Recent Posts - DAFNE Online

Oct 19, 2017

sjohno 37 posts

Topic: General Discussion / Living Alone with Type 1

Hi Felix

Do you have family members near by at all that you could set up a contact scheme with? Is there a good neighbour who could see that you have opened your curtains in the morning? Is there anyone at work who could get in touch with you/family if you didn't get into work? Do you have a good HbA1C and good hypo awareness?

My suggestions would be:

Make sure your BI insulin is correct especially overnight, always go to bed with your BG around the 8 mark.
Any planned or unplanned exercise before bed, adjust your QA/BI/eat a few more carbs.
Have jelly babies or whatever you use for hypos by your bed.
Always have your phone by your bed......even if you hypo called someone and talked confusion they would know you needed help.

Good luck Very Happy

Sarah

Oct 18, 2017

Felix Glenn 26 posts

Topic: General Discussion / Living Alone with Type 1

Hi Warwick,

Thanks so much for the speedy reply - you just getting up, down under? :-)
I did Dafne when I was first diagnosed about 7 years ago - it was awesome and I'm queuing for a refresher right now.
Lowering carbs in the evening is a good suggestion, thanks.

But I guess I'm thinking about a support network, people to check in with in the morning to say 'Hi, I'm alive!'
My fear is that I could go low in my sleep (for whatever reason) and simply not wake up.
As I'm living alone now, it could be 24 hours or more before anyone comes knocking on the door ...

Felix

Oct 18, 2017

Warwick 423 posts

Topic: General Discussion / Living Alone with Type 1

Hi Felix,

There are a couple of things you could look at.

One would be CGM such as the Freestyle Libre. This would show you patterns of how your blood glucose levels trend during the night so you could see trends and then look to correct them. The Libre doesn't have alerting for when you go low unfortunately, but other CGMs do. They tend to be more pricey though.

Another thing to look at could be reducing the amount of carbs in your evening meal, so that you don't need to inject as much insulin. This might lead to less hypos.

I don't see graduate next to your name, so I assume that you haven't done DAFNE. If that is the case, then I would highly recommend doing a DAFNE course because I think it would give you a lot more confidence about managing your T1D.

Oct 18, 2017

Felix Glenn 26 posts

Topic: General Discussion / Anxiety / Stress and Dose Adjustment

Deadly said:
Hi All, my job changed just a couple of weeks ago so that I regularly find myself in positions where I am suffering from anxiety, and I notice that at the times of high anxiety my BG rises. What is the best way to deal with this? Does adrenaline cause your BG to fall sharply a bit later as much as it causes it to rise? Should I increase my quick acting insulin to cover it or my background nasal?

If you have nay ideas please let me know.

Thanks, David

Hi Deadly,
I hope your work situation has improved somewhat.
Stress and anxiety played havoc with my control when my wife left me earlier this year.
I agree with JayBee. Diabetes is a disability and your work might be encouraged to engage in discussing ways to reduce the stress on you.
Good luck, mate.
I'd be interested in your thoughts.
Felix

Oct 18, 2017

Felix Glenn 26 posts

Topic: General Discussion / Kings Refresher Days

Me too! Sounds good, and if it's open to all, I will definitely be attending.
I think I'll phone that number to gave @Marke

Oct 18, 2017

Felix Glenn 26 posts

Topic: General Discussion / Living Alone with Type 1

Hi,
I've recently been forced to live alone for the first time and with Type 1, and I'm so afraid of night hypos I think I'm over compensating.
So here's my question:
What strategies do people employ to manage night time hypos when they live alone?
Hope you can help
Felix

Oct 18, 2017

Warwick 423 posts

Topic: Carbohydrate Counting / NEWBIE

Welcome Happygurl. I find soups are good. Lots of vegetables and you can choose whether to make it with higher carb vegetables like potato and pumpkin, or lower-carb options like kale, mushroom, broccoli etc.

As far as exercise goes, I find it is is best to try and incorporate incidental exercise into daily life. For example, I hate commuting on public transport, so I cycle to work and get to work in a much better mood then if I used PT or drove to work.

