Recent Posts
Search the DAFNE Online Forums
15,849 posts found
|
Dec 2, 2010
Garry
328 posts
|
Topic: Site Development / Online BG Diaries Works well.Thanks to you again Simon. Regards Garry |
|
Dec 2, 2010
Simon
578 posts
|
Topic: Site Development / Online BG Diaries OK guys you can now add your Ketone information to the online diary! |
|
Dec 2, 2010
kid127
25 posts
|
Topic: General Discussion / Insurance for pump Hi Rashid,What sort of pump do you have? I have accu-chek combo and was told it was worth £2500 but I insured it for £3000 anyway |
|
Dec 2, 2010
Rashid
3 posts
|
Topic: General Discussion / Insurance for pump Ive hac my pump for a while but I still haven't found a company that will cover it, the maximum they say they that can give on a single item is £3000 but I've been told my pump is worth considerably more! Any help? |
|
Dec 1, 2010
Rashid
3 posts
|
Topic: General Discussion / iPhone App Hi I've just found the iPhone app too, even though I have searched for lots of diabetes apps before) the only way I came across this was using the genius feature in the app store. Nonetheless it's very good! Thankyou it means I don't have to carry the booklet around with me and look Like a trainspotter lol. Can I suggest for the next release you add the ability to 'make a plate' it's common on a number of other apps and is very useful, would also be good to save favourite foods. Thanks again |
|
Dec 1, 2010
vic demain
87 posts
|
Topic: General Discussion / Advice on Diabetes Doctors Hi Mia, don't know where in London you are but I have found Hillingdon Hospital Diabeticare to be very good.Vic. |
|
Dec 1, 2010
HelenP
218 posts
|
Topic: Questions for HCPs / wound healing Final update (I hope),Just back from the plastic surgeon and the surgery scheduled for 14/12/10 has been cancelled! He is happy to leave it but has requested I keep an eye on it as it is still probably the weakest section of the scar and if it erupts, volcano like (my term not his), I am to go back and see him! I go back and see the original surgeon in the first half of January and he will check it then also. The plastic surgeon will send a report to the original surgeon. All over Red Rover! Thanks, Helen. |
|
Nov 30, 2010
HelenP
218 posts
|
Topic: General Discussion / Advice on Diabetes Doctors Chixistix,I found myself in a similar situation when I went to a new Endocrinologist. Her assessment of me after 45 mins was: I did not take the diabetes seriously, did not do the number of tests I said I did (3100 in 19 months!), did not understand hypoglycaemic symptoms and had reduced ability to recognize hypoglycaemia and my right to drive ought to be reassessed immediately. This was all included in a report sent to my GP. My GP read the report to me...I was astounded! I asked what he thought and he said that he had not seen any evidence of my not taking the diabetes seriously. This he saw as the most damaging of the opinions. It is now 20 months since that report and I have spent the best part of that time systematically "proving" the inaccuracy of that report. I have a new licence signed by the GP last week. I think you have to assess what your options are and make a plan. I decided to tell my new endocrinologist about the report as significant elements of it were mentioned in my GP referral. The new Endocrinologist was a little surprised as my HbA1cs had consistently been under 8 since Dafne. I still have "reduced capacity to recognize hypoglycaemia" on my management plan but that is my next goal...to have that removed or at least qualified. The anger is useless if it is not marshalled to rectify the situation. You can do this...but it could take time. I am happy with the new endocrinologist and am still working on the GP but I think he has a degree of respect as I have worked systematically through the issues on the report and he did give me my licence rather than whip it away on her say so. Good luck, Excellent diabetes consultants are out there! Marke, re licences. Here in Qld/Australia we have a new piece of legislation called Jett's Law that was introduced after a 4yr old was killed in a car accident involving a driver who experienced a seizure. The way the law is written is that if you have an "incident" (technically, a hypo) you are not supposed to drive for 6 weeks. The legislation includes ALL medical conditions. It has yet to be tested regards diabetes. The original endocrinologist who wrote the damning report had been to a seminar the day before seeing me. My GP had been to the same seminar so recognized from where she was coming. Timing is everything! |
