Recent Posts - DAFNE Online

May 20, 2017

Donkeybee 1 post

Topic: General Discussion / Painful Libre

Hi
I have just completed the DAFNE course at Daventry hospital and obviously new to the forum. If someone could advise please. I had a libre fitted on Friday but since then when my arm is in certain positions it is quite painful, I presume that this is not normal, but I don't really want to take it off as this is probably my only chance to trial this unit and it is a great bit of kit. Question

May 16, 2017

Alan 49 284 posts

Topic: General Discussion / Broken Humapen

I guess you will have got a replacement Humapen by now and are in the process off sorting your BG levels out. You should really have a backup Humapen and a backup pen for your Levemir. I have a backup BG meter as well and also a second finger pricker "just in case".

May 14, 2017

derekh1965 95 posts

Topic: General Discussion / Broken Humapen

Hi,
My one and only Humapoen has just broken and I will have to see the Dr tomorrow for a replacement, how long that will take I don't know. What I want to ask is if there is anything I could do to prevent my BG going too high,with maybe increasing my BI dosage?
I use Levermir.

May 14, 2017

Type1 -89 1 post

Topic: General Discussion / "Diabetes set off course" Balance letter

I have not done a Dafne course but a similar Education programme called Aspire which is one day a week and is about carb counting, diabetes management and exercise run by Chesterfield Royal hospital. A full 5 days would not work for me as I run my own business and have a young son. This method has allowed us to see patterns over a month and get advice from the dietitician and diabetic nurses there on changes to make. There has been limited changes to my usual weekly regime. I have found this an excellent course for this reason as adjustments can be made on a gradual basis. The same information is covered but it works as a better time frame. I think I would not enjoy a full intensive week of a course as living with diabetes is extremely frustrating when there are so many different variables controlling blood sugars.

May 14, 2017

sdhanani 4 posts

Topic: General Discussion / Scattered BG

Hi all,

Have type 1/3c
Had a very bad experience last night, took my novorapid at 9pm BG as follows:

12.30 4.2 measured before bed and taking levimer
1.00 3.7
1.30 4.7
1.50 3.1

Did all sorts of hypo treatments BG going up and down finally BG steadily going up

Has anyone experienced the same?

No exercise or physical activity

May 3, 2017

novorapidboi26 1,819 posts

Topic: General Discussion / Omnipod

The only issue is reservoir size then for the folk who need more but they might bring out a larger version in the future.... Very Happy

May 1, 2017

Peter 109 posts

Topic: DAFNE Online Mobile / Samsung Galaxy 6 Edge DAFNE App problem

If you're still looking, those options are available by pressing and holding the return key to the right of the menu button.

May 1, 2017

Peter 109 posts

Topic: General Discussion / Omnipod

Hi,
I've been an Omnipod user for 2.5 years now and, like Sarah B, would never go back. I'd agree with everything that Sarah B says about the ease of use and the learning period. In my case it took longer to get things stabilised after switching, but as that included a significant decrease in insulin dosage, it's probably not surprising. The main thing though is that it's definitely worth the effort. My control is improved and HbA1c levels have never been better,

If I was being critical the only thing I would mention is that it's not available with an integral CGMS, but as that combination is even more difficult to get on the NHS, it's not a serious drawback, plus a Libre can fill the gap if needed.

I've not had a pump with a separate reservoir, so can't compare, but it is so small and discrete that I can't image an older style pump would rival the Omnipod.

Good luck.

May 1, 2017

SarahB 2 posts

Topic: General Discussion / Omnipod

Hi!
I use the omnipod system and it's the best thing I ever did! I would not go back to injecting / pens again. You have so much more flexibility and you can adjust basal rates and settings for particular times of the day if you notice a pattern of hypo's / hypers at a certain time in the day. You can exercise more easily and the machine does all of the calculations for you with regards to how much insulin you need. You just enter all of your settings (your insulin:carb ratios, your targets, etc. etc.) and then once you have calculated your carb in your meal you enter that and the machine works out the amount of insulin based on your settings and your carb and hey presto! It just delivers it once you have confirmed it! You can also alter that amount if there is any need to.
I was also sceptical about having something attached to me all the time, but the great thing about the omnipod is that it is wireless so you only have the actual pod on you which you change once every 3 days.
Beware though that as with any move to the pump, there is an adjustment period to work out the different basal rates at the different times of the day, but it only took 1-2 weeks for that to settle in me - moved over to it about 5/6 years ago now (I have had type 1 for 19 years) and it's honestly the best thing I could have done.
They are also always improving pumps to include things like CGMS's etc, so may be worth doing some research to see what features they all have to see which one will suit you.
Good luck!
Sarah

