Recent Posts - DAFNE Online

Mar 31, 2017

Bananaman 34 posts

Topic: Questions for HCPs / blood glucose problems

Im going to drop the background down to 20 and I have increased the bolus

Mar 31, 2017

Colin McC 15 posts

Topic: General Discussion / High BG mid morning

Thanks all. As Marke quite rightly stated all of us diabetics are different & you only find out what is happening now I have the freestyle libre tools. Yes it may have always been happening & I was unaware as to take blood every 2 hours would play havoc on your fingers! . So my story to date. Having raised my QA (IHumalog) by @ 2 units extra each meal time & BI (Lantus @ 10pm) from 10u to 15u, my high BG reduced significantly, to the point in this past week to lowish BG. (ave past 7 days is @ 4.5!. Went to see my diabetic specialist yesterday & she said my morning Humalog may be working too quick in relation to my breakfast digestion, thus the reason why my BG was high mid morning. As my BG is now on the too low side she advised to lower my BI gradually & to try & take my QA after I have eaten, which is what I use to do 10 months past. My Hba1c was 6 , weight, injection sites, feet, BP all sound so no problems there. Will you let you know how I get on if of interest to anyone.

Mar 31, 2017

novorapidboi26 1,819 posts

Topic: Questions for HCPs / blood glucose problems

How is the background dose going....?

How much and often are you doing your background?

Have you tested it recently?

Mar 31, 2017

novorapidboi26 1,819 posts

Topic: General Discussion / no pancreas

The pancreas is also responsible for Glucagon production which is involved with the liver and its store of glucose....

what effect has this had?

I would imagine this makes hypos a but more critical.....

Mar 31, 2017

novorapidboi26 1,819 posts

Topic: General Discussion / BG METERS

I think most machines are good enough but any that offer a bolus calculator and ways of storing all your ratios and correction factors are on top for me......

as a pumper the contour next link is the best for me as it sensd my reading to the pump ready for bolus calculation.....

the libre is great but at its current cost its just not worth if for me..I am still happy doing manual basal tests, which would be the main use for the libre in my eyes.....

a lot of people keep saying it can tell you if your going up or down but i already know that from IOB....

maybe I am just stuck in my ways....lol....

Mar 31, 2017

novorapidboi26 1,819 posts

Topic: General Discussion / Blood glucose

the duration of the insulin would dictate that, so whenever it runs out, which is between 3 and 5 hours.....

its not an exact science of course as you need to consider dose timing as well as we don't always match up the insulin action to the food digestion perfectly....

Mar 31, 2017

novorapidboi26 1,819 posts

Topic: General Discussion / DEXCOM G4 - CGM

unsure but I would guess a couple of hundred quid for the CGM and another hundred or so for the sensors, which will last a week or two.....although some have reported getting longer on them...

what sticks out for me on your post though is you have admitted reduced hypo awareness and you are still driving.....are you over exaggerating your awareness to justify the CGM or is it really that bad and the DVLA don't know...

Mar 31, 2017

novorapidboi26 1,819 posts

Topic: General Discussion / Worth doing DAFNE?

All worth it, especially if she has not had any similar education

Mar 30, 2017

Mezzy_d 2 posts

Topic: DAFNE Online Mobile / To 29.03.2017

Diary from 20th March

Mar 30, 2017

Mezzy_d 2 posts

Topic: DAFNE Online Mobile / To 29.03.2017

Diary from 20th March

Mar 30, 2017

meltow 78 posts

Topic: General Discussion / DEXCOM G4 - CGM

I'm interested to know how much the Dexcom G4 system costs - does anyone know?

I've had one on loan for the last 6 weeks, and it's been a godsend. I'm virtually totally unaware of hypos unless my BG falls to 2.5 or below. Not good - particularly as my job entails a lot of driving to meet clients! Having the CGM has been great - a complete new tool for helping me to manage my diabetes, together with finger pricking and DAFNE. 48 hours now without it, and I'm back to square one Evil or Very Mad

Obviously there is the sensor, plus the reader, and the needles which need changing weekly.
Love to hear from anyone self-funding a Dexcom meter.

