Recent Posts - DAFNE Online

May 31, 2017

Pip510 4 posts

Topic: General Discussion / High blood sugar in morning

Have you completed a diary of your readings and can rule out a faulty meter?
As Alan suggests a control solution is a great idea but make sure it is still in date as they only have a short shelf life

If its just a few days at the same reading I would not be overly worried.
Consider contacting your Diabetes Nurse if you cannot see what the fault is or why your readings should be the same.

May 30, 2017

Alan 49 284 posts

Topic: General Discussion / High blood sugar in morning

I don't think you should worry too much about a reading of 8.3 - I wish I was 8.3 every morning.
If your reading is exactly 8.3 EVERY morning, you should check the meter out with the control solutions that came with the meter.

May 30, 2017

PeterKemp 1 post

Topic: DAFNE Online Mobile / Viewing BG Graphs using DAFNE App on Android Phone

Hello Peter
Many thanks for your advice to Claire. I have the 2017 version Samsung A5 and following your comments above, have successfully uploaded all my data from the phone to the DAFNE online Blood Glucose Diary. Thanks! Very Happy

May 30, 2017

Dean123 7 posts

Topic: General Discussion / High blood sugar in morning

Hi can you help me, what it is, I am waking up every morning with reading of 8.3, it doesn't matter how much Lantau I have, I am still every morning waking up with reading of 8.3. Any advice much appreciated, thanks Dean

May 29, 2017

pjc21 8 posts

Topic: Site Development / intrusive predictions

I find it very irritating that each time I try to enter a figure or a note in the log the predictive text insists on inserting previous figures or comments, which I then have to erase before I can continue. Does anyone else have this problem? Is there a way to turn this feature off?

May 24, 2017

Warwick 423 posts

Topic: General Discussion / Scattered BG

Any chance that you accidentally took your basal dose twice?

May 24, 2017

Warwick 423 posts

Topic: General Discussion / Broken Humapen

Levemir should be able to be used in the way that you suggest, but you would want to do some frequent testing to check that your BGLs didn't go too high or too low. If they get too high, get to a hospital immediately and they should be able to sort out a disposable pen of QA for you in the interim.

May 22, 2017

marke 681 posts

Topic: General Discussion / Painful Libre

I never experienced any pain at all with it. apart from financial Very Happy

. It is pretty passive so its unusual to have a reaction, unless its to the sticky stuff that hold it on. The sensor tube only goes a little into the skin . It is a good device so I would just hope it doesn't get more painful. If it does take it out and report it to them, any patient reactions should be logged. No point making yourself potentially ill if you are reacting to tit.

May 20, 2017

Donkeybee 1 post

Topic: General Discussion / Painful Libre

Hi
I have just completed the DAFNE course at Daventry hospital and obviously new to the forum. If someone could advise please. I had a libre fitted on Friday but since then when my arm is in certain positions it is quite painful, I presume that this is not normal, but I don't really want to take it off as this is probably my only chance to trial this unit and it is a great bit of kit. Question

May 16, 2017

Alan 49 284 posts

Topic: General Discussion / Broken Humapen

I guess you will have got a replacement Humapen by now and are in the process off sorting your BG levels out. You should really have a backup Humapen and a backup pen for your Levemir. I have a backup BG meter as well and also a second finger pricker "just in case".

May 14, 2017

derekh1965 90 posts

Topic: General Discussion / Broken Humapen

Hi,
My one and only Humapoen has just broken and I will have to see the Dr tomorrow for a replacement, how long that will take I don't know. What I want to ask is if there is anything I could do to prevent my BG going too high,with maybe increasing my BI dosage?
I use Levermir.

May 14, 2017

Type1 -89 1 post

Topic: General Discussion / "Diabetes set off course" Balance letter

I have not done a Dafne course but a similar Education programme called Aspire which is one day a week and is about carb counting, diabetes management and exercise run by Chesterfield Royal hospital. A full 5 days would not work for me as I run my own business and have a young son. This method has allowed us to see patterns over a month and get advice from the dietitician and diabetic nurses there on changes to make. There has been limited changes to my usual weekly regime. I have found this an excellent course for this reason as adjustments can be made on a gradual basis. The same information is covered but it works as a better time frame. I think I would not enjoy a full intensive week of a course as living with diabetes is extremely frustrating when there are so many different variables controlling blood sugars.

May 14, 2017

sdhanani 4 posts

Topic: General Discussion / Scattered BG

Hi all,

Have type 1/3c
Had a very bad experience last night, took my novorapid at 9pm BG as follows:

12.30 4.2 measured before bed and taking levimer
1.00 3.7
1.30 4.7
1.50 3.1

Did all sorts of hypo treatments BG going up and down finally BG steadily going up

Has anyone experienced the same?

