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15,864 posts found
Oct 24, 2017
novorapidboi26
1,819 posts
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Topic: General Discussion / DAFNE Course Material I don't think the DAFNE course material is available to anyone who isn't a graduate unfortunately..........but its still worth asking the question at your clinic as they might provide the handbook....Its available on here once you have received your graduate code.... There is however a good alternative to use if you cant make it along to a course called BERTIE.... It can be found here And of course, any questions you may have can be asked on here..... |
Oct 23, 2017
Ethan
1 post
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Topic: General Discussion / DAFNE Course Material Hi all,does anyone know where I can get any documentation for the DAFNE course? Unfortunately I work two jobs and I'm studying for my MA so I can't get the time off. I do however need to adopt the plan. I'm currently calculating my units at 2 per 10g of cabohydrate and it seems to be working well, however I'd look more info if I can get it? I wish there was an e-learning course for this as it would help a lot of people who are actively trying to adopt the program, but can't take time off from work. Thanks, Ethan |
Oct 23, 2017
novorapidboi26
1,819 posts
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Topic: Questions for HCPs / Confused.com So are you saying that the nurses on your team are not DAFNE trained.....?Stick to the DAFNE principles for sure......no doctors or nurses should be telling you to do it differently..... You can always ask in here or one of the other UK forums for help on any thing you need... As far as monitoring diaries are concerned I actually made my own up with a spreadsheet.....this was before the pump came along and now I only write it down when I need to assess a dose change.... |
Oct 21, 2017
Peter
109 posts
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Topic: General Discussion / Living Alone with Type 1 Definitely worth discussing your anxiety about an overnight hypo with your diabetes team as fear of hypos is one of the criteria for more advanced treatment e.g. pump or CGMS.In the meantime have you tried a Libre so you would get a clear understanding of what is happening overnight? Remember though it is NOT a CGMS, so won't sound an alarm should you BS level drop too far but it will give a historical view of what happens each night for 2 weeks. You could also self fund a CGMS, but that's even more expensive than a Libre although, if you're lucky, you may meet the local criteria for a Libre when they start rolling out over the next few months. Again, your diabetes team should be able to advise on whether you're likley to meet the local criteria for that. Good luck. |
Oct 21, 2017
ACampa
1 post
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Topic: General Discussion / Living Alone with Type 1
Why not try a pump, CGM is built in and it switches off if you go low... |
Oct 20, 2017
sjohno
37 posts
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Topic: General Discussion / Living Alone with Type 1 FelixThere is nothing wrong with being anxious about it as long as the hypo thought is not allowing you to sleep ![]() You'll be great at keeping yourself safe, maybe get into a routine at night (depending on your plans/activity) and things will be 👍 Good luck with everything. Sarah |
Oct 20, 2017
Muncle
9 posts
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Topic: Questions for HCPs / Confused.com Hi Weendyx1961, I read a book recently by Dr Emma Mardlin who has had Type 1 Diabetes since a child. one thing she says in the book which I found to be very profound and true is "You know your body & your diabetes better than anyone" which includes doctors, nurses and specialists.I understand why Health Care Professionals recommend you keep your BG around 6 - 10 as they are trying a one size fits all but if you are maintaining BG's of say 4 - 7 and it is working for you without going into Hypo too regular, then if it was me I would go for what I think works best for me. If you get chance to Read Emma's book then I can recommend it, it's called "Mind Body Diabetes Type 1 And Type 2: " ![]() |
Oct 20, 2017
Felix Glenn
26 posts
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Topic: General Discussion / Living Alone with Type 1 novarapidboi spot on. Assessing risk is key here: I think generally the risk is low. So the anxiety is not based on a risk assessment but on a fear, often an irrational one. I think I'm actually doing all the right things. When alcohol is involved, that's when the risk factor really goes up.And posting on this forum is REALLY helping ![]() Sarah, yes, flat sharing is a good solution. I'll definitely revisit that idea with some people who might be up for it. The more people involved in a network, the more chance there is of something going wrong but the idea of a list of people who I check in with in the morning is very reassuring. Maybe this is about managing anxiety AND risk. ![]() Felix |
Oct 20, 2017
wendyx1961
2 posts