Cheers,

Mar 29, 2017

Bananaman 34 posts

Topic: Questions for HCPs / blood glucose problems

I have been having some problems my blood glucose reading lately could someone help I am on levemir and novorapid

Mar 28, 2017

marke 681 posts

Topic: Site Development / Any plans to serve pages over HTTPS?

So, After a few headaches and some downtime we now support https. Thanks go to Alistair for pointing me in the direction of lets encrypt. We are still supporting both http and https so you can use either at the moment. Eventually I will try to re-direct http requests to the http site but I need a rest now ;-) Upgrading websites is really not as easy as it should be when you do it in your own time ( that's both Simon and me, not just me !). I will add a news item to the site to let everyone know they can now use https and get rid of the browser warnings about security.

Mar 28, 2017

laridkelly 1 post

Topic: General Discussion / Blood glucose

Assuming carbs count is accurate. How long after taking humalog should my blood glucose be in target range?

Mar 27, 2017

michaelj 45 posts

Topic: Site Development / Any plans to serve pages over HTTPS?

I too have had problems with the new version of Firefox telling me the DAFNE site is unsecured. Have now stopped using this to log in, but find the Google Chrome still functions with no problems and lets me in without fuss

Mar 26, 2017

alturn 78 posts

Topic: General Discussion / Worth doing DAFNE?

I think she should take the course. This sounds similar to me pre-Dafne â€“ flunctuating BG, HBA1C out of range causing blurred vision, (incorrect) carb-counting. Dafne worked for me, though I still have periods of low & high BG (less extreme) but no blurred vision, and HBA1C in range.

If BG is flunctuating implies something may not be correct so this would be an opportunity to look at this. It could be QA or BI (or both) need tuning. External factors such as stress, driving, work-patterns may also contribute.

Dafne does require self-discipline to monitor and react to obtain full benefit. Then there are other aspects like sick-day rules (potentially very useful), interactions with others, confidence boost in the control.

Hope this helps,
J

Mar 26, 2017

marke 681 posts

Topic: General Discussion / Worth doing DAFNE?

I'm with you Simon ! I never would have guessed 8 years or so ago when I did it where it would lead me. I met interesting people on the course and have continued to meet Diabetics and Medical professionals since then that have taught me more than I ever would have guessed there was to know about Diabetes. It is difficult I appreciate for anyone to do the course, even without the commuting but I think most people get a lot out of the course in many ways.

Ok sales pitch over Cool

Mar 26, 2017

marke 681 posts

Topic: General Discussion / High BG mid morning

The problem for me with the NICE guidelines are they cover ALL diabetics and as ALL diabetics know we are all different ! Personally I would never worry about the 90 minutes target. I may experiment with a CGM to change Bolus times to move them further before a meal but thats about as far as a would or could go. If I miss the target cest a vie I wouldn't worry about it. As I said in my first post, we have a bit missing so with current technologies we are never going to be the same as 'normal' people, we can aim to be but if our aim is not true its just the way it is.

Mar 26, 2017

Simat 1 post

Topic: General Discussion / Worth doing DAFNE?

Hi Jos

Having just completed a DAFNE course last week I would definitely recommend your daughter goes on the course. Prior to the course I was also carb counting in the way you describe and had good control. Nevertheless I still learnt loads and I should hopefully now have the tools to achieve even better control. Also, a major benefit of the course is meeting and discussing experiences with other type 1s. This was absolutely invaluable and something which can't be gained from simply reading the materials.

Best

Simon

Mar 26, 2017

marke 681 posts

Topic: General Discussion / Worth doing DAFNE?