|
Nov 30, 2010
marke
681 posts
|
Topic: General Discussion / Advice on Diabetes Doctors Hi, the complete list of DAFNE centres is here . There are a number of london ones in the list, if you email us and tell us which is closest to you we can pass your contact details onto the DAFNE team at that centre via the DAFNE Programme Office. I won't ask you to post any personal information in the forums, this is not facebook :-)You can contact us using the link at the bottom of every page. You do have a choice in which hospital you attend and even which consultant you see. Although obviously sometimes you can end up jumping out of the frying pan into the fire. I am loath to criticise HCP's since many do very long hours and are very dedicated. Unfortunately sometimes their people skills are not all they could be, one once told me I could lose my driving license because I had a few hypo's. The next time I saw my normal consultant as well as reassuring me he promised to have a word with the younger consultant about his 'people' skills. Most are very good, but occasionally like all disciplines there are a few that could improve. |
|
Nov 30, 2010
marke
681 posts
|
Topic: DUAG Committee / Update for DUAG on DAFNE NIHR Research programme Brief Summary of DUAG representation on DAFNE Research Programmes - November 2010Dear DUAG member, At the inaugural meeting of DUAG in 2009 we introduced the current research themes for which we hoped you would be able to provide User input. We were delighted that members volunteered to be involved in the Research Steering Group and also the first 2 active research projects. Unfortunately, due to unforeseen circumstances, some members have needed to step down and we thank them for their interest and their time spent. We welcome all new members who have joined the groups.
Involvement: Listening to those actively involved in DAFNE is essential to ensure that research is targeted correctly. Research projects can be started and suggested not only by the professional research investigator but also by other interested parties, in particular DAFNE users. Our DAFNE educators, who are listening to the views of their graduates, are able to discuss with fellow DAFNE educators. You as users have your own forums, such as Dafneonline, DUG and DUAG. DAFNE researchers have been listening both informally, when observing courses, and formally in interviews, to both graduates and educators. We now have an opportunity to listen further to those interested in the development of effective follow up support for DAFNE graduates, particularly to those who are still have problems with their diabetes control. Invitation: We would like to invite members of DUAG to represent the user view and get actively involved in the development of the research around a Repeaters intervention. There are no decisions as yet on the type of intervention and we would like to hear from you as representatives of the wider DAFNE community. The initial exploratory meeting to discuss a repeater intervention will be held in Sheffield on January 14th 2011 Starting at 10.30 and finishing at 2.30 pm. Places are limited but we would like to ensure that users are well represented and would ask that you indicate by December 10th 2010 if you would be able to attend. Attendance at these meeting will be supported by the DAFNE NIHR Project Office as for all DAFNE meetings as outlined in the terms of reference. For those who may not have attended a research meeting before, we will provide prior information on the format and the background to the project. Thank you for your continued support and hope we may see you in the near future. Best wishes Celia Emery Project Manager Simon Heller Programme Lead PS The DAFNE Project Office is moving 30th November 2010, telephone, fax number and email remains the same. See below Dr Celia Emery 11 Broomfield Road, Sheffield,S10 2SE Tel 0114 2265909 Fax 0114 2711593 |
|
Nov 30, 2010
JayBee
587 posts
|
Topic: General Discussion / What are you reading? That's quite impressive meltow! How young were you when you decided to start keeping track? I wish I kept track now! XD I've done a bit of hobby reviewing in my time but I stopped doing that a year or so ago.I think I will see if I would enjoy all these authors we have mentioned - Besides Lee Childs, I'm not sure I've heard of them, which is good - fresh meat so to speak! Thanks for your responses! I got around (finally) to finishing a series I started a few months back - the Aldebaran comic series. This review explains it nicely. I did find it a good sci-fi read and definitely recommend it. I, unfortunately, only grabbed the first set of this series so I shall have to get the Betelgeuse books another time! D'oh! |