All the best with getting the A1c down.

Oct 17, 2017

wendyx1961 2 posts

Topic: Questions for HCPs / Confused.com

Was told at diabetic clinic I’m to precise he said with my readings you wouldn’t know I’ve been type 1 for 36 years !!!! I thought the object was to control your diabetes !!! Now their telling me to ease off which I have and my reading are in double figures,so again I’m trying to get them between 6 and 10 which is what they want,I’m so fed up with it now,is their a dafne trained nurse or doctor at James Padgett ??? Cos I really need one right now !!!!

Oct 16, 2017

Maybelline10 1 post

Topic: General Discussion / Libre to be available on the NHS.....

If the NHS fund these for children then I am happy to pay for mine!
Diabetic for 47 years and have beenon the libre for 2 week trial now and it is brilliant and am going to cut out something to fund it.
For all these years I have put up with injections and testing so the new Libre is the best thing to have happened to me since slice bread was invented!!!
It will be worth it but of course if the NHS fund it for me I will be truly and utterly grateful for giving me a new start to go forward.
I have got this far and have a good record so it can only make it better for me, but of course I know it will be a postcode lottery.

Oct 14, 2017

David simpson 6 posts

Topic: General Discussion / Benefits of a Insulin Pump to my Life

David simpson DAFNE Graduate 5 posts

David simpson DAFNE Graduate 3 posts
I have had a Insight Insulin Pump the freedom of
Not injection each time I eat .The Pump is set out
To deliver the right amount of QA to match the carbs
In the meal.All the time the pump is giving BG insulin
Just like your own pancreas.
You have to test a lot more and make sure the pump is working ..
You have to change site and cannula every 3 days and insulin cartrage the same time .But the pump can be programmed to your individual needs.
It has given me my life back .AS DAFNE course did last year it is amazing .
David
You test Blood glucose is checked a lot more times around 300 a month you receive funding for it if you meet the requirements and funding is granted it took me since the DAFNE course to get it but I was very close to been in a coma BG 2 now I am in the green most of the time no fear of
Not waking up in the morning big thank to Joe and the Diabetes Teams at Kingston and at Dorking Community Hospital Pump Unit.
David

David simpson DAFNE Graduate 5 posts
. Education is the key to the pump and Diabetes and carb counting and blood glucose testing to live a long life without worry of Diabetic complications.

Oct 12, 2017

Happygurl 2 posts

Topic: Carbohydrate Counting / NEWBIE

Hello Everyone
I recently graduated and am pleased to join this group. I just wanted to introduce myself. My HbA1C is 53 and i would like to get it down to 47 or below.
I find that colder days and winter months have me craving carbs and doing less activity. Logically I know this does not help me but I do find it really hard. May I ask how you get motivated to exercise ( I don't have a dog either-love my cats) during these dull cold days?
What tools do you use the keep your carbs low but your body content with a good warming 'hearty' meal in autumn and winter months?
Many thanks in advance Laughing

Oct 12, 2017

Happygurl 2 posts

Topic: General Discussion / Kings Refresher Days

Hello
I recently graduated DAPNE at a different NHS TRUST but soon after I transferred my care to Kings. Would I still be able to do the Kings refresher course?

Oct 12, 2017

novorapidboi26 1,819 posts

Topic: General Discussion / Libre to be available on the NHS.....

I am pretty confident I will get one....I am pumping and I have early maculopathy.....

What does independently funded mean @Stuarth? As in not by you? Who would pay then?

Oct 8, 2017

Stuarth 1 post

Topic: General Discussion / Libre to be available on the NHS.....

Many people won’t get it each sensor is around £60 you will only get it in certain circumstances... a scan of a libre is also not recognised by dvla as a pre driving glucose test.. I’ll get mine on nhs as I was going to get it independently funded anyway as I am a scaffolder that has no hypoglycaemic awareness

Oct 6, 2017

JayBee 587 posts

Topic: General Discussion / Libre to be available on the NHS.....

