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Dec 5, 2010
JayBee
587 posts
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Topic: General Discussion / glargine Sounds likely - I've had the same problem when I was still on Lantus... I found my 10pm jab was running out around 2pm in the afternoon the next day so the highs would appear! I got changed over to Levemir because it is "meant" to be a split dose after a while of still having problems with lantus... not been on Levemir long so I'm still working out my doses even now.If the highs seem to be now gone, good - and best wishes with resolving all the issues if any more pop up! 
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Dec 5, 2010
saxman
28 posts
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Topic: General Discussion / glargine i split my lantus to 20 before bed and 10 twelve hrs later and so far i dont have a dramatic bg rise after ten hrs,am hoping its as simple as this |
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Dec 5, 2010
JayBee
587 posts
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Topic: Carbohydrate Counting / Frozen oven chips I know what you mean... I usually end up waiting the 5 hours to be honest... but I guess if one must eat, perhaps a carb free snack for the sake of experimentation? If I end up eating anything, I usually make sure it's after 4 hours or I have 0.5 CPs max.You do leave it quite a long time afterwards... is there any particular reason why you delay your insulin so much? Pre-DAFNE I was told off for doing that sort of thing so I try to jab when I do my blood test pre-meal. No worries - don't ask, don't know! I did notice this thread a few topics down... any good for this question? This is reminding me of the hassle I've had with pasta and rice... it's usually best to weigh them before cooking so you don't get the weight distorted by water. Potato doesn't have exactly the same problem, but how it's cooked does... I mean, look at the jacket potatoes bit in the CP book... blinking confusing when some of us microwave and then stick it in an oven (or is it the other way around? I forget lol). |
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Dec 5, 2010
Steven
18 posts
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Topic: Carbohydrate Counting / Frozen oven chips Well I've slept since the course so I *think* that's what she said but I could have misunderstood or misremembered :-)I tend to have small snacks between meals (mainly Mon - Fri) so I don't normally fast for 5 hours at a time! Last Friday my BG was 6.7 at around 18:30 before having chips as part of my tea, then I probably did my QA injection about 19:15, after eating, then at 22:30 before having some supper (and beer!) it was 12.5, so it seemed like I hadn't covered all the CPs I'd eaten at tea time :-/ Still learning though! |
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Dec 5, 2010
JayBee
587 posts
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Topic: Carbohydrate Counting / Frozen oven chips Wow - my DSN said nothing as general as that about this sort of thing...! How strange considering there's the stated potential for it working for up to 5 hours - shouldn't always assume it will be 3 hours, especially when how insulin responds purely depends on the individual. I'd love for Humalog to work for me for 3 hours, but that looks very unlikely based on my results. :/Those graphs mainly show peak working times - this doesn't necessarily mean that the insulin has finished though. My DSN recommended that you give it a chance to finish - unless you've managed to find hard evidence that it runs out for you personally after 3 hours? I mean, have you done a check after the 4 or 5 hour marker to prove that it's still not going down? Either way, good luck with working this out. Must be annoying. o_o |
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Dec 5, 2010
Steven
18 posts
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Topic: Carbohydrate Counting / Frozen oven chips Thanks to both of you.I'm on NovoRapid, so that's 2-5 hours according to the handbook, although I thought the DSN on the course reckoned that after 3 hours there wasn't very much insulin left working. It seems to show that on the graph too. Good point Stew - I had forgotten about the slower absorption. I always inject after tea anyway just so I know for sure how many CPs I've eaten, but at breakfast I always inject beforehand. I'll carry on using the figures on the packet for now and see how it goes. Got another blood test coming up this week so fingers crossed! Cheers Steven |
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Dec 5, 2010
Stew B
125 posts
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Topic: Carbohydrate Counting / Frozen oven chips I remember from my DAFNE course that things like fish and chips and some Asian foods which can be quite "greasy" block the absorption of carbs and thus take a long while to enter the system. Meanwhile your QA carries on as normal and can be well past its peak before the carbs are fully into the system - hence a higher reading than expected. I always inject after eating for fish and chips (including oven chips) - for some foods I find waiting 45 mins to an hour later before injecting is necessary (I use the packaging amounts). Might be worth trying?Stew |
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Dec 5, 2010
JayBee
587 posts
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Topic: Carbohydrate Counting / Frozen oven chips I apply the cooked packaging facts before the DAFNE carb counting stuff usually - with no problems yet.By the way, your insulin is very likely to be still working about 2-3 hours after you've eaten so highs are not that surprising. What QA insulin are you using and what does the DAFNE guidebook say about it's working time? Are you testing after it has finished working? I'm on Humalog and that last 5 hours odd... so testing 2-3 hours after eating is not likely to be a genuine result when trying to find out what effect the food has on your sugar levels. |
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Dec 5, 2010
Brian Trench
17 posts
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Topic: DUAG Committee / 5 x 1 a day investigator meeting Hi Emma,I think you will find a welcome for any DUAG member that wishes to assist. On the question of expenses I have had mine paid by the Sheffield researches without any hassle when I have attended the research study meetings and payment was much quicker than N Tyneside! Let us all know how you get on. Regards, Brian |