|
Nov 30, 2010
JayBee
587 posts
|
Topic: General Discussion / Advice on Diabetes Doctors Ah I see. Difficult, but if you are being made uncomfortable, I would report him. Your health is not a joke and sometimes people like that need to be given a clue - but I do understand your feelings. Try applying for a doctor change within the hospital and see how you go if you're not prepared to report him (no shame if you don't, okay?).Hey we were once DAFNE neighbours - cool! I'm very surprised that you're having this trouble considering you live in London... I wonder if there's anyone on here that could suggest someone to contact.... http://www.dafne.uk.com/contact.php maybe a good place to start if not. The main office contact is on the right hand side if you want to give them a ring and find out where the DAFNE teams are stationed in London. Good luck! |
|
Nov 30, 2010
chixystix
10 posts
|
Topic: General Discussion / Advice on Diabetes Doctors it's hard isn't it - i don't know if i should report him or not, i don't want all the other doctors to think of me as 'the patient that got our friend in trouble'. and he's sort of mean in a jokey tone of voice. arrrgh.i did my DAFNE course in norwich then moved immediately to london, so i didn't have any dafne follow up and don't really have a team as such. i'm trying to get an appointment with the DAFNE coordinator at my new hospital but so far no luck, i'll keep trying. I wish I hadn't moved! The norwich team are lovely! |
|
Nov 30, 2010
JayBee
587 posts
|
Topic: General Discussion / Advice on Diabetes Doctors If they're as bad as they sound, I'd at least see about reporting that particular doctor. There must be another doctor available in the same hospital perhaps if you must change...Have you contacted your DAFNE team for advice? They might be more helpful considering even my 'normal' hospital doctor still has to be DAFNE trained.. and I know my GP is somewhat intimidated by it because he doesn't understand it (bless him, he put down my current BI dose amounts on the box when I asked for a prescription despite being aware it shifts when I first met him lol). Ah, how times are changing.. yet it takes so long for the changes to be fully applied! |
|
Nov 30, 2010
chixystix
10 posts
|
Topic: General Discussion / Advice on Diabetes Doctors So I just got back from my 'Annual Review' at the hospital. I've been waiting 18 months for an appointment, my diabetes is completely out of control and my husband and I want to start trying for a baby soon. So I turned up ready to hold my hands up and ask for a lot of help.It basically couldn't have gone worse. The consultant remembered me from my last appointment when we had a disagreement and seemed determined not to help me. (at my last appointment he was insisting i change my insulin doses due to one hypo in my diary, but it was a hypo I could explain so I didn't want to). He'd written in his notes that we'd disagreed before and started laughing when he read it. I told him i wanted to get pregnant and his advice was take folic acid, and dont' have any hypos or your baby will die. I showed him my erratic blood sugars and he said 'what's the problem? are you having too many hypos? your sugars are fine' (they vary between 3 and 17). He said my thyroid levels were wrong and accused me of not taking my medication, when i said i did he said 'i don't believe you.' Despite it being an annual review noone checked my feet or eyes, i didn't see a dietician or a nurse, apart from for my blood tests. I'm so desperate for help and don't know who to turn to. My GPs are nice but their diabetes knowledge is very limited, and DAFNE is a mystery to them. Every hospital appointment I've had in the last 10 years it seems there's a different consultant - some great, but with no follow up because they disappear - and some clueless. Can anyone offer any advice? I'm in London, so don't know if I can be referred to a different hospital? And if i can, does anyone have any recommeendations? I'm so angry right now! Mia x |
|
Nov 30, 2010
JayBee
587 posts
|
