Recent Posts - DAFNE Online

Dec 5, 2017

JayBee 587 posts

Topic: General Discussion / Libre to be available on the NHS.....

My local CCG will not be issuing any because they do not feel they can justify the cost. The GP I spoke to to find out if I could get it on prescription made it quite clear that it may not be the case forever, but even people who are less able to care for themselves properly compared to me will not be being issued them, so as usual, I have no chance as things currently stand. This does not surprise me at all.

Nov 20, 2017

novorapidboi26 1,819 posts

Topic: General Discussion / Libre to be available on the NHS.....

I was speaking to a young woman on a Facebook page and she said she got prescribed a Libre almost a year ago....

She was painting the picture that whatever she wanted she got, but with all that bravado aside....how is that even possible.....?

She is at the Royal Alexandria in Paisley, Scotland......

Nov 17, 2017

marke 686 posts

Topic: DAFNE Online Mobile / Mobile app refusing to accept details

how do you know there are correct Smile

When was the last time you tried to connect ? We log all connections and upload attempts from apps so if you can provide some more information we can hopefully help you Email us direct using the contact DAFNE Online at the bottom of every page, you will get a quicker response then posting in the forums to be honest as I don't always get to look at the site everyday. So try and enter your credentials again and when you get the error tell us the time and day it occurred and we can check the logs to see what is happening.

Nov 17, 2017

Type1Bri 11 posts

Topic: General Discussion / Running the London Marathon 2018

Cheers Mark, Gav is an inspiration to many. I was on the UK panel of people with diabetes at his global premiere event in Greenwich last week

Nov 17, 2017

marke 686 posts

Topic: General Discussion / Running the London Marathon 2018

good luck and don't let it hold you back !! I met Gavin Griffiths a couple of years ago at a DAFNE event and he is an inspiration and a nice guy ( apart from supporting Palace of course). I updated your post so that you can click on the links so hopefully people will go to the just giving page and you will raise more money.

Nov 17, 2017

marke 686 posts

Topic: General Discussion / URGENT ADVICE NEEDED - Lancet Devices - Discontinuation of One Touch Comfort Lancets

I would encourage you to try to get your DSN's to sort the issue out. Its pointless ( pun intended) to give you lancets that don't fit the device you have. Other people have recommended the SD codefree to me however I would only do it via prescription. I really object to paying for diabetes equipment it should be provided by the NHS, I have spent enough years paying taxes for it and we should NOT be funding our own equipment. If it means throwing the odd hissy-fit at the GP's then you gotta do what you gotta do Evil or Very Mad

Nov 17, 2017

marke 686 posts

Topic: General Discussion / Libre to be available on the NHS.....

I agree with novarapidboi and suspect your GP is bending the truth. I'm not sure the devices are actually on the NHS price list yet, it has not come out this month yet and even then there needs to be discussions in the NHS on this. When I recently had an issue with my GP and tried to complain to the CCG I was told they have no interface to GP's they just commission services i.e pay people like hospital consultants to provide their diabetics with appointments. Its debatable if this extends to dictating what a surgery can and cannot prescribe to patients. Hopefully things will clarify over the next few months and we will see if ANY area of the country is actually prescribing them to patients. If they are not then the whole exercise has been completely pointless as having them available and not letting anyone have them is the same as them not being available....

Nov 17, 2017

Michael Robi... 1 post

Topic: DAFNE Online Mobile / Mobile app refusing to accept details

Hi

My mobile app (iPhone) says my log in credentials are incorrect. I know they are correct but not sure how to make it work so I can upload

Nov 14, 2017

michaelj 45 posts

Topic: General Discussion / URGENT ADVICE NEEDED - Lancet Devices - Discontinuation of One Touch Comfort Lancets

As a short term measure you could get the SD codefree meter and strips. They are the cheapest in the market, strips come in packs of 50 and the lancets are pretty much painless. I've had one now as a spare for 2 years and find it as good as anything else I've used in the past. Yes It doesn't do any singing or dancing technology but the items are easily obtained from Amazon.and would probably be available on prescription. Personally I put a new lancet in each morning and find thats good enough. When hands get cold might take 2 or 3 goes to get a sample with my normal lancet but no problem with the SD lancets.