No exercise or physical activity

May 3, 2017

novorapidboi26 1,819 posts

Topic: General Discussion / Omnipod

The only issue is reservoir size then for the folk who need more but they might bring out a larger version in the future.... Very Happy

May 1, 2017

Peter 109 posts

Topic: DAFNE Online Mobile / Samsung Galaxy 6 Edge DAFNE App problem

If you're still looking, those options are available by pressing and holding the return key to the right of the menu button.

May 1, 2017

Peter 109 posts

Topic: General Discussion / Omnipod

Hi,
I've been an Omnipod user for 2.5 years now and, like Sarah B, would never go back. I'd agree with everything that Sarah B says about the ease of use and the learning period. In my case it took longer to get things stabilised after switching, but as that included a significant decrease in insulin dosage, it's probably not surprising. The main thing though is that it's definitely worth the effort. My control is improved and HbA1c levels have never been better,

If I was being critical the only thing I would mention is that it's not available with an integral CGMS, but as that combination is even more difficult to get on the NHS, it's not a serious drawback, plus a Libre can fill the gap if needed.

I've not had a pump with a separate reservoir, so can't compare, but it is so small and discrete that I can't image an older style pump would rival the Omnipod.

Good luck.

May 1, 2017

SarahB 2 posts

Topic: General Discussion / Omnipod

Hi!
I use the omnipod system and it's the best thing I ever did! I would not go back to injecting / pens again. You have so much more flexibility and you can adjust basal rates and settings for particular times of the day if you notice a pattern of hypo's / hypers at a certain time in the day. You can exercise more easily and the machine does all of the calculations for you with regards to how much insulin you need. You just enter all of your settings (your insulin:carb ratios, your targets, etc. etc.) and then once you have calculated your carb in your meal you enter that and the machine works out the amount of insulin based on your settings and your carb and hey presto! It just delivers it once you have confirmed it! You can also alter that amount if there is any need to.
I was also sceptical about having something attached to me all the time, but the great thing about the omnipod is that it is wireless so you only have the actual pod on you which you change once every 3 days.
Beware though that as with any move to the pump, there is an adjustment period to work out the different basal rates at the different times of the day, but it only took 1-2 weeks for that to settle in me - moved over to it about 5/6 years ago now (I have had type 1 for 19 years) and it's honestly the best thing I could have done.
They are also always improving pumps to include things like CGMS's etc, so may be worth doing some research to see what features they all have to see which one will suit you.
Good luck!
Sarah

May 1, 2017

Warwick 423 posts

Topic: Questions for HCPs / JamesE

I've run 4 marathons, 3 with type 1 diabetes. Because everyone's diabetes is so individual, I suggest that you post your diary to this conversation. (Just use the "Include my Blood Glucose Diary entries between:" fields when posting). That way we can get a good idea of what is happening. We would need to see the days that you are doing your long runs and details of any hypos and hypers. Also what your usual basal rates are and if you have reduced them prior etc.

In general, you will want to reduce your basal in the 12 hours before the run, and also afterwards - hypos are common as the body recovers from the run. Please post your diary and I can go into more specifics.

Apr 25, 2017

Stew B 125 posts

Topic: Questions for HCPs / Insulin pens

I use a Novopen Echo and my GP surgery has just prescribed a replacement because the battery has run out. Didn't seem to be an issue.

Stew

Apr 25, 2017

BAirlie 1 post

Topic: General Discussion / Worth doing DAFNE?

I was doing dose adjustment informally for years before I attended the DAFNE course and my HbA1c has always been around 6.0. however, I learnt a lot on the course and, whilst I don't count cabs scientifically as a rule, I still fall back to DAFNE principles if my results go askew for more than a day or two.

I would definitely recommend attending if possible as, as a minimum, it reinforces some of the things your daughter may already know and it also gives the chance to share experiences with other attendees and to see what works or doesn't work for them

Apr 24, 2017

Alan 49 284 posts

Topic: Questions for HCPs / Insulin pens

Trish
I got mine from the diabetes support team at my local hospital, but I don't think Lilly are making them any more. I will really miss mine when the battery eventually runs out.

Apr 23, 2017

Trish Skidmore 18 posts

Topic: General Discussion / Autonomic Neuropathy

Hi as anyone been diagnosed with neuropathy in their stomach

Apr 23, 2017

Trish Skidmore 18 posts

Topic: Questions for HCPs / Insulin pens

Hi are all Insulin pens available on prescription,I am interested in the Humapen Memoir and wondered if I can get it on prescription or would I have to buy it.

Apr 23, 2017

Russ28 4 posts

Topic: General Discussion / Worth doing DAFNE?

novorapidboi26 said:
So was it actually DAFNE back then if you couldn't really adjust your dose in the sense you can now....

yes the set injections I was referring to was the pre DAFNE days although obviously things are constantly changing and new techniques etc but it was the DAFNE of the time.

