should I take. Confused

Jan 14, 2013

BeccyB 50 posts

Topic: General Discussion / Ratios

Gill, I think Helen's idea is great for you - it will build your confidence every time you check your calculation against the card and have got it right, which will most likely be all the time! We all need a bit of reassurance sometimes though Smile

Beccy

Jan 13, 2013

marke 686 posts

Topic: Questions for HCPs / DAFNE Courses

Alan, seems it is called MIMINT1E ( boy do they need a new marketing person Very Happy

) but is as you describe. So what happened to choice in the NHS ? you can choose a hospital for an operation (supposedly ) but not your Diabetes education. A real shame but hopefully any Diabetes education is better than none. I hope the course goes well and your niece gets some real benefit out of it.

Jan 13, 2013

JayBee 587 posts

Topic: General Discussion / High Morning readings

I hear you... Pre-illness I was on something like 0:5:1, 0.5:1, 1:1 and split dose 15/13... now after a long time of being ill on and off my ratios are similar but my BI doses are now 16/16.

Good grief illness sure makes things bloody confusing. Definitely check for hypos in the night to add to novo's comment - I found I had been hypo'ing in the night in response to getting 14-16s in the morning after putting it up a few times - hit 18/22 at one point!

Stay safe and hope it all stabilises again soon!

Jan 13, 2013

JayBee 587 posts

Topic: Questions for HCPs / Ratios VS Time Of Day/Having a lie in!

If I get up late like that, I tend to take the ratio for the meal I would normally have at that time of day (so in this case, I'd take my lunchtime ratio). Not too many problems with that... though saying that, I can't just lie-in straight through like you can, I have to jab my first BI dose as close to 7am as I can... then I can sleep again. ^_^

I do wonder about the timing window too... I mean, heck, I also keep in mind about the 18 hour working time and overlap period I get with my split dose Levemir! So many things to factor in!

Yup, yup, can't generalise with your condition! Your diabetic needs are unique to you so you need to work it out for success! ;)
Best wishes!

Jan 17, 2013 sarahfergo 6 posts	Topic: General Discussion / Insulin pump canulas can cause more damage because you have something inserted in you all the time and can cause infections if you leave it in too long, which i made the mistake of doing once i had a nasty infection! also with the fatty bumps you need to be careful because your pump will sometimes not absorb the insulin and not warn you of an occlusion which has also happened to me many of times and ended up in hospital with dka, to be honest i was on injections for about 14 years and eventually didnt work for me so went on pupm which have been on for 4years now and im constanly having problems with canula sites im always changing sites but end up occluding, bending, blleding out etc its a no win situation!! sorry for the doom and gloom but could do with some advise

Jan 17, 2013 tcmonkey80 41 posts	Topic: General Discussion / Insulin pump Yes they are. I did try the top of my leg but that was painful for a few days. You always have an area that favourite site and yes mine was always lower tummy. Have you started the pump now?

Jan 17, 2013 novorapidboi26 1,819 posts	Topic: General Discussion / Insulin pump are you cannulas' inserted in your stomach mostly..............? did you inject there most when on MDI?

Jan 17, 2013 tcmonkey80 41 posts	Topic: General Discussion / Insulin pump Hey, Well to be honest no but I think maybe have done injections for a long time I dont know if I have fatty lumps that cause them to bend? Just my theory really. The tough part is not know they bend until its too late really.

Jan 17, 2013 tcmonkey80 41 posts	Topic: General Discussion / Insulin pump Hey, Well to be honest no but I think maybe have done injections for a long time I dont know if I have fatty lumps that cause them to bend? Just my theory really. The tough part is not know they bend until its too late really.

Jan 17, 2013 novorapidboi26 1,819 posts	Topic: General Discussion / Insulin pump Do the cannulas cause more damage than injections..........

Jan 17, 2013 sarahfergo 6 posts	Topic: General Discussion / Insulin pump You should carry spare canulas where ever you go! how often do you change them? I have problems where my canula leaks all the time becuase ive been using canulas for that long my legs and stomach is messed up.

