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15,847 posts found
Jul 3, 2017
Simon Quinnell
16 posts
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Topic: General Discussion / DAFNE Follow-Up Course - No Help? Marke,Without sounding a misery guts (I do appreciate that the NHS is overstretched), when I do see the consultant, he'll spend about 10 minutes with me, look at my BG diary, and say something like, "Your diabetes is unstable. Go and see the diabetes nurse to help stabilise it. Come back and see me in six months time." Unfortunately for me I've been told that my diabetes is not unstable enough to qualify for an insulin pump, so I have to do the best I can with injections. On a positive note, at least I get a proper check-up at my GPs once a year. |
Jul 2, 2017
marke
681 posts
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Topic: General Discussion / Kings Refresher Days All,If you are a King's DAFNE Graduate then we'd like to invite you to one of our DAFNE Refresher Days, which we run throughout the year. See here . for poster and dates. They are for any King's College Hospital patients who have attended a DAFNE course in the past. The days are an ideal way to refresh carbohydrate counting and insulin dose adjustment skills, with morning workshops focusing on these areas for everyone and the afternoon sessions being a choice of two workshops including exercise, eating out and alcohol, pump management and emotional well-being. The days are always well evaluated, with people enjoying being able to meet and chat to other people with type 1 diabetes as well as the pharmaceutical reps and charities we have supporting the event. The day also has exciting talks by members of the team on new diabetes research developments, a focus on behaviour and beliefs and an "On The Sofa" session where you get to pose your questions to the team. For further information, or to book your spot please contact the Kings Team on [email protected] or ring 0203 299 1812 with your information. |
Jul 2, 2017
marke
681 posts
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Topic: General Discussion / DAFNE Follow-Up Course - No Help? sorry for the delayed reply, I probably passed out with Shock when I read you had not seen a consultant for two years !!! Which hospital are you under in Maidstone ? I live in Ashford just down the road from you and see consultants at two hospitals at the moment ( sorry). ALL T1's should be seen by a consultant ever 12 months and its ridiculous that you are being seen by no one. I don't accept staff shortages as an excuse. Are you a member of Diabetes UK ? I would let them know about this and if you are not a member I will let the know. Their campaigning manager for the South-East wants to come visit my local group soon and this is exactly the kind of issue that they should be campaigning about. |
Jul 2, 2017
marke
681 posts
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Topic: General Discussion / Blood sugar spiking between 3am and 7am Hi,What BI insulin are you taking and do you split doses i.e take two BI injections a day ? This will help us to advise. It 'could' be something called Dawn Phenomenon however without more information its impossible to suggest anything. It would be useful to know your QA insulin as well and how often you inject this ? ( in theory before meals, but other times ? ) |
Jul 2, 2017
Peter
109 posts
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Topic: General Discussion / Top tips that people have learnt from their diabetes education course I’ve been asked by Diabetes UK to ask for input to their latest survey:.
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Jul 2, 2017
Peter
109 posts
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Topic: General Discussion / Libre I fully agree with Warwick that DAFNE should be a pre-requisite and not just for CGM/Libre use but also for an insulin pump. Without the solid foundation that DAFNE provides on carb. counting and dosage adjustment, the extra technology will provide lots more control options and result data but no knowledge of what to do next.I have used the Libre for 18 months now, find it unobtrusive (although it does have a tendency to leave marks on removal as Sarah says) and the simplicity of taking multiple readings vastly increase knowledge of what the impact of different food types and exercise are on control. In addition to Warwick's comments on post breakfast levels, the other thing that the Libre (or CGM) allows is to get clear visibility of the impacts of changing the timing of insulin dosage ahead of eating. It also shows clearly how (for me) insulin post meal is a bad idea. Personally, I wouldn't go back to blood glucose testing solely with a strip now, even with the cost of Libre. |
Jul 2, 2017
torana
53 posts
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Topic: General Discussion / Blood sugar spiking between 3am and 7am Hi Paul it's an awful feeling thinking that your BG is high for so long throughout the night and then makes a bad start to the day. I feel like I'm always chasing my tail. When my BG is rising at the end of the night and keeps on going higher towards morning before waking I increase my background insulin by one and then check how it's going at approximately 1-2am. There are so many variables such as amount of exercise, sickness, changes in diet etc etc that I am always careful when making changes to my insulin routine. Also, I have a split background insulin dosage for the morning and night. Best of luck. |