May 31, 2017 Pip510 4 posts	Topic: General Discussion / High blood sugar in morning Have you completed a diary of your readings and can rule out a faulty meter? As Alan suggests a control solution is a great idea but make sure it is still in date as they only have a short shelf life If its just a few days at the same reading I would not be overly worried. Consider contacting your Diabetes Nurse if you cannot see what the fault is or why your readings should be the same.

May 30, 2017 Alan 49 284 posts	Topic: General Discussion / High blood sugar in morning I don't think you should worry too much about a reading of 8.3 - I wish I was 8.3 every morning. If your reading is exactly 8.3 EVERY morning, you should check the meter out with the control solutions that came with the meter.

May 30, 2017 PeterKemp 1 post	Topic: DAFNE Online Mobile / Viewing BG Graphs using DAFNE App on Android Phone Hello Peter Many thanks for your advice to Claire. I have the 2017 version Samsung A5 and following your comments above, have successfully uploaded all my data from the phone to the DAFNE online Blood Glucose Diary. Thanks!

May 30, 2017 Dean123 7 posts	Topic: General Discussion / High blood sugar in morning Hi can you help me, what it is, I am waking up every morning with reading of 8.3, it doesn't matter how much Lantau I have, I am still every morning waking up with reading of 8.3. Any advice much appreciated, thanks Dean

May 29, 2017 pjc21 8 posts	Topic: Site Development / intrusive predictions I find it very irritating that each time I try to enter a figure or a note in the log the predictive text insists on inserting previous figures or comments, which I then have to erase before I can continue. Does anyone else have this problem? Is there a way to turn this feature off?

May 24, 2017 Warwick 423 posts	Topic: General Discussion / Scattered BG Any chance that you accidentally took your basal dose twice?

May 24, 2017 Warwick 423 posts	Topic: General Discussion / Broken Humapen Levemir should be able to be used in the way that you suggest, but you would want to do some frequent testing to check that your BGLs didn't go too high or too low. If they get too high, get to a hospital immediately and they should be able to sort out a disposable pen of QA for you in the interim.

May 22, 2017 marke 681 posts	Topic: General Discussion / Painful Libre I never experienced any pain at all with it. apart from financial . It is pretty passive so its unusual to have a reaction, unless its to the sticky stuff that hold it on. The sensor tube only goes a little into the skin . It is a good device so I would just hope it doesn't get more painful. If it does take it out and report it to them, any patient reactions should be logged. No point making yourself potentially ill if you are reacting to tit.

May 20, 2017 Donkeybee 1 post	Topic: General Discussion / Painful Libre Hi I have just completed the DAFNE course at Daventry hospital and obviously new to the forum. If someone could advise please. I had a libre fitted on Friday but since then when my arm is in certain positions it is quite painful, I presume that this is not normal, but I don't really want to take it off as this is probably my only chance to trial this unit and it is a great bit of kit.

May 16, 2017 Alan 49 284 posts	Topic: General Discussion / Broken Humapen I guess you will have got a replacement Humapen by now and are in the process off sorting your BG levels out. You should really have a backup Humapen and a backup pen for your Levemir. I have a backup BG meter as well and also a second finger pricker "just in case".

May 14, 2017 derekh1965 90 posts	Topic: General Discussion / Broken Humapen Hi, My one and only Humapoen has just broken and I will have to see the Dr tomorrow for a replacement, how long that will take I don't know. What I want to ask is if there is anything I could do to prevent my BG going too high,with maybe increasing my BI dosage? I use Levermir.

May 14, 2017 Type1 -89 1 post	Topic: General Discussion / "Diabetes set off course" Balance letter I have not done a Dafne course but a similar Education programme called Aspire which is one day a week and is about carb counting, diabetes management and exercise run by Chesterfield Royal hospital. A full 5 days would not work for me as I run my own business and have a young son. This method has allowed us to see patterns over a month and get advice from the dietitician and diabetic nurses there on changes to make. There has been limited changes to my usual weekly regime. I have found this an excellent course for this reason as adjustments can be made on a gradual basis. The same information is covered but it works as a better time frame. I think I would not enjoy a full intensive week of a course as living with diabetes is extremely frustrating when there are so many different variables controlling blood sugars.

May 14, 2017 sdhanani 4 posts	Topic: General Discussion / Scattered BG Hi all, Have type 1/3c Had a very bad experience last night, took my novorapid at 9pm BG as follows: 12.30 4.2 measured before bed and taking levimer 1.00 3.7 1.30 4.7 1.50 3.1 Did all sorts of hypo treatments BG going up and down finally BG steadily going up Has anyone experienced the same? No exercise or physical activity

May 3, 2017 novorapidboi26 1,819 posts	Topic: General Discussion / Omnipod The only issue is reservoir size then for the folk who need more but they might bring out a larger version in the future....

