Recent Posts

They are a lot more widely available now.......so get asking as soon as you can...

Apr 21, 2017

novorapidboi26 1,819 posts

So was it actually DAFNE back then if you couldn't really adjust your dose in the sense you can now....

Apr 21, 2017

Russ28 4 posts

Like I say I was one of the first, in Sheffield at least and I think nationwide at that point majority of us I think were on set number of injections per day morning and evening for myself and strict carb counts for meals and snacks, any chocolate, biscuits snacking other than in the regime was big time cane my ass sin lol

novorapidboi26 said:
Russ28 said:
Without a doubt I did DAFNE here in UK when it first started here 17 years ago and just done it again as a refresher and the knowledge you gain is invaluable

17 years ago....wow, I was diagnosed just longer than that and I had no clue about any of it until 2007......not just DAFNE though, just carb counting and dosing....

was there MDI regimes back then...?

Apr 20, 2017

sarahl84 5 posts

Thanks for replying 😊

My control's been a bit hit & miss over the past year so the pump was suggested. Although now I'm actually interested in one I probably won't be eligible for the funding lol

Apr 20, 2017

wilkie 2 posts

Topic: Questions for HCPs / JamesE

I am a type 1 on Humalog and Levemir. Humalog with every meal and Levemir morning and evening. I am doing a full Marathon at the end of May and I am having great difficulty with my sugar levels during the long run. I have tried adjusting my insulin but still having problems. before the run how much should I reduce the QA and the levimir by and how should I increase my CP.s before the run.

Hope someone can help.

Apr 20, 2017

novorapidboi26 1,819 posts

Russ28 said:
Without a doubt I did DAFNE here in UK when it first started here 17 years ago and just done it again as a refresher and the knowledge you gain is invaluable

17 years ago....wow, I was diagnosed just longer than that and I had no clue about any of it until 2007......not just DAFNE though, just carb counting and dosing....

was there MDI regimes back then...?

Apr 20, 2017

novorapidboi26 1,819 posts

Never actually seen one as there is only 2 pumps available in my area, one of which has a bigger reservoir, which is what I need, so only really one choice.....

From other people I have heard its good......a smaller reservoir than I need but good....

do you need a pump or are they giving them away......lol...

Apr 20, 2017

Rafa 99 posts

Topic: Carbohydrate Counting / Beer advice confusing

Yes if I drink branded beers my sugars will be high waking up and won't drop later that day but any craft beers and if I don't eat before bed I wake up really low. Trial and error.

Apr 18, 2017

marke 681 posts

Topic: General Discussion / Accu-check Aviva Expert meter

Contact Accu-Chek via www.accu-chek.co.uk/contactus

I am contacting you from Roche Diabetes Care as the product manager for the Accu-Chek Aviva Expert bolus advisor system. The following stream has come to our attention ...
http://www.dafneonline.co.uk/forums/1/topics/2957?page=1

We would like to offer a correction to the post dated 08 Jan.2017 by AMcD, DAFNE Graduate from Galway as this advises the originator of the query that the test strips have been discontinued. That is definitely not the case and the Aviva test strips used with the system are definitely still available on prescription in the UK and Ireland.

Patients being denied test strips of their choice should refer to the latest NICE guidance for Type 1 or 2 and download the advocacy pack from the Diabetes UK website ...
https://www.diabetes.org.uk/How_we_help/Helpline/Your-rights/

Apr 17, 2017

sarahl84 5 posts

Hi, after 17 years of saying no to an insulin pump I'm now considering it. My consultant mentioned the omnipod to me the other day & was just wondering what the general opinion was on it? In my teenage years i never liked the thought of a pump attached to me constantly but now I'm older I'm passed caring lol. I've watched a few videos on YouTube & everyone raves about it, please let me know your thoughts & any advice ☺

Apr 17, 2017

Warwick 423 posts

Topic: Questions for HCPs / Help

Where are you moving to? DAFNE is offered in Singapore, New Zealand and Australia if you are moving to any of those countries.

Apr 16, 2017

derekh1965 90 posts

Thanks for your replies. I have a habit of injecting for every carb I consume and not considering the 3-5 hrs length of humalog.
I'm thinking the food has used the insulin injected and therefore I need more insulin when consuming more carbs.
Have I got the calculation correct for my BI?
I am not working due to having MS.