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Topic: Questions for HCPs / Confused.com I have been doing it the dafne way for years !!! And yes the dafne way is so different to the way I used to do it,before dafne my reading were off the scale so high my monitor couldn’t read them which is why I was put on the dafne course in the first place !!!My blood sugars are as they put it “Normal” !!!! Just like a person without diabetes. But that’s the dafne aim !!! Since they scraped the dafne course through funding their is no one to talk too,if you do have a problem as a lot of nurses and doctors are not trained in dafne,you cannot even get monitoring diaries anymore which is why I’ve had to go online god knows what would happen if I couldn’t !!! As your blood results are key to dafne !!!! Think I’m just going to have to stick to what I know !!!! The dafne course and way is the only thing that got my diabetes under control pitty more doctors and nurses weren’t trained so at least you’d have someone to talk to !!!! |
Oct 20, 2017
novorapidboi26
1,819 posts
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Topic: Questions for HCPs / Confused.com Non-HCP here....What does too precise actually mean.....? What are your BG levels at.....? You wouldn't need to ease off in my opinion and certainly after 36 years you shouldn't feel compelled to do anything you don't want to....if its working already.... Was the DAFNE approach much different to what you had been doing before....? Are you comfortable with dose adjustment....? |
Oct 20, 2017
novorapidboi26
1,819 posts
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Topic: Carbohydrate Counting / NEWBIE As a DAFNE graduate you should have all the tools at your disposal to still manage your BG successfully and have the winter carbs you crave [within reason]....Some people find that seasonal changes may change the background needs and so a basal test would be wise on a regular basis... I know I haven't answered your questions as such but you should be able to adjust doses to compensate for the changing seasons and appetites.... |
Oct 20, 2017
novorapidboi26
1,819 posts
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Topic: General Discussion / Living Alone with Type 1 I would be assessing the actual risk of night time hypos occurring.....Is the risk low and you are just anxious about it happening....? is the risk high and if so why? what have you tried to eliminate them? |
Oct 20, 2017
novorapidboi26
1,819 posts
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Topic: General Discussion / Libre to be available on the NHS.....
Would you really cut out something to make money available for it....? Is it that much of an assistance to you...?......assuming that you're already competent with dose adjustment and carb counting..... |
Oct 20, 2017
novorapidboi26
1,819 posts
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Topic: General Discussion / Benefits of a Insulin Pump to my Life Have you pasted this from somewhere else? |
Oct 20, 2017
sjohno
37 posts
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Topic: General Discussion / Living Alone with Type 1 Hi FelixJust friends of friends who have been at University/work through the years. The downsides are: If you are on holiday or off work for a couple of days, having a lie in, not drawing your curtains and end up with ambulance/police bursting through your door ![]() You forget to text. People forget. 7 people is a lot to remember ![]() Any chance of sharing with a flat mate? Sarah |
Oct 19, 2017
Felix Glenn
26 posts
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Topic: General Discussion / Living Alone with Type 1 Oh, thank you. I'm just realising how much anxiety I have about this.J, 8 point drop over nite is quite big, I guess it's about being predictable and finding the right BG level before bed? Sarah, I generally correct BG to about 8-10 before I sleep. Mostly this works fine and I wake in target, sometimes... Do you know people who have set up support networks and what sort of problems they have encountered? I'm thinking, I can't just ask a couple of people to do this, I probably need a small team, a group who take turns so it doesn't just fall to one or two: So below is what I'm planning, I know it sounds elaborate but I genuinely fear for my life, and even tho my control is good, I still get it wrong sometimes. And living alone means the risk of nighttime unconsciousness and even coma is that much higher. So I find 7 people, one for each night of the week. (maybe I need 2 more to stand in when others are away?) In the evening I text or WhatsApp the appointed person to agree a contact time for the following morning. The next morning, I text them a smiley to say, "I'm awake, I'm alive and my BG is balanced". If they don't get the smiley within 10 mins of the agreed time, they ring me. If they can't raise me on the phone they either come over or call 999 or both. I put a key safe outside the flat so that they or the emergency services can get in. Has anyone ever done something like this, or know someone else who has, as a safety net for living on their own with Type 1? Felix |
Oct 19, 2017
alturn
78 posts