May 1, 2017

Warwick 425 posts

Topic: Questions for HCPs / JamesE

I've run 4 marathons, 3 with type 1 diabetes. Because everyone's diabetes is so individual, I suggest that you post your diary to this conversation. (Just use the "Include my Blood Glucose Diary entries between:" fields when posting). That way we can get a good idea of what is happening. We would need to see the days that you are doing your long runs and details of any hypos and hypers. Also what your usual basal rates are and if you have reduced them prior etc.

In general, you will want to reduce your basal in the 12 hours before the run, and also afterwards - hypos are common as the body recovers from the run. Please post your diary and I can go into more specifics.

Apr 25, 2017

Stew B 125 posts

Topic: Questions for HCPs / Insulin pens

I use a Novopen Echo and my GP surgery has just prescribed a replacement because the battery has run out. Didn't seem to be an issue.

Stew

Apr 25, 2017

BAirlie 1 post

Topic: General Discussion / Worth doing DAFNE?

I was doing dose adjustment informally for years before I attended the DAFNE course and my HbA1c has always been around 6.0. however, I learnt a lot on the course and, whilst I don't count cabs scientifically as a rule, I still fall back to DAFNE principles if my results go askew for more than a day or two.

I would definitely recommend attending if possible as, as a minimum, it reinforces some of the things your daughter may already know and it also gives the chance to share experiences with other attendees and to see what works or doesn't work for them

Apr 24, 2017

Alan 49 284 posts

Topic: Questions for HCPs / Insulin pens

Trish
I got mine from the diabetes support team at my local hospital, but I don't think Lilly are making them any more. I will really miss mine when the battery eventually runs out.

Apr 23, 2017

Trish Skidmore 18 posts

Topic: General Discussion / Autonomic Neuropathy

Hi as anyone been diagnosed with neuropathy in their stomach

Apr 23, 2017

Trish Skidmore 18 posts

Topic: Questions for HCPs / Insulin pens

Hi are all Insulin pens available on prescription,I am interested in the Humapen Memoir and wondered if I can get it on prescription or would I have to buy it.

Apr 23, 2017

Russ28 4 posts

Topic: General Discussion / Worth doing DAFNE?

novorapidboi26 said:
So was it actually DAFNE back then if you couldn't really adjust your dose in the sense you can now....

yes the set injections I was referring to was the pre DAFNE days although obviously things are constantly changing and new techniques etc but it was the DAFNE of the time.

Apr 22, 2017

Stew B 125 posts

Topic: General Discussion / Accu-check Aviva Expert meter

My hospital diabetes clinic recently recommended and provided an Accu Chek Aviva Expert, offering to write to my GP to explain why this was the best choice for me to support a change of test-strip. In fact, I just called at my surgery and spoke to the dispensary and they simply changed my prescription there and then.

Stew

Apr 21, 2017

novorapidboi26 1,819 posts

Topic: Questions for HCPs / JamesE

I don't have much experience with runs or more recently any activity...lol.....

But I can make some educated comments.....

as a marathon is long and moderately intense I would say the first dose to reduce is your Levemir......I would do some test runs with just that reduced by say 15% and see what happens.....if you can get away with just reducing the Levemir that would be ideal......

What observations have you made so far...?

When will the marathon start in relation to meal times? What food are you likely to have on board before and during the run....?

That information will determine if a Humalog reduction is needed.....

I would say its preferable to avoid taking on carbs if you can, apart from liquid carbs during the run....