Nov 14, 2017

novorapidboi26 1,819 posts

Topic: General Discussion / URGENT ADVICE NEEDED - Lancet Devices - Discontinuation of One Touch Comfort Lancets

Fortunately they are free on prescription in the UK............

Like you I only change when its get sore or if its blunts and cant draw blood.....

my fingers are still pretty soft after 19 years too....

Nov 14, 2017

Warwick 426 posts

Topic: General Discussion / Running the London Marathon 2018

Excellent stuff. I ran my fifth marathon (and fourth since diagnosis) 4 weeks ago. I was going to make it my last, but I enjoyed it so much that I know that there is at least one more to do sometime.

The training for a marathon is harder and more boring than the actual event itself. With the streets lined with spectators, you will have a blast running it. Also build up to it slowly to avoid injuries and to make it easier to manage diabetes.

All the best for it.

Nov 14, 2017

Warwick 426 posts

Topic: General Discussion / URGENT ADVICE NEEDED - Lancet Devices - Discontinuation of One Touch Comfort Lancets

It's bad practice but I change lancets about once every 6-8 weeks - only once my fingers start hurting. Are lancets free in the UK? Here in Australia they cost quite a lot and changing after every test would lead to bankruptcy pretty quickly. I'm not unique amongst my diabetic friends, in fact I don't know of anyone here who regularly changes their lancets every time. If they were free or low cost I would.

Nov 13, 2017

novorapidboi26 1,819 posts

Topic: General Discussion / Libre to be available on the NHS.....

Colin McC said:
Type 1 for 51 years. Been using freestyle Libre on & off for 15 months, when I can afford it. When I heard the news of Libre being free on the NHS I went to my GP who said they need authority from the local health authority, where I live is the Kent & Medway. Today I found out that Kent & Medway have told them NOT to prescribe the freestyle Libre on prescription. No reason why given. So for the time being it is a no go for me, & anyone else who live in the Kent & Medway area. If , & it's a big if., this changes I will post another update.

That's a but unfair.......

Should they not agree to prescribe and then decide as each patient asks or is referred by their consultants....

Nov 13, 2017

Alan 49 284 posts

Topic: General Discussion / URGENT ADVICE NEEDED - Lancet Devices - Discontinuation of One Touch Comfort Lancets

I used to use one lancet a week - testing 5 times a day and never had any problems. If by 'double-dipping' you mean using a lancet more than once, that shouldn't be too much of a problem. Your diabetes specialist nurses should have a good supply of finger-prickers and lancets.

Nov 13, 2017

FCJ 2 posts

Topic: General Discussion / URGENT ADVICE NEEDED - Lancet Devices - Discontinuation of One Touch Comfort Lancets

Hi, hope someone can help me.

When I went to collect my prescription I was told my usual one touch comfort lancets have been discontinued and was provided with delica ones instead. These however are much smaller and don't fit any lancet device I have to hand. My lancets will probably run out tomorrow unless I double dip. My GP practice is pretty clueless when it comes to specific items so don't want to request something unnecessarily especially if it's the wrong item(s). The one touch helpline goes straight to a voicemail service.
I use an omnipod pump/meter so have requested a lancet device from them (never got one with my kit) but they won't send any lancets....

Will try the diabetes specialist nurses but they have been unhelpful lately too (short staffed/part time only).

I'm quite annoyed as the one touch comfort lancets (& device) were the least painful I've used especially in winter.

Does anyone have any recommendations? Thanks in advance!
FJ

Nov 10, 2017

Colin McC 15 posts

Topic: General Discussion / Libre to be available on the NHS.....

Type 1 for 51 years. Been using freestyle Libre on & off for 15 months, when I can afford it. When I heard the news of Libre being free on the NHS I went to my GP who said they need authority from the local health authority, where I live is the Kent & Medway. Today I found out that Kent & Medway have told them NOT to prescribe the freestyle Libre on prescription. No reason why given. So for the time being it is a no go for me, & anyone else who live in the Kent & Medway area. If , & it's a big if., this changes I will post another update.