Hi, Without boring you rigid with the details. Its political , the materials are 'owned' by one particular NHS trust who have copyright on them. For the next version of DAFNE being developed now, I hope they won't make the same mistakes and one part of the NHS won't own it but it will be owned by the programme. I'm not sure I will hold my breath though, ALL big organisations run on bureaucracy not just he NHS Sad

Mar 25, 2017

Jos2 8 posts

Topic: General Discussion / Worth doing DAFNE?

BTW, how do they justify the secrecy over the materials?

Mar 25, 2017

Jos2 8 posts

Topic: General Discussion / Worth doing DAFNE?

Thanks for the advice Marke, I'll pass this on. Any other opinions? Smile

Mar 25, 2017

Jos2 8 posts

Topic: General Discussion / High BG mid morning

Hi Marke,

My daughter has been using the Dexcom G4 system for about 6 years, though she has just lost funding for this so she will be back to using just a normal monitor soon. I've no doubt that her BG did go high before she had the CGM, and still does when she doesn't have time to wait - or is too hungry. The NICE guidelines recommend a level of between 5 and 9 at 90 minutes after eating. This is rarely achieved. How practical do others find this target?

Mar 25, 2017

pmason 11 posts

Topic: General Discussion / High BG mid morning

Yes, good advice. Thanks Marke, BG monitoring however is not the issue for me. I use to do nearly as many tests when finger pricking and I understand the difference between the two methods. I will be looking at all factors with my Endo.

Mar 25, 2017

marke 681 posts

Topic: General Discussion / High BG mid morning

Hi neither of you say if how long you have been using you Abbott devices ? Is it possible this has always happened but that you were never aware of it because you never had the tools to monitor it before. Also you have to accept you don't have a normal pancreas anymore, so your BG's are never going to be like a normal persons. There are a number of other possible factors but you should discus this with your Diabetes Team to get a proper answer. Some cereals will have a longer lasting effect on BG's, a lot of people are more resistant to insulin in the mornings due to Dawn phenomenon related issues. finally the Abbott Freestyle is an inter-cellular BG measure NOT a blood glucose measure and is only a guide not the same as a BG reading. As I say things to discuss with a Diabetes Team.

Mar 31, 2017 Bananaman 34 posts	Topic: Questions for HCPs / blood glucose problems Im going to drop the background down to 20 and I have increased the bolus

Mar 31, 2017 Colin McC 15 posts	Topic: General Discussion / High BG mid morning Thanks all. As Marke quite rightly stated all of us diabetics are different & you only find out what is happening now I have the freestyle libre tools. Yes it may have always been happening & I was unaware as to take blood every 2 hours would play havoc on your fingers! . So my story to date. Having raised my QA (IHumalog) by @ 2 units extra each meal time & BI (Lantus @ 10pm) from 10u to 15u, my high BG reduced significantly, to the point in this past week to lowish BG. (ave past 7 days is @ 4.5!. Went to see my diabetic specialist yesterday & she said my morning Humalog may be working too quick in relation to my breakfast digestion, thus the reason why my BG was high mid morning. As my BG is now on the too low side she advised to lower my BI gradually & to try & take my QA after I have eaten, which is what I use to do 10 months past. My Hba1c was 6 , weight, injection sites, feet, BP all sound so no problems there. Will you let you know how I get on if of interest to anyone.

Mar 31, 2017 novorapidboi26 1,819 posts	Topic: Questions for HCPs / blood glucose problems How is the background dose going....? How much and often are you doing your background? Have you tested it recently?

Mar 31, 2017 novorapidboi26 1,819 posts	Topic: General Discussion / no pancreas The pancreas is also responsible for Glucagon production which is involved with the liver and its store of glucose.... what effect has this had? I would imagine this makes hypos a but more critical.....