Apr 21, 2017

novorapidboi26 1,819 posts

Topic: General Discussion / Omnipod

They are a lot more widely available now.......so get asking as soon as you can...

Apr 21, 2017

novorapidboi26 1,819 posts

Topic: General Discussion / Worth doing DAFNE?

So was it actually DAFNE back then if you couldn't really adjust your dose in the sense you can now....

Apr 21, 2017

Russ28 4 posts

Topic: General Discussion / Worth doing DAFNE?

Like I say I was one of the first, in Sheffield at least and I think nationwide at that point majority of us I think were on set number of injections per day morning and evening for myself and strict carb counts for meals and snacks, any chocolate, biscuits snacking other than in the regime was big time cane my ass sin lol

novorapidboi26 said:
Russ28 said:
Without a doubt I did DAFNE here in UK when it first started here 17 years ago and just done it again as a refresher and the knowledge you gain is invaluable

17 years ago....wow, I was diagnosed just longer than that and I had no clue about any of it until 2007......not just DAFNE though, just carb counting and dosing....

was there MDI regimes back then...?

Apr 20, 2017

sarahl84 5 posts

Topic: General Discussion / Omnipod

Thanks for replying 😊

My control's been a bit hit & miss over the past year so the pump was suggested. Although now I'm actually interested in one I probably won't be eligible for the funding lol

Apr 20, 2017

wilkie 2 posts

Topic: Questions for HCPs / JamesE

I am a type 1 on Humalog and Levemir. Humalog with every meal and Levemir morning and evening. I am doing a full Marathon at the end of May and I am having great difficulty with my sugar levels during the long run. I have tried adjusting my insulin but still having problems. before the run how much should I reduce the QA and the levimir by and how should I increase my CP.s before the run.

Hope someone can help.

Apr 20, 2017

novorapidboi26 1,819 posts

Topic: General Discussion / Worth doing DAFNE?

Russ28 said:
Without a doubt I did DAFNE here in UK when it first started here 17 years ago and just done it again as a refresher and the knowledge you gain is invaluable

17 years ago....wow, I was diagnosed just longer than that and I had no clue about any of it until 2007......not just DAFNE though, just carb counting and dosing....

was there MDI regimes back then...?


May 20, 2017 Donkeybee 1 post	Topic: General Discussion / Painful Libre Hi I have just completed the DAFNE course at Daventry hospital and obviously new to the forum. If someone could advise please. I had a libre fitted on Friday but since then when my arm is in certain positions it is quite painful, I presume that this is not normal, but I don't really want to take it off as this is probably my only chance to trial this unit and it is a great bit of kit.

May 16, 2017 Alan 49 284 posts	Topic: General Discussion / Broken Humapen I guess you will have got a replacement Humapen by now and are in the process off sorting your BG levels out. You should really have a backup Humapen and a backup pen for your Levemir. I have a backup BG meter as well and also a second finger pricker "just in case".

May 14, 2017 derekh1965 95 posts	Topic: General Discussion / Broken Humapen Hi, My one and only Humapoen has just broken and I will have to see the Dr tomorrow for a replacement, how long that will take I don't know. What I want to ask is if there is anything I could do to prevent my BG going too high,with maybe increasing my BI dosage? I use Levermir.

May 14, 2017 Type1 -89 1 post	Topic: General Discussion / "Diabetes set off course" Balance letter I have not done a Dafne course but a similar Education programme called Aspire which is one day a week and is about carb counting, diabetes management and exercise run by Chesterfield Royal hospital. A full 5 days would not work for me as I run my own business and have a young son. This method has allowed us to see patterns over a month and get advice from the dietitician and diabetic nurses there on changes to make. There has been limited changes to my usual weekly regime. I have found this an excellent course for this reason as adjustments can be made on a gradual basis. The same information is covered but it works as a better time frame. I think I would not enjoy a full intensive week of a course as living with diabetes is extremely frustrating when there are so many different variables controlling blood sugars.