Nov 9, 2017

Type1Bri 11 posts

Topic: General Discussion / Running the London Marathon 2018

After 3 years of being a type 1 I have decided to stop letting it hold me back.
This year I have really got back into exercise, and specifically running.
I am running The London Marathon next year, I hope that in doing so it will raise a lot of awareness around type 1 diabetes and not letting it hold us back in life. I have blogged about my marathon adventure https://type1bri.com/zero-marathon-359-days
I will be raising funds for RNIB on the day, a charity very close to my heart, I have many friends with diabetic retinopathy, and the work the RNIB do is priceless.
Any support you could offer my cause would be amazing
https://www.justgiving.com/fundraising/brian-hoadley-type1bri]

Bri

Oct 29, 2017

chucksabo 2 posts

Topic: Carbohydrate Counting / Carbs and Cals

Also the My Fitness Pal App is really helpful. You can actually scan product packages to find out exact carb information.

Oct 28, 2017

Alan 49 284 posts

Topic: Carbohydrate Counting / Carbs and Cals

I like to have it handy 'just in case'. I don't have a smart phone for apps, but my son has just given me an iPad - I'll have to ask him if I can put apps on that. Thanks novorapidboi.

Oct 26, 2017

novorapidboi26 1,819 posts

Topic: Carbohydrate Counting / Carbs and Cals

there is an app if that is any use to you.....

do you find you need to look back at the book often then?

Oct 26, 2017

Warwick 426 posts

Topic: General Discussion / Exercising safely with T1D - AcT1vate Weekend

Hello All,

Hope it is OK to post this - admins please delete if inappropriate.

This post is mainly for Australian-based DAFNErs, but anyone is welcome.

HypoActive (http://hypoactive.org) is running another AcT1vate weekend for type 1 diabetics who are interested in meeting up with other T1Ds who exercise, attend lectures on how to exercise safely with T1D, participate in some exercise and generally have a whole bunch of fun.

The registration link is here https://www.registernow.com.au/secure/Register.aspx?E=25453

It will be held in Ballarat, Victoria, Australia on the weekend of 2-3 December.

Oct 25, 2017

marke 686 posts

Topic: General Discussion / DAFNE Course Material

absolutely !! Bertie is worth checking and speak to your Diabetes team about structured education , everyone should be offered it and its not just DAFNE. It depends on where you live but everyone should have access to some kind of education and a lot of courses ( including DAFNE) do 5 x 1 day courses over 5 weeks.

Dec 5, 2017 JayBee 587 posts	Topic: General Discussion / Libre to be available on the NHS..... My local CCG will not be issuing any because they do not feel they can justify the cost. The GP I spoke to to find out if I could get it on prescription made it quite clear that it may not be the case forever, but even people who are less able to care for themselves properly compared to me will not be being issued them, so as usual, I have no chance as things currently stand. This does not surprise me at all.

Nov 20, 2017 novorapidboi26 1,819 posts	Topic: General Discussion / Libre to be available on the NHS..... I was speaking to a young woman on a Facebook page and she said she got prescribed a Libre almost a year ago.... She was painting the picture that whatever she wanted she got, but with all that bravado aside....how is that even possible.....? She is at the Royal Alexandria in Paisley, Scotland......

Nov 17, 2017 marke 686 posts	Topic: DAFNE Online Mobile / Mobile app refusing to accept details how do you know there are correct When was the last time you tried to connect ? We log all connections and upload attempts from apps so if you can provide some more information we can hopefully help you Email us direct using the contact DAFNE Online at the bottom of every page, you will get a quicker response then posting in the forums to be honest as I don't always get to look at the site everyday. So try and enter your credentials again and when you get the error tell us the time and day it occurred and we can check the logs to see what is happening.

Nov 17, 2017 Type1Bri 11 posts	Topic: General Discussion / Running the London Marathon 2018 Cheers Mark, Gav is an inspiration to many. I was on the UK panel of people with diabetes at his global premiere event in Greenwich last week

Nov 17, 2017 marke 686 posts	Topic: General Discussion / Running the London Marathon 2018 good luck and don't let it hold you back !! I met Gavin Griffiths a couple of years ago at a DAFNE event and he is an inspiration and a nice guy ( apart from supporting Palace of course). I updated your post so that you can click on the links so hopefully people will go to the just giving page and you will raise more money.