Apr 16, 2017

Pip510 4 posts

Levemir has a working time of about 18 hours and you should inject twice daily, just before bed and when you get up in the morning.

It has a slow start time and takes up to two hours to peak, all of this information is in the Dafne Handbook.

If you want to keep a track on it follow Dafne rules and do a check at 3am to test your glucose levels.
You appear to be stacking your insulin in the daytime but you have to remember that it has a working time period as well, dependant upon what you are using.

Keep adjusting and seeing what works for you

Apr 16, 2017

alturn 78 posts

There appear to be frequent changes to BI. DAFNE says BI changes should be allowed to take effect for 2 or 3 days before changing again. When BI is correct, then use QA adjustments but separate from BI changes. I was also advised to try and keep my am and pm BI at the same units (mine differed by 3 at one point). It's a continous process - I change my BI every few weeks depending on BGs. May also help to take BI at the same time each day. I believe Levemir should be taken twice a day as it will not last 24 hrs.

But what works for one person may not work for you, or may not be possible due to lifestyle, work etc.

Hope this helps.

J

Apr 16, 2017

derekh1965 90 posts

Thanks for your reply Russ. I'll give what you suggested tonight and see how it goes.
I'm just mystified withj my night time readings and when I wake up 3 hours later, 9 night and 14.4 waking??

Apr 16, 2017

Russ28 4 posts

First thing I would suggest is you BI in the evening needs to be later have it just before you go to bed not 2 hours before. Secondly to test if it is the evening BI or not you need to go to bed with nothing working but that BI injection so no CPs or QA less than 4 hours before bedtime, test BG at bedtime then BI and bed test in the morning if BG results from prev evening and following morn are pretty much the same BI is fine if not repeat the process tweaking the night time BI until they come stable. By the way one set of results is inadequate to check you need couple of nights doing the same to find patterns. Hope this was helpful and good luck Smile

Apr 16, 2017

Russ28 4 posts

Without a doubt I did DAFNE here in UK when it first started here 17 years ago and just done it again as a refresher and the knowledge you gain is invaluable

Apr 16, 2017

derekh1965 90 posts

Hi,
I am looking for some help sorting out my BI. I have calculated my total daily insulin using 0.55 x weight in kgs = 80kg x 0.55 = 44 units,thus BI would be 22 units.
As you can see by my morning BS I'm doing something wrong.
I am injecting levermir twice daily. Should I just inject once a day at maybe dinnertime?

Apr 13, 2017

pjc21 8 posts

Topic: General Discussion / no pancreas

Hello sdhanani and novorapidboi. Thanks for your notes. I'm on less Creon than you. I take 4 @ 25,000 for breakfast (5 CP) and 6 or 7 for lunch and supper (6 – 8 CP), but I don't now think that that is the problem, because my digestion seems okay. My BG level is mostly okay for breakfast and lunch (7 or Cool

but then often goes down to 4 or 3 mid-afternoon. If I correct with dextrose or cake, even only 1 CP, it then tends to go high for supper (12, 13, 14). I'm interested in the glucagon point, atlhough I'm not having real hypos, just the “aura”. Maybe the problem is just being more insulin sensitive? I have good days with all readings around 7 or 8, then, with the same food and exercise, same insulin doses (QA: 5 – 7 - 8, BI: 5 – 2), there are days when it's up into the teens. I'm also wondering about caffeine and statins, which I've read can interfere with insulin absorption. I'm trying to use decaf (despite having read how they make it ...), and I'm going back to my GP ask about the statin, which they increased a while back. Do you have any experience with caffeine or statin?

Apr 8, 2017

pmason 11 posts

Topic: Questions for HCPs / Help

See your Diabetes specialist AND I suggest your Dietitian as well.

Apr 8, 2017

pmason 11 posts

Couldn't agree more Pip510. I did the course in Melbourne (at Knox) last year at age 69. It taught me heaps and I'm still learning.

Apr 7, 2017

Pip510 4 posts

Topic: Questions for HCPs / Help

You will really need to speak to a Diabetes Nurse to sort that out and not something that you take advice on from others, Rolling Eyes

as this all depends on your own circumstances and what works for you

Apr 7, 2017

Pip510 4 posts