Recent Posts - DAFNE Online

Oct 16, 2017

Maybelline10 1 post

Topic: General Discussion / Libre to be available on the NHS.....

If the NHS fund these for children then I am happy to pay for mine!
Diabetic for 47 years and have beenon the libre for 2 week trial now and it is brilliant and am going to cut out something to fund it.
For all these years I have put up with injections and testing so the new Libre is the best thing to have happened to me since slice bread was invented!!!
It will be worth it but of course if the NHS fund it for me I will be truly and utterly grateful for giving me a new start to go forward.
I have got this far and have a good record so it can only make it better for me, but of course I know it will be a postcode lottery.

Oct 14, 2017

David simpson 6 posts

Topic: General Discussion / Benefits of a Insulin Pump to my Life

David simpson DAFNE Graduate 5 posts

David simpson DAFNE Graduate 3 posts
I have had a Insight Insulin Pump the freedom of
Not injection each time I eat .The Pump is set out
To deliver the right amount of QA to match the carbs
In the meal.All the time the pump is giving BG insulin
Just like your own pancreas.
You have to test a lot more and make sure the pump is working ..
You have to change site and cannula every 3 days and insulin cartrage the same time .But the pump can be programmed to your individual needs.
It has given me my life back .AS DAFNE course did last year it is amazing .
David
You test Blood glucose is checked a lot more times around 300 a month you receive funding for it if you meet the requirements and funding is granted it took me since the DAFNE course to get it but I was very close to been in a coma BG 2 now I am in the green most of the time no fear of
Not waking up in the morning big thank to Joe and the Diabetes Teams at Kingston and at Dorking Community Hospital Pump Unit.
David

David simpson DAFNE Graduate 5 posts
. Education is the key to the pump and Diabetes and carb counting and blood glucose testing to live a long life without worry of Diabetic complications.

Oct 12, 2017

Happygurl 2 posts

Topic: Carbohydrate Counting / NEWBIE

Hello Everyone
I recently graduated and am pleased to join this group. I just wanted to introduce myself. My HbA1C is 53 and i would like to get it down to 47 or below.
I find that colder days and winter months have me craving carbs and doing less activity. Logically I know this does not help me but I do find it really hard. May I ask how you get motivated to exercise ( I don't have a dog either-love my cats) during these dull cold days?
What tools do you use the keep your carbs low but your body content with a good warming 'hearty' meal in autumn and winter months?
Many thanks in advance Laughing

Oct 12, 2017

Happygurl 2 posts

Topic: General Discussion / Kings Refresher Days

Hello
I recently graduated DAPNE at a different NHS TRUST but soon after I transferred my care to Kings. Would I still be able to do the Kings refresher course?

Oct 12, 2017

novorapidboi26 1,819 posts

Topic: General Discussion / Libre to be available on the NHS.....

I am pretty confident I will get one....I am pumping and I have early maculopathy.....

What does independently funded mean @Stuarth? As in not by you? Who would pay then?

Oct 8, 2017

Stuarth 1 post

Topic: General Discussion / Libre to be available on the NHS.....

Many people won’t get it each sensor is around £60 you will only get it in certain circumstances... a scan of a libre is also not recognised by dvla as a pre driving glucose test.. I’ll get mine on nhs as I was going to get it independently funded anyway as I am a scaffolder that has no hypoglycaemic awareness

Oct 6, 2017

JayBee 587 posts

Topic: General Discussion / Libre to be available on the NHS.....

At the Diabetes APPG meeting they had that lead to the decision, they did not neglect to mention the notorious postcode lottery issue. I really expect it to have the same barriers people have for getting things like insulin pumps, so definitely agree about not holding one's breath. Sad

Best wishes to anyone who asks. My local hospital decided to run some Libre device trials last year but they stopped doing that earlier this this year. Hopefully they'll change their tune back with this news.

Sep 27, 2017

syphongear 2 posts

Topic: Questions for HCPs / morninghypers

thanx mark.
im on levimir twice a day and novorapid on 1.5/1/1 ratio respectively.
ive heard lots of striesof people detecting strangebehaviour whilst on libre.
hoping i ccaaan get one when it becomes available

Sep 27, 2017

marke 686 posts

Topic: Questions for HCPs / morninghypers

Hi,
Could be a number of things. Firstly what BI do you take and are you injecting it just once a day ? Its possible its BI but not necessarily. It could be something called Dawn Phenomenon which is where you body pumps around lots of chemicals to wake you up and get you going after sleep. I detected this with a Freestyle Libre ( see other forum posts). I would check BI first though...

Sep 27, 2017

marke 686 posts

Topic: General Discussion / Graduation

Hi Carol, Sorry that it took so long ! But the DAFNE team have finally confirmed you are a graduate so I have changed your account and you should now be able to access the handbook via the right-hand menu.

Sep 25, 2017

michaelj 45 posts

Topic: General Discussion / Libre to be available on the NHS.....