Nov 17, 2017 marke 686 posts	Topic: General Discussion / URGENT ADVICE NEEDED - Lancet Devices - Discontinuation of One Touch Comfort Lancets I would encourage you to try to get your DSN's to sort the issue out. Its pointless ( pun intended) to give you lancets that don't fit the device you have. Other people have recommended the SD codefree to me however I would only do it via prescription. I really object to paying for diabetes equipment it should be provided by the NHS, I have spent enough years paying taxes for it and we should NOT be funding our own equipment. If it means throwing the odd hissy-fit at the GP's then you gotta do what you gotta do

Nov 17, 2017 marke 686 posts	Topic: General Discussion / Libre to be available on the NHS..... I agree with novarapidboi and suspect your GP is bending the truth. I'm not sure the devices are actually on the NHS price list yet, it has not come out this month yet and even then there needs to be discussions in the NHS on this. When I recently had an issue with my GP and tried to complain to the CCG I was told they have no interface to GP's they just commission services i.e pay people like hospital consultants to provide their diabetics with appointments. Its debatable if this extends to dictating what a surgery can and cannot prescribe to patients. Hopefully things will clarify over the next few months and we will see if ANY area of the country is actually prescribing them to patients. If they are not then the whole exercise has been completely pointless as having them available and not letting anyone have them is the same as them not being available....

Nov 17, 2017 Michael Robi... 1 post	Topic: DAFNE Online Mobile / Mobile app refusing to accept details Hi My mobile app (iPhone) says my log in credentials are incorrect. I know they are correct but not sure how to make it work so I can upload

Nov 14, 2017 michaelj 45 posts	Topic: General Discussion / URGENT ADVICE NEEDED - Lancet Devices - Discontinuation of One Touch Comfort Lancets As a short term measure you could get the SD codefree meter and strips. They are the cheapest in the market, strips come in packs of 50 and the lancets are pretty much painless. I've had one now as a spare for 2 years and find it as good as anything else I've used in the past. Yes It doesn't do any singing or dancing technology but the items are easily obtained from Amazon.and would probably be available on prescription. Personally I put a new lancet in each morning and find thats good enough. When hands get cold might take 2 or 3 goes to get a sample with my normal lancet but no problem with the SD lancets.

Nov 14, 2017 novorapidboi26 1,819 posts	Topic: General Discussion / URGENT ADVICE NEEDED - Lancet Devices - Discontinuation of One Touch Comfort Lancets Fortunately they are free on prescription in the UK............ Like you I only change when its get sore or if its blunts and cant draw blood..... my fingers are still pretty soft after 19 years too....

Nov 14, 2017 Warwick 426 posts	Topic: General Discussion / Running the London Marathon 2018 Excellent stuff. I ran my fifth marathon (and fourth since diagnosis) 4 weeks ago. I was going to make it my last, but I enjoyed it so much that I know that there is at least one more to do sometime. The training for a marathon is harder and more boring than the actual event itself. With the streets lined with spectators, you will have a blast running it. Also build up to it slowly to avoid injuries and to make it easier to manage diabetes. All the best for it.

Nov 14, 2017 Warwick 426 posts	Topic: General Discussion / URGENT ADVICE NEEDED - Lancet Devices - Discontinuation of One Touch Comfort Lancets It's bad practice but I change lancets about once every 6-8 weeks - only once my fingers start hurting. Are lancets free in the UK? Here in Australia they cost quite a lot and changing after every test would lead to bankruptcy pretty quickly. I'm not unique amongst my diabetic friends, in fact I don't know of anyone here who regularly changes their lancets every time. If they were free or low cost I would.

Nov 13, 2017 novorapidboi26 1,819 posts	Topic: General Discussion / Libre to be available on the NHS..... Colin McC said: Type 1 for 51 years. Been using freestyle Libre on & off for 15 months, when I can afford it. When I heard the news of Libre being free on the NHS I went to my GP who said they need authority from the local health authority, where I live is the Kent & Medway. Today I found out that Kent & Medway have told them NOT to prescribe the freestyle Libre on prescription. No reason why given. So for the time being it is a no go for me, & anyone else who live in the Kent & Medway area. If , & it's a big if., this changes I will post another update. That's a but unfair....... Should they not agree to prescribe and then decide as each patient asks or is referred by their consultants....