Mar 31, 2017 novorapidboi26 1,819 posts	Topic: General Discussion / BG METERS I think most machines are good enough but any that offer a bolus calculator and ways of storing all your ratios and correction factors are on top for me...... as a pumper the contour next link is the best for me as it sensd my reading to the pump ready for bolus calculation..... the libre is great but at its current cost its just not worth if for me..I am still happy doing manual basal tests, which would be the main use for the libre in my eyes..... a lot of people keep saying it can tell you if your going up or down but i already know that from IOB.... maybe I am just stuck in my ways....lol....

Mar 31, 2017 novorapidboi26 1,819 posts	Topic: General Discussion / Blood glucose the duration of the insulin would dictate that, so whenever it runs out, which is between 3 and 5 hours..... its not an exact science of course as you need to consider dose timing as well as we don't always match up the insulin action to the food digestion perfectly....

Mar 31, 2017 novorapidboi26 1,819 posts	Topic: General Discussion / DEXCOM G4 - CGM unsure but I would guess a couple of hundred quid for the CGM and another hundred or so for the sensors, which will last a week or two.....although some have reported getting longer on them... what sticks out for me on your post though is you have admitted reduced hypo awareness and you are still driving.....are you over exaggerating your awareness to justify the CGM or is it really that bad and the DVLA don't know...

Mar 31, 2017 novorapidboi26 1,819 posts	Topic: General Discussion / Worth doing DAFNE? All worth it, especially if she has not had any similar education

Mar 30, 2017 Mezzy_d 2 posts	Topic: DAFNE Online Mobile / To 29.03.2017 Diary from 20th March

Mar 30, 2017 Mezzy_d 2 posts	Topic: DAFNE Online Mobile / To 29.03.2017 Diary from 20th March

Mar 30, 2017 meltow 78 posts	Topic: General Discussion / DEXCOM G4 - CGM I'm interested to know how much the Dexcom G4 system costs - does anyone know? I've had one on loan for the last 6 weeks, and it's been a godsend. I'm virtually totally unaware of hypos unless my BG falls to 2.5 or below. Not good - particularly as my job entails a lot of driving to meet clients! Having the CGM has been great - a complete new tool for helping me to manage my diabetes, together with finger pricking and DAFNE. 48 hours now without it, and I'm back to square one Obviously there is the sensor, plus the reader, and the needles which need changing weekly. Love to hear from anyone self-funding a Dexcom meter. Cheers,

Mar 29, 2017 Bananaman 34 posts	Topic: Questions for HCPs / blood glucose problems I have been having some problems my blood glucose reading lately could someone help I am on levemir and novorapid

Mar 28, 2017 marke 681 posts	Topic: Site Development / Any plans to serve pages over HTTPS? So, After a few headaches and some downtime we now support https. Thanks go to Alistair for pointing me in the direction of lets encrypt. We are still supporting both http and https so you can use either at the moment. Eventually I will try to re-direct http requests to the http site but I need a rest now ;-) Upgrading websites is really not as easy as it should be when you do it in your own time ( that's both Simon and me, not just me !). I will add a news item to the site to let everyone know they can now use https and get rid of the browser warnings about security.

Mar 28, 2017 laridkelly 1 post	Topic: General Discussion / Blood glucose Assuming carbs count is accurate. How long after taking humalog should my blood glucose be in target range?

Mar 27, 2017 michaelj 45 posts	Topic: Site Development / Any plans to serve pages over HTTPS? I too have had problems with the new version of Firefox telling me the DAFNE site is unsecured. Have now stopped using this to log in, but find the Google Chrome still functions with no problems and lets me in without fuss

Mar 26, 2017 alturn 78 posts	Topic: General Discussion / Worth doing DAFNE? I think she should take the course. This sounds similar to me pre-Dafne â€“ flunctuating BG, HBA1C out of range causing blurred vision, (incorrect) carb-counting. Dafne worked for me, though I still have periods of low & high BG (less extreme) but no blurred vision, and HBA1C in range. If BG is flunctuating implies something may not be correct so this would be an opportunity to look at this. It could be QA or BI (or both) need tuning. External factors such as stress, driving, work-patterns may also contribute. Dafne does require self-discipline to monitor and react to obtain full benefit. Then there are other aspects like sick-day rules (potentially very useful), interactions with others, confidence boost in the control. Hope this helps, J