Topic: Site Development / Online BG Diaries It doesn't surprise me that most of us are rather neglectful of our ketone checking - I rarely did it pre-DAFNE myself.... but that was pre-DAFNE, not now.It can be a big help for when your sick or to give you advance warning when an illness is coming... I've had this happen to me from the common cold I had very recently. Unfortunately the spells of ketones and good sugar levels were confusing at first - then the cold kicked in and all became clear and things got resolved very quickly because I responded accordingly!  You may be finding that you're taking a lot longer to recover from illness simply because you're not dealing with your ketones when ill properly. The DAFNE sick day rules are very much ketones dependant after all - it does make sense to check for them (and record them!). I'm happy to use the traditional - / + symbols at the moment considering I use the stix. Shall have to see what the conversion is for the machine test strips later perhaps... if I get a machine like my DAFNE nurse suggested after my common cold spell (hinted that I may be ketones sensitive? Not sure what that means exactly). With how this discussion is going, can I point out this: Page 11 of the DAFNE Guidebook (under Metabolic Control):
I think it's more important than we're happy to admit. |
|
Nov 30, 2010
novorapidboi26
1,819 posts
|
Topic: General Discussion / NEED HELP thanks for all the advice guys n gals....... |
|
Nov 29, 2010
saxman
28 posts
|
Topic: General Discussion / glargine thanks for all the feedback, will post my results soon. |
|
Nov 29, 2010
HelenP
218 posts
|
Topic: General Discussion / NEED HELP Lots of water, lots of tests and lots of sleep. Get well soon.When you are well discuss with your diabetes consultant possible variation to the Dafne rules. I am on high doses of insulin and have discussed extra "correction" injections mid meals (depending on Bgs) and while this does lead to "insulin stacking" the additional doses are only small and with everything else going on when you are sick, with care/vigilance it can smooth out the BGs. My advice here is to discuss it first...do not try this at home! Helen |
|
Nov 29, 2010
HelenP
218 posts
|
Topic: Site Development / Online BG Diaries I also have a Optium Xceed but I need the keytone strips so infrequently that when I reach for them they are out of date...and I feel too sick to go out and get more! And when you are well ... Helen |
|
Nov 29, 2010
HelenP
218 posts
|
Topic: General Discussion / glargine I also was having probs with Lantus lasting and after much trial (and error) and support from the Endocrinologist now have Lantus in split doses. 6:00am 55% and 6:00pm 45%. When we first split the dose I was on about 80% at 6:00am and the rest before going to bed but the current regime works well especially overnight (no supper though!). I think what you really have to do is watch what insulin is working when. Periods with no carbs makes this assessment easier (although I believe you have to watch the very low GI carbs as they can have a crucial and disproportionate effect). Five hours after my evening meal there is no more QA and having had no more food the Lantus just keeps doing its thing. However if I do have something to eat (and I sometimes do) I have to cover it ...even 1CP. I watch the info people post re doses etc and am constantly amazed at the variation. It really is so individual! Good luck. |
|
Nov 29, 2010
Jenny Spollen
13 posts
|
Topic: General Discussion / Levemir versus Lantus Pre- DAFNE I was on a single dose of Lantus but it turned out that it was not lasting the full 24 hours...far less in fact. Got switched to split-dose of Levemir but that was def far from suitable. Absolutely no rhyme nor reason to any of my readings and had an adverse reaction to it. Currently on a split does of Lantus. Still not ideal but def way better than before and the flexibility that comes with splitting the dose is a def plus!Best of luck  Jenny |
|
Nov 29, 2010
SimonC
78 posts
|
Topic: General Discussion / glargine Split the Lantus - that what I do, I was on 28 at 2100hrs daily, I noticed it wasn't lasting the full 24hrs and so changed to 14 at 0900 and 14 at 2100, and this works for me.If you get on with the Lantus try splitting first, if you want to go to the Levamir, tell your team the lantus isn't working and convince them to change you over. |
|
Nov 29, 2010
saxman
28 posts
|
Topic: General Discussion / glargine im taking lantus as my bi,a pattern has emerged over the last week to suggest it stops working after ten hours has anyone else noticed the same, im thinking of changing to levamir to possibly split the dose? any thoughts?? |
|
Nov 29, 2010
caroline15
45 posts
|
Topic: Site Development / Online BG Diaries There's two different types of test strips, one for blood glucose and one for ketones.http://www.abbottdiabetescare.co.uk/your-products/optium-xceed/testing-strips |