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Topic: General Discussion / Living Alone with Type 1 Can you look back over your BG levels from bed to breakfast? If there are large drops, then maybe best to have some extra carbs, but also depends on level before bed. If they are roughly the same overnight, then less need to be concerned. My DSN said it's better to be a bit higher at breakfast than low overnight.I've always lived by myself (and T1 for 12 years), sometimes drop by up to 8 overnight, other times taken QA before bed as high and gone up overnight, so it's a bit unpredictable. I now live near my sister but we don't have any regular "are you alive" protocol (at present). And I'm still here. Things can go wrong at anytime, so really just have to do the best you can. Happy and uninterrupted sleeps, J |
Oct 19, 2017
sjohno
37 posts
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Topic: General Discussion / Living Alone with Type 1 Hi FelixDo you have family members near by at all that you could set up a contact scheme with? Is there a good neighbour who could see that you have opened your curtains in the morning? Is there anyone at work who could get in touch with you/family if you didn't get into work? Do you have a good HbA1C and good hypo awareness? My suggestions would be: Make sure your BI insulin is correct especially overnight, always go to bed with your BG around the 8 mark. Any planned or unplanned exercise before bed, adjust your QA/BI/eat a few more carbs. Have jelly babies or whatever you use for hypos by your bed. Always have your phone by your bed......even if you hypo called someone and talked confusion they would know you needed help. Good luck ![]() Sarah |
Oct 18, 2017
Felix Glenn
26 posts
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Topic: General Discussion / Living Alone with Type 1 Hi Warwick,Thanks so much for the speedy reply - you just getting up, down under? :-) I did Dafne when I was first diagnosed about 7 years ago - it was awesome and I'm queuing for a refresher right now. Lowering carbs in the evening is a good suggestion, thanks. But I guess I'm thinking about a support network, people to check in with in the morning to say 'Hi, I'm alive!' My fear is that I could go low in my sleep (for whatever reason) and simply not wake up. As I'm living alone now, it could be 24 hours or more before anyone comes knocking on the door ... Felix |
Oct 18, 2017
Warwick
425 posts
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Topic: General Discussion / Living Alone with Type 1 Hi Felix,There are a couple of things you could look at. One would be CGM such as the Freestyle Libre. This would show you patterns of how your blood glucose levels trend during the night so you could see trends and then look to correct them. The Libre doesn't have alerting for when you go low unfortunately, but other CGMs do. They tend to be more pricey though. Another thing to look at could be reducing the amount of carbs in your evening meal, so that you don't need to inject as much insulin. This might lead to less hypos. I don't see graduate next to your name, so I assume that you haven't done DAFNE. If that is the case, then I would highly recommend doing a DAFNE course because I think it would give you a lot more confidence about managing your T1D. |
Oct 18, 2017
Felix Glenn
26 posts
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Topic: General Discussion / Anxiety / Stress and Dose Adjustment
Hi Deadly, I hope your work situation has improved somewhat. Stress and anxiety played havoc with my control when my wife left me earlier this year. I agree with JayBee. Diabetes is a disability and your work might be encouraged to engage in discussing ways to reduce the stress on you. Good luck, mate. I'd be interested in your thoughts. Felix |
Oct 18, 2017
Felix Glenn
26 posts
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Topic: General Discussion / Kings Refresher Days Me too! Sounds good, and if it's open to all, I will definitely be attending.I think I'll phone that number to gave @Marke |
Oct 18, 2017
Felix Glenn
26 posts
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Topic: General Discussion / Living Alone with Type 1 Hi,I've recently been forced to live alone for the first time and with Type 1, and I'm so afraid of night hypos I think I'm over compensating. So here's my question: What strategies do people employ to manage night time hypos when they live alone? Hope you can help Felix |
Oct 18, 2017
Warwick
425 posts
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Topic: Carbohydrate Counting / NEWBIE Welcome Happygurl. I find soups are good. Lots of vegetables and you can choose whether to make it with higher carb vegetables like potato and pumpkin, or lower-carb options like kale, mushroom, broccoli etc.As far as exercise goes, I find it is is best to try and incorporate incidental exercise into daily life. For example, I hate commuting on public transport, so I cycle to work and get to work in a much better mood then if I used PT or drove to work. All the best with getting the A1c down. |
Oct 17, 2017
wendyx1961
2 posts
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Topic: Questions for HCPs / Confused.com Was told at diabetic clinic I’m to precise he said with my readings you wouldn’t know I’ve been type 1 for 36 years !!!! I thought the object was to control your diabetes !!! Now their telling me to ease off which I have and my reading are in double figures,so again I’m trying to get them between 6 and 10 which is what they want,I’m so fed up with it now,is their a dafne trained nurse or doctor at James Padgett ??? Cos I really need one right now !!!! |