At the Diabetes APPG meeting they had that lead to the decision, they did not neglect to mention the notorious postcode lottery issue. I really expect it to have the same barriers people have for getting things like insulin pumps, so definitely agree about not holding one's breath. Sad

Best wishes to anyone who asks. My local hospital decided to run some Libre device trials last year but they stopped doing that earlier this this year. Hopefully they'll change their tune back with this news.

Sep 27, 2017

syphongear 2 posts

Topic: Questions for HCPs / morninghypers

thanx mark.
im on levimir twice a day and novorapid on 1.5/1/1 ratio respectively.
ive heard lots of striesof people detecting strangebehaviour whilst on libre.
hoping i ccaaan get one when it becomes available

Sep 27, 2017

marke 681 posts

Topic: Questions for HCPs / morninghypers

Hi,
Could be a number of things. Firstly what BI do you take and are you injecting it just once a day ? Its possible its BI but not necessarily. It could be something called Dawn Phenomenon which is where you body pumps around lots of chemicals to wake you up and get you going after sleep. I detected this with a Freestyle Libre ( see other forum posts). I would check BI first though...

Sep 27, 2017

marke 681 posts

Topic: General Discussion / Graduation

Hi Carol, Sorry that it took so long ! But the DAFNE team have finally confirmed you are a graduate so I have changed your account and you should now be able to access the handbook via the right-hand menu.

Sep 25, 2017

michaelj 45 posts

Topic: General Discussion / Libre to be available on the NHS.....

Mentioned this to my DSN and when I told her the likely cost she laughed and said no chance, so if you are hoping to get one ,don't hold your breath

Sep 25, 2017

syphongear 2 posts

Topic: Questions for HCPs / morninghypers

i am a recentgraduate.
i have tweaked my ratios and correcions and my daytime meal bg is all on target, but i have a recurring pattern of my first before breakfast bg being 11-14.
despite being 8.5 before bed, 5 hours after tea and with no snacks or sugar drinks,
1. what is the cause (slow carb release? sleep hypo, glycagon>liver relese, insufficient bi)
2. what is the solution? (more bi? not splitting, justevening)
thanx.

Oct 19, 2017 sjohno 37 posts	Topic: General Discussion / Living Alone with Type 1 Hi Felix Do you have family members near by at all that you could set up a contact scheme with? Is there a good neighbour who could see that you have opened your curtains in the morning? Is there anyone at work who could get in touch with you/family if you didn't get into work? Do you have a good HbA1C and good hypo awareness? My suggestions would be: Make sure your BI insulin is correct especially overnight, always go to bed with your BG around the 8 mark. Any planned or unplanned exercise before bed, adjust your QA/BI/eat a few more carbs. Have jelly babies or whatever you use for hypos by your bed. Always have your phone by your bed......even if you hypo called someone and talked confusion they would know you needed help. Good luck Sarah

Oct 18, 2017 Felix Glenn 26 posts	Topic: General Discussion / Living Alone with Type 1 Hi Warwick, Thanks so much for the speedy reply - you just getting up, down under? :-) I did Dafne when I was first diagnosed about 7 years ago - it was awesome and I'm queuing for a refresher right now. Lowering carbs in the evening is a good suggestion, thanks. But I guess I'm thinking about a support network, people to check in with in the morning to say 'Hi, I'm alive!' My fear is that I could go low in my sleep (for whatever reason) and simply not wake up. As I'm living alone now, it could be 24 hours or more before anyone comes knocking on the door ... Felix

Oct 18, 2017 Warwick 423 posts	Topic: General Discussion / Living Alone with Type 1 Hi Felix, There are a couple of things you could look at. One would be CGM such as the Freestyle Libre. This would show you patterns of how your blood glucose levels trend during the night so you could see trends and then look to correct them. The Libre doesn't have alerting for when you go low unfortunately, but other CGMs do. They tend to be more pricey though. Another thing to look at could be reducing the amount of carbs in your evening meal, so that you don't need to inject as much insulin. This might lead to less hypos. I don't see graduate next to your name, so I assume that you haven't done DAFNE. If that is the case, then I would highly recommend doing a DAFNE course because I think it would give you a lot more confidence about managing your T1D.