May 14, 2017 sdhanani 4 posts	Topic: General Discussion / Scattered BG Hi all, Have type 1/3c Had a very bad experience last night, took my novorapid at 9pm BG as follows: 12.30 4.2 measured before bed and taking levimer 1.00 3.7 1.30 4.7 1.50 3.1 Did all sorts of hypo treatments BG going up and down finally BG steadily going up Has anyone experienced the same? No exercise or physical activity

May 3, 2017 novorapidboi26 1,819 posts	Topic: General Discussion / Omnipod The only issue is reservoir size then for the folk who need more but they might bring out a larger version in the future....

May 1, 2017 Peter 109 posts	Topic: DAFNE Online Mobile / Samsung Galaxy 6 Edge DAFNE App problem If you're still looking, those options are available by pressing and holding the return key to the right of the menu button.

May 1, 2017 Peter 109 posts	Topic: General Discussion / Omnipod Hi, I've been an Omnipod user for 2.5 years now and, like Sarah B, would never go back. I'd agree with everything that Sarah B says about the ease of use and the learning period. In my case it took longer to get things stabilised after switching, but as that included a significant decrease in insulin dosage, it's probably not surprising. The main thing though is that it's definitely worth the effort. My control is improved and HbA1c levels have never been better, If I was being critical the only thing I would mention is that it's not available with an integral CGMS, but as that combination is even more difficult to get on the NHS, it's not a serious drawback, plus a Libre can fill the gap if needed. I've not had a pump with a separate reservoir, so can't compare, but it is so small and discrete that I can't image an older style pump would rival the Omnipod. Good luck.

May 1, 2017 SarahB 2 posts	Topic: General Discussion / Omnipod Hi! I use the omnipod system and it's the best thing I ever did! I would not go back to injecting / pens again. You have so much more flexibility and you can adjust basal rates and settings for particular times of the day if you notice a pattern of hypo's / hypers at a certain time in the day. You can exercise more easily and the machine does all of the calculations for you with regards to how much insulin you need. You just enter all of your settings (your insulin:carb ratios, your targets, etc. etc.) and then once you have calculated your carb in your meal you enter that and the machine works out the amount of insulin based on your settings and your carb and hey presto! It just delivers it once you have confirmed it! You can also alter that amount if there is any need to. I was also sceptical about having something attached to me all the time, but the great thing about the omnipod is that it is wireless so you only have the actual pod on you which you change once every 3 days. Beware though that as with any move to the pump, there is an adjustment period to work out the different basal rates at the different times of the day, but it only took 1-2 weeks for that to settle in me - moved over to it about 5/6 years ago now (I have had type 1 for 19 years) and it's honestly the best thing I could have done. They are also always improving pumps to include things like CGMS's etc, so may be worth doing some research to see what features they all have to see which one will suit you. Good luck! Sarah

May 1, 2017 Warwick 425 posts	Topic: Questions for HCPs / JamesE I've run 4 marathons, 3 with type 1 diabetes. Because everyone's diabetes is so individual, I suggest that you post your diary to this conversation. (Just use the "Include my Blood Glucose Diary entries between:" fields when posting). That way we can get a good idea of what is happening. We would need to see the days that you are doing your long runs and details of any hypos and hypers. Also what your usual basal rates are and if you have reduced them prior etc. In general, you will want to reduce your basal in the 12 hours before the run, and also afterwards - hypos are common as the body recovers from the run. Please post your diary and I can go into more specifics.

Apr 25, 2017 Stew B 125 posts	Topic: Questions for HCPs / Insulin pens I use a Novopen Echo and my GP surgery has just prescribed a replacement because the battery has run out. Didn't seem to be an issue. Stew

Apr 25, 2017 BAirlie 1 post	Topic: General Discussion / Worth doing DAFNE? I was doing dose adjustment informally for years before I attended the DAFNE course and my HbA1c has always been around 6.0. however, I learnt a lot on the course and, whilst I don't count cabs scientifically as a rule, I still fall back to DAFNE principles if my results go askew for more than a day or two. I would definitely recommend attending if possible as, as a minimum, it reinforces some of the things your daughter may already know and it also gives the chance to share experiences with other attendees and to see what works or doesn't work for them

Apr 24, 2017 Alan 49 284 posts	Topic: Questions for HCPs / Insulin pens Trish I got mine from the diabetes support team at my local hospital, but I don't think Lilly are making them any more. I will really miss mine when the battery eventually runs out.