Nov 13, 2017 Alan 49 284 posts	Topic: General Discussion / URGENT ADVICE NEEDED - Lancet Devices - Discontinuation of One Touch Comfort Lancets I used to use one lancet a week - testing 5 times a day and never had any problems. If by 'double-dipping' you mean using a lancet more than once, that shouldn't be too much of a problem. Your diabetes specialist nurses should have a good supply of finger-prickers and lancets.

Nov 13, 2017 FCJ 2 posts	Topic: General Discussion / URGENT ADVICE NEEDED - Lancet Devices - Discontinuation of One Touch Comfort Lancets Hi, hope someone can help me. When I went to collect my prescription I was told my usual one touch comfort lancets have been discontinued and was provided with delica ones instead. These however are much smaller and don't fit any lancet device I have to hand. My lancets will probably run out tomorrow unless I double dip. My GP practice is pretty clueless when it comes to specific items so don't want to request something unnecessarily especially if it's the wrong item(s). The one touch helpline goes straight to a voicemail service. I use an omnipod pump/meter so have requested a lancet device from them (never got one with my kit) but they won't send any lancets.... Will try the diabetes specialist nurses but they have been unhelpful lately too (short staffed/part time only). I'm quite annoyed as the one touch comfort lancets (& device) were the least painful I've used especially in winter. Does anyone have any recommendations? Thanks in advance! FJ

Nov 10, 2017 Colin McC 15 posts	Topic: General Discussion / Libre to be available on the NHS..... Type 1 for 51 years. Been using freestyle Libre on & off for 15 months, when I can afford it. When I heard the news of Libre being free on the NHS I went to my GP who said they need authority from the local health authority, where I live is the Kent & Medway. Today I found out that Kent & Medway have told them NOT to prescribe the freestyle Libre on prescription. No reason why given. So for the time being it is a no go for me, & anyone else who live in the Kent & Medway area. If , & it's a big if., this changes I will post another update.

Nov 9, 2017 Type1Bri 11 posts	Topic: General Discussion / Running the London Marathon 2018 After 3 years of being a type 1 I have decided to stop letting it hold me back. This year I have really got back into exercise, and specifically running. I am running The London Marathon next year, I hope that in doing so it will raise a lot of awareness around type 1 diabetes and not letting it hold us back in life. I have blogged about my marathon adventure https://type1bri.com/zero-marathon-359-days I will be raising funds for RNIB on the day, a charity very close to my heart, I have many friends with diabetic retinopathy, and the work the RNIB do is priceless. Any support you could offer my cause would be amazing https://www.justgiving.com/fundraising/brian-hoadley-type1bri] Bri

Oct 29, 2017 chucksabo 2 posts	Topic: Carbohydrate Counting / Carbs and Cals Also the My Fitness Pal App is really helpful. You can actually scan product packages to find out exact carb information.

Oct 28, 2017 Alan 49 284 posts	Topic: Carbohydrate Counting / Carbs and Cals I like to have it handy 'just in case'. I don't have a smart phone for apps, but my son has just given me an iPad - I'll have to ask him if I can put apps on that. Thanks novorapidboi.

Oct 26, 2017 novorapidboi26 1,819 posts	Topic: Carbohydrate Counting / Carbs and Cals there is an app if that is any use to you..... do you find you need to look back at the book often then?

Oct 26, 2017 Warwick 426 posts	Topic: General Discussion / Exercising safely with T1D - AcT1vate Weekend Hello All, Hope it is OK to post this - admins please delete if inappropriate. This post is mainly for Australian-based DAFNErs, but anyone is welcome. HypoActive (http://hypoactive.org) is running another AcT1vate weekend for type 1 diabetics who are interested in meeting up with other T1Ds who exercise, attend lectures on how to exercise safely with T1D, participate in some exercise and generally have a whole bunch of fun. The registration link is here https://www.registernow.com.au/secure/Register.aspx?E=25453 It will be held in Ballarat, Victoria, Australia on the weekend of 2-3 December.

Oct 25, 2017 marke 686 posts	Topic: General Discussion / DAFNE Course Material absolutely !! Bertie is worth checking and speak to your Diabetes team about structured education , everyone should be offered it and its not just DAFNE. It depends on where you live but everyone should have access to some kind of education and a lot of courses ( including DAFNE) do 5 x 1 day courses over 5 weeks.