Mentioned this to my DSN and when I told her the likely cost she laughed and said no chance, so if you are hoping to get one ,don't hold your breath

Sep 25, 2017

syphongear 2 posts

Topic: Questions for HCPs / morninghypers

i am a recentgraduate.
i have tweaked my ratios and correcions and my daytime meal bg is all on target, but i have a recurring pattern of my first before breakfast bg being 11-14.
despite being 8.5 before bed, 5 hours after tea and with no snacks or sugar drinks,
1. what is the cause (slow carb release? sleep hypo, glycagon>liver relese, insufficient bi)
2. what is the solution? (more bi? not splitting, justevening)
thanx.

Sep 18, 2017

novorapidboi26 1,819 posts

Topic: General Discussion / DAFNEplus Survey

All done.....

Sep 16, 2017

Alan 49 284 posts

Topic: General Discussion / DAFNEplus Survey

Why have us oldies (>75) been excluded?

Sep 15, 2017

marke 686 posts

Topic: General Discussion / DAFNEplus Survey

As you may or may not know the next version of DAFNE called DAFNEplus is currently in the research stage. This means a new version of the course will be developed and then 'tested' to see if it gives better results than the current version. Part of this 'research' is a survey that we have been asked to promote on DAFNEOnline. To quote them

The survey opened last week and will close at the end of October 2017. It's open to 18-75 year olds with type 1 and type 2 diabetes. Our aim is to assess various diabetes specific quality of life measures. There are more details here on the webpage ( http://www.yoursay.org.au/ ) and also in our blog post - https://dafneplusresearch.wordpress.com/2017/09/05/dafneplus-have-your-say-on-quality-of-life/

So please do go and fill it in and it may influence DAFNE Courses in the future........

Sep 15, 2017

Alan 49 284 posts

Topic: General Discussion / Libre to be available on the NHS.....

I hope Abbott are geared-up for the volume of sensors that will be required.

Sep 15, 2017

AnnBL 1 post

Topic: General Discussion / Libre to be available on the NHS.....

NICE MIB 110

https://www.nice.org.uk/advice/mib110/chapter/Summary

Sep 15, 2017

NiVZ 82 posts

Topic: General Discussion / Libre to be available on the NHS.....

The date for this being available is from November 1st and there are still a lot of processes to be put in place before anyone can get them on prescription.

Lots of good information here:

http://www.inputdiabetes.org.uk/cgm/libre/

and here:

https://www.diabetes.org.uk/get_involved/campaigning/flash-glucose-monitoring

NiVZ

Sep 14, 2017

michaelj 45 posts

Topic: General Discussion / Libre to be available on the NHS.....

Can I ask where you got this from. Seeing my DSN tomorrow so might try asking for it

Oct 16, 2017 Maybelline10 1 post	Topic: General Discussion / Libre to be available on the NHS..... If the NHS fund these for children then I am happy to pay for mine! Diabetic for 47 years and have beenon the libre for 2 week trial now and it is brilliant and am going to cut out something to fund it. For all these years I have put up with injections and testing so the new Libre is the best thing to have happened to me since slice bread was invented!!! It will be worth it but of course if the NHS fund it for me I will be truly and utterly grateful for giving me a new start to go forward. I have got this far and have a good record so it can only make it better for me, but of course I know it will be a postcode lottery.

Oct 14, 2017 David simpson 6 posts	Topic: General Discussion / Benefits of a Insulin Pump to my Life David simpson DAFNE Graduate 5 posts David simpson DAFNE Graduate 3 posts I have had a Insight Insulin Pump the freedom of Not injection each time I eat .The Pump is set out To deliver the right amount of QA to match the carbs In the meal.All the time the pump is giving BG insulin Just like your own pancreas. You have to test a lot more and make sure the pump is working .. You have to change site and cannula every 3 days and insulin cartrage the same time .But the pump can be programmed to your individual needs. It has given me my life back .AS DAFNE course did last year it is amazing . David You test Blood glucose is checked a lot more times around 300 a month you receive funding for it if you meet the requirements and funding is granted it took me since the DAFNE course to get it but I was very close to been in a coma BG 2 now I am in the green most of the time no fear of Not waking up in the morning big thank to Joe and the Diabetes Teams at Kingston and at Dorking Community Hospital Pump Unit. David David simpson DAFNE Graduate 5 posts . Education is the key to the pump and Diabetes and carb counting and blood glucose testing to live a long life without worry of Diabetic complications.

Oct 12, 2017 Happygurl 2 posts	Topic: Carbohydrate Counting / NEWBIE Hello Everyone I recently graduated and am pleased to join this group. I just wanted to introduce myself. My HbA1C is 53 and i would like to get it down to 47 or below. I find that colder days and winter months have me craving carbs and doing less activity. Logically I know this does not help me but I do find it really hard. May I ask how you get motivated to exercise ( I don't have a dog either-love my cats) during these dull cold days? What tools do you use the keep your carbs low but your body content with a good warming 'hearty' meal in autumn and winter months? Many thanks in advance

Oct 12, 2017 Happygurl 2 posts	Topic: General Discussion / Kings Refresher Days Hello I recently graduated DAPNE at a different NHS TRUST but soon after I transferred my care to Kings. Would I still be able to do the Kings refresher course?