Oct 18, 2017 Felix Glenn 26 posts	Topic: General Discussion / Anxiety / Stress and Dose Adjustment Deadly said: Hi All, my job changed just a couple of weeks ago so that I regularly find myself in positions where I am suffering from anxiety, and I notice that at the times of high anxiety my BG rises. What is the best way to deal with this? Does adrenaline cause your BG to fall sharply a bit later as much as it causes it to rise? Should I increase my quick acting insulin to cover it or my background nasal? If you have nay ideas please let me know. Thanks, David Hi Deadly, I hope your work situation has improved somewhat. Stress and anxiety played havoc with my control when my wife left me earlier this year. I agree with JayBee. Diabetes is a disability and your work might be encouraged to engage in discussing ways to reduce the stress on you. Good luck, mate. I'd be interested in your thoughts. Felix

Oct 18, 2017 Felix Glenn 26 posts	Topic: General Discussion / Kings Refresher Days Me too! Sounds good, and if it's open to all, I will definitely be attending. I think I'll phone that number to gave @Marke

Oct 18, 2017 Felix Glenn 26 posts	Topic: General Discussion / Living Alone with Type 1 Hi, I've recently been forced to live alone for the first time and with Type 1, and I'm so afraid of night hypos I think I'm over compensating. So here's my question: What strategies do people employ to manage night time hypos when they live alone? Hope you can help Felix

Oct 18, 2017 Warwick 423 posts	Topic: Carbohydrate Counting / NEWBIE Welcome Happygurl. I find soups are good. Lots of vegetables and you can choose whether to make it with higher carb vegetables like potato and pumpkin, or lower-carb options like kale, mushroom, broccoli etc. As far as exercise goes, I find it is is best to try and incorporate incidental exercise into daily life. For example, I hate commuting on public transport, so I cycle to work and get to work in a much better mood then if I used PT or drove to work. All the best with getting the A1c down.

Oct 17, 2017 wendyx1961 2 posts	Topic: Questions for HCPs / Confused.com Was told at diabetic clinic I’m to precise he said with my readings you wouldn’t know I’ve been type 1 for 36 years !!!! I thought the object was to control your diabetes !!! Now their telling me to ease off which I have and my reading are in double figures,so again I’m trying to get them between 6 and 10 which is what they want,I’m so fed up with it now,is their a dafne trained nurse or doctor at James Padgett ??? Cos I really need one right now !!!!

Oct 16, 2017 Maybelline10 1 post	Topic: General Discussion / Libre to be available on the NHS..... If the NHS fund these for children then I am happy to pay for mine! Diabetic for 47 years and have beenon the libre for 2 week trial now and it is brilliant and am going to cut out something to fund it. For all these years I have put up with injections and testing so the new Libre is the best thing to have happened to me since slice bread was invented!!! It will be worth it but of course if the NHS fund it for me I will be truly and utterly grateful for giving me a new start to go forward. I have got this far and have a good record so it can only make it better for me, but of course I know it will be a postcode lottery.

Oct 14, 2017 David simpson 6 posts	Topic: General Discussion / Benefits of a Insulin Pump to my Life David simpson DAFNE Graduate 5 posts David simpson DAFNE Graduate 3 posts I have had a Insight Insulin Pump the freedom of Not injection each time I eat .The Pump is set out To deliver the right amount of QA to match the carbs In the meal.All the time the pump is giving BG insulin Just like your own pancreas. You have to test a lot more and make sure the pump is working .. You have to change site and cannula every 3 days and insulin cartrage the same time .But the pump can be programmed to your individual needs. It has given me my life back .AS DAFNE course did last year it is amazing . David You test Blood glucose is checked a lot more times around 300 a month you receive funding for it if you meet the requirements and funding is granted it took me since the DAFNE course to get it but I was very close to been in a coma BG 2 now I am in the green most of the time no fear of Not waking up in the morning big thank to Joe and the Diabetes Teams at Kingston and at Dorking Community Hospital Pump Unit. David David simpson DAFNE Graduate 5 posts . Education is the key to the pump and Diabetes and carb counting and blood glucose testing to live a long life without worry of Diabetic complications.