Jan 17, 2013 tcmonkey80 41 posts	Topic: General Discussion / Where do I wear my pump? Hey Helen, I have looked at these websites but they all seem a little boring and more child like. I am really going to think about this idea lol. Hope u enjoy the hot weather as we have snow he he can we swop? He he

Jan 17, 2013 HelenP 218 posts	Topic: General Discussion / Where do I wear my pump? have you tried: I just googled insulin pump accessories and searched for UK. www.pumpfashion.co.uk/ www.funkypumpers.com/aboutus.html www.childrenwithdiabetesuk.org/diabetes.accessories Sorry I can not put this in as a link.....computer skills not up to it! I know there are people already making money in Australia. I have bought several waist somethings for when i go to bed with just a T shirt on. It is 35 degrees (Celsius) here today. I also believe there is a site "100 places to wear your pump" some are a bit amazing but it is basically wherever you can! Helen

Jan 16, 2013 tcmonkey80 41 posts	Topic: General Discussion / Where do I wear my pump? Does anybody know of a good website that actually has adult insulin pump accessories? I have looked all over the internet, and can only seem to find either a bra/leg pouch in white. I just thought baby something funky would be fun, I dont want to hide my pump as it is part of me and mylife. At the moment I do slide my pump down my bra, or where it on my belt but I find that sticks out, and I end up knock it. Any suggestions would be good!! Maybe this would be a great money making idea??!!!

Jan 16, 2013 tcmonkey80 41 posts	Topic: General Discussion / Insulin pump Well I have been on the pump now for over 2 months, on a whole I think its the best thing since slice bread, however I am having trouble with set changes in as much as I have a 1-3 ratio for bent canulas. Yesterday I was sent home from work as sugars had reached 17.5. I was so worried and getting more and more stressed. I did use my insulin pens but nothing helped until I was able to get home and change the set. I wouldnt go back to pens as I love the fact the little pump does everything for you (well its as good as the person entering the information) Has anybody else found problems with set changes?!

Jan 16, 2013 JayBee 587 posts	Topic: DAFNE Online Mobile / Android- CP Lists don't match?! I was told back in August 2012 that an update was eventually coming... Nothing yet though. I've noticed other changes o the site that don't match up (even my ketones aren't being recorded correctly any more). Is the android app going to get an update to accommodate the new changes? Thread here: http://dafneonline.co.uk/forums/5/topics/1817

Jan 16, 2013 Phil Maskell 194 posts	Topic: General Discussion / exercise Lows after exercise are caused by muscles taking sugar to replenish themselves (so I've read/been told). Its this replenshiment that helps them rebuild themselves slightly better each time you exercise. If I'm going out on a proper ride (more than 20 miles) I will half my BI before and lower my meal before (usually breakfast) ratio to 05:1 from 1:1 for short rides (about 10 miles) to 1.5:1 for no ride. For long rides I will also lower the ratio for meal after (usually lunch) from 1.5:1 to 1:1 to stop after exercise lows. I also find SIS energy bars are great as they are 40g carbs, but only 20 is sugar so they keep you up as well as bring you out of a hypo, pockects on the back of cycling tops are great for a handful of bars and my trusty Accu-chek mobile (no strips so can test while riding This is what I do, but never seem to get it completely right though, all trial and alot of error! Hope some of the insulin/carb ideas help. Phil

Jan 15, 2013 HelenP 218 posts	Topic: General Discussion / Ratio - Two Units QA to every 10g Carbs Gill, You can put another row in your cheat card. The 2:1 is really just doubling your 1:1. Helen

Jan 15, 2013 mum2westiesGill 502 posts	Topic: General Discussion / Ratio - Two Units QA to every 10g Carbs Thank you JWo!

Jan 15, 2013 JayBee 587 posts	Topic: General Discussion / Ratio - Two Units QA to every 10g Carbs Yes. That is correct. Enjoy your food!