May 1, 2017 Peter 109 posts	Topic: DAFNE Online Mobile / Samsung Galaxy 6 Edge DAFNE App problem If you're still looking, those options are available by pressing and holding the return key to the right of the menu button.

May 1, 2017 Peter 109 posts	Topic: General Discussion / Omnipod Hi, I've been an Omnipod user for 2.5 years now and, like Sarah B, would never go back. I'd agree with everything that Sarah B says about the ease of use and the learning period. In my case it took longer to get things stabilised after switching, but as that included a significant decrease in insulin dosage, it's probably not surprising. The main thing though is that it's definitely worth the effort. My control is improved and HbA1c levels have never been better, If I was being critical the only thing I would mention is that it's not available with an integral CGMS, but as that combination is even more difficult to get on the NHS, it's not a serious drawback, plus a Libre can fill the gap if needed. I've not had a pump with a separate reservoir, so can't compare, but it is so small and discrete that I can't image an older style pump would rival the Omnipod. Good luck.

May 1, 2017 SarahB 2 posts	Topic: General Discussion / Omnipod Hi! I use the omnipod system and it's the best thing I ever did! I would not go back to injecting / pens again. You have so much more flexibility and you can adjust basal rates and settings for particular times of the day if you notice a pattern of hypo's / hypers at a certain time in the day. You can exercise more easily and the machine does all of the calculations for you with regards to how much insulin you need. You just enter all of your settings (your insulin:carb ratios, your targets, etc. etc.) and then once you have calculated your carb in your meal you enter that and the machine works out the amount of insulin based on your settings and your carb and hey presto! It just delivers it once you have confirmed it! You can also alter that amount if there is any need to. I was also sceptical about having something attached to me all the time, but the great thing about the omnipod is that it is wireless so you only have the actual pod on you which you change once every 3 days. Beware though that as with any move to the pump, there is an adjustment period to work out the different basal rates at the different times of the day, but it only took 1-2 weeks for that to settle in me - moved over to it about 5/6 years ago now (I have had type 1 for 19 years) and it's honestly the best thing I could have done. They are also always improving pumps to include things like CGMS's etc, so may be worth doing some research to see what features they all have to see which one will suit you. Good luck! Sarah

May 1, 2017 Warwick 423 posts	Topic: Questions for HCPs / JamesE I've run 4 marathons, 3 with type 1 diabetes. Because everyone's diabetes is so individual, I suggest that you post your diary to this conversation. (Just use the "Include my Blood Glucose Diary entries between:" fields when posting). That way we can get a good idea of what is happening. We would need to see the days that you are doing your long runs and details of any hypos and hypers. Also what your usual basal rates are and if you have reduced them prior etc. In general, you will want to reduce your basal in the 12 hours before the run, and also afterwards - hypos are common as the body recovers from the run. Please post your diary and I can go into more specifics.

Apr 25, 2017 Stew B 125 posts	Topic: Questions for HCPs / Insulin pens I use a Novopen Echo and my GP surgery has just prescribed a replacement because the battery has run out. Didn't seem to be an issue. Stew

Apr 25, 2017 BAirlie 1 post	Topic: General Discussion / Worth doing DAFNE? I was doing dose adjustment informally for years before I attended the DAFNE course and my HbA1c has always been around 6.0. however, I learnt a lot on the course and, whilst I don't count cabs scientifically as a rule, I still fall back to DAFNE principles if my results go askew for more than a day or two. I would definitely recommend attending if possible as, as a minimum, it reinforces some of the things your daughter may already know and it also gives the chance to share experiences with other attendees and to see what works or doesn't work for them

Apr 24, 2017 Alan 49 284 posts	Topic: Questions for HCPs / Insulin pens Trish I got mine from the diabetes support team at my local hospital, but I don't think Lilly are making them any more. I will really miss mine when the battery eventually runs out.

Apr 23, 2017 Trish Skidmore 18 posts	Topic: General Discussion / Autonomic Neuropathy Hi as anyone been diagnosed with neuropathy in their stomach

Apr 23, 2017 Trish Skidmore 18 posts	Topic: Questions for HCPs / Insulin pens Hi are all Insulin pens available on prescription,I am interested in the Humapen Memoir and wondered if I can get it on prescription or would I have to buy it.

Apr 23, 2017 Russ28 4 posts	Topic: General Discussion / Worth doing DAFNE? novorapidboi26 said: So was it actually DAFNE back then if you couldn't really adjust your dose in the sense you can now.... yes the set injections I was referring to was the pre DAFNE days although obviously things are constantly changing and new techniques etc but it was the DAFNE of the time.