Jun 30, 2017
Paul36287
1 post
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Topic: General Discussion / Blood sugar spiking between 3am and 7am My blood sugars are manageable most of the day.They start rising at about 9pm and I wake at around 7am with blood sugars on a 7 day average of 13 every day.I get them in range by lunch time and the process starts over again with rising blood sugars rising again at 9pm and throughout the night.I have got up a few times at 3am and taken insulin without carbs and it starts coming back into range by 7am.However that is leaving me at high risk of hypoing whilst sleeping.Does anyone else experience this ? And if so how did you correct? |
Jun 28, 2017
Warwick
423 posts
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marke would know if it is possible. If he doesn't see this thread, then try messaging him - Message Inbox - Compose New Message. |
Jun 28, 2017
Warwick
423 posts
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Topic: General Discussion / Libre I have been wearing a CGM (Dexcom G4) for the last couple of years. I agree with you that education is absolutely necessary otherwise it is just an exercise in looking at pretty graphs with lots of sharp rises and drops. What I have found from using this device is:1) What my blood glucose levels are doing following meals. Previously I knew not to test within a few hours of eating as we are only concerned with whether we got QA correct when it has almost been completely consumed by the body. What I didn't realise though was that although my blood glucose levels were perfect several hours after breakfast, they were peaking at around 17 mmol/L in the couple of hours after breakfast until the QA took full effect. That was for a breakfast of a couple of weetbix, some milk and muesli. I changed what I had for breakfast and now I have much lower BG readings in the couple of hours after eating. 2) My hypo awareness was nowhere near as good as I thought it was. The Dexcom (unlike the Libre) does sound an alarm when going outside of preset target ranges and I found that many times that I was hypo, I was completely unaware of the fact. Being alerted to this has meant I spend less time in hypoglycemia and my hypo awareness has improved as a result. 3) I can see what effect exercise has on my BGLs. Running and cycling does tend to lower them, but basketball tends to keep them steady. It has helped me identify what works and what doesn't. If I had to choose between just using DAFNE, or just using a CGM, then I would choose DAFNE, as knowing dose adjustment is so important, but I do find that using both is really helping my diabetes management. |
Jun 27, 2017
Boodles
1 post
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Topic: DAFNE Online Mobile / Diary mobile-online link Hi everyone, I just completed a DAFNE course last week, and found it incredibly enlightening and helpful.I downloaded the app to my phone on Thursday and started recording all my results there, but does anyone know how I can link the diary I've been keeping via the app on my smartphone to my newly signed up (just now) online presence here so I can share it more easily? Any help to log my previous data without having to manually enter it all again would be much appreciated. Thanks!! ![]() |
Jun 27, 2017
novorapidboi26
1,819 posts
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Topic: General Discussion / Libre Being a pumper the presence of it doesn't really bother me........I just don't understand the benefit of real time monitoring, unless of course there is hypo issues but even then, the Libre doesn't have alarms.... Its very likely I will get one soon but will purely be for overnight basal testing.....it wont dramatically change my control for the better... For some reason it annoys me when I hear people say that as they should be getting educated first.....lol |
Jun 27, 2017
torana
53 posts
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Topic: General Discussion / Scattered BG Hi sdhanani,Thanks for sharing your experience. It seems like you had a rotten night. I have also woken up many times over the years in the early mornings with lows. I have found taking insulin is not an exact science and as there are so many variables such as sickness, exercise, indigestion, correct needle procedures etc etc etc etc one suggestion is to have an earlier needle for both short and long acting insulins. This will give you time to ascertain what's happening throughout the night. Also, by taking the fast acting earlier hopefully its life span will be decreasing by bedtime. All the best |
Jun 26, 2017
sjohno
37 posts
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Topic: General Discussion / Libre Personally I cannot see the point of it...............I've been a T1 Diabetic for 37 years, I have fantastic control using DAFNE, testing BG - my fingers are not sore.I have actually seen one on a lady in the gym, it looks obtrusive and I noticed the huge red mark it left on her other arm, put me right off ![]() Sarah |
Jun 26, 2017
novorapidboi26
1,819 posts
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Topic: General Discussion / CGM / Libre - Employer Tax Break who provide CGM / Libre to employees Its worth a shot for sure....just dont want to open up a can of worms and give them grounds to scrutinise my control and for example, ability to drive.... |