Jan 15, 2013 mum2westiesGill 502 posts	Topic: General Discussion / Ratio - Two Units QA to every 10g Carbs Have I calculated this one right please? CP 4 (40g cho) QA 8 (2:10 or 2:1 - I suppose it depends how you prefer to write this down) Gill

Jan 15, 2013 Warwick 425 posts	Topic: General Discussion / Insulin Docking Some recent articles about how the key to how insulin binds to its receptors has been uncovered. Potentially very exciting as it may one day lead to taking insulin without injections or a pump. http://www.sbs.com.au/news/article/1725780/Diabetics-may-be-closer-to-needle-free-cure http://www.gizmag.com/insulin-receptor-docking-diabetes/25721/ https://asweetlife.org/news/diabetes-research-breakthrough-how-insulin-binds/

Jan 15, 2013 vic demain 87 posts	Topic: General Discussion / exercise I do a bit of cycling and like Warwick, I don't eat meals before exercise. I regularly check blood sugars before during and after the ride and try to maintain around 8-10. If at the lower end before I start, then a couple of bisuits I find are fine. When I joined a charity event which was 7 hrs during the night, I didn't take my BI that night and just controlled with QA, checking every 20km and found energy bars to be great. Always have a bottle of cola (full fat) on the bike as well as water. Never experienced hypos afterwards thankfully. Good luck with the exercise, with DAFNE training, exercise should be enjoyable for all.

Jan 14, 2013 Warwick 425 posts	Topic: General Discussion / exercise I have been regularly running for ten years now, so I can generally eat whenever I like before a run, even during a run if necessary (bananas etc, not pizza). When I started though, if I had food before running, I would get a stitch, or feel nauseous. I'd recommend having some carbs like a banana, piece of bread etc about 90-120 minutes before you run. That way you shouldn't be troubled by the food during the run, and it should keep your blood sugars pretty stable during the run. I also find that sipping sports drink at regular intervals during a run helps, but you probably need to get a running belt that holds a drink bottle for this. All the best with it. Exercising with T1 diabetes is like everything else - needs experimentation, but you will be able to work out pretty quickly what works for you and what doesn't. Just check your BGs a little more often than you usually would and you will be able to build up a pattern of how your body responds to exercise. Warwick.

Jan 14, 2013 ruthhutchinson 39 posts	Topic: General Discussion / exercise Perhaps some of you experts can help out a novice. I am going running tonight for the first time with a group. We will be running (slowly I hope) from 6.15 to 7.15. I intend to eat dinner when I get home. I will change my ratio at that time as you have advised above but I wondered when is the best time to eat beforehand and how many Carbs should I take.

Jan 14, 2013 BeccyB 50 posts	Topic: General Discussion / Ratios Gill, I think Helen's idea is great for you - it will build your confidence every time you check your calculation against the card and have got it right, which will most likely be all the time! We all need a bit of reassurance sometimes though Beccy

Jan 13, 2013 marke 686 posts	Topic: Questions for HCPs / DAFNE Courses Alan, seems it is called MIMINT1E ( boy do they need a new marketing person ) but is as you describe. So what happened to choice in the NHS ? you can choose a hospital for an operation (supposedly ) but not your Diabetes education. A real shame but hopefully any Diabetes education is better than none. I hope the course goes well and your niece gets some real benefit out of it.

Jan 13, 2013 JayBee 587 posts	Topic: General Discussion / High Morning readings I hear you... Pre-illness I was on something like 0:5:1, 0.5:1, 1:1 and split dose 15/13... now after a long time of being ill on and off my ratios are similar but my BI doses are now 16/16. Good grief illness sure makes things bloody confusing. Definitely check for hypos in the night to add to novo's comment - I found I had been hypo'ing in the night in response to getting 14-16s in the morning after putting it up a few times - hit 18/22 at one point! Stay safe and hope it all stabilises again soon!

Jan 13, 2013 JayBee 587 posts	Topic: Questions for HCPs / Ratios VS Time Of Day/Having a lie in! If I get up late like that, I tend to take the ratio for the meal I would normally have at that time of day (so in this case, I'd take my lunchtime ratio). Not too many problems with that... though saying that, I can't just lie-in straight through like you can, I have to jab my first BI dose as close to 7am as I can... then I can sleep again. ^_^ I do wonder about the timing window too... I mean, heck, I also keep in mind about the 18 hour working time and overlap period I get with my split dose Levemir! So many things to factor in! Yup, yup, can't generalise with your condition! Your diabetic needs are unique to you so you need to work it out for success! ;) Best wishes!