Oct 12, 2017 novorapidboi26 1,819 posts	Topic: General Discussion / Libre to be available on the NHS..... I am pretty confident I will get one....I am pumping and I have early maculopathy..... What does independently funded mean @Stuarth? As in not by you? Who would pay then?

Oct 8, 2017 Stuarth 1 post	Topic: General Discussion / Libre to be available on the NHS..... Many people won’t get it each sensor is around £60 you will only get it in certain circumstances... a scan of a libre is also not recognised by dvla as a pre driving glucose test.. I’ll get mine on nhs as I was going to get it independently funded anyway as I am a scaffolder that has no hypoglycaemic awareness

Oct 6, 2017 JayBee 587 posts	Topic: General Discussion / Libre to be available on the NHS..... At the Diabetes APPG meeting they had that lead to the decision, they did not neglect to mention the notorious postcode lottery issue. I really expect it to have the same barriers people have for getting things like insulin pumps, so definitely agree about not holding one's breath. Best wishes to anyone who asks. My local hospital decided to run some Libre device trials last year but they stopped doing that earlier this this year. Hopefully they'll change their tune back with this news.

Sep 27, 2017 syphongear 2 posts	Topic: Questions for HCPs / morninghypers thanx mark. im on levimir twice a day and novorapid on 1.5/1/1 ratio respectively. ive heard lots of striesof people detecting strangebehaviour whilst on libre. hoping i ccaaan get one when it becomes available

Sep 27, 2017 marke 686 posts	Topic: Questions for HCPs / morninghypers Hi, Could be a number of things. Firstly what BI do you take and are you injecting it just once a day ? Its possible its BI but not necessarily. It could be something called Dawn Phenomenon which is where you body pumps around lots of chemicals to wake you up and get you going after sleep. I detected this with a Freestyle Libre ( see other forum posts). I would check BI first though...

Sep 27, 2017 marke 686 posts	Topic: General Discussion / Graduation Hi Carol, Sorry that it took so long ! But the DAFNE team have finally confirmed you are a graduate so I have changed your account and you should now be able to access the handbook via the right-hand menu.

Sep 25, 2017 michaelj 45 posts	Topic: General Discussion / Libre to be available on the NHS..... Mentioned this to my DSN and when I told her the likely cost she laughed and said no chance, so if you are hoping to get one ,don't hold your breath

Sep 25, 2017 syphongear 2 posts	Topic: Questions for HCPs / morninghypers i am a recentgraduate. i have tweaked my ratios and correcions and my daytime meal bg is all on target, but i have a recurring pattern of my first before breakfast bg being 11-14. despite being 8.5 before bed, 5 hours after tea and with no snacks or sugar drinks, 1. what is the cause (slow carb release? sleep hypo, glycagon>liver relese, insufficient bi) 2. what is the solution? (more bi? not splitting, justevening) thanx.

Sep 18, 2017 novorapidboi26 1,819 posts	Topic: General Discussion / DAFNEplus Survey All done.....

Sep 16, 2017 Alan 49 284 posts	Topic: General Discussion / DAFNEplus Survey Why have us oldies (>75) been excluded?

Sep 15, 2017 marke 686 posts	Topic: General Discussion / DAFNEplus Survey As you may or may not know the next version of DAFNE called DAFNEplus is currently in the research stage. This means a new version of the course will be developed and then 'tested' to see if it gives better results than the current version. Part of this 'research' is a survey that we have been asked to promote on DAFNEOnline. To quote them The survey opened last week and will close at the end of October 2017. It's open to 18-75 year olds with type 1 and type 2 diabetes. Our aim is to assess various diabetes specific quality of life measures. There are more details here on the webpage ( http://www.yoursay.org.au/ ) and also in our blog post - https://dafneplusresearch.wordpress.com/2017/09/05/dafneplus-have-your-say-on-quality-of-life/ So please do go and fill it in and it may influence DAFNE Courses in the future........

Sep 15, 2017 Alan 49 284 posts	Topic: General Discussion / Libre to be available on the NHS..... I hope Abbott are geared-up for the volume of sensors that will be required.

Sep 15, 2017 AnnBL 1 post	Topic: General Discussion / Libre to be available on the NHS..... NICE MIB 110 https://www.nice.org.uk/advice/mib110/chapter/Summary

Sep 15, 2017 NiVZ 82 posts	Topic: General Discussion / Libre to be available on the NHS..... The date for this being available is from November 1st and there are still a lot of processes to be put in place before anyone can get them on prescription. Lots of good information here: http://www.inputdiabetes.org.uk/cgm/libre/ and here: https://www.diabetes.org.uk/get_involved/campaigning/flash-glucose-monitoring NiVZ

Sep 14, 2017 michaelj 45 posts	Topic: General Discussion / Libre to be available on the NHS..... Can I ask where you got this from. Seeing my DSN tomorrow so might try asking for it