Mar 26, 2017 marke 681 posts	Topic: General Discussion / Worth doing DAFNE? I'm with you Simon ! I never would have guessed 8 years or so ago when I did it where it would lead me. I met interesting people on the course and have continued to meet Diabetics and Medical professionals since then that have taught me more than I ever would have guessed there was to know about Diabetes. It is difficult I appreciate for anyone to do the course, even without the commuting but I think most people get a lot out of the course in many ways. Ok sales pitch over

Mar 26, 2017 marke 681 posts	Topic: General Discussion / High BG mid morning The problem for me with the NICE guidelines are they cover ALL diabetics and as ALL diabetics know we are all different ! Personally I would never worry about the 90 minutes target. I may experiment with a CGM to change Bolus times to move them further before a meal but thats about as far as a would or could go. If I miss the target cest a vie I wouldn't worry about it. As I said in my first post, we have a bit missing so with current technologies we are never going to be the same as 'normal' people, we can aim to be but if our aim is not true its just the way it is.

Mar 26, 2017 Simat 1 post	Topic: General Discussion / Worth doing DAFNE? Hi Jos Having just completed a DAFNE course last week I would definitely recommend your daughter goes on the course. Prior to the course I was also carb counting in the way you describe and had good control. Nevertheless I still learnt loads and I should hopefully now have the tools to achieve even better control. Also, a major benefit of the course is meeting and discussing experiences with other type 1s. This was absolutely invaluable and something which can't be gained from simply reading the materials. Best Simon

Mar 26, 2017 marke 681 posts	Topic: General Discussion / Worth doing DAFNE? Hi, Without boring you rigid with the details. Its political , the materials are 'owned' by one particular NHS trust who have copyright on them. For the next version of DAFNE being developed now, I hope they won't make the same mistakes and one part of the NHS won't own it but it will be owned by the programme. I'm not sure I will hold my breath though, ALL big organisations run on bureaucracy not just he NHS

Mar 25, 2017 Jos2 8 posts	Topic: General Discussion / Worth doing DAFNE? BTW, how do they justify the secrecy over the materials?

Mar 25, 2017 Jos2 8 posts	Topic: General Discussion / Worth doing DAFNE? Thanks for the advice Marke, I'll pass this on. Any other opinions?

Mar 25, 2017 Jos2 8 posts	Topic: General Discussion / High BG mid morning Hi Marke, My daughter has been using the Dexcom G4 system for about 6 years, though she has just lost funding for this so she will be back to using just a normal monitor soon. I've no doubt that her BG did go high before she had the CGM, and still does when she doesn't have time to wait - or is too hungry. The NICE guidelines recommend a level of between 5 and 9 at 90 minutes after eating. This is rarely achieved. How practical do others find this target?

Mar 25, 2017 pmason 11 posts	Topic: General Discussion / High BG mid morning Yes, good advice. Thanks Marke, BG monitoring however is not the issue for me. I use to do nearly as many tests when finger pricking and I understand the difference between the two methods. I will be looking at all factors with my Endo.

Mar 25, 2017 marke 681 posts	Topic: General Discussion / High BG mid morning Hi neither of you say if how long you have been using you Abbott devices ? Is it possible this has always happened but that you were never aware of it because you never had the tools to monitor it before. Also you have to accept you don't have a normal pancreas anymore, so your BG's are never going to be like a normal persons. There are a number of other possible factors but you should discus this with your Diabetes Team to get a proper answer. Some cereals will have a longer lasting effect on BG's, a lot of people are more resistant to insulin in the mornings due to Dawn phenomenon related issues. finally the Abbott Freestyle is an inter-cellular BG measure NOT a blood glucose measure and is only a guide not the same as a BG reading. As I say things to discuss with a Diabetes Team.