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Dec 5, 2010
Steven
18 posts
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Topic: Carbohydrate Counting / Frozen oven chips Hi all,We have McCain HomeFries, which according to the packet have 21g carbs per 100g frozen and 28g per 100g when oven baked. I tend to have around 200g worth (when frozen), so I reckon that's 4 CPs. It doesn't seem to be working out though as my BG 2-3 hours later is normally in double figures even when in the correct range before eating. In the CP list it says 100g chips is 3 CPs, but it doesn't say whether that's oven chips, frozen, cooked or what. What does everyone else use for oven chips please? Thanks in advance Steven |
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Dec 4, 2010
emmacool
17 posts
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Topic: DUAG Committee / 5 x 1 a day investigator meeting hi alli recieved an email regarding the above meeting which is due to take place in sheffield on monday 10th jan as ian and i were involved in the initial stage of this would anyone have any objections to me attending the above meeting, also would i have to email clair to arrange travel for this? emma x |
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Dec 3, 2010
Rashid
3 posts
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Topic: General Discussion / Insurance for pump Hi Kid127I also have a combo (that's the one with the Bluetooth remote) but I was told it was worth £5000 so haven't insured it as yet, as no one would cover it. |
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Dec 3, 2010
Sbee1980
7 posts
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Mia, I am in the same boat as you - I had my appointment 6 weeks ago and asked about pre-conception care. I have a little girl who is 4yr and would like to try for another baby next year. My hospital take this very seriously when you are diabetic, and I have been type 1 for 21 years now. My control was appalling before DAFNE and I have done really well since graduating a year ago but still need to tighten my control a lot before they will give me the go-ahead to get pregnant. The general process at my hospital is 6 month pre-conception care with a diabetes specialist midwife and then careful monitoring once you have stopped the contraception! Good luck. If you want to inbox me I am happy to discuss what they have advised me! Sarah |
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Dec 3, 2010
JayBee
587 posts
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Topic: Site Development / Online BG Diaries Many thanks! <3 |
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Dec 3, 2010
John Stevens
9 posts
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Topic: Site Development / DAFNE Online iPhone application - help with content/design needed Hi Simon,Great App. Wish I could help out with development. One thing, and it may be a local DAFNE interpretation, but we were taught to actually note corrections in Paper diaries with a + before the corrective insulin dose or CP. ie, if we are BG high, and not eating any CP, we would put a +1 in QA. Same if we are taking BI and need to add QI for a correction. Everytime I try to do this (on the odd occation) I get a message about the wrong format. I assume the Correction type is to take care of this, but if I am doing this Before Bed, then the type is wrong one way or the other. I have noticed that the summary page only shows entries that have the X+Y, or X-Y format. I think it would be better if we could include +/-X entries as well, so it is easier to enter a corrective dose. Anyway, just a suggestion/request. Not overly concerned with HbA1C, but the ketones suggestion previously made would be good. Like the paper diaries. Cheers John |
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Dec 2, 2010
Garry
328 posts
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Topic: Site Development / Online BG Diaries Works well.Thanks to you again Simon. Regards Garry |
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Dec 2, 2010
Simon
578 posts
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Topic: Site Development / Online BG Diaries OK guys you can now add your Ketone information to the online diary! |
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Dec 2, 2010
kid127
25 posts
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Topic: General Discussion / Insurance for pump Hi Rashid,What sort of pump do you have? I have accu-chek combo and was told it was worth £2500 but I insured it for £3000 anyway |
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Dec 2, 2010
Rashid
3 posts
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Topic: General Discussion / Insurance for pump Ive hac my pump for a while but I still haven't found a company that will cover it, the maximum they say they that can give on a single item is £3000 but I've been told my pump is worth considerably more! Any help? |
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Dec 1, 2010
Rashid
3 posts
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Topic: General Discussion / iPhone App Hi I've just found the iPhone app too, even though I have searched for lots of diabetes apps before) the only way I came across this was using the genius feature in the app store. Nonetheless it's very good! Thankyou it means I don't have to carry the booklet around with me and look Like a trainspotter lol. Can I suggest for the next release you add the ability to 'make a plate' it's common on a number of other apps and is very useful, would also be good to save favourite foods. Thanks again |
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Dec 1, 2010
vic demain
87 posts
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Topic: General Discussion / Advice on Diabetes Doctors Hi Mia, don't know where in London you are but I have found Hillingdon Hospital Diabeticare to be very good.Vic. |
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Dec 1, 2010
HelenP
218 posts
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Topic: Questions for HCPs / wound healing Final update (I hope),Just back from the plastic surgeon and the surgery scheduled for 14/12/10 has been cancelled! He is happy to leave it but has requested I keep an eye on it as it is still probably the weakest section of the scar and if it erupts, volcano like (my term not his), I am to go back and see him! I go back and see the original surgeon in the first half of January and he will check it then also. The plastic surgeon will send a report to the original surgeon. All over Red Rover! Thanks, Helen. |