Apr 23, 2017 Trish Skidmore 18 posts	Topic: General Discussion / Autonomic Neuropathy Hi as anyone been diagnosed with neuropathy in their stomach

Apr 23, 2017 Trish Skidmore 18 posts	Topic: Questions for HCPs / Insulin pens Hi are all Insulin pens available on prescription,I am interested in the Humapen Memoir and wondered if I can get it on prescription or would I have to buy it.

Apr 23, 2017 Russ28 4 posts	Topic: General Discussion / Worth doing DAFNE? novorapidboi26 said: So was it actually DAFNE back then if you couldn't really adjust your dose in the sense you can now.... yes the set injections I was referring to was the pre DAFNE days although obviously things are constantly changing and new techniques etc but it was the DAFNE of the time.

Apr 22, 2017 Stew B 125 posts	Topic: General Discussion / Accu-check Aviva Expert meter My hospital diabetes clinic recently recommended and provided an Accu Chek Aviva Expert, offering to write to my GP to explain why this was the best choice for me to support a change of test-strip. In fact, I just called at my surgery and spoke to the dispensary and they simply changed my prescription there and then. Stew

Apr 21, 2017 novorapidboi26 1,819 posts	Topic: Questions for HCPs / JamesE I don't have much experience with runs or more recently any activity...lol..... But I can make some educated comments..... as a marathon is long and moderately intense I would say the first dose to reduce is your Levemir......I would do some test runs with just that reduced by say 15% and see what happens.....if you can get away with just reducing the Levemir that would be ideal...... What observations have you made so far...? When will the marathon start in relation to meal times? What food are you likely to have on board before and during the run....? That information will determine if a Humalog reduction is needed..... I would say its preferable to avoid taking on carbs if you can, apart from liquid carbs during the run....

Apr 21, 2017 novorapidboi26 1,819 posts	Topic: General Discussion / Omnipod They are a lot more widely available now.......so get asking as soon as you can...

Apr 21, 2017 novorapidboi26 1,819 posts	Topic: General Discussion / Worth doing DAFNE? So was it actually DAFNE back then if you couldn't really adjust your dose in the sense you can now....

Apr 21, 2017 Russ28 4 posts	Topic: General Discussion / Worth doing DAFNE? Like I say I was one of the first, in Sheffield at least and I think nationwide at that point majority of us I think were on set number of injections per day morning and evening for myself and strict carb counts for meals and snacks, any chocolate, biscuits snacking other than in the regime was big time cane my ass sin lol novorapidboi26 said: Russ28 said: Without a doubt I did DAFNE here in UK when it first started here 17 years ago and just done it again as a refresher and the knowledge you gain is invaluable 17 years ago....wow, I was diagnosed just longer than that and I had no clue about any of it until 2007......not just DAFNE though, just carb counting and dosing.... was there MDI regimes back then...?

Apr 20, 2017 sarahl84 5 posts	Topic: General Discussion / Omnipod Thanks for replying 😊 My control's been a bit hit & miss over the past year so the pump was suggested. Although now I'm actually interested in one I probably won't be eligible for the funding lol

Apr 20, 2017 wilkie 2 posts	Topic: Questions for HCPs / JamesE I am a type 1 on Humalog and Levemir. Humalog with every meal and Levemir morning and evening. I am doing a full Marathon at the end of May and I am having great difficulty with my sugar levels during the long run. I have tried adjusting my insulin but still having problems. before the run how much should I reduce the QA and the levimir by and how should I increase my CP.s before the run. Hope someone can help.

Apr 20, 2017 novorapidboi26 1,819 posts	Topic: General Discussion / Worth doing DAFNE? Russ28 said: Without a doubt I did DAFNE here in UK when it first started here 17 years ago and just done it again as a refresher and the knowledge you gain is invaluable 17 years ago....wow, I was diagnosed just longer than that and I had no clue about any of it until 2007......not just DAFNE though, just carb counting and dosing.... was there MDI regimes back then...?