Oct 12, 2017 Happygurl 2 posts	Topic: Carbohydrate Counting / NEWBIE Hello Everyone I recently graduated and am pleased to join this group. I just wanted to introduce myself. My HbA1C is 53 and i would like to get it down to 47 or below. I find that colder days and winter months have me craving carbs and doing less activity. Logically I know this does not help me but I do find it really hard. May I ask how you get motivated to exercise ( I don't have a dog either-love my cats) during these dull cold days? What tools do you use the keep your carbs low but your body content with a good warming 'hearty' meal in autumn and winter months? Many thanks in advance

Oct 12, 2017 Happygurl 2 posts	Topic: General Discussion / Kings Refresher Days Hello I recently graduated DAPNE at a different NHS TRUST but soon after I transferred my care to Kings. Would I still be able to do the Kings refresher course?

Oct 12, 2017 novorapidboi26 1,819 posts	Topic: General Discussion / Libre to be available on the NHS..... I am pretty confident I will get one....I am pumping and I have early maculopathy..... What does independently funded mean @Stuarth? As in not by you? Who would pay then?

Oct 8, 2017 Stuarth 1 post	Topic: General Discussion / Libre to be available on the NHS..... Many people won’t get it each sensor is around £60 you will only get it in certain circumstances... a scan of a libre is also not recognised by dvla as a pre driving glucose test.. I’ll get mine on nhs as I was going to get it independently funded anyway as I am a scaffolder that has no hypoglycaemic awareness

Oct 6, 2017 JayBee 587 posts	Topic: General Discussion / Libre to be available on the NHS..... At the Diabetes APPG meeting they had that lead to the decision, they did not neglect to mention the notorious postcode lottery issue. I really expect it to have the same barriers people have for getting things like insulin pumps, so definitely agree about not holding one's breath. Best wishes to anyone who asks. My local hospital decided to run some Libre device trials last year but they stopped doing that earlier this this year. Hopefully they'll change their tune back with this news.

Sep 27, 2017 syphongear 2 posts	Topic: Questions for HCPs / morninghypers thanx mark. im on levimir twice a day and novorapid on 1.5/1/1 ratio respectively. ive heard lots of striesof people detecting strangebehaviour whilst on libre. hoping i ccaaan get one when it becomes available

Sep 27, 2017 marke 681 posts	Topic: Questions for HCPs / morninghypers Hi, Could be a number of things. Firstly what BI do you take and are you injecting it just once a day ? Its possible its BI but not necessarily. It could be something called Dawn Phenomenon which is where you body pumps around lots of chemicals to wake you up and get you going after sleep. I detected this with a Freestyle Libre ( see other forum posts). I would check BI first though...

Sep 27, 2017 marke 681 posts	Topic: General Discussion / Graduation Hi Carol, Sorry that it took so long ! But the DAFNE team have finally confirmed you are a graduate so I have changed your account and you should now be able to access the handbook via the right-hand menu.

Sep 25, 2017 michaelj 45 posts	Topic: General Discussion / Libre to be available on the NHS..... Mentioned this to my DSN and when I told her the likely cost she laughed and said no chance, so if you are hoping to get one ,don't hold your breath

Sep 25, 2017 syphongear 2 posts	Topic: Questions for HCPs / morninghypers i am a recentgraduate. i have tweaked my ratios and correcions and my daytime meal bg is all on target, but i have a recurring pattern of my first before breakfast bg being 11-14. despite being 8.5 before bed, 5 hours after tea and with no snacks or sugar drinks, 1. what is the cause (slow carb release? sleep hypo, glycagon>liver relese, insufficient bi) 2. what is the solution? (more bi? not splitting, justevening) thanx.