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Nov 30, 2010
HelenP
218 posts
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Topic: General Discussion / Advice on Diabetes Doctors Chixistix,I found myself in a similar situation when I went to a new Endocrinologist. Her assessment of me after 45 mins was: I did not take the diabetes seriously, did not do the number of tests I said I did (3100 in 19 months!), did not understand hypoglycaemic symptoms and had reduced ability to recognize hypoglycaemia and my right to drive ought to be reassessed immediately. This was all included in a report sent to my GP. My GP read the report to me...I was astounded! I asked what he thought and he said that he had not seen any evidence of my not taking the diabetes seriously. This he saw as the most damaging of the opinions. It is now 20 months since that report and I have spent the best part of that time systematically "proving" the inaccuracy of that report. I have a new licence signed by the GP last week. I think you have to assess what your options are and make a plan. I decided to tell my new endocrinologist about the report as significant elements of it were mentioned in my GP referral. The new Endocrinologist was a little surprised as my HbA1cs had consistently been under 8 since Dafne. I still have "reduced capacity to recognize hypoglycaemia" on my management plan but that is my next goal...to have that removed or at least qualified. The anger is useless if it is not marshalled to rectify the situation. You can do this...but it could take time. I am happy with the new endocrinologist and am still working on the GP but I think he has a degree of respect as I have worked systematically through the issues on the report and he did give me my licence rather than whip it away on her say so. Good luck, Excellent diabetes consultants are out there! Marke, re licences. Here in Qld/Australia we have a new piece of legislation called Jett's Law that was introduced after a 4yr old was killed in a car accident involving a driver who experienced a seizure. The way the law is written is that if you have an "incident" (technically, a hypo) you are not supposed to drive for 6 weeks. The legislation includes ALL medical conditions. It has yet to be tested regards diabetes. The original endocrinologist who wrote the damning report had been to a seminar the day before seeing me. My GP had been to the same seminar so recognized from where she was coming. Timing is everything! |
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Nov 30, 2010
marke
686 posts
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Topic: General Discussion / Advice on Diabetes Doctors Hi, the complete list of DAFNE centres is here . There are a number of london ones in the list, if you email us and tell us which is closest to you we can pass your contact details onto the DAFNE team at that centre via the DAFNE Programme Office. I won't ask you to post any personal information in the forums, this is not facebook :-)You can contact us using the link at the bottom of every page. You do have a choice in which hospital you attend and even which consultant you see. Although obviously sometimes you can end up jumping out of the frying pan into the fire. I am loath to criticise HCP's since many do very long hours and are very dedicated. Unfortunately sometimes their people skills are not all they could be, one once told me I could lose my driving license because I had a few hypo's. The next time I saw my normal consultant as well as reassuring me he promised to have a word with the younger consultant about his 'people' skills. Most are very good, but occasionally like all disciplines there are a few that could improve. |
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Nov 30, 2010
marke
686 posts
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Topic: DUAG Committee / Update for DUAG on DAFNE NIHR Research programme Brief Summary of DUAG representation on DAFNE Research Programmes - November 2010Dear DUAG member, At the inaugural meeting of DUAG in 2009 we introduced the current research themes for which we hoped you would be able to provide User input. We were delighted that members volunteered to be involved in the Research Steering Group and also the first 2 active research projects. Unfortunately, due to unforeseen circumstances, some members have needed to step down and we thank them for their interest and their time spent. We welcome all new members who have joined the groups.
Involvement: Listening to those actively involved in DAFNE is essential to ensure that research is targeted correctly. Research projects can be started and suggested not only by the professional research investigator but also by other interested parties, in particular DAFNE users. Our DAFNE educators, who are listening to the views of their graduates, are able to discuss with fellow DAFNE educators. You as users have your own forums, such as Dafneonline, DUG and DUAG. DAFNE researchers have been listening both informally, when observing courses, and formally in interviews, to both graduates and educators. We now have an opportunity to listen further to those interested in the development of effective follow up support for DAFNE graduates, particularly to those who are still have problems with their diabetes control. Invitation: We would like to invite members of DUAG to represent the user view and get actively involved in the development of the research around a Repeaters intervention. There are no decisions as yet on the type of intervention and we would like to hear from you as representatives of the wider DAFNE community. The initial exploratory meeting to discuss a repeater intervention will be held in Sheffield on January 14th 2011 Starting at 10.30 and finishing at 2.30 pm. Places are limited but we would like to ensure that users are well represented and would ask that you indicate by December 10th 2010 if you would be able to attend. Attendance at these meeting will be supported by the DAFNE NIHR Project Office as for all DAFNE meetings as outlined in the terms of reference. For those who may not have attended a research meeting before, we will provide prior information on the format and the background to the project. Thank you for your continued support and hope we may see you in the near future. Best wishes Celia Emery Project Manager Simon Heller Programme Lead PS The DAFNE Project Office is moving 30th November 2010, telephone, fax number and email remains the same. See below Dr Celia Emery 11 Broomfield Road, Sheffield,S10 2SE Tel 0114 2265909 Fax 0114 2711593 |