Jun 26, 2017
Joanne Oag
3 posts
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Topic: General Discussion / CGM / Libre - Employer Tax Break who provide CGM / Libre to employees
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Jun 26, 2017
Joanne Oag
3 posts
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Topic: General Discussion / CGM / Libre - Employer Tax Break who provide CGM / Libre to employees Hi Novorapidboi26Not sure why the link isn't working, it opens up ok when I click on it. If you type into Google, Input Diabetes Tax Break, the first link that appears should take you in. The CGM is classed as a non-taxable benefit in kind through HMRC for medical purposes. (The input diabetes page takes you onto that HMRC link with all the legal jargon). Our accountant (PAYE Agent) wrote to HMRC to seek agreement to treat medical costs and explained I am an employee with Type 1 diabetes. HMRC wrote back to confirm they are happy to authorise dispensation. Luckily I have an employer that is quite understanding of diabetes and they did look it as a way to help with my health. Unfortunately I am not sure all employers would feel the same, I didn't need to sell the idea that I needed it to perform daily work duties. (Although I do feel it helps me a huge amount in work). |
Jun 26, 2017
novorapidboi26
1,819 posts
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Topic: General Discussion / Libre Its obvious this device is a game changer and helps a lot of people but for some reason I have negative feeling towards it.....because I have done DAFNE and was quite heavily using it to gain control in the past years I struggle to see the real benefit of it against the high costs it comes with.... I still believe firmly that the convenience of Libre cannot replace a sound knowledge and understanding of dose adjustment....without it what does it really bring.... People are saying its changed their control for the better because they can see if their BG is going up and down [you should know what is likely going on] and that their fingers are getting a break.... Are the costs worth that benefit for most.....I don't think so..... What are the thoughts of the rest of you....? Am I being completely irrational.... ![]() |
Jun 26, 2017
novorapidboi26
1,819 posts
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Topic: General Discussion / Scattered BG Alcohol? |
Jun 26, 2017
novorapidboi26
1,819 posts
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Topic: General Discussion / High blood sugar in morning 8.3 isn't bad at all but I can understand you want to get it on target....Have you increased your Lantus dose till you went hypo...? Is that what you mean when you say it doesn't matter how much you have? |
Jun 26, 2017
novorapidboi26
1,819 posts
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Topic: General Discussion / newbie Welcome aboard.....It really does opens your eyes doesn't it.... |
Jun 26, 2017
novorapidboi26
1,819 posts
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Topic: General Discussion / CGM / Libre - Employer Tax Break who provide CGM / Libre to employees That link isn't working......I think because there is a space between the c and g in cgm.... So would the employer pay for the meter as well as the transmitters at all times........? If so, why would they willingly pay out money....? Would the employee need to sell the idea that they needed the libre in order to perform his or her duties..? |
Jun 25, 2017
Simon Quinnell
16 posts
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Topic: General Discussion / DAFNE Follow-Up Course - No Help? Hi Marke,Thanks for your comments. Just to clarify, I thought the course was run very well I was just surprised that no help was offered. For example, perhaps if the question was opened up to the audience, someone might have offered a solution. At the moment I seem to have got to grips with my diabetes control. On the subject of seeing a consultant, I haven't seen mine for two years. We were told at the start of the course that due to severe staff shortages we won't be seeing him any time soon. |
Jun 23, 2017
marke
681 posts
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Topic: General Discussion / DAFNE Follow-Up Course - No Help? Hi,I will feed this back to the DAFNE people, particularly the consultants I'm sure they will be interested in this statement from a DAFNE trained HCP. For me the whole point is that DAFNE does teach you to handle stuff like this and a 'confident' HCP should have been able to help you with this. I think most of us have a varying routine, perhaps NOT as varied as you but its all degrees of the same problem. If we all did no exercise to keep things simple we wouldn't be helping ourselves in the long run would we ;-) Being old school, I agree with Warwick note everything down and build up a picture. You won't get it right all the time even with this information, sorry that's just life but it will help. One of the main principles of DAFNE is to record stuff and look for patterns, even in a lifestyle like yours and that's what they should have told you including adjusting for exercise. This is probably no help but what helped me a lot is going on a pump, but you need a good consultant for that